52 results on '"Aline Gubrium"'
Search Results
2. Mind the Gaps: The Need for Inclusion of Male-Identified Voices in Adolescent Sexual and Reproductive Health
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Elizabeth Salerno Valdez, Luis Valdez, Eddie Gorry, Jazmine Chan, Saharra Dixon, Tiarra Fisher, Alya Simoun, Mira Weil, Camille Collins-Lovell, Justine Egan, and Aline Gubrium
- Subjects
Medicine - Abstract
Adolescent sexual and reproductive health (ASRH) inequities are well documented for historically excluded youth (i.e., youth of color, LGBTQIA+ youth, youth with disabilities, recently im/migrated youth) living in the U.S. Northeast. However, the lived experience of male-identifying young people from historically excluded backgrounds in ASRH remains largely unexamined. The purpose of this paper is to present findings related to male-identified perspectives on social constructions of sexuality, sexual and reproductive health, and sexuality education. A research team composed of two local youth-serving organizations, eight youth researchers, and university researchers, used Youth Participatory Action Research (YPAR) methods to examine how structural violence contributes to inequitable ASRH outcomes for historically excluded youth. Photovoice and community mapping were used as YPAR methods. We also completed individual interviews on the same topic with the youth and with 17 key stakeholders that either provide services to youth or are emerging adult service recipients. Community-driven data reveal two major themes around the silencing of male-identified voices in ASRH: lack of culture-centered and gender-expansive approaches for ASRH, and the subsequent toll of sexism and (cis)gendered social and educational norms on young people. Our findings highlight that sexuality education, cisgender hetero culture, and social norms have put the onus of responsibility on people identifying as women for sexual and reproductive health. An unintended consequence of that is that young people identifying as men may feel powerless and uninformed around their own SRH. Our findings illustrate the importance of using culture-centered and gender-transformative approaches to ASRH to address inequity.
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- 2023
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- View/download PDF
3. Uncovering Historical Legacies to Contextualize Health Inequities in Puerto Rican Men: An Expansion of the Minority Stress Model
- Author
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Luis A. Valdez, Anna Mullany, Marielena Barbieri, and Aline Gubrium
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Latino health ,men's health ,minority stress ,health inequity ,thematic analysis ,Sociology (General) ,HM401-1281 - Abstract
BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity and mortality, which is often compounded by persistent exposure to stress. Chronic stress is a key mediating factor in pathways linking macro-level socio-structural forces to micro-level behavioral factors with negative health outcomes. Being that Latinxs continue to be one of the fastest growing populations in the U.S., it is imperative to better understand the roots of stress pathways and explore multi-level interventions.MethodsThis study presents qualitative findings from in-depth interviews with Puerto Rican men (95%) living in Springfield, Massachusetts. We utilized the Minority Stress Model (MSM) first posited by Ilan Meyers, as a framework to understand stress and stress processes amongst Puerto Rican men. We mapped our data onto Meyers' MSM, which allowed us to find diverging themes and identify areas for expansion.ResultsAs expected, participants reported stress rooted in experiences of racism and prejudice, expectations of rejection, English-language acquisition, family relationships, insecure housing, precarious employment, and lack of resources. Nevertheless, the MSM did not account for the historical contexts that, as our findings indicate, are used to filter and understand their experiences with everyday stressors. Participants described and linked histories of colonial violence and movement and migration to their stress and community wellbeing.DiscussionFindings suggest the need to expand the current MSM and our conceptualization of the stress process to include historical understandings when contextualizing present-day stress and future interventions. We propose an expanded heuristic model that delineates the impact of distinctive historical trajectories that aid in interpreting racial health disparities amongst minoritized populations. Future multi-level interventions should give weight to highlighting history and how this impacts the present, in this case including the culpability of U.S. policy regarding Puerto Rico and the adverse health effects for Puerto Rican men on the mainland.
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- 2022
- Full Text
- View/download PDF
4. Perspectives of health educators and interviewers in a randomized controlled trial of a postpartum diabetes prevention program for Latinas: a qualitative assessment
- Author
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Aline Gubrium, Denise Leckenby, Megan Ward Harvey, Bess H. Marcus, Milagros C. Rosal, and Lisa Chasan-Taber
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Process evaluation ,Researchers’ perspective ,Hispanic ,Postpartum ,Qualitative ,Lifestyle intervention ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. Methods A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mamá and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Results Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff’s belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Conclusions Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life. Trial registration NCT01679210. Registered 5 September 2012; NCT01868230. Registered 4 June 2013.
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- 2019
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5. Shifting to Virtual CBPR Protocols in the Time of Corona Virus/COVID-19
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Elizabeth Salerno Valdez and Aline Gubrium
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Social sciences (General) ,H1-99 - Abstract
COVID-19 has upended community based participatory research (CBPR) projects across the United States and globally. COVID-19 disproportionately impacts historically disenfranchised communities and communities of color, the very communities that CBPR is meant to engage, elevate, and support. In-person activities that help develop rapport and research protocols, build capacity, conduct collaborative data collection and analysis, disseminate findings to the community, and engage in sustainability planning are an impossible practice during the COVID-19 pandemic. The purpose of this article is to describe the challenges and facilitators of shifting to a virtual/online CBPR protocol with a Massachusetts community disproportionately affected by COVID19, as a means to keep them engaged in the research process and to elevate their experiences, perspectives, and voices during this critical time. We include insights about how to facilitate recruitment and compensate community members, form a community advisory board (CAB), hold CAB meetings, and transition participatory qualitative data collection, analysis, and dissemination to a virtual/online framework.
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- 2020
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6. Participatory Action Research to Explore the Role of Structural Violence on Marginalized and Racialized Young Parents
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Elizabeth Valdez, Jazmine Chan, Saharra Dixon, Gray Davidson Carroll, Thupten Phuntsog, Elizabeth Delorme, Justine Egan, and Aline Gubrium
- Abstract
Structural inequities influence young parents' access to health care, housing, transportation, social support, education, and income. The current study adds to the extant literature by providing data directly obtained in collaboration with young parents to understand how structural violence affects the health and well-being of their families, ultimately resulting in community-driven policy recommendations developed in collaboration with the state health department. We engaged a diverse sample of young people--considered as community researchers in the project--including Black, Latinx, and/or LGBTQ+ pregnant and parenting young parents in a participatory action research (PAR) project in the spring of 2022 to explore their health and material needs while living in Springfield, Massachusetts. Together with young parents, we used participatory arts-based methods to conduct community and identity building, define research questions and photo prompts, conduct data collection (photos), engage in group thematic analysis, and take action at the state policy level. We also conducted individual semi-structured life-history interviews with the young parents. Participatory community-led findings indicate an urgent need for systemic change to increase access to safe and affordable housing; living-wage jobs; safe, high-quality, and affordable child care; and to bolster social support and disabilities services for young parents and their families. This participatory study funded by a state health department demonstrates that participatory community-driven data can have the power to mobilize community members and policy makers for social change if prioritized at the state and local levels. Additional practice-based implications include prioritizing participatory mentorship programs intended to aid young parents in navigating the complex systems that are vital to their survival.
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- 2024
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7. Outreach Strategies to Recruit Low-Income African American Men to Participate in Health Promotion Programs and Research: Lessons From the Men of Color Health Awareness (MOCHA) Project
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Louis F Graham DrPH, Lamont Scott, Erus Lopeyok, Henry Douglas, Aline Gubrium PhD, and David Buchanan DrPH
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Medicine - Abstract
African American men continue to bear a disproportionate share of the burden of disease. Engaging these men in health research and health promotion programs—especially lower-income, African American men who are vulnerable to chronic disease conditions such as obesity and heart disease—has historically proven quite difficult for researchers and public health practitioners. The few effective outreach strategies identified in the literature to date are largely limited to recruiting through hospital clinics, churches, and barbershops. The Men of Color Health Awareness (MOCHA) project is a grassroots, community-driven initiative that has developed a number of innovative outreach strategies. After describing these strategies, we present data on the demographic and health characteristics of the population reached using these methods, which indicate that MOCHA has been highly effective in reaching this population of men.
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- 2018
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8. The cascade of social determinants in producing chronic disease in low-income African-American men
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David Buchanan, Aline Gubrium, Lamont Scott, and Henry Douglas
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health disparities ,african-american ,men’s health ,cultural competency ,Medicine (General) ,R5-920 - Abstract
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40–65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
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- 2018
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9. Structural Racism and Its Influence On Sexual and Reproductive Health Inequities Among Immigrant Youth
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Elizabeth Salerno Valdez, Jazmine Chan, Andrea Donis, Camille Collins-Lovell, Saharra Dixon, Elizabeth Beatriz, and Aline Gubrium
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Epidemiology ,Public Health, Environmental and Occupational Health - Abstract
This community-based participatory research study explores the influence of structural racism on sexual and reproductive health (SRH) inequities among immigrant, including refugee, youth. We conducted interviews with emerging youth and youth service providers living in two communities in Massachusetts. Our results detail three major themes illustrating how structural racism influences SRH inequities among immigrant youth: (1) lack of culture-centered SRH supports for recently immigrated youth; (2) immigration enforcement and fear impacting access to adolescent SRH (ASRH) education and services; and (3) perceived ineligibility related to tenuous legal status as a barrier to accessing ASRH services. Conclusions: Findings illustrate the importance of rooting sexuality education curricula in a culture centered framework that recognizes local cultural understandings, acknowledges structural constraints faced by young people, and prioritizes youth agency and voice when engaging in this work. Raising awareness of SRH resources available to immigrant youth may expand access for this underserved population.
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- 2022
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10. ‘It’s whether or not you got people’: school-based social support to address adolescent sexual and reproductive health inequities
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Camille Collins Lovell, Elizabeth Salerno Valdez, Jazmine Chan, Elizabeth Beatriz, and Aline Gubrium
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Social Sciences (miscellaneous) ,Education - Published
- 2022
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11. Digital Storytelling
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Alice Fiddian-Green, Aline Gubrium, and Amy Hill
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- 2023
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12. Critical Narrative Intervention for Health Equity Research and Practice: Editorial Commentary Introducing the Health Promotion Practice Critical Narrative Intervention Special Collection
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Aline Gubrium and Alice Fiddian-Green
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Nursing (miscellaneous) ,Digital storytelling ,business.industry ,Public Health, Environmental and Occupational Health ,Public relations ,Health equity ,Health promotion ,Framing (social sciences) ,Intervention (counseling) ,Photovoice ,Narrative ,Sociology ,business ,Storytelling - Abstract
This special collection of Health Promotion Practice introduces critical narrative intervention (CNI) as a key theoretical framing for an asset-based, narrative, and participatory approach to promoting health and addressing social inequality. Innovative digital and visual methodologies highlighted in this special collection—comics and graphic novels, cellphilms and other participatory film, story booths, digital storytelling, and photovoice—are changing the way critical public health researchers and practitioners forge new knowledge, creating new possibilities for interdisciplinary and activist-based inquiry. Public health research and engagement efforts that critically contend with historically repressive structures and intervene through narrative and participatory processes to enact change with and for disenfranchised communities are long overdue. This special collection showcases six CNI projects that promote equity and justice in the context of LGBTQ, nonbinary, and other gender-diverse young people; people who inject drugs living with hepatitis C virus; young women who trade sex; undocumented and formerly undocumented immigrants; and people living with HIV/AIDS. It is our intent that this collection of exemplars can serve as a guidepost for practitioners and researchers interested in expanding the scope of critical public health praxis. Individually and collectively, the special collection illustrates how CNI can create space for the increased representation of historically silenced populations, redress stigma, and provoke important questions to guide a new era of health equity research.
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- 2021
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13. Developing and Approving a LETS! Teach, Affirm, Learn, Know (LETS! T.A.L.K.) Curriculum for Grades K-2 in a Public-School System
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Mira Weil, Aline Gubrium, and Aneliese Apala Flaherty
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Sexuality education ,Mathematics education ,Sociology ,School level ,Curriculum ,School system ,Education - Abstract
Few public schools in Massachusetts offer a sex-positive, inclusive sexuality education curriculum at the elementary school level. One Massachusetts public elementary school identified the need for...
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- 2021
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14. The Need for Community-Responsive and Flexible Sex Ed for Historically Marginalized Youth
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Isabella Caruso, Elizabeth Salerno Valdez, Camille Collins Lovell, Jazmine Chan, Elizabeth Beatriz, and Aline Gubrium
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Gender Studies ,Health (social science) ,Sociology and Political Science - Abstract
When it is offered, sexuality education in the USA is far from standardized. While studies have explored differences in delivery and type of sexuality education across the USA, sexual and reproductive health inequities persist among historically marginalized groups (Latino/a/x, Black, African American, LGBTQ +). There is a critical need to better understand the systemic barriers to receiving effective sexuality education in these communities.Participatory research methods were used in working with a community advisory board (CAB)-consisting of emerging adults and service providers from community-based organizations (CBOs) serving youth-to examine how structural barriers contribute to adolescent sexual and reproductive health (ASRH) inequities in Massachusetts. CAB meetings and semi-structured interviews were conducted in the cities of Springfield (Inflexible funding guidelines, a related evidence-based curricular mandate, and a lack of community-responsive sexuality education fail to meet the sexual and reproductive health (SRH) needs of these youth.Current evidence-based mandates must be revisited to improve young people's access to quality sexuality information in public schools. To guarantee sexuality education curricula is centered in the context of the community and population in which it is implemented, collaboration between youth-serving CBOs and school districts could improve students' overall experience and social-emotional growth by providing comprehensive, positive, and community-responsive curricula.Funders and programming should prioritize community responsiveness by financially supporting and developing and/or adapting evidence-based curricula to better match the community's needs, which can be completed through culture-centered training and community-based partnership.
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- 2022
15. Uncovering Historical Legacies to Contextualize Health Inequities in Puerto Rican Men: An Expansion of the Minority Stress Model
- Author
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Luis A. Valdez, Anna Mullany, Marielena Barbieri, and Aline Gubrium
- Subjects
General Social Sciences - Abstract
BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity and mortality, which is often compounded by persistent exposure to stress. Chronic stress is a key mediating factor in pathways linking macro-level socio-structural forces to micro-level behavioral factors with negative health outcomes. Being that Latinxs continue to be one of the fastest growing populations in the U.S., it is imperative to better understand the roots of stress pathways and explore multi-level interventions.MethodsThis study presents qualitative findings from in-depth interviews with Puerto Rican men (95%) living in Springfield, Massachusetts. We utilized the Minority Stress Model (MSM) first posited by Ilan Meyers, as a framework to understand stress and stress processes amongst Puerto Rican men. We mapped our data onto Meyers' MSM, which allowed us to find diverging themes and identify areas for expansion.ResultsAs expected, participants reported stress rooted in experiences of racism and prejudice, expectations of rejection, English-language acquisition, family relationships, insecure housing, precarious employment, and lack of resources. Nevertheless, the MSM did not account for the historical contexts that, as our findings indicate, are used to filter and understand their experiences with everyday stressors. Participants described and linked histories of colonial violence and movement and migration to their stress and community wellbeing.DiscussionFindings suggest the need to expand the current MSM and our conceptualization of the stress process to include historical understandings when contextualizing present-day stress and future interventions. We propose an expanded heuristic model that delineates the impact of distinctive historical trajectories that aid in interpreting racial health disparities amongst minoritized populations. Future multi-level interventions should give weight to highlighting history and how this impacts the present, in this case including the culpability of U.S. policy regarding Puerto Rico and the adverse health effects for Puerto Rican men on the mainland.
- Published
- 2021
16. Critical Narrative Intervention for Health Equity Research and Practice: Editorial Commentary Introducing the
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Alice, Fiddian-Green and Aline, Gubrium
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Narration ,Adolescent ,Health Equity ,Communication ,Humans ,Female ,Health Promotion ,Public Health - Abstract
This special collection of
- Published
- 2021
17. 'Who is our real enemy?' internalized racism in the Puerto Rican diaspora and the role of political education within community health intervention
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Anna Mullany, Marielena Barbieri, Stevaughn Smith, Aline Gubrium, and Luis A. Valdez
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Health (social science) ,History and Philosophy of Science - Abstract
Puerto Ricans experience disproportionately high levels of emotional distress and co-occurring adverse health outcomes. Our study sought to elicit Puerto Rican men's perceptions of health disparities while centering dialogue on stressors, coping mechanisms, and general well-being. This paper focuses on one pronounced finding in our study, that of internalized racism and the effect it has on both individual well-being and intra-group cohesion. A significant gap within racial health disparity work is the role of internalized racism and its connection to psychological distress, ruptures in social unity, and resulting ill-health of racial and ethnic populations. Based on this, we probed this particular finding to further understand internalized racism within this Puerto Rican population.Using a hybrid thematic analysis approach, this study presents qualitative findings from in-depth interviews with Latino (92.5% Puerto Rican) men living in Springfield, Massachusetts and conducted between October 2019 and January 2020.Our findings reveal a duality throughout: The acceptance and propagation of negative Latinx stereotypes and consequent intragroup division exists alongside expressions of community pride and desire for Latinx unity. This duality is analyzed by using W.E.B. Du Bois's theory of double consciousness. Double consciousness not only explains the self-disparagement toward oneself and one's own racial and ethnic group, but also elucidates a liberatory pathway toward political consciousness and well-being. The concept of "second sight" within double consciousness is particularly germane, speaking to one's awakening to the learned self-subjugation imposed by White supremacy.Internalized racism contributes to the persistent propagation of disparate health burdens in minoritized communities. Remediation can and should include community-led frameworks for the development of efficacious multilevel health interventions. The Young Lords community health activism provides such a model. These findings provide viable evidence-based examples of how the academy can synergize with community-led efforts to achieve collective agency.
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- 2022
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18. A New Title, a New Focus: Community Health Equity Research and Policy
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Kathryn Pitkin Derose and Aline Gubrium
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Focus (computing) ,Health (social science) ,Public economics ,Health Equity ,Health Policy ,Public Health, Environmental and Occupational Health ,Equity (finance) ,General Medicine ,Education ,Policy ,Political science ,Community health ,Humans ,Public Health ,Policy Making - Published
- 2021
19. Perspectives of health educators and interviewers in a randomized controlled trial of a postpartum diabetes prevention program for Latinas: a qualitative assessment
- Author
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Milagros C. Rosal, Denise Leckenby, Aline Gubrium, Bess H. Marcus, Lisa Chasan-Taber, and Megan W Harvey
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Adult ,Postnatal Care ,Lifestyle intervention ,medicine.medical_specialty ,Hispanic ,Health informatics ,Process evaluation ,law.invention ,Health administration ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Latina ,Randomized controlled trial ,law ,Pregnancy ,Postpartum ,Intervention (counseling) ,medicine ,Humans ,030212 general & internal medicine ,Randomised controlled trial ,business.industry ,030503 health policy & services ,Health Policy ,Nursing research ,Public health ,Health Educators ,lcsh:Public aspects of medicine ,Behavior change ,lcsh:RA1-1270 ,Hispanic or Latino ,Focus Groups ,Researchers’ perspective ,Focus group ,3. Good health ,Diabetes, Gestational ,Diabetes Mellitus, Type 2 ,Evaluation Studies as Topic ,Family medicine ,Female ,0305 other medical science ,business ,Qualitative ,Risk Reduction Behavior ,Research Article - Abstract
Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mama and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff’s belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life. NCT01679210 . Registered 5 September 2012; NCT01868230 . Registered 4 June 2013.
- Published
- 2019
- Full Text
- View/download PDF
20. Women-Reported Barriers and Facilitators of Continued Engagement with Medications for Opioid Use Disorder
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Alice Fiddian-Green, Aline Gubrium, Calla Harrington, and Elizabeth A. Evans
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Analgesics, Opioid ,Health, Toxicology and Mutagenesis ,Opiate Substitution Treatment ,Public Health, Environmental and Occupational Health ,Humans ,Female ,Opioid-Related Disorders ,Pandemics ,women and opioid use disorder ,qualitative methods ,medications for opioid use disorder ,substance use treatment ,stigma and substance use ,Buprenorphine ,COVID-19 Drug Treatment - Abstract
Opioid-related fatalities increased exponentially during the COVID-19 pandemic and show little sign of abating. Despite decades of scientific evidence that sustained engagement with medications for opioid use disorders (MOUD) yields positive psychosocial outcomes, less than 30% of people with OUD engage in MOUD. Treatment rates are lowest for women. The aim of this project was to identify women-specific barriers and facilitators to treatment engagement, drawing from the lived experience of women in treatment. Data are provided from a parent study that used a community-partnered participatory research approach to adapt an evidence-based digital storytelling intervention for supporting continued MOUD treatment engagement. The parent study collected qualitative data between August and December 2018 from 20 women in Western Massachusetts who had received MOUD for at least 90 days. Using constructivist grounded theory, we identified major themes and selected illustrative quotations. Key barriers identified in this project include: (1) MOUD-specific discrimination encountered via social media, and in workplace and treatment/recovery settings; and (2) fear, perceptions, and experiences with MOUD, including mental health medication synergies, internalization of MOUD-related stigma, expectations of treatment duration, and opioid-specific mistrust of providers. Women identified two key facilitators to MOUD engagement: (1) feeling “safe” within treatment settings and (2) online communities as a source of positive reinforcement. We conclude with women-specific recommendations for research and interventions to improve MOUD engagement and provide human-centered care for this historically marginalized population.
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- 2022
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21. Precarious Work, Health, and African-American Men: A Qualitative Study on Perceptions and Experiences
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Anna Mullany, Luis A. Valdez, Aline Gubrium, and David Buchanan
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Employment ,Male ,Economic growth ,Health Policy ,media_common.quotation_subject ,Precarious Employment ,Neoliberalism ,Article ,United States ,Black or African American ,In depth interviews ,Work (electrical) ,Political science ,Perception ,Income ,African american men ,Precarious work ,Humans ,Qualitative Research ,media_common ,Qualitative research - Abstract
Precarious work has steadily grown in the United States since the rise of neoliberal policies. The continued expansion of this type of work has led to precarious employment as a recognized category within social determinants of health work and to a growing literature within public health research. African-American men are disproportionately vulnerable to precarious work, which in turn contributes to adverse health effects. Nevertheless, African-American men’s experiences of employment and the perceived impact on their well-being remain underexplored. This study was part of the formative exploratory phase of a 5-year community-based participatory research project to examine the biopsychosocial determinants of stress among low/no-income, African-American men. Through thematic analysis of 42 semi-structured interviews, 3 themes emerged: ( a) occupational hazards and health, ( b) internalization of neoliberal ideology, and ( c) constraints of structural factors. Neoliberal economic policies cause material deprivation and exacerbate systemic injustices that disproportionately affect communities of color. The accompanying neoliberal ideology of personal responsibility shapes men’s perceptions of success and failure. Public health research must continue to push against health promotion practices that predominantly focus on individual behavior. Rather than exploring only the granularities of individual behaviors, health problems must be examined through prolonged historical, political, economic, and social disenfranchisement.
- Published
- 2020
22. A culturally and gender responsive stress and chronic disease prevention intervention for low/no-income African American men: The MOCHA moving forward randomized control trial protocol
- Author
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David Buchanan, Luis A. Valdez, Jerrold S. Meyer, Lamont Scott, Albert Hubert, Jefferey Markham, and Aline Gubrium
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Gerontology ,Male ,Health Promotion ,law.invention ,03 medical and health sciences ,0302 clinical medicine ,Randomized controlled trial ,law ,Intervention (counseling) ,medicine ,Humans ,Pharmacology (medical) ,030212 general & internal medicine ,Social determinants of health ,Gender role ,Curriculum ,Exercise ,Poverty ,Randomized Controlled Trials as Topic ,030505 public health ,business.industry ,General Medicine ,medicine.disease ,Obesity ,Health equity ,Black or African American ,Chronic Disease ,0305 other medical science ,business - Abstract
Low/no-income, African American men are disproportionally burdened by chronic disease resulting from a complex interplay of systemic, sociocultural, and individual factors. These disparities are related to poverty, racism, gender role strain, high levels of stress, low levels of physical activity, and malnutritious diet. Men of Color Health Awareness (MOCHA) is a community-driven movement to address the physical, mental, social, and spiritual needs of men of color. As part of ongoing programming, the MOCHA Standard intervention consists of a 10-week program including: (1) small group discussions of issues particularly relevant to men of color, (2) classes on health topics focusing on chronic disease control, such as nutrition, obesity, high blood pressure, fitness, and the social determinants of health; and (3) 60-min of moderately intensive aerobic exercise twice a week. While the MOCHA Standard intervention has yielded positive results, feedback from previous participants warranted an in-depth sociocultural tailoring of the curriculum to improve community receptiveness, in particular, revising the sessions to "narrativize" the materials to strengthen their potential effectiveness. This manuscript describes the novel recruitment strategies; the development of an enhanced MOCHA+ Stories Matter program that uses narrative communication strategies; and the methodology used to assess the comparative effectiveness of the MOCHA Standard relative to MOCHA+ Stories Matter program in lowering stress and risk of chronic diseases in a randomized controlled trial. The results of this research will contribute to the identification of effective interventions to address health disparities in low-income African-American men and the dissemination of effective chronic disease prevention programming.
- Published
- 2020
23. 'Doing Your Life': Narrative Intervention with Young Mothers as Storytellers
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Katie Lucey, Aline Gubrium, and Elizabeth L. Krause
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Value (ethics) ,030505 public health ,Digital storytelling ,media_common.quotation_subject ,05 social sciences ,ComputingMilieux_PERSONALCOMPUTING ,General Social Sciences ,Vernacular ,Fieldnotes ,03 medical and health sciences ,Negotiation ,Arts and Humanities (miscellaneous) ,Aesthetics ,Anthropology ,Intervention (counseling) ,Ethnography ,0501 psychology and cognitive sciences ,Narrative ,0305 other medical science ,Psychology ,050104 developmental & child psychology ,media_common - Abstract
The familiar story about young pregnant and parenting Latinas relies on commonsense logic about the timing of reproductive lives. We explore young mothers' own sense making, captured in local vernacular through participants' digital story depictions, our fieldnotes of digital storytelling workshop talk, and participants' follow-up interview reflections about enduring judgment and doing their lives. In this article, we introduce the Hear Our Stories project and present key digital stories and related ethnographic material that serve as local exemplars of “doing your life.” Findings reveal ways participants negotiate value making about their reproductive lives. As a narrative intervention, digital storytelling helps to gain a firmer grasp on social worlds and to better understand inequality, while also engaging participants in a process that affords them the opportunity to shift from being a judged teen mom to co-creators of knowledge and change as strategic storytellers.
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- 2018
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24. Bodies That Tell: Embodying Teen Pregnancy through Digital Storytelling
- Author
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Aline Gubrium and Chris Barcelos
- Subjects
Digital storytelling ,05 social sciences ,050109 social psychology ,humanities ,Disgust ,Developmental psychology ,Gender Studies ,03 medical and health sciences ,0302 clinical medicine ,Arts and Humanities (miscellaneous) ,Embodied cognition ,0501 psychology and cognitive sciences ,030212 general & internal medicine ,Psychology ,Teen pregnancy ,reproductive and urinary physiology ,Visual culture - Abstract
Most visual culture related to early childbearing represents pregnant and parenting teen bodies as sites of fear and disgust. The embodied experiences of pregnant and parenting young women ...
- Published
- 2018
- Full Text
- View/download PDF
25. Meth Mouth, White Trash, and the Pseudo-Racialization of Methamphetamine Use in the U.S
- Author
-
Aline Gubrium, Jeffery C. Peterson, and Alice Fiddian-Green
- Subjects
Northwestern United States ,Health (social science) ,Amphetamine-Related Disorders ,050801 communication & media studies ,Criminology ,White People ,Methamphetamine ,Drug user ,03 medical and health sciences ,chemistry.chemical_compound ,Racism ,0508 media and communications ,Criminal Law ,Humans ,Mainstream ,Mass Media ,Sociology ,Moral panic ,Mass media ,030505 public health ,Social Identification ,business.industry ,Communication ,05 social sciences ,Meth ,Social constructionism ,chemistry ,Depiction ,Racialization ,Public Health ,0305 other medical science ,business - Abstract
Drug scares have historically been created for a range of purposes and with a variety of effects in the United States. Moral panics evoked by these drug scares either support or challenge dominant American ideas about race, economics, and society. In the present study, we examined newspaper accounts of methamphetamine use in the Inland Pacific Northwest of the United States in an effort to understand how the "reality" of the "meth epidemic" is socially constructed in a "meth hotspot," and reflect upon the ways that the discourse of Whiteness intersects with this construction. For our analysis, we are cognizant of the "slipperiness" of the logic of Whiteness as a concept, and the ways that an alternative logic is articulated - one that strategically embraces or distances White drug users to support notions of White dominance. We focus on the possibility that individual meth users could then be portrayed pseudo-racially as "White trash," and thus rendered outside the logic of White racial order. Our findings center on two main themes: (1) the use of fear in the construction of the meth drug scare through the sensationalization of meth, its anthropomorphization, and the depiction of the threat of the White drug user; and (2) how the logic of Whiteness is discursively reconciled within this construction. Given current mediated discourses about drug use and health in the United States that center on the emergence of the White drug user as the face of the opioid crisis, we are well served to carefully consider the recent historical precedence of the "meth epidemic" in which the public was faced with reconciling their views about drug use and the intersection of race, class, and mainstream American identity.
- Published
- 2018
- Full Text
- View/download PDF
26. Digital storytelling as critical narrative intervention with adolescent women of Puerto Rican descent
- Author
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Sarah R. Lowe, Gloria T. DiFulvio, Alice Fiddian-Green, Jeffrey Peterson, and Aline Gubrium
- Subjects
medicine.medical_specialty ,030505 public health ,Digital storytelling ,business.industry ,Public health ,Public Health, Environmental and Occupational Health ,Article ,Narrative inquiry ,03 medical and health sciences ,0302 clinical medicine ,Intervention (counseling) ,Pedagogy ,medicine ,Narrative ,030212 general & internal medicine ,Personal experience ,0305 other medical science ,business ,Psychology ,Reproductive health ,Storytelling - Abstract
This article focuses on findings of a two-year pilot research study focused on addressing sexual and reproductive health inequities faced by adolescent women of Puerto Rican descent living on the mainland United States. Working with three groups of young women, in the pilot study we gathered ethnographic data in and around a group-based digital storytelling process to inform the development of a larger intervention. Digital stories are short (1–3 minute), participant produced videos that synthesize still and moving image, a voiceover recording of the participant telling her story, and background music and text to document personal experiences. Based on narrative analysis of digital stories and field notes written in and around the digital storytelling workshop process, as well as follow-up individual interviews with workshop participants, our findings center on the ways that trauma has specifically shaped participants’ sexual and reproductive health experiences. We argue that digital storytelling serves as a critical narrative intervention, whereby participants’ engagement in the storytelling process enables them to collaboratively interrogate and potentially address prior trauma, bolster a sense of social support and solidarity, and potentially recalibrate stigmatizing conversations about them. We introduce our project methodology, and then present key findings on trauma as it informs sexual and reproductive health practices, with digital storytelling showcased as a modality for critical narrative intervention. We conclude by discussing implications for critical public health research and practice.
- Published
- 2018
- Full Text
- View/download PDF
27. Moms Supporting Moms: Digital Storytelling With Peer Mentors in Recovery From Substance Use
- Author
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Aline Gubrium, Alice Fiddian-Green, and Mary T. Paterno
- Subjects
Adult ,Nursing (miscellaneous) ,Substance-Related Disorders ,Mothers ,Pilot Projects ,Peer Group ,03 medical and health sciences ,Social support ,0302 clinical medicine ,medicine ,Humans ,030212 general & internal medicine ,Qualitative Research ,Medical education ,Digital storytelling ,ComputingMilieux_THECOMPUTINGPROFESSION ,Peer mentorship ,Communication ,Mentors ,Perspective (graphical) ,Public Health, Environmental and Occupational Health ,Shared experience ,Social Support ,medicine.disease ,030227 psychiatry ,Substance abuse ,Female ,Substance use ,Psychology ,Qualitative research - Abstract
Substance use disorder (SUD) is a growing issue nationally, and SUD in pregnancy has significant consequences for mothers and their children. This article describes findings from a pilot project that used digital storytelling as a mechanism for understanding substance use and recovery from the perspective of women in recovery from SUD in pregnancy who worked as peer mentors with pregnant women currently experiencing SUD. Research on peer mentorship has primarily focused on outcomes for mentees but not the experience of the peer mentors themselves. In this qualitative study, a 3-day digital storytelling workshop was conducted with five women in recovery serving as peer mentors in their community. Each mentor also participated in an individual, in-depth interview. The digital storytelling workshop process helped peer mentors make linkages between their past substance use experiences to their present work of recovery, and fostered deep social connections between mentors through the shared experience. The workshop process also elicited a sense of hope among participants, which served as groundwork for developing advocacy-based efforts. Digital storytelling may be therapeutic for women in recovery and has the potential to be integrated into recovery programs to bolster hope and social support among participants.
- Published
- 2018
- Full Text
- View/download PDF
28. Narrative complexity in the time of COVID-19
- Author
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Aline Gubrium and Erika Gubrium
- Subjects
2019-20 coronavirus outbreak ,medicine.medical_specialty ,Narration ,Coronavirus disease 2019 (COVID-19) ,SARS-CoV-2 ,Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) ,Public health ,MEDLINE ,COVID-19 ,Social Theory ,General Medicine ,Linguistics ,medicine ,Humans ,Narrative ,Public Health ,Sociology ,Social Factors ,Social theory - Published
- 2021
- Full Text
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29. Visual and Multimodal Approaches in Anthropological Participatory Action Research
- Author
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Krista Harper and Aline Gubrium
- Subjects
060101 anthropology ,Anthropology ,05 social sciences ,050301 education ,Participatory action research ,0601 history and archaeology ,06 humanities and the arts ,Sociology ,0503 education ,Social psychology ,Epistemology - Published
- 2017
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30. Restor(y)ing Health: A Conceptual Model of the Effects of Digital Storytelling
- Author
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Linda Larkey, Alice Fiddian-Green, Jeffery C. Peterson, Sunny Kim, and Aline Gubrium
- Subjects
medicine.medical_specialty ,Nursing (miscellaneous) ,Applied psychology ,Psychological intervention ,Health Promotion ,Health intervention ,03 medical and health sciences ,0302 clinical medicine ,medicine ,Humans ,Narrative ,030212 general & internal medicine ,030505 public health ,Digital storytelling ,Community engagement ,Public health ,Communication ,Public Health, Environmental and Occupational Health ,Conceptual model (computer science) ,Group Processes ,Narrative Therapy ,Public Health ,0305 other medical science ,Psychology ,Psychological Theory ,Social cognitive theory - Abstract
We currently see an interdisciplinary shift toward a "participatory turn" in health research and promotion under which community engagement, shared decision making and planning, and the use of visual and digital methods have become paramount. Digital storytelling (DST) is one such innovative and engaging method increasingly used in applied health interventions, with a growing body of research identifying its value. Despite its increasing use, a standard approach to empirically assess the impacts on individuals participating in DST interventions does not currently exist. In this article, we define DST as a distinct narrative intervention, illustrate key elements that inform the methodology, and present a conceptual model to examine how DST may contribute to increased socioemotional well-being and bolster positive health outcomes. Our proposed model is informed by elements of narrative theory, Freirian conscientization, multimodality, and social cognitive theory and can serve as a guide for public health practitioners and researchers interested in assessing the potential benefits of DST as an applied health intervention. Recommendations for practice call for a rigorous methodological approach to apply and test this model across a range of health contexts and populations.
- Published
- 2019
31. Puerto Rican Latina Youth Coming Out to Talk About Sexuality and Identity
- Author
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Aline Gubrium, Alice Fiddian-Green, and Jeffery C. Peterson
- Subjects
Health (social science) ,Adolescent ,Sexual Behavior ,Identity (social science) ,050801 communication & media studies ,Human sexuality ,Health Promotion ,Article ,Sexual and Gender Minorities ,Young Adult ,03 medical and health sciences ,0508 media and communications ,Syndemic ,Pregnancy ,Transgender ,Humans ,Narrative ,Cultural Competency ,Health communication ,Narration ,030505 public health ,Digital storytelling ,Communication ,05 social sciences ,Gender studies ,Hispanic or Latino ,Grounded Theory ,Female ,Lesbian ,0305 other medical science ,Psychology ,Sexuality - Abstract
Public health efforts focused on Latina youth sexuality are most commonly framed by the syndemic of teen pregnancy and sexually transmitted infections, a narrow and often heteronormative focus that perpetuates silences that contribute to health inequities and overlooks the growing need for increased education, awareness, and support for lesbian, gay, bisexual, transgender, and questioning (LGBTQ) youth. This article presents findings from the project Let's Talk About Sex: Digital Storytelling for Puerto Rican Latina Youth, which used a culturally centered, narrative-based approach for analyzing participants' own specifications of sexual values and practices. The strength of digital storytelling lies in its utility as an innovative tool for community-based and culturally situated research, as well as in its capacity to open up new spaces for health communication. Here we present two "coming out" case studies to illustrate the value of digital storytelling in supporting the development of meaningful and culturally relevant health promotion efforts for LGBTQ-identified Puerto Rican Latina youth across the life span.
- Published
- 2016
- Full Text
- View/download PDF
32. Digital Storytelling as a Narrative Health Promotion Process
- Author
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Aline Gubrium, Gloria T. DiFulvio, Sarah E. Lowe, Lizbeth Del Toro-Mejías, and Alice Fiddian-Green
- Subjects
Male ,Health (social science) ,Adolescent ,media_common.quotation_subject ,Applied psychology ,Pilot Projects ,Human sexuality ,Health Promotion ,Education ,Young Adult ,03 medical and health sciences ,Social support ,0302 clinical medicine ,Optimism ,Pregnancy ,Humans ,Narrative ,030212 general & internal medicine ,Empowerment ,media_common ,Narration ,030505 public health ,Digital storytelling ,Audiovisual Aids ,Communication ,Behavior change ,Public Health, Environmental and Occupational Health ,Social Support ,Hispanic or Latino ,General Medicine ,Health promotion ,Pregnancy in Adolescence ,Female ,Self Report ,0305 other medical science ,Psychology ,Sexuality ,Social psychology - Abstract
Digital storytelling (DST) engages participants in a group-based process to create and share narrative accounts of life events. The process of individuals telling their own stories has not been well assessed as a mechanism of health behavior change. This study looks at outcomes associated with engaging in the DST process for vulnerable youth. The project focused on the experiences of Puerto Rican Latinas between the ages of 15 to 21. A total of 30 participants enrolled in a 4-day DST workshops, with 29 completing a 1 to 3-minute digital story. Self-reported data on several scales (self-esteem, social support, empowerment, and sexual attitudes and behaviors) were collected and analyzed. Participants showed an increase in positive social interactions from baseline to 3-month post workshop. Participants also demonstrated increases in optimism and control over the future immediately after the workshop, but this change was not sustained at 3 months. Analysis of qualitative results and implications are discussed.
- Published
- 2016
- Full Text
- View/download PDF
33. Culture, Health, and Science
- Author
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Sabina Knight, Lynn M. Morgan, and Aline Gubrium
- Subjects
Models, Educational ,medicine.medical_specialty ,Health (social science) ,Public administration ,Education ,Health administration ,03 medical and health sciences ,0302 clinical medicine ,Global health ,Humans ,Medicine ,030212 general & internal medicine ,Health policy ,030505 public health ,Liberal arts education ,business.industry ,Public health ,Public Health, Environmental and Occupational Health ,International health ,General Medicine ,Public relations ,United States ,Health promotion ,Health education ,Curriculum ,Public Health ,0305 other medical science ,business - Abstract
Since the 2003 call by the Institute of Medicine to educate undergraduates in public health, various models have emerged for incorporating public health into the liberal arts and sciences. One model is a professionalized public health major that uses core public health competencies to prepare a workforce of health professionals. A second model offers a broad-based public health major rooted in liberal arts principles, resisting the utilitarian trend toward human capital formation. A third model resists even the label of “public health,” preferring instead to introduce undergraduates to many ways of analyzing human health and healing. The multidisciplinary Culture, Health, and Science Program, based on six key commitments for preparing liberal arts students to analyze health and respond to global health challenges, is offered as an alternative to the public health major.
- Published
- 2016
- Full Text
- View/download PDF
34. The cascade of social determinants in producing chronic disease in low-income African-American men
- Author
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Lamont Scott, David Buchanan, Aline Gubrium, and Henry Douglas
- Subjects
Adult ,Male ,Social Determinants of Health ,men’s health ,media_common.quotation_subject ,Developmental psychology ,03 medical and health sciences ,cultural competency ,0302 clinical medicine ,Cynicism ,Empirical Studies ,Humans ,030212 general & internal medicine ,Social determinants of health ,Poverty ,Qualitative Research ,media_common ,Aged ,African-American ,Hierarchy ,lcsh:R5-920 ,030505 public health ,Health Policy ,1. No poverty ,Health Status Disparities ,Middle Aged ,Health equity ,United States ,Black or African American ,Issues, ethics and legal aspects ,Chronic disease ,Attitude ,Unemployment ,Chronic Disease ,Income ,Fundamentals and skills ,Health disparities ,0305 other medical science ,Psychology ,lcsh:Medicine (General) ,Gerontology ,Cultural competence - Abstract
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40–65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
- Published
- 2018
35. 'Scribble Scrabble': Migration, Young Parenting Latinas, and Digital Storytelling as Narrative Shock
- Author
-
Elizabeth L. Krause and Aline Gubrium
- Subjects
Adolescent ,media_common.quotation_subject ,03 medical and health sciences ,Dignity ,Pregnancy ,Residence Characteristics ,Humans ,0601 history and archaeology ,Narrative ,Sociology ,Shadow (psychology) ,media_common ,Reproductive health ,Transients and Migrants ,060101 anthropology ,030505 public health ,Digital storytelling ,Narration ,business.industry ,Anthropology, Medical ,Humiliation ,Gender studies ,06 humanities and the arts ,General Medicine ,Hispanic or Latino ,New media ,United States ,Reproductive Health ,Anthropology ,Pregnancy in Adolescence ,Female ,0305 other medical science ,business ,Storytelling - Abstract
The nexus of migration and family offers a conjuncture to enrich understanding of teen pregnancy and parenting. This article draws findings from a project centered on participant-produced new media to reveal how young mothers negotiate reproductive health disparities. We focus on young mothers' experiences of migration and movement, captured in local vernacular through participants' digital story depictions and follow-up interviews. We argue that disparities link up with the single story of teen mothering, involve public shaming, continue hand-in-hand with institutional humiliation, and are exacerbated through migration and movement. To disrupt the normative notions that shadow young mothers, we take seriously the young women's narratives. We theorize how the richness of stories and storytelling may serve as a potent intervention-a narrative shock-for articulating meanings and cultivating dignity for young mothers and their families, especially those who do not fit the sedentary and age biases of parenting ideals.
- Published
- 2018
36. Mothers and Mentors: Exploring Perinatal Addiction and Recovery Through Digital Storytelling
- Author
-
Aline Gubrium, Maud Low, Mary T. Paterno, and Kirk Sanger
- Subjects
Adult ,Counseling ,Rural Population ,Substance-Related Disorders ,media_common.quotation_subject ,education ,Social Stigma ,Mothers ,Peer support ,Peer Group ,Developmental psychology ,Narrative inquiry ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,mental disorders ,Humans ,030212 general & internal medicine ,media_common ,Digital storytelling ,Narration ,ComputingMilieux_THECOMPUTINGPROFESSION ,030504 nursing ,Addiction ,Mentors ,Public Health, Environmental and Occupational Health ,Mentoring ,Social Support ,Middle Aged ,America north ,Behavior, Addictive ,Massachusetts ,Female ,Substance use ,0305 other medical science ,Psychology - Abstract
Substance use disorders (SUDs) are a growing problem for pregnant and parenting women. Woman-to-woman peer support may positively influence perinatal outcomes but little is known about the impact of such support on the women who are providing support. The purpose of this study was to describe experiences of addiction in pregnancy, recovery, and subsequently serving as a peer mentor to other pregnant women with active SUD among women in recovery in a rural setting. We conducted one digital storytelling workshop with five women serving as peer mentors with lived experience of perinatal SUD. The mentors faced significant stigma in pregnancy. They had each done the “inside work” to achieve recovery, and maintained recovery by staying balanced. Peer mentoring supported their own recovery, and story sharing was integral to this process. Peer-led support models may be an effective, self-sustaining method of providing pregnancy-specific peer support for SUD.
- Published
- 2018
37. Narrative Influences on 'Desire to Act in My Community' in Digital Storytelling Workshops for Latina Teens
- Author
-
Lizbeth Del Toro-Mejías, Linda Larkey, Aline Gubrium, and Gloria T. DiFulvio
- Subjects
medicine.medical_specialty ,Health (social science) ,Adolescent ,Emotions ,Health Promotion ,Education ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,medicine ,Humans ,Narrative ,030212 general & internal medicine ,education ,Narrative medicine ,education.field_of_study ,030505 public health ,Digital storytelling ,Public health ,Public Health, Environmental and Occupational Health ,Narrative Medicine ,General Medicine ,Hispanic or Latino ,Emotional engagement ,Health promotion ,Community health ,Marginalized populations ,Female ,Public Health ,0305 other medical science ,Psychology ,Social psychology - Abstract
Digital storytelling workshops are increasingly being used to capture lived experiences and develop/disseminate health promotion messages for vulnerable and marginalized populations. Thirty female Latina teens of varied sexual/parity status produced digital stories of significant life experiences in a group context and then viewed and evaluated them using the Narrative Quality Assessment Tool. This tool was used to examine participants' experience of emotional engagement and identification with each story as well as a single-item indicator of desire to "do something in my community" related to the story. Emotional engagement was moderately strong; identification scores were neutral relative to the stories. Emotional engagement was strongly, significantly related to "desire to act in my community," while identification was not related. Emotional engagement should be considered an important factor to incorporate in the production of digital stories for purposes of developing interest in social action beyond the digital storytelling workshop.
- Published
- 2018
38. Bridging Graduate Education in Public Health and the Liberal Arts
- Author
-
Felicity Aulino, Elizabeth L. Krause, C. Marjorie Aelion, Thomas L. Leatherman, and Aline Gubrium
- Subjects
medicine.medical_specialty ,Schools, Public Health ,Higher education ,Culture ,Arts in education ,Humanities ,Liberal education ,ComputingMilieux_COMPUTERSANDEDUCATION ,medicine ,Humans ,Education, Graduate ,Sociology ,Curriculum ,Medical education ,Liberal arts education ,ComputingMilieux_THECOMPUTINGPROFESSION ,business.industry ,Public health ,Professional development ,Public Health, Environmental and Occupational Health ,Problem-Based Learning ,Massachusetts ,Problem-based learning ,Commentary ,Education, Public Health Professional ,business ,Computer-Assisted Instruction - Abstract
The University of Massachusetts Amherst is part of Five-Colleges Inc, a consortium that includes the university and four liberal arts colleges. Consortium faculty from the School of Public Health and Health Sciences at the university and from the colleges are working to bridge liberal arts with public health graduate education. We outline four key themes guiding this effort and exemplary curricular tools for innovative community-based and multidisciplinary academic and research programs. The structure of the consortium has created a novel trajectory for student learning and engagement, with important ramifications for pedagogy and professional practice in public health. We show how graduate public health education and liberal arts can, and must, work in tandem to transform public health practice in the 21st century.
- Published
- 2015
- Full Text
- View/download PDF
39. Participatory Visual and Digital Methods
- Author
-
Aline Gubrium, Krista Harper, Aline Gubrium, and Krista Harper
- Subjects
- Visual anthropology--Methodology, Visual sociology--Methodology, Video recording in ethnology, Motion pictures in ethnology, Digital media, Ethnology--Research, SOCIAL SCIENCE / Methodology, SOCIAL SCIENCE / Research, SOCIAL SCIENCE / Anthropology / Cultural
- Abstract
Gubrium and Harper describe how visual and digital methodologies can contribute to a participatory, public-engaged ethnography. These methods can change the traditional relationship between academic researchers and the community, building one that is more accessible, inclusive, and visually appealing, and one that encourages community members to reflect and engage in issues in their own communities. The authors describe how to use photovoice, film and video, digital storytelling, GIS, digital archives and exhibits in participatory contexts, and include numerous case studies demonstrating their utility around the world.
- Published
- 2016
40. Participatory Visual and Digital Research in Action
- Author
-
Aline Gubrium, Krista Harper, Marty Otañez, Aline Gubrium, Krista Harper, and Marty Otañez
- Subjects
- Motion pictures in ethnology--Case studies, Research, Ethnology, Visual anthropology--Case studies, Visual sociology--Case studies, Video recording in ethnology--Case studies
- Abstract
This collection of original articles, a companion to the authors'Participatory Visual and Digital Methods, illustrates how innovative visual and digital research techniques are being used in various field projects in health care, environmental policy, urban planning, education and youth development, and heritage management settings. These methodologies produce rich visual and narrative data guided by participant interests and priorities, key tools for collaborative work. The 16 chapters-include digital storytelling, PhotoVoice, community-based filmmaking, participatory mapping and GIS, and participatory digital archival research;-provide a portfolio of model research projects for researchers who wish to collaborate on community-based studies;-will appeal to an audience across social science, heritage, health, education, and social service fields.An open-access companion website will allow readers to view the research products presented in each contributor's chapter.
- Published
- 2015
41. Participatory Visual and Digital Research in Action
- Author
-
Marty Otañez, Krista Harper, and Aline Gubrium
- Subjects
Participatory GIS ,Digital storytelling ,Social work ,business.industry ,Filmmaking ,Political science ,Photovoice ,Participatory action research ,Cultural heritage management ,Public relations ,business ,Archival research - Abstract
This collection of original articles, a companion to the authors' Participatory Visual and Digital Methods, illustrates how innovative visual and digital research techniques are being used in various field projects in health care, environmental policy, urban planning, education and youth development, and heritage management settings. These methodologies produce rich visual and narrative data guided by participant interests and priorities, key tools for collaborative work. The 16 chapters-include digital storytelling, PhotoVoice, community-based filmmaking, participatory mapping and GIS, and participatory digital archival research;-provide a portfolio of model research projects for researchers who wish to collaborate on community-based studies;-will appeal to an audience across social science, heritage, health, education, and social service fields.An open-access companion website will allow readers to view the research products presented in each contributor's chapter.
- Published
- 2016
- Full Text
- View/download PDF
42. Participatory Visual and Digital Methods
- Author
-
Aline Gubrium and Krista Harper
- Published
- 2016
- Full Text
- View/download PDF
43. Participatory Film and Videomaking
- Author
-
Aline Gubrium and Krista Harper
- Subjects
Pedagogy - Published
- 2016
- Full Text
- View/download PDF
44. Participatory Visual and Digital Research in Theory and Practice
- Author
-
Krista Harper and Aline Gubrium
- Subjects
Pedagogy ,Citizen journalism ,Sociology - Published
- 2016
- Full Text
- View/download PDF
45. Participatory Digital Archives and Exhibitions as Research
- Author
-
Krista Harper and Aline Gubrium
- Subjects
Exhibition ,Political science ,Digital Archives ,Citizen journalism ,Visual arts - Published
- 2016
- Full Text
- View/download PDF
46. Participatory Digital Research Ethics
- Author
-
Krista Harper and Aline Gubrium
- Subjects
Research ethics ,Engineering ethics ,Citizen journalism ,Sociology - Published
- 2016
- Full Text
- View/download PDF
47. Opening Up Data Analysis, Writing, and Research Products
- Author
-
Aline Gubrium and Krista Harper
- Published
- 2016
- Full Text
- View/download PDF
48. Measuring Down: Evaluating Digital Storytelling as a Process for Narrative Health Promotion
- Author
-
Alice Fiddian-Green, Aline Gubrium, Lizbeth Del Toro-Mejías, Gloria T. DiFulvio, and Sarah R. Lowe
- Subjects
030505 public health ,Digital storytelling ,Multimedia ,media_common.quotation_subject ,Applied psychology ,Public Health, Environmental and Occupational Health ,Human sexuality ,computer.software_genre ,03 medical and health sciences ,Social support ,0302 clinical medicine ,Health promotion ,Intervention (counseling) ,Agency (sociology) ,Narrative ,030212 general & internal medicine ,0305 other medical science ,Empowerment ,Psychology ,computer ,media_common - Abstract
Digital storytelling (DST) engages participants in a group-based process to create and share narrative accounts of life events. We present key evaluation findings of a 2-year, mixed-methods study that focused on effects of participating in the DST process on young Puerto Rican Latina’s self-esteem, social support, empowerment, and sexual attitudes and behaviors. Quantitative results did not show significant changes in the expected outcomes. However, in our qualitative findings we identified several ways in which the DST made positive, health-bearing effects. We argue for the importance of “measuring down” to reflect the locally grounded, felt experiences of participants who engage in the process, as current quantitative scales do not “measure up” to accurately capture these effects. We end by suggesting the need to develop mixed-methods, culturally relevant, and sensitive evaluation tools that prioritize process effects as they inform intervention and health promotion.
- Published
- 2016
49. Bodies as evidence: Mapping new terrain for teen pregnancy and parenting
- Author
-
Alice Fiddian-Green, Elizabeth L. Krause, Aline Gubrium, and Kasey Jernigan
- Subjects
Community-Based Participatory Research ,Adolescent ,Sexual Behavior ,education ,Evidence mapping ,Developmental psychology ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,Body mapping ,Body Image ,Humans ,0601 history and archaeology ,030212 general & internal medicine ,Justice (ethics) ,Reproductive health ,Exposure to Violence ,060101 anthropology ,Parenting ,business.industry ,Public Health, Environmental and Occupational Health ,Personal Narratives as Topic ,Social Support ,Citizen journalism ,Gender studies ,06 humanities and the arts ,Hispanic or Latino ,Young parents ,Structural violence ,Socioeconomic Factors ,Adolescent Behavior ,Pregnancy in Adolescence ,Female ,Sexual Health ,business ,Psychology ,Teen pregnancy - Abstract
Predominant approaches to teen pregnancy focus on decreasing numbers of teen mothers, babies born to them, and state dollars spent to support their families. This overshadows the structural violence interwoven into daily existence for these young parents. This paper argues for the increased use of participatory visual methods to compliment traditional research methods in shifting notions of what counts as evidence in response to teen pregnancy and parenting. We present the methods and results from a body mapping workshop as part of 'Hear Our Stories: Diasporic Youth for Sexual Rights and Justice', a project that examines structural barriers faced by young parenting Latinas and seeks to develop relevant messaging and programming to support and engage youth. Body mapping, as an engaging, innovative participatory visual methodology, involves young parenting women and other marginalised populations in drawing out a deeper understanding of sexual health inequities. Our findings highlight the ways body mapping elicits bodies as evidence to understand young motherhood and wellbeing.
- Published
- 2016
50. Conflicting Aims and Minimizing Harm: Uncovering Experiences of Trauma in Digital Storytelling with Young Women
- Author
-
Alice Fiddian-Green, Amy L. Hill, and Aline Gubrium
- Subjects
medicine.medical_specialty ,030505 public health ,Digital storytelling ,Historical trauma ,business.industry ,Public health ,05 social sciences ,Psychological intervention ,Citizen journalism ,Public relations ,03 medical and health sciences ,Harm ,050903 gender studies ,Intervention (counseling) ,Political science ,medicine ,0509 other social sciences ,0305 other medical science ,business ,Social psychology ,Reproductive health - Abstract
This chapter discusses a digital storytelling project that combined aims to gain fine-grained understanding of, and address, sexual health inequities among Puerto Rican Latinas in the project community. The authors begin by introducing digital storytelling as a culture-centered approach for use in public health research and intervention. They then trace two emerging ethical issues in research using digital storytelling, both related to key project findings of current and historical trauma among participants: (1) conflicting aims in the project and (2) the ethical standard to minimize harm. The authors conclude that these issues can be resolved if projects are guided by a sensitive ethical protocol, and that digital storytelling and other participatory, visual, and arts-based methods can be harnessed for the design of effective sexual health interventions.
- Published
- 2016
- Full Text
- View/download PDF
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