1. 252nd ENMC international workshop: Developing best practice guidelines for management of mouthpiece ventilation in neuromuscular disorders. March 6th to 8th 2020, Amsterdam, the Netherlands
- Author
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Michelle Chatwin, Miguel Gonçalves, Jesus Gonzalez-Bermejo, Michel Toussaint, Jésus Gonzalez-Bermejo, Miguel Gonçalves, Joshua O. Benditt, Doug McKim, Brit Hov, Valeria Sansone, Hélène Prigent, Annalisa Carlucci, Peter Wijkstra, Tiina Andersen, Barbara Garabelli, Joan Escarrabill, Tiago Pinto, Nicolas Audag, Laura Verweij-van den Oudenrijn, Adam Onga, Wendy Hughes, Christian Devaux, Johann Chaulet, and Jesus Sancho
- Subjects
Duchenne muscular dystrophy ,amyotrophic lateral sclerosis ,medicine.medical_specialty ,2019-20 coronavirus outbreak ,Coronavirus disease 2019 (COVID-19) ,Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) ,Amyotrophic lateral sclerosis ,MPV ,NMD ,Non-invasive ventilation ,Article ,law.invention ,law ,medicine ,Intensive care medicine ,Genetics (clinical) ,Mouthpiece ,business.industry ,non-invasive ventilation ,medicine.disease ,Neurology ,Pediatrics, Perinatology and Child Health ,Ventilation (architecture) ,Neurology (clinical) ,business - Abstract
Highlights • Pre workshop international survey on MPV • Best practice guidline on the provision of MPV in NMD's by reviewing and recommend the most appropriate monitoring, mode, settings and equipment required for MPV. • Best practice algorithm on MPV for daytime ventilatory support (see Figure 1 ).Figure 1Figure 1 shows the best practice algorithm for the initiation of mouthpiece ventilation (MPV) in the long-term setting. For each stage of the algorithm there is a description to assist in the provision of this service.Figure 1 • Future studies in MPV.
- Published
- 2020
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