9,176 results
Search Results
2. Critically appraised paper: Hand-arm bimanual intensive therapy including lower extremities (HABIT-ILE) improves bi-manual performance and gross motor function in pre-school children with unilateral cerebral palsy [synopsis].
- Author
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Milne N
- Subjects
- Humans, Child, Preschool, Child, Upper Extremity, Hand, Lower Extremity, Habits, Cerebral Palsy therapy
- Published
- 2024
- Full Text
- View/download PDF
3. The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy.
- Author
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Barton C, Buckley J, Samia P, Williams F, Taylor SR, and Lindoewood R
- Subjects
- Child, Dimaprit analogs & derivatives, Humans, Kenya, Pilot Projects, Technology, Cerebral Palsy
- Abstract
Purpose: Appropriate paper-based technology (APT) is used to provide postural support for children with cerebral palsy (CP) in low-resourced settings. This pilot study aimed to evaluate the impact of APT on the children's and families' lives., Materials and Methods: A convenience sample of children with CP and their families participated. Inclusion was based on the Gross Motor Function Classification System levels IV and V. APT seating or standing frames were provided for six months. A mixed methods impact of APT devices on the children and families included the Family Impact Assistive Technology Scale for Adaptive Seating (FIATS-AS); the Child Engagement in Daily Life (CEDL) questionnaire; and a qualitative assessment from diary/log and semi-structured interviews., Results: Ten children (median 3 years, range 9 months to 7 years). Baseline to follow-up median (IQR) FIATS-AS were: 22.7 (9.3) and 30.3 (10.2), respectively ( p =.002). Similarly mean (SD) CEDL scores for "frequency" changed from 30.5 (13.2) to 42.08 (5.96) ( p =.021) and children's enjoyment scores from 2.23 (0.93) to 2.91 (0.79) ( p =.019). CEDL questionnaire for self-care was not discriminatory; seven families scored zero at both baseline and 6 months. Qualitative interviews revealed three key findings; that APT improved functional ability, involvement/interaction in daily-life situations, and a reduced family burden of care., Conclusions: APT devices used in Kenyan children with non-ambulant CP had a meaningful positive effect on both the children's and their families' lives.Implications for rehabilitationAssistive devices are often unobtainable for children with cerebral palsy (CP) in low-income countries.APT is a low cost and sustainable solution to make seating and standing devices for disabled children in Kenya.The regular use of a postural support device enhanced the children's motor skills, ability to function and participate in everyday activities, reduced the burden of care for the families and promoted the children's social interaction.The postural support devices were highly valued and utilised by the children and families in this study.
- Published
- 2022
- Full Text
- View/download PDF
4. Thinking outside the cardboard box: insights from a course to train rural Kenyans to make postural support devices from appropriate paper-based technology (APT) for children with cerebral palsy.
- Author
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Lindoewood R, Bracegirdle C, Samia P, Westmacott J, and Lindoewood P
- Subjects
- Adult, Child, Humans, Kenya, Middle Aged, Paper, Rural Population, Young Adult, Cerebral Palsy rehabilitation, Disabled Children rehabilitation, Education methods, Equipment Design, Posture, Self-Help Devices
- Abstract
Purpose: Suitable assistive devices for children with cerebral palsy (CP) in low-income countries are often unavailable. Devices made from APT are in use in several countries but are unevaluated. Materials and methods: A 2-week training course focused on APT principles, measuring children and constructing postural support devices. Twenty-three Kenyans attended the course. The host organization identified four local children with CP who attended for assessment and measurement. Participants made the devices and children returned for fitting and necessary adjustment. Completion of post-course forms, action plans, visits after 14 months and contact 3 years later comprised the evaluation. Results: All participants found the course beneficial and valued the networking opportunity provided. They appreciated the practicality and utility of locally manufactured cost effective devices. The trainees planned further implementation to provide assistive devices for children with CP in their localities. Follow-up visits revealed several challenges to local ongoing production. Conclusions: Training people in low-income communities to make bespoke assistive devices for children with CP is straightforward, and the course was positively evaluated. However, maintaining device production is limited without local group support and stable leadership, ideally as part of an existing programme.Implications for rehabilitationAssistive devices are often unobtainable for children with cerebral palsy (CP) in low-income countries.APT is a cost effective way of fulfilling this need and it is relatively straightforward to train people who care for or work with those with CP to make devices using APT.Feedback from APT training suggests participants find the technique a practical way of producing assistive equipment for individuals with CP in their community.Maintaining device production requires support, leadership and increased public awareness of the use of APT at a local level.
- Published
- 2020
- Full Text
- View/download PDF
5. Critically appraised paper: A task-specific sit-to-stand training program for children with cerebral palsy improves mobility and self-care function [synopsis].
- Author
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Spittle A
- Subjects
- Child, Humans, Self Care, Cerebral Palsy, Resistance Training
- Published
- 2022
- Full Text
- View/download PDF
6. Critically appraised paper: A task-specific sit-to-stand training program for children with cerebral palsy improves mobility and self-care function [commentary].
- Author
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Toovey R
- Subjects
- Child, Humans, Self Care, Cerebral Palsy, Resistance Training
- Published
- 2022
- Full Text
- View/download PDF
7. Evidence-based position paper on the professional practice of Physical and Rehabilitation Medicine for persons with cerebral palsy. The European PRM position (UEMS PRM section).
- Author
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Hornáček K, Kujawa J, Varela Donoso E, Dincer F, Ilieva E, Takáč P, Petronic Markovic I, Votava J, Vetra A, Nikolic D, Christodoulou N, Zampolini M, and Kiekens C
- Subjects
- Europe, Humans, Professional Practice, Cerebral Palsy, Physical and Rehabilitation Medicine
- Abstract
Cerebral palsy (CP) is a group of the most common developmental disorders affecting movement and posture of the body, causing activity limitations and participation restrictions. The motor disorders of persons with CP are often accompanied by disturbances of sensation, cognition, communication and perception. The symptoms of CP are very diverse and persons with CP are usually presented with a mixed type of symptoms. The non-progressive disturbances can be attributed to disorders that were developed during pregnancy, birth and/or infant stage. The aim of this study was to improve physicians' professional practice of Physical and Rehabilitation Medicine for persons with cerebral palsy in order to improve their functionality, social and community integration, and to reduce activity limitations and/or participation restrictions. A systematic review of the literature including an 18-year period and consensus procedure by means of a Delphi process was performed and involved the delegates of all European countries represented in the Union of European Medical Specialists Physical and Rehabilitation Medicine (UEMS PRM) Section. As the result of a Consensus Delphi procedure, 74 recommendations are presented together with the systematic literature review. The PRM physician's role for persons with cerebral palsy is to lead and coordinate the multiprofessional team, working in an interdisciplinary way. They should propose and manage the complex but individual PRM program developed in conjunction with other health professionals, medical specialists and importantly in agreement with the patient, their family and care giver. This should be, according to the specific medical diagnosis to improve patients' health, functioning, social and education status, considering all impairments, comorbidities and complications, activity limitations and participation restrictions. This evidence-based position paper is representing the official position of The European Union through the UEMS PRM Section and designates the professional role of PRM physicians in persons with cerebral palsy.
- Published
- 2021
- Full Text
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8. A First Step Towards an Ecosystem Meta-model for Human-Centered Design in Case of Disabled Users
- Author
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Kolski, Christophe, Vigouroux, Nadine, Guerrier, Yohan, Vella, Frédéric, Guffroy, Marine, Goos, Gerhard, Series Editor, Hartmanis, Juris, Founding Editor, van Leeuwen, Jan, Series Editor, Hutchison, David, Editorial Board Member, Kanade, Takeo, Editorial Board Member, Kittler, Josef, Editorial Board Member, Kleinberg, Jon M., Editorial Board Member, Kobsa, Alfred, Series Editor, Mattern, Friedemann, Editorial Board Member, Mitchell, John C., Editorial Board Member, Naor, Moni, Editorial Board Member, Nierstrasz, Oscar, Series Editor, Pandu Rangan, C., Editorial Board Member, Sudan, Madhu, Series Editor, Terzopoulos, Demetri, Editorial Board Member, Tygar, Doug, Editorial Board Member, Deshpande, R.D., Series Editor, Vardi, Moshe Y, Series Editor, Bertino, Elisa, Editorial Board Member, Gao, Wen, Editorial Board Member, Steffen, Bernhard, Editorial Board Member, Yung, Moti, Editorial Board Member, Woeginger, Gerhard, Editorial Board Member, Harrison, Michael, editor, Martinie, Célia, editor, Micallef, Nicholas, editor, Palanque, Philippe, editor, Schmidt, Albrecht, editor, Winckler, Marco, editor, Yigitbas, Enes, editor, and Zaina, Luciana, editor
- Published
- 2024
- Full Text
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9. Critically appraised paper: A program of functional electrical stimulation cycling, goal-directed training and adapted cycling improves gross motor function in children with cerebral palsy [commentary].
- Author
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Gibson N
- Subjects
- Child, Electric Stimulation, Exercise Therapy, Goals, Humans, Motor Skills, Cerebral Palsy
- Published
- 2021
- Full Text
- View/download PDF
10. Critically appraised paper: A program of functional electrical stimulation cycling, goal-directed training and adapted cycling improves gross motor function in children with cerebral palsy [synopsis].
- Author
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Spittle A
- Subjects
- Child, Electric Stimulation, Exercise Therapy, Goals, Humans, Motor Skills, Cerebral Palsy therapy
- Published
- 2021
- Full Text
- View/download PDF
11. Critically appraised paper: Participation-focused therapy for children with cerebral palsy improves perception of leisure-time physical activity goal performance, satisfaction and confidence [commentary].
- Author
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Verschuren O
- Subjects
- Child, Exercise, Goals, Humans, Leisure Activities, Personal Satisfaction, Cerebral Palsy
- Published
- 2020
- Full Text
- View/download PDF
12. Critically appraised paper: Participation-focused therapy for children with cerebral palsy improves perception of leisure-time physical activity goal performance, satisfaction and confidence [synopsis].
- Author
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Spittle A
- Subjects
- Child, Exercise, Goals, Humans, Leisure Activities, Personal Satisfaction, Cerebral Palsy
- Published
- 2020
- Full Text
- View/download PDF
13. ESMAC BEST PAPER 2017: Using machine learning to overcome challenges in GMFCS level assignment.
- Author
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Schwartz MH and Munger ME
- Subjects
- Adolescent, Child, Child, Preschool, Disability Evaluation, Female, Humans, Male, Motor Skills, Retrospective Studies, Activities of Daily Living classification, Cerebral Palsy classification, Machine Learning, Surveys and Questionnaires
- Abstract
We used the random forest classifier to predict Gross Motor Function Classification System (GMFCS) levels I-IV from patient reported abilities recorded on the Gillette Functional Assessment Questionnaire (FAQ). The classifier exhibited outstanding accuracy across GMFCS levels I-IV, with 83%-91% true positive rate (TPR), area under the receiver operation characteristic (ROC) curve greater than 0.96 for all levels, and misclassification by more than one level only occurring 1.2% of the time. This new approach to GMFCS level assignment overcomes several difficulties with the current method: (i) it is based on a broad spectrum of functional abilities, (ii) it resolves functional ability profiles that conflict with existing GMFCS level definitions, (iii) it is based entirely on self-reported abilities, and (iv) it removes complex age dependence. Further work is needed to examine inter-center differences in classifier performance-which would most likely reflect interpretive differences in GMFCS level definitions between centers., (Copyright © 2018 Elsevier B.V. All rights reserved.)
- Published
- 2018
- Full Text
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14. FNIRS based study of brain network characteristics in children with cerebral palsy during bilateral lower limb movement.
- Author
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Xie P, Nie Z, Zhang T, Xu G, Sun A, Chen T, and Lv Y
- Subjects
- Humans, Child, Male, Female, Brain diagnostic imaging, Brain physiopathology, Nerve Net physiopathology, Nerve Net diagnostic imaging, Cerebral Palsy physiopathology, Cerebral Palsy diagnostic imaging, Spectroscopy, Near-Infrared methods, Lower Extremity physiopathology, Lower Extremity diagnostic imaging, Movement
- Abstract
Background: Motor dysfunctions in children with cerebral palsy (CP) are caused by nonprogressive brain damage. Understanding the functional characteristics of the brain is important for rehabilitation., Purpose: This paper aimed to study the brain networks of children with CP during bilateral lower limb movement using functional near-infrared spectroscopy (fNIRS) and to explore effective fNIRS indices for reflecting functional brain activity., Methods: Using fNIRS, cerebral oxygenation signals in the bilateral prefrontal cortex (LPFC/RPFC) and motor cortex (LMC/RMC) were recorded from fifteen children with spastic CP and seventeen children with typical development (CTDs) in the resting state and during bilateral lower limb movement. Functional connectivity matrices based on phase-locking values (PLVs) were calculated using Hilbert transformation, and binary networks were constructed at different sparsity levels. Network metrics such as the clustering coefficient, global efficiency, local efficiency, and transitivity were calculated. Furthermore, the time-varying curves of network metrics during movement were obtained by dividing the time window and using sparse inverse covariance matrices. Finally, conditional Granger causality (GC) was used to explore the causal relationships between different brain regions., Results: Compared to CTDs, the connectivity between RMC-RPFC (p = 0.017) and RMC-LMC (p = 0.002) in the brain network was decreased in children with CP, and the clustering coefficient (p = 0.003), global efficiency (p = 0.034), local efficiency (p = 0.015), and transitivity (p = 0.009) were significantly lower. The standard deviation of the changes in global efficiency of children with CP during motion was also greater than that of CTDs. Using GC, it was found that there was a significant increase in causal strength from the RMC to the RPFC (p = 0.04) and from the RMC to the LMC (p = 0.042) in children with CP during motion. Additionally, there were significant negative correlations between the PLV of LMC-RMC (p = 0.002) and the Gross Motor Function Classification System (GMFCS) and between the GMFCS and the clustering coefficient (p = 0.01)., Conclusions: During rehabilitation training of the lower limbs, there were significant differences in brain network indices between children with CP and CTDs. The indicators proposed in this paper are effective at evaluating motor function and the real-time impact of rehabilitation training on the brain network and have great potential for application in guiding clinical motor function assessment and planning rehabilitation strategies., (© 2024 American Association of Physicists in Medicine.)
- Published
- 2024
- Full Text
- View/download PDF
15. Exome sequencing in a Chinese cohort of children with cerebral palsy identifies likely pathogenic variants.
- Subjects
- Humans, Child, Cohort Studies, China epidemiology, Exome Sequencing, Male, Female, Child, Preschool, Mutation, East Asian People, Cerebral Palsy genetics, Asian People genetics, Exome genetics
- Published
- 2024
- Full Text
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16. Proceedings of the International Association for Development of the Information Society (IADIS) International Conference on Mobile Learning (12th, Vilamoura, Algarve, Portugal, April 9-11, 2016)
- Author
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International Association for Development of the Information Society (IADIS), Sánchez, Inmaculada Arnedillo, and Isaías, Pedro
- Abstract
These proceedings contain the papers of the 12th International Conference on Mobile Learning 2016, which was organized by the International Association for Development of the Information Society, in Vilamoura, Algarve, Portugal, April 9-11, 2016. The Mobile Learning 2016 Conference seeks to provide a forum for the presentation and discussion of mobile learning research which illustrate developments in the field. Full papers presented in these proceedings include: (1) Mobile Devices and Spatial Enactments of Learning: iPads in Lower Secondary Schools (Bente Meyer); (2) NetEnquiry--A Competitive Mobile Learning Approach for the Banking Sector (Marc Beutner, Matthias Teine, Marcel Gebbe and Lara Melissa Fortmann); (3) M-Learning Challenges in Teaching Crosscutting Themes in the Education of Young People and Adults (Marcos Andrei Ota and Carlos Fernando de Araujo Jr); (4) Mobile Learning: Pedagogical Strategies for Using Applications in the Classroom (Anna Helena Silveira Sonego, Leticia Rocha Machado, Cristina Alba Wildt Torrezzan and Patricia Alejandra Behar); (5) Experiencing a Mobile Game and its Impact on Teachers' Attitudes towards Mobile Learning (Hagit Meishar-Tal and Miky Ronen); (6) Exploring Mobile Affordances in the Digital Classroom (David Parsons, Herbert Thomas and Jocelyn Wishart); (7) Design, Development and Evaluation of a Field Learning Video Blog (Otto Petrovic); (8) Development and Evaluation of a Classroom Interaction System (Bingyi Cao, Margarita Esponda-Argüero and Raúl Rojas); (9) Visual Environment for Designing Interactive Learning Scenarios with Augmented Reality (José Miguel Mota, Iván Ruiz-Rube, Juan Manuel Dodero and Mauro Figueiredo); and (10) The Development of an Interactive Mathematics App for Mobile Learning (Mauro Figueiredo, Beata Godejord and José Rodrigues). Short papers presented include: (1) Conceptualizing an M-Learning System for Seniors (Matthias Teine and Marc Beutner); (2) Sensimotor Distractions when Learning with Mobile Phones on-the Move (Soledad Castellano and Inmaculada Arnedillo-Sánchez); (3) Personal Biometric Information from Wearable Technology Tracked and Followed Using an Eportfolio: A Case Study of eHealth literacy Development with Emerging Technology in Hong King Higher Education (Michele Notari, Tanja Sobko and Daniel Churchill); (4) An Initial Evaluation of Tablet Devices & What Are the Next Steps? (Tracey McKillen); (5) Information Literacy on the Go! Adding Mobile to an Age Old Challenge (Alice Schmidt Hanbidge, Nicole Sanderson and Tony Tin); (6) The Use of Digital Tools by Independent Music Teachers (Rena Upitis, Philip C. Abrami and Karen Boese); (7) Development of a Math Input Interface with Flick Operation for Mobile Devices (Yasuyuki Nakamura and Takahiro Nakahara); (8) Smartwatches as a Learning Tool: A Survey of Student Attitudes (Neil Davie and Tobias Hilber); and (9) The Adoption of Mobile Learning in a Traditional Training Environment: The C95-Challenge Project Experience (Nadia Catenazzi, Lorenzo Sommaruga, Kylene De Angelis and Giulio Gabbianelli). Reflection papers include the following; (1) Leadership for Nursing Work-Based Mobile Learning (Dorothy Fahlman); (2) Reflections on Ways forward for Addressing Ethical Concerns in Mobile Learning Research (Jocelyn Wishart); and (3) Mobile Learning: Extreme Outcomes of Everywhere, Anytime (Giuseppe Cosimo De Simone). Posters include: (1) Student Response Behavior to Six Types of Caller/Sender When Smartphones Receive a Call or Text Message during University Lectures (Kunihiro Chida, Yuuki Kato and Shogo Kato); and (2) Understanding the Use of Mobile Resources to Enhance Paralympic Boccia Teaching and Learning for Students with Cerebral Palsy (Fabiana Zioti, Giordano Clemente, Raphael de Paiva Gonçalves, Matheus Souza, Aracele Fassbinder and Ieda Mayumi Kawashita). Doctoral Consortium papers include: (1) Forms of the Materials Shared between a Teacher and a Pupil (Libor Klubal and Katerina Kostolányová); and (2) Mobile Touch Screen Devices as Compensation for the Teaching Materials at a Special Primary School (Vojtech Gybas and Katerina Kostolányová). Individual papers provide references, and an Author Index is provided.
- Published
- 2016
17. Exceptional Children Conference Papers: Curriculum, Methods, and Materials in Early Childhood Education Programs.
- Author
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Council for Exceptional Children, Arlington, VA.
- Abstract
Thirteen papers on early childhood education are presented on the following topics: stimulation and cognitive development of infants and younger children, curriculum development for young handicapped children, a rationale for sequencing instructional activities for preschool handicapped children, observation of educational activities and children's behavior in a nursery school, materials and procedures for assessing cognitive development in preschool children, a preschool program for young cerebral palsied children, the British Infant School Program, the program of the Human Development Training Institute (San Diego), two papers on the young visually impaired dealing with age ranges from birth to 3 years, and 3 to 6 years, and a service for parents and visually handicapped preschoolers in a metropolitan area. Also included are discussions of a demonstration project of speech therapy for preschoolers with cleft palate and new techniques in speech therapy for young children. (RJ)
- Published
- 1969
18. A validation and acceptability study of cognitive testing using switch and eye-gaze control technologies for children with motor and speech impairments: A protocol paper
- Author
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Petra Karlsson, Ingrid Honan, Seth Warschausky, Jacqueline N. Kaufman, Georgina Henry, Candice Stephenson, Annabel Webb, Alistair McEwan, and Nadia Badawi
- Subjects
cerebral palsy ,assistive technology ,cognition ,assessment ,disability ,Psychology ,BF1-990 - Abstract
Despite the importance of knowing the cognitive capabilities of children with neurodevelopmental conditions, less than one-third of children with cerebral palsy participate in standardized assessments. Globally, approximately 50% of people with cerebral palsy have an intellectual disability and there is significant risk for domain-specific cognitive impairments for the majority of people with cerebral palsy. However, standardized cognitive assessment tools are not accessible to many children with cerebral palsy, as they require manual manipulation of objects, verbal response and/or speeded response. As such, standardised assessment may result in an underestimation of abilities for children with significant motor and/or speech impairment. The overall aim of the project is to examine and compare the psychometric properties of standardised cognitive assessment tools that have been accommodated for use with either a switch device or eye-gaze control technologies, with the specific aims to: (1) Examine the psychometric properties (measurement agreement and validity) of accommodated assessment tools by comparing the performance of typically developing children on six cognitive assessment tools administered via standardised versus accommodated (switch or eye-gaze control) administration; (2) Describe and compare the performance and user experience of children with cerebral palsy on six accommodated cognitive assessments administered via switch or eye-gaze control technologies. Secondary aims are to: (1) Describe the completion rates and time to complete assessments of participants in each group; (2) Within the group with cerebral palsy, examine the effects of condition-specific characteristics (type of cerebral palsy, functional levels, and pain) and demographics (age, socio-demographic) on participation. This protocol paper describes a two-phase validation and acceptability study that utilizes a mixed-model design. This study will collect concurrent data from 80 typically developing children and 40 children with cerebral palsy, who use switch or eye-gaze control technology as alternate access communication methods. The set of instruments will measure receptive vocabulary, fluid reasoning, sustained attention, vision perception, visuospatial working memory and executive functions. Data analyses will be conducted using SPSS v. 25 and R v 4.1.0. SPSS Sample Power 3 was used for power computation and allows for a 10% drop out rate. Quantitative descriptive statistics, measurement agreement data plotting, bivariate and multiple regressions analysis will be conducted using appropriate methods.
- Published
- 2022
- Full Text
- View/download PDF
19. Modified constraint-induced movement therapy or bimanual occupational therapy following injection of Botulinum toxin-A to improve bimanual performance in young children with hemiplegic cerebral palsy: a randomised controlled trial methods paper.
- Author
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Hoare BJ, Imms C, Rawicki HB, and Carey L
- Subjects
- Biomedical Research methods, Child, Child, Preschool, Combined Modality Therapy methods, Functional Laterality, Hand, Humans, Infant, Motor Skills, Time Factors, Treatment Outcome, Botulinum Toxins, Type A therapeutic use, Cerebral Palsy therapy, Hemiplegia therapy, Musculoskeletal Manipulations methods, Neuromuscular Agents therapeutic use, Occupational Therapy methods
- Abstract
Background: Use of Botulinum toxin-A (BoNT-A) for treatment of upper limb spasticity in children with cerebral palsy has become routine clinical practice in many paediatric treatment centres worldwide. There is now high-level evidence that upper limb BoNT-A injection, in combination with occupational therapy, improves outcomes in children with cerebral palsy at both the body function/structure and activity level domains of the International Classification of Functioning, Disability and Health. Investigation is now required to establish what amount and specific type of occupational therapy will further enhance functional outcomes and prolong the beneficial effects of BoNT-A., Methods/design: A randomised, controlled, evaluator blinded, prospective parallel-group trial. Eligible participants were children aged 18 months to 6 years, diagnosed with spastic hemiplegic cerebral palsy and who were able to demonstrate selective motor control of the affected upper limb. Both groups received upper limb injections of BoNT-A. Children were randomised to either the modified constraint-induced movement therapy group (experimental) or bimanual occupational therapy group (control). Outcome assessments were undertaken at pre-injection and 1, 3 and 6 months following injection of BoNT-A. The primary outcome measure was the Assisting Hand Assessment. Secondary outcomes included: the Quality of Upper Extremity Skills Test; Pediatric Evaluation of Disability Inventory; Canadian Occupational Performance Measure; Goal Attainment Scaling; Pediatric Motor Activity Log; modified Ashworth Scale and; the modified Tardieu Scale., Discussion: The aim of this paper is to describe the methodology of a randomised controlled trial comparing the effects of modified constraint-induced movement therapy (a uni-manual therapy) versus bimanual occupational therapy (a bimanual therapy) on improving bimanual upper limb performance of children with hemiplegic cerebral palsy following upper limb injection of BoNT-A. The paper outlines the background to the study, the study hypotheses, outcome measures and trial methodology. It also provides a comprehensive description of the interventions provided., Trial Registration: ACTRN12605000002684.
- Published
- 2010
- Full Text
- View/download PDF
20. Exceptional Children Conference Papers: Physical Handicap.
- Author
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Council for Exceptional Children, Arlington, VA.
- Abstract
Four papers give attention to the physically handicapped child. The development of young cerebral palsied children according to Piaget's sensorimotor theory is discussed by F. Annette Tessier. The nature of crippled and other health impaired populations and provisions for their education are summarized by Joan R. Ward, based upon information presented at the Special Study Institute on Professional Preparation for Educators of Crippled Children (West Point, New York, December 9-12, 1970). Richard Galusha describes the Dr. J. P. Lord School for Physically handicapped children, an Omaha, Nebraska public school. In the fourth brief paper, Joe Gaughan reviews a model Title VI-B program for physically handicapped children in Nebraska - a Therapeutic Nursery School. (KW)
- Published
- 1971
21. Speech, Language, and Communication Disorders. Papers Presented at the Annual International Convention of the Council for Exceptional Children (48th, Chicago, Illinois, April 19-25, 1970).
- Author
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Council for Exceptional Children, Arlington, VA.
- Abstract
Speech, language, and communication disorders were among the topics of papers presented at the convention of the Council for Exceptional Children in Chicago, 1970. Discussions include evaluation theory and caseload selection by Lear Ashmore, differential diagnosis in a rural school by William L. Shinder, the practical application of differential diagnosis for urban school clinicians by Patricia Brown, the use of motor and language development scales by Joann Fokes, and the Ohio Tests of Articulation and Perception of Sounds by Ruth Irwin and Aleki Nickles. Additional papers are concerned with the therapy implications of recent developments in psycholinguistics (Sue Pace), implications for new speech techniques with the neurologically impaired (Louis Sanders), the Bobath neurodevelopmental treatment in speech therapy (Suzanne Morris), and the effects of sensory modality stimulation on the disarthria of cerebral palsy (Russell Love). (JM)
- Published
- 1970
22. SELECTED PAPERS FROM PROFESSIONAL PROGRAM SEGMENTS OF UNITED CEREBRAL PALSY'S ANNUAL CONFERENCE (15TH, LOS ANGELES, CALIFORNIA, MARCH 11-13, 1965).
- Author
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United Cerebral Palsy Association, New York, NY.
- Abstract
THIS PUBLICATION PRESENTS SELECTED PAPERS FROM THE UNITED CEREBRAL PALSY ASSOCIATION'S 15TH ANNUAL CONFERENCE, MARCH 13, 1965. PAPERS ARE--(1) "S IS TO TURN" BY PAUL V. CARLSON, (2) "CERTAIN ASPECTS OF THE FUNCTIONAL STATUS OF THE FETUS IN UTERO" BY FORREST H. ADAMS, (3) "ENCEPHALITIS--COMMON CAUSES AND AFTER EFFECTS" BY JOHN M. ADAMS, (4) "BRAIN RESEARCH AT THE BARROW NEUROLOGICAL INSTITUTE, A NON-UNIVERSITY CENTER" BY EDUARDO EIDELBERG, (5) "EDUCATION FOR SELF-SUFFICIENCY" (ABSTRACT) BY EDGAR A. DOLL, (6) "AN APPROACH TO THE ASSESSMENT OF LANGUAGE DISORDERS IN BRAIN DAMAGE" BY OTFRIED SPREEN, (7) "THE TEACHER'S CONTRIBUTION IN THE DIAGNOSIS AND REMEDIATION OF LEARNING DISABILITIES" BY DOUGLAS E. WISEMAN, (8) "DEVELOPMENT OF CREATIVE DESIGNS BY HANDICAPPED CLIENTS IN COMPETITIVE RETAILING" BY SYLVIA P. HOWARD, (9) "FUTURE DIRECTION FOR RESEARCH IN VOCATIONAL REHABILITATION" BY CHARLES S. NICHOLAS, AND (10) "IMPLICATIONS OF DEVELOPING STATE DIVISION OF VOCATIONAL REHABILITATION SERVICES FOR CEREBRAL PALSIED CLIENTS" BY DONALD W. BLYTH. COMMENTS AND DISCUSSION ARE PROVIDED BY SIDNEY CARTER, BLUMA WEINER, SAMUEL ASHCROFT, MARTIN E. MC CAVITT, ISADOR W. SCHERER, CRAIG MILLS, AND DON BURTON. (MY)
- Published
- 1965
23. CEC Selected Convention Papers; Annual International Convention: Homebound and Hospitalized.
- Author
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Council for Exceptional Children, Arlington, VA.
- Abstract
The special children's center for cerebral palsied and multiply handicapped children in a rural area involving a community sponsored multidisciplinary day program is the topic of the presentation by Frances Berko. A rural outpatient program which provided services to children in a six county area previously without sufficient services is discussed. The purposes, structure, and functions of the program are reviewed. This unit of reports is available in microfiche. (WW)
- Published
- 1968
24. Selected Papers from Professional Program Segments of United Cerebral Palsy's Annual Conference (Houston, Texas, March 21-23, 1968).
- Author
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United Cerebral Palsy Association, New York, NY. Medical and Scientific Dept.
- Abstract
Topics covered include the need for a change of attitude in the field of cerebral palsy, facilitation of special education programing through architecture, planning a residential center for the mentally retarded, the role of the architectural psychologists, the inferior condition of residential facilities for the severely handicapped, improved care and treatment in state institutions, programed instruction using TMI-Grollier materials, a program for employment opportunities, and vocational rehabilitation. Also presented are papers on the following subjects: the federal and state governments' role in services for the handicapped; the relationships between the United Cerebral Palsy Association and mental retardation programs, Children's Bureau programs, and the U.S. Office of Education; comprehensive health planning; and a report by the National Medical Department. (RD)
- Published
- 1968
25. Selected Papers from Professional Program Segments of United Cerebral Palsy's Annual Conference (Washington, D.C., March 6-8, 1969).
- Author
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United Cerebral Palsy Association, New York, NY.
- Abstract
The proceedings include seven selected papers. In one, Brewster S. Miller reports on the 1968 activities of the Medical and Scientific Department of the United Cerebral Palsy Associations. In another, James J. Gallagher anticipates the next 20 years in special education for the handicapped. Also considered are the following topics: new directions for the next 20 years of research, by Sidney Farber; a blueprint for prevention, by William Berenberg; control of infections contributing to brain dysfunction, by Louis Z. Cooper; more effective use of today's knowledge in better prenatal care, by Frederick C. Battaglia; and intrauterine diagnosis of fetal abnormality, by Henry L. Nadler. (JD)
- Published
- 1969
26. Mechano-Physiological Modeling to Probe the Role of Satellite Cells and Fibroblasts in Cerebral Palsy Muscle Degeneration
- Author
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Khuu, Stephanie, Virgilio, Kelley M., Fernandez, Justin W., Handsfield, Geoffrey G., Tavares, João Manuel R. S., Series Editor, Jorge, Renato Natal, Series Editor, Ateshian, Gerard A., editor, and Myers, Kristin M., editor
- Published
- 2020
- Full Text
- View/download PDF
27. Burn injury in patients with early-onset neurological impairments: 2002 ABA paper.
- Author
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Alden NE, Rabbitts A, Rolls JA, Bessey PQ, and Yurt RW
- Subjects
- Adolescent, Adult, Body Surface Area, Burns etiology, Case-Control Studies, Female, Humans, Length of Stay statistics & numerical data, Male, Registries statistics & numerical data, Retrospective Studies, Risk Factors, Attention Deficit Disorder with Hyperactivity complications, Autistic Disorder complications, Burns epidemiology, Cerebral Palsy complications, Intellectual Disability complications, Spinal Dysraphism complications
- Abstract
Many patients suffer from sensorimotor deficits that may contribute to burn injury. This retrospective study examines burn injuries in the subgroup of patients that suffer from the early onset neurological impairments of mental retardation, cerebral palsy, spina bifida, autism, and attention deficit-hyperactivity disorder. Fifty-one patients who suffered from the above-mentioned early-onset neurological impairments were admitted to our burn center during a 4-year period. The average TBSA burned was 8.9% yet resulted in prolonged hospitalizations. This study describes our burn center's experience in treating patients admitted with early-onset neurological impairments.
- Published
- 2004
- Full Text
- View/download PDF
28. [Genetic and clinical studies on abnormal and brain-damaged children. III. Paper chromatography].
- Author
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HIRSCH W and BELITZ HJ
- Subjects
- Child, Humans, Amino Acids urine, Brain, Brain Diseases, Cerebral Palsy, Chromatography, Paper
- Published
- 1958
29. TESTING AND EVALUATION. A PAPER GIVEN AT THE THIRD PAN-PACIFIC REHABILITATION CONFERENCE IN TOKYO, APRIL 1965.
- Author
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MORGAN MR
- Subjects
- Humans, Tokyo, Cerebral Palsy, Medicine, Muscle Spasticity, Paper, Paralysis, Psychological Tests, Rehabilitation
- Published
- 1965
30. Position paper on the use of botulinum toxin in cerebral palsy.
- Author
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Grice J
- Subjects
- Child, Preschool, Humans, Botulinum Toxins therapeutic use, Cerebral Palsy drug therapy, Drug Approval
- Published
- 1999
- Full Text
- View/download PDF
31. Effects of Extrinsic Feedback in Virtual Rehabilitation for Children with Cerebral Palsy: A Comprehensive Systematic Review
- Author
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Jacho-Guanoluisa, Nancy, Albiol-Pérez, Sergio, Valdivia-Salas, Sonsoles, Jariod-Gaudes, Ricardo, Collazos, Cesar A., Fardoun, Habib M., Barbosa, Simone Diniz Junqueira, Editorial Board Member, Filipe, Joaquim, Editorial Board Member, Ghosh, Ashish, Editorial Board Member, Kotenko, Igor, Editorial Board Member, Washio, Takashi, Editorial Board Member, Yuan, Junsong, Editorial Board Member, Zhou, Lizhu, Editorial Board Member, Fardoun, Habib M., editor, Hassan, Ahlam A. M., editor, and de la Guía, M. Elena, editor
- Published
- 2019
- Full Text
- View/download PDF
32. Position paper on the use of botulinum toxin in cerebral palsy. UK Botulinum Toxin and Cerebral Palsy Working Party.
- Author
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Carr LJ, Cosgrove AP, Gringras P, and Neville BG
- Subjects
- Botulinum Toxins administration & dosage, Child, Drug Administration Schedule, Humans, Patient Selection, Treatment Outcome, Botulinum Toxins therapeutic use, Cerebral Palsy therapy
- Published
- 1998
- Full Text
- View/download PDF
33. Religious Coping and Fatalism on Perception of Care Burden in Caregivers of Patients with Cerebral Palsy in Turkey: A Cross-Sectional and Correlational Study.
- Author
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Demir OB and Yilmaz FT
- Subjects
- Humans, Cross-Sectional Studies, Male, Female, Turkey, Adult, Middle Aged, Young Adult, Surveys and Questionnaires, Caregiver Burden psychology, Adolescent, Adaptation, Psychological, Caregivers psychology, Caregivers statistics & numerical data, Cerebral Palsy psychology, Religion and Psychology
- Abstract
Providing care to a patient with cerebral palsy can have many negative impacts upon caregivers. This study was carried out to define caregiving burden in the caregivers of cerebral palsy patients and determine the relationships between religious coping, fatalism, and burden of care. This cross-sectional and correlational study included 132 caregivers. Data were obtained using the Religious Coping Scale, the Fatalism Scale, and the Caregiver Burden Scale. It was determined that 18.9% of the participants experienced a heavy care burden. The luck and pessimism dimensions of the Fatalism Scale were positively and weakly correlated with caregiving burden (p < 0.01), while there was no correlation between caregiving burden and positive or negative religious coping styles (p > 0.05). Perception of fatalism explained 10% of the total variance in caregiving burden (R = 0.329, R
2 = 0.109, F = 5.195, p = 0.002). It is recommended that caregivers be supported by religious experts to strengthen positive religious coping styles and advisable fatalism perceptions., (© 2023. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)- Published
- 2024
- Full Text
- View/download PDF
34. Cerebral palsy in African paediatric populations: A scoping review.
- Author
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Murugasen S, Springer P, Olusanya BO, Gladstone M, Newton C, Kakooza-Mwesige A, and Donald KA
- Subjects
- Humans, Child, Africa epidemiology, Prevalence, Adolescent, Child, Preschool, Comorbidity, Risk Factors, Cerebral Palsy epidemiology
- Abstract
Aim: To review the epidemiology and outcomes of African children with cerebral palsy (CP) over a 21-year period., Method: The PubMed, Scopus, and Web of Science online databases were searched for original research on African children with CP aged 18 years and younger published from 2000 to 2021., Results: A total of 1811 articles underwent review against explicit criteria; 93 articles were selected for inclusion in the scoping review. The reported prevalence of CP ranged from 0.8 to 10 per 1000 children. Almost half had perinatal risk factors, but up to 26% had no identifiable risk factor. At least one-third of children with CP had one or more comorbidities, most commonly epilepsy, intellectual disability, and malnutrition. African children with CP demonstrated excess premature mortality approximately 25 times that of the general population, predominantly from infections. Hospital-based and younger populations had larger proportions of children with severe impairments. African children with CP had inadequate access to care and education, yet showed functional improvements compared to controls for all evaluated interventions., Interpretation: The prevalence of CP in Africa remains uncertain. African children with CP have different risk profiles, greater premature mortality, and more severe functional impairments and comorbidities compared to the Global North. Several barriers prevent access to optimal care. Larger African studies on validated and effective interventions are needed., (© 2024 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.)
- Published
- 2024
- Full Text
- View/download PDF
35. How do parents frame their engagement experience in early intervention? A grounded theory study.
- Author
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Harniess PA, Basu AP, Bezemer J, and Gibbs D
- Subjects
- Humans, Female, Male, Infant, Adult, Qualitative Research, United Kingdom, Early Intervention, Educational, Interviews as Topic, Physical Therapy Modalities, Occupational Therapy, Early Medical Intervention, Professional-Family Relations, Infant, Newborn, Grounded Theory, Parents psychology, Cerebral Palsy rehabilitation, Cerebral Palsy psychology
- Abstract
Purpose: Parent and therapist engagement and partnership are critical in early intervention physiotherapy and occupational therapy for infants with cerebral palsy to improve outcomes. The main aim of this study was to understand how parents perceive their engagement experience in early intervention over time., Methods: Grounded theory methodology was used. Twenty parents of diverse backgrounds participated in 22 interviews (including some repeated longitudinally) to reflect on their engagement experience within the context of early intervention community services provided in the UK NHS., Results: The findings highlight how parents' perspectives of their engagement in EI change according to critical circumstances, including their preceding neonatal trauma, the at-risk CP label, firmer diagnosis of CP and their child's response to intervention. We theorise that this disrupted transition experience to parenthood becomes part of parental framing (or sense-making) of their engagement in EI. Overlapping frames of uncertainty, pursuit and transformation capture and explain nuances in parents' engagement patterns within EI over time., Conclusion: This theorising has implications for early intervention therapists in how they engage in the lives of families and partner with parents to support healthier parental transition, wellbeing and subsequent improved infant outcomes.
- Published
- 2024
- Full Text
- View/download PDF
36. Ocular Control Characterization of Motor Disabilities: The Cerebral Palsy Case
- Author
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González, Jully, Atehortúa, Angélica, Moncayo, Ricardo, Romero, Eduardo, Hutchison, David, Editorial Board Member, Kanade, Takeo, Editorial Board Member, Kittler, Josef, Editorial Board Member, Kleinberg, Jon M., Editorial Board Member, Mattern, Friedemann, Editorial Board Member, Mitchell, John C., Editorial Board Member, Naor, Moni, Editorial Board Member, Pandu Rangan, C., Editorial Board Member, Steffen, Bernhard, Editorial Board Member, Terzopoulos, Demetri, Editorial Board Member, Tygar, Doug, Editorial Board Member, Goos, Gerhard, Founding Editor, Hartmanis, Juris, Founding Editor, Lepore, Natasha, editor, Brieva, Jorge, editor, Romero, Eduardo, editor, Racoceanu, Daniel, editor, and Joskowicz, Leo, editor
- Published
- 2019
- Full Text
- View/download PDF
37. just Physio kidding - NUI and Gamification based Therapeutic Intervention for Children with Special Needs
- Author
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Madeira, Rui Neves, Antunes, André, Postolache, Octavian, Akan, Ozgur, Series Editor, Bellavista, Paolo, Series Editor, Cao, Jiannong, Series Editor, Coulson, Geoffrey, Series Editor, Dressler, Falko, Series Editor, Ferrari, Domenico, Series Editor, Gerla, Mario, Series Editor, Kobayashi, Hisashi, Series Editor, Palazzo, Sergio, Series Editor, Sahni, Sartaj, Series Editor, Shen, Xuemin (Sherman), Series Editor, Stan, Mircea, Series Editor, Xiaohua, Jia, Series Editor, Zomaya, Albert Y., Series Editor, Oliver, Nuria, editor, Serino, Silvia, editor, Matic, Aleksandar, editor, Cipresso, Pietro, editor, Filipovic, Nenad, editor, and Gavrilovska, Liljana, editor
- Published
- 2018
- Full Text
- View/download PDF
38. White Paper by the European Society for Swallowing Disorders: Screening and Non-instrumental Assessment for Dysphagia in Adults
- Author
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Margaret Walshe, Eric Verin, Reinie Cordier, Virginie Woisard, Weslania Viviane Nascimento, Daniele Farneti, Renée Speyer, Walmari Pilz, RS: MHeNs - R3 - Neuroscience, KNO, and MUMC+: MA Keel Neus Oorheelkunde (9)
- Subjects
medicine.medical_specialty ,Future studies ,Psychometrics ,ORAL-HEALTH ASSESSMENT ,OF-LIFE QUESTIONNAIRE ,B100 ,ITEM RESPONSE THEORY ,Diagnostic accuracy ,FRAIL OLDER-PEOPLE ,Cerebral palsy ,Validity ,03 medical and health sciences ,Speech and Hearing ,0302 clinical medicine ,White paper ,PSYCHOMETRIC CHARACTERISTICS ,Swallowing ,otorhinolaryngologic diseases ,medicine ,Humans ,Mass Screening ,030212 general & internal medicine ,ASPIRATION PNEUMONIA ,Aged ,ASSESSMENT-TOOL ,Aged, 80 and over ,business.industry ,Swallowing Disorders ,Gastroenterology ,Reproducibility of Results ,Responsiveness ,A300 ,OROPHARYNGEAL DYSPHAGIA ,NEUROLOGICAL DISORDERS ,medicine.disease ,Measures ,Reliability ,Dysphagia ,Deglutition ,Otorhinolaryngology ,Physical therapy ,RISK-FACTORS ,Original Article ,medicine.symptom ,Deglutition Disorders ,business ,030217 neurology & neurosurgery - Abstract
This White Paper by the European Society for Swallowing Disorders (ESSD) reports on the current state of screening and non-instrumental assessment for dysphagia in adults. An overview is provided on the measures that are available, and how to select screening tools and assessments. Emphasis is placed on different types of screening, patient-reported measures, assessment of anatomy and physiology of the swallowing act, and clinical swallowing evaluation. Many screening and non-instrumental assessments are available for evaluating dysphagia in adults; however, their use may not be warranted due to poor diagnostic performance or lacking robust psychometric properties. This white paper provides recommendations on how to select best evidence-based screening tools and non-instrumental assessments for use in clinical practice targeting different constructs, target populations and respondents, based on criteria for diagnostic performance, psychometric properties (reliability, validity, and responsiveness), and feasibility. In addition, gaps in research that need to be addressed in future studies are discussed. The following recommendations are made: (1) discontinue the use of non-validated dysphagia screening tools and assessments; (2) implement screening using tools that have optimal diagnostic performance in selected populations that are at risk of dysphagia, such as stroke patients, frail older persons, patients with progressive neurological diseases, persons with cerebral palsy, and patients with head and neck cancer; (3) implement measures that demonstrate robust psychometric properties; and (4) provide quality training in dysphagia screening and assessment to all clinicians involved in the care and management of persons with dysphagia.
- Published
- 2022
39. Exploring the rationale for prescribing ankle-foot orthoses and supramalleolar orthoses in children with cerebral palsy: A narrative synthesis of rationale statements.
- Author
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Dailey AH, Landers J, Anderson S, and Dillon MP
- Subjects
- Humans, Child, Male, Prescriptions, Female, Equipment Design, Ankle Joint, Treatment Outcome, Cerebral Palsy rehabilitation, Cerebral Palsy therapy, Foot Orthoses
- Abstract
Background: To help improve outcomes for children with cerebral palsy (CP), ankle-foot orthoses (AFOs) and supramalleolar orthoses (SMOs) are prescribed. However, it is not clear why one intervention is prescribed over the other., Objectives: To explore the rationale for prescribing AFOs and SMOs in children with CP and its link to the choice of outcome measure used., Study Design: Narrative review., Methods: Six databases were searched (eg, Medline) and data extracted from articles that met the inclusion criteria. Data describing the participant demographics, type of orthosis, and outcome measures used were summarized to provide context for the different rationale for orthotic prescription that were thematically analyzed., Discussion: Forty-seven articles were included. Participants were aged 9 ± 2 years, 59% were male, 79% had diplegia, and 38% were classified as Gross Motor Function Classification System level I. All studies included a rationale for prescribing AFOs that, in most cases, reflected the outcome measures used. These rationale statements were synthesized into 5 specific themes (e.g., reduced energy expenditure and metabolic costs). By comparison, 5 of these studies described the rationale for providing SMOs, and of those that did, most of the rationale statements were nonspecific., Conclusions: A large and contemporary body of literature describes the rationale for prescribing AFOs for children with CP. There are opportunities for future research that clearly articulates the rationale for prescribing SMOs for children living with CP and to focus the rational for orthotic intervention on the real-world challenges that are most important to children living with CP, such as the ability to participate among peers., (Copyright © 2023 International Society for Prosthetics and Orthotics.)
- Published
- 2024
- Full Text
- View/download PDF
40. Clinical features associated with epilepsy occurrence, resolution, and drug resistance in children with cerebral palsy: A population-based study.
- Author
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Feroze N, Karim T, Ostojic K, Mcintyre S, Barnes EH, Lee BC, Dale RC, Gill D, and Kothur K
- Subjects
- Humans, Male, Female, Child, Preschool, Child, Intellectual Disability, Anticonvulsants therapeutic use, Registries, New South Wales epidemiology, Infant, Severity of Illness Index, Drug Resistance, Vision Disorders etiology, Cerebral Palsy complications, Epilepsy drug therapy, Drug Resistant Epilepsy drug therapy, Drug Resistant Epilepsy genetics
- Abstract
Aim: To investigate clinicoradiological features associated with epilepsy, its resolution, and drug resistance in children with cerebral palsy (CP)., Method: Data were gathered from the New South Wales/Australian Capital Territory CP Register, encompassing children with CP born between 2003 and 2015 (n = 1916). Clinical features and the severity of impairments were compared among three groups: children with current epilepsy (n = 604), those with resolved epilepsy by age 5 years (n = 109), and those without epilepsy (n = 1203). Additionally, a subset of the registry cohort attending Children's Hospital Westmead (n = 256) was analysed to compare epilepsy and treatment characteristics between drug-responsive (n = 83) and drug-resistant groups (n = 147) using logistic regression and hierarchical cluster analysis., Results: Manual Ability Classification System levels IV and V, intellectual impairment, and vision impairment were found to be associated with epilepsy in children with CP on multivariable analysis (p < 0.01). Moderate to severe intellectual impairment and bilateral spastic CP were independent positive and negative predictors of epilepsy persistence at the age of 5 years respectively (p < 0.05). Microcephaly and multiple seizure types were predictors of drug-resistant epilepsy (area under the receiver operating characteristic curve of 0.83; 95% confidence interval 0.77-0.9). Children with a known genetic cause (14%) and CP epilepsy surgery group (4.3%) formed specific clinical subgroups in CP epilepsy., Interpretation: Our study highlights important clinical associations of epilepsy, its resolution, and treatment response in children with CP, providing valuable knowledge to aid in counselling families and identifying distinct prognostic groups for effective medical surveillance and optimal treatment., What This Paper Adds: Severe motor and non-motor impairments in cerebral palsy (CP) increase epilepsy risk. Epilepsy more likely resolves in bilateral spastic and milder CP impairments. Epilepsy in CP often manifests at an early age with multiple seizure types and high drug resistance. Children with a known genetic cause and CP epilepsy surgery group represent distinct clinical subgroups., (© 2023 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.)
- Published
- 2024
- Full Text
- View/download PDF
41. Higher risk of cerebral palsy, seizures/epilepsy, visual- and hearing impairments, cancer, injury and child abuse in children with congenital anomalies: Data from the EUROlinkCAT study.
- Author
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Urhoj SK, Morris J, Loane M, Ballardini E, Barrachina-Bonet L, Cavero-Carbonell C, Coi A, Gissler M, Given J, Heino A, Jordan S, Neville A, Santoro M, Tan J, Tucker D, Wellesley D, Garne E, and Damkjaer M
- Subjects
- Child, Female, Humans, Child, Preschool, Cohort Studies, Registries, Seizures epidemiology, Seizures etiology, Cerebral Palsy epidemiology, Cerebral Palsy etiology, Epilepsy, Child Abuse, Neoplasms, Hearing Loss epidemiology, Hearing Loss etiology, Congenital Abnormalities epidemiology
- Abstract
Aim: The aim is to examine the risk of cerebral palsy, seizures/epilepsy, visual- and hearing impairments, cancer, injury/poisoning and child abuse in children with and without a congenital anomaly up to age 5 and 10 years., Methods: This is a population-based data linkage cohort study linking information from the European Surveillance of Congenital Anomalies network (EUROCAT) and birth registries to hospital discharge databases. We included 91 504 live born children with major congenital anomalies born from 1995 to 2014 from nine EUROCAT registries in five countries and 1 960 727 live born children without congenital anomalies (reference children). Prevalence and relative risk (RR) were estimated for each of the co-morbidities using Kaplan-Meier survival estimates., Results: Children with congenital anomalies had higher risks of the co-morbidities than reference children. The prevalences in the reference children were generally very low. The RR was 13.8 (95% CI 12.5-15.1) for cerebral palsy, 2.5 (95% CI 2.4-2.6) for seizures/epilepsy, 40.8 (95% CI 33.2-50.2) for visual impairments, 10.0 (95% CI 9.2-10.9) for hearing loss, 3.6 (95% CI 3.2-4.2) for cancer, 1.5 (95% CI 1.4-1.5) for injuries/poisoning and 2.4 (95% CI 1.7-3.4) for child abuse., Conclusion: Children with congenital anomalies were more likely to be diagnosed with the specified co-morbidities compared to reference children., (© 2024 The Authors. Acta Paediatrica published by John Wiley & Sons Ltd on behalf of Foundation Acta Paediatrica.)
- Published
- 2024
- Full Text
- View/download PDF
42. Three-Dimensional Instrumented Gait Analysis for Children With Cerebral Palsy: An Evidence-Based Clinical Practice Guideline.
- Author
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States RA, Salem Y, Krzak JJ, Godwin EM, McMulkin ML, and Kaplan SL
- Subjects
- Child, Humans, Evidence-Based Practice, Gait, Immunoglobulin A, Cerebral Palsy, Gait Analysis
- Abstract
Background: Children with cerebral palsy (CP) who walk have complex gait patterns and deviations often requiring physical therapy (PT)/medical/surgical interventions. Walking in children with CP can be assessed with 3-dimensional instrumented gait analysis (3D-IGA) providing kinematics (joint angles), kinetics (joint moments/powers), and muscle activity., Purpose: This clinical practice guideline provides PTs, physicians, and associated clinicians involved in the care of children with CP, with 7 action statements on when and how 3D-IGA can inform clinical assessments and potential interventions. It links the action statement grades with specific levels of evidence based on a critical appraisal of the literature., Conclusions: This clinical practice guideline addresses 3D-IGA's utility to inform surgical and non-surgical interventions, to identify gait deviations among segments/joints and planes and to evaluate the effectiveness of interventions. Best practice statements provide guidance for clinicians about the preferred characteristics of 3D-IGA laboratories including instrumentation, staffing, and reporting practices.Video Abstract: Supplemental digital content available at http://links.lww.com/PPT/A524., Competing Interests: The authors declare no conflict of interest., (Copyright © 2024 Academy of Pediatric Physical Therapy of the American Physical Therapy Association.)
- Published
- 2024
- Full Text
- View/download PDF
43. Interactive Kinect-Based Rehabilitation Framework for Assisting Children with Upper Limb Cerebral Palsy
- Author
-
Daoud, Mohammad I., Alazrai, Rami, Alhusseini, Abdullah, Shihan, Dima, Alhwayan, Ekhlass, Abou-Tair, Dhiah el Diehn I., Qadoummi, Talal, Barbosa, Simone Diniz Junqueira, Series editor, Chen, Phoebe, Series editor, Filipe, Joaquim, Series editor, Kotenko, Igor, Series editor, Sivalingam, Krishna M., Series editor, Washio, Takashi, Series editor, Yuan, Junsong, Series editor, Zhou, Lizhu, Series editor, Fardoun, Habib M., editor, R. Penichet, Victor M., editor, Alghazzawi, Daniyal M., editor, and De la Guia, M. Elena, editor
- Published
- 2017
- Full Text
- View/download PDF
44. When the Sensory Handicapped Child Has Cerebral Palsy. Part I: Physical Management. Part II: Deaf-Blind Curriculum and the Child with Cerebral Palsy. Working Papers in Developmental Disabilities.
- Author
-
Nebraska Univ. Medical Center, Omaha. Meyer Children's Rehabilitation Inst. and Fieber, Nancy M.
- Abstract
The paper addresses issues involved in the management of and curriculum for children with sensory impairments combined with cerebral palsy. The first part details typical deformities and their causes in children with cerebral palsy, and describes (with illustrations) techniques for therapeutic handling and positioning in daily living tasks at home and in the classroom (including picking up the child, positioning the child for play, positioning in chairs, and standing and walking). The role of the consulting therapist is considered and the importance of cooperation between therapist and teacher is stressed. Part II considers strategies for adapting the deaf-blind curriculum for a blind child with cerebral palsy. (CL)
- Published
- 1974
45. Evidence-based position paper on the professional practice of Physical and Rehabilitation Medicine for persons with cerebral palsy. The European PRM position (UEMS PRM section)
- Author
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Mauro Zampolini, Karol Hornacek, Ivana Marković, Fitnat Dinçer, Enrique Varela Donoso, A. Vetra, Jolanta Kujawa, N. Christodoulou, Carlotte Kiekens, Peter Takáč, Dejan Nikolic, Elena Ilieva, and Jiří Votava
- Subjects
030506 rehabilitation ,medicine.medical_specialty ,Evidence-based practice ,Delphi method ,MEDLINE ,Physical Therapy, Sports Therapy and Rehabilitation ,Community integration ,Cerebral palsy ,03 medical and health sciences ,0302 clinical medicine ,Physical medicine and rehabilitation ,medicine ,Humans ,Medical diagnosis ,business.industry ,Cerebral Palsy ,Rehabilitation ,Professional Practice ,16. Peace & justice ,medicine.disease ,Physical and Rehabilitation Medicine ,3. Good health ,Europe ,Systematic review ,Position paper ,0305 other medical science ,business ,030217 neurology & neurosurgery - Abstract
Cerebral palsy (CP) is a group of the most common developmental disorders affecting movement and posture of the body, causing activity limitations and participation restrictions. The motor disorders of persons with CP are often accompanied by disturbances of sensation, cognition, communication and perception. The symptoms of CP are very diverse and persons with CP are usually presented with a mixed type of symptoms. The non-progressive disturbances can be attributed to disorders that were developed during pregnancy, birth and/or infant stage. The aim of this study was to improve physicians' professional practice of Physical and Rehabilitation Medicine for persons with cerebral palsy in order to improve their functionality, social and community integration, and to reduce activity limitations and/or participation restrictions. A systematic review of the literature including an 18-year period and consensus procedure by means of a Delphi process was performed and involved the delegates of all European countries represented in the Union of European Medical Specialists Physical and Rehabilitation Medicine (UEMS PRM) Section. As the result of a Consensus Delphi procedure, 74 recommendations are presented together with the systematic literature review. The PRM physician's role for persons with cerebral palsy is to lead and coordinate the multiprofessional team, working in an interdisciplinary way. They should propose and manage the complex but individual PRM program developed in conjunction with other health professionals, medical specialists and importantly in agreement with the patient, their family and care giver. This should be, according to the specific medical diagnosis to improve patients' health, functioning, social and education status, considering all impairments, comorbidities and complications, activity limitations and participation restrictions. This evidence-based position paper is representing the official position of The European Union through the UEMS PRM Section and designates the professional role of PRM physicians in persons with cerebral palsy.
- Published
- 2021
46. Research Paper: Comparison of Participation of Children With Cerebral Palsy Aged 4 to 6 years in Occupations With Normal Peers
- Author
-
Omid Rostam Zadeh, Malek Amini, and Afsoon Hasani Mehraban
- Subjects
Cerebral palsy ,Child ,Occupation ,Participation ,Therapeutics. Pharmacology ,RM1-950 - Abstract
Objective The participation of children in occupations, such as self-care, home environment, play, leisure, and educational and social environments, is significantly correlated with their health and wellbeing. Therefore, the aim of this study was to compare the children with cerebral palsy (CP) and their normally-developing counterparts in terms of their participation in each area of occupations. Materials & Methods This case-control study was conducted in 2015 with 50 children (aged 4-6 years) having CP and 50 normally-developing children (aged 4-6 years) in the Tehran city. The participants were chosen by a convenience sampling strategy and examined using the Persian version of Children Participation Questionnaire. The questionnaire was completed by the parents after the necessary explanations. SPSS (version 18) was used for statistical analysis, and independent t-test was used for the comparison. Results The mean ages of children with CP and normally-developing children were 5 years and 5.1 years, respectively. Significant differences (P0.05). Conclusion The results showed that the children with CP have a lower level of participation in occupations compared to their normally-developing counterparts. One of the reasons for the low participation level of children with CP could be the lack of goal-oriented and occupation-oriented interventions. Thus, this finding will help the healthcare providers to create and develop appropriate therapeutic and rehabilitation interventions so as to meet the needs of these children and promote their participation level and wellbeing.
- Published
- 2016
47. Self-reported Health-related Quality of Life in Adolescents With Cerebral Palsy.
- Author
-
Lennon N, Kalisperis F, Church C, Niiler T, Miller F, Biermann I, Davey J, Sees JP, and Shrader MW
- Subjects
- Male, Young Adult, Child, Humans, Adolescent, Child, Preschool, Quality of Life, Self Report, Retrospective Studies, Pain etiology, Cerebral Palsy
- Abstract
Background: Happiness, comfort, and motor function contribute to satisfaction with life for individuals with cerebral palsy (CP). Evidence-based medical care can improve motor function and physical health of youth with CP. Less is known about medical care and its relationship to health-related quality of life (HRQOL) in adolescents and young adults with CP. This study aimed to describe HRQOL among adolescents with CP to examine differences between adolescent (self) and parent (proxy) reports of HRQOL and to explore associations of pain, age, and gross motor function with HRQOL., Methods: This is a retrospective study including adolescents with CP classified as Gross Motor Function Classification System levels I to V, ages 11 to 20 years, reading ≥ a fourth-grade level, and who completed the self-reported Pediatric Outcomes Data Collection Instrument (PODCI). Parents completed the PODCI concurrently or within 12 months and scores were compared. In addition, self-reported scores were compared between age bands, across Gross Motor Function Classification System levels, with typically developing youth (TDY), and between youth with/without pain., Results: PODCI scores from 102 adolescents [59 males; 15.0 (SD: 2.6) years old] were examined. Scores from 50 adolescents and parents were matched. Mean self-reported scores were significantly higher than mean parent-reported scores in 4 domains: upper extremity and physical function ( P =0.018), sports and physical function ( P =0.005), happiness ( P =0.023), and global functioning ( P =0.018). All domains, except Happiness, were significantly < TDY ( P <0.01). The presence of pain was associated with lower scores in all domains ( P <0.05)., Conclusion: Examining HRQOL with the PODCI revealed significant limitations in physical function and higher pain in adolescents with CP compared with TDY. Self- and parent-reported PODCI results should be considered separately. Adolescents report higher HRQOL compared with parent proxy. Recognizing and validating the perspectives of youth and their parents presents an opportunity for providers to discuss different points of view with families. Such engagement can help promote self-efficacy in youth with CP as they transition to the responsibility of guiding their own care in adulthood., Level of Evidence: III, Retrospective comparative study., Competing Interests: The authors declare no conflicts of interest., (Copyright © 2023 Wolters Kluwer Health, Inc. All rights reserved.)
- Published
- 2024
- Full Text
- View/download PDF
48. F-words and early intervention ingredients for non-ambulant children with cerebral palsy: A scoping review.
- Author
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De Campos AC, Hidalgo-Robles Á, Longo E, Shrader C, and Paleg G
- Subjects
- Child, Humans, Child, Preschool, Exercise, Early Intervention, Educational, Cerebral Palsy therapy, Self-Help Devices
- Abstract
Aim: To explore the ingredients of early interventions provided to young children with cerebral palsy (CP) who are classified in Gross Motor Function Classification System (GMFCS) levels IV and V, and to identify the 'F-words' addressed by the interventions., Method: Searches were completed in four electronic databases. Inclusion criteria were the original experimental studies that fitted the following PCC components: population, young children (aged 0-5 years, at least 30% of the sample) with CP and significant motor impairment (GMFCS levels IV or V, at least 30% of the sample); concept, non-surgical and non-pharmacological early intervention services measuring outcomes from any of the International Classification of Functioning, Disability and Health domains; and context, studies published from 2001 to 2021, from all settings and not limited to any specific geographical location., Results: Eighty-seven papers were included for review, with qualitative (n = 3), mixed-methods (n = 4), quantitative descriptive (n = 22), quantitative non-randomized (n = 39), and quantitative randomized (n = 19) designs. Fitness (n = 59), family (n = 46), and functioning (n = 33) ingredients were addressed by most experimental studies, whereas studies on fun (n = 6), friends (n = 5), and future (n = 14) were scarce. Several other factors (n = 55) related to the environment, for example, service provision, professional training, therapy dose, and environmental modifications, were also relevant., Interpretation: Many studies positively supported formal parent training and use of assistive technology to promote several F-words. A menu of intervention ingredients was provided, with suggestions for future research, to incorporate them into a real context within the family and clinical practice., What This Paper Adds: Family-centred care (including coaching and caregiver-delivered interventions) and formal parental training are effective strategies for children in GMFCS levels IV and V. Assistive technology ingredients (power, mobility, supported, sitting, stepping, and standing) may promote several 'F-words' (functioning, fitness, family, fun, friends, and future). The lowest level of evidence was found for fun, friends, and future. Other factors (service provision, professional training, therapy dose, environmental modifications) are relevant for young children in GMFCS levels IV and V., (© 2023 Mac Keith Press.)
- Published
- 2024
- Full Text
- View/download PDF
49. Effects of the EXECP Intervention on Motor Function, Muscle Strength, and Joint Flexibility in Individuals with Cerebral Palsy.
- Author
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Valadão P, Cenni F, Piitulainen H, Avela J, and Finni T
- Subjects
- Humans, Male, Adolescent, Female, Lower Extremity, Muscle, Skeletal, Muscle Strength physiology, Range of Motion, Articular physiology, Gait physiology, Cerebral Palsy
- Abstract
Purpose: Numerous exercise interventions to enhance motor function in cerebral palsy (CP) have been proposed, with varying degrees of effectiveness. Because motor function requires a combination of muscle strength, joint flexibility, and motor coordination, we designed a supervised multicomponent exercise intervention (EXErcise for Cerebral Palsy, or EXECP) for individuals with CP. Our aim was to evaluate the effects of the EXECP intervention and its retention after it ceased., Methods: The EXECP intervention combined strength training for the lower limbs and trunk muscles, passive stretching for the lower limb muscles, and inclined treadmill gait training. Eighteen participants with CP (mean age, 14 yr; 13 were male) were tested twice before the 3-month intervention and twice after the intervention, each test separated by 3 months. Seventeen typically developing age- and sex-matched controls were tested twice. Motor function was assessed with the 6-min walking test (6MWT) and the gross motor function measure dimensions D and E. Passive joint flexibility was measured with goniometry. Isometric and concentric muscle strength were assessed at the knee, ankle, and trunk joints., Results: The EXECP intervention successfully increased 6MWT ( P < 0.001), gross motor function measure ( P = 0.004), and muscle strength for knee and trunk muscles ( P < 0.05), although no changes were observed for ankle joint muscles. Hip and knee joint flexibility also increased ( P < 0.05). After the retention period, all tested variables except the 6MWT and knee joint flexibility regressed and were not different from the pretests., Conclusions: The improvements in strength, flexibility, and possibly motor coordination brought by the EXECP intervention were transferred to significant functional gains. The regression toward baseline after the intervention highlights that training must be a lifelong decision for individuals with CP., (Copyright © 2023 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the American College of Sports Medicine.)
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- 2024
- Full Text
- View/download PDF
50. Efficacy of plyometric exercises on upper extremity function, selective motor control and hand grip strength in children with unilateral cerebral palsy: A randomized controlled study.
- Author
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Abd-Elmonem AM, Ali HA, Saad-Eldien SS, and El-Nabie WAA
- Subjects
- Child, Humans, Hand Strength, Upper Extremity, Physical Therapy Modalities, Cerebral Palsy rehabilitation, Plyometric Exercise
- Abstract
Background: Impairment in unimanual upper limb function is frequent among children with unilateral cerebral palsy (UCP), which affects their ability to perform functional activities., Aim: To assess the efficacy of plyometric exercises on the function of upper extremity, selective motor control (SMC) and hand grip strength (HGS) in children with UCP., Design: This was a double-masked, randomized, controlled clinical trial., Setting: Outpatient Clinics of Faculty of Physical Therapy, Cairo University and Center for Physical Medicine, Rehabilitation and Rheumatology, Al-Agouza Hospital, Giza, Egypt., Population: Forty children with UCP, ranging in age from 8 to 12 years, were randomly allocated to two groups equal in numbers., Method: Children were allocated to receive conventional therapy (CONV-group; n = 20) or plyometric exercises (PLYO-group; n = 20) for 45 min. In addition, children of both groups received selected physical and occupational therapy programs (each lasted for 30 min) twice a week over 3-month. The intervention was delivered on non-consecutive days. Upper extremity function, SMC and HGS were assessed by using quality of upper extremity skills test (QUEST), Test of arm selective control and pneumatic squeeze bulb dynamometer, respectively., Results: Overall, 35 children (18 in the CONV-group, 17 in the PLYO-group) completed data collection and treatment. With-in group comparison showed significant improvement in the study groups while post-treatment comparisons revealed a significant difference from mean difference in upper extremity function is 9.55 (8.71:10.39), SMC is 2.12 (1.51:2.72) and HGS is 2.91 (2.13:3.68) (p < 0.05; 95% Confidence interval) in favor of the PLYO-group., Conclusions: Plyometric exercises have the capability to enhance upper extremity function and strength in children with UCP., (© 2023 John Wiley & Sons Ltd.)
- Published
- 2024
- Full Text
- View/download PDF
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