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Objective: The objective of this review is to identify available patient-reported outcome instruments used to assess the experience of children and adolescents with type 1 diabetes of being involved in their treatment. Specifically, this review will examine the content, structure, and application of these instruments.Introduction: It is considered meaningful to involve children and adolescents living with a chronic health condition, such as type 1 diabetes, in their own treatment. Despite a growing interest in patient involvement within pediatric health care, including the use of patient-reported outcomes, only a few patient-reported outcome instruments have been developed and are used to evaluate the experience of children and adolescents with type 1 diabetes of being involved in their own treatment.Inclusion criteria: This scoping review will examine patient-reported outcome instruments used to assess the experience of children and adolescents with type 1 diabetes (aged 11 to 18 years of age) of being involved in their own care. Patient-reported outcome instruments measuring parents' or clinicians' experiences of involvement will be excluded.Methods: The proposed review will follow JBI guidelines and all stages will involve 2 or more reviewers. PubMed, Embase, CINAHL, PsycINFO, JSTOR, and MedNar will be searched without limitations on the year or language of publication. Literature that is not written in English will be translated. Data extraction, charting, and analysis will be guided by a template developed for this review focusing on the content, structure, and application of the patient-reported outcome instruments. Any modifications will be detailed in the review and data will be presented in a descriptive format.

It has long been understood that psychosocial issues are important to an understanding of diabetes among young people. The diagnosis and management of diabetes places a substantial burden on youths and their families. This burden may disrupt normal developmental processes, and can have a major impact on psychosocial adjustment and successful disease management. The multinational DAWN Study was a pioneering effort to identify psychosocial barriers to optimal health and quality of life of people with diabetes and new ways to overcome those barriers. The DAWN Study interviewed more than 5000 adults with diabetes and almost 4000 diabetes care professionals, but did not include children and young people with diabetes, their families, or their care providers because it was recognized that diabetes in young people presents different psychosocial issues and challenges than diabetes in adults, and that a separate study would be required to identify opportunities to improve outcomes among young people with diabetes and their families. This realization gave rise to theDAWNYouth WebTalk Study. The objectives of this study were to: • gain understanding of the challenges and issues facing young people with diabetes and those with responsibility for supporting them; • identify new avenues for improving the psychosocial management of diabetes among young people; • stimulate new efforts to improve care for young people with diabetes and their families. This paper presents an initial overview of the methods and findings of theDAWNYouthWebTalk Study and discusses some of the implications of those findings.

Girls with diabetes mellitus (DM) (N = 21, age 11-17 years) completed measures of objective overeating episodes (OOE) and objective bulimic episodes (OBE) from the EDE-Q. Data regarding metabolic control (HbA1c) were obtained through a national diabetes register.41 % of the girls had one or more episodes of OOE, and 29 % had one or more episodes of OBE in the preceding month. Significant higher HbA1c were found among girls with than without episodes of OOE ( 9.1 versus 8.1, p = .033), and among girls with than without episodes of OBE ( 9.4 versus 8.1, p = .013).