1. The DAWN Youth WebTalk Study: methods, findings, and implications
- Author
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Peyrot M, The DAWN Youth Survey Study Group: Henk-Jan Aanstoot, Barbara Anderson, Thomas Danne, Larry Deeb, Alexandra Greene Francine Kaufman, Karin Lange, Anja Østergren Nielsen, Mark Peyrot, Karin Rosenfeld, Luıs Eduardo Calliari, Fernanda Isposito, Fani Eta KornMalerbi, Vanessa Vivancos Pirolo, Katarina Braune, Richard Schlomann, Ralph Ziegler, Hansruedi Stahel, Massimo Massi Benedetti, Antonio Cabras, Marco Cappa, Franco Cerutti, Alessandro Cicognani, Valerio Cherubini, Francesco Chiarelli, Giuseppe Chiumello, Massimo Cipolli, Roberto Cocci, Gerardo Corigliano, Maria Iole Colombini, Simone Donadello, Simona Frontoni, Rosangela Ghidelli, Dario Iafusco, Niels Birkebæk, Ib Borly, Pernille Christoffersen, Thomas Hertel, JenniferWikre Jørgensen, Lene Juel Kristensen, Birthe Olsen, Lene Rasmussen, Kathrine Rayce, Mikael Tastum, A K Jhingan, Sanjay Kalra, Deepak Dalal, Archana Juneja, Santosh Singh, Sreejith Kumar, Yasuko Uchigata, Shin Amemiya, Shigeo Aono, Naoki Fukushima, Yutaka Igarashi, Rieko Maeda, Masato Matsushima, Masae Minami, Keiko Nakamura, Taisuke Okada, Eisuke Takazakura, Akira Takeda, Masato Takii, Tatsuhiko Urakami, M, Peyrot, DAWN Youth Survey Study Group: Henk-Jan Aanstoot, The, Anderson, Barbara, Danne, Thoma, Deeb, Larry, Greene Francine Kaufman, Alexandra, Lange, Karin, Østergren Nielsen, Anja, Peyrot, Mark, Rosenfeld, Karin, Eduardo Calliari, Luı, Isposito, Fernanda, Eta KornMalerbi, Fani, Vivancos Pirolo, Vanessa, Braune, Katarina, Schlomann, Richard, Ziegler, Ralph, Stahel, Hansruedi, Massi Benedetti, Massimo, Cabras, Antonio, Cappa, Marco, Cerutti, Franco, Cicognani, Alessandro, Cherubini, Valerio, Chiarelli, Francesco, Chiumello, Giuseppe, Cipolli, Massimo, Cocci, Roberto, Corigliano, Gerardo, Iole Colombini, Maria, Donadello, Simone, Frontoni, Simona, Ghidelli, Rosangela, Iafusco, Dario, Birkebæk, Niel, Borly, Ib, Christoffersen, Pernille, Hertel, Thoma, Jørgensen, Jenniferwikre, Juel Kristensen, Lene, Olsen, Birthe, Rasmussen, Lene, Rayce, Kathrine, Tastum, Mikael, K Jhingan, A, Kalra, Sanjay, Dalal, Deepak, Juneja, Archana, Singh, Santosh, Kumar, Sreejith, Uchigata, Yasuko, Amemiya, Shin, Aono, Shigeo, Fukushima, Naoki, Igarashi, Yutaka, Maeda, Rieko, Matsushima, Masato, Minami, Masae, Nakamura, Keiko, Okada, Taisuke, Takazakura, Eisuke, Takeda, Akira, Takii, Masato, and Urakami, Tatsuhiko
- Subjects
School ,Blood Glucose ,Parents ,medicine.medical_specialty ,Adolescent ,Health Personnel ,International Cooperation ,Endocrinology, Diabetes and Metabolism ,Settore MED/13 - Endocrinologia ,Young Adult ,Study methods ,Adaptation, Psychological ,Diabetes Mellitus ,Internal Medicine ,Humans ,Medicine ,Family ,Child ,Psychiatry ,Patient Care Team ,Internet ,Organizations ,Medical education ,Schools ,business.industry ,Blood Glucose Self-Monitoring ,Infant, Newborn ,Infant ,Social Support ,Diabetes Mellitu ,Health Survey ,Health Surveys ,Parent ,Child, Preschool ,Pediatrics, Perinatology and Child Health ,Quality of Life ,business ,Organization ,Human - Abstract
It has long been understood that psychosocial issues are important to an understanding of diabetes among young people. The diagnosis and management of diabetes places a substantial burden on youths and their families. This burden may disrupt normal developmental processes, and can have a major impact on psychosocial adjustment and successful disease management. The multinational DAWN Study was a pioneering effort to identify psychosocial barriers to optimal health and quality of life of people with diabetes and new ways to overcome those barriers. The DAWN Study interviewed more than 5000 adults with diabetes and almost 4000 diabetes care professionals, but did not include children and young people with diabetes, their families, or their care providers because it was recognized that diabetes in young people presents different psychosocial issues and challenges than diabetes in adults, and that a separate study would be required to identify opportunities to improve outcomes among young people with diabetes and their families. This realization gave rise to theDAWNYouth WebTalk Study. The objectives of this study were to: • gain understanding of the challenges and issues facing young people with diabetes and those with responsibility for supporting them; • identify new avenues for improving the psychosocial management of diabetes among young people; • stimulate new efforts to improve care for young people with diabetes and their families. This paper presents an initial overview of the methods and findings of theDAWNYouthWebTalk Study and discusses some of the implications of those findings.
- Published
- 2009