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Autistic meltdowns have been explored from the perspectives of parents, but there is a paucity of research on the experience of meltdowns from the autistic perspective. Little is known about how adults experience these events. In this descriptive phenomenological study, we conducted online interviews with 32 autistic adults on the experience of having a meltdown. Data were analyzed using Colaizzi's seven-step method. Six themes emerged from data that captured the essence of meltdowns, including "feeling overwhelmed" by informational, sensory, social, or emotional stressors; "experiencing extreme emotions," such as anger, sadness, and fear; "losing logic," including challenges with thinking and memory; "grasping for self-control," in which participants felt out of touch with themselves; "finding a release" for emotions, often described as an "explosion" of external behaviors or self-harm; and "minimizing social, emotional, or physical harm" by avoiding triggers or self-isolating when possible. Findings highlight the painful and distressing internalized experience of meltdowns beyond behavioral characteristics. Participants shared examples of internal meltdowns, in which external characteristics of meltdowns were camouflaged. Participants also suggested that meltdowns may serve a functional role in regulating emotions and making one's voice heard. Meltdowns are diverse experiences that hold different meaning to different people.

Approximately one-third of autistics report intimate relationship experience, but few studies have explored neuromixed relationships from the perspectives of non-autistic partners. Non-autistic partners increasingly use peer-led online groups to seek support. The purpose of this study was to capture a theory that reflects the basic social experience of individuals who use these support groups using classic Glaserian grounded theory methodology. Online interviews were conducted with 162 non-autistics who believed that they were in neuromixed relationships. Data were concurrently collected and analyzed using constant comparative analysis. Participants described varying views of autism, from a difference to a disorder, which defined the context of their relationships. Five relationship profiles emerged--mutual partnership: viewed partners as = companionship: viewed partners as friends but lacked a deeper connection; caregiving: viewed partners as dependents and compared relationships to parent-child dyads; detachment: viewed relationships as broken beyond repair and isolated selves from partners; and discriminatory: believed and circulated negative generalizations about autism. Many participants who were dissatisfied in their relationships shared that their partners were not formally evaluated and did not self-identify as autistic. Future research should explore ways that autism labels are (mis)applied by the general public based on negative stereotypes about autism.

Autistics are more likely than neurotypicals to be gay, lesbian, bisexual, asexual, and other sexual orientations. Autistics and sexual minorities represent populations at high risk for depression, anxiety, and suicidality. Little is known about the experiences of individuals living at this intersection. In this phenomenology, 67 individuals who identified as autistic sexual minorities participated in online interviews to describe the meaning of their experiences. Six themes emerged, including: self-acceptance is a journey; autistic traits complicate self-identification of sexual orientation; social and sensory stressors affect sexual expression; feeling misunderstood and isolated; challenges finding mutually satisfying relationships; and difficulty recognizing and communicating sexual needs. Autistic sexual minorities experience a "double minority" status that complicates identity formation and increases vulnerability in sexual relationships.

Delayed diagnosis of autism spectrum disorder (ASD) into adulthood is common, and self-diagnosis is a growing phenomenon. This mixed methods study aimed to explore barriers to formal diagnosis of ASD in adults. In a qualitative strand, secondary analysis of data on the experiences of 114 individuals who were self-diagnosed or formally diagnosed with ASD in adulthood was used to identify barriers. In a quantitative strand, 665 individuals who were self-diagnosed or formally diagnosed in adulthood were surveyed online to examine incidence and severity of barriers. Fear of not being believed by professionals was identified as the most frequently occurring and most severe barrier. Professionals must strategize to build trust with individuals with ASD, particularly when examining the accuracy of self-diagnosis.

Pervasive feelings of social isolation and loneliness have been longstanding among up to half of older adults, and have received increased attention amid the COVID-19 pandemic. Programs to address loneliness and facilitate meaningful connections are vital for physical and mental wellbeing. The purpose of this study was to explore older adults' experiences participating as volunteers in the Aging is Very Personal (AIVP) service-learning program in relation to feelings of social connectedness. As part of an interprofessional gerontology course, 112 undergraduate students interviewed 55 older adult volunteers via Zoom on the lived experience of aging. Older adult volunteers were surveyed on their experiences with the COVID-19 pandemic and the virtual AIVP program. Data were analyzed using descriptive statistics and reflexive thematic analysis of open-ended questions. Participants reported participation in AIVP had a positive effect on their mood (86%) and made them feel more socially connected (71%). Six themes summarized their experiences: reduced feelings of social isolation; brought me joy; created meaningful intergenerational relationships; gave me a sense of purpose; facilitated genuine engagement; and created important learning opportunities for future health professionals. Virtual AIVP was identified as a valuable program to improve mood and feelings of social connectedness. [ABSTRACT FROM AUTHOR]

When students are exposed to digital stories about a particular nursing field, they feel more prepared to practice in that field. The purpose of this innovative teaching project was to introduce undergraduate nursing students to palliative care nursing through digital storytelling. Digital interviews with experienced nurses from five specialties were compiled and shared with students. Student responses indicated a positive impact on their professional identity and greater awareness about palliative care. Students benefited from hearing about "real" experiences and exploring diverse specialties and reported that this activity helped decrease their fear, find beauty in death, and value nursing presence. [ABSTRACT FROM AUTHOR]

Several qualitative studies explore the experience of being a partner to an individual with schizophrenia spectrum disorder, but these studies remain isolated “islands of knowledge.” This meta-ethnography aimed to synthesize current qualitative studies using Noblit and Hare's method. Thirteen studies were identified for inclusion. Three overarching themes were revealed: unmet expectations of relationship, renegotiating relationship roles, and separation versus togetherness. Themes interacted as a cycle with separation versus togetherness as temporal endpoints. Partners also renegotiated relationships with mental health professionals to accommodate unmet expectations. Leverage points for intervention were identified. [ABSTRACT FROM PUBLISHER]

Millions face the challenges of caregiving for a loved one with dementia. A classic Glaserian grounded theory methodology was used to discover the problem that caregivers of individuals with dementia face at the end of life and how they attempt to resolve that problem. Data were collected from a theoretical sample of 101 participants through in-person interviews, online interviews, book and blog memoirs of caregivers, and participant observation. Constant comparative method revealed a basic social psychological problem of role entrapment. Caregivers attempt to resolve this problem through a 5-stage basic social psychological process of rediscovering including missing the past, sacrificing self, yearning for escape, reclaiming identity, and finding joy. Health care professionals can support caregivers through this journey by validating, preparing caregivers for future stages, and encouraging natural coping strategies identified in this process. This study provides a substantive theory that may serve as a framework for future studies. [ABSTRACT FROM AUTHOR]