1,607 results
Search Results
2. Comprehensive Analysis of Global Research on Erectile Dysfunction from 2002 to 2021: A Scientometric Approach.
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Kaabi, Yahia Ali, Abdelwahab, Siddig Ibrahim, and Albasheer, Osama
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IMPOTENCE ,BIBLIOMETRICS ,SEXUAL dysfunction ,PSYCHOLOGICAL factors ,LONGITUDINAL method - Abstract
Background: Erectile dysfunction (ED) is a multifaceted yet prevalent male-related sexual dysfunction that manifests as a change in any of the erectile response components, including relational, psychological, and biological. We aimed to use bibliometric analyses to determine how ED research has progressed and define the future trends necessary to contribute to scholarly literature.Methods: Two tools, VOSviewer and MS Excel, were used, and the study was conducted in May 2022. A total of 16,114 records were selected for in-depth analyses. We examined the most eminent authors, highly cited papers within journals, and the institutions that have provided the greatest number of articles regarding ED, and demonstrated that ED research has increased over the last two decades.Results: The total number of research documents published between 1971 and 2021 was 16,114, with a growth rate of 5%. Montorsi, Maggi, and Mulhall shared the top spot in the number of publications (n = 164). The Journal of Sexual Medicine has the most papers (N = 1839), followed by the International Journal of Impotence Research (N = 780), the Journal of Urology (N = 557), and Urology (N = 489).Conclusion: The study revealed increased ED research in the past two decades, with notable authors and sources identified. The top three countries contributing to ED are the UK, Italy, and the USA. Recommendations include interdisciplinary collaboration, novel therapeutic approaches, addressing psychological and relational factors, conducting longitudinal studies, and publishing in reputable journals. Implementing these can advance understanding, improve treatment options, and enhance ED management. [ABSTRACT FROM AUTHOR]
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- 2023
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3. Outcomes and well-being part 2: a comparative longitudinal study of two models of homecare delivery and their impact upon the older person self-reported subjective well-being. A qualitative follow up study paper.
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Gethin-Jones, Stephen
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HOME care services ,INTERVIEWING ,LONGITUDINAL method ,RESEARCH methodology ,EVALUATION of medical care ,PATIENT-professional relations ,SELF-evaluation ,SOCIAL isolation ,TIME ,QUALITATIVE research ,WELL-being ,THEMATIC analysis ,REPEATED measures design ,PATIENT-centered care - Abstract
Purpose – This paper aims to follow up on a previous quantitative research project which established that outcome-focussed care appeared to be associated with an increase in the individuals' subjective well-being. The purpose of this paper is to establish why the intervention enabled this. Design/methodology/approach – The study utilised a qualitative approach to gather the subjective experience of the individual service users. The sample consisted of 20 service users, who were subject of two semi-structured interviews; one interview at the start of the intervention and one at the six month stage. The data were then analysed under core themes raised by the service user in these interviews. The sample was divided into two, with one group receiving the outcome-focussed model of care and the other group receiving the traditional time focussed care. Findings – The research established that service users' subjective well-being improved due to the ability of outcome-focussed care to provide consistency, flexibility and most importantly the ability of the service user to form a relationship with the homecare workers providing their care. Practical implications – This paper will assist professionals to understand why outcome-focus care has a profound impact upon service users' subjective well-being as opposed to the existing task focussed care. Originality/value – This and the previous paper provide an insight into how different processes and models of intervention impact upon the subjective well-being of socially isolated older people. [ABSTRACT FROM AUTHOR]
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- 2012
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4. Resilience during lockdown: a longitudinal study investigating changes in behaviour and attitudes among older females during COVID-19 lockdown in the UK.
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Li, Lan, Sullivan, Ava, Musah, Anwar, Stavrianaki, Katerina, Wood, Caroline E., Baker, Philip, and Kostkova, Patty
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COVID-19 pandemic ,ATTITUDE change (Psychology) ,MENTAL health ,STAY-at-home orders ,LONGITUDINAL method ,EMOTIONAL experience - Abstract
In order to slow the spread of COVID-19, on March 23, 2020, a strict lockdown was implemented in the UK. This was followed by alternating periods of less restrictive lockdowns until most public health restrictions were lifted in the summer of 2021. While these measures were necessary, they significantly affected people's daily activities, lifestyles, and mental well-being. This paper presents a longitudinal research study that focused on females aged 55 + in the UK, aiming to understand how COVID-19 and the subsequent 15-month period of lockdowns affected their lifestyles and emotions. The study collected data through online surveys, where respondents reported the frequency and mode of access to activities, and their positive and negative emotional experiences during distinct study phases that encompassed both lockdown and less strict periods. In contrast to previous studies highlighting vulnerabilities for females and the elderly during lockdowns, this research found that the studied group maintained an overall positive outlook throughout the study period and successfully adapted to the lockdowns by increasing their engagement in certain activities, in particular, activities like 'getting active'. In addition, our findings indicate rapid adaptive behaviour change towards many online activities, such as cultural activities. However, the study also revealed negative emotions and a decrease in some activities during the second lockdown in 2020 and the subsequent lockdowns in 2021, underscoring the challenges inherent in prolonged periods of confinement. In addition, the study found negative affect associated with some activities, including working and studying from home. The findings provide valuable insights into how females aged over 55 coped with stressful circumstances, which can inform the development of resilient and mental health-conscious public health policies and responses in preparation for future pandemics or other hazards. [ABSTRACT FROM AUTHOR]
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- 2024
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5. The state of nursing research from 2000 to 2019: A global analysis.
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Yanbing, Su, Hua, Liu, Chao, Liu, Fenglan, Wang, and Zhiguang, Duan
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BIBLIOMETRICS ,INTERNATIONAL relations ,INTERPROFESSIONAL relations ,LONGITUDINAL method ,NURSING research ,PUBLISHING ,RESEARCH funding ,SERIAL publications ,DEVELOPED countries ,UNIVERSITIES & colleges ,DESCRIPTIVE statistics ,MIDDLE-income countries ,LOW-income countries - Abstract
Copyright of Journal of Advanced Nursing (John Wiley & Sons, Inc.) is the property of John Wiley & Sons, Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2021
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6. Pivoting in the Pandemic: Reflections of Graduates of a UK Fast Track Social Work Programme.
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Baginsky, Mary, Manthorpe, Jill, and Ixer, Graham
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SOCIAL workers ,SOCIAL services ,GRADUATE students ,EVALUATION of human services programs ,INTERNSHIP programs ,REFLECTION (Philosophy) ,STAY-at-home orders ,STUDENTS ,LONGITUDINAL method ,SURVEYS ,THEMATIC analysis ,PROFESSIONAL employee training ,TELECOMMUTING ,COVID-19 pandemic ,PSYCHOSOCIAL factors ,EMPLOYMENT ,VOCATIONAL guidance - Abstract
This paper presents and discusses the findings of a small-scale longitudinal survey of trainees who embarked on one 14-month Step Up to Social Work (SUSW) qualifying programme in January 2020, just prior to the start of the COVID-19 pandemic's restrictions in the United Kingdom (UK). It explores their responses to changes made to their placements during their training and the impact on their subsequent employment. Three surveys were administered to this cohort (n = 30; 25 of whom agreed to participate): just before trainees completed their training in May 2021 (n = 23), halfway through their Assessed and Supported Year in Employment (ASYE) in January 2022 (n = 19) and at the end of this in September 2022 (n = 15). Respondents felt at least adequately prepared for social work, despite having missed much direct work with children and families during placements. Online learning and consultations through lectures and supervision were acceptable modifications but face-to-face interactions and colleagues' guidance were missed in placements and initial employment. The implications of this are discussed for this specific route to qualification and initial employment as social workers. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Using longitudinal qualitative research to explore the experience of receiving and using augmentative and alternative communication.
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Broomfield, Katherine, Judge, Simon, Sage, Karen, Jones, Georgina L., and James, Deborah
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MEDICAL care use , *FACILITATED communication , *QUALITATIVE research , *INTERVIEWING , *EXPERIENCE , *LONGITUDINAL method , *PRE-tests & post-tests , *THEMATIC analysis , *COMMUNICATION devices for people with disabilities , *RESEARCH methodology , *CONCEPTUAL structures , *HEALTH outcome assessment , *MEDICAL needs assessment , *PHENOMENOLOGY , *CONCEPTS , *COMPARATIVE studies , *PATIENTS' attitudes , *EVALUATION - Abstract
Background: People who have communication difficulties may benefit from using augmentative and alternative communication (AAC). Understanding and measuring outcomes from the use of AAC is an important part of evaluating the impact of devices and services. Outcome measurement needs to reflect the changing nature of the impact of using AAC on an individual's ability to participate in activities of daily life. There is a limited understanding of the concepts that should inform the evaluation of outcomes from AAC device provision, nor how people's expectations from AAC may change over time. Aims: To inform the development of a patient‐reported outcome measure for AAC by understanding more about people's expectations from AAC and how these change over time. Methods & Procedures: A longitudinal qualitative research study was designed and carried out with seven participants over a period of 2 years. Participants were recruited from a regional specialist assessment service for AAC in the south‐west of the UK. Four semi‐structured interviews were carried out: (1) before assessment for AAC, (2) after assessment, (3) directly after provision of an AAC device and (4) between 6 and 12 months after provision. An original analytic method was used in this study that built on the principles of longitudinal interpretative phenomenology analysis, applied with a dialogic theoretical lens. This approach enabled the inclusion of a range of multimodal and embodied data collected to this study and allowed the research team to draw out salient themes across the cohort group while attending to the influence of time and context on experience. Outcomes & Results: The results confirm and extend the three core concepts that were used to guide analysis: changes; contexts; future possibilities. The contextual and temporal influences on outcomes attainable from AAC for this cohort were also identified and illustrated through cross‐case comparison. Deeper, analytic, and conceptual engagement with theory, which was then applied to analysis of the data, provided methodological rigour in the study. The results enhance our understanding of people's hopes and expectations from AAC and how these change over time. Conclusions & Implications: This qualitative longitudinal research study provides new insights into the journeys of people who experience communication disability, and the shifting nature of their sense of identity as they engage with, and learn from using, AAC. The study is significant as it attends to the dynamic nature of experience and how contextual and experiential factors influence people's hopes and expectations from AAC. The paper presents an original application of longitudinal qualitative research methodology with people who use AAC which can be further applied and tested in the field of communication disability research. WHAT THIS PAPER ADDS: What is already known on this subject: We did not know the impact that time has on the concepts that have been identified to represent important outcomes from AAC. The existing concepts used to define outcomes from AAC were not adequately conceptualized to develop a patient‐reported outcome measure. This study sought to extend our knowledge about outcomes from AAC. What this paper adds to the existing knowledge: This study adds to the methodological toolkit available for qualitative inquiry in the field of communication disability research by presenting a longitudinal qualitative research methodology. It adds depth to our understanding of the concepts that underpin outcomes from AAC and highlights the dynamic nature of contexts and how this influences desired outcomes. What are the potential or actual clinical implications of this work?: This longitudinal qualitative research study provides a broader perspective on the experience of getting AAC. It will enable clinicians to better navigate the contextual and transitionary factors that influence people's experience of acquiring AAC devices. The enhanced concepts described will also support clinical conversations that consider the wider facets of communication and what AAC can add to existing communicative tool kits beyond getting a message across. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Pilot evaluation of the electronic monitoring scheme in the UK.
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Churchman, James William, Baron, Susan, Carr, Michelle, and Orr, Donna
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RECIDIVISM prevention ,PILOT projects ,SCIENTIFIC observation ,PRISONERS ,PROFESSIONAL licenses ,RESEARCH methodology ,ELECTRONIC equipment ,INTERVIEWING ,QUALITATIVE research ,PROBATION ,THEMATIC analysis ,LONGITUDINAL method - Abstract
Purpose: Following research into the application of Electronic Monitoring (EM), Criminal Justice Order (2016) no. 954 was published, which introduced EM for offenders leaving custody in England and Wales (Ministry of Justice, 2016). EM was later extended to include those subjected to release on temporary licence (ROTL). The purpose of this study is to be the first, to the best of the authors' knowledge, to evaluate a pilot project using EM during the ROTL process. The outcome allowed for recommendations to be made regarding the continued use of EM within the open prison estate. Design/methodology/approach: This is a qualitative research project involving semi-structured interviews with staff and residents. Transcripts were analysed using thematic analysis which resulted in exploration of 4 themes and 11 sub-themes and recommendations for future research/practice. Findings: Results demonstrated that both staff and residents evaluated the use of EM as helpful with regard to evidencing compliance with ROTL conditions. In addition, staff also found it helpful for providing additional reassurance to victims and providing evidence for ROTL breaches. Practical implications: To the best of the authors' knowledge, this was the first qualitative evaluation of EM relating to the ROTL process. The evaluation improves understanding of the value of EM for policymakers and the Ministry of Justice, especially in terms of the ROTL process. The recommendations made in this paper evidence the value of EM use in the future. Originality/value: This evaluation supports continued use of EM and its integration into policy and procedures for residents subject to temporary licence. This paper concluded that consistent and reliable use of EM may contribute to victim reassurance and reduce recidivism of residents during ROTL, subsequently increasing the public's perception of safety. [ABSTRACT FROM AUTHOR]
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- 2023
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9. Lessons learned from recruiting into a longitudinal remote measurement study in major depressive disorder.
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Oetzmann, Carolin, White, Katie M., Ivan, Alina, Julie, Jessica, Leightley, Daniel, Lavelle, Grace, Lamers, Femke, Siddi, Sara, Annas, Peter, Garcia, Sara Arranz, Haro, Josep Maria, Mohr, David C., Penninx, Brenda W. J. H., Simblett, Sara K., Wykes, Til, Narayan, Vaibhav A., Hotopf, Matthew, Matcham, Faith, and RADAR-CNS consortium
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DIAGNOSIS of mental depression ,HUMAN research subjects ,TELEPSYCHIATRY ,PATIENT participation ,PROFESSIONS ,RESEARCH protocols ,PATIENT selection ,MOBILE apps ,HEALTH status indicators ,DISEASE relapse ,LEGAL compliance ,TECHNOLOGY ,LONGITUDINAL method ,REFLECTION (Philosophy) - Abstract
The use of remote measurement technologies (RMTs) across mobile health (mHealth) studies is becoming popular, given their potential for providing rich data on symptom change and indicators of future state in recurrent conditions such as major depressive disorder (MDD). Understanding recruitment into RMT research is fundamental for improving historically small sample sizes, reducing loss of statistical power, and ultimately producing results worthy of clinical implementation. There is a need for the standardisation of best practices for successful recruitment into RMT research. The current paper reviews lessons learned from recruitment into the Remote Assessment of Disease and Relapse- Major Depressive Disorder (RADAR-MDD) study, a large-scale, multi-site prospective cohort study using RMT to explore the clinical course of people with depression across the UK, the Netherlands, and Spain. More specifically, the paper reflects on key experiences from the UK site and consolidates these into four key recruitment strategies, alongside a review of barriers to recruitment. Finally, the strategies and barriers outlined are combined into a model of lessons learned. This work provides a foundation for future RMT study design, recruitment and evaluation. [ABSTRACT FROM AUTHOR]
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- 2022
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10. effect of technology and regulation on the co-evolution of product and industry architecture.
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Burton, Nicholas and Galvin, Peter
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COEVOLUTION ,VALUE chains ,LITERARY theory ,LONGITUDINAL method - Abstract
This paper explores the co-evolution of product and industry architecture by drawing on a longitudinal study of the UK personal pensions industry between 2005 and 2020. It provides qualitative evidence for the way in which institutional structures, particularly regulation, entwine with firm strategic choices to shape the contours of an industry value chain (IVC). We draw upon modularity theory and the literature on industry architecture to consider how strategic bottlenecks emerged and how value shifted between layers of the IVC. Furthermore, we examine the interplay between the agendas of the regulator and firm strategic responses to unpack how firms (product providers) responded by pursuing integrative innovation and less specialization to mitigate the effects of value migration to strategic bottlenecks. Our findings extend recent work on product and industry architecture, highlighting how markets evolve toward less modular product configurations and less industry specialization in response to these dynamics. [ABSTRACT FROM AUTHOR]
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- 2022
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11. Impact of video-based learning in business statistics: a longitudinal study.
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Lewis, Naowarat, Lewis, Rhidian, and Luca, Cristina
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COMMERCIAL statistics ,BUSINESS students ,LONGITUDINAL method ,COMPULSORY education ,UNDERGRADUATES ,STUDENT engagement - Abstract
Many undergraduate business students in the United Kingdom (UK) find themselves during the initial stages of their degree programmes required to study numerical subjects which, for many, have not been encountered since completing compulsory education. This paper considers the utilisation of a technology-based approach in order to support first-year undergraduate students engage with and achieve in the business numeracy subject area. The purpose of this paper is providing background introduction to new pedagogy through the use of technology. Through a longitudinal study conducted within a modern university in the UK over a 11-year period (2006–2017), this paper qualifies the impact of a video-based learning (VBL) approach on the achievement profiles of first-year undergraduate students within a modern business school. Results indicate that the use of a VBL approach such as that adopted within this study supports not only improvement in the number of students gaining an overall pass, but also an overall improvement amongst higher achieving students within business numeracy. Findings also demonstrate those characteristics of a VBL approach that support continuation of student engagement with the subject matter throughout their studies. Whilst such findings offer a range of benefits to both students and educators in enhancing student achievement, these also serve to introduce a new learning model which will be explored in subsequent research. [ABSTRACT FROM AUTHOR]
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- 2023
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12. Using collective intelligence methods to improve government data infrastructures and promote the use of complex data: The example of the Northern Ireland Longitudinal Study.
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Lowry, Estelle, Hogan, Michael J., Moriarty, John, Harney, Owen M., Ruijer, Erna, Pilch, Monika, Groarke, Jenny M., Hanlon, Michelle, and Shuttleworth, Ian
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SWARM intelligence ,LONGITUDINAL method ,SECONDARY research ,RESEARCH personnel - Abstract
Background: This paper discusses how collective intelligence (CI) methods can be implemented to improve government data infrastructures, not only to support understanding and primary use of complex national data but also to increase the dissemination and secondary impact of research based on these data. The case study uses the Northern Ireland Longitudinal Study (NILS), a member of the UK family of census/administrative data longitudinal studies (UKLS). Methods: A stakeholder-engaged CI approach was applied to inform the transformation of the NILS Research Support Unit (RSU) infrastructure to support researchers in their use of government data, including collaborative decision-making and better dissemination of research outputs. Results: We provide an overview of NILS RSU infrastructure design changes that have been implemented to date, focusing on a website redesign to meet user information requirements and the formation of better working partnerships between data users and providers within the Northern Ireland data landscape. We also discuss the key challenges faced by the design team during this project of transformation. Conclusion: Our primary objective to improve government data infrastructure and to increase dissemination and the impact of research based on data was a complex and multifaceted challenge due to the number of stakeholders involved and their often conflicting perspectives. Results from this CI approach have been pivotal in highlighting how NILS RSU can work collaboratively with users to maximize the potential of this data, in terms of forming multidisciplinary networks to ensure the research is utilized in policy and in the literature and providing academic support and resources to attract new researchers. [ABSTRACT FROM AUTHOR]
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- 2023
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13. Symptoms of post‐traumatic stress disorder in early career nurses during the COVID‐19 pandemic: A longitudinal survey study.
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Brook, Judy, Duguid, Beverley, and Miller, Naomi
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WELL-being ,HEALTH facilities ,SOCIAL support ,WORK ,POST-traumatic stress disorder ,LABOR demand ,REGRESSION analysis ,GRADUATES ,SURVEYS ,QUESTIONNAIRES ,EXPERIENTIAL learning ,DESCRIPTIVE statistics ,RESEARCH funding ,CLASSIFICATION of mental disorders ,COVID-19 pandemic ,PSYCHOLOGICAL resilience ,LONGITUDINAL method ,PSYCHOLOGICAL distress - Abstract
Aim: To investigate the mental well‐being of early career nurses working in the United Kingdom during the COVID‐19 pandemic, with a particular emphasis on symptoms related to post‐traumatic stress disorder. Design: A longitudinal survey study. Methods: Data were acquired at three timepoints during the COVID‐19 pandemic (between May 2020 and March 2021) to determine whether symptoms of post‐traumatic stress disorder persisted over time. Quantitative measures of well‐being were supplemented with survey data on the nurses' experiences of working during the pandemic. Results: Twenty‐seven per cent of participants suffered from persistent symptoms of post‐traumatic stress while working as nurses during the pandemic. The nurses' baseline resilience, as well as their perception of the quality of their work environment, were significant negative predictors of symptoms of post‐traumatic stress. Participants identified a range of strategies that would have helped them during the crisis, including visible, consistent and empathetic leadership, adequate training and a supportive work environment. Conclusion: The context of the pandemic has highlighted the vulnerability of the psychological well‐being of early career nurses in the workforce. Immediate implementation of some of the more simple interventions suggested in this paper would provide early career nurses with rapid support. More complex support mechanisms should be given immediate consideration, with a view to implementation in the longer term. Implications for the Profession: This study contributes new knowledge about the psychological well‐being of early career nurses working during the pandemic and suggests support mechanisms that will be crucial for the retention of these nurses in the profession. A measurement of resilience may be useful for determining the appropriate level of support to provide to early career nurses. Impact: Early career nurses are vulnerable to attrition from the profession. This could be exacerbated if the psychological well‐being of these nurses is not being supported.Around 25% of early career nurses suffered from persistent symptoms of post‐traumatic stress disorder while working as nurses during the height of the pandemic, which is a novel finding compared to other longitudinal studies.Understanding the psychological well‐being of early career nurses working during a crisis period (such as a pandemic) equips nurse managers with appropriate strategies to improve nurses' emotional health and to enhance their retention within the workforce.The current findings may be of interest to clinical practitioners who have responsibility for the retention of nursing staff. No patient or public contribution. One of the authors is a statistician. [ABSTRACT FROM AUTHOR]
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- 2023
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14. A propensity to thrive: Understanding individual difference, resilience and entrepreneurship in developing competence and professional identity.
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Cade, Liz
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NATIONAL competency-based educational tests ,RISK-taking behavior ,OCCUPATIONAL therapy students ,ENTREPRENEURSHIP ,PROFESSIONAL employee training ,JOB qualifications ,RESEARCH methodology ,TRANSITIONAL programs (Education) ,INTERVIEWING ,EXPERIENCE ,INTERNSHIP programs ,NURSING practice ,SELF-efficacy ,UNDERGRADUATE programs ,STUDENTS ,PROFESSIONAL identity ,QUESTIONNAIRES ,STUDENT attitudes ,PROFESSIONALISM ,CURRICULUM planning ,THEMATIC analysis ,PSYCHOLOGICAL resilience ,FAILURE to thrive syndrome ,LONGITUDINAL method - Abstract
Introduction: This paper draws on a study and its findings that set out to explore why some students appear to thrive, turning placement experiences into positive empowering opportunities despite the challenges, where others may not. Findings established a broader application beyond placements to inform curriculum design and delivery that nurtures professionalism, competence and identity from pre-admission to transition into practice as a journey of growth and development. Method: A mixed-methods approach was adopted. Questionnaires and interviews gathered data from two cohorts in traditional (n = 25) or role-emerging placements (n = 13). An interpretive approach was employed for the qualitative data. The quantitative data underwent statistical analysis. Findings: Students in role-emerging placements scored higher in resilience prior to and developed greater resilience as a consequence. These students scored higher in traits of openness, conscientiousness, extraversion and agreeableness and were more emotionally stable compared with students in traditional placements. Agreeableness was positively correlated with greater resilience in these students. Conclusion: Curricula design and delivery should embed opportunities throughout programmes of study enabling students to nurture an openness to new experiences, with positive risk taking, building an ability to thrive. Understanding individual differences in students informs the development of competence and identity pivotal for transition into practice. [ABSTRACT FROM AUTHOR]
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- 2023
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15. Association between psychological distress trajectories from adolescence to midlife and mental health during the pandemic: evidence from two British birth cohorts.
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Moulton, V., Sullivan, A., Patalay, P., Fitzsimons, E., Henderson, M., Bann, D., and Ploubidis, G. B.
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STRUCTURAL equation modeling ,MID-life crisis ,MENTAL health ,EPIDEMICS ,RESEARCH funding ,PSYCHOLOGICAL stress ,SECONDARY analysis ,LONGITUDINAL method ,POISSON distribution - Abstract
Background: This paper examined whether distinct life-course trajectories of psychological distress from adolescence to midlife were associated with poorer mental health outcomes during the pandemic. Methods: We present a secondary analysis of two nationally representative British birth cohorts, the 1958 National Child Development Study (NCDS) and 1970 British Cohort Study (BCS70). We used latent variable mixture models to identify pre-pandemic longitudinal trajectories of psychological distress and a modified Poisson model with robust standard errors to estimate associations with psychological distress, life satisfaction and loneliness at different points during the pandemic. Results: Our analysis identified five distinct pre-pandemic trajectories of psychological distress in both cohorts. All trajectories with prior symptoms of psychological distress irrespective of age of onset, severity and chronicity were associated with a greater relative risk of poorer mental health outcomes during the pandemic and the probability of poorer mental health associated with psychological distress trajectories remained fairly constant. The relationship was not fully attenuated when most recent pre-pandemic psychological distress and other midlife factors were controlled for. Conclusions: Whilst life-course trajectories with any prior symptoms of psychological distress put individuals at greater risk of poor mental health outcomes during the pandemic, those with chronic and more recent occurrences were at highest risk. In addition, prior poor mental health during the adult life-course may mean individuals are less resilient to shocks, such as pandemics. Our findings show the importance of considering heterogeneous mental health trajectories across the life-course in the general population in addition to population average trends. [ABSTRACT FROM AUTHOR]
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- 2023
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16. Dementia's preventative futures: researcher perspectives on prospective developments in the UK.
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Fahey, Miriam, Tinker, Anthea, and Fletcher, James Rupert
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DEMENTIA risk factors ,DEMENTIA prevention ,LIFESTYLES ,STAKEHOLDER analysis ,RESEARCH methodology ,INTERVIEWING ,PREVENTIVE health services ,MEDICAL care research ,DESCRIPTIVE statistics ,TECHNOLOGY ,HEALTH equity ,JUDGMENT sampling ,EARLY medical intervention ,LONGITUDINAL method - Abstract
Purpose: In lieu of a cure, the idea that dementia might be preventable through risk-factor moderation has latterly gained popularity. Prevention research is an evolving field that will likely undergo significant shifts in the near future. This paper aims to engage with that future as it is imagined in the present. Design/methodology/approach: This study explores the futures envisaged by dementia prevention researchers in the UK, based on interviews with six practitioners at the forefront of the field. Findings: Participants foresaw a pivot away from "dementia prevention" toward "brain health", and advocated for blended policy, community and lifestyle interventions. They were excited by the prospects for a lifecourse dementia hypothesis to inform new interventions but uncomfortable with the ethics of early intervention. Originality/value: These findings complicate simplistic depictions of prevention researchers as pursuing responsibilised lifestyle approaches. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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17. Factors associated with mental health symptoms among UK autistic children and young people and their parents during the COVID-19 pandemic.
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Palmer, Melanie, Chandler, Susie, Carter Leno, Virginia, Mgaieth, Farah, Yorke, Isabel, Hollocks, Matthew, Pickles, Andrew, Slonims, Vicky, Scott, Stephen, Charman, Tony, and Simonoff, Emily
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MENTAL illness risk factors ,PARENTS of children with disabilities ,MULTIPLE regression analysis ,ATTENTION-deficit hyperactivity disorder ,AUTISM ,PSYCHOSOCIAL factors ,DESCRIPTIVE statistics ,RESEARCH funding ,HOUSING ,COVID-19 pandemic ,LONGITUDINAL method ,DISEASE complications ,CHILDREN ,ADOLESCENCE - Abstract
The current study explored the role of pre-existing and pandemic-time child, family or environmental factors in the presentation of mental health symptoms of autistic youth and their parents during the pandemic. Participants were parents/carers of autistic children (Autism Spectrum Treatment and Resilience Cohort, N = 67, M
age = 9 years) and adolescents (QUEST cohort, N = 112, Mage = 17 years). Parents completed an online survey that asked about child and parental mental health, infection experience, and changes to education arrangements, family life, housing and finances during the pandemic. Pre-existing measures of mental health, autism and adaptive functioning were also utilised. More engagement and enjoyment in education provision and going outside was associated with better child and parental mental health. In multivariate multiple linear regression models, more pre-existing attention deficit hyperactivity disorder symptoms were associated with more behavioural/attention deficit hyperactivity disorder symptoms during the pandemic in the pre-adolescent cohort, and with greater emotional symptoms in the adolescent cohort. More pre-existing parental mental health problems were associated with more parental mental health symptoms during the pandemic in both cohorts. Knowledge of pre-existing mental health and pandemic-related stressors may help care planning. Encouraging engagement and enjoyment in education and promoting physical exercise are key intervention targets. Ensuring access to attention deficit hyperactivity disorder medication and support is important, especially if this is managed jointly across school and home. What is already known about the topic: The COVID-19 pandemic and the associated restrictions impacted all of society. There is emerging evidence showing a range of impacts on autistic children and young people and their families. Further research that looks at how individuals coped during the pandemic while considering how they were doing before the pandemic is needed. What this paper adds: This article explores whether how well autistic youth were doing before the pandemic influenced how they coped during the pandemic. It also looked at how well their parents were doing during the pandemic and whether any pre-pandemic factors influenced how they coped. Samples of both primary-school-aged autistic children and autistic teenagers and their parents were surveyed to answer these questions. More engagement and enjoyment in education provision during the pandemic and getting outside more were linked with better child and parental mental health during the pandemic. More attention deficit hyperactivity disorder before the pandemic was linked with more attention deficit hyperactivity disorder and behavioural problems during the pandemic in primary-school-aged autistic children, and more emotional problems during the pandemic in autistic teenagers. Parents with more mental health problems during the pandemic had more mental health problems before the pandemic. Implications for practice, research or policy: Encouraging engagement and enjoyment in education and promoting physical exercise are key intervention targets. Ensuring access to attention deficit hyperactivity disorder medication and support is important, especially if this is managed jointly across school and home. [ABSTRACT FROM AUTHOR]- Published
- 2023
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18. Predictors of school concern across the transition to secondary school with developmental language disorder and low language ability: A longitudinal developmental cascade analysis.
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Gough Kenyon, Sheila M., Palikara, Olympia, and Lucas, Rebecca M.
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LITERACY ,RECOGNITION (Psychology) ,WELL-being ,HIGH schools ,AFFINITY groups ,STATISTICS ,STRUCTURAL equation modeling ,SOCIAL support ,READABILITY (Literary style) ,COMMUNICATIVE competence ,ONE-way analysis of variance ,SPEECH evaluation ,REGRESSION analysis ,SEASONS ,PRE-tests & post-tests ,REPEATED measures design ,QUESTIONNAIRES ,SOCIAL skills ,EMOTIONS ,ELEMENTARY schools ,PATH analysis (Statistics) ,DATA analysis ,LANGUAGE disorders ,LONGITUDINAL method - Abstract
Background: Developmental language disorder (DLD) has clear functional ramifications in the areas of social competency, emotion recognition, emotional well‐being and literacy skill, which have been found to persist from childhood to adolescence. These domains are important factors during the transition from primary to secondary school in typical development (TD). Nevertheless, there is a paucity of research on the transition from primary to secondary school for adolescents with DLD and low language (LL) ability. Aims: To investigate the association between psychosocial domains, literacy skill and concerns about school during the transition to secondary school for adolescents with DLD, LL and their TD peers. The first research question examined whether levels of social competency, emotion recognition, emotional well‐being and literacy skill predicted school concern for the three groups. The second research question explored the longitudinal relationship between school concern and psychosocial and literacy indicators over the transition. Methods & Procedures: Participants (aged 10–11 years) with DLD (n = 30), LL ((n = 29) and TD (n = 42) were recruited for this longitudinal study from eight UK primary schools. Standardized language and psychosocial assessments were administered in the spring and summer terms of the final year of primary school, and the autumn and summer terms of the first year in secondary school. Outcomes & Results: Regression analyses showed pre‐transition school concern to be predicted by emotion recognition for the DLD group, by social competence and emotional well‐being for the LL group, and by social competence for the TD group. Post‐transition concern was predicted by emotional well‐being for the LL group; with no significant predictors for the DLD/TD groups. Path analyses revealed an association between literacy skill and emotion recognition for the DLD group. A developmental cascade illustrated a relationship between social competence and emotional well‐being for the TD group. Conclusions & Implications: This study concludes that transition interventions must be differentiated according to language ability; support for DLD adolescents should focus on emotion recognition skill, provision for LL adolescents should centre on emotional well‐being, and TD participants should be particularly supported in the domain of social competence in advance of the move to secondary school. Additionally, this study emphasizes the importance of the inclusion of a LL group, as their outcomes cannot be predicted using DLD/TD research. WHAT THIS PAPER ADDS: What is already known on the subject: There is limited research exploring the transition from primary school to secondary for adolescents with DLD or LL ability. Research on TD has highlighted vulnerable domains at this time. As these key areas are evidenced spheres of difficulty in DLD and LL, there was a strong impetus for this study. What this paper adds to existing knowledge: This study reveals differences between language ability groups in the predictors of school concern both pre‐ and post‐transition. Concerns of adolescents with DLD were predicted by emotion recognition, those of adolescents with LL were predicted by emotional well‐being, and a longitudinal link between social competence and emotional well‐being was evidenced for TD adolescents. What are the potential or actual clinical implications of this work?: This study has implications for researchers and clinicians, as a need has been identified for a new clinical group. It also has practical implications for transition support planning for educational practitioners, families and adolescents. [ABSTRACT FROM AUTHOR]
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- 2022
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19. Screening for silent aspiration in hyperacute stroke: A feasibility study of clinical swallowing examination and cough reflex testing.
- Author
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Trimble, Julie, Patterson, Joanne M., Wilson, Janet A., Dixit, Anand K., and Drinnan, Michael
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PILOT projects ,STROKE ,DEGLUTITION ,RESPIRATORY aspiration ,ENDOSCOPIC surgery ,TIME ,MEDICAL screening ,REFLEXES ,DEGLUTITION disorders ,COUGH ,DESCRIPTIVE statistics ,RESEARCH funding ,SCALE analysis (Psychology) ,SENSITIVITY & specificity (Statistics) ,DATA analysis software ,ENDOSCOPY ,LONGITUDINAL method ,DISEASE complications - Abstract
Background: Silent aspiration (SA) is common post‐stroke and associated with increased risk of pneumonia, length of stay and healthcare costs. Clinical swallow examinations (CSEs) are unreliable measures of SA. There is no consensus on the clinical components that best detect SA. Cough reflex testing (CRT) is an alternative/adjunct whose SA detection accuracy also lacks consensus. Aims: To investigate the feasibility of CSE versus CRT against gold standard flexible endoscopic evaluation of swallowing (FEES) for SA identification and to estimate its prevalence in a hyperacute stroke setting. Methods & Procedures: A single‐arm preliminary, prospective, feasibility study of patients less than 72 h post‐stroke, over a 31‐day period on a hyperacute stroke unit: the Royal Victoria Infirmary, Newcastle‐upon‐Tyne, UK. Ethical approval for the study was obtained. The study tested the feasibility and acceptability of introducing CRT and developing a standardized CSE. Consent/assent was obtained for all participants. Patients unfit for study were excluded. Outcomes & Results: A total of 62% of patients less than 72 h post‐stroke (n = 61) were eligible. A total of 75% of those approached (n = 30) consented. A total of 23 patients completed all tests. The principal barrier was anxiety regarding FEES. Mean test time for CRT = 6 min; CSE = 8 min; FEES = 17 min. Patients rated CRT and FEES on average as moderately uncomfortable. A total of 30% (n = 7) of participants who received FEES presented with SA. Conclusions & Implications: CRT, CSE and FEES are feasible in 58% of hyperacute stroke patients in this setting. FEES anxiety is the main recruitment barrier and is not always well tolerated. Results support further work to establish optimum methods and differential sensitivity/specificity of CRT and CSE in hyperacute stroke for SA identification. WHAT THIS PAPER ADDS: What is already known on this subject: SA significantly increases the risk of pneumonia in the early days post‐stroke. CSEs are unreliable for identification of SA risk in this population. CRT is gaining popularity as a potential tool to identify stroke patients at risk of SA, though there are questions regarding the efficacy of the clinical protocol currently being used in the UK. What this study adds to existing knowledge: This study demonstrates that it is practical and feasible to carry out a larger scale study in this setting to compare CSE and CRT including a consideration of an approach combining both methods for clinical identification of SA versus FEES. Preliminary findings suggest that CSE may have higher levels of sensitivity than CRT for SA identification. What are the potential or actual clinical implications of this work?: The results of this study suggest that further work is needed to establish the optimum methods and differential sensitivity/specificity of clinical tools for SA detection in hyperacute stroke. [ABSTRACT FROM AUTHOR]
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- 2023
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20. Designing a blockchain enabled supply chain.
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Wang, Yingli, Chen, Catherine Huirong, and Zghari-Sales, Ahmed
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SUPPLY chains ,BLOCKCHAINS ,DESIGN science ,VALUE chains ,LONGITUDINAL method - Abstract
While blockchain technologies are gaining momentum within supply chains, academic understanding of concrete, real-life design and implementation is still lagging, hence offering very limited insights into the true implications of blockchain technology on supply chains. This paper reports a two-year design science research (DSR) study of a smart contract initiative piloted by a consortium in the UK's construction sector. We seek answers to the research question, 'How should a blockchain enabled supply chain be designed?' Guided by the theory of business model, we explore how a group of supply chain actors collectively designs and pilots a blockchain solution that addresses the supply chain transparency and provenance problem. Our research is one of the very few longitudinal empirical studies to offer in-depth evidence about how blockchain is deployed in complex multi-tier supply chain networks. In compliance with DSR research paradigm, we make contributions at three levels: designing and instantiating the blockchain architect and proving its utility in addressing the target problem; developing a set of design principles as a mid-range theory that can be applied and tested in different blockchain supply chain contexts; and refining and extending the kernel theory of business value at supply chain network level. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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21. An examination of student nurse practitioners' diagnostic reasoning skills.
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Rogers, Melanie and Steinke, Mary
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QUANTITATIVE research ,DECISION making ,DIAGNOSIS ,CLINICAL competence ,DESCRIPTIVE statistics ,STATISTICAL hypothesis testing ,GRADUATE students ,NURSING students ,STATISTICAL sampling ,LONGITUDINAL method - Abstract
Aim: To examine the diagnostic reasoning skills of two nurse practitioner student cohorts. Introduction: Nurse practitioners continue to play a pivotal role in health care provision. Diagnostic reasoning is a core skill of advanced practice. A comparative diagnostic reasoning study between two student cohorts was undertaken between 2018 and 2019. Methods: A validated diagnostic reasoning scale was completed by nurse practitioner students in the United Kingdom and the United States of America at the beginning and end of their clinical placements. The study utilized descriptive quantitative statistics from the data submitted by 22 survey respondents from an online survey. Results: Analysis of the diagnostic reasoning skills suggested there was a difference in the structural memory scores when compared with the beginning of their clinical placements and the final semester of their clinical placements. Conclusion: Diagnostic reasoning skills are a core skill of advanced practice. As students progress through their training, these skills improve. Despite the statistical difference in diagnostic reasoning scores, caution should be made in determining any larger implications due to the small number of participants in this study. Further study is needed in this area. Summary statement: What is already known about this topic? Diagnostic reasoning is a core skill for nurse practitioners.There is minimal research in this area.Diagnostic accuracy is vital for ensuring patient safety. What this paper adds? Structural memory scores improved at the end of nurse practitioner clinical placements. What are the implications of this paper for policy/practice/research/education? Further global research in the field of diagnostic reasoning for nurse practitioners and nurse practitioner students is needed to validate these findings.It is important to ensure nurse practitioners have competency in diagnostic reasoning to reduce diagnostic error.Curricula could be designed to incorporate the use of the DTI to evaluate a student's progress throughout the clinical portion of the nurse practitioner programme. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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22. Ageing in extra-care housing: preparation, persistence and self-management at the boundary between the third and fourth age.
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Johnson, Eleanor K., Cameron, Ailsa, Lloyd, Liz, Evans, Simon, Darton, Robin, Smith, Randall, Atkinson, Teresa, and Porteus, Jeremy
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ELDER care ,AGING ,PSYCHOLOGY of caregivers ,PSYCHOLOGY of executives ,HEALTH services accessibility ,HOSPITAL medical staff ,INTERVIEWING ,LONGITUDINAL method ,MEDICAL needs assessment ,PSYCHOLOGY of social workers ,RESIDENTIAL care - Abstract
Extra-care housing (ECH) has been hailed as a potential solution to some of the problems associated with traditional forms of social care, since it allows older people to live independently, while also having access to care and support if required. However, little longitudinal research has focused on the experiences of residents living in ECH, particularly in recent years. This paper reports on a longitudinal study of four ECH schemes in the United Kingdom. Older residents living in ECH were interviewed four times over a two-year period to examine how changes in their care needs were encountered and negotiated by care workers, managers and residents themselves. This paper focuses on how residents managed their own changing care needs within the context of ECH. Drawing upon theories of the third and fourth age, the paper makes two arguments. First, that transitions across the boundary between the third and fourth age are not always straightforward or irreversible and, moreover, can sometimes be resisted, planned-for and managed by older people. Second, that operational practices within ECH schemes can function to facilitate or impede residents' attempts to manage this boundary. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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23. Endonasal surgery in the coronavirus era – Birmingham experience.
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Naik, P P, Tsermoulas, G, Paluzzi, A, McClelland, L, and Ahmed, S K
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CROSS infection ,DISEASES ,ENDOSCOPY ,HOSPITAL emergency services ,INDUSTRIAL safety ,LONGITUDINAL method ,SCIENTIFIC observation ,OPERATIVE otolaryngology ,POSTOPERATIVE period ,RETROSPECTIVE studies ,COVID-19 pandemic - Abstract
Background: The World Health Organization declared coronavirus disease 2019 a pandemic on 11th March 2020. There is concern regarding performing endonasal surgical procedures because of a high viral load in the nasopharynx. This paper describes our experience in conducting emergency and urgent endonasal operations during the peak of the coronavirus disease 2019 pandemic in the UK. Objectives: To show the outcome of endonasal surgery during the peak of the coronavirus disease 2019 pandemic and to assess the post-operative rate of nosocomial coronavirus disease 2019 infection. Methods: A retrospective cohort study was conducted of all patients who underwent high priority endoscopic nasal surgery or anterior skull base surgery between 23rd March and 15th June 2020 at University Hospitals Birmingham NHS Trust. Results: Twenty-four patients underwent endonasal surgery during the study period, 12 were males and 12 were females. There was no coronavirus-related morbidity in any patient. Conclusion: This observational study found that it is possible to safely undertake urgent endonasal surgery; the nosocomial risk of coronavirus disease 2019 can be mitigated with appropriate peri-operative precautions. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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24. COVID-19 contact tracing apps: UK public perceptions.
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Samuel, G., Roberts, S. L., Fiske, A., Lucivero, F., McLennan, S., Phillips, A., Hayes, S., and Johnson, S. B.
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PRIVACY ,COVID-19 ,MOBILE apps ,RESEARCH methodology ,PUBLIC health ,INTERVIEWING ,QUALITATIVE research ,MEDICAL ethics ,EMPLOYMENT ,CONTACT tracing ,PUBLIC opinion ,COVID-19 pandemic ,DIFFUSION of innovations ,LONGITUDINAL method ,EDUCATIONAL attainment - Abstract
In order to combat the COVID-19 pandemic, policymakers around the globe have increasingly invested in digital health technologies to support the 'test, track and trace' approach of containing the spread of the novel coronavirus. These technologies include mobile 'contact tracing' applications (apps), which can trace individuals likely to have come into contact with those who have reported symptoms or tested positive for the virus and request that they self-isolate. This paper takes a critical public health perspective that advocates for 'genuine participation' in public health interventions and emphasises the need to take citizen's knowledge into account during public health decision-making. In doing so, it presents and discusses the findings of a UK interview study that explored public views on the possibility of using a COVID-19 contact-tracing app public health intervention at the time the United Kingdom (UK) Government announced their decision to develop such a technology. Findings illustrated interviewees' range and degree of understandings, misconceptions, and concerns about the possibility of using an app. In particular, concerns about privacy and surveillance predominated. Interviewees associated these concerns much more broadly than health by identifying with pre-existent British national narratives associated with individual liberty and autonomy. In extending and contributing to ongoing sociological research with public health, we argue that understanding and responding to these matters is vital, and that our findings demonstrate the need for a forward-looking, anticipatory strategy for public engagement as part of the responsible innovation of the COVID-19 contact-tracing app in the UK. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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25. What do child protection social workers consider to be the systemic factors driving workforce instability within the English child protection system, and what are the implications for the UK Government's reform strategy?
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Murphy, Ciarán, Turay, Jennifer, Parry, Nicole, and Birch, Nicola
- Subjects
- *
OCCUPATIONAL disease risk factors , *CHILD welfare , *RISK assessment , *CRITICISM , *SOCIAL workers , *RESEARCH funding , *PROFESSIONAL practice , *FOCUS groups , *LABOR turnover , *SOCIAL services , *INTERVIEWING , *QUESTIONNAIRES , *SOCIAL worker attitudes , *STRATEGIC planning , *WAGES , *INTERNET , *DESCRIPTIVE statistics , *EXPERIENCE , *LABOR market , *HEALTH care reform , *LONGITUDINAL method , *PEDIATRICS , *THEMATIC analysis , *RESEARCH methodology , *MEDICAL coding , *PUBLIC administration , *GROUNDED theory , *LABOR supply , *EMPLOYEES' workload - Abstract
In 2023, the UK Government published its long-awaited reform strategy for England's children's social care system. Whilst the strategy set out planned reforms for several aspects of the wider system, an area requiring particular 'priority' was the purported workforce instability seen within child protection social work. However, the strategy has subsequently faced criticism on the basis that the suggested reforms were not satisfactorily informed by the testimonies of practicing social workers. This paper draws from a mixed-method study to report on the lived experiences of a sample of 201 child protection social workers practicing across England, in the context of better understanding the factors which they believed were impacting on workforce stability within England's child protection system. Implications that emerge are the need for an increase in the monetary commitment offered by the UK Government (especially in the context of tackling high caseloads, and improving local authority pay scales to reduce the allure of agency work); a targeted emphasis on challenging local cultures preoccupied with evidencing compliance over time spent with children; and the Government taking a more assertive role in tackling the often-counterproductive commentary perpetuated by politicians and media. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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26. Caring trajectories and health in mid-life.
- Author
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Evandrou, Maria, Falkingham, Jane, Gómez-León, Madelin, and Vlachantoni, Athina
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- *
HEALTH status indicators , *LOGISTIC regression analysis , *SEX distribution , *EVALUATION of medical care , *DESCRIPTIVE statistics , *AGE distribution , *CAREGIVERS , *LONGITUDINAL method , *HEALTH education , *MENTAL depression , *WELL-being - Abstract
Previous research has found varied effects of informal care provision on the carer's health status. Few studies have, however, examined this relationship dynamically. This paper is the first to analyse trajectories of care among men and women in mid-life and their impact on health outcomes using a nationally representative prospective cohort study. Data from three waves of the United Kingdom (UK) National Child Development Study (N = 7,465), when the respondents were aged 46, 50 and 55, are used to derive care trajectories capturing the dynamics of care provision and its intensity. Logistic regression investigates the impact of caring between the ages of 46 and 55 on the carers' report of depression and poor health at age 55. At age 46, 9 per cent of men and 16 per cent of women provided some level of informal care; rising to 60 per cent for both genders at ages 50 and 55. Just 7 per cent of women and 4 per cent of men provided care at all observation points, with the most common trajectory being 'starting to care' at ages 50 or 55. New carers experienced a lower risk of depression at age 55, reflecting that they may not have experienced the caring role long enough to have an adverse impact on their wellbeing. The findings highlight that the majority of individuals with surviving parents experience caring at some point during mid-life, underlining the need for further longitudinal research to better understand the complex relationships between care-giving and health for different groups of cares. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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27. Evaluation and interpretation of latent class modelling strategies to characterise dietary trajectories across early life: a longitudinal study from the Southampton Women's Survey.
- Author
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Dalrymple, Kathryn V., Vogel, Christina, Godfrey, Keith M., Baird, Janis, Hanson, Mark A., Cooper, Cyrus, Inskip, Hazel M., and Crozier, Sarah R.
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STRUCTURAL equation modeling ,STATISTICS ,SURVEYS ,COMPARATIVE studies ,DESCRIPTIVE statistics ,RESEARCH funding ,QUESTIONNAIRES ,FOOD quality ,ODDS ratio ,DATA analysis ,NUTRITIONAL status ,LONGITUDINAL method ,EVALUATION ,CHILDREN - Abstract
There is increasing interest in modelling longitudinal dietary data and classifying individuals into subgroups (latent classes) who follow similar trajectories over time. These trajectories could identify population groups and time points amenable to dietary interventions. This paper aimed to provide a comparison and overview of two latent class methods: group-based trajectory modelling (GBTM) and growth mixture modelling (GMM). Data from 2963 mother–child dyads from the longitudinal Southampton Women's Survey were analysed. Continuous diet quality indices (DQI) were derived using principal component analysis from interviewer-administered FFQ collected in mothers pre-pregnancy, at 11- and 34-week gestation, and in offspring at 6 and 12 months and 3, 6–7 and 8–9 years. A forward modelling approach from 1 to 6 classes was used to identify the optimal number of DQI latent classes. Models were assessed using the Akaike and Bayesian information criteria, probability of class assignment, ratio of the odds of correct classification, group membership and entropy. Both methods suggested that five classes were optimal, with a strong correlation (Spearman's = 0·98) between class assignment for the two methods. The dietary trajectories were categorised as stable with horizontal lines and were defined as poor (GMM = 4 % and GBTM = 5 %), poor-medium (23 %, 23 %), medium (39 %, 39 %), medium-better (27 %, 28 %) and best (7 %, 6 %). Both GBTM and GMM are suitable for identifying dietary trajectories. GBTM is recommended as it is computationally less intensive, but results could be confirmed using GMM. The stability of the diet quality trajectories from pre-pregnancy underlines the importance of promotion of dietary improvements from preconception onwards. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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28. 'Wishes and feelings': Misunderstandings and missed opportunities for participation in child protection proceedings.
- Author
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Dillon, Jo
- Subjects
SOCIAL participation ,FOCUS groups ,RESEARCH methodology ,SOCIAL workers ,CHILD behavior ,INTERVIEWING ,QUALITATIVE research ,CHILD welfare ,COMMUNICATION ,INTERPERSONAL relations ,SOCIAL services ,DATA analysis software ,LONGITUDINAL method ,PARENTS - Abstract
The gathering of 'wishes and feelings' in UK child protection proceedings (s.53 Children Act 2004) should highlight the child's opinion of social work intervention and services provided. However, with no statutory social work guidance on participation currently in place, children frequently miss opportunities to be involved in their own child protection planning. This paper is drawn from a 3‐year study into participation in child protection social work. It includes findings from qualitative interviews, and one focus group, with social workers, parents, children and participation workers, from three local authorities in the United Kingdom. The findings revealed some examples of significant gaps in service provision, particularly from the perspective and understanding of the child. The skewed translation of wishes and feelings legislation, along with its subsequent (and often inadequate) application to practice, prevents children from understanding and responding to social work intervention and can lead to idiosyncratic practice. This paper provides recommendations for a practical response to practitioner dilemmas regarding wishes and feelings and bridges the gap between research and practice. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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29. Healthy by Association: The relationship between social participation and self‐rated physical and psychological health.
- Subjects
SOCIAL participation ,RELATIVE medical risk ,SELF-evaluation ,MENTAL health ,HEALTH status indicators ,REGRESSION analysis ,SURVEYS ,SEX distribution ,SOCIAL isolation ,INTERPERSONAL relations ,EMPLOYMENT ,HEALTH ,INFORMATION resources ,QUESTIONNAIRES ,SCALE analysis (Psychology) ,DESCRIPTIVE statistics ,POLICY sciences ,LONGITUDINAL method - Abstract
This paper investigates the relationship between social participation and subjective health. Using individual‐level data from the British Household Panel Survey, we show that being an active member of a social or sport organisation increases self‐rated physical and psychological health. For men, the benefits of social interaction work primarily via physical pathways, while women report a more psychosocial channel. We separate the main results by occupation and document some heterogeneity. Manual workers find more physical and psychological relief via social involvement, whereas non‐manual workers are more likely to take relief from sport participation. Interestingly, as the number of associations in which the individual is active increases, the incremental increase in social benefits diminishes. Our findings point to the importance of promoting social and sport activities in health communication and policy making. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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- View/download PDF
30. Challenging career models in higher education: the influence of internal career scripts and the rise of the "concertina" career.
- Author
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Whitchurch, Celia, Locke, William, and Marini, Giulio
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EDUCATORS ,LONGITUDINAL method ,UNIVERSITIES & colleges ,CAREER development ,HIGHER education - Abstract
The paper develops the metaphorical concept of the "concertina" career to describe ways in which academic staff, across a diversifying workforce, modulate their interactions with institutional career frameworks, which tend to be unilinear and to be characterised by detailed progression criteria and milestones. In doing this, they are guided by Internal career scripts, providing an additional dimension to the dichotomy of boundaried and boundaryless careers found in the literature. Drawing on a longitudinal study between 2017 and 2020, of forty-nine mid-career academic staff across eight UK universities, consideration is given to individuals' spatial movements, for instance, between academic activities, and professional and personal commitments; and the manipulation of timescales to accelerate or decelerate career progress in relation to opportunities and constraints. The study shows ways in which the spatial parameters of a career are being stretched in order to accommodate new forms of academic work supplementing disciplinary activity, such as online learning, employability initiatives and public engagement, as well as work-life considerations. In addition, individuals are adapting timescales to accommodate professional activities such as health practice or community outreach, as well as personal commitments such as caring responsibilities. Thus, in the concertina career, individuals expand and contract activity, as well as extending and compressing timescales. As a result, it is concluded that institutional career models do not entirely reflect the reality of career-making by individuals, which is likely to involve detours (therefore a spatial dimension) and a disruption of assumed timelines (therefore a temporal dimension). [ABSTRACT FROM AUTHOR]
- Published
- 2021
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31. Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020.
- Author
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Flynn, Samantha, Hatton, Chris, and the Coronavirus and people with learning disabilities study team
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HEALTH services accessibility ,LEARNING disabilities ,DESCRIPTIVE statistics ,SOCIAL services ,PEOPLE with disabilities ,STAY-at-home orders ,COVID-19 pandemic ,LONGITUDINAL method - Abstract
Purpose: This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales. Design/methodology/approach: Data were collected directly from 621 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 378 adults with learning disabilities. The data were collected between December 2020 and February 2021 and concerned the use of health and social care services since the start of the first COVID-19 national lockdown in March 2020. Findings: Access to and use of health and social care services significantly reduced for adults with learning disabilities across the UK during the COVID-19 pandemic between March 2020 and February 2021, with many people not receiving any services at all during that period. Similar patterns were seen across England, Northern Ireland, Scotland and Wales. However, data suggest some variations between countries for some services. Practical implications: Future pandemic planning must ensure that access to these essential services is not completely lost for adults with learning disabilities and their family carers, as it was in some cases during the COVID-19 pandemic in 2020. Originality/value: This is the largest study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. The authors primarily collected data directly from adults with learning disabilities, and worked with partner organisations of people with learning disabilities throughout the study. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
32. Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA): health assessment protocol, participant profile and patterns of participation.
- Author
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Neville, Charlotte E, Young, Ian S, Kee, Frank, Hogg, Ruth E, Scott, Angela, Burns, Frances, Woodside, Jayne V, and McGuinness, Bernadette
- Subjects
LONGITUDINAL method ,COHORT analysis ,ALZHEIMER'S disease ,OLDER people ,RETIREMENT policies ,HEARING - Abstract
Background: The Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA) is a prospective, longitudinal study of a representative cohort of older adults living in Northern Ireland, United Kingdom. Its aim is to explore the social, behavioural, economic and biological factors of ageing and how these factors change as people age. The study has been designed to maximize comparability with other international studies of ageing thereby facilitating cross-country comparisons. This paper provides an overview of the design and methodology of the health assessment which was carried out as part of Wave 1. Methods: Three thousand, six hundred and fifty five community dwelling adults, aged 50 years and over participated in the health assessment as part of Wave 1 of NICOLA. The health assessment included a battery of measurements across various domains that addressed key indicators of ageing namely: physical function, vision and hearing, cognitive function, and cardiovascular health. This manuscript describes the scientific rationale for the choice of assessments, provides an overview of the core objective measures carried out in the health assessment and describes the differences in characteristics of participants who took part in the health assessment compared to those who did not take part. Results: The manuscript highlights the importance of incorporating objective measures of health in population based studies as a means of complementing subjective measures and as a way to advance our understanding of the ageing process. The findings contextualize NICOLA as a data resource within Dementias Platform UK (DPUK), the Gateway to Global Ageing (G2G) and other existing networks of population based longitudinal studies of ageing. Conclusion: This manuscript can help inform design considerations for other population based studies of ageing and facilitate cross-country comparative analysis of key life-course factors affecting healthy ageing such as educational attainment, diet, the accumulation of chronic conditions (including Alzheimer's disease, dementia and cardiovascular disease) as well as welfare and retirement policies. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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33. A good life? A good death? Reconciling care and harm in animal research.
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Roe, Emma and Greenhough, Beth
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LABORATORY animals ,HUMAN-animal relationships ,ETHNOLOGY research ,LONGITUDINAL method ,RESEARCH protocols ,ANIMAL health technicians ,ANIMAL welfare ,ZOOLOGY - Abstract
Copyright of Social & Cultural Geography is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2023
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34. Moving In and Out of In-work Poverty in the UK: An Analysis of Transitions, Trajectories and Trigger Events.
- Author
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HICK, ROD and LANAU, ALBA
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EMPLOYMENT ,INTERVIEWING ,LONGITUDINAL method ,POVERTY ,RESEARCH funding ,WAGES - Abstract
There is growing concern about the problem of in-work poverty in the UK. Despite this, the literature on in-work poverty remains small in comparison with that on low pay and, in particular, we know relatively little about how people move in and out of in-work poverty. This paper presents an analysis of in-work poverty transitions in the UK, and extends the literature in this field in a number of identified ways. The paper finds that in-work poverty is more transitory than poverty amongst working-age adults more generally, and that the number of workers in the household is a particularly strong predictor of in-work poverty transitions. For most, in-work poverty is a temporary phenomenon, and most exits are by exiting poverty while remaining in work. However, our study finds that respondents who experience in-work poverty are three times more likely than non-poor workers to become workless, while one-quarter of respondents in workless, poor families who gained work entered in-work poverty. These findings demonstrate the limits to which work provides a route out of poverty, and points to the importance of trying to support positive transitions while minimising negative shocks faced by working poor families. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
35. Behavioural activation for depressive symptoms in adults with severe to profound intellectual disabilities: Modelling and initial feasibility study.
- Author
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Gillooly, Amanda, Dagnan, Dave, Hastings, Richard, Hatton, Chris, McMeekin, Nicola, Baines, Susie, Cooper, S.‐A., Crawford, Lucy, Gillespie, David, Miller, Jenny, and Jahoda, Andrew
- Subjects
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PILOT projects , *BEHAVIOR therapy , *RANDOMIZED controlled trials , *MENTAL depression , *DISABILITIES , *DESCRIPTIVE statistics , *RESEARCH funding , *STATISTICAL sampling , *INTELLECTUAL disabilities , *LONGITUDINAL method , *COGNITIVE therapy , *PSYCHOTHERAPY , *ADULTS - Abstract
Background: Almost no research has been published reporting on evaluations of the effectiveness of psychological interventions for people with severe to profound intellectual disabilities and depression. This paper describes the development and initial feasibility testing of an adapted Behavioural Activation therapy (BeatIt2) for this population. Method: Phase 1 of the study examined participant recruitment and willingness to be randomised in the context of a planned Randomised Controlled Trial (RCT). Phase 2 examined the feasibility of delivering the intervention. Results: Twenty adults with a severe or profound intellectual disability and clinically significant depression were recruited to Phase 1 of the study. In Phase 2, there was 100% participant retention for those recruited to the study at 6‐month follow‐up. The BeatIt2 therapy was reported to be acceptable for participants. Conclusion: COVID disruption meant that it was not possible to complete the planned feasibility RCT. The positive findings suggest that additional evaluation of BeatIt2 is warranted. [ABSTRACT FROM AUTHOR]
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- 2024
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36. Evaluation of a pilot to introduce simulated learning activities to support speech and language therapy students' clinical development.
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Ormerod, Emma and Mitchell, Claire
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PILOT projects , *ACADEMIC medical centers , *HEALTH occupations students , *RESEARCH methodology , *SIMULATION methods in education , *INTERVIEWING , *QUALITATIVE research , *ABILITY , *TRAINING , *CLINICAL competence , *DESCRIPTIVE statistics , *STUDENT attitudes , *THEMATIC analysis , *DATA analysis software , *SPEECH therapists , *HUMAN beings , *LONGITUDINAL method - Abstract
Background: Speech and language therapy (SLT) education must meet the needs of the future workforce, training enough students who are competent practitioners able to meet the workforce demands. Increasing student numbers and the impact on placement providers mean students must be equipped for learning on placement. Simulation is a way of supporting students to develop their clinical skills and decision‐making in a safe, supportive environment. Aims: To explore the perspectives of SLT students who were introduced to simulation during their undergraduate degree at a UK university as part of a pilot study. The aim of the pilot was to listen to the students' voices to begin to understand their lived experiences of simulation and to gather views on how simulation can support their clinical learning. Methods & Procedures: Focus groups and semi‐structured interviews were carried out with second‐year BSc SLT students in semester 2 following the simulated learning activities and clinical placement. Qualitative data were gathered and thematic analysis was applied to the data to identify the barriers and enablers to students' clinical learning in simulation. Outcomes & Results: A total of 11 students responded out of a cohort of 38. Three key themes were identified from the analysis: individual learning needs, facilitator skill and programme‐level organization. Conclusions & Implications: Student experience of simulation was positive. One of the key elements students found to support their clinical skills was the importance of the safe space; support for learning instead of correction led them to engage in active learning. Key barriers to simulation related to having sufficient prior knowledge, the skills of the facilitator, group size and the wider learning landscape of the programme. In response to this pilot, there are plans to continue developing this model of simulation and embed simulation across the programme, led by a sound pedagogical approach with clear preparation and planning and building the necessary infrastructure. Other SLT programmes and practice educators developing simulation as part of their programmes or placement may wish to consider some of these findings to support the use of simulation in their workplace. What this paper adds: What is already known on this subject: Simulation as a teaching methodology is widely used in medicine and nursing programmes. It is now used in various allied health professions and in some SLT programmes. There is evidence to suggest simulation increases student confidence and clinical skills without increasing the capacity on those offering clinical placements in practice. What is already known on this subject: This study offers a practical example of introducing simulation in an established undergraduate programme for SLT students. It explains the background to this innovative way of teaching clinical skills and explains why this approach could be beneficial for the future speech and language therapist. What are the clinical implications of this work?: This study gives practical examples of how simulation can work to facilitate student clinical learning and knowledge. It may offer ideas to those working in clinical practice to organize placements differently or add simulation elements to improve the student experience. Other educational establishments and placement educators may find the recommendations helpful in developing their own simulation approach. [ABSTRACT FROM AUTHOR]
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- 2024
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37. Generalized linear mixed-model (GLMM) trees: A flexible decision-tree method for multilevel and longitudinal data.
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Fokkema, Marjolein, Edbrooke-Childs, Julian, and Wolpert, Miranda
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LONGITUDINAL method ,RANDOM forest algorithms ,DECISION trees ,TREES ,TREATMENT effectiveness - Abstract
Objective: Decision-tree methods are machine-learning methods which provide results that are relatively easy to interpret and apply by human decision makers. The resulting decision trees show how baseline patient characteristics can be combined to predict treatment outcomes for individual patients, for example. This paper introduces GLMM trees, a decision-tree method for multilevel and longitudinal data. Method: To illustrate, we apply GLMM trees to a dataset of 3,256 young people (mean age 11.33, 48% girls) receiving treatment at one of several mental-health service providers in the UK. Two treatment outcomes (mental-health difficulties scores corrected for baseline) were regressed on 18 demographic, case and severity characteristics at baseline. We compared the performance of GLMM trees with that of traditional GLMMs and random forests. Results: GLMM trees yielded modest predictive accuracy, with cross-validated multiple R values of.18 and.25. Predictive accuracy did not differ significantly from that of traditional GLMMs and random forests, while GLMM trees required evaluation of a lower number of variables. Conclusion: GLMM trees provide a useful data-analytic tool for clinical prediction problems. The supplemental material provides a tutorial for replicating the GLMM tree analyses in R. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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38. Educational outcomes associated with persistent speech disorder.
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Wren, Yvonne, Pagnamenta, Emma, Peters, Tim J., Emond, Alan, Northstone, Kate, Miller, Laura L., and Roulstone, Sue
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ACADEMIC achievement evaluation ,HIGH schools ,STUTTERING ,AFFINITY groups ,ENGLISH language ,CONFIDENCE intervals ,SPEECH disorders in children ,REGRESSION analysis ,COGNITION ,LANGUAGE acquisition ,MATHEMATICS ,COMPARATIVE studies ,RESEARCH funding ,ELEMENTARY schools ,ODDS ratio ,LONGITUDINAL method ,SCIENCE - Abstract
Background: Children with persistent speech disorder (PSD) are at higher risk of difficulties with literacy, with some evidence suggesting an association with poorer educational attainment. However, studies to date have either used small clinical samples, which exclude children who have not been referred to clinical services, or relied on parent–teacher report of children's speech development. There is a need for an inclusive study to investigate the impact of PSD on educational outcomes using a population‐based sample and robust measures of speech development. Aim: Using a large prospective UK population‐based study—the Avon Longitudinal Study of Parents and Children (ALSPAC)—this study investigated: (1) how children identified with PSD at age 8 years perform on educational attainment tests at ages 10–11 and 13–14 years in comparison with children without PSD; and (2) whether children identified with PSD at age 8 years are more likely to receive a label of special educational needs (SEN) in secondary school. Methods & Procedures: We examined the data for 263 children with PSD and 6399 controls who had speech assessed at age 8 years in a research clinic. Educational attainment was measured using data from English school standard attainment tests. Data on SEN categorization were obtained between 11 and 13 years of age. Children with PSD and controls were compared using regression analyses adjusted for biological sex, maternal age, verbal, performance and full‐scale IQ. Outcomes & Results: Children with PSD at age 8 years were more likely to achieve lower attainment scores at ages 10–11 years in English and mathematics and across all three subjects of English, mathematics and science at ages 13–14 years after controlling for biological sex and maternal education; score below target levels for English at both time points after controlling for verbal IQ, and at ages 13–14 years after controlling for performance IQ; and receive a label of SEN (typically for the category of cognition and learning needs or communication and interaction needs) in secondary school. Conclusions & Implications: PSD identified at age 8 years is associated with poor educational attainment at ages 10–11 and 13–14 years in the core subjects of English, mathematics and science. Children with PSD at age 8 years are more likely to be identified with SEN at ages 11–13 years, particularly cognition and learning needs, and communication and interaction needs. We need to be aware of the potential for the long‐term impact of PSD on educational attainment in providing appropriate and effective support throughout school. What this paper addsWhat is already known on the subjectSpeech‐sound disorder is associated with reading and spelling difficulties, with some evidence to suggest that PSD is associated with a higher risk of literacy difficulties. Limited evidence also suggests that speech‐sound disorder may be associated with poorer educational attainment. However, studies to date have used small clinical samples or parent–teacher report of speech development and there is a need to determine whether the association is observed in larger and more inclusive population‐based samples.What this paper adds to existing knowledgeThis prospective, longitudinal study of a large community‐based sample of English children has shown that PSD is associated with poorer educational attainment at the end of primary school and at ages 13–14 years. Children with PSD are also more likely to be identified as having SEN in secondary school, especially communication and interaction needs but also including cognition and learning needs.What are the potential or actual clinical implications of this work?Understanding the long‐term implications of PSD on educational attainment highlights the importance of ongoing monitoring and support to enable children to reach their potential throughout primary and secondary school. The identification of children with a history of PSD during transition to secondary school will enable effective support to be put in place. The intervention for children with PSD should involve close collaboration between speech and language therapists and education professionals. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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39. The speech, language and communication needs of rough sleepers in London.
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Andrews, Leigh and Botting, Nicola
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AGE distribution ,COMMUNICATION ,COMMUNICATIVE disorders ,STATISTICAL correlation ,DOCUMENTATION ,HOMELESS persons ,LONGITUDINAL method ,MATHEMATICAL statistics ,MENTAL health ,NEEDS assessment ,REGRESSION analysis ,RISK assessment ,SEX distribution ,SPEECH evaluation ,SPEECH disorders ,PARAMETERS (Statistics) ,PSYCHOSOCIAL factors ,QUANTITATIVE research ,SECONDARY analysis ,MEDICAL coding ,DESCRIPTIVE statistics - Abstract
Background: There is very little awareness of the speech, language and communication needs (SLCN) of rough sleepers. The small amount of documentation that does exist involves a wider group of homeless adults (not just rough sleepers), and reports that communication needs are an area of concern. Aims: To investigate: (1) the reported prevalence of SLCN amongst UK nationals recorded on the Combined Homeless and Information Network (CHAIN) as sleeping on the streets of London; (2) whether rough sleepers with reported SLCN differ from those without; and (3) what factors best predict patterns of rough sleeping and accommodation stays. Methods & Procedures: A data set of 513 participants was provided by CHAIN, which contained information relating to all new rough sleepers and people with long‐term histories of rough sleeping (UK nationals only) recorded by street outreach teams in London between 1 April and 30 June 2013. Also included was data about UK nationals provided with support by the Homelessness and Brain Injury Project. The data set contained information including basic demographics, communication skills, health and social care needs, and institutional background and extended to a 5‐year period. Outcomes & Results: (1) SLCN data were often not recorded with data available for only 62% of individuals on the CHAIN databases. However, for those with SLCN data, the prevalence of SLCN was significantly higher than for the general population (17.1%; p < 0.001). (2) There were no significant differences between those with and without SLCN on additional risk factors, quarters rough sleeping, accommodation stays or staff‐recorded alerts. (3) There was a positive correlation between rough sleeping and additional risk factors for those with SLCN (r = 0.32, p < 0.001) and for those without (r = 0.25, p < 0.001). Regression analysis indicated that additional risk factors were more predictive than SLCN in explaining the number of quarters rough sleeping and accommodation stays. Conclusions & Implications: SLCN are highly prevalent amongst rough sleepers and significantly greater than for the UK general population. SLCN are not clearly related to rough sleeping behaviour, but the presence of additional risk factors is highly significant in this regard. Homelessness organizations should provide training for staff in SLCN in order to promote better recording of SLCN, inclusive communication and appropriate support to people who are homeless. Further research is also needed to understand better the communication needs of rough sleepers. What this study addsWhat is already known on the subjectThere is very little literature concerning the SLCN of rough sleepers, but that which exists suggests that communication needs are an area of concern. There is relatively little awareness of SLCN in practice in this field.What this paper adds to existing knowledgeThis study is the first to provide information on SLCN recording in this population. It reports large‐scale prevalence data on SLCN in rough sleepers, showing a significantly higher risk in this group. Unexpectedly, SLCN did not clearly relate to patterns of rough sleeping and accommodation, but this may be due to the relatively crude data available in routine practice.What are the potential or actual clinical implications of this work?Wider awareness and training on SLCN in the homelessness sector is needed coupled with more systematic and objective assessment of communication in rough sleepers. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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40. Guilt, tears and burnout—Impact of UK care home restrictions on the mental well‐being of staff, families and residents.
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Giebel, Clarissa, Hanna, Kerry, Marlow, Paul, Cannon, Jacqueline, Tetlow, Hilary, Shenton, Justine, Faulkner, Thomas, Rajagopal, Manoj, Mason, Stephen, and Gabbay, Mark
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WELL-being ,IMMUNIZATION ,NURSING home patients ,RESEARCH methodology ,COVID-19 vaccines ,MENTAL health ,FAMILIES ,INTERVIEWING ,QUALITATIVE research ,PSYCHOLOGY of caregivers ,PSYCHOSOCIAL factors ,DESCRIPTIVE statistics ,STAY-at-home orders ,THEMATIC analysis ,DATA analysis software ,COVID-19 testing ,COVID-19 pandemic ,NURSING home employees ,LONGITUDINAL method - Abstract
Aims: The aim of this study was to explore the impact of the pandemic on the emotional and mental well‐being of family carers, care home staff and residents, in light of changing restrictions, increased testing and vaccination rollout in the UK. Design Longitudinal, qualitative semi‐structured interview study. Methods: Remote semi‐structured interviews were conducted with family carers of care home residents with dementia and care home staff from different care homes across the UK. Baseline and follow‐up interviews were conducted in October/November 2020 and March 2021, respectively. Data were analysed using inductive thematic analysis involving members of the public with caring experiences. Results: In all, 42 family carers and care home staff participated at baseline, with 20 family carers and staff followed up. We identified four themes: (1) Developing anger and frustration; (2) Impact on relationships; (3) Stress and burnout; and (4) Behavioural changes, and perceived impact on residents. The mental health of everyone involved, including family carers, care home staff and residents, has been negatively affected, and relationships between family carers and staff have been severely strained. There was a general lack of adequate mental health support, with little relief. Conclusions: The pandemic has had a detrimental impact on the lives of those surrounding care homes—from residents and staff to family carers. Consideration should be given on how to best support the mental health needs of all three groups, by providing adequate easily accessible mental health care for all. This should also focus on rebuilding the relationships between family carers and care home staff. Impact This is the first paper to highlight the effects of the long‐lasting and miscommunicated restrictions on residents, carers and care home staff, and highlight the urgent need for continued mental health support. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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41. Personality and early susceptibility to COVID‐19 in the United Kingdom.
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PERSONALITY ,COVID-19 ,RISK assessment ,SEX distribution ,HEALTH behavior ,HEALTH attitudes ,DISEASE susceptibility ,CONSCIENCE ,SOCIAL distancing ,LONGITUDINAL method - Abstract
This paper takes advantage of a unique dataset with a prospectively longitudinal, nationally representative sample (n = 5,178) that began in 1958 and has information on COVID‐19 health status in 2020 to examine the effect of Big Five personality traits on compliance with social distancing requirements and contraction of COVID‐19. The results show some consistency with epidemiological recommendations (Conscientious individuals were more likely to maintain social distance and less likely to contract COVID‐19; men were less likely to comply and more likely to contract) but more inconsistency (Agreeable individuals were more likely to comply with social distancing requirements yet more likely to contract COVID‐19; Open and Neurotic individuals were no less likely to comply yet more likely to contract COVID‐19). The results highlight the importance of Big Five personality factors for behaviour in the global pandemic and may call into question the universal effectiveness of social distancing requirements for all individuals. However, the small number of confirmed cases of COVID‐19 during the early months of the pandemic requires caution in interpretation of the results. Please refer to the Supplementary Material section to find this article's Community and Social Impact Statement. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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42. Recognizing, reporting and reducing the data curation debt of cohort studies.
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Butters, Oliver W, Wilson, Rebecca C, and Burton, Paul R
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DATA curation ,COHORT analysis ,DEBT ,DATA management ,SOFTWARE engineering ,COMPUTER software ,RESEARCH ,RESEARCH methodology ,MEDICAL cooperation ,EVALUATION research ,COMPARATIVE studies ,RESEARCH funding ,LONGITUDINAL method - Abstract
Good data curation is integral to cohort studies, but it is not always done to a level necessary to ensure the longevity of the data a study holds. In this opinion paper, we introduce the concept of data curation debt-the data curation equivalent to the software engineering principle of technical debt. Using the context of UK cohort studies, we define data curation debt-describing examples and their potential impact. We highlight that accruing this debt can make it more difficult to use the data in the future. Additionally, the long-running nature of cohort studies means that interest is accrued on this debt and compounded over time-increasing the impact a debt could have on a study and its stakeholders. Primary causes of data curation debt are discussed across three categories: longevity of hardware, software and data formats; funding; and skills shortages. Based on cross-domain best practice, strategies to reduce the debt and preventive measures are proposed-with importance given to the recognition and transparent reporting of data curation debt. Describing the debt in this way, we encapsulate a multi-faceted issue in simple terms understandable by all cohort study stakeholders. Data curation debt is not only confined to the UK, but is an issue the international community must be aware of and address. This paper aims to stimulate a discussion between cohort studies and their stakeholders on how to address the issue of data curation debt. If data curation debt is left unchecked it could become impossible to use highly valued cohort study data, and ultimately represents an existential risk to studies themselves. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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43. Secular trends in the initiation of therapy in secondary fracture prevention in Europe: a multi-national cohort study including data from Denmark, Catalonia, and the United Kingdom.
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Skjødt, M. K., Khalid, S., Ernst, M., Rubin, K. H., Martinez-Laguna, D., Delmestri, A., Javaid, M. K., Cooper, C., Libanati, C., Toth, E., Abrahamsen, B., and Prieto-Alhambra, D.
- Subjects
BONE fracture prevention ,OSTEOPOROSIS prevention ,DIPHOSPHONATES ,HEALTH services accessibility ,CATALANS ,POPULATION geography ,DISEASE relapse ,OSTEOPOROSIS ,MEDICAL care research ,SEX distribution ,DRUG therapy ,DESCRIPTIVE statistics ,LONGITUDINAL method - Abstract
Summary: This paper demonstrates a large post-fracture anti-osteoporosis treatment gap in the period 2005 to 2015. The gap was stable in Denmark at around 88–90%, increased in Catalonia from 80 to 88%, and started to increase in the UK towards the end of our study. Improved post-fracture care is needed. Introduction: Patients experiencing a fragility fracture are at high risk of subsequent fractures, particularly within the first 2 years after the fracture. Previous studies have demonstrated that only a small proportion of fracture patients initiate therapy with an anti-osteoporotic medication (AOM), despite the proven fracture risk reduction of such therapies. The aim of this paper is to evaluate the changes in this post-fracture treatment gap across three different countries from 2005 to 2015. Methods: This analysis, which is part of a multinational cohort study, included men and women, aged 50 years or older, sustaining a first incident fragility fracture. Using routinely collected patient data from three administrative health databases covering Catalonia, Denmark, and the United Kingdom, we estimated the treatment gap as the proportion of patients not treated with AOM within 1 year of their first incident fracture. Results: A total of 648,369 fracture patients were included. Mean age 70.2–78.9 years; 22.2–31.7% were men. In Denmark, the treatment gap was stable at approximately 88–90% throughout the 2005 to 2015 time period. In Catalonia, the treatment gap increased from 80 to 88%. In the UK, an initially decreasing treatment gap—though never smaller than 63%—was replaced by an increasing gap towards the end of our study. The gap was more pronounced in men than in women. Conclusion: Despite repeated calls for improved secondary fracture prevention, an unacceptably large treatment gap remains, with time trends indicating that the problem may be getting worse in recent years. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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44. The nature and culture of social work with children and families in long‐term casework: Findings from a qualitative longitudinal study.
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Ferguson, Harry, Warwick, Lisa, Cooner, Tarsem Singh, Leigh, Jadwiga, Beddoe, Liz, Disney, Tom, and Plumridge, Gillian
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CHILD welfare ,CUSTOMER satisfaction ,CORPORATE culture ,LONGITUDINAL method ,MEDICAL personnel ,RESEARCH funding ,SOCIAL case work ,SOCIAL services ,SOCIAL workers ,ETHNOLOGY research ,QUALITATIVE research ,PATIENTS' families ,SOCIAL worker attitudes - Abstract
Social work in the United Kingdom is preoccupied with what social workers cannot do due to having limited time to spend with service users. Yet remarkably little research has examined what social workers actually do, especially in long‐term relationships. This paper draws from an ethnographic study of two social work departments in England that spent 15 months observing practice and organizational life. Our findings show that social work some of the time has a significant amount of involvement with some service users and the dominant view that relationship‐based practice is rarely achieved is in need of some revision. However, families at one research site received a much more substantial, reliable overall service due to the additional input of family support workers and having a stable workforce who had their own desks and were co‐located with managers in small team offices. This generated a much more supportive, reflective culture for social workers and service users than at the second site, a large open plan "hot‐desking" office. Drawing on relational, systemic, and complexity theories, the paper shows how the nature of what social workers do and culture of practice are shaped by the interaction between available services, office designs, and practitioners', managers', and service users' experiences of relating together. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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45. Epidemiology of loneliness in a cohort of UK mental health community crisis service users.
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Wang, Jingyi, Lloyd-Evans, Brynmor, Marston, Louise, Ma, Ruimin, Mann, Farhana, Solmi, Francesca, and Johnson, Sonia
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COMMUNITY mental health services ,LONELINESS ,MENTAL health services ,MENTAL health personnel ,PSYCHIATRIC research ,MENTAL illness ,PSYCHIATRIC epidemiology ,CROSS-sectional method ,MENTAL health ,LONGITUDINAL method ,PSYCHOLOGICAL factors - Abstract
Purpose: Loneliness is an important issue for mental health service users. However, it has not been a particularly prominent focus of recent mental health research. This paper aimed to explore the severity of loneliness among people leaving mental health community crisis services, and to identify factors associated with loneliness.Methods: A total of 399 participants experiencing mental health crises recruited for a research trial from community crisis services were included in this cross-sectional study. They completed the eight-item measure of the University of California at Los Angeles Loneliness Scale and a set of instruments assessing socio-demographic, psychosocial, and psychiatric variables.Results: Severity of loneliness was high among people leaving community crisis services. Longer years since first contact with mental health services (2-10 years, coefficient = 1.83, 95% CI 0.49-3.16; more than 10 years, coefficient = 1.91, 95% CI 0.46-3.36) and more severe affective symptoms (coefficient = 0.32, 95% CI 0.23-0.40) were associated with greater loneliness, whereas bigger social network size (coefficient = - 0.56, 95% CI - 0.76 to - 0.36) and greater social capital (coefficient = - 0.16, 95% CI - 0.31 to - 0.003) were associated with less severe loneliness.Conclusions: This paper supports a view that people experiencing mental health crises often report relatively severe loneliness, and that loneliness tends to become more severe during the course of illness. A greater awareness of loneliness among mental health professionals may be beneficial. Loneliness is a potential focus of the development of interventions to improve the lives and outcomes of people with significant mental health problems. [ABSTRACT FROM AUTHOR]- Published
- 2020
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46. A longitudinal analysis of ethnic unemployment differentials in the UK.
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Longhi, Simonetta
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EMPLOYMENT of minorities ,OCCUPATIONAL segregation ,LONGITUDINAL method ,SOCIAL integration - Abstract
As in many developed countries, in the UK the unemployment rate of ethnic minorities is higher than the unemployment rate of the white British majority. These differences may be due to a higher probability of ethnic minorities entering unemployment by losing a job, or to a lower probability of exiting unemployment by finding a job. Using Understanding Society, the UK Household Longitudinal Study, this paper analyses what individual and job characteristics contribute to job loss, what contribute to job finding, and to what extent ethnic unemployment differentials can be explained by such characteristics. For both men and women the results show no relevant ethnic differences in the probability to transition from a paid job into unemployment. Only Indian UK born women seem more likely to transition than white British majority women, while for other groups the small differences are in favour of ethnic minorities. Segregation in occupations characterised by low wages and less stable jobs does not seem to contribute to the higher unemployment rate of ethnic minorities. The main determinant of ethnic unemployment differentials seems to be the longer duration of unemployment for ethnic minorities, which, however, remains largely unexplained after the inclusion of individual and household characteristics. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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47. Towards more flexible approach to governance to allow innovation: the case of UK infrastructure.
- Author
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Sergeeva, Natalya
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SOCIAL impact ,MANAGEMENT philosophy ,SOLE proprietorship ,LONGITUDINAL method ,PROJECT management - Abstract
Purpose: The purpose of this paper is to explore the governance in project organising where owner organisations interface with the temporary project organisations that they initiate. This interface between the two types of organisation represents an opportunity for innovation. Design/methodology/approach: In total, 25 narrative interviews were conducted with managers who work in permanent owner and operator organisations and temporary project organisations. It is combined with the analysis of textual narratives represented in institutional reports (APM, IPA, PMI). Findings: The findings show that it is the flexible and balanced approach to governance that allows innovation to emerge. Strong capable innovative owners play crucial role in creating the corporate governance framework to allow innovation in projects. Research limitations/implications: The current research presents narratives voiced by senior managers in permanent owner and operator organisations and temporary project organisations. The ways governance can be adjusted through the life cycle of major programmes require further a more longitudinal research investigation. Practical implications: The practical benefits for the project management community is a better understanding of corporate governance in owner and operator organisations, the role of leadership and their narratives in governing processes, and the impact of strong governance on organisational performance and project deliverables. Social implications: Senior managers socially constructed the meaning of governance through narratives. The author learn about practices of governance through the perspectives of those involved in decision making. Originality/value: This paper contributes to project management theory in two ways: it provides insight into the practice of corporate governance; and it develops the application of narrative enquiry to project management research. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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48. Characteristics of pain and their relationship to disease activity in UK patients with Behçet's syndrome: a prospective cohort study.
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Plant, K, Goebel, A, Nair, J, Moots, R, Chadwick, L, and Goodson, N
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- *
COHORT analysis , *PAIN measurement , *BRIEF Pain Inventory , *LONGITUDINAL method , *MUCOCUTANEOUS lymph node syndrome , *FIBROMYALGIA - Abstract
Background: Behçet's syndrome (BS) is a rare multi-systemic vasculitis of unknown aetiology. Fibromyalgia syndrome (FMS) is more prevalent in rheumatological conditions such-as BS, than the general population. However, there is limited research into the aetiology and characteristics of pain in BS. Objectives: To describe the pain characteristics and incidence of FMS in people with BS and investigate their relationship with BS disease activity. Methods: A cohort study of BS patients attending the Liverpool Behçet's Centre between February 2017 and March 2019. BS was defined using the International Study Group Criteria. BS severity was assessed using the Behçet's Disease Current Activity Form. FMS was determined from consultant diagnosis. Assessments of pain included: Pain Visual Analogue Scale (PVAS), Pain Mannequin, Brief Pain Inventory, EQ-5D-3L and Short Form McGill. Pain and FMS prevalence were compared between high and low disease activity. Results: 90% reported moderate-severe pain with a median PVAS score of 68/100 [38, 81]. 35.6% of participants had FMS and 46.5% experienced generalized pain. 76% of participants with high disease activity reported severe pain, compared to 39.1% with low disease activity (p =.003). Pain was more generalised in high disease activity (72%) compared to low disease activity (37.7%) (p =.003). FMS was more prevalent in the high disease activity group (52%) than the low disease activity group (29%) (p =.04). Conclusions: This is the first study to explore pain in participants with BS in the United Kingdom. The majority of BS patients experience moderate-severe widespread pain. Severe widespread pain is more prevalent in those with high disease activity. We have demonstrated a relationship between high disease activity, worse pain intensity, and FMS. This paper contributes to the understanding of two conditions which remain to be fully understood, FMS and BS, and generates new hypotheses to describe the interplay between. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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49. Assessment PLUS: A guided self‐help pilot within the psychological therapies teams.
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Casella, Tania, Carrapico, Rachel, Whyte, Rachel, Hanson, Rachel, Stefanova, Boyana, Campbell, Danielle, Fraser, Fidan, Currie, Kellyann, Williams, Mhairi, and Quinn, Phil
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MENTAL illness treatment , *TEAMS in the workplace , *PROFESSIONAL practice , *CLINICAL trials , *RESEARCH methodology , *PATIENT satisfaction , *EVIDENCE-based medicine , *SEVERITY of illness index , *PATIENTS' attitudes , *FUNCTIONAL assessment , *MEDICAL referrals , *DESCRIPTIVE statistics , *MEDICAL appointments , *THEMATIC analysis , *MENTAL illness , *COGNITIVE therapy , *HEALTH self-care , *DISCHARGE planning , *LONGITUDINAL method , *ADULTS - Abstract
Objective: This paper presents the findings of a study evaluating the effectiveness, accessibility, sustainability and patient satisfaction of the Assessment PLUS model. This model aimed to reduce patients' symptomology, improve their functioning and alleviate the demand on Psychological Therapies Team (PTT) staff, particularly in response to the challenges posed by the COVID‐19 pandemic. Methods: The intervention was offered to 55 patients with mild‐to‐moderate mental health conditions across three localities in Lanarkshire, UK, of whom only 25 completed the sessions. Clinical outcome measure scores, patients' feedback, wait times, discharge, returning patients and re‐referral rates were analysed using a mixed methods approach. Results: The results of the statistical analysis highlight a statistically significant improvement (p < 0.001) in patients' presentations and results of the thematic analysis reveal that almost all patients found the intervention helpful and returned overall positive feedback. On completing the intervention, less than a third of patients returned to the waiting list, while more than half were discharged completely. At the 6‐month follow‐up, those returning to the PTT waitlists (n = 12) had between 6 and 8 sessions on average, while over the 80% of those discharged from A+ did not require further psychological input. The average wait time across the full sample was 6 weeks. Conclusions: In summary, the results of the mixed methods analysis demonstrate a significant improvement in patients' presentations after completing the A+ intervention. The majority of patients found the intervention helpful and provided positive feedback. Moreover, a significant proportion of patients were discharged completely, and those who returned to the PTT waitlists required fewer sessions on average. The average wait time for the full sample was just over 6 weeks. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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50. Type 1 diabetes management and hospitalisation in the over 25's at an Australian outer urban diabetes clinic.
- Author
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Patel, Shivani, Farkash, Celine, and Simmons, David
- Subjects
GLYCOSYLATED hemoglobin ,ENDOCRINOLOGISTS ,PERIPHERAL neuropathy ,HOSPITAL emergency services ,MYOCARDIAL ischemia ,TYPE 1 diabetes ,RETROSPECTIVE studies ,ACQUISITION of data ,URBAN hospitals ,BENCHMARKING (Management) ,TREATMENT effectiveness ,HOSPITAL care ,MEDICAL referrals ,MEDICAL records ,DESCRIPTIVE statistics ,BODY mass index ,DISEASE management ,OUTPATIENT services in hospitals ,LONGITUDINAL method ,ADULTS - Abstract
Aims: To describe clinic management and referral pathways among adults with type 1 diabetes (T1D) aged > 25 years attending a public outpatient diabetes service. Methods: Retrospective cohort study of people with T1D aged > 25 years seen by endocrinologists in one Australian urban public outpatient in 2017. Electronic and paper medical records were reviewed using a dataset adapted from the UK National Institute for Health and Care Excellence 2015 guidelines. Results: Among the 111 people with T1D (mean age 41 ± 13 years, 55% men, mean body mass index 27.1 ± 5.6 kg/m
2 ), mean HbA1c was 8.1 ± 1.9% (66 ± 19 mmol/mol) (lower than the Australian National Diabetes Audit: 8.5%/69 mmol/mol) with 25.5% meeting the guideline target of < 53 mmol/mol (7.0%). Most people had seen a diabetes educator (80.2%) or dietitian (73.0%) and had complication screening. Complication rates were high (nephropathy 20.4%, retinopathy 27.4%, peripheral neuropathy 30.1%, ischaemic heart disease/acute infarction 10.5%). Overall, 27% of referrals occurred following an acute inpatient admission or emergency department presentation and 13% for management of diabetes in pregnancy. Conclusions: A high proportion of people with T1D accessed public specialist care either during pregnancy or after a largely avoidable acute glycaemia-related hospital presentation. Subsequent care was in line with national specialist standards. This area has a "wait for acute event" rather than "complication prevention" model of care, associated with under-referral to the local multidisciplinary specialist service. Understanding how widespread this model of care is, and ways to reduce its prevalence, are urgently required. [ABSTRACT FROM AUTHOR]- Published
- 2022
- Full Text
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