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1. Survey of informed consent for registration of congenital anomalies in Europe.

Author

Busby, Araceli, Ritvanen, Annukka, Dolk, Helen, Armstrong, Nicola, De Walle, Hermien, Riaño-Galán, Isolina, Gatt, Miriam, McDonnell, Robert, Nelen, Vera, and Stone, David

Subjects
HUMAN abnormalities, SURVEYS, MEDICAL care, INFORMED consent (Medical law), MEDICAL ethics
Abstract

Presents a survey of informed consent for registration of congenital anomalies in Europe. Description of the survey's participants; Methods and results of the survey; Statistics related to the survey; Reports that the primary concern of most patients is not the use of their data for research but inappropriate access to medical data.

Published
2005
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