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Existen evidencias que relacionan la promoción de la autodeterminación en personas con discapacidad con la mejora de su calidad de vida. Si bien se reconoce la importancia del constructo de autodeterminación para todas las personas con discapacidad, independientemente de sus necesidades de apoyo, no disponemos de evidencias que describan intervenciones con personas con necesidades generalizadas de apoyo. El objetivo de este estudio fue implementar una adaptación del Modelo de Enseñanza y Aprendizaje de la Autodeterminación en adultos con discapacidad intelectual y necesidades de apoyo generalizadas. En concreto, 44 mujeres con una media de edad de 51.6 años y un grado medio de discapacidad superior al 75 % formaron parte del estudio (12 en el grupo experimental y 32 en el grupo control). Los resultados señalan una mejora en su autodeterminación y calidad de vida y constituyen una de las pocas evidencias empíricas de la promoción de la autodeterminación y la aplicabilidad del modelo a personas con necesidades generalizadas.

Peu diabètic; Psicometria; Qualitat de vida Diabetic foot; Psychometrics; Quality of life Pie diabético; Psicometría; Calidad de vida Objectives: This psychometric systematic review aimed to identify the most suitable patient-reported outcome measures (PROMs) of quality of life (QoL) in people affected by diabetic foot. Methods: We performed a literature search in MEDLINE (PubMed), CINAHL (EBSCOhost), and PsycINFO (EBSCOhost) databases from inception to February 1, 2022. We also searched gray literature databases. Eligible studies were full-text reports developing a QoL condition-specific PROM or assessing one or more of its measurement properties in people affected by diabetic foot. We assessed the methodological quality of included studies independently using the "Consensus-Based Standards for the Selection of Health Measurement Instruments Risk of Bias" checklist. The measurement properties were evaluated using specific criteria. We graded the quality of the evidence using a "Grading of Recommendations Assessment, Development and Evaluation" approach modified by Consensus-Based Standards for the Selection of Health Measurement Instruments. Results: Forty-three reports (46 studies) providing information on the measurement properties of 10 different PROMs were included. We did not identify any instruments that could be recommended for use. We identified 2 PROMs that were not recommended for use and 8 that were potentially recommended but would require further investigation. Of these 8 PROMs, 4 had better evidence for content validity. Conclusions: Available PROMs to measure QoL in people affected by diabetic foot have limited evidence for their measurement properties. There is no fully suitable PROM. Pending further evidence, 4 PROMs could potentially be recommended for use.

This brief review is devoted mainly to publications in the last 5 years dealing with health-related quality of life (QoL) after a diagnosis of endogenous hypercortisolism, due to pituitary-dependent Cushing’s disease (CD) or any other cause of Cushing syndrome (CS). Despite improvement after treatment, persistent physical morbidity, neurocognitive problems like worse executive capacity and memory as well as stress intolerance, depressive symptoms and more anxiety, lead to long-term impairment of QoL.

Background Older People Living with HIV (OPWH) combine both aging and HIV-infection features, resulting in ageism, stigma, social isolation, and low quality of life. This context brings up new challenges for healthcare professionals, who now must aid patients with a significant comorbidity burden and polypharmacy treatments. OPWH opinion on their health management is hardly ever considered as a variable to study, though it would help to understand their needs on dissimilar settings. Methods We performed a cross-sectional, comparative study including patients living with HIV aged ≥50 years old from multiple centers worldwide and gave them a survey addressing their perception on overall health issues, psychological problems, social activities, geriatric conditions, and opinions on healthcare. Data was analyzed through Chisquared tests sorting by geographical regions, age groups, or both. Results We organized 680 participants data by location (Center and South America [CSA], Western Europe [WE], Africa, Eastern Europe and Israel [EEI]) and by age groups (50- 55, 56-65, 66-75, >75). In EEI, HIV serostatus socializing and reaching undetectable viral load were the main problems. CSA participants are the least satisfied regarding their healthcare, and a great part of them are not retired. Africans show the best health perception, have financial problems, and fancy their HIV doctors. WE is the most developed region studied and their participants report the best scores. Moreover, older age groups tend to live alone, have a lower perception of psychological problems, and reduced social life. Conclusions Patients’ opinions outline region- and age-specific unmet needs. In EEI, socializing HIV and reaching undetectable viral load were the main concerns. CSA low satisfaction outcomes might reflect high expectations or profound inequities in the region. African participants results mirror a system where general health is hard to achieve, but HIV clinics are much more appealing to them. WE is the most satisfied region about their healthcare. In this context, age-specific information, education and counseling programs (i.e. Patient Reported Outcomes, Patient Centered Care, multidisciplinary teams) are needed to promote physical and mental health among older adults living with HIV/AIDS. This is crucial for improving health-related quality of life and patient’s satisfaction.

(1) Background: Factors influencing the quality of life (QoL) of patients with chronic rhinosinusitis with nasal polyposis (CRSwNP) are poorly understood. We set out to determine the predictive factors on patients’ QoL using the Sino-Nasal Outcome Test-22 (SNOT-22); (2) Methods: An ambispective analysis of data from patients diagnosed with CRSwNP in our institution. All the patients underwent a nasal polyp biopsy and completed the SNOT-22 questionnaire. Demographic and molecular data as well as the SNOT-22 scores were collected. Patients were classified in six subgroups considering the presence of asthma, non-steroidal drugs (NSAID) intolerance and corticosteroid resistance; (3) Results: The mean SNOT-22 score was 39. Considering the clinical parameters, the SNOT-22 value was significantly associated with NSAID intolerance (p = 0.04) and the endoscopic polyp score (p = 0.04). A high SNOT-22 value was also correlated with high tissue eosinophilia (p = 0.01) and high IL-8 expression; (4) Conclusions: Eosinophilia, IL-8 expression and NSAID intolerance can be used as predictors of worse QoL in patients with CRSwNP.

Health education; Multiple sclerosis; Quality of life Educación para la salud; Esclerosis múltiple; Calidad de vida Educació sanitaria; Esclerosi múltiple; Qualitat de vida Introduction: Multiple sclerosis (MS) causes a progressive disability, which substantially impacts the quality of life (QoL). Health interventions that meet the needs and demands of people with MS are essential to minimize QoL impairment. Expert patient programs (EPPs) facilitate health-related empowerment through peer learning. Based on a previous focus group study, we designed an EPP for MS coordinated by nursing professionals for implementation in the different MS reference units of Catalonia (Southwestern Europe). This study aims to evaluate the effects on quality of life, disease-related knowledge, and self-management related to the health process of the participants of the Expert Patient Program Catalonia™ for people with multiple sclerosis (EPPC-MS). Methods: Pre-post intervention multicenter clinical study involving 12 groups of 12 participants: six groups including relapsing and six groups including progressive MS patients, with 144 participants from 7 MS reference units from all over Catalonia, organized in six teams. The intervention will consist of nine telematic learning peer-led sessions (one weekly session). The expert patient (EP) leading the sessions will be an individual with MS with disease-related knowledge, who will be further trained by nurses to lead the sessions. Study variables will be measured before and immediately after the intervention and 6 and 12 months after the end of the sessions and will include: QoL, emotional impact, activation of the person, MS-related knowledge, fatigue, habits and lifestyles, health services use, and program-related experience. Baseline characteristics considered will be sociodemographic data, date of MS diagnosis and type, family history, and treatment characteristics. Variables related to disease follow-up will be new relapses and characteristics and changes in the ongoing treatment. The number of sessions attended will also be collected. Study variables will be analyzed using a pre-post comparison. Discussion: Peer-led learning programs led by EP help empower people with chronic conditions and offer them tools to improve their autonomy and QoL. This study’s intervention will be performed remotely, offering advantages both for people with chronic conditions and the healthcare system regarding the facilitation of family and work conciliation, saving time, simplifying attendance to meetings, lowering costs, and using fewer material resources. This study was promoted by the MS unit at Vall d’Hebron Hospital Campus and had no external sponsor. The PhD candidate/first author was supported through the Strategic Plan for Research and Innovation in Health 2016–2020 (PERIS) (ref. BDNS 542793) funded by the Health Department of Catalonia. This study had been partially funded by the Official College of Nurses of Barcelona (www.coib.cat) as part of the Nurse Research Projects Grants (PRN-475/2021). None of the funders were involved in the design of the study, manuscript writing or data collection, and will not be involved in data analysis or interpretation and manuscript writing in the future. The only funders’ requirement is that any publications associate with this study must be open access and deposited in an institutional repository.

Les anomalies dentomaxil·lars representen la tercera patologia oral més prevalent després de la càries i la malaltia periodontal. El tractament d'ortodòncia és efectiu en la majoria dels pacients, però les deformitats dentofacials greus requereixen un tractament combinat ortodòntic-quirúrgic. La qualitat de vida relacionada amb la salut oral és un resultat de salut que s'ha incorporat en les darreres dues dècades en aquesta àrea. L'Ortognàtic Quality of Life Questionnaire (OQLQ), l'únic instrument dissenyat específicament per avaluar la qualitat de vida relacionada amb la salut oral en pacients amb deformitats dentofacials, ha estat àmpliament utilitzat a nivell internacional. L'objectiu general d'aquesta tesi doctoral va ser avaluar la qualitat de vida relacionada amb la salut oral en pacients Xilens amb deformitats dentofacials, valorar el canvi entre abans i després de la cirurgia ortognàtica i explorar les diferències segons el tipus de deformitat. En primer lloc, es va desenvolupar la versió en espanyol de l'OQLQ, que ha demostrat una bona fiabilitat, validesa i sensibilitat al canvi, similars a les de l'instrument original, resultats que donen suport a l'equivalència entre les dues versions. En segon lloc, l'estudi clínic prospectiu va mostrar una diferència significativa entre pacients amb deformitats dentofacials Classe II i Classe III, en la millora de la qualitat de vida relacionada amb la salut oral, mesurada amb l'OQLQ, des d'abans fins als 3 i 6 mesos després de la cirurgia ortognàtica. Finalment, a la síntesi de l'evidència disponible, les anàlisis de sensibilitat que van excloure aquells estudis amb qualitat metodològica feble també suggereixen diferències segons aquests tipus de deformitats dentofacials en els dominis de limitació funcional, dolor físic i discapacitat física de l'OHIP-14. Incorporar l'avaluació de la qualitat de vida relacionada amb la salut oral a la recerca i a la pràctica clínica rutinària pot aportar als pacients amb deformitats dentofacials i als professionals de la salut una valuosa informació per a la presa de decisions clíniques compartides tenint en compte la perspectiva dels pacients. Las anomalías dentomaxilares representan la tercera patología oral más prevalente después de la caries y la enfermedad periodontal. El tratamiento de ortodoncia es efectivo en la mayoría de los pacientes, pero las deformidades dentofaciales graves requieren de un tratamiento combinado ortodóntico-quirúrgico. La calidad de vida relacionada con la salud oral es un resultado de salud que se ha incorporado en las últimas dos décadas en esta área. El Orthognathic Quality of Life Questionnaire (OQLQ), el único instrumento diseñado específicamente para evaluar la calidad de vida relacionada con la salud oral en pacientes con deformidades dentofaciales, ha sido ampliamente utilizado a nivel internacional. El objetivo general de esta tesis doctoral fue evaluar la calidad de vida relacionada con la salud oral en pacientes chilenos con deformidades dentofaciales, valorar el cambio entre antes y después de la cirugía ortognática, y explorar las diferencias según el tipo de deformidad. En primer lugar, se desarrolló la versión en español del OQLQ, que ha demostrado una buena fiabilidad, validez y sensibilidad al cambio, similares a las del instrumento original, resultados que apoyan la equivalencia entre ambas versiones. En segundo lugar, el estudio clínico prospectivo mostró una diferencia significativa entre pacientes con deformidades dentofaciales Clase II y Clase III, en la mejoría de la calidad de vida relacionada con la salud oral, medida con el OQLQ, desde antes hasta los 3 y 6 meses después de la cirugía ortognática. Por último, en la síntesis de la evidencia disponible, los análisis de sensibilidad que excluyeron aquellos estudios con calidad metodológica débil también sugieren diferencias según estos tipos de deformidades dentofaciales en los dominios de limitación funcional, dolor físico y discapacidad física del OHIP-14. Incorporar la evaluación de la calidad de vida relacionada con la salud oral en la investigación y en la práctica clínica rutinaria puede aportar a los pacientes con deformidades dentofaciales y a los profesionales de la salud una valiosa información para la toma de decisiones clínicas compartidas teniendo en cuenta la perspectiva de los pacientes. Dentomaxillary anomalies represent the third most prevalent oral pathology after caries and periodontal disease. Orthodontic treatment is effective in most patients, but severe dentofacial deformities require a combined orthodontic-surgical treatment. Oral health-related quality of life is a health outcome that has been incorporated in this area in the last two decades. The Orthognathic Quality of Life Questionnaire (OQLQ), the only instrument specifically designed to assess oral health-related quality of life in patients with dentofacial deformities, has been widely used internationally. The general objective of this doctoral thesis was to evaluate the oral health-related quality of life in Chilean patients with dentofacial deformities, to assess the change between before and after orthognathic surgery, and to explore the differences according to the type of deformity. First, the Spanish version of the OQLQ was developed, which has shown good reliability, validity, and sensitivity to change, similar to those of the original instrument, results that support the equivalence between both versions. Second, the prospective clinical study showed a significant difference between patients with Class II and Class III dentofacial deformities in their improvement in oral health-related quality of life, measured with the OQLQ, from before to 3 and 6 months after orthognathic surgery. Finally, in the synthesis of the available evidence, the sensitivity analyzes that excluded the studies with weak methodological quality also suggest differences according to these types of dentofacial deformities in the domains of functional limitation, physical pain, and physical disability of the OHIP-14. Incorporating the assessment of oral health-related quality of life in the research and routine clinical practice can provide patients with dentofacial deformities and health professionals with valuable information for shared clinical decision-making, taking into account the patients' perspective.

Caregiver; Parkinson’s disease; Quality of life Cuidador; Malaltia de Parkinson; Qualitat de vida. Cuidador; Enfermedad de Parkinson; Calidad de vida The aim of this study was to analyze how the change in the caregiver’s status influences PD patients. PD patients and their caregivers who were recruited from January/2016 to November/2017 from 35 centersin Spain from the COPPADIS cohort were included in the study (V0). They were evaluated again at 2-year follow-up(V2). Caregivers completed the Zarit Caregiver Burden Inventory (ZCBI), Caregiver Strain Index (CSI), Beck Depression Inventory-II (BDI-II), and EUROHIS-QOL 8-item index (EUROHIS-QOL8) at V0 and V2. Multivariate models were used to analyze the impact of the change from V0 to V2 (_) on the caregiver’s status over the change in the patient’s status. BDI-II and _EUROHIS-QOL8 in the caregiver predicted _BDI-II (_ = 0.32; p < 0.0001; R2 = 0.71) and _EUROHIS-QOL8 (_ = 0.39; p < 0.0001; R2 = 0.68) in the patient, respectively. Variables related to the caregiver were not associated with changes in the patient´s health-related QoL (_PDQ-39 [39-item Parkinson’s disease Questionnaire]) or autonomy for activities of daily-living (_ADLS [Schwab & England Activities of Daily Living Scale]). The change in the caregiver’s mood and global QoL was associated with the change in the patient’s mood and global QoL, respectively, independently of other variables of the disease influencing both patient´s aspects. Based on this finding, it could be of great importance to detect depression in the principal caregiver of a patient and act on it as earlier as possible. COPPADIS and the present study were developed with the help of Fundación Española de Ayuda a la Investigación en Enfermedades Neurodegenerativas y/o de Origen Genético (https://fundaciondegen.org/) and Alpha Bioresearch (www.alphabioresearch.com). Also, we received grants from the Spanish Ministry of Economy and Competitiveness [PI16/01575] co-founded by ISCIII (Concesión de subvenciones de Proyectos de Investigación en Salud de la convocatoria 2020 de la Acción Estratégica en Salud 2017-2020 por el Proyecto “PROGRESIÓN NO MOTORA E IMPACTO EN LA CALIDAD DE VIDA EN LA ENFERMEDAD DE PARKINSON”) to develop a part of the COPPADIS project.

A longitudinal alteration in health-related quality of life (HRQoL) over a two-year period and its association with early-stage chronic kidney disease (CKD) progression was investigated among 1748 older adults (>75 years). HRQoL was measured by the Euro-Quality of Life Visual Analog Scale (EQ-VAS) at baseline and at one and two years after recruitment. A full comprehensive geriatric assessment was performed, including sociodemographic and clinical characteristics, the Geriatric Depression Scale-Short Form (GDS-SF), Short Physical Performance Ba􀁀ery (SPPB), and estimated glomerular filtration rate (eGFR). The association between EQ-VAS decline and covariates was investigated by multivariable analyses. A total of 41% of the participants showed EQ-VAS decline, and 16.3% showed kidney function decline over the two-year follow-up period. Participants with EQ-VAS decline showed an increase in GDS-SF scores and a greater decline in SPPB scores. The logistic regression analyses showed no contribution of a decrease in kidney function on EQVAS decline in the early stages of CKD. However, older adults with a greater GDS-SF score were more likely to present EQ-VAS decline over time, whereas an increase in the SPPB scores was associated with less EQ-VAS decline. This finding should be considered in clinical practice and when HRQoL is used to evaluate health interventions among older adults.

Background This study investigated the association between xerostomia and health risk behaviours, general and oral health and quality of life. Methods A cross-sectional study involving 800 adults over 65 years of age residing in Spain using a computer-assisted telephone questionnaire. The severity of xerostomia was assessed through the Xerostomia Inventory (XI). Both univariate and adjusted multinomial logistic regression were used to determine the risk (OR) of xerostomia. Results The sample comprised of 492 females (61.5%) and 308 males, with a mean age of 73.7 ± 5.8 years. Some, 30.7% had xerostomia: 25.6% mild, 4.8% moderate and 0.3% severe, the majority being female (34.8% vs 24%; p = 0.003). The mean XI was 24.6 ± 6.3 (95% CI 19.2–24.8) for those with poor health, whereas it was 17.4 ± 6.3 (95%CI 16.1–18.6) in those reporting very good health (p p = 0.002). Logistic regression showed that the highest OR for xerostomia was observed among adults with poor general health (2.81; 95%CI 1.8–4.3; p p = 0.001). Those who needed help with household chores had 2.16 higher OR (95%CI 1.4–3.4; p = 0.001) and 1.69 (95%CI 1.1–2.7; p = 0.03) in the adjusted model. Females had a higher risk of suffering from xerostomia than males. Conclusion The strong association between xerostomia and the general and oral health status of older adults justifies the need for early assessment and regular follow-up.

A cancer diagnosis can have a substantial impact on a patient’s mental health and quality of life. The aim of this study was to investigate the prevalence of fatigue, emotional distress, and uncertainty and examine the predictive value they have on the quality of life of advanced cancer patients. A prospective, multicenter study was conducted between February 2020 and May 2021 of individuals diagnosed with an advanced, unresectable neoplasm prior to initiating systemic antineoplastic treatment. Participants completed questionnaires to quantify fatigue, emotional distress, disease uncertainty, and quality of life. A linear regression analysis was performed to study the predictive QoL variables. The study population comprised 508 patients, 53.7% of whom were male and had a mean age of 54.9 years. The most common cancers were digestive (40.6%), bronchopulmonary (29.1%), and breast (8.5%); the most frequent histology was adenocarcinoma (63%); and most were stage IV (79.7%). More than half (55.7%) suffered fatigue, and 47.7% exhibited emotional distress; both were more prevalent among women. Fatigue, emotional distress, and disease uncertainty all correlate with diminished quality of life. Similarly, ECOG performance status and the demographic variables of age, sex, and comorbidities impacted quality of life. This patient sample displayed a high prevalence of fatigue and emotional distress, together with illness uncertainty, which are clearly linked to waning quality of life. To decrease the experience of fatigue and improve mental health treatment in cancer patients, interventions based on a biopsychosocial model must be intensified.

Background Colorectal cancer management may require an ostomy formation; however, a stoma may negatively impact health-related quality of life (HRQoL). This study aimed to compare generic and stoma-specific HRQoL in patients with a permanent colostomy after rectal cancer across different countries. Method A cross-sectional cohorts of patients with a colostomy after rectal cancer in Denmark, Sweden, Spain, the Netherlands, China, Portugal, Australia, Lithuania, Egypt, and Israel were invited to complete questionnaires regarding demographic and socioeconomic factors along with the Colostomy Impact (CI) score, European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire (QLQ-C30) and five anchor questions assessing colostomy impact on HRQoL. The background characteristics of the cohorts from each country were compared and generic HRQoL was measured with the EORTC QLQ-C30 presented for the total cohort. Results were compared with normative data of reference European populations. The predictors of reduced HRQoL were investigated by multivariable logistic regression, including demographic and socioeconomic factors and stoma-related problems. Results A total of 2557 patients were included. Response rates varied between 51–93 per cent. Mean time from stoma creation was 2.5–6.2 (range 1.1–39.2) years. A total of 25.8 per cent of patients reported that their colostomy impairs their HRQoL ‘some’/‘a lot’. This group had significantly unfavourable scores across all EORTC subscales compared with patients reporting ‘no’/‘a little’ impaired HRQoL. Generic HRQoL differed significantly between countries, but resembled the HRQoL of reference populations. Multivariable logistic regression showed that stoma dysfunction, including high CI score (OR 3.32), financial burden from the stoma (OR 1.98), unemployment (OR 2.74), being single/widowed (OR 1.35) and young age (OR 1.01 per year) predicted reduced stoma-related HRQoL. Conclusion Overall HRQoL is preserved in patients with a colostomy after rectal cancer, but a quarter of the patients interviewed reported impaired HRQoL. Differences among several countries were reported and socioeconomic factors correlated with reduced quality of life.

Despite an increasing interest in the effect of health information on health-behaviours, evidence on the causal impact of a diagnosis on lifestyle factors is still mixed and does not often account for long-term effects. We explore the role of health information in individual health-related decisions by identifying the causal impact of a type-2 diabetes diagnosis on body mass index (BMI) and lifestyle behaviours. We employ a fuzzy regression discontinuity design (RDD) exploiting the exogenous cut-off value in the diagnosis of type-2 diabetes provided by a biomarker (glycated haemoglobin) drawn from unique administrative longitudinal data from Spain. We find that following a type-2 diabetes diagnosis individuals appear to reduce their weight in the short-term. Differently from previous studies, we also provide evidence of statistically significant long-term impacts of a type-2 diabetes diagnosis on BMI up to three years from the diagnosis. We do not find perceivable effects of a type-2 diabetes diagnosis on quitting smoking or drinking. Overall, health information appears to have a sustained causal impact on weight reduction, a key lifestyle and risk factor among individuals with type-2 diabetes., Ministry of Science, Innovation and Universities PID2019-105688RB-I00, Ministry of Economics and Competitiveness PID2020-114040RB-100, Tomas y Valiente Fellowship - Madrid Institute for Advanced Study (MIAS) Comunidad de Madrid SI1/PJI/2019-00326

Study Objective We performed a long-term follow-up to quantify the impairment of sexual quality of life (SQL) and health-related QL (HRQL) in sexually active women after laparoscopic excision of deep infiltrating endometriosis (DIE). Design Prospective case-control study. Setting Hospital Clinic of Barcelona. Patients A total of 193 patients (after dropout and exclusions) were divided into 2 groups: one hundred twenty-nine premenopausal women with DIE (DIE group) and 64 healthy women who underwent tubal ligation (C group). Interventions All patients underwent laparoscopic surgery: laparoscopic endometriosis surgery in the DIE group and laparoscopic tubal ligation in the C group. All women were followed for at least 36 months, and they completed the Medical Outcomes Study 36-item short form questionnaire to assess their HRQL and 3 self-administered questionnaires that evaluate different aspects of SQL: the generic Sexual Quality of Life–Female questionnaire, the Female Sexual Distress Scale to evaluate “sexually related distress,” and the Brief Profile of Female Sexual Function to screen hypoactive sexual desire disorder. The patients with DIE as well as the controls completed the 4 questionnaires before surgery, and the patients with DIE also completed the questionnaires at 6 and 36 months after surgery. Measurements and Main Results A comparison of the patients and controls before surgery showed a statistically significant impairment in SQL and HRQL among the patients with DIE. A statistically significant improvement in SQL and HRQL was observed in the DIE group 6 months after surgery, with scores being similar to those of the C group. An evaluation 36 months after surgery showed that SQL and HRQL were better than presurgical SQL and HRQL in the DIE group, with a slight reduction compared with the 6-month evaluation. Conclusion SQL and HRQL improved in patients with DIE undergoing complete laparoscopic endometriosis resection and were comparable to those of healthy women at 6 months after surgery, showing a slight reduction at 36 months of follow-up.

A loss of the ability to buy and prepare meals, especially in people aged 65 and over, leads to a deterioration in their optimal level of nutrition. The Index of Autonomy in Food Acquisition (IAFA) was used to identify contributing factors. This is a composite indicator for shopping and meal preparation that can be used to assess the degree of autonomous capacity observed in a specific group. Data from the European Health Survey in Spain (7167 respondents aged 65 and over) show that capacity decreased with age and that women were less affected than men, with very little difference found in levels of autonomous capacity by territory. However, in relation to different income levels, after standardizing for age and sex, no evidence was found for differences in the ability to access and prepare meals in groups that were separated by income level. This result shows the importance of standardizing when analysing food acquisition autonomy in groups of people aged 65 years and over.

Patients with advanced gastrointestinal cancer must cope with the negative effects of cancer and complications.To evaluate psychological distress, quality of life, and coping strategies in patients with advanced colorectal cancer compared to non-colorectal cancer based on sex.A prospective, transversal, multicenter study was conducted in 203 patients; 101 (50%) had a colorectal and 102 (50%) had digestive, non-colorectal advanced cancer. Participants completed questionnaires evaluating psychological distress (Brief Symptom Inventory-18), quality of life (EORTC QLQ-C30), and coping strategies (Mini-Mental Adjustment to Cancer) before starting systemic cancer treatment.The study included 42.4% women. Women exhibited more depressive symptoms, anxiety, functional limitations, and anxious preoccupation than men. Patients with non-colorectal digestive cancer and women showed more somatization and physical symptoms than subjects with colorectal cancer and men. Men with colorectal cancer reported the best health status.The degree of disease acceptance in gastrointestinal malignancies may depend on sex and location of the primary digestive neoplasm. Future interventions should specifically address sex and tumor site differences in individuals with advanced digestive cancer.

Treball final de Màster Universitari en Ciències de la Infermeria. Codi: SBL017. Curs acadèmic 2021/2022 La satisfacció per ajudar als altres és capaç de desenvolupar dificultats en el treball de les infermeres degut a la empatia i als sentiments generats entre els professionals de la salut i els pacients. Existeixen factors de risc propis de l’ofici que han de ser atesos amb profunditat. Objectiu: explorar quina és l’opinió dels professionals d’infermeria que treballen en el torn de nit de l’Hospital de Terrassa sobre els diferents aspectes que afecten i com podrien millorar la seva qualitat de vida laboral. Metodologia: es tracta d’un estudi qualitatiu descriptiu. La població estudiada ha estat de 62 professionals de diferents unitats del centre que treballen en el torn nocturn. Se’ls hi ha passat el qüestionari ProQOL en la seva versió IV de l’any 2010 i un qüestionari ad hoc de 22 preguntes. Per a la seva mesura s’han utilitzat tant escales de tipo Likert com preguntes obertes Resultats: el resultat indica que la mostra té una moderada o alta Satisfacció per Compassió, així com un moderat o baix Síndrome de Burnout i un moderat o baix Estrés Post-traumàtic. Les propostes de millora dels professionals són més compensació econòmica, més quantitat d’infermers i infermeres, poder dormir en el torn laboral i millora en el calendari actual de treball. Conclusions: es conclou que els professionals tenen una bona Qualitat de Vida Laboral i que aquesta té poca relació amb altres variables i/o amb condicions de treball. Tot i així aquesta no és percebuda pels infermers i infermeres. The satisfaction of helping others can develop difficulties in the work of nurses due to the empathy and feelings generated between health professionals and patients. Therefore, specific risk factors in the nursing profession must be addressed in depth. Aims: Explore the opinion of nursing professionals who work the night shift at Terrassa Hospital on different aspects that can affect them and how they could improve their quality of work life. Methodology: This is a descriptive qualitative study. The population studied was 62 professionals from different units of the center who work in the night shift. They were given the ProQOL questionnaire in its IV version of 2010 and an ad hoc questionnaire of 22 questions. Both Likert-type scales and open-ended questions have been used for their measurement. Findings: The result indicates that the sample has moderate or high Compassion Satisfaction, as well as moderate or low Burnout Syndrome and moderate or low Post-Traumatic Stress. The proposals for improvement of the professionals are more financial compensation, more nurses, the ability to sleep during the work shift, and improvement in the current work calendar. Conclusions: Professionals have a good Quality of Work Life, and this has little relation to other variables and/or working conditions. Even so, this is not perceived by nurses.

Background: Receiving a diagnosis of a child with untreatable visual impairment (VI) may have a negative impact on parents and caregivers, and affect their quality of life (QoL). Aims: To use a qualitative research approach to determine the impact that caregiving a child with a VI has on the QoL of caregivers in Catalonia (Spain). Methods: An observational study was designed in which nine parents of children with VI (6 mothers) were recruited following an intentional sampling scheme. In-depth interviews were conducted, and a thematic analysis was performed to identify main themes and subthemes. The QoL domains defined in the questionnaire WHOQoL-BREF guided data interpretation. Results: An overarching theme was defined (the weight on one’s shoulders), as well as two main themes (obstacles race and emotional impact) and seven subthemes. QoL was negatively affected by a general lack of knowledge and understanding regarding VI in children and its implications for children and caregivers, whereas social support, gaining knowledge, or cognitive reappraisal had a positive effect. Conclusions: Caregiving for children with VI affects all QoL domains, resulting in persistent psychological distress. Both administrations and health care providers are encouraged to develop strategies to assist caregivers in their demanding roles. Peer Reviewed Objectius de Desenvolupament Sostenible::5 - Igualtat de Gènere Objectius de Desenvolupament Sostenible::3 - Salut i Benestar Objectius de Desenvolupament Sostenible::10 - Reducció de les Desigualtats

This study involved 608 children and adolescents between 7 and 18 years of age (Mage = 12.9, SDage = 2.70) from 47 residential care centres in Peru (RCC). The objective of the study was to observe the mediating effect of school satisfaction on the relationship between violence by teachers at school and the subjective well-being of children and adolescents, considering how the low or high support from residential care staff can condition this mediating effect as well. The descriptive results show a very high prevalence of violence inflicted by teachers at school for both children and adolescents in residential care in Peru. Regarding the results obtained from the moderated mediation model results, the school satisfaction domain is observed to have a mediating effect on the relationship between teacher violence and subjective well-being in children and adolescents. In addition, a moderated mediation effect conditioned by support from residential care staff is seen only in the case of children Open Access funding provided thanks to the CRUE-CSIC agreement with Wiley