24 results on '"Aline Gubrium"'
Search Results
2. Mind the Gaps: The Need for Inclusion of Male-Identified Voices in Adolescent Sexual and Reproductive Health
- Author
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Elizabeth Salerno Valdez, Luis Valdez, Eddie Gorry, Jazmine Chan, Saharra Dixon, Tiarra Fisher, Alya Simoun, Mira Weil, Camille Collins-Lovell, Justine Egan, and Aline Gubrium
- Subjects
Medicine - Abstract
Adolescent sexual and reproductive health (ASRH) inequities are well documented for historically excluded youth (i.e., youth of color, LGBTQIA+ youth, youth with disabilities, recently im/migrated youth) living in the U.S. Northeast. However, the lived experience of male-identifying young people from historically excluded backgrounds in ASRH remains largely unexamined. The purpose of this paper is to present findings related to male-identified perspectives on social constructions of sexuality, sexual and reproductive health, and sexuality education. A research team composed of two local youth-serving organizations, eight youth researchers, and university researchers, used Youth Participatory Action Research (YPAR) methods to examine how structural violence contributes to inequitable ASRH outcomes for historically excluded youth. Photovoice and community mapping were used as YPAR methods. We also completed individual interviews on the same topic with the youth and with 17 key stakeholders that either provide services to youth or are emerging adult service recipients. Community-driven data reveal two major themes around the silencing of male-identified voices in ASRH: lack of culture-centered and gender-expansive approaches for ASRH, and the subsequent toll of sexism and (cis)gendered social and educational norms on young people. Our findings highlight that sexuality education, cisgender hetero culture, and social norms have put the onus of responsibility on people identifying as women for sexual and reproductive health. An unintended consequence of that is that young people identifying as men may feel powerless and uninformed around their own SRH. Our findings illustrate the importance of using culture-centered and gender-transformative approaches to ASRH to address inequity.
- Published
- 2023
- Full Text
- View/download PDF
3. Uncovering Historical Legacies to Contextualize Health Inequities in Puerto Rican Men: An Expansion of the Minority Stress Model
- Author
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Luis A. Valdez, Anna Mullany, Marielena Barbieri, and Aline Gubrium
- Subjects
Latino health ,men's health ,minority stress ,health inequity ,thematic analysis ,Sociology (General) ,HM401-1281 - Abstract
BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity and mortality, which is often compounded by persistent exposure to stress. Chronic stress is a key mediating factor in pathways linking macro-level socio-structural forces to micro-level behavioral factors with negative health outcomes. Being that Latinxs continue to be one of the fastest growing populations in the U.S., it is imperative to better understand the roots of stress pathways and explore multi-level interventions.MethodsThis study presents qualitative findings from in-depth interviews with Puerto Rican men (95%) living in Springfield, Massachusetts. We utilized the Minority Stress Model (MSM) first posited by Ilan Meyers, as a framework to understand stress and stress processes amongst Puerto Rican men. We mapped our data onto Meyers' MSM, which allowed us to find diverging themes and identify areas for expansion.ResultsAs expected, participants reported stress rooted in experiences of racism and prejudice, expectations of rejection, English-language acquisition, family relationships, insecure housing, precarious employment, and lack of resources. Nevertheless, the MSM did not account for the historical contexts that, as our findings indicate, are used to filter and understand their experiences with everyday stressors. Participants described and linked histories of colonial violence and movement and migration to their stress and community wellbeing.DiscussionFindings suggest the need to expand the current MSM and our conceptualization of the stress process to include historical understandings when contextualizing present-day stress and future interventions. We propose an expanded heuristic model that delineates the impact of distinctive historical trajectories that aid in interpreting racial health disparities amongst minoritized populations. Future multi-level interventions should give weight to highlighting history and how this impacts the present, in this case including the culpability of U.S. policy regarding Puerto Rico and the adverse health effects for Puerto Rican men on the mainland.
- Published
- 2022
- Full Text
- View/download PDF
4. Perspectives of health educators and interviewers in a randomized controlled trial of a postpartum diabetes prevention program for Latinas: a qualitative assessment
- Author
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Aline Gubrium, Denise Leckenby, Megan Ward Harvey, Bess H. Marcus, Milagros C. Rosal, and Lisa Chasan-Taber
- Subjects
Process evaluation ,Researchers’ perspective ,Hispanic ,Postpartum ,Qualitative ,Lifestyle intervention ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. Methods A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mamá and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Results Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff’s belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Conclusions Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life. Trial registration NCT01679210. Registered 5 September 2012; NCT01868230. Registered 4 June 2013.
- Published
- 2019
- Full Text
- View/download PDF
5. Shifting to Virtual CBPR Protocols in the Time of Corona Virus/COVID-19
- Author
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Elizabeth Salerno Valdez and Aline Gubrium
- Subjects
Social sciences (General) ,H1-99 - Abstract
COVID-19 has upended community based participatory research (CBPR) projects across the United States and globally. COVID-19 disproportionately impacts historically disenfranchised communities and communities of color, the very communities that CBPR is meant to engage, elevate, and support. In-person activities that help develop rapport and research protocols, build capacity, conduct collaborative data collection and analysis, disseminate findings to the community, and engage in sustainability planning are an impossible practice during the COVID-19 pandemic. The purpose of this article is to describe the challenges and facilitators of shifting to a virtual/online CBPR protocol with a Massachusetts community disproportionately affected by COVID19, as a means to keep them engaged in the research process and to elevate their experiences, perspectives, and voices during this critical time. We include insights about how to facilitate recruitment and compensate community members, form a community advisory board (CAB), hold CAB meetings, and transition participatory qualitative data collection, analysis, and dissemination to a virtual/online framework.
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- 2020
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6. Outreach Strategies to Recruit Low-Income African American Men to Participate in Health Promotion Programs and Research: Lessons From the Men of Color Health Awareness (MOCHA) Project
- Author
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Louis F Graham DrPH, Lamont Scott, Erus Lopeyok, Henry Douglas, Aline Gubrium PhD, and David Buchanan DrPH
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Medicine - Abstract
African American men continue to bear a disproportionate share of the burden of disease. Engaging these men in health research and health promotion programs—especially lower-income, African American men who are vulnerable to chronic disease conditions such as obesity and heart disease—has historically proven quite difficult for researchers and public health practitioners. The few effective outreach strategies identified in the literature to date are largely limited to recruiting through hospital clinics, churches, and barbershops. The Men of Color Health Awareness (MOCHA) project is a grassroots, community-driven initiative that has developed a number of innovative outreach strategies. After describing these strategies, we present data on the demographic and health characteristics of the population reached using these methods, which indicate that MOCHA has been highly effective in reaching this population of men.
- Published
- 2018
- Full Text
- View/download PDF
7. The cascade of social determinants in producing chronic disease in low-income African-American men
- Author
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David Buchanan, Aline Gubrium, Lamont Scott, and Henry Douglas
- Subjects
health disparities ,african-american ,men’s health ,cultural competency ,Medicine (General) ,R5-920 - Abstract
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40–65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
- Published
- 2018
- Full Text
- View/download PDF
8. Uncovering Historical Legacies to Contextualize Health Inequities in Puerto Rican Men: An Expansion of the Minority Stress Model
- Author
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Luis A. Valdez, Anna Mullany, Marielena Barbieri, and Aline Gubrium
- Subjects
General Social Sciences - Abstract
BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity and mortality, which is often compounded by persistent exposure to stress. Chronic stress is a key mediating factor in pathways linking macro-level socio-structural forces to micro-level behavioral factors with negative health outcomes. Being that Latinxs continue to be one of the fastest growing populations in the U.S., it is imperative to better understand the roots of stress pathways and explore multi-level interventions.MethodsThis study presents qualitative findings from in-depth interviews with Puerto Rican men (95%) living in Springfield, Massachusetts. We utilized the Minority Stress Model (MSM) first posited by Ilan Meyers, as a framework to understand stress and stress processes amongst Puerto Rican men. We mapped our data onto Meyers' MSM, which allowed us to find diverging themes and identify areas for expansion.ResultsAs expected, participants reported stress rooted in experiences of racism and prejudice, expectations of rejection, English-language acquisition, family relationships, insecure housing, precarious employment, and lack of resources. Nevertheless, the MSM did not account for the historical contexts that, as our findings indicate, are used to filter and understand their experiences with everyday stressors. Participants described and linked histories of colonial violence and movement and migration to their stress and community wellbeing.DiscussionFindings suggest the need to expand the current MSM and our conceptualization of the stress process to include historical understandings when contextualizing present-day stress and future interventions. We propose an expanded heuristic model that delineates the impact of distinctive historical trajectories that aid in interpreting racial health disparities amongst minoritized populations. Future multi-level interventions should give weight to highlighting history and how this impacts the present, in this case including the culpability of U.S. policy regarding Puerto Rico and the adverse health effects for Puerto Rican men on the mainland.
- Published
- 2021
9. A New Title, a New Focus: Community Health Equity Research and Policy
- Author
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Kathryn Pitkin Derose and Aline Gubrium
- Subjects
Focus (computing) ,Health (social science) ,Public economics ,Health Equity ,Health Policy ,Public Health, Environmental and Occupational Health ,Equity (finance) ,General Medicine ,Education ,Policy ,Political science ,Community health ,Humans ,Public Health ,Policy Making - Published
- 2021
10. Perspectives of health educators and interviewers in a randomized controlled trial of a postpartum diabetes prevention program for Latinas: a qualitative assessment
- Author
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Milagros C. Rosal, Denise Leckenby, Aline Gubrium, Bess H. Marcus, Lisa Chasan-Taber, and Megan W Harvey
- Subjects
Adult ,Postnatal Care ,Lifestyle intervention ,medicine.medical_specialty ,Hispanic ,Health informatics ,Process evaluation ,law.invention ,Health administration ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Latina ,Randomized controlled trial ,law ,Pregnancy ,Postpartum ,Intervention (counseling) ,medicine ,Humans ,030212 general & internal medicine ,Randomised controlled trial ,business.industry ,030503 health policy & services ,Health Policy ,Nursing research ,Public health ,Health Educators ,lcsh:Public aspects of medicine ,Behavior change ,lcsh:RA1-1270 ,Hispanic or Latino ,Focus Groups ,Researchers’ perspective ,Focus group ,3. Good health ,Diabetes, Gestational ,Diabetes Mellitus, Type 2 ,Evaluation Studies as Topic ,Family medicine ,Female ,0305 other medical science ,business ,Qualitative ,Risk Reduction Behavior ,Research Article - Abstract
Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mama and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff’s belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life. NCT01679210 . Registered 5 September 2012; NCT01868230 . Registered 4 June 2013.
- Published
- 2019
- Full Text
- View/download PDF
11. Women-Reported Barriers and Facilitators of Continued Engagement with Medications for Opioid Use Disorder
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Alice Fiddian-Green, Aline Gubrium, Calla Harrington, and Elizabeth A. Evans
- Subjects
Analgesics, Opioid ,Health, Toxicology and Mutagenesis ,Opiate Substitution Treatment ,Public Health, Environmental and Occupational Health ,Humans ,Female ,Opioid-Related Disorders ,Pandemics ,women and opioid use disorder ,qualitative methods ,medications for opioid use disorder ,substance use treatment ,stigma and substance use ,Buprenorphine ,COVID-19 Drug Treatment - Abstract
Opioid-related fatalities increased exponentially during the COVID-19 pandemic and show little sign of abating. Despite decades of scientific evidence that sustained engagement with medications for opioid use disorders (MOUD) yields positive psychosocial outcomes, less than 30% of people with OUD engage in MOUD. Treatment rates are lowest for women. The aim of this project was to identify women-specific barriers and facilitators to treatment engagement, drawing from the lived experience of women in treatment. Data are provided from a parent study that used a community-partnered participatory research approach to adapt an evidence-based digital storytelling intervention for supporting continued MOUD treatment engagement. The parent study collected qualitative data between August and December 2018 from 20 women in Western Massachusetts who had received MOUD for at least 90 days. Using constructivist grounded theory, we identified major themes and selected illustrative quotations. Key barriers identified in this project include: (1) MOUD-specific discrimination encountered via social media, and in workplace and treatment/recovery settings; and (2) fear, perceptions, and experiences with MOUD, including mental health medication synergies, internalization of MOUD-related stigma, expectations of treatment duration, and opioid-specific mistrust of providers. Women identified two key facilitators to MOUD engagement: (1) feeling “safe” within treatment settings and (2) online communities as a source of positive reinforcement. We conclude with women-specific recommendations for research and interventions to improve MOUD engagement and provide human-centered care for this historically marginalized population.
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- 2022
- Full Text
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12. Precarious Work, Health, and African-American Men: A Qualitative Study on Perceptions and Experiences
- Author
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Anna Mullany, Luis A. Valdez, Aline Gubrium, and David Buchanan
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Employment ,Male ,Economic growth ,Health Policy ,media_common.quotation_subject ,Precarious Employment ,Neoliberalism ,Article ,United States ,Black or African American ,In depth interviews ,Work (electrical) ,Political science ,Perception ,Income ,African american men ,Precarious work ,Humans ,Qualitative Research ,media_common ,Qualitative research - Abstract
Precarious work has steadily grown in the United States since the rise of neoliberal policies. The continued expansion of this type of work has led to precarious employment as a recognized category within social determinants of health work and to a growing literature within public health research. African-American men are disproportionately vulnerable to precarious work, which in turn contributes to adverse health effects. Nevertheless, African-American men’s experiences of employment and the perceived impact on their well-being remain underexplored. This study was part of the formative exploratory phase of a 5-year community-based participatory research project to examine the biopsychosocial determinants of stress among low/no-income, African-American men. Through thematic analysis of 42 semi-structured interviews, 3 themes emerged: ( a) occupational hazards and health, ( b) internalization of neoliberal ideology, and ( c) constraints of structural factors. Neoliberal economic policies cause material deprivation and exacerbate systemic injustices that disproportionately affect communities of color. The accompanying neoliberal ideology of personal responsibility shapes men’s perceptions of success and failure. Public health research must continue to push against health promotion practices that predominantly focus on individual behavior. Rather than exploring only the granularities of individual behaviors, health problems must be examined through prolonged historical, political, economic, and social disenfranchisement.
- Published
- 2020
13. 'Doing Your Life': Narrative Intervention with Young Mothers as Storytellers
- Author
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Katie Lucey, Aline Gubrium, and Elizabeth L. Krause
- Subjects
Value (ethics) ,030505 public health ,Digital storytelling ,media_common.quotation_subject ,05 social sciences ,ComputingMilieux_PERSONALCOMPUTING ,General Social Sciences ,Vernacular ,Fieldnotes ,03 medical and health sciences ,Negotiation ,Arts and Humanities (miscellaneous) ,Aesthetics ,Anthropology ,Intervention (counseling) ,Ethnography ,0501 psychology and cognitive sciences ,Narrative ,0305 other medical science ,Psychology ,050104 developmental & child psychology ,media_common - Abstract
The familiar story about young pregnant and parenting Latinas relies on commonsense logic about the timing of reproductive lives. We explore young mothers' own sense making, captured in local vernacular through participants' digital story depictions, our fieldnotes of digital storytelling workshop talk, and participants' follow-up interview reflections about enduring judgment and doing their lives. In this article, we introduce the Hear Our Stories project and present key digital stories and related ethnographic material that serve as local exemplars of “doing your life.” Findings reveal ways participants negotiate value making about their reproductive lives. As a narrative intervention, digital storytelling helps to gain a firmer grasp on social worlds and to better understand inequality, while also engaging participants in a process that affords them the opportunity to shift from being a judged teen mom to co-creators of knowledge and change as strategic storytellers.
- Published
- 2018
- Full Text
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14. Digital storytelling as critical narrative intervention with adolescent women of Puerto Rican descent
- Author
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Sarah R. Lowe, Gloria T. DiFulvio, Alice Fiddian-Green, Jeffrey Peterson, and Aline Gubrium
- Subjects
medicine.medical_specialty ,030505 public health ,Digital storytelling ,business.industry ,Public health ,Public Health, Environmental and Occupational Health ,Article ,Narrative inquiry ,03 medical and health sciences ,0302 clinical medicine ,Intervention (counseling) ,Pedagogy ,medicine ,Narrative ,030212 general & internal medicine ,Personal experience ,0305 other medical science ,business ,Psychology ,Reproductive health ,Storytelling - Abstract
This article focuses on findings of a two-year pilot research study focused on addressing sexual and reproductive health inequities faced by adolescent women of Puerto Rican descent living on the mainland United States. Working with three groups of young women, in the pilot study we gathered ethnographic data in and around a group-based digital storytelling process to inform the development of a larger intervention. Digital stories are short (1–3 minute), participant produced videos that synthesize still and moving image, a voiceover recording of the participant telling her story, and background music and text to document personal experiences. Based on narrative analysis of digital stories and field notes written in and around the digital storytelling workshop process, as well as follow-up individual interviews with workshop participants, our findings center on the ways that trauma has specifically shaped participants’ sexual and reproductive health experiences. We argue that digital storytelling serves as a critical narrative intervention, whereby participants’ engagement in the storytelling process enables them to collaboratively interrogate and potentially address prior trauma, bolster a sense of social support and solidarity, and potentially recalibrate stigmatizing conversations about them. We introduce our project methodology, and then present key findings on trauma as it informs sexual and reproductive health practices, with digital storytelling showcased as a modality for critical narrative intervention. We conclude by discussing implications for critical public health research and practice.
- Published
- 2018
- Full Text
- View/download PDF
15. Narrative complexity in the time of COVID-19
- Author
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Aline Gubrium and Erika Gubrium
- Subjects
2019-20 coronavirus outbreak ,medicine.medical_specialty ,Narration ,Coronavirus disease 2019 (COVID-19) ,SARS-CoV-2 ,Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) ,Public health ,MEDLINE ,COVID-19 ,Social Theory ,General Medicine ,Linguistics ,medicine ,Humans ,Narrative ,Public Health ,Sociology ,Social Factors ,Social theory - Published
- 2021
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16. Puerto Rican Latina Youth Coming Out to Talk About Sexuality and Identity
- Author
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Aline Gubrium, Alice Fiddian-Green, and Jeffery C. Peterson
- Subjects
Health (social science) ,Adolescent ,Sexual Behavior ,Identity (social science) ,050801 communication & media studies ,Human sexuality ,Health Promotion ,Article ,Sexual and Gender Minorities ,Young Adult ,03 medical and health sciences ,0508 media and communications ,Syndemic ,Pregnancy ,Transgender ,Humans ,Narrative ,Cultural Competency ,Health communication ,Narration ,030505 public health ,Digital storytelling ,Communication ,05 social sciences ,Gender studies ,Hispanic or Latino ,Grounded Theory ,Female ,Lesbian ,0305 other medical science ,Psychology ,Sexuality - Abstract
Public health efforts focused on Latina youth sexuality are most commonly framed by the syndemic of teen pregnancy and sexually transmitted infections, a narrow and often heteronormative focus that perpetuates silences that contribute to health inequities and overlooks the growing need for increased education, awareness, and support for lesbian, gay, bisexual, transgender, and questioning (LGBTQ) youth. This article presents findings from the project Let's Talk About Sex: Digital Storytelling for Puerto Rican Latina Youth, which used a culturally centered, narrative-based approach for analyzing participants' own specifications of sexual values and practices. The strength of digital storytelling lies in its utility as an innovative tool for community-based and culturally situated research, as well as in its capacity to open up new spaces for health communication. Here we present two "coming out" case studies to illustrate the value of digital storytelling in supporting the development of meaningful and culturally relevant health promotion efforts for LGBTQ-identified Puerto Rican Latina youth across the life span.
- Published
- 2016
- Full Text
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17. The cascade of social determinants in producing chronic disease in low-income African-American men
- Author
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Lamont Scott, David Buchanan, Aline Gubrium, and Henry Douglas
- Subjects
Adult ,Male ,Social Determinants of Health ,men’s health ,media_common.quotation_subject ,Developmental psychology ,03 medical and health sciences ,cultural competency ,0302 clinical medicine ,Cynicism ,Empirical Studies ,Humans ,030212 general & internal medicine ,Social determinants of health ,Poverty ,Qualitative Research ,media_common ,Aged ,African-American ,Hierarchy ,lcsh:R5-920 ,030505 public health ,Health Policy ,1. No poverty ,Health Status Disparities ,Middle Aged ,Health equity ,United States ,Black or African American ,Issues, ethics and legal aspects ,Chronic disease ,Attitude ,Unemployment ,Chronic Disease ,Income ,Fundamentals and skills ,Health disparities ,0305 other medical science ,Psychology ,lcsh:Medicine (General) ,Gerontology ,Cultural competence - Abstract
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40–65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
- Published
- 2018
18. 'Scribble Scrabble': Migration, Young Parenting Latinas, and Digital Storytelling as Narrative Shock
- Author
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Elizabeth L. Krause and Aline Gubrium
- Subjects
Adolescent ,media_common.quotation_subject ,03 medical and health sciences ,Dignity ,Pregnancy ,Residence Characteristics ,Humans ,0601 history and archaeology ,Narrative ,Sociology ,Shadow (psychology) ,media_common ,Reproductive health ,Transients and Migrants ,060101 anthropology ,030505 public health ,Digital storytelling ,Narration ,business.industry ,Anthropology, Medical ,Humiliation ,Gender studies ,06 humanities and the arts ,General Medicine ,Hispanic or Latino ,New media ,United States ,Reproductive Health ,Anthropology ,Pregnancy in Adolescence ,Female ,0305 other medical science ,business ,Storytelling - Abstract
The nexus of migration and family offers a conjuncture to enrich understanding of teen pregnancy and parenting. This article draws findings from a project centered on participant-produced new media to reveal how young mothers negotiate reproductive health disparities. We focus on young mothers' experiences of migration and movement, captured in local vernacular through participants' digital story depictions and follow-up interviews. We argue that disparities link up with the single story of teen mothering, involve public shaming, continue hand-in-hand with institutional humiliation, and are exacerbated through migration and movement. To disrupt the normative notions that shadow young mothers, we take seriously the young women's narratives. We theorize how the richness of stories and storytelling may serve as a potent intervention-a narrative shock-for articulating meanings and cultivating dignity for young mothers and their families, especially those who do not fit the sedentary and age biases of parenting ideals.
- Published
- 2018
19. Bridging Graduate Education in Public Health and the Liberal Arts
- Author
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Felicity Aulino, Elizabeth L. Krause, C. Marjorie Aelion, Thomas L. Leatherman, and Aline Gubrium
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medicine.medical_specialty ,Schools, Public Health ,Higher education ,Culture ,Arts in education ,Humanities ,Liberal education ,ComputingMilieux_COMPUTERSANDEDUCATION ,medicine ,Humans ,Education, Graduate ,Sociology ,Curriculum ,Medical education ,Liberal arts education ,ComputingMilieux_THECOMPUTINGPROFESSION ,business.industry ,Public health ,Professional development ,Public Health, Environmental and Occupational Health ,Problem-Based Learning ,Massachusetts ,Problem-based learning ,Commentary ,Education, Public Health Professional ,business ,Computer-Assisted Instruction - Abstract
The University of Massachusetts Amherst is part of Five-Colleges Inc, a consortium that includes the university and four liberal arts colleges. Consortium faculty from the School of Public Health and Health Sciences at the university and from the colleges are working to bridge liberal arts with public health graduate education. We outline four key themes guiding this effort and exemplary curricular tools for innovative community-based and multidisciplinary academic and research programs. The structure of the consortium has created a novel trajectory for student learning and engagement, with important ramifications for pedagogy and professional practice in public health. We show how graduate public health education and liberal arts can, and must, work in tandem to transform public health practice in the 21st century.
- Published
- 2015
- Full Text
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20. Sensual sexuality education with young parenting women
- Author
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Miriam B. Shafer and Aline Gubrium
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Health Knowledge, Attitudes, Practice ,Adolescent ,media_common.quotation_subject ,Psychology, Adolescent ,Human sexuality ,Health Promotion ,Sex Education ,Entitlement ,Education ,Developmental psychology ,Pleasure ,Promotion (rank) ,Pregnancy ,ComputingMilieux_COMPUTERSANDEDUCATION ,Humans ,Curriculum ,media_common ,Public Health, Environmental and Occupational Health ,Single Parent ,Health promotion ,Massachusetts ,Adolescent Behavior ,Pregnancy in Adolescence ,Well-being ,Female ,Holism ,Psychology ,Sexuality - Abstract
Comprehensive sexuality education curricula that incorporate sex positive and integrated approaches go beyond a presentation of facts and strategies for prevention to emphasize the promotion of sexual subjectivity and wellbeing. A pilot sensual sexuality education program was planned, implemented and informally evaluated with young parenting women at an alternative General Educational Development test preparation center. The program prioritized a sex positive framework, including topics such as pleasure, desire and sexual entitlement, and invited participants to explore sexuality through a multisensory orientation. Participants took part in small group discussions and activities that engaged their senses through arts-based methods. Grounded in holism, program topics were integrated with a focus on participants' everyday experiences. The pilot curriculum serves as a promising program for re-positioning young parenting women as sexual subjects, which is key to the promotion of health and wellbeing.
- Published
- 2014
- Full Text
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21. Participatory Visual and Digital Research in Action
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Marty Otañez, Krista Harper, and Aline Gubrium
- Subjects
Participatory GIS ,Digital storytelling ,Social work ,business.industry ,Filmmaking ,Political science ,Photovoice ,Participatory action research ,Cultural heritage management ,Public relations ,business ,Archival research - Abstract
This collection of original articles, a companion to the authors' Participatory Visual and Digital Methods, illustrates how innovative visual and digital research techniques are being used in various field projects in health care, environmental policy, urban planning, education and youth development, and heritage management settings. These methodologies produce rich visual and narrative data guided by participant interests and priorities, key tools for collaborative work. The 16 chapters-include digital storytelling, PhotoVoice, community-based filmmaking, participatory mapping and GIS, and participatory digital archival research;-provide a portfolio of model research projects for researchers who wish to collaborate on community-based studies;-will appeal to an audience across social science, heritage, health, education, and social service fields.An open-access companion website will allow readers to view the research products presented in each contributor's chapter.
- Published
- 2016
- Full Text
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22. Bodies as evidence: Mapping new terrain for teen pregnancy and parenting
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Alice Fiddian-Green, Elizabeth L. Krause, Aline Gubrium, and Kasey Jernigan
- Subjects
Community-Based Participatory Research ,Adolescent ,Sexual Behavior ,education ,Evidence mapping ,Developmental psychology ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,Body mapping ,Body Image ,Humans ,0601 history and archaeology ,030212 general & internal medicine ,Justice (ethics) ,Reproductive health ,Exposure to Violence ,060101 anthropology ,Parenting ,business.industry ,Public Health, Environmental and Occupational Health ,Personal Narratives as Topic ,Social Support ,Citizen journalism ,Gender studies ,06 humanities and the arts ,Hispanic or Latino ,Young parents ,Structural violence ,Socioeconomic Factors ,Adolescent Behavior ,Pregnancy in Adolescence ,Female ,Sexual Health ,business ,Psychology ,Teen pregnancy - Abstract
Predominant approaches to teen pregnancy focus on decreasing numbers of teen mothers, babies born to them, and state dollars spent to support their families. This overshadows the structural violence interwoven into daily existence for these young parents. This paper argues for the increased use of participatory visual methods to compliment traditional research methods in shifting notions of what counts as evidence in response to teen pregnancy and parenting. We present the methods and results from a body mapping workshop as part of 'Hear Our Stories: Diasporic Youth for Sexual Rights and Justice', a project that examines structural barriers faced by young parenting Latinas and seeks to develop relevant messaging and programming to support and engage youth. Body mapping, as an engaging, innovative participatory visual methodology, involves young parenting women and other marginalised populations in drawing out a deeper understanding of sexual health inequities. Our findings highlight the ways body mapping elicits bodies as evidence to understand young motherhood and wellbeing.
- Published
- 2016
23. Realizing reproductive health equity needs more than Long-Acting Reversible Contraception (LARC)
- Author
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Sonya Borrero, Gretchen Sisson, Diana Romero, Aline Gubrium, Zakiya Luna, Katrina Kimport, Dorothy E. Roberts, Jessica Fields, Kristin Luker, Christine Dehlendorf, Jenny A. Higgins, Laura Mamo, Arline T. Geronimus, Anu Manchikanti Gomez, Emily S. Mann, and Lisa H. Harris
- Subjects
Gerontology ,medicine.medical_specialty ,Population ,Long-acting reversible contraception ,Intrauterine device ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,Reproductive rights ,medicine ,AJPH Perspectives ,Humans ,030212 general & internal medicine ,Sociology ,Healthcare Disparities ,education ,Reproductive health ,education.field_of_study ,030219 obstetrics & reproductive medicine ,business.industry ,Public health ,Public Health, Environmental and Occupational Health ,Equity (finance) ,Reproductive Health ,Family planning ,Family medicine ,Female ,business - Abstract
In a recent Editors Choice column in the American Journal of Public Health Northridge and Coupey1 advocate the increased use of long-acting reversible contraception (LARC) specifically the intrauterine device and the implant as a means to achieve reproductive health equity. They reference the American Academy of Pediatrics recommendation which states that these methods should be considered "first-line contraceptive choices" for adolescents and young adults.2 (Am J Public Health. Published online ahead of print November 12 2015: e1-e2. doi:10.2105/AJPH.2015.302900).
- Published
- 2016
- Full Text
- View/download PDF
24. Strategic Authenticity and Voice: New Ways of Seeing and Being Seen as Young Mothers through Digital Storytelling
- Author
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Aline Gubrium, Elizabeth L. Krause, and Kasey Jernigan
- Subjects
Health (social science) ,Digital storytelling ,Sociology and Political Science ,business.industry ,Public relations ,Social constructionism ,Social justice ,Structural violence ,Article ,Gender Studies ,Embodied cognition ,Meaning-making ,Road map ,Psychology ,business ,Social psychology ,Storytelling - Abstract
This paper presents the Ford Foundation-funded Hear Our Stories: Diasporic Youth for Sexual Rights and Justice project, which explores the subjective experience of structural violence and the ways young parenting Latinas embody and respond to these experiences. We prioritize uprooted young parenting Latinas, whose material conditions and cultural worlds have placed them in tenuous positions, both socially constructed and experientially embodied. Existing programs and policies focused on these women fail to use relevant local knowledge and rarely involve them in messaging efforts. This paper offers a practical road map for rendering relevant and modifying notions of voice as a form of knowledge with the potential to disrupt authoritative knowledge. We present the context and method behind the four digital storytelling workshops that served as a venue for transforming assumptions about young parenting women and producing novel understandings of teen pregnancy and parenting. We end by suggesting an intervention for what we call “strategic authenticity” as it plays out in storytelling, meaning making, and voice, and implications for policy concerned with social justice and equity.
- Published
- 2014
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