26 results on '"Aline Gubrium"'
Search Results
2. A New Title, a New Focus: Community Health Equity Research and Policy
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Kathryn Pitkin Derose and Aline Gubrium
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Focus (computing) ,Health (social science) ,Public economics ,Health Equity ,Health Policy ,Public Health, Environmental and Occupational Health ,Equity (finance) ,General Medicine ,Education ,Policy ,Political science ,Community health ,Humans ,Public Health ,Policy Making - Published
- 2021
3. Perspectives of health educators and interviewers in a randomized controlled trial of a postpartum diabetes prevention program for Latinas: a qualitative assessment
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Milagros C. Rosal, Denise Leckenby, Aline Gubrium, Bess H. Marcus, Lisa Chasan-Taber, and Megan W Harvey
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Adult ,Postnatal Care ,Lifestyle intervention ,medicine.medical_specialty ,Hispanic ,Health informatics ,Process evaluation ,law.invention ,Health administration ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Latina ,Randomized controlled trial ,law ,Pregnancy ,Postpartum ,Intervention (counseling) ,medicine ,Humans ,030212 general & internal medicine ,Randomised controlled trial ,business.industry ,030503 health policy & services ,Health Policy ,Nursing research ,Public health ,Health Educators ,lcsh:Public aspects of medicine ,Behavior change ,lcsh:RA1-1270 ,Hispanic or Latino ,Focus Groups ,Researchers’ perspective ,Focus group ,3. Good health ,Diabetes, Gestational ,Diabetes Mellitus, Type 2 ,Evaluation Studies as Topic ,Family medicine ,Female ,0305 other medical science ,business ,Qualitative ,Risk Reduction Behavior ,Research Article - Abstract
Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mama and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff’s belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life. NCT01679210 . Registered 5 September 2012; NCT01868230 . Registered 4 June 2013.
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- 2019
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4. Women-Reported Barriers and Facilitators of Continued Engagement with Medications for Opioid Use Disorder
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Alice Fiddian-Green, Aline Gubrium, Calla Harrington, and Elizabeth A. Evans
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Analgesics, Opioid ,Health, Toxicology and Mutagenesis ,Opiate Substitution Treatment ,Public Health, Environmental and Occupational Health ,Humans ,Female ,Opioid-Related Disorders ,Pandemics ,women and opioid use disorder ,qualitative methods ,medications for opioid use disorder ,substance use treatment ,stigma and substance use ,Buprenorphine ,COVID-19 Drug Treatment - Abstract
Opioid-related fatalities increased exponentially during the COVID-19 pandemic and show little sign of abating. Despite decades of scientific evidence that sustained engagement with medications for opioid use disorders (MOUD) yields positive psychosocial outcomes, less than 30% of people with OUD engage in MOUD. Treatment rates are lowest for women. The aim of this project was to identify women-specific barriers and facilitators to treatment engagement, drawing from the lived experience of women in treatment. Data are provided from a parent study that used a community-partnered participatory research approach to adapt an evidence-based digital storytelling intervention for supporting continued MOUD treatment engagement. The parent study collected qualitative data between August and December 2018 from 20 women in Western Massachusetts who had received MOUD for at least 90 days. Using constructivist grounded theory, we identified major themes and selected illustrative quotations. Key barriers identified in this project include: (1) MOUD-specific discrimination encountered via social media, and in workplace and treatment/recovery settings; and (2) fear, perceptions, and experiences with MOUD, including mental health medication synergies, internalization of MOUD-related stigma, expectations of treatment duration, and opioid-specific mistrust of providers. Women identified two key facilitators to MOUD engagement: (1) feeling “safe” within treatment settings and (2) online communities as a source of positive reinforcement. We conclude with women-specific recommendations for research and interventions to improve MOUD engagement and provide human-centered care for this historically marginalized population.
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- 2022
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5. Precarious Work, Health, and African-American Men: A Qualitative Study on Perceptions and Experiences
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Anna Mullany, Luis A. Valdez, Aline Gubrium, and David Buchanan
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Employment ,Male ,Economic growth ,Health Policy ,media_common.quotation_subject ,Precarious Employment ,Neoliberalism ,Article ,United States ,Black or African American ,In depth interviews ,Work (electrical) ,Political science ,Perception ,Income ,African american men ,Precarious work ,Humans ,Qualitative Research ,media_common ,Qualitative research - Abstract
Precarious work has steadily grown in the United States since the rise of neoliberal policies. The continued expansion of this type of work has led to precarious employment as a recognized category within social determinants of health work and to a growing literature within public health research. African-American men are disproportionately vulnerable to precarious work, which in turn contributes to adverse health effects. Nevertheless, African-American men’s experiences of employment and the perceived impact on their well-being remain underexplored. This study was part of the formative exploratory phase of a 5-year community-based participatory research project to examine the biopsychosocial determinants of stress among low/no-income, African-American men. Through thematic analysis of 42 semi-structured interviews, 3 themes emerged: ( a) occupational hazards and health, ( b) internalization of neoliberal ideology, and ( c) constraints of structural factors. Neoliberal economic policies cause material deprivation and exacerbate systemic injustices that disproportionately affect communities of color. The accompanying neoliberal ideology of personal responsibility shapes men’s perceptions of success and failure. Public health research must continue to push against health promotion practices that predominantly focus on individual behavior. Rather than exploring only the granularities of individual behaviors, health problems must be examined through prolonged historical, political, economic, and social disenfranchisement.
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- 2020
6. A culturally and gender responsive stress and chronic disease prevention intervention for low/no-income African American men: The MOCHA moving forward randomized control trial protocol
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David Buchanan, Luis A. Valdez, Jerrold S. Meyer, Lamont Scott, Albert Hubert, Jefferey Markham, and Aline Gubrium
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Gerontology ,Male ,Health Promotion ,law.invention ,03 medical and health sciences ,0302 clinical medicine ,Randomized controlled trial ,law ,Intervention (counseling) ,medicine ,Humans ,Pharmacology (medical) ,030212 general & internal medicine ,Social determinants of health ,Gender role ,Curriculum ,Exercise ,Poverty ,Randomized Controlled Trials as Topic ,030505 public health ,business.industry ,General Medicine ,medicine.disease ,Obesity ,Health equity ,Black or African American ,Chronic Disease ,0305 other medical science ,business - Abstract
Low/no-income, African American men are disproportionally burdened by chronic disease resulting from a complex interplay of systemic, sociocultural, and individual factors. These disparities are related to poverty, racism, gender role strain, high levels of stress, low levels of physical activity, and malnutritious diet. Men of Color Health Awareness (MOCHA) is a community-driven movement to address the physical, mental, social, and spiritual needs of men of color. As part of ongoing programming, the MOCHA Standard intervention consists of a 10-week program including: (1) small group discussions of issues particularly relevant to men of color, (2) classes on health topics focusing on chronic disease control, such as nutrition, obesity, high blood pressure, fitness, and the social determinants of health; and (3) 60-min of moderately intensive aerobic exercise twice a week. While the MOCHA Standard intervention has yielded positive results, feedback from previous participants warranted an in-depth sociocultural tailoring of the curriculum to improve community receptiveness, in particular, revising the sessions to "narrativize" the materials to strengthen their potential effectiveness. This manuscript describes the novel recruitment strategies; the development of an enhanced MOCHA+ Stories Matter program that uses narrative communication strategies; and the methodology used to assess the comparative effectiveness of the MOCHA Standard relative to MOCHA+ Stories Matter program in lowering stress and risk of chronic diseases in a randomized controlled trial. The results of this research will contribute to the identification of effective interventions to address health disparities in low-income African-American men and the dissemination of effective chronic disease prevention programming.
- Published
- 2020
7. Meth Mouth, White Trash, and the Pseudo-Racialization of Methamphetamine Use in the U.S
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Aline Gubrium, Jeffery C. Peterson, and Alice Fiddian-Green
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Northwestern United States ,Health (social science) ,Amphetamine-Related Disorders ,050801 communication & media studies ,Criminology ,White People ,Methamphetamine ,Drug user ,03 medical and health sciences ,chemistry.chemical_compound ,Racism ,0508 media and communications ,Criminal Law ,Humans ,Mainstream ,Mass Media ,Sociology ,Moral panic ,Mass media ,030505 public health ,Social Identification ,business.industry ,Communication ,05 social sciences ,Meth ,Social constructionism ,chemistry ,Depiction ,Racialization ,Public Health ,0305 other medical science ,business - Abstract
Drug scares have historically been created for a range of purposes and with a variety of effects in the United States. Moral panics evoked by these drug scares either support or challenge dominant American ideas about race, economics, and society. In the present study, we examined newspaper accounts of methamphetamine use in the Inland Pacific Northwest of the United States in an effort to understand how the "reality" of the "meth epidemic" is socially constructed in a "meth hotspot," and reflect upon the ways that the discourse of Whiteness intersects with this construction. For our analysis, we are cognizant of the "slipperiness" of the logic of Whiteness as a concept, and the ways that an alternative logic is articulated - one that strategically embraces or distances White drug users to support notions of White dominance. We focus on the possibility that individual meth users could then be portrayed pseudo-racially as "White trash," and thus rendered outside the logic of White racial order. Our findings center on two main themes: (1) the use of fear in the construction of the meth drug scare through the sensationalization of meth, its anthropomorphization, and the depiction of the threat of the White drug user; and (2) how the logic of Whiteness is discursively reconciled within this construction. Given current mediated discourses about drug use and health in the United States that center on the emergence of the White drug user as the face of the opioid crisis, we are well served to carefully consider the recent historical precedence of the "meth epidemic" in which the public was faced with reconciling their views about drug use and the intersection of race, class, and mainstream American identity.
- Published
- 2018
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8. Moms Supporting Moms: Digital Storytelling With Peer Mentors in Recovery From Substance Use
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Aline Gubrium, Alice Fiddian-Green, and Mary T. Paterno
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Adult ,Nursing (miscellaneous) ,Substance-Related Disorders ,Mothers ,Pilot Projects ,Peer Group ,03 medical and health sciences ,Social support ,0302 clinical medicine ,medicine ,Humans ,030212 general & internal medicine ,Qualitative Research ,Medical education ,Digital storytelling ,ComputingMilieux_THECOMPUTINGPROFESSION ,Peer mentorship ,Communication ,Mentors ,Perspective (graphical) ,Public Health, Environmental and Occupational Health ,Shared experience ,Social Support ,medicine.disease ,030227 psychiatry ,Substance abuse ,Female ,Substance use ,Psychology ,Qualitative research - Abstract
Substance use disorder (SUD) is a growing issue nationally, and SUD in pregnancy has significant consequences for mothers and their children. This article describes findings from a pilot project that used digital storytelling as a mechanism for understanding substance use and recovery from the perspective of women in recovery from SUD in pregnancy who worked as peer mentors with pregnant women currently experiencing SUD. Research on peer mentorship has primarily focused on outcomes for mentees but not the experience of the peer mentors themselves. In this qualitative study, a 3-day digital storytelling workshop was conducted with five women in recovery serving as peer mentors in their community. Each mentor also participated in an individual, in-depth interview. The digital storytelling workshop process helped peer mentors make linkages between their past substance use experiences to their present work of recovery, and fostered deep social connections between mentors through the shared experience. The workshop process also elicited a sense of hope among participants, which served as groundwork for developing advocacy-based efforts. Digital storytelling may be therapeutic for women in recovery and has the potential to be integrated into recovery programs to bolster hope and social support among participants.
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- 2018
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9. Narrative complexity in the time of COVID-19
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Aline Gubrium and Erika Gubrium
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2019-20 coronavirus outbreak ,medicine.medical_specialty ,Narration ,Coronavirus disease 2019 (COVID-19) ,SARS-CoV-2 ,Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) ,Public health ,MEDLINE ,COVID-19 ,Social Theory ,General Medicine ,Linguistics ,medicine ,Humans ,Narrative ,Public Health ,Sociology ,Social Factors ,Social theory - Published
- 2021
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10. Restor(y)ing Health: A Conceptual Model of the Effects of Digital Storytelling
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Linda Larkey, Alice Fiddian-Green, Jeffery C. Peterson, Sunny Kim, and Aline Gubrium
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medicine.medical_specialty ,Nursing (miscellaneous) ,Applied psychology ,Psychological intervention ,Health Promotion ,Health intervention ,03 medical and health sciences ,0302 clinical medicine ,medicine ,Humans ,Narrative ,030212 general & internal medicine ,030505 public health ,Digital storytelling ,Community engagement ,Public health ,Communication ,Public Health, Environmental and Occupational Health ,Conceptual model (computer science) ,Group Processes ,Narrative Therapy ,Public Health ,0305 other medical science ,Psychology ,Psychological Theory ,Social cognitive theory - Abstract
We currently see an interdisciplinary shift toward a "participatory turn" in health research and promotion under which community engagement, shared decision making and planning, and the use of visual and digital methods have become paramount. Digital storytelling (DST) is one such innovative and engaging method increasingly used in applied health interventions, with a growing body of research identifying its value. Despite its increasing use, a standard approach to empirically assess the impacts on individuals participating in DST interventions does not currently exist. In this article, we define DST as a distinct narrative intervention, illustrate key elements that inform the methodology, and present a conceptual model to examine how DST may contribute to increased socioemotional well-being and bolster positive health outcomes. Our proposed model is informed by elements of narrative theory, Freirian conscientization, multimodality, and social cognitive theory and can serve as a guide for public health practitioners and researchers interested in assessing the potential benefits of DST as an applied health intervention. Recommendations for practice call for a rigorous methodological approach to apply and test this model across a range of health contexts and populations.
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- 2019
11. Puerto Rican Latina Youth Coming Out to Talk About Sexuality and Identity
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Aline Gubrium, Alice Fiddian-Green, and Jeffery C. Peterson
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Health (social science) ,Adolescent ,Sexual Behavior ,Identity (social science) ,050801 communication & media studies ,Human sexuality ,Health Promotion ,Article ,Sexual and Gender Minorities ,Young Adult ,03 medical and health sciences ,0508 media and communications ,Syndemic ,Pregnancy ,Transgender ,Humans ,Narrative ,Cultural Competency ,Health communication ,Narration ,030505 public health ,Digital storytelling ,Communication ,05 social sciences ,Gender studies ,Hispanic or Latino ,Grounded Theory ,Female ,Lesbian ,0305 other medical science ,Psychology ,Sexuality - Abstract
Public health efforts focused on Latina youth sexuality are most commonly framed by the syndemic of teen pregnancy and sexually transmitted infections, a narrow and often heteronormative focus that perpetuates silences that contribute to health inequities and overlooks the growing need for increased education, awareness, and support for lesbian, gay, bisexual, transgender, and questioning (LGBTQ) youth. This article presents findings from the project Let's Talk About Sex: Digital Storytelling for Puerto Rican Latina Youth, which used a culturally centered, narrative-based approach for analyzing participants' own specifications of sexual values and practices. The strength of digital storytelling lies in its utility as an innovative tool for community-based and culturally situated research, as well as in its capacity to open up new spaces for health communication. Here we present two "coming out" case studies to illustrate the value of digital storytelling in supporting the development of meaningful and culturally relevant health promotion efforts for LGBTQ-identified Puerto Rican Latina youth across the life span.
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- 2016
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12. Digital Storytelling as a Narrative Health Promotion Process
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Aline Gubrium, Gloria T. DiFulvio, Sarah E. Lowe, Lizbeth Del Toro-Mejías, and Alice Fiddian-Green
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Male ,Health (social science) ,Adolescent ,media_common.quotation_subject ,Applied psychology ,Pilot Projects ,Human sexuality ,Health Promotion ,Education ,Young Adult ,03 medical and health sciences ,Social support ,0302 clinical medicine ,Optimism ,Pregnancy ,Humans ,Narrative ,030212 general & internal medicine ,Empowerment ,media_common ,Narration ,030505 public health ,Digital storytelling ,Audiovisual Aids ,Communication ,Behavior change ,Public Health, Environmental and Occupational Health ,Social Support ,Hispanic or Latino ,General Medicine ,Health promotion ,Pregnancy in Adolescence ,Female ,Self Report ,0305 other medical science ,Psychology ,Sexuality ,Social psychology - Abstract
Digital storytelling (DST) engages participants in a group-based process to create and share narrative accounts of life events. The process of individuals telling their own stories has not been well assessed as a mechanism of health behavior change. This study looks at outcomes associated with engaging in the DST process for vulnerable youth. The project focused on the experiences of Puerto Rican Latinas between the ages of 15 to 21. A total of 30 participants enrolled in a 4-day DST workshops, with 29 completing a 1 to 3-minute digital story. Self-reported data on several scales (self-esteem, social support, empowerment, and sexual attitudes and behaviors) were collected and analyzed. Participants showed an increase in positive social interactions from baseline to 3-month post workshop. Participants also demonstrated increases in optimism and control over the future immediately after the workshop, but this change was not sustained at 3 months. Analysis of qualitative results and implications are discussed.
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- 2016
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13. Culture, Health, and Science
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Sabina Knight, Lynn M. Morgan, and Aline Gubrium
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Models, Educational ,medicine.medical_specialty ,Health (social science) ,Public administration ,Education ,Health administration ,03 medical and health sciences ,0302 clinical medicine ,Global health ,Humans ,Medicine ,030212 general & internal medicine ,Health policy ,030505 public health ,Liberal arts education ,business.industry ,Public health ,Public Health, Environmental and Occupational Health ,International health ,General Medicine ,Public relations ,United States ,Health promotion ,Health education ,Curriculum ,Public Health ,0305 other medical science ,business - Abstract
Since the 2003 call by the Institute of Medicine to educate undergraduates in public health, various models have emerged for incorporating public health into the liberal arts and sciences. One model is a professionalized public health major that uses core public health competencies to prepare a workforce of health professionals. A second model offers a broad-based public health major rooted in liberal arts principles, resisting the utilitarian trend toward human capital formation. A third model resists even the label of “public health,” preferring instead to introduce undergraduates to many ways of analyzing human health and healing. The multidisciplinary Culture, Health, and Science Program, based on six key commitments for preparing liberal arts students to analyze health and respond to global health challenges, is offered as an alternative to the public health major.
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- 2016
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14. The cascade of social determinants in producing chronic disease in low-income African-American men
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Lamont Scott, David Buchanan, Aline Gubrium, and Henry Douglas
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Adult ,Male ,Social Determinants of Health ,men’s health ,media_common.quotation_subject ,Developmental psychology ,03 medical and health sciences ,cultural competency ,0302 clinical medicine ,Cynicism ,Empirical Studies ,Humans ,030212 general & internal medicine ,Social determinants of health ,Poverty ,Qualitative Research ,media_common ,Aged ,African-American ,Hierarchy ,lcsh:R5-920 ,030505 public health ,Health Policy ,1. No poverty ,Health Status Disparities ,Middle Aged ,Health equity ,United States ,Black or African American ,Issues, ethics and legal aspects ,Chronic disease ,Attitude ,Unemployment ,Chronic Disease ,Income ,Fundamentals and skills ,Health disparities ,0305 other medical science ,Psychology ,lcsh:Medicine (General) ,Gerontology ,Cultural competence - Abstract
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40–65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
- Published
- 2018
15. 'Scribble Scrabble': Migration, Young Parenting Latinas, and Digital Storytelling as Narrative Shock
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Elizabeth L. Krause and Aline Gubrium
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Adolescent ,media_common.quotation_subject ,03 medical and health sciences ,Dignity ,Pregnancy ,Residence Characteristics ,Humans ,0601 history and archaeology ,Narrative ,Sociology ,Shadow (psychology) ,media_common ,Reproductive health ,Transients and Migrants ,060101 anthropology ,030505 public health ,Digital storytelling ,Narration ,business.industry ,Anthropology, Medical ,Humiliation ,Gender studies ,06 humanities and the arts ,General Medicine ,Hispanic or Latino ,New media ,United States ,Reproductive Health ,Anthropology ,Pregnancy in Adolescence ,Female ,0305 other medical science ,business ,Storytelling - Abstract
The nexus of migration and family offers a conjuncture to enrich understanding of teen pregnancy and parenting. This article draws findings from a project centered on participant-produced new media to reveal how young mothers negotiate reproductive health disparities. We focus on young mothers' experiences of migration and movement, captured in local vernacular through participants' digital story depictions and follow-up interviews. We argue that disparities link up with the single story of teen mothering, involve public shaming, continue hand-in-hand with institutional humiliation, and are exacerbated through migration and movement. To disrupt the normative notions that shadow young mothers, we take seriously the young women's narratives. We theorize how the richness of stories and storytelling may serve as a potent intervention-a narrative shock-for articulating meanings and cultivating dignity for young mothers and their families, especially those who do not fit the sedentary and age biases of parenting ideals.
- Published
- 2018
16. Mothers and Mentors: Exploring Perinatal Addiction and Recovery Through Digital Storytelling
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Aline Gubrium, Maud Low, Mary T. Paterno, and Kirk Sanger
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Adult ,Counseling ,Rural Population ,Substance-Related Disorders ,media_common.quotation_subject ,education ,Social Stigma ,Mothers ,Peer support ,Peer Group ,Developmental psychology ,Narrative inquiry ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,mental disorders ,Humans ,030212 general & internal medicine ,media_common ,Digital storytelling ,Narration ,ComputingMilieux_THECOMPUTINGPROFESSION ,030504 nursing ,Addiction ,Mentors ,Public Health, Environmental and Occupational Health ,Mentoring ,Social Support ,Middle Aged ,America north ,Behavior, Addictive ,Massachusetts ,Female ,Substance use ,0305 other medical science ,Psychology - Abstract
Substance use disorders (SUDs) are a growing problem for pregnant and parenting women. Woman-to-woman peer support may positively influence perinatal outcomes but little is known about the impact of such support on the women who are providing support. The purpose of this study was to describe experiences of addiction in pregnancy, recovery, and subsequently serving as a peer mentor to other pregnant women with active SUD among women in recovery in a rural setting. We conducted one digital storytelling workshop with five women serving as peer mentors with lived experience of perinatal SUD. The mentors faced significant stigma in pregnancy. They had each done the “inside work” to achieve recovery, and maintained recovery by staying balanced. Peer mentoring supported their own recovery, and story sharing was integral to this process. Peer-led support models may be an effective, self-sustaining method of providing pregnancy-specific peer support for SUD.
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- 2018
17. Narrative Influences on 'Desire to Act in My Community' in Digital Storytelling Workshops for Latina Teens
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Lizbeth Del Toro-Mejías, Linda Larkey, Aline Gubrium, and Gloria T. DiFulvio
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medicine.medical_specialty ,Health (social science) ,Adolescent ,Emotions ,Health Promotion ,Education ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,medicine ,Humans ,Narrative ,030212 general & internal medicine ,education ,Narrative medicine ,education.field_of_study ,030505 public health ,Digital storytelling ,Public health ,Public Health, Environmental and Occupational Health ,Narrative Medicine ,General Medicine ,Hispanic or Latino ,Emotional engagement ,Health promotion ,Community health ,Marginalized populations ,Female ,Public Health ,0305 other medical science ,Psychology ,Social psychology - Abstract
Digital storytelling workshops are increasingly being used to capture lived experiences and develop/disseminate health promotion messages for vulnerable and marginalized populations. Thirty female Latina teens of varied sexual/parity status produced digital stories of significant life experiences in a group context and then viewed and evaluated them using the Narrative Quality Assessment Tool. This tool was used to examine participants' experience of emotional engagement and identification with each story as well as a single-item indicator of desire to "do something in my community" related to the story. Emotional engagement was moderately strong; identification scores were neutral relative to the stories. Emotional engagement was strongly, significantly related to "desire to act in my community," while identification was not related. Emotional engagement should be considered an important factor to incorporate in the production of digital stories for purposes of developing interest in social action beyond the digital storytelling workshop.
- Published
- 2018
18. Bridging Graduate Education in Public Health and the Liberal Arts
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Felicity Aulino, Elizabeth L. Krause, C. Marjorie Aelion, Thomas L. Leatherman, and Aline Gubrium
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medicine.medical_specialty ,Schools, Public Health ,Higher education ,Culture ,Arts in education ,Humanities ,Liberal education ,ComputingMilieux_COMPUTERSANDEDUCATION ,medicine ,Humans ,Education, Graduate ,Sociology ,Curriculum ,Medical education ,Liberal arts education ,ComputingMilieux_THECOMPUTINGPROFESSION ,business.industry ,Public health ,Professional development ,Public Health, Environmental and Occupational Health ,Problem-Based Learning ,Massachusetts ,Problem-based learning ,Commentary ,Education, Public Health Professional ,business ,Computer-Assisted Instruction - Abstract
The University of Massachusetts Amherst is part of Five-Colleges Inc, a consortium that includes the university and four liberal arts colleges. Consortium faculty from the School of Public Health and Health Sciences at the university and from the colleges are working to bridge liberal arts with public health graduate education. We outline four key themes guiding this effort and exemplary curricular tools for innovative community-based and multidisciplinary academic and research programs. The structure of the consortium has created a novel trajectory for student learning and engagement, with important ramifications for pedagogy and professional practice in public health. We show how graduate public health education and liberal arts can, and must, work in tandem to transform public health practice in the 21st century.
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- 2015
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19. 'When Nothing Matters, Things Just Happen': Young Parenting Women's Reflections on Caring, Health, and Justice
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David Buchanan, Aline Gubrium, Erika Gubrium, and Christie A. Barcelos
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Community-Based Participatory Research ,medicine.medical_specialty ,Health (social science) ,Adolescent ,media_common.quotation_subject ,Mothers ,Empathy ,Economic Justice ,Grounded theory ,Education ,Interviews as Topic ,Young Adult ,Social support ,Social Justice ,medicine ,Humans ,Healthcare Disparities ,media_common ,Just society ,Public health ,Public Health, Environmental and Occupational Health ,Social Support ,General Medicine ,Health equity ,Massachusetts ,Psychology ,Social psychology ,Theme (narrative) - Abstract
The field of public health frequently issues calls for social justice, but it is not clear that everyone agrees on what this means or how to achieve it. To assess lay citizens' views on the relationship between justice and health, we conducted individual interviews with 19 young parenting women to hear and discuss their thoughts about the causes of health disparities, ways to reduce them, and the nature of the just society. A salient theme to emerge in these interviews was the topic of “caring.” This article reports on four categories identified under the theme of caring: 1) observations of apathy and indifference; 2) the effects of not caring; 3) models of caring; and 4) the pull of caring. Based on these results, the article outlines a grounded theory on the role of caring in conceptualizing health motivation.
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- 2014
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20. Sensual sexuality education with young parenting women
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Miriam B. Shafer and Aline Gubrium
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Health Knowledge, Attitudes, Practice ,Adolescent ,media_common.quotation_subject ,Psychology, Adolescent ,Human sexuality ,Health Promotion ,Sex Education ,Entitlement ,Education ,Developmental psychology ,Pleasure ,Promotion (rank) ,Pregnancy ,ComputingMilieux_COMPUTERSANDEDUCATION ,Humans ,Curriculum ,media_common ,Public Health, Environmental and Occupational Health ,Single Parent ,Health promotion ,Massachusetts ,Adolescent Behavior ,Pregnancy in Adolescence ,Well-being ,Female ,Holism ,Psychology ,Sexuality - Abstract
Comprehensive sexuality education curricula that incorporate sex positive and integrated approaches go beyond a presentation of facts and strategies for prevention to emphasize the promotion of sexual subjectivity and wellbeing. A pilot sensual sexuality education program was planned, implemented and informally evaluated with young parenting women at an alternative General Educational Development test preparation center. The program prioritized a sex positive framework, including topics such as pleasure, desire and sexual entitlement, and invited participants to explore sexuality through a multisensory orientation. Participants took part in small group discussions and activities that engaged their senses through arts-based methods. Grounded in holism, program topics were integrated with a focus on participants' everyday experiences. The pilot curriculum serves as a promising program for re-positioning young parenting women as sexual subjects, which is key to the promotion of health and wellbeing.
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- 2014
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21. Bodies as evidence: Mapping new terrain for teen pregnancy and parenting
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Alice Fiddian-Green, Elizabeth L. Krause, Aline Gubrium, and Kasey Jernigan
- Subjects
Community-Based Participatory Research ,Adolescent ,Sexual Behavior ,education ,Evidence mapping ,Developmental psychology ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,Body mapping ,Body Image ,Humans ,0601 history and archaeology ,030212 general & internal medicine ,Justice (ethics) ,Reproductive health ,Exposure to Violence ,060101 anthropology ,Parenting ,business.industry ,Public Health, Environmental and Occupational Health ,Personal Narratives as Topic ,Social Support ,Citizen journalism ,Gender studies ,06 humanities and the arts ,Hispanic or Latino ,Young parents ,Structural violence ,Socioeconomic Factors ,Adolescent Behavior ,Pregnancy in Adolescence ,Female ,Sexual Health ,business ,Psychology ,Teen pregnancy - Abstract
Predominant approaches to teen pregnancy focus on decreasing numbers of teen mothers, babies born to them, and state dollars spent to support their families. This overshadows the structural violence interwoven into daily existence for these young parents. This paper argues for the increased use of participatory visual methods to compliment traditional research methods in shifting notions of what counts as evidence in response to teen pregnancy and parenting. We present the methods and results from a body mapping workshop as part of 'Hear Our Stories: Diasporic Youth for Sexual Rights and Justice', a project that examines structural barriers faced by young parenting Latinas and seeks to develop relevant messaging and programming to support and engage youth. Body mapping, as an engaging, innovative participatory visual methodology, involves young parenting women and other marginalised populations in drawing out a deeper understanding of sexual health inequities. Our findings highlight the ways body mapping elicits bodies as evidence to understand young motherhood and wellbeing.
- Published
- 2016
22. Realizing reproductive health equity needs more than Long-Acting Reversible Contraception (LARC)
- Author
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Sonya Borrero, Gretchen Sisson, Diana Romero, Aline Gubrium, Zakiya Luna, Katrina Kimport, Dorothy E. Roberts, Jessica Fields, Kristin Luker, Christine Dehlendorf, Jenny A. Higgins, Laura Mamo, Arline T. Geronimus, Anu Manchikanti Gomez, Emily S. Mann, and Lisa H. Harris
- Subjects
Gerontology ,medicine.medical_specialty ,Population ,Long-acting reversible contraception ,Intrauterine device ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,Reproductive rights ,medicine ,AJPH Perspectives ,Humans ,030212 general & internal medicine ,Sociology ,Healthcare Disparities ,education ,Reproductive health ,education.field_of_study ,030219 obstetrics & reproductive medicine ,business.industry ,Public health ,Public Health, Environmental and Occupational Health ,Equity (finance) ,Reproductive Health ,Family planning ,Family medicine ,Female ,business - Abstract
In a recent Editors Choice column in the American Journal of Public Health Northridge and Coupey1 advocate the increased use of long-acting reversible contraception (LARC) specifically the intrauterine device and the implant as a means to achieve reproductive health equity. They reference the American Academy of Pediatrics recommendation which states that these methods should be considered "first-line contraceptive choices" for adolescents and young adults.2 (Am J Public Health. Published online ahead of print November 12 2015: e1-e2. doi:10.2105/AJPH.2015.302900).
- Published
- 2016
- Full Text
- View/download PDF
23. Old Wine in New Bottles? The Positioning of Participation in 17 NIH-Funded CBPR Projects
- Author
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Jeffery C. Peterson and Aline Gubrium
- Subjects
Community-Based Participatory Research ,Financing, Government ,Health Knowledge, Attitudes, Practice ,medicine.medical_specialty ,Health (social science) ,Process (engineering) ,media_common.quotation_subject ,Participatory action research ,Grounded theory ,medicine ,Humans ,Review process ,Sociology ,Cultural Competency ,media_common ,Health Care Rationing ,Praxis ,Health Priorities ,business.industry ,Communication ,Public health ,Public relations ,United States ,National Institutes of Health (U.S.) ,Research Design ,Public Health ,business - Abstract
Influenced by Cooke and Kothari's (2001) suggestion that participation "remains a way of talking about rather than doing things" (p. 32), we question to what extent this is true in the public health funding process. Thus, the aim of this article was to investigate the ways in which recent National Institutes of Health (NIH)-funded community-based participatory research (CBPR) projects discursively positioned CBPR in their grant applications. We collected 17 NIH-funded CBPR proposals, analyzed them using a grounded theory approach, and subjected the findings to critical analysis focusing on the definition of community, the type of community "participation" promoted, and the nature of the research proposed. We conclude that certain types of CBPR projects are privileged in the funding review process and discuss the implications of these findings for future CBPR praxis.
- Published
- 2011
- Full Text
- View/download PDF
24. Digital Storytelling: An Emergent Method for Health Promotion Research and Practice
- Author
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Aline Gubrium
- Subjects
Research design ,Video recording ,Medical education ,Nursing (miscellaneous) ,Digital storytelling ,Community participation ,Community Participation ,Video Recording ,Public Health, Environmental and Occupational Health ,MEDLINE ,Community-based participatory research ,Health Promotion ,Professional-Patient Relations ,Interviews as Topic ,Health promotion ,Research Design ,Humans ,Sociology - Published
- 2009
- Full Text
- View/download PDF
25. Promoting positive youth development and highlighting reasons for living in Northwest Alaska through digital storytelling
- Author
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Megan Griffin, Lisa Wexler, Gloria T. DiFulvio, and Aline Gubrium
- Subjects
Male ,Suicide Prevention ,Nursing (miscellaneous) ,Adolescent ,Poison control ,Qualitative property ,Health Promotion ,Suicide prevention ,Youth studies ,Interpersonal relationship ,Nursing ,Medicine ,Humans ,Interpersonal Relations ,Child ,Digital storytelling ,business.industry ,Communication ,ComputingMilieux_PERSONALCOMPUTING ,Public Health, Environmental and Occupational Health ,Videotape Recording ,Public relations ,Suicide ,Health promotion ,Inuit ,Female ,Positive Youth Development ,business ,Alaska - Abstract
Using a positive youth development framework, this article describes how a 3-year digital storytelling project and the 566 digital stories produced from it in Northwest Alaska promote protective factors in the lives of Alaska Native youth and serve as digital “hope kits,” a suicide prevention approach that emphasizes young people’s reasons for living. Digital stories are short, participant-produced videos that combine photos, music, and voice. We present process data that indicate the ways that digital stories serve as a platform for youth to reflect on and represent their lives, important relationships and achievements. In so doing, youth use the digital storytelling process to identify and highlight encouraging aspects of their lives, and develop more certain and positive identity formations. These processes are correlated with positive youth health outcomes. In addition, the digital stories themselves serve as reminders of the young people’s personal assets—their reasons for living—after the workshop ends. Young people in this project often showed their digital stories to those who were featured positively within as a way to strengthen these interpersonal relationships. Evaluation data from the project show that digital storytelling workshops and outputs are a promising positive youth development approach. The project and the qualitative data demonstrate the need for further studies focusing on outcomes related to suicide prevention.
- Published
- 2012
26. Lessons learned from taking data collection to the 'hood'
- Author
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Aline Gubrium and RN Emma J. Brown PhD
- Subjects
Adult ,Rural Population ,Health (social science) ,Adolescent ,Process (engineering) ,Culture ,Psychological intervention ,Medicine (miscellaneous) ,Participatory action research ,Sample (statistics) ,HIV Infections ,Pilot Projects ,Outcome (game theory) ,Risk Assessment ,Risk Factors ,Surveys and Questionnaires ,Humans ,Medical education ,Data collection ,Management science ,Data Collection ,Community-Institutional Relations ,Black or African American ,Florida ,Female ,Process evaluation ,Psychology ,Inclusion (education) - Abstract
Culturally appropriate measures are needed to analyze the effectiveness of HIV prevention interventions. An effective strategy to ensure the culturally appropriateness of measures is the inclusion of participants from the targeted community via participatory action research. Conducting the research process within the community is one method of maximizing greater community participation. The purpose of this paper is to describe a method of pilot testing an instrument within community settings. Findings presented focus primarily on the process of the method, rather than on a statistical outcome testing of the instrument. The sample was 200 African-American women recruited in networks drawn from two rural and two mid-sized counties in North Florida. Methodological issues encountered and resolved through ongoing process evaluation are presented as lessons learned with recommendations and implications.
- Published
- 2006
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