83 results on '"Tucker Edmonds B"'
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2. Offering induction of labor for 22-week premature rupture of membranes: a survey of obstetricians
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McKenzie, F and Tucker Edmonds, B
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- 2015
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3. A national survey of obstetricians' attitudes toward and practice of periviable intervention
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Tucker Edmonds, B, McKenzie, F, Farrow, V, Raglan, G, and Schulkin, J
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- 2015
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4. Comparing obstetricians’ and neonatologists’ approaches to periviable counseling
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Tucker Edmonds, B, McKenzie, F, Panoch, J E, Barnato, A E, and Frankel, R M
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- 2015
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5. The influence of resuscitation preferences on obstetrical management of periviable deliveries
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Tucker Edmonds, B, McKenzie, F, Hendrix, K S, Perkins, S M, and Zimet, G D
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- 2015
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6. Comparing obstetricians’ and neonatologists’ approaches to periviable counseling
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Tucker Edmonds, B, primary, McKenzie, F, additional, Panoch, J E, additional, Barnato, A E, additional, and Frankel, R M, additional
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- 2014
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7. A national survey of obstetricians' attitudes toward and practice of periviable intervention
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Tucker Edmonds, B, primary, McKenzie, F, additional, Farrow, V, additional, Raglan, G, additional, and Schulkin, J, additional
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- 2014
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8. The influence of resuscitation preferences on obstetrical management of periviable deliveries
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Tucker Edmonds, B, primary, McKenzie, F, additional, Hendrix, K S, additional, Perkins, S M, additional, and Zimet, G D, additional
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- 2014
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9. Obstetric decision-making and counseling at the limits of viability.
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Tucker Edmonds B, Krasny S, Srinivas S, and Shea J
- Abstract
OBJECTIVE: The purpose of this study was to examine factors that influence obstetric decision-making and counseling for periviable deliveries and to describe counseling challenges. STUDY DESIGN: Twenty-one semistructured interviews were conducted with obstetricians who were recruited from 5 academic medical centers in Philadelphia. Two trained reviewers independently coded transcripts using grounded theory methods. Research software facilitated qualitative analysis. RESULTS: Circumscribed by institutional norms and clinical acuity, obstetric decision-making and counseling were influenced primarily by patient preferences. Perspectives on patient autonomy guided approaches to counseling. Thresholds for intervention varied from 'attending to attending' and 'institution to institution.' Sociodemographic factors were not believed to influence clinical decision-making. However, obstetricians admittedly managed in vitro fertilization pregnancies more aggressively. Communicating uncertainty, managing expectations, assessing understanding, and relaying consistent messages across specialties were frequently described counseling challenges for obstetricians. CONCLUSION: The impact of institutional variation and in vitro fertilization on periviable decision-making warrants further consideration. Interventions to train and support obstetricians in communicating uncertainty, managing expectations, and assessing values and understanding are needed. [ABSTRACT FROM AUTHOR]
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- 2012
10. Feasibility and acceptability of chaplain decision coaching on Periviable resuscitation decision quality: A pilot study.
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Varner-Perez SE, Hoffman SM, Coleman-Phox K, Bhamidipalli S, Monahan PO, Kuppermann M, and Tucker Edmonds B
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Objective: To pilot test and assess the feasibility and acceptability of chaplain-led decision coaching alongside the GOALS (Getting Optimal Alignment around Life Support) decision support tool to enhance decision-making in threatened periviable delivery., Methods: Pregnant people admitted for threatened periviable delivery and their 'important other' (IO) were enrolled. Decisional conflict, acceptability, and knowledge were measured before and after the intervention. Chaplains journaled their impressions of training and coaching encounters. Descriptive analysis and conventional content analysis were completed., Results: Eight pregnant people and two IOs participated. Decisional conflict decreased by a mean of 6.7 (SD = 9.4) and knowledge increased by a mean of 1.4 (SD = 1.8). All rated their experience as "good" or "excellent," and the amount of information was "just right." Participants found it "helpful to have someone to talk to" and noted chaplains helped them reach a decision. Chaplains found the intervention a valuable use of their time and skillset., Conclusion: This is the first small-scale pilot study to utilize chaplains as decision coaches. Our results suggest that chaplain coaching with a decision support tool is feasible and well-accepted by parents and chaplains., Innovations: Our findings recognize chaplains as an underutilized, yet practical resource in value-laden clinical decision-making., Competing Interests: The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (© 2024 The Authors. Published by Elsevier B.V.)
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- 2024
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11. Association Between Race, Cardiology Care, and the Receipt of Guideline-Directed Medical Therapy in Peripartum Cardiomyopathy.
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Bolakale-Rufai IK, Knapp SM, Johnson AE, Brewer L, Mohammed S, Addison D, Mazimba S, Tucker-Edmonds B, and Breathett K
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Background: Black patients with peripartum cardiomyopathy (PPCM) have disproportionately worse outcomes than White patients, possibly related to variable involvement of cardiovascular specialists in their clinical care. We sought to determine whether race was associated with cardiology involvement in clinical care during inpatient admission and whether cardiology involvement in care was associated with higher claims of guideline-directed medical therapy (GDMT) a week after hospital discharge., Methods: Using Optum's de-identified Clinformatics® Data Mart (CDM), we included Black and White patients' first hospital admission for PPCM from 2008 to 2021. Cardiology involvement in clinical care was defined as the receipt of attending care from a cardiovascular specialist during admission. GDMT included beta-blockers (BB) for all patients and triple therapy (BB, angiotensin-responsive medications, and mineralocorticoid receptor antagonists) for non-pregnant patients. Logistic regression was used to determine the associations between cardiology involvement in clinical care during admission and (1) patient race and (2) GDMT prescription, adjusting for age and comorbidities., Results: Among 668 patients (32.6% Black, 67.4% White, 93.3% commercially insured), there was no significant difference in the odds of cardiology involvement in clinical care by race (aOR: 1.41; 95%CI: 0.87-2.33, P=0.17). Inpatient cardiology care was associated with 2.75 times increased odds of having a prescription claim for GDMT (BB) for White patients (aOR: 2.75; 95%CI 1.50-5.06, P=0.001), and the estimated effect size was similar but not statistically significant for Black patients (aOR: 2.20, 95% CI, 0.84-5.71, P=0.11). The interaction between race and cardiology involvement in clinical care was not statistically significant for the receipt of BB prescription. Among 274 non-pregnant patients with PPCM (37.2% Black, 62.8% White), 5.8% received triple GDMT. Of these, none of the Black patients lacking cardiology care had triple GDMT. However, cardiology involvement in care was not significantly associated with triple GDMT for either race., Conclusions: Among a commercially insured population within PPCM, race was not associated with cardiology involvement in clinical care during hospitalization. However, cardiology involvement in care was associated with significantly higher odds of prescription claims for BB for only White patients. Additional strategies are needed to support equitable GDMT prescription., (© 2023. W. Montague Cobb-NMA Health Institute.)
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- 2023
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12. Mitigating Misogynoir: Inclusive Professionalism as a Health Equity Strategy.
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Tucker Edmonds B, Sharp S, and Walker VP
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- Female, Humans, Black or African American psychology, Black or African American statistics & numerical data, Health Status Disparities, Health Workforce organization & administration, Healthcare Disparities ethnology, Internship and Residency, Organizational Culture, Physicians, Women psychology, Professionalism, Racism prevention & control, United States, Gynecology education, Gynecology organization & administration, Health Equity organization & administration, Obstetrics education, Obstetrics organization & administration
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As Obstetrics and Gynecology begins to recognize how structural racism drives inequitable health outcomes, it must also acknowledge the effects of structural racism on its workforce and culture. Black physicians comprise ~5% of the United States physician population. Unique adversities affect Black women physicians, particularly during residency training, and contribute to the lack of equitable workforce representation. Eliminating racialized inequities in clinical care requires addressing these concerns. By applying historical context to present-day realities and harms experienced by Black women (ie, misogynoir), Obstetrics and Gynecology can identify interventions, such as equity-focused recruitment and retention strategies, that transform the profession., (Copyright © 2022 Wolters Kluwer Health, Inc. All rights reserved.)
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- 2023
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13. Mode of delivery in the context of periviable birth: informed deference and shared decision-making.
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Bode LM, Jager SM, Panoch J, Hoffman SM, Laitano T, Kavanaugh K, and Tucker Edmonds B
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- Pregnancy, Female, Humans, Decision Making, Shared, Delivery, Obstetric, Mothers, Cesarean Section, Decision Making
- Abstract
Objective: To qualitatively evaluate women's perspectives on shared decision-making for periviable (22-25 weeks' gestational age) mode of delivery (MOD)., Study Design: Interviews were conducted at two Midwestern academic hospitals with 30 women hospitalized for threatened periviable delivery between September 2016 and January 2018. Prior to delivery (T1) and at 3-months postpartum (T2), MOD-related decision-making was explored using prompts. Interviews were coded and analyzed using NVivo 12., Result: The majority of women perceived the MOD options as cesarean section or vaginal delivery. Most ultimately preferred "whatever's best for baby." Understanding of MOD risks was limited, and physicians recommended each option equally. Sixteen participants perceived themselves as decision-makers at T1, while at T2, only nine participants identified themselves as such., Conclusion: Informed deference is introduced as a novel concept in the setting of periviable MOD decision-making, whereby the mother defers decisional authority to the provider, the baby, a higher power, or the circumstance itself., (© 2022. The Author(s), under exclusive licence to Springer Nature America, Inc.)
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- 2023
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14. Evaluating Shared Decision-Making in Postpartum Contraceptive Counseling Using Objective Structured Clinical Examinations.
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Tucker Edmonds B, Hoffman SM, Laitano T, McKenzie F, Panoch J, Litwiller A, and DiCorcia MJ
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Background: Shared decision-making (SDM) may support widespread uptake of progestin-containing long-acting reversible contraceptives in the immediate postpartum period. We piloted an Objective Structured Clinical Examination (OSCE) to evaluate first-year obstetrics and gynecology resident physicians' use of SDM in postpartum contraception counseling., Methods: As part of their 2015 and 2016 OSCEs, first-year OB/GYN residents were instructed to provide contraceptive counseling to a Standardized Patient (SP) portraying a 29-year-old postpartum patient seen during rounds on the morning following her delivery. Three investigators independently scored each resident encounter using a 10-item rubric adapted from a 9-item SDM measure and assigned scores of 0 (absent), 1 (partial), or 2 (complete). Each encounter was video and audio recorded, then transcribed for qualitative analysis. Descriptive statistics was produced using SPSS version 24., Results: Eighteen residents participated. The majority (78%) discussed contraceptive options and timing of initiation. Nearly 33% elicited factors most important to the SP in influencing her preference. Only 6% discussed the benefits of exclusive breastfeeding, and few addressed the uncertainty of progesterone on milk supply and production., Conclusion: Although residents conveyed ample clinical information, the vast majority did not discuss elements of SDM, such as her preferences, values, and goals for future fertility and breastfeeding. Our work revealed that critical elements of SDM are often not explored and deliberated by resident physicians. Trainings ( e.g. , OSCEs) are needed to equip residents with effective communication skills to facilitate more SDM in postpartum contraceptive care., Competing Interests: No competing financial interests exist., (© Brownsyne Tucker Edmonds et al., 2022; Published by Mary Ann Liebert, Inc.)
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- 2022
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15. Impact of Telehealth on the Delivery of Prenatal Care During the COVID-19 Pandemic: Mixed Methods Study of the Barriers and Opportunities to Improve Health Care Communication in Discussions About Pregnancy and Prenatal Genetic Testing.
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Craighead CG, Collart C, Frankel R, Rose S, Misra-Hebert AD, Tucker Edmonds B, Michie M, Chien E, Coleridge M, Goje O, Ranzini AC, and Farrell RM
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Background: The COVID-19 pandemic brought significant changes in health care, specifically the accelerated use of telehealth. Given the unique aspects of prenatal care, it is important to understand the impact of telehealth on health care communication and quality, and patient satisfaction. This mixed methods study examined the challenges associated with the rapid and broad implementation of telehealth for prenatal care delivery during the pandemic., Objective: In this study, we examined patients' perspectives, preferences, and experiences during the COVID-19 pandemic, with the aim of supporting the development of successful models to serve the needs of pregnant patients, obstetric providers, and health care systems during this time., Methods: Pregnant patients who received outpatient prenatal care in Cleveland, Ohio participated in in-depth interviews and completed the Coronavirus Perinatal Experiences-Impact Survey (COPE-IS) between January and December 2021. Transcripts were coded using NVivo 12, and qualitative analysis was used, an approach consistent with the grounded theory. Quantitative data were summarized and integrated during analysis., Results: Thematic saturation was achieved with 60 interviews. We learned that 58% (35/60) of women had telehealth experience prior to their current pregnancy. However, only 8% (5/60) of women had used both in-person and virtual visits during this pregnancy, while the majority (54/60, 90%) of women participated in only in-person visits. Among 59 women who responded to the COPE-IS, 59 (100%) felt very well supported by their provider, 31 (53%) were moderately to highly concerned about their child's health, and 17 (29%) reported that the single greatest stress of COVID-19 was its impact on their child. Lead themes focused on establishing patient-provider relationships that supported shared decision-making, accessing the information needed for shared decision-making, and using technology effectively to foster discussions during the COVID-19 pandemic. Key findings indicated that participants felt in-person visits were more personal, established greater rapport, and built better trust in the patient-provider relationship as compared to telehealth visits. Further, participants felt they could achieve a greater dialogue and ask more questions regarding time-sensitive information, including prenatal genetic testing information, through an in-person visit. Finally, privacy concerns arose if prenatal genetic testing or general pregnancy conversations were to take place outside of the health care facility., Conclusions: While telehealth was recognized as an option to ensure timely access to prenatal care during the COVID-19 pandemic, it also came with multiple challenges for the patient-provider relationship. These findings highlighted the barriers and opportunities to achieve effective and patient-centered communication with the continued integration of telehealth in prenatal care delivery. It is important to address the unique needs of this population during the pandemic and as health care increasingly adopts a telehealth model., (©Caitlin G Craighead, Christina Collart, Richard Frankel, Susannah Rose, Anita D Misra-Hebert, Brownsyne Tucker Edmonds, Marsha Michie, Edward Chien, Marissa Coleridge, Oluwatosin Goje, Angela C Ranzini, Ruth M Farrell. Originally published in JMIR Formative Research (https://formative.jmir.org), 05.12.2022.)
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- 2022
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16. Doris Duke Charitable Foundation Fund to Retain Clinical Scientists: innovating support for early-career family caregivers.
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Jagsi R, Beeland TD, Sia K, Szczygiel LA, Allen MR, Arora VM, Bair-Merritt M, Bauman MD, Bogner HR, Daumit G, Davis E, Fagerlin A, Ford DE, Gbadegesin R, Griendling K, Hartmann K, Hedayati SS, Jackson RD, Matulevicius S, Mugavero MJ, Nehl EJ, Neogi T, Regensteiner JG, Rubin MA, Rubio D, Singer K, Tucker Edmonds B, Volerman A, Laney S, Patton C, and Escobar Alvarez S
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- Humans, Caregivers, Physicians, Financial Management
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- 2022
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17. Mandated Reporting of Perinatal Substance Use: The Root of Inequity.
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Tucker Edmonds B
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- Female, Pregnancy, Humans, Substance-Related Disorders epidemiology
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- 2022
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18. Default Withdrawal: Exacerbating Mistrust for Our Most Vulnerable Families.
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Anani U, Tucker Edmonds B, Andrews BL, Famuyide M, and Feltman D
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- Humans, Trust
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- 2022
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19. Diversifying Faculty Leadership in Academic Medicine: The Program to Launch Underrepresented in Medicine Success (PLUS).
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Tucker Edmonds B, Tori AJ, Ribera AK, Allen MR, Dankoski ME, and Rucker SY
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- Curriculum, Faculty, Medical, Female, Humans, Male, Program Development, Program Evaluation, Schools, Medical, Leadership, Staff Development methods
- Abstract
PLUS (Program to Launch Underrepresented in Medicine Success) is a 2-year cohort program at Indiana University School of Medicine providing professional development, funding and skills to produce scholarship, and a community to mitigate social and/or professional isolation for underrepresented in medicine (URiM) faculty. In year 1, scholars participate in leadership and professional development seminars and regular meetings with their mentor(s). They are assigned a PLUS Advisory Council advisor with whom they meet 2 to 3 times annually. In year 2, scholars participate in monthly seminars focused on research methods, writing productivity, and wellness. Additionally, scholars engage in a writing accountability group and practice reflective writing. Connections events, designed to combat isolation and cultivate community, occur monthly. At program completion, scholars complete a project resulting in a scholarly product for submission and dissemination in a peer-reviewed forum. To date, 3 cohorts, totaling 24 people, have participated: 20 (83%) Black, 4 (17%) Latinx; 12 (50%) females. Five scholars have completed the full program, whose pre- and postsurvey results are described. Program surveys demonstrate significant gains in scholars' confidence to secure leadership opportunities, connect with colleagues, and advocate for themselves and others. Scholars reported statistically significant increases in confidence to pursue leadership roles (t = -3.67, P = .02) and intent to submit their dossier for promotion (t = -6.50, P = .003). They were less likely to leave academic medicine (t = 2.75, P = .05) or pursue another academic appointment (t = 2.75, P = .05) after PLUS completion than at baseline. All scholars adequately met requirements for their third-year review (tenure track only), were promoted, or achieved tenure in less than 3 years since program completion. This article describes PLUS program objectives, evaluative components, and lessons learned during implementation, as a model to support URiM faculty at other institutions., (Copyright © 2022 by the Association of American Medical Colleges.)
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- 2022
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20. The Impact of Outpatient Prenatal Care Visitor Restrictions on Pregnant Patients and Partners During the COVID-19 Pandemic.
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Collart C, Craighead C, Rose S, Frankel R, Tucker Edmonds B, Perni U, Chien EK, Coleridge M, Ranzini A, and Farrell RM
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Introduction: During the early months of the COVID-19 pandemic, several health care facilities enacted visitor restrictions to help reduce the spread of SARS-CoV-2 among patients, front-line workers in health care systems, and communities. The impact and burden of policy updates on visitor restrictions put forth by the COVID-19 pandemic can be seen on patients and families, most often in the acute care setting and skilled nursing facilities. Yet, the effects of visitor restrictions in the prenatal care setting were unknown. We conducted a study to investigate the impact of these policies on pregnant patients who received outpatient prenatal care., Methods: We conducted a qualitative study to explore pregnant patients' experiences with prenatal health care delivery between May and July 2020. In-depth interviews were conducted with pregnant patients in the first and second trimester of pregnancy, who received their prenatal care at the onset of the pandemic in the United States., Results: Participants noted increased maternal concern, anxiety, and mental health concerns stemming from the lack of in-person partner support. They noted disappointment and lost experiences for the patient during pregnancy, seeking support from her partner during pregnancy, experiences felt to be critical for postpartum health and wellbeing. There was also concern about the negative impact of restrictions on prenatal care quality and experience., Conclusions: This study demonstrates the impact of visitor restrictions on patients' prenatal care experience and perception of health care quality during the COVID-19 pandemic. Future public health strategies should be individualized to different patient populations addressing knowledge, health literacy, and socioeconomic status, and developed in conjunction with pregnant patients as key stakeholders in the delivery of prenatal health care., Competing Interests: The following co-authors do not have any relevant conflict of interests to declare: Christina Collart, Caitlin Craighead, Richard Frankel, Brownsyne Tucker Edmonds, Uma Perni, Edward K Chien, Marissa Coleridge, Angela Ranzini, and Ruth M Farrell. Susannah Rose received speaking honorariums and travel funding within the past 3 years from Siemens Healthineers, Panagora Pharma, Healthcare Information and Management Systems Society, Inc. (HIMSS), Next Generation Patient Experience (NGPX), and health care systems in Sweden and Saudi Arabia on topics related to public health, bioethics, and health policy., (© Christina Collart et al., 2022; Published by Mary Ann Liebert, Inc.)
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- 2022
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21. Responding to patient requests for women obstetrician-gynecologists.
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Shalowitz DI, Tucker-Edmonds B, Marshall MF, and White A
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- Female, Health Personnel, Humans, Pregnancy, Gynecology, Obstetrics, Physicians
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Patients may request care from a woman obstetrician-gynecologist for various reasons, including privacy concerns, religious or cultural reasons, and in some cases, a history of abuse. They should be given the opportunity to voice their reasons for requesting a woman obstetrician-gynecologist but should not be compelled to do so. Respect for patient autonomy is a compelling reason to consider honoring a patient's gender-based request. When a patient requests a woman obstetrician-gynecologist, efforts should be made to accommodate the request if possible. However, medical professionals and institutions are not ethically obligated to have a woman obstetrician-gynecologist on call or to make one available at all times. If it is not feasible for a woman obstetrician-gynecologist to provide care because of staffing or other system constraints or patient safety concerns, accommodation is not required, and physicians do not have an overriding responsibility to ensure that patients receive gender-concordant care. Patients have the right to decline care and may choose to seek care elsewhere if their requested healthcare provider type is not available. Institutions and medical clinics should have policies and procedures in place for managing patient requests for women obstetrician-gynecologists, and patients should be made aware of these policies preemptively. These policies and procedures should include information about whom to contact for assistance and how to document the encounter. They should also be accessible and familiar to physicians and trainees. Care should be taken to ensure that adequate educational opportunities in obstetrics and gynecology are available for all medical trainees, regardless of gender., (Copyright © 2021 Elsevier Inc. All rights reserved.)
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- 2022
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22. Addressing bias and disparities in periviable counseling and care.
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Tucker Edmonds B, Schmidt A, and Walker VP
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- Bias, Child, Female, Humans, Infant, Newborn, Pregnancy, Counseling, Perinatal Care
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Addressing bias and disparities in counseling and care requires that we contend with dehumanizing attitudes, stereotypes, and beliefs that our society and profession holds towards people of color, broadly, and Black birthing people in particular. It also necessitates an accounting of the historically informed, racist ideologies that shape present-day implicit biases. These biases operate in a distinctly complex and damaging manner in the context of end-of-life care, which centers around questions related to human pain, suffering, and value. Therefore, this paper aims to trace biases and disparities that operate in periviable care, where end-of-life decisions are made at the very beginning of life. We start from a historical context to situate racist ideologies into present day stereotypes and tropes that dehumanize and disadvantage Black birthing people and Black neonates in perinatal care. Here, we review the literature, address historical incidents and consider their impact on our ability to deliver patient-centered periviable care., (Copyright © 2021 Elsevier Inc. All rights reserved.)
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- 2022
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23. The Successes and Challenges of Implementing Telehealth for Diverse Patient Populations Requiring Prenatal Care During COVID-19: Qualitative Study.
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Farrell R, Collart C, Craighead C, Pierce M, Chien E, Frankel R, Tucker Edmonds B, Perni U, Coleridge M, Ranzini AC, and Rose S
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Background: Although telehealth appears to have been accepted among some obstetric populations before the COVID-19 pandemic, patients' receptivity and experience with the rapid conversion of this mode of health care delivery are unknown., Objective: In this study, we examine patients' prenatal care needs, preferences, and experiences during the COVID-19 pandemic, with the aim of supporting the development of successful models to serve the needs of pregnant patients, obstetric providers, and health care systems during this time., Methods: This study involved qualitative methods to explore pregnant patients' experiences with prenatal health care delivery at the onset of the COVID-19 pandemic. We conducted in-depth interviews with pregnant patients in the first and second trimester of pregnancy who received prenatal care in Cleveland, Ohio, from May to July 2020. An interview guide was used to probe experiences with health care delivery as it rapidly evolved at the onset of the pandemic., Results: Although advantages of telehealth were noted, there were several concerns noted with the broad implementation of telehealth for prenatal care during the pandemic. This included concerns about monitoring the pregnancy at home; the need for additional reassurance for the pregnancy, given the uncertainties presented by the pandemic; and the ability to have effective patient-provider discussions via a telehealth visit. The need to tailor telehealth to prenatal health care delivery was noted., Conclusions: Although previous studies have demonstrated that telehealth is a flexible and convenient alternative for some prenatal appointments, our study suggests that there may be specific needs and concerns among the diverse patient groups using this modality during the pandemic. More research is needed to understand patients' experiences with telehealth during the pandemic and develop approaches that are responsive to the needs and preferences of patients., (©Ruth Farrell, Christina Collart, Caitlin Craighead, Madelyn Pierce, Edward Chien, Richard Frankel, Brownsyne Tucker Edmonds, Uma Perni, Marissa Coleridge, Angela C Ranzini, Susannah Rose. Originally published in JMIR Formative Research (https://formative.jmir.org), 30.03.2022.)
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- 2022
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24. 'Expert advice' for developing decision support: A qualitative study of women who have experienced periviable birth.
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Tucker Edmonds B, McKenzie F, O'Donnell B, Panoch J, Hoffman SM, Kavanaugh K, and Kuppermann M
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- Child, Counseling, Female, Humans, Infant, Parents, Qualitative Research, Decision Making, Neonatology
- Abstract
Objective: To elicit advice from women who have experienced periviable birth to optimize periviable counseling, care, and decision support., Methods: We conducted a qualitative study among 21 women who experienced periviable deliveries within three years. Using semi-structured interviews, we asked participants what advice they would offer providers and women/families based on their own experiences. Interviews were independently coded by three trained coders., Results: For providers: Participants said to be 'patient' and appreciate the novelty of each family's experience. They suggested being 'realistic' and 'factual'; favored joint OB/Neonatology counseling; and encouraged providers to attend to maternal guilt and self-blame. For women/families: They encouraged asking questions, avoiding the internet, and finding joy in whatever time they had with their child. For hospitals: They advocated for changes to facilitate more mother/baby contact., Conclusion: Providers can support parents by presenting facts, showing empathy and patience, and reassuring women that they are not to blame. This study highlights patient perspectives to improve interactions with providers, optimize women/families' experiences, and advance efforts toward developing patient-centered systems of periviable care., Practice Implications: Women who experience periviable birth desire counseling that is empathetic and 'realistic', encouragement to ask questions, and reassurance that outcomes are not their fault., (Copyright © 2021. Published by Elsevier B.V.)
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- 2021
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25. Allies Welcomed to Advance Racial Equity (AWARE) Faculty Seminar Series: Program Design and Implementation.
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Tucker Edmonds B, Neal C, Shanks A, Scott N, Robertson S, Rouse CE, Bernard C, and Sotto-Santiago S
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Introduction: In the wake of George Floyd's murder, White faculty in our department began to express the desire to gain a greater understanding of structural racism and racial inequity. To facilitate this learning, support allyship, and mitigate the emotional labor and taxation that frequently falls on faculty of color to respond to these appeals, we developed AWARE (Allies Welcomed to Advance Racial Equity), a faculty seminar series primarily designed for and led by a majority White faculty to tackle the topics of structural racism, Whiteness, and Anti-racist action., Methods: We developed a 6-session seminar series, identifying 5 White faculty as lecturers and a cadre of Black and White volunteer facilitators, to lead 60-minute sessions comprised of lecture, facilitated small group reflection, and large group sharing, that reviewed key topics/texts on structural racism, Whiteness, and Anti-racism., Results: Attendance ranged from 26 to 37 participants at each session. About 80% of faculty participated in at least 1 session of the program. The majority of participants (85%) felt "more empowered to influence their current environment to be more inclusive of others" and were "better equipped to advocate for themselves or others." Most (81%) felt "more connected to their colleagues following completion of the program." Ultimately, faculty thought highly of the program upon completion with 26/27 (96%) stating they would recommend the program to a colleague., Discussion: We offer a reproducible model to improve departmental climate by engaging in the shared labor of educating our colleagues and communities about structural racism, Whiteness, and Anti-racism to create a point of entry into reflection, dialogue, and deliberate actions for change., Competing Interests: Declaration of conflicting interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article., (© The Author(s) 2021.)
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- 2021
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26. User-testing of a decision-support tool for parents facing threatened periviable delivery: The Periviable GOALS decision aid.
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Tucker Edmonds B, Hoffman SM, Laitano T, Coleman-Phox K, Castillo E, and Kuppermann M
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- Child, Decision Making, Shared, Decision Support Techniques, Female, Humans, Infant, Infant, Newborn, Parents, Decision Making, Goals
- Abstract
Background: To report user-centered design methods and stakeholder acceptability ratings of the Periviable GOALS (Getting Optimal Alignment around Life Support) decision aid (DA)., Methods: 'Experienced' and 'expectant' mothers engaged in content and design refining sessions. Five videos (10 families) were embedded in the DA to highlight life after delivery. User-testing sessions were conducted with mothers and providers to assess acceptability. End-user testing was conducted with hospitalized women facing potential periviable delivery to assess acceptability and feasibility in the clinical setting., Results: 108 participants engaged in sessions from July 2017-January 2020. Twenty-seven refining sessions resulted in a DA providing survival estimates, neonatal outcomes descriptions, and values clarification exercises. Five white and five black women participated in the videos; six having surviving children (ages 16 months-4 years). Twelve mothers, 16 providers, and six hospitalized women evaluated acceptability. 95.1 % found the content "just right," 94.9 % rated the videos "good" or "excellent," and 97.2 % believed GOALS would support families in periviable decision-making., Conclusion: Our results highlight the importance of developing a DA that is acceptable for patient use with direct involvement of stakeholders., Practice Implications: The GOALS DA may prepare families to engage in shared decision-making to facilitate more patient-centered models of periviable care., (Copyright © 2020 Elsevier B.V. All rights reserved.)
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- 2021
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27. Diverse perspectives on death, disability, and quality of life: an exploratory study of racial differences in periviable decision-making.
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Tucker Edmonds B, Hoffman SM, Laitano T, Jeffries E, Jager S, and Kavanaugh K
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- Counseling, Decision Making, Female, Humans, Pregnancy, Race Factors, Physicians, Quality of Life
- Abstract
Objective: To qualitatively explore perceptions of pain/suffering, disability, and coping by race among pregnant women facing the threat of a periviable delivery (22 0/7-24 6/7 weeks)., Study Design: Interviews were conducted in-hospital prior to delivery. Transcripts were coded verbatim and responses were stratified by race (white vs non-white). Conventional content analysis was conducted using NVivo 12., Results: We recruited 30 women (50% white, 50% non-white). Most women expressed love and acceptance of their babies and described pain as a "means to an end." Non-white women focused almost exclusively on immediate survival and perseverance, while white women expressed concerns about quality of life beyond the NICU. The majority of non-white women were unable to recall any discussions with their doctors about their baby's comfort, pain, or suffering., Conclusions: These findings may suggest that culturally tailored approaches to counseling and decision-support may be beneficial for patients from marginalized or minoritized groups.
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- 2021
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28. The Conscientious Use of Images Illustrating Diversity in Medical Education Marketing.
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Hernandez R, Hoffmann-Longtin K, Patrick S, Tucker-Edmonds B, Rucker S, and Livingston N
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- Humans, United States, Cultural Diversity, Education, Medical, Graduate, Healthcare Disparities, Marketing
- Abstract
An institution's marketing materials are an important part of presenting its culture. In 2018, communication professionals in the Office of Faculty Affairs, Professional Development, and Diversity at the Indiana University School of Medicine recognized after reviewing the literature that using images illustrating diversity in marketing materials may have unintended negative consequences and could potentially reflect poorly on the institution. Representations of diversity that are discordant with the actual demographics of an institution can create distrust among faculty, students, and staff who discover an institution is not as diverse or supportive of diversity as their marketing materials suggest. If institutions adopt an aspirational approach to images and depict more diversity than actual demographics reflect, the authors of this Perspective recommend that they both develop marketing materials that present a widely diverse selection of images and demonstrate transparency in their communication strategies.To improve their promotional materials, the authors conducted an analysis of their institution's strategy for selecting images for these materials, identified institutional goals related to the strategic use of images, created training materials for staff, and drafted a public-facing statement about diversity in images. These measures are a significant step forward in cultivating the ethical use of images illustrating diversity. In the future, institutions should highlight their approaches to using images to portray diversity, as well as photograph and document a wide range of events that represent diverse topics and individuals. When these images are used for marketing purposes, it is also important to ensure that they are used in an appropriate context and not selected with the single goal of presenting diversity. Future research should focus on how underrepresented students and faculty interpret the use of diverse images in marketing, as well as their preferences for the use of their own images in marketing materials portraying diversity.
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- 2020
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29. Values clarification: Eliciting the values that inform and influence parents' treatment decisions for periviable birth.
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Tucker Edmonds B, Hoffman SM, Laitano T, Bhamidipalli SS, Jeffries E, Fadel W, and Kavanaugh K
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- Female, Financial Stress, Humans, Pilot Projects, Pregnancy, Pregnancy Trimester, Second, Qualitative Research, Quality of Life, Religion, Resuscitation Orders, Social Support, Attitude to Health, Decision Making, Fetal Viability, Parents, Premature Birth
- Abstract
Background: Values clarification can assist families facing the threat of periviable delivery in navigating the complexity of competing values related to death, disability, and quality of life (QOL)., Objective: We piloted values clarification exercises to inform resuscitation decision making and qualitatively assess perceptions of QOL., Methods: We conducted a mixed-method study of women with threatened periviable delivery (22 0/7-24 6/7 weeks) and their important others (IOs). Participants engaged in three values clarification activities as part of a semi-structured interview-(a) Card sorting nine conditions as an acceptable/unacceptable QOL for a child; (b) Rating/ranking seven common concerns in periviable decision making (scale 0-10, not at all to extremely important); and (c) "Agreed/disagreed" with six statements regarding end-of-life treatment, disability, and QOL. Participants were also asked to define "QOL" and describe their perceptions of a good and poor QOL for their child. Analysis was conducted using SAS version 9.4 and NVivo 12., Results: All mild disabilities were an acceptable QOL, while two-thirds of participants considered long-term mechanical ventilation unacceptable. Although pregnant women rated "Impact on Your Physical/Mental Health" (average 5.6) and IOs rated "Financial Concerns" the highest (average 6.6), both groups ranked "Financial Concerns" as the most important concern (median 5.0 and 6.0, respectively). Most participants agreed that "Any amount of life is better than no life at all" (pregnant women 62.1%; IOs 75.0%) and disagreed that resuscitation would cause "Too much suffering" for their child (pregnant women 71.4%; IOs 80.0%). Half were familiar with the phrase "QOL". Although the majority described a good QOL in terms of emotional well-being (eg "loved", "happy", "supported"), a poor QOL was described in terms of functionality (eg "dependent" and "confined"). Additionally, financial stability emerged as a distinctive theme when IOs discussed poor QOL., Conclusion: The study offers important insights on parental perspectives in periviable decision making and potential values clarification tools for decision support., (© 2019 John Wiley & Sons Ltd.)
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- 2020
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30. Intention to treat: obstetrical management at the threshold of viability.
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Tonismae TR, Tucker Edmonds B, Bhamidipalli SS, Fadel WF, Carlos C, Andrews B, Fritz KA, Leuthner SR, Lawrence C, Laventhal N, Hayslett D, Coleman T, Famuyide M, and Feltman D
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- Female, Humans, Infant, Newborn, Intention to Treat Analysis, Pregnancy, Resuscitation, Retrospective Studies, Cesarean Section, Premature Birth
- Abstract
Background: Despite medical advances in the care of extremely preterm neonates and growing acceptance of resuscitation at 23 and even 22 weeks gestation, controversy remains concerning the use of antepartum obstetric intervention s that are intended to improve outcomes in the setting of anticipated extremely preterm birth. In the absence of demonstrated benefit at <23 weeks gestation and with uncertain benefit at 23 weeks gestation, previous obstetric committee opinions have advised against their use at these gestational ages., Objective: The purpose of this study was to review the use of obstetric intervention s at the threshold of viability based on neonatal resuscitation plan and to review the odds of survival to neonatal intensive care unit discharge based on use of obstetric intervention s with adjustment for neonatal factors., Study Design: This retrospective study of 6 study centers reviewed pregnant patients who were admitted between 22+0/7 and 24+6/7 weeks gestation facing delivery from 2011-2015. Patients with known anomalies or missing data were excluded. Records were reviewed for demographics, resuscitation plan, and obstetric intervention s. Mode of delivery, delivery room care, and final infant dispositions were recorded. Multiple gestations were included as 1 pregnancy in regard to the use of obstetric intervention s and were excluded from survival analysis., Results: Four hundred seventy-eight mothers met the inclusion criteria. When resuscitation was planned, mothers were more likely to receive all conventional obstetric intervention s (antenatal steroids, magnesium sulfate for neuroprotection, tocolytics, and Group Beta Streptococcus prophylaxis), regardless of gestational age at admission, and were more likely to be delivered by cesarean section (P<.05). Analyzed as a group, when antenatal steroids, magnesium sulfate, tocolytics and Group Beta Streptococcus prophylaxis were administered, the odds of survival to neonatal intensive care unit discharge increased for newborn infants who were born at 22 (odds ratio, 11.33; 95% confidence interval, 1.405-91.4) and 23 weeks gestation (odds ratio, 15.5; 95% confidence interval, 3.747-64.11; P<.05). In singletons, the odds of survival to neonatal intensive care unit discharge was not improved by cesarean delivery vs vaginal delivery, even after adjustment for the use of additional interventions, weight, gender, and gestational age (odds ratio, 1.0; 95% confidence interval, 0.59-1.8; P=.912)., Conclusion: In this study, when postnatal resuscitation was planned at 22 and 23 weeks gestation, women were more likely to receive antenatal steroids, magnesium sulfate, and antibiotics; provision of this bundle imparted survival benefit at 23 weeks gestation but could not be demonstrated at 22 weeks gestation because of the small sample size. These findings support of neonate-oriented obstetric interventions in the setting of delivery at 23 weeks gestation when resuscitation is planned and further exploration of optimal obstetric care when resuscitation of infants who were born at 22 weeks gestation is anticipated., (Copyright © 2020 Elsevier Inc. All rights reserved.)
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- 2020
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31. Parents' Descriptions of Neonatal Palliation as a Treatment Option Prior to Periviable Delivery.
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Jager S, Kavanaugh K, Hoffman S, Laitano T, Jeffries E, and Tucker Edmonds B
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- Adult, Female, Gestational Age, Humans, Infant, Newborn, Infant, Premature, Male, Nurse's Role, Patient Comfort methods, Pregnancy, Qualitative Research, Resuscitation Orders ethics, Counseling ethics, Counseling methods, Decision Making, Palliative Care methods, Palliative Care psychology, Parents psychology, Premature Birth psychology, Premature Birth therapy, Professional-Family Relations ethics
- Abstract
During periviable deliveries, parents are confronted with overwhelming and challenging decisions. This study aimed to qualitatively explore the language that pregnant women and important others utilize when discussing palliation, or "comfort care," as a treatment option in the context of periviability. We prospectively recruited women admitted for a threatened periviable delivery (22-25 weeks) at 2 hospitals between September 2016 and January 2018. Using a semistructured interview guide, we investigated participants' perceptions of neonatal treatment options, asking items such as "How was the choice of resuscitation presented to you?" and "What were the options presented?" Conventional content analysis was used and matrices were created to facilitate using a within- and across-case approach to identify and describe patterns. Thirty women and 16 important others were recruited in total. Participants' descriptions of treatment options included resuscitating at birth or not resuscitating. Participants further described the option to not resuscitate as "comfort care," "implicit" comfort care, "doing nothing," and "withdrawal of care." This study revealed that many parents facing periviable delivery may lack an understanding of comfort care as a neonatal treatment option, highlighting the need to improve counseling efforts in order to maximize parents' informed decision-making.
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- 2020
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32. Evaluating Shared Decision Making in Trial of Labor After Cesarean Counseling Using Objective Structured Clinical Examinations.
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Tucker Edmonds B, Hoffman SM, Laitano T, McKenzie F, Panoch J, Litwiller A, and Corcia MJD
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- Cesarean Section, Repeat, Counseling, Decision Making, Shared, Female, Goals, Humans, Pregnancy, Trial of Labor, Vaginal Birth after Cesarean
- Abstract
Introduction: Although shared decision making (SDM) is optimal for trial of labor after cesarean (TOLAC) counseling, resources to assess residents' clinical competency and communication skills are lacking. We addressed this gap by developing and testing an objective structured clinical examination (OSCE) to evaluate whether learners were able to use SDM in TOLAC counseling., Methods: We created three simulation scenarios with increasing complexity to assess the skills of residents in their first, second, or third postgraduate year in using SDM in TOLAC counseling. All cases involved a standardized patient requesting a TOLAC consultation. Residents were provided with a medical history and instructed to counsel and develop a care plan. A 10-item scoring rubric was used, and each item was rated 0 (absent), 1 (partial), or 2 (complete). Three coders independently rated the encounters; discrepancies were resolved by consensus., Results: Over 3 years, 39 residents participated in 60 OSCE encounters. The majority provided complete discussions of the clinical issue (93%), chances of success (72%), and maternal and fetal risks (100% and 85%, respectively) but obtained partial assessments of understanding (78%). Discussions of benefits were typically absent, with the exception of the maternal benefits (47%). More than 40% of residents did not discuss the patient's goals, 53% lacked discussion of uncertainties related to TOLAC, and half failed to explore the patient's preference, with most deferring a decision to a future encounter., Discussion: Residents consistently discussed diagnosis, prognosis, and maternal risks yet infrequently addressed goals and preferences-two critical elements of SDM., Competing Interests: None to report., (Copyright © 2020 Tucker Edmonds et al.)
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- 2020
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33. Antenatal Periviability Counseling and Decision Making: A Retrospective Examination by the Investigating Neonatal Decisions for Extremely Early Deliveries Study Group.
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Feltman DM, Fritz KA, Datta A, Carlos C, Hayslett D, Tonismae T, Lawrence C, Batton E, Coleman T, Jain M, Andrews B, Famuyide M, Tucker Edmonds B, Laventhal N, and Leuthner S
- Subjects
- Birth Weight, Female, Humans, Infant, Newborn, Mothers, Neonatology, Patient Care Team, Pregnancy, Premature Birth, Racial Groups, Retrospective Studies, Counseling, Decision Making, Fetal Viability, Infant, Extremely Premature, Prenatal Care, Resuscitation Orders
- Abstract
Objective: To describe periviability counseling practices and decision making., Study Design: This is a retrospective review of mothers and newborns delivering between 22 and 24 completed weeks from 2011 to 2015 at six U.S. centers. Maternal and fetal/neonatal clinical and maternal sociodemographic data from medical records and geocoded sociodemographic information were collected. Separate analyses examined characteristics surrounding receiving neonatology consultation; planning neonatal resuscitation; and centers' planned resuscitation rates., Results: Neonatology consultations were documented for 40, 63, and 72% of 498 mothers delivering at 22, 23, and 24 weeks, respectively. Consult versus no-consult mothers had longer median admission-to-delivery intervals (58.7 vs. 8.7 h, p < 0.001). Consultations were seen more frequently when parental decision making was evident. In total, 76% of mothers had neonatal resuscitation planned. Resuscitation versus no-resuscitation newborns had higher mean gestational ages (24.0 vs. 22.9 weeks, p < 0.001) and birthweights (618 vs. 469 g, p < 0.001). Planned resuscitation rates differed at higher (HR) versus lower (LR) rate centers at 22 (43 vs. 7%, p < 0.001) and 23 (85 vs. 58%, p < 0.001) weeks. HR versus LR centers' populations had more socioeconomic hardship markers but fewer social work consultations (odds ratio: 0.31; confidence interval: 0.15-0.59, p < 0.001)., Conclusion: Areas requiring improvement included delivery/content of neonatology consultations, social work support, consideration of centers' patient populations, and opportunities for shared decisions., Competing Interests: None declared., (Thieme Medical Publishers 333 Seventh Avenue, New York, NY 10001, USA.)
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- 2020
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34. The impact of decision quality on mental health following periviable delivery.
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Tucker Edmonds B, Laitano T, Hoffman SM, Jeffries E, Fadel W, Bhamidipalli SS, and Kavanaugh K
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- Adolescent, Adult, Female, Fetal Viability, Humans, Infant, Newborn, Male, Middle Aged, Parents psychology, Perinatal Death, Pregnancy, Young Adult, Anxiety, Decision Making, Depression, Mental Health, Mothers psychology, Stress Disorders, Post-Traumatic etiology
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Purpose: To assess the relationship between decision quality and mental health outcomes for women and their important others (IO) 3 months following periviable birth., Method: Mental health outcomes were assessed prior to delivery and at 3 months postpartum using depression (PHQ-9), anxiety (GAD-7), and post-traumatic stress disorder (PTSD) (IES-22) scales. Decision quality was measured in terms of Decisional Conflict, Control, Regret, and Satisfaction with Decision. Descriptive analyses and linear regression modeling were conducted using SAS version 9.4., Result: We recruited 30 eligible women and 16 IOs. Participants had mild anxiety and depression, and symptoms of PTSD were among bereaved parents. Participants with lower decision control had higher levels of depression (women: p = 0.014; IOs: p = 0.059) and anxiety (women: p = 0.053; IOs: p = 0.032). Depression was also associated with higher decisional regret (women: p = 0.073; IOs: p = 0.023)., Conclusion: Our findings suggest that decision quality is associated with mental health outcomes for families who experience periviable delivery.
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- 2019
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35. Potential Unintended Consequences Of Recent Shared Decision Making Policy Initiatives.
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Blumenthal-Barby J, Opel DJ, Dickert NW, Kramer DB, Tucker Edmonds B, Ladin K, Peek ME, Peppercorn J, and Tilburt J
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- Humans, Decision Making, Shared, Delivery of Health Care, Organizational Policy, Patient Participation
- Abstract
Shared decision making (SDM)-when clinicians and patients make medical decisions together-is moving swiftly from an ethical ideal toward widespread clinical implementation affecting millions of patients through recent policy initiatives. We argue that policy initiatives to promote SDM implementation in clinical practice carry the risk of several unintended negative consequences if limitations in defining and measuring SDM are not addressed. We urge policy makers to include prespecified definitions of desired outcomes, offer guidance on the tools used to measure SDM in the multitude of contexts in which it occurs, evaluate the impact of SDM policy initiatives over time, review that impact at regular intervals, and revise SDM measurement tools as needed.
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- 2019
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36. Women's Preferences for Maternal and Neonatal Morbidity and Mortality in Childbirth.
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Tucker Edmonds B, McKenzie F, Downs SM, and Carroll AE
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- Adolescent, Adult, Female, Humans, Infant, Middle Aged, Parturition, Pregnancy, Young Adult, Decision Making, Infant Mortality, Patient Preference, Pregnancy Complications psychology, Pregnancy Outcome psychology
- Abstract
Purpose. To measure utility values that describe women's willingness to tradeoff maternal morbidity for fetal benefit among pregnant and nonpregnant women of reproductive age. Methods. We recruited English-speaking women aged 18 to 45 years in clinical and community-based settings. Eight health states were studied: 4 maternal (healthy, stroke, hysterectomy, death) and 4 neonatal (healthy, severe cerebral palsy [CP], severe mental retardation [MR], death). Utilities were assessed on a subset of 9 pairs of mom/baby delivery outcomes. Participants ranked the 9 pairs of outcomes in order of preference, then standard gamble methods were used to calculate utilities. Numeracy skills were assessed. Results. Utilities were obtained from 477 participants (recruitment rate = 94%). Twenty-one percent were pregnant, 63% were parents, and 54% were African American. Utilities did not differ significantly between pregnant and nonpregnant women or based on numeracy score. The highest (nonhealthy) values were assigned to baby healthy/mom hysterectomy (0.999), baby healthy/mom stroke (0.946), and baby CP/mom healthy (0.940). The lowest values were assigned to baby death/mom hysterectomy (0.203), baby MR/mom death (0.150), and baby death/mom stroke (0.087). Nonwhite participants assigned a significantly higher value to baby MR/mom death ( P = 0.01), baby MR/mom stroke ( P = 0.02), baby MR/mom healthy ( P < 0.01), and baby MR/mom hysterectomy ( P = 0.02) than white participants. Conclusion. When asked to value pairs of maternal/fetal outcomes that required a tradeoff of morbidity and mortality, women tended to assign the highest utility to combinations that resulted in a "healthy baby." They assigned the lowest values to combinations that resulted in a baby's death or MR. Our findings highlight the importance of 1) assessing individual preferences and goals of care for pregnancy outcomes and 2) measuring utilities among reproductive-aged women when modeling obstetric decision making.
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- 2019
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37. Cost Minimization Analysis of Same-Day Long-Acting Reversible Contraception for Adolescents.
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Wilkinson TA, Downs SM, and Tucker Edmonds B
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- Abortion, Induced statistics & numerical data, Adolescent, Ambulatory Care statistics & numerical data, Cesarean Section statistics & numerical data, Cost Savings, Cost-Benefit Analysis, Costs and Cost Analysis, Decision Support Techniques, Delivery, Obstetric economics, Delivery, Obstetric statistics & numerical data, Female, Humans, Indiana, Long-Acting Reversible Contraception methods, Pregnancy, Premature Birth epidemiology, Prosthesis Implantation statistics & numerical data, Term Birth, United States, Ambulatory Care economics, Cesarean Section economics, Long-Acting Reversible Contraception economics, Medicaid economics, Pregnancy, Unplanned, Premature Birth economics, Prosthesis Implantation economics
- Abstract
Importance: Long-acting reversible contraception (LARC) is considered first-line contraception for adolescents but often requires multiple clinic visits to obtain., Objective: To analyze Indiana Medicaid's cost savings associated with providing adolescents with same-day access to LARC., Design, Setting, and Participants: An economic evaluation of cost minimization from the payer's (Medicaid) perspective was performed from August 2017 through August 2018. The cost model examined the anticipated outcome of providing LARC at the first visit compared with requiring a second visit for placement. The costs and probabilities of clinic visits, devices, device insertions and removals, unintended pregnancy, and births, according to previously published sources, were incorporated into the model. The participants were payers (Medicaid)., Main Outcomes and Measures: The outcomes were the cost of same-day LARC placement vs LARC placement at a subsequent visit in US dollars, and rates of unintended pregnancy and abortion. One-way sensitivity analysis was done., Results: Same-day LARC placement was associated with lower overall costs ($2016 per patient over 1 year) compared with LARC placement at a subsequent visit ($4133 per patient over 1 year). Compared with the return-visit strategy, same-day LARC was associated with an unintended pregnancy rate of 14% vs 48% and an abortion rate of 4% vs 14%., Conclusions and Relevance: Providing same-day LARC could save costs for Medicaid, largely by preventing unintended pregnancy. Expected cost savings could be used to implement policies that make this strategy feasible in all clinical settings.
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- 2019
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38. Creation of a Decision Support Tool for Expectant Parents Facing Threatened Periviable Delivery: Application of a User-Centered Design Approach.
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Tucker Edmonds B, Hoffman SM, Lynch D, Jeffries E, Jenkins K, Wiehe S, Bauer N, and Kuppermann M
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- Decision Making, Decision Making, Shared, Female, Gestational Age, Humans, Male, Pregnancy, Decision Support Techniques, Delivery, Obstetric education, Parents education, Premature Birth
- Abstract
Background: Shared decision-making (SDM) is optimal in the context of periviable delivery, where the decision to pursue life-support measures or palliation is both preference sensitive and value laden. We sought to develop a decision support tool (DST) prototype to facilitate SDM by utilizing a user-centered design research approach., Methods: We convened four patient and provider advisory boards with women and their partners who had experienced a surviving or non-surviving periviable delivery, pregnant women who had not experienced a prior preterm birth, and obstetric providers. Each 2-h session involved design research activities to generate ideas and facilitate sharing of values, goals, and attitudes. Participant feedback shaped the design of three prototypes (a tablet application, family story videos, and a virtual reality experience) to be tested in a final session., Results: Ninety-five individuals (48 mothers/partners; 47 providers) from two hospitals participated. Most participants agreed that the prototypes should include factual, unbiased outcomes and probabilities. Mothers and support partners also desired comprehensive explanations of delivery and care options, while providers wanted a tool to ease communication, help elicit values, and share patient experiences. Participants ultimately favored the tablet application and suggested that it include family testimonial videos., Conclusion: Our results suggest that a DST that combines unbiased information and understandable outcomes with family testimonials would be meaningful for periviable SDM. User-centered design was found to be a useful method for creating a DST prototype that may lead to improved effectiveness, usability, uptake, and dissemination in the future, by leveraging the expertise of a wide range of stakeholders.
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- 2019
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39. Evaluating shared decision-making in periviable counseling using objective structured clinical examinations.
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Tucker Edmonds B, McKenzie F, Panoch J, Litwiller A, and DiCorcia MJ
- Subjects
- Adult, Female, Humans, Internship and Residency, Male, Middle Aged, Patient-Centered Care methods, Physician-Patient Relations, Pregnancy, Premature Birth psychology, Counseling education, Decision Making, Shared, Fetal Viability, Obstetrics education
- Abstract
Objective: To develop and test an Objective Structured Clinical Examination to evaluate the use of shared decision-making (SDM) in periviable counseling among fourth-year OB/GYN residents., Methods: Residents counseled a standardized patient presenting with preterm premature rupture of membranes at 23 weeks' gestation. Braddock's 9-item measure of SDM was adapted to a 10-item scoring rubric; rating each: 0 (absent), 1 (partial), or 2 (complete)., Results: Twenty-six residents participated. All provided "complete" discussions of the clinical issue and "complete" or 'partial' ratings for informing the woman of her prognosis (62 and 38%, respectively) and addressing her role in decision-making (42 and 50%). Discussions of her goals and preferences were often absent (69 and 62%). Only 42% discussed uncertainties., Conclusion: Critical elements of SDM related to a woman's values, goals and preferences were not explored when counseling about periviable delivery. Training in SDM is needed to advance communication skills for complex clinical decision-making.
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- 2019
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40. Examining the Impact of the Vaginal Birth After Cesarean Risk Calculator Estimation on Trial of Labor After Cesarean Counseling.
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Jeffries E, Falcone-Wharton A, Daggy J, and Tucker Edmonds B
- Abstract
Background. Because failed trial of labor after cesarean (TOLAC) is associated with greater morbidity than planned cesarean, it is important to distinguish women with a high likelihood of successful vaginal birth after cesarean (VBAC) from those likely to fail. The VBAC Calculator may help make this distinction but little is known about how often providers use it; nor whether use improves risk estimation and/or influences TOLAC counseling. Methods. In a cross-sectional survey, a convenience sample of obstetrical providers reported their likelihood (4-point Likert-type scale) to "Recommend,""Offer," or "Agree to" TOLAC for patients presented first through five clinical vignettes; then, in different order, by corresponding VBAC calculator estimates. Results. Of the 85 (of 101, 84% response rate) participants, 88% routinely performed TOLAC, but only 21% used the Calculator. The majority (67.1% to 89.3%) overestimated the likelihood of success for all but one vignette (which had the highest estimate of success). Most providers (42% to 89%) recommended TOLAC for all five vignettes. Given calculated estimates, the majority of providers (67% to 95%) recommended TOLAC for success estimates exceeding 40%. For estimates between 20% and 40%, most providers offered (58%) or agreed (68%) to TOLAC; and even below 20%, over half still agreed to TOLAC. The vignette with the lowest estimate of success (18.7%) had the weakest intraprovider agreement (kappa = 0.116; confidence interval [CI] = 0.045-0.187), whereas the strongest agreement was found in the two vignettes with highest success estimates: 77.9% (kappa = 0.549; CI = 0.382-0.716) and 96.6% (kappa = 0.527; CI = 0.284-0.770). Limitations. Survey responses may not reflect actual practice patterns. Conclusion. Providers are overly optimistic in their clinical estimation of VBAC success. Wider use of decision support could aid in risk stratification and TOLAC counseling to reduce patient morbidity., Competing Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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- 2019
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41. Impact of socioeconomic markers on parents' retention of pediatric oncology home care education: A pilot study.
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Hentea C, Downs SM, Tucker Edmonds B, Vik T, Wiehe SE, and Cheng ER
- Subjects
- Adolescent, Child, Child, Preschool, Cohort Studies, Female, Follow-Up Studies, Humans, Infant, Male, Pilot Projects, Prognosis, Surveys and Questionnaires, Home Care Services standards, Parents education, Socioeconomic Factors
- Abstract
Little is known about the extent to which parents retain the education on how to manage home medical emergencies. We sought to describe retention of pediatric oncology home care education (POHCE) in a cohort of 24 parents of newly diagnosed children with cancer and investigate sociodemographic disparities in this retention. We measured retention using a vignette-based survey instrument. The mean score was 4 (range 0-6, SD = 1.6) and parents with high school only education and those with limited cancer health literacy scored lowest (2.5 and 2.8, respectively). Future POHCE interventions can focus on parents' literacy and education levels as predictors to tailor alternative education strategies., (© 2019 Wiley Periodicals, Inc.)
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- 2019
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42. Patient knowledge and attitudes toward cervical cancer screening after the 2012 screening guidelines.
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Clay JM, Daggy JK, Fluellen S, and Tucker Edmonds B
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- Adult, Female, Humans, Mass Screening statistics & numerical data, Middle Aged, Surveys and Questionnaires, Uterine Cervical Neoplasms prevention & control, Uterine Cervical Neoplasms psychology, Women's Health, Young Adult, Early Detection of Cancer, Health Knowledge, Attitudes, Practice, Practice Guidelines as Topic, Uterine Cervical Neoplasms diagnosis
- Abstract
Objective: To assess women's attitudes and preferences related to recent changes in cervical cancer screening guidelines., Methods: We distributed 380 surveys in three University based and Community clinics. Study participants anonymously completed surveys, which included questions related to demographics, cervical cancer, screening practices, risk perception and attitudes towards changing practices., Results: 315 women agreed to participate (83%). 60% (185/310) of participants had some college education or higher and 12% (36/305) worked in the medical field. On average, participants answered 4.1 (SD = 1.3) of the 8 knowledge questions correctly. Knowledge scores significantly increased with education level (Kruskal-Wallis test p-value < 0.001). The majority (72%, n = 228) reported that they should be screened annually, and that screening should be initiated with the onset of sexual activity (63%, n = 197). Participants that were more knowledgeable of current screening practices were more comfortable extending screening intervals (Kruskal-Wallis test p < 0.001)., Conclusion: Even among a relatively highly educated population of women, participants had limited knowledge of cervical cancer and current screening guidelines. Many participants reported discomfort with less frequent screening intervals., Practice Implications: This study supports the need for improvement in cervical cancer prevention education especially with regards to the new screening guidelines., (Copyright © 2018 Elsevier B.V. All rights reserved.)
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- 2019
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43. Paternal Preferences, Perspectives, and Involvement in Perinatal Decision Making.
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Cheng ER, McGough H, and Tucker Edmonds B
- Subjects
- Female, Humans, Male, Pregnancy, Decision Making, Fathers psychology, Prenatal Care, Role
- Abstract
Importance: Despite increasing attention to the importance of father involvement during pregnancy, the literature on fathers' roles in perinatal decision making is scant., Objective: The aim of this study was to conduct a narrative review of the literature exploring fathers' preferences, perspectives, and involvement in perinatal decision making., Evidence Acquisition: We searched PubMed, Ovid, EMBASE, Cochrane Library, and CINAHL databases using the terms father , spouse(s) , husband , and paternal separately with the combined terms of attitude, preference, involvement , influence , informed consent , decision making , pregnancy , labor induction , genetic testing , prenatal diagnosis , amniocentesis , fetal surgery , genetic abnormalities , congenital anomalies , birth defects , perinatal , and antenatal . The search was limited to English-language studies that were published anytime and conducted between July and September 2018., Results: The initial search identified 616 articles; 13 articles met criteria for inclusion. Fathers view themselves as serving distinct roles in perinatal decision making and have specific informational needs that would support their involvement in decision making. Although fathers want to support their partners and learn about fetal health, they often feel excluded from perinatal screening decisions. Mothers and fathers also have different needs, concerns, and preferences regarding key perinatal decisions that, if unresolved, can impact the couples' relationship and perinatal outcomes., Conclusions: Findings provide import insights into the distinct experiences, roles, needs, and perspectives of fathers facing perinatal decision making., Relevance: Advancing research and policy on fathers' involvement in perinatal decision making could lead to a paradigm shift in how maternity care is structured, how obstetric services are delivered, and how perinatal interventions are designed and implemented.
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- 2019
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44. A Prospective Study on the Effects of Medicaid Regulation and Other Barriers to Obtaining Postpartum Sterilization.
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Hahn TA, McKenzie F, Hoffman SM, Daggy J, and Tucker Edmonds B
- Subjects
- Adult, Consent Forms, Female, Humans, Pregnancy, Prospective Studies, Records, United States, Young Adult, Health Services Accessibility legislation & jurisprudence, Health Services Accessibility statistics & numerical data, Medicaid, Postpartum Period, Sterilization, Reproductive legislation & jurisprudence, Sterilization, Reproductive statistics & numerical data
- Abstract
Introduction: This study aimed to assess unfulfilled sterilization requests, specifically regarding issues with the Medicaid consent for sterilization, and determine the proportion of women who subsequently received interval sterilization by 3 months postpartum., Methods: The authors conducted a prospective observational cohort study of women who gave birth over an 8-month period and requested immediate postpartum sterilization. Records of women with unfulfilled requests were reviewed up to 3 months postpartum to determine rates of postpartum follow-up and interval sterilization. Primary analysis examined unfulfilled sterilization requests associated with the Medicaid consent form and, secondarily, all other reasons for unfulfilled requests, as well as alternative contraceptive methods chosen., Results: Of the 334 women who requested immediate postpartum sterilization, 173 (52%) received the requested sterilization and 161 (48%) did not. Among those whose request was unfulfilled, 91 (56.5%) still wanted the procedure, and of those women, more than two-thirds were unable to receive it because of Medicaid consent issues. Within this group, only 6 received interval sterilization by 3 months postpartum; more than one-third received a form of long-acting reversible contraception, and 24.6% did not receive postpartum care., Discussion: A sizable proportion of women requesting postpartum sterilization have unfulfilled requests because of an issue with the Medicaid consent and also have a low likelihood of receiving interval sterilization by 3 months postpartum. The Medicaid consent may create barriers for women requesting postpartum sterilization, the vast majority of whom face subsequent barriers obtaining interval sterilization, thereby increasing the risk for unintended pregnancy in an at-risk population. This has important implications for reproductive justice efforts to protect vulnerable populations while minimizing barriers to desired care., (© 2018 by the American College of Nurse-Midwives.)
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- 2019
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45. Prospective parents' perspectives on antenatal decision making for the anticipated birth of a periviable infant.
- Author
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Tucker Edmonds B, Savage TA, Kimura RE, Kilpatrick SJ, Kuppermann M, Grobman W, and Kavanaugh K
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- Female, Humans, Life Support Care psychology, Male, Pregnancy, Qualitative Research, Decision Making, Fetal Viability, Parents psychology
- Abstract
Objective: To examine prospective parents' perceptions of management options and outcomes in the context of threatened periviable delivery, and the values they apply in making antenatal decisions during this period., Study Design: Qualitative analysis of 46 antenatal interviews conducted at three tertiary-care hospitals with 54 prospective parents (40 pregnant women, 14 partners) who had received counseling for threatened periviable delivery (40 cases)., Results: Participants most often recalled being involved in resuscitation, cerclage, and delivery mode decisions. Over half (63.0%) desired a shared decision-making role. Most (85.2%) recalled hearing about morbidity and mortality, with many reiterating terms like "brain damage", "disability", and "handicap". The potential for disability influenced decision making to variable degrees. In describing what mattered most, participant spoke of giving their child a "fighting chance"; others voiced concerns about "best interest", a "healthy baby", "pain and suffering", and religious faith., Conclusions: Our findings underscore the importance of presenting clear information on disability and eliciting the factors that parents deem most important in making decisions about periviable birth.
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- 2019
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46. Influence of Maternal Factors in Neonatologists' Counseling for Periviable Pregnancies.
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Kunkel MD, Downs SM, and Tucker Edmonds B
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- Adult, Attitude of Health Personnel, Decision Making, Female, Health Care Surveys, Humans, Infant, Extremely Premature, Infant, Newborn, Male, Maternal Age, Pregnancy, Reproductive History, Socioeconomic Factors, Counseling methods, Fetal Viability, Neonatologists statistics & numerical data, Patient Comfort methods, Pregnant Women psychology, Prenatal Care methods, Prenatal Care psychology, Resuscitation methods, Resuscitation psychology
- Abstract
Background Neonatologists have varying counseling practices for women with threatened periviable pregnancies. Previous research has suggested this variability may be influenced by social and economic factors of the mother. Objective The objective of this study was to determine the relative influence of maternal factors in counseling recommendations for periviable pregnancies. Methods A national cohort of neonatologists was sent a web-based survey. Five maternal characteristics were varied across eight vignettes: age, education, race, parity, and pregnancy "intendedness." Following each vignette, participants reported their likelihood to recommend full resuscitation versus comfort care. Conjoint analysis was used to assess the relative influence of each factor on respondents' recommendations. Results Responses from 328 neonatologists were included. Of the five tested maternal characteristics, parity and intendedness had the highest importance scores (40.2 and 35.0), followed by race, education, and age. If parents requested resuscitation, respondents were highly likely to comply with preferences, with little variation across vignettes. Conclusion Fetal-specific factors such as gestational age and estimated weight are known to influence counseling and decision making for extremely preterm infants. Our results suggest that maternal factors may also influence counseling practices, although physicians are likely to comply with parental preferences regardless of maternal factors. Future research should identify how maternal characteristics impact actual counseling practices., Competing Interests: Conflict of Interest: None., (Thieme Medical Publishers 333 Seventh Avenue, New York, NY 10001, USA.)
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- 2017
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47. Women's opinions of legal requirements for drug testing in prenatal care.
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Tucker Edmonds B, Mckenzie F, Austgen MB, Carroll AE, and Meslin EM
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- Female, Humans, Pregnancy, Prenatal Care legislation & jurisprudence, Public Opinion, Substance Abuse Detection legislation & jurisprudence, Surveys and Questionnaires, Prenatal Care psychology, Substance Abuse Detection psychology
- Abstract
Purpose: To explore women's attitudes and perceptions regarding legal requirements for prenatal drug testing., Methods: Web-based survey of 500 US women (age 18-45) recruited from a market research survey panel. A 24-item questionnaire assessed their opinion of laws requiring doctors to routinely verbal screen and urine drug test patients during pregnancy; recommendations for consequences for positive drug tests during pregnancy; and opinion of laws requiring routine drug testing of newborns. Additional questions asked participants about the influence of such laws on their own care-seeking behaviors. Data were analyzed for associations between participant characteristics and survey responses using Pearson's chi-squared test., Results: The majority of respondents (86%) stated they would support a law requiring verbal screening of all pregnant patients and 73% would support a law requiring universal urine drug testing in pregnancy. Fewer respondents were willing to support laws that required verbal screening or urine drug testing (68% and 61%, respectively) targeting only Medicaid recipients. Twenty-one percent of respondents indicated they would be offended if their doctors asked them about drug use and 14% indicated that mandatory drug testing would discourage prenatal care attendance., Conclusion: Women would be more supportive of policies requiring universal rather than targeted screening and testing for prenatal drug use. However, a noteworthy proportion of women would be discouraged from attending prenatal care - a reminder that drug testing policies may have detrimental effects on maternal child health.
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- 2017
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48. Implementing Immediate Postpartum Long-Acting Reversible Contraception Programs.
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McHugh KW, Tucker Edmonds B, Ferries-Rowe E, and Haas DM
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- Contraception, Contraception Behavior, Contraceptive Agents, Female, Female, Humans, Intrauterine Devices, Postpartum Period, Pregnancy, Long-Acting Reversible Contraception, Postnatal Care
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- 2017
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49. Obstetrical Providers' Management of Chronic Pain in Pregnancy: A Vignette Study.
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Tucker Edmonds B, McKenzie F, Austgen MB, Ashburn-Nardo L, Matthias MS, and Hirsh AT
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- Adult, Aged, Analgesics, Opioid therapeutic use, Drug Prescriptions statistics & numerical data, Female, Humans, Middle Aged, Obstetrics statistics & numerical data, Pregnancy, Pregnancy Complications ethnology, Racial Groups ethnology, Racial Groups statistics & numerical data, Racism ethnology, Racism statistics & numerical data, United States ethnology, White People ethnology, White People statistics & numerical data, Attitude of Health Personnel ethnology, Chronic Pain drug therapy, Chronic Pain epidemiology, Pain Management statistics & numerical data, Practice Patterns, Physicians' statistics & numerical data, Pregnancy Complications drug therapy, Pregnancy Complications epidemiology
- Abstract
Objective: Describe obstetrical providers' management of a hypothetical case on chronic pain in pregnancy and determine whether practices differ based on patient race., Design and Setting: This was a self-administered survey at a clinical conference., Subjects: Seventy-six obstetrician-gynecologists and one nurse practitioner were surveyed., Methods: A case-vignette described a pregnant patient presenting with worsening chronic lower back pain, requesting an opioid refill and increased dosage. We varied patient race (black/white) across two randomly assigned identical vignettes. Providers indicated their likelihood of prescribing opioids, drug testing, and referring on a 0 (definitely would not) to 10 (definitely would) scale; rated their suspicions/concerns about the patient on a 0-10 VAS scale; and ranked those concerns in order of importance. We calculated correlation coefficients, stratifying analyses by patient race., Results: Providers were not inclined to refill the opioid prescription (median = 3.0) or increase the dose (median = 1.0). They were more likely to conduct urine drug tests on white than black patients ( P = 0.008) and more likely to suspect that white patients would divert the medication ( P =0.021). For white patients, providers' highest-ranked concern was the patient's risk of abuse/addiction, whereas, for black patients, it was harm to the fetus. Suspicion about symptom exaggeration was more closely related to decisions about refilling the opioid prescriptions and increasing the dose for black patients (r = -0.357, -0.439, respectively), whereas these decisions were more closely correlated with concerns about overdose for white patients (r = -0.406, -0.494, respectively)., Conclusions: Provider suspicion and concerns may differ by patient race, which may relate to differences in pain treatment and testing. Further study is warranted to better understand how chronic pain is managed in pregnancy., (© 2016 American Academy of Pain Medicine. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com)
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- 2017
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50. Patient knowledge of hysterectomy and pap screening after minimally invasive hysterectomy.
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Mattingly M, Juran R, Su I, Ebinger J, Daggy J, and Tucker Edmonds B
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- Adolescent, Adult, Aged, Aged, 80 and over, Early Detection of Cancer, Female, Guideline Adherence, Humans, Middle Aged, Practice Guidelines as Topic, Socioeconomic Factors, Surveys and Questionnaires, Uterine Cervical Neoplasms virology, Health Knowledge, Attitudes, Practice, Hysterectomy, Papanicolaou Test, Uterine Cervical Neoplasms diagnosis, Uterine Cervical Neoplasms prevention & control, Vaginal Smears statistics & numerical data
- Abstract
Objective: To determine whether women know their own cervical cancer screening recommendations after hysterectomy, and to evaluate patients' understanding of hysterectomy terminology and cervical cancer screening., Methods: A 19-item questionnaire was developed and administered to 413 women who had undergone minimally invasive hysterectomy with benign pathology between January 2008 and January 2012., Results: A total of 190 women (46%) participated in the survey. The majority of respondents were Caucasian (61%) and had a college education (66%). Fifty-nine percent of respondents knew that a Pap test screens for cervical cancer, and 40% knew that HPV is related to cervical cancer. Eight-four percent understood that Pap screening is recommended if a woman still has a cervix after hysterectomy. Only 67% correctly identified if their cervix had been removed during their own surgery and if they needed future cervical cancer screening per current guidelines. Caucasian race and higher income were significant predictors of hysterectomy and screening knowledge., Conclusion: Knowledge regarding Pap tests, HPV, and implications of a supracervical hysterectomy is lacking, even among a post-hysterectomy population., Practical Implications: Patient educational information is needed to improve perioperative counseling regarding the type of hysterectomy performed and indications for future cervical cancer screening., (Copyright © 2016 Elsevier Ireland Ltd. All rights reserved.)
- Published
- 2017
- Full Text
- View/download PDF
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