20,391 results on '"PEOPLE with intellectual disabilities"'
Search Results
52. Action Opportunities to Pursue Responsible Digital Care for People With Intellectual Disabilities: Qualitative Study
- Author
-
Siebelink, Nienke M., van Dam, Kirstin N., Lukkien, Dirk R.M., Boon, Brigitte, Smits, Merlijn, van der Poel, Agnes, Siebelink, Nienke M., van Dam, Kirstin N., Lukkien, Dirk R.M., Boon, Brigitte, Smits, Merlijn, and van der Poel, Agnes
- Abstract
Background: Responsible digital care refers to any intentional systematic effort designed to increase the likelihood of a digital care technology developed through ethical decision-making, being socially responsible and aligned with the values and well-being of those impacted by it. Objective: We aimed to present examples of action opportunities for (1) designing “technology”; (2) shaping the “context” of use; and (3) adjusting the behavior of “users” to guide responsible digital care for people with intellectual disabilities. Methods: Three cases were considered: (1) design of a web application to support the preparation of meals for groups of people with intellectual disabilities, (2) implementation of an app to help people with intellectual disabilities regulate their stress independently, and (3) implementation of a social robot to stimulate interaction and physical activity among people with intellectual disabilities. Overall, 26 stakeholders participated in 3 multistakeholder workshops (case 1: 10/26, 38%; case 2: 10/26, 38%; case 3: 6/26, 23%) based on the “guidance ethics approach.” We identified stakeholders’ values based on bottom-up exploration of experienced and expected effects of using the technology, and we formulated action opportunities for these values in the specific context of use. Qualitative data were analyzed thematically. Results: Overall, 232 effects, 33 values, and 156 action opportunities were collected. General and case-specific themes were identified. Important stakeholder values included quality of care, autonomy, efficiency, health, enjoyment, reliability, and privacy. Both positive and negative effects could underlie stakeholders’ values and influence the development of action opportunities. Action opportunities comprised the following: (1) technology: development of the technology (eg, user experience and customization), technology input (eg, recipes for meals, intervention options for reducing stress, and activities), and technol
- Published
- 2024
53. What do people with intellectual disabilities, their family members and paid carers understand about psychotropic medication? A rapid review
- Author
-
Cavanagh, Dawn E, Caton, Sue, Rawles, Jodie, Runswick‐Cole, Katherine, Hatton, Chris, Chauhan, Umesh, Hutchinson, Christine, Cavanagh, Dawn E, Caton, Sue, Rawles, Jodie, Runswick‐Cole, Katherine, Hatton, Chris, Chauhan, Umesh, and Hutchinson, Christine
- Abstract
Background: People with intellectual disabilities are more likely to be prescribed psychotropic medication than the general population and are frequently prescribed multiple medications. Understanding people with intellectual disabilities and carer perspectives is essential to improving the quality of psychotropic medication prescribing and usage. Method: A rapid review explored people with intellectual disabilities' understanding of psychotropic medications, as well as family members and paid carers, and how this understanding can be improved. Results: Twenty-one journal articles were included. Lack of understanding of medication was universal, with participants often unaware of adverse effects, alternatives, and rights around medication. There was also a lack of involvement in decision making for all participants. Some interventions aimed at people with intellectual disabilities or paid carers helped to improve knowledge. Conclusion: Evaluating how best to improve psychotropic medication understanding for people with intellectual disabilities, family members and paid carers should be a focus for future research.
- Published
- 2024
54. Using a capability approach to explore how people with intellectual disabilities can lead flourishing lives
- Author
-
Ryan, Sara, O'Brien, Rosaleen, Ryan, Sara, and O'Brien, Rosaleen
- Abstract
Background: People with intellectual disabilities remain disadvantaged in many aspects of everyday life. Capability approach is an underused approach in social care research and has at its core the importance of having capabilities or opportunities to do what we value. We use this approach to explore how people with intellectual disabilities can be supported to lead flourishing lives. Methods: Interviews and focus groups were conducted with 50 people with intellectual disabilities and 28 family carers. Data were analysed using an adapted template approach and conceptual analysis. Results: Our analysis led to the identification of one overarching theme; ‘Doing what you love and growing’ and sub‐themes; ‘Choice, opportunity and empowerment’, ‘Being out in the world’ and ‘Lowered expectations and static lives’. Conclusion: People with intellectual disabilities can lead capability‐deprived lives. Methodological and practice innovation is needed to better understand what people value and ensure they have capability sets that enable flourishing lives.
- Published
- 2024
55. Increasing physical activity through an adapted web-based exercise program for people with intellectual disabilities : Support staff are crucial for feasibility
- Author
-
Vikberg, Sanna, Hölttä, Jessica, Nordström, Anna, Flygare Wallén, Eva, Lund Ohlsson, Marie, Hansen, Elisabeth, Vikberg, Sanna, Hölttä, Jessica, Nordström, Anna, Flygare Wallén, Eva, Lund Ohlsson, Marie, and Hansen, Elisabeth
- Abstract
Background People with intellectual disabilities are less physically active and suffer from ill-health more than the general population. Support staff play an important role in the person's life. This study aimed to explore the support staff's experiences regarding the feasibility of adapted web-based exercise for people with intellectual disabilities. Method Participants with intellectual disabilities living in community-based settings were recruited for a web-based exercise study. Eight semi-structured interviews were carried out with their support staff before and after the intervention period. Results The main theme, ‘Support staff are crucial for feasibility’ encompasses the importance of communication, structure, and motivation in improving physical activity for people with intellectual disabilities. Conclusion The experiences of support staff, indicate that a web-based exercise program is feasible for the target group, and one way to overcome challenges for PA, where the role of the staff is crucial., Parasport och inkluderande träning
- Published
- 2024
- Full Text
- View/download PDF
56. Making knowledge work: Factors, strategies and leadership to improve sharing and application of knowledge in the care and support for people with intellectual disabilities
- Author
-
Kersten, M.C.O. and Kersten, M.C.O.
- Abstract
Background: In the context of caring for people with intellectual disabilities, knowledge (scientific, professional, and experiential) is of profound importance for care professionals to be able to provide sufficiently good care. Through their knowledge policies, care organisations for people with intellectual disabilities seek to stimulate their care professionals to share and apply the knowledge they have acquired. However, it often takes a long time for the most up-to-date scientific knowledge is acquired by care professionals and properly applied within the care and support for people with intellectual disabilities. In addition to this, professional knowledge and experiential knowledge are also insufficiently shared and utilised. If care professionals do not have the requisite knowledge, then this can negatively impact upon their ability to provide professional support, and, in turn, lead to poorer quality of care and quality of life for service users. This thesis focuses on how care professionals in care organisations for people with intellectual disabilities can be stimulated to effectively share and apply knowledge within their practice. Research question and method: Five sub-studies investigated what factors and strategies influence both the sharing and application of knowledge within the context of care and support for people with intellectual disabilities. The first sub-study identified organisational factors that had been identified in extant scientific literature in this field. This revealed the important contingent role of management. Based on this, the second and third sub-studies focused on the key role of CEOs. Through interviews with CEOs, we found out which strategies they deploy in their knowledge policies, what motivated this, and which factors influence the subsequent execution of these strategies. These studies showed, amongst other things, that establishing a good fit between their strategies and inco
- Published
- 2024
57. Online social connections and Internet use among people with intellectual disabilities in the United Kingdom during the COVID-19 pandemic
- Author
-
Caton, Sue, Hatton, Chris, Gillooly, Amanda, Oloidi, Edward, Clarke, Libby, Bradshaw, Jill, Flynn, Samantha, Taggart, Laurence, Mulhall, Peter, Jahoda, Andrew, Maguire, Roseann, Marriott, Anna, Todd, Stuart, Abbott, David, Beyer, Stephen, Gore, Nick, Heslop, Pauline, Scior, Katrina, Hastings, Richard P, Caton, Sue, Hatton, Chris, Gillooly, Amanda, Oloidi, Edward, Clarke, Libby, Bradshaw, Jill, Flynn, Samantha, Taggart, Laurence, Mulhall, Peter, Jahoda, Andrew, Maguire, Roseann, Marriott, Anna, Todd, Stuart, Abbott, David, Beyer, Stephen, Gore, Nick, Heslop, Pauline, Scior, Katrina, and Hastings, Richard P
- Abstract
Having a disability, in particular, an intellectual disability, is associated with Internet non-use. This article explores how people with intellectual disabilities used the Internet across the United Kingdom during the COVID-19 pandemic. In April to May 2021, 571 adults with intellectual disabilities were interviewed. Participants most commonly used the Internet for being with family and friends, social media or doing online activities with other people. People who lived with family were the most likely to use social media; people who lived with other people with intellectual disabilities were the least likely. People who self-reported as not lonely were more likely to use the Internet for online activities with others and play video games with others. Social connections were identified as the best thing about the Internet. Many participants chose not to identify a worst thing about Internet use, while others reported issues with technology, online harm and threats to well-being.
- Published
- 2024
58. Stakeholder experiences of deprescribing psychotropic medicines for challenging behaviour in people with intellectual disabilities
- Author
-
Adams, Danielle, Hastings, Richard P., Maidment, Ian, Shah, Chetan, Langdon, Peter E., Adams, Danielle, Hastings, Richard P., Maidment, Ian, Shah, Chetan, and Langdon, Peter E.
- Abstract
Purpose: Evidence of overprescribing of psychotropic medicines to manage challenging behaviour in people with intellectual disabilities has led to national programmes within the UK to promote deprescribing, such as stopping the overprescribing of medication in people (with learning disabilities, autism or both). To successfully implement deprescribing initiatives, we need to understand how to engage stakeholders in the process. Design/methodology/approach: In a published systematic review, we reported evidence about the process of deprescribing psychotropic medicines for people of all ages with intellectual disabilities and challenging behaviour. As a part of the original review, we searched for evidence about stakeholders’ experiences of the psychotropic deprescribing process, which was synthesised and reported within the current study. Findings: Six studies were identified. Involving carers and people with intellectual disabilities, providing ongoing support and improving access to non-pharmacological interventions, including positive behaviour support, may contribute to successful outcomes, including reducing or stopping psychotropic medicines and improving quality of life. Implementing psychotropic deprescribing requires a multidisciplinary collaborative care approach and education for stakeholders. Originality/value: There have been no previous reviews of stakeholder experiences of deprescribing psychotropic medications for people with intellectual disabilities and challenging behaviour. The existing literature is scant, and further research is needed.
- Published
- 2024
59. Healthcare for people with intellectual disabilities in the Netherlands
- Author
-
Huisman, Sylvia, Festen, Dederieke, Bakker-van Gijssel, Esther, Huisman, Sylvia, Festen, Dederieke, and Bakker-van Gijssel, Esther
- Abstract
In this article, we describe the healthcare system for people with intellectual disabilities (ID) in the Netherlands. The general background about healthcare for people with ID is the same worldwide: their health needs are often unrecognized and unmet. We delineate, from a historical perspective, the steps the Netherlands has taken to change the situation for them. The Netherlands crossed a milestone in 2016 when it ratified the UN Convention on the Rights of Persons with Disabilities. Despite challenges in establishing numbers, an estimated ID prevalence of 1.45% was determined. The Dutch healthcare system has different levels, is funded through six distinct laws, and is complicated. The Netherlands has a spectrum of disability care services that increasingly collaborate in shaping the care of people with ID. People with ID and their representatives are increasingly involved in the process of shaping this care. The general practitioner plays a central role in the Dutch healthcare system, serving as the gatekeeper to medical specialists. Furthermore, the Netherlands recognizes the role of a physician for people with ID as a medical specialization. The core competencies of the ID physician include knowledge of the etiology and consequences of ID and associated health problems. The ID physician also knows how to deal with diagnostic and therapeutic barriers. Key challenges facing ID healthcare in the Netherlands include difficulties supporting people with ID due to the increasing complexity of society, concerns about continuity of care at the transition age (18−/18+), inadequate reach of population screening programs for people with ID, and limited availability of (routine) data for research on the ID population. The Dutch government encourages research in the ID field to overcome these challenges by financially supporting academic collaboratives. Substantial progress has been made, but key challenges remain, showing that there is still great room for improvement.
- Published
- 2024
60. Prevalence of swallowing difficulties and associated factors in older people with intellectual disabilities
- Author
-
Sanders, Kim J.V., Elbers, Roy G., Bastiaanse, Luc P., Echteld, Michael A., Evenhuis, Heleen M., Festen, Dederieke A.M., Sanders, Kim J.V., Elbers, Roy G., Bastiaanse, Luc P., Echteld, Michael A., Evenhuis, Heleen M., and Festen, Dederieke A.M.
- Abstract
Background: We investigated the prevalence of swallowing difficulties and associated factors in people with intellectual disability. Methods: We included people aged 50+ receiving care for people with intellectual disabilities. The Dysphagia Disorder Survey (DDS) was used to assess swallowing difficulties. We determined the agreement between the DDS and swallowing difficulties in medical records. We used logistic regression analyses to explore associated factors. Results: One thousand and fifty people were included. The prevalence of swallowing difficulties was 43.8%. Swallowing difficulties were not reported in the medical records of 83.3% of these cases. Frailty (odds ratio (OR) = 4.22, 95% CI = 2.05–8.71), mobility impairment (OR = 2.50, 95% CI = 1.01–6.19), and mealtime dependency (OR = 3.05, 95% CI = 1.10–8.47) were independently associated with swallowing difficulties. Conclusion: Swallowing difficulties are prevalent in older people with intellectual disability but may be under-recognised. Frailty may be a good indicator for population-based screening for swallowing difficulties.
- Published
- 2024
61. Stereotypes of people with intellectual disabilities held by university education students
- Author
-
Silvia Beunza-García, Biencinto López, Chantal-María, Molina Del Peral, José Antonio, Bel Fenellos, María Cristina, Carpintero Molina, María Elvira, Silvia Beunza-García, Biencinto López, Chantal-María, Molina Del Peral, José Antonio, Bel Fenellos, María Cristina, and Carpintero Molina, María Elvira
- Abstract
Referencias bibliográficas: • Alnahdi, G. H. (2019). The interaction between knowledge and quality of contact to predict Saudi university students’ attitudes toward people with intellectual disability. International Journal of Developmental Disabilities, 67, 202–208. https://doi.org/10.1080/20473869.2019.1638582 • Alnahdi, G. H., Elhadi, A., & Schwab, S. (2020). The positive impact of knowledge and quality of contact on university students’ attitudes towards people with intellectual disability in the Arab world. Research in Developmental Disabilities, 106 (103765), 103765. https://doi.org/10.1016/j.ridd.2020.103765 • American Psychiatry Association-APA. (2022). Diagnostic and statistical manual of mental disorders-TR (DSM-5-TR) (5th ed.). American Psychiatry Association. • Amossy, R., & Herschberg-Pierrot, A. (2020). Estereotipos y clichés. EUDEBA. • Aston, M., Breau, L., & MacLeod, E. (2014). Diagnoses, labels and stereotypes: Supporting children with intellectual disabilities in the hospital. Journal of Intellectual Disabilities: JOID, 18 (4), 291–304. https://doi.org/10.1177/1744629514552151 • Avramidis, E., & Norwich, B. (2002). Teachers’ attitudes towards integration/inclusion: A review of the literature. European Journal of Special Needs Education, 17 (2), 129–147. https://doi.org/10.1080/08856250210129056 • Bates, C. (2020). “It’s nothing to be ashamed of, I’m like, I’m bisexual and I love women, I like men”–Being a bisexual person with an intellectual disability. Journal of Bisexuality, 20 (4), 493–513. https://doi.org/10.1080/15299716.2020.1836544 • Beart, S., Hardy, G., & Buchan, L. (2005). How people with intellectual disabilities view their social identity: A review of the literature. Journal of Applied Research in Intellectual Disabilities, 18 (1), 47–56. https://doi.org/10.1111/j.1468-3148.2004.00218.x • Ben-Zeev, D., Young, M. A., & Corrigan, P. W. (2010). DSM-V and the stigma of mental illness. Journal of Mental Health (Abingdon, England), 19 (4), 31, Stereotypes result from interpersonal and intergroup relations and have specific repercussions on behaviour. This study investigated the stereotypes held by university students in the Faculty of Education, Complutense University of Madrid, Spain, towards people with intellectual disabilities and analysed possible attitudinal differences based on previous contact with people with intellectual disabilities or who had family members with intellectual disabilities. Results obtained through participants’ responses to a list of adjectives showed a clear positive stereotype formed by adjectives such as determined, sincere, affectionate, and capable but no significant differences were found between the groups. The study results were analysed in detail and compared with previous studies, from which future lines of research have been suggested, including longitudinal research, larger samples, and addressing additional variables. Examining the attitudes of people with intellectual disabilities towards others with intellectual disabilities is also important., Depto. de Investigación y Psicología en Educación, Fac. de Educación, TRUE, pub
- Published
- 2024
62. Does Capoeira Practice Modify the Psychomotor Profile of People With Intellectual Disabilities?
- Author
-
Rocha, Paulo G.L., Simim, Mario A.M., Pereira, Antonino M.A., and Aranha, Agata C.M.
- Subjects
Capoeira -- Health aspects ,Education ,Health ,Social sciences ,Sports and fitness - Abstract
This study aimed to identify whether an intervention with capoeira changes the psychomotor profile of people with Intellectual Disabilities (ID). This condition (ID) is characterized by global developmental delay, notably neurological and psychomotor aspects. For this study, 20 students from a specialized educational service diagnosed with ID were divided into two groups (control [CON] and intervention [INT]). After the interventions, the CON group indicated progress in the tonicity and balance factors, while in the INT group, the balance factors, body awareness, spatio-temporal structure, global praxis, fine praxis and total test score improved. We conclude that a capoeira intervention program for people with ID improves the psychomotor profile of participants. Keywords: Person with disabilities, psychomotor development, psychomotor evaluation, motor skills, executive functions, Intellectual disability (ID) is characterized by significant limitations in both intellectual functioning and adaptive behavior, expressed in conceptual, social, and practical skills (Schalock et al., 2021). The ID occurs during [...]
- Published
- 2024
63. Controlling Internet Use: A Contemporary Way of Excluding People With Intellectual Disabilities? Mapping and Understanding Internet Use in Sweden From a Critical Perspective
- Author
-
Jennilie Svensson and Maria Fjellfeldt
- Subjects
social construction of intellectual disability ,internet use ,digital divide ,digital inequality ,power relations ,Social sciences (General) ,H1-99 - Abstract
The internet has become very central to today’s society. The aim of this scoping review was to map internet use among people with an intellectual disability (ID) in Sweden, and to scrutinise the phenomenon from a critical perspective. The concepts of digital divide, digital inequality, social construction of intellectual disability, and power relations were applied to conceptualise the empirical material. The results showed that people with ID have limited access to the internet. A discrepancy in approaches towards internet use was identified. Generally, people with ID subscribe to a positive view of the internet. Among professionals a generally pessimistic view was instead identified. People with ID are described as a vulnerable and naive group, who presumably cannot protect themselves from the risks the internet entails. From a critical perspective, control of internet access could strengthen asymmetric power, and human rights of social participation are withheld from people with ID.
- Published
- 2024
- Full Text
- View/download PDF
64. Perspectives on Quality of Life of People with Intellectual Disabilities: The Interpretation of Discrepancies between Clients and Caregivers
- Published
- 2005
65. Salvamento y socorrismo como deporte inclusivo: una aproximación a la opinión de personas con discapacidad intelectual.
- Author
-
Calle-Molina, María Teresa and Sanz-Arribas, Ismael
- Subjects
PEOPLE with intellectual disabilities ,PARTICIPANT observation ,AQUATIC exercises ,RESEARCH methodology ,EMOTIONS ,SOCIAL justice - Abstract
Copyright of Retos: Nuevas Perspectivas de Educación Física, Deporte y Recreación is the property of Federacion Espanola de Asociaciones de Docentes de Educacion Fisica and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2024
- Full Text
- View/download PDF
66. Democratically included? A systematic literature review on voter turnout of people with intellectual disabilities.
- Author
-
Boman, Björn and Rosenberg, Jonas Hultin
- Subjects
PEOPLE with intellectual disabilities ,WESTERN countries ,COGNITIVE ability ,QUANTITATIVE research ,BALLOTS ,VOTER turnout ,VOTING - Abstract
The extent to which people with intellectual disabilities (ID) are voting is an under-researched area. In order to fill this gap, we conducted a systematic literature review with a focus on voter turnout and democratic inclusiveness among people with ID. In total, we found N = 9 studies that met our inclusion criteria, all of which were based on samples from Western countries such as Croatia, Ireland, Netherlands, Sweden, Switzerland, UK and US. Our findings suggest that people with ID have substantially lower voter turnout than ordinary voters. Constraining factors for voting and other instances of democratic inclusion include educational limitations and physical obstacles at ballot places, as well as being under full guardianship. On the other hand, living in a household with a voter constitutes a facilitating factor. Because of the limited number of studies, we suggest that more basic quantitative and qualitative research in many countries ought to be conducted. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
67. Mellan omsorg och kontroll : En litteraturstudie om våld mot personer med intellektuell funktionsnedsättning på stöd- och omsorgsboende
- Author
-
Palmqvist, Måns and Palmqvist, Måns
- Abstract
Våld mot människor med intellektuell funktionsnedsättning är ett allvarligt samhällsproblem. Omfattande tidigare forskning visar att denna grupp är överrepresenterade som offer för våld och övergrepp såväl inom som utanför funktionshinderomsorgens domän. Trots detta saknas forskning om våldets fenomenologi och kontextensens betydelse för våld inom funktionshinderomsorgens område. Denna scoping review syftar till att undersöka våldets karaktär på stöd- och omsorgsboende för individer med intellektuell funktionsnedsättning. Detta arbete visar på att dessa boende är miljö där våld av både interpersonell och institutionell karaktär frodas. De boendes utsatthet förstärks av faktorer såsom graden av funktionalitet och kön. Våldets negativa effekter ses även förstärkta av den omständighet att det inte sällan är omsorgsorganisationen eller enskilda representanter för denna som står för utförandet av våldshandlingar. Genom att belysa risk- och skyddsfaktorer kopplade till våld och makt inom funktionshinderomsorgen och omsorgsboenden framträder bilden av den organisatoriska kulturen som en central faktor när det gäller våld och missförhållande kopplat till miljön på stöd- och omsorgsboenden. Trots att lagstiftning och riktlinjer inom funktionshinderomsorgen har utvecklats väsentligt de senaste årtiondena så tycks ett fostrande ideal med institutionella anor leva vidare inom delar funktionshinderomsorgen., Violence against people with intellectual disabilities is a significant social problem. Extensive previous research shows that this group is over-represented as victims of violence and abuse both within and outside the domain of disability services. Despite this, research on the phenomenology of violence is lacking. This scoping review aims to examine the nature of violence in residential care settings for individuals with intellectual disabilities. This review shows that these settings for are an environment where violence of both an interpersonal and institutional nature thrives. Residents' vulnerability is reinforced by factors such as their level of functionality and gender. The negative effects of violence are also amplified by the fact that it is frequently the care organisation or individual representatives of the organisation who carry out acts of violence. By highlighting risk and protection factors linked to violence and power in disability care and residential care settings, the picture emerges of an organisational culture as a central factor in violence and abuse linked to the environment in residential care settings. Legislation and guidelines in disability care have developed considerably in recent decades, but still an educationist ideal with institutional roots lives on both inside and outside disability care.
- Published
- 2024
68. Norwegian Health Professionals’ Attitudes Toward Addressing Sexual Health with People with Intellectual Disabilities
- Author
-
Devik, Siri Andreassen, Henriksen, Stine Marlen, Areskoug Josefsson, Kristina, Olsen, Rose Mari, Devik, Siri Andreassen, Henriksen, Stine Marlen, Areskoug Josefsson, Kristina, and Olsen, Rose Mari
- Abstract
Introduction Staff working with individuals with intellectual disabilities face challenges addressing sexual health. Professionals in this context have diverse backgrounds and education, and little is known about their attitudes and skills in providing support for a healthy sexual life and preventing abuse. Moreover, this topic has not been explored in the Norwegian context. The current study examined health professionals’ attitudes toward addressing sexual health with individuals with intellectual disabilities in Norwegian municipal health and care services. Methods A cross-sectional study was conducted using the Norwegian version of the professionals’ attitudes toward addressing sexual health among 72 health professionals working in municipal services for people with intellectual disabilities in Mid-Norway. The data was collected from November 2022 to January 2023. Results The professionals reported feeling partially comfortable and prepared to address sexual health issues with clients. They consistently expressed a need for more basic knowledge about sexual health and training in communicating about sexuality. Attitudes toward addressing sexual health varied based on the professionals’ education, gender, age, and work experience. Conclusions More targeted training on sexual health is needed within the educational programmes in health and social sciences. Sexual health should also be continuously addressed in the workplace and among colleagues. The differences in attitudes between professionals indicate that the composition of the staff benefits from diversity.Policy Implications Healthcare managers are responsible for ensuring greater openness and reflection on attitudes toward sexuality among individuals with intellectual disabilities in workplaces. Educational institutions must provide the necessary skill development and training in communication about sexual health for this client group., CC BY 4.0
- Published
- 2024
- Full Text
- View/download PDF
69. Annual health checks for people with intellectual disabilities: An exploration of experiences, follow-up and self-management of health conditions
- Author
-
Cavanagh, DE, Northway, R, Todd, S, Cavanagh, DE, Northway, R, and Todd, S
- Abstract
Background: Little is known about how health issues identified at the annual health check (AHC) are followed up and addressed, how participants self-manage their health in between AHCs, and what support they receive. This research aimed to explore this. Methods: People with intellectual disabilities (n = 12), and/or their supporters residing in Wales, were interviewed following their AHC and again at 6 and 11 months. A recurrent cross-sectional thematic analysis was undertaken. Results: Five main themes emerged from interview one: going for a health check, issues identified, and actions taken, supporting the self-management of health, the personal context, and addressing health inequities. Four main themes emerged from follow-up interviews: follow-up, supporting the self-management of health, the need for reasonably adjusted health services, and going for another health check. Conclusion: A broader system of support around the AHC is required if people are to achieve or maintain the best possible health.
- Published
- 2024
70. Adaptation and Incremental Validity of the Pemberton Happiness Index: A New Measure of Integrative well-being for People with Intellectual Disabilities
- Author
-
Monterde, N., Hervás Torres, Gonzalo, Blanco Martínez, Iván, Monterde, N., Hervás Torres, Gonzalo, and Blanco Martínez, Iván
- Abstract
Introduction. The assessment of well-being is crucial for measuring the effects of psychosocial interventions in people with intellectual disabilities. The aim of this study was to adapt and validate a measure of integrative well-being, the Pemberton Happiness Index (PHI) to use it specifically for this population. Methods. The Pemberton Happiness Index was first tailored to individuals with intellectual disabilities (PHI-Intellectual Disabilities). Then a sample of 130 adults with mild-moderate intellectual disabilities completed this adapted version alongside other well-being and affective measures. Results. The psychometric properties of this new PHI-Intellectual Disabilities were shown to be very good (i.e., internal consistency, convergent and incremental validity). Conclusion. The study provides initial evidence of the reliability and validity of a brief measure of well-being that can be used for both applied and research purposes specifically for adults with mild-moderate intellectual disabilities., Plena inclusión, Depto. de Personalidad, Evaluación y Psicología Clínica, Fac. de Psicología, TRUE, pub
- Published
- 2024
71. Differentiation of the body build and posture in the population of people with intellectual disabilities and Down Syndrome: a systematic review
- Author
-
Eliza Gaweł, Diana Celebańska, and Anna Zwierzchowska
- Subjects
Body composition ,Flat foot ,Spine ,Overweight ,Developmental disabilities ,Cervical spine ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background The aim of the study was to identify the variables of the internal compensatory mechanisms that differentiate the body build and posture of people with Down syndrome (DS) from the intellectual disability (ID) population. It was assumed that gaining knowledge in the abovementioned aspect will allow for a better understanding of the limitation of the kinesthetic abilities of people with ID and DS and simultaneously enable to optimize the process of planning and interventions to improve physical activity in this population with the adequate use of theirs strengths in the biomechanical and morphofunctional systems. Methods The methodology of this systematic review was developed according to the PRISMA guidelines. A search of PubMed, EBSCO, Scopus databases was conducted to identify all studies on DS/ID and the body build and posture from 2003 to 2023. Results 395 articles were assessed to determine eligibility, while 22 studies met the inclusion criteria and were subjected to detailed analysis and assessment of their methodological quality. The differentiation of the body build and posture in DS population can be induced by both internal and external compensatory mechanisms. It is difficult to confirm the direct effect of the intrinsic variables that impact the body build and posture in the ID population, excluding people with DS. Conclusions Compared to other ID, the intrinsic differences in the body build and posture in DS individuals were induced by gender, age, and level of ID. The tendency for diversity between DS and other ID populations in body build and posture may be determined by the presence of the third copy of chromosome 21 in DS group. Internal compensatory processes may be induced mainly by abnormalities in the structure of the cervical vertebrae and feet. IQ should not be used as the only variable that identifies the population of people with ID.
- Published
- 2024
- Full Text
- View/download PDF
72. Deprescribing psychotropic medicines for behaviours that challenge in people with intellectual disabilities: a systematic review
- Author
-
Adams, Danielle, Hastings, Richard P., Maidment, Ian, Shah, Chetan, and Langdon, Peter E.
- Published
- 2023
- Full Text
- View/download PDF
73. Protect Yourself: Abuse Prevention for People With Intellectual Disabilities (AP4ID)
- Author
-
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
- Published
- 2023
74. Acceptability of virtual psychiatric consultations for routine follow-ups post COVID-19 pandemic for people with intellectual disabilities: cross-sectional study
- Author
-
Samuel Tromans, Sarah Rybczynska-Bunt, Sarah Mitchell, Susan Cummins, David Cox, Jennifer Downing, Paul H. Lee, Lucy Teece, Tony Marson, and Rohit Shankar
- Subjects
COVID-19 ,developmental disabilities ,virtual consultations ,remote consultation ,risk ,Psychiatry ,RC435-571 - Abstract
Background After the rapid implementation of digital health services during the COVID-19 pandemic, a paucity of research exists about the suitability of remote consulting in people with intellectual disabilities and their carers, particularly for neuropsychiatric reviews. Aim This study examines when remote neuropsychiatric routine consulting is suitable for this population. Method A survey was conducted of people with intellectual disabilities and their carers, examining their preference between face-to-face and video consultations for ongoing neuropsychiatric reviews within a rural countywide intellectual disability service in Cornwall, England (population: 538 000). The survey was sent to all adults with intellectual disabilities open to the service on 30 July 2022, closing on 30 September 2022. Participants were asked to provide responses on 11 items predesigned and co-produced between clinicians and experts by experience. The entire service caseload of people had White ethnicity, reflecting the ethnic demographics of Cornwall. Responses received without consent were excluded from the study dataset. Results Of 271 eligible participants, 119 responses were received, 104 of whom consented to having their anonymised data used for research analysis. There were no significant differences between preferences and age and gender variables. There was no statistically significant difference regarding preference for the reintroduction of face-to-face appointments (52.0%) compared with video consultations (48.0%). Travel distance (>10 miles) to the clinical setting was important but did not outweigh benefits for those preferring a face-to-face appointment. Conclusions This study offers insights into the factors that influence preferences about what type of neuropsychiatric appointment is most suitable for people with intellectual disabilities.
- Published
- 2024
- Full Text
- View/download PDF
75. Assessment of adaptive behavior in people with intellectual disabilities: Design and development of a new test battery
- Author
-
Alicia Boluarte Carbajal, Gina Chávez-Ventura, Jorge Cueva-Vargas, and Angel Zegarra-López
- Subjects
Adaptive behavior ,Intellectual disability ,Test development ,Psychometrics ,Peru ,Science (General) ,Q1-390 ,Social sciences (General) ,H1-99 - Abstract
Background: Adaptive behavior is an important characteristic of people with intellectual disabilities, and it has been associated with a person's performance in social and work contexts. Indeed, adaptive behavior denotes what a person does independently, without help, support, reminders, or prompts. In Peru, available measures of adaptive behavior are commercial; thus, there is a need for an open-access tool to assess the adaptive behavior of people with intellectual disabilities. For this reason, the aim of the study was to design and develop a new Adaptive Behavior Test Battery for people from 13 to 60 years old with intellectual disabilities who have an interest in being part of the economically active population. Methods: A cross-sectional design was defined, starting with a qualitative approach to designing and constructing the item pool for the test battery. Then, quantitative indexes Aiken's V for content validity and Krippendorff's alpha for inter-observer reliability were estimated, resulting in a first version of the three subscales that comprised the test battery. The initial versions were tested on a sample of 566 persons with intellectual disabilities from two regions of Peru: Lima (Coast) and San Martín (Jungle). The internal structure was analyzed under a factor analysis approach, along with internal consistency measures of reliability. Further analyses of invariance regarding gender, region, and age were carried out. Results: Three observer subscales were proposed: Daily living activities (11 items), Instrumental skills (4 items), and Communication (9 items). All subscales showed excellent psychometric properties denoted by the Aiken's V coefficient, Krippendorff's alpha, factor analysis, internal consistency analysis, and invariance analyses. Conclusion: The developed a new Adaptive Behavior Test Battery is a useful tool for the measurement of adaptive behavior and the monitoring of social and labor inclusion programs for people with intellectual disabilities.
- Published
- 2024
- Full Text
- View/download PDF
76. Explaining reproductive health inequalities among people with intellectual disabilities: a meta-narrative review protocol.
- Author
-
Kaley A, Eastham R, McMahon MJ, and Merrett N
- Subjects
- Humans, Healthcare Disparities, Research Design, Meta-Analysis as Topic, Review Literature as Topic, Health Status Disparities, Intellectual Disability, Reproductive Health
- Abstract
Introduction: People with intellectual disabilities experience health inequalities at a greater level than their non-disabled peers. Notably, while general health status is starting to receive some attention, the reproductive health and rights of people with intellectual disabilities continue to be understudied from a policy and research perspective. The objective of this review is to elucidate the complex interplay between individual, social and structural factors that influence reproductive health outcomes for this population. The findings will be used to develop a theoretical framework to explain how and why reproductive health inequalities persist for people with intellectual disabilities and to identify gaps in the knowledge base to inform future research on this topic., Methods and Analysis: A six-stage meta-narrative review will be undertaken to synthesise the available evidence that seeks to explain the reproductive health inequalities experienced by people with intellectual disabilities and the factors contributing to these inequalities. The protocol for this review was developed in accordance with the Realist And MEta-narrative Evidence Syntheses: Evolving Standards publication standards, and the Preferred Reporting Items for Systematic Review and Meta-Analysis Protocol guideline is completed to ensure transparency., Ethics and Dissemination: This meta-narrative review protocol does not require formal ethics review because it will be based on published studies. The findings from this review will be submitted to a peer-reviewed journal and presented at national and international conferences. We will also produce our findings in a range of accessible and easy-to-read formats., Prospero Registration Number: CRD42024495199., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
- Published
- 2024
- Full Text
- View/download PDF
77. Exploring Cancer Prevention Challenges for People with Intellectual Disabilities: Perspectives from Family Caregiver.
- Author
-
Golubović Š, Simin D, Vuković V, Demirović S, and Milutinović D
- Abstract
Background: Cancer prevention is a crucial public health strategy, with 30-50% of cancers being preventable through early screening and lifestyle modifications. However, people with intellectual disabilities (PWID) face significant barriers to cancer prevention services, leading to delayed diagnoses and poorer outcomes. Family caregivers play a key role in bridging the healthcare access gaps for PWID, but there is limited research exploring their perspectives on cancer prevention. This study examined the needs, challenges, and strategies family caregivers employ in cancer prevention for PWID, framed within Bronfenbrenner's ecological systems theory. Methods: A mixed methods sequential explanatory design was used. Quantitative data were collected through a structured questionnaire from 41 caregivers of PWID, followed by qualitative semi-structured interviews with 15 caregivers to explore the quantitative findings further. Data were analysed using descriptive statistics, chi-square tests, and thematic content analysis. Results: The study revealed that 75.6% of caregivers had not received information about cancer prevention for PWID, and 63.4% did not regularly coordinate cancer screenings. Barriers identified included a lack of accessible information, logistical challenges, and emotional strain. However, 80.5% of caregivers expressed a need for additional training to support their roles in cancer prevention. Qualitative findings highlighted four key themes: promoting a healthy lifestyle, access to healthcare services, health literacy, and psychosocial support. Conclusions: The findings emphasise the need for tailored cancer prevention strategies and educational resources for caregivers of PWID. Addressing these gaps requires systemic changes in healthcare practices, better coordination of services, and enhanced support for caregivers to reduce the barriers to cancer prevention for PWID.
- Published
- 2024
- Full Text
- View/download PDF
78. Childhood risk factors and clinical and service outcomes in adulthood in people with intellectual disabilities.
- Author
-
Perera B, Mufti S, Norris C, Baksh A, Totsika V, Hassiotis A, Hurks P, and van Amelsvoort T
- Abstract
Background: Adults with intellectual disability experience increased rates of mental health disorders and adverse mental health outcomes., Aim: Explore childhood risk factors associated with adverse mental health outcomes during adulthood as defined by high cost of care, use of psychotropic medication without a severe mental illness and psychiatric hospital admissions., Method: Data on 137 adults with intellectual disability were collected through an intellectual disability community service in an inner London borough. Childhood modifiable and non-modifiable risk factors were extracted from records to map onto variables identified as potential risk factors. Logistic and linear regression models were employed to analyse their associations with adverse outcomes., Results: We showed that the co-occurrence of intellectual disability with autism spectrum disorder and/or attention-deficit hyperactivity disorder (ADHD) were associated with psychotropic medication use and high-cost care packages. However, when challenging behaviour during childhood was added, ADHD and autism spectrum disorder were no longer significant and challenging behaviour better explained medication prescribing and higher cost care. In addition, the severity of intellectual disability was associated with higher cost care packages. Ethnicity (Black and mixed) also predicted higher cost of care., Conclusions: Challenging behaviour during childhood emerged as a critical variable affecting outcomes in young adulthood and mediated the association between adult adverse mental health outcomes and co-occurring neurodevelopmental conditions, that is, ADHD and autism. These findings emphasise the need for effective early intervention strategies to address challenging behaviour during childhood. Such interventions for challenging behaviour will need to take into consideration autism and ADHD.
- Published
- 2024
- Full Text
- View/download PDF
79. Acceptance and Use of eHealth in Support and Psychological Therapy for People With Intellectual Disabilities: Two Cross-Sectional Studies of Health Care Professionals.
- Author
-
Oudshoorn C, Frielink N, Riper H, and Embregts P
- Subjects
- Humans, Cross-Sectional Studies, Male, Female, Adult, Netherlands, Middle Aged, Surveys and Questionnaires, Psychotherapy, Telemedicine, Intellectual Disability psychology, Intellectual Disability therapy, Health Personnel psychology, Attitude of Health Personnel, COVID-19 psychology, COVID-19 epidemiology
- Abstract
Background: Acceptance of health care professionals is of paramount importance for the uptake and implementation of eHealth. The Unified Theory of Acceptance and Use of Technology (UTAUT) model is a widely used framework for studying health care professionals' acceptance and actual use of eHealth among general client populations. However, there is limited understanding of the eHealth acceptance of health care professionals working with people with intellectual disabilities (ID)., Objective: This study aimed to explore the applicability of the UTAUT model toward understanding the acceptance, intention to use, and actual use of eHealth among support staff and therapists working with people with ID., Methods: A total of 2 cross-sectional survey studies were conducted among health care professionals from 5 health care organizations for people with ID in the Netherlands in 2018 (n=311) and in 2021 during the COVID-19 pandemic (n=326). In addition to confirmatory and exploratory factor analyses to evaluate both the original UTAUT model and an extended version, descriptive analysis was used to explore participants' characteristics, acceptance levels, and eHealth usage. Moderator analysis and multiple regression analysis were also used., Results: A confirmatory factor analysis indicated a poor fit for both the original 4-factor UTAUT model and the extended version. An exploratory factor analysis was then conducted, resulting in a more satisfactory 5-factor model after removing 1 item with a factor loading <.40. Internal consistency of the 5 factors ranged from acceptable to good (Cronbach α=.76-.85). Collectively, all factors predicted the intention to use eHealth in 2018 (R
2 =0.47; F5,305 =54.885; P<.001) and in 2021 (R2 =0.43; F5,320 =49.32; P<.001). Participants scored moderately on all 5 acceptance factors in both 2018 and 2021. Moderator analysis indicated that age and voluntariness influence the relationship between factors that determined acceptance and intention to use eHealth., Conclusions: The findings from 2 cross-sectional studies conducted in 2018 and 2021, using an extended UTAUT model, gave a deeper understanding of eHealth acceptance among health care professionals who work with people with ID., (©Cathelijn Oudshoorn, Noud Frielink, Heleen Riper, Petri Embregts. Originally published in JMIR Formative Research (https://formative.jmir.org), 12.11.2024.)- Published
- 2024
- Full Text
- View/download PDF
80. Mainstream Technologies in Facilities for People With Intellectual Disabilities: Multiple-Methods Study Using the Nonadoption, Abandonment, Scale-Up, Spread, and Sustainability Framework.
- Author
-
Menschik C, Kunze C, Renner G, and Etges T
- Abstract
Background: People with intellectual disabilities in residential or outpatient facilities for people with disabilities run the risk of being digitally excluded by not having opportunities for taking advantage of digitalization possibilities., Objective: We aimed to investigate how disability caregivers and managers describe barriers and facilitating factors to implement and adopt mainstream technology for people with intellectual disabilities in residential or outpatient facilities and how the competencies and capabilities of the caregivers are assessed in the process., Methods: For this reason, we conducted a multiple-methods study applying the nonadoption, abandonment, scale-up, spread, and sustainability framework., Results: As a result, we identified barriers and facilitators across the nonadoption, abandonment, scale-up, spread, and sustainability framework domains: (1) condition-people with intellectual disabilities are a diverse group, where the individual condition of the person and, for example, their communication skills were seen as a prerequisite for implementing mainstream technologies; (2) technology-the extent to which mainstream technology fits the individual needs and demands contributed to the implementation process; (3) value proposition-communication was seen as a life area where mainstream technology can add value; (4) adopters-the caregivers needed competencies and capabilities to accompany their care recipients' technology use; (5) organization-missing legal regulations and lack of personnel resources were described as barriers; (6) wider context-funding opportunities were seen as unclear in disability services as mainstream technologies could not be financed as participation benefits; (7) embedding and adaptation over time-the COVID-19 pandemic forced facilities to become digitalized to some extent., Conclusions: The disability services investigated were still in need of standardized procedures to promote the digital participation of their residents., (©Christian Menschik, Christophe Kunze, Gregor Renner, Theresa Etges. Originally published in JMIR Rehabilitation and Assistive Technology (https://rehab.jmir.org), 05.11.2024.)
- Published
- 2024
- Full Text
- View/download PDF
81. Health-related physical fitness and blood pressure in people with intellectual disabilities in Korea
- Author
-
Bogja Jeoung and Do Young Pyun
- Subjects
Medicine ,Science - Abstract
Abstract Hypertension is one critical health issue causing cardiovascular diseases. There has been a common concern among health researchers that the prevalence of hypertension, known as high blood pressure, has been more frequently observed among people with intellectual disabilities, compared to the general population. Thus, this study aims to identify which health-related physical fitness and body composition factors are significantly related to both systolic and diastolic blood pressures among people with intellectual disabilities. The data from 2180 people with intellectual disability who conducted the physical fitness tests from 2019 to 2020 were used for this study. Four physical fitness tests (i.e., 3-min step, grip strength, sit-up, and sit and reach) and two body compositions (i.e., body mass index and body fat %) used as predictors, and two blood pressures (i.e., systolic blood pressure and diastolic blood pressure) were used as outcome variables. A regression analysis was performed to examine the proposed associations. The regression test revealed that 3-min step, body mass index, and body fat % were significantly associated with both systolic blood pressure and diastolic body pressure. This research contributes to our understanding of the roles of body compositions and aerobic endurance in preventing hypertension among people with intellectual disability.
- Published
- 2024
- Full Text
- View/download PDF
82. Social inclusion of adult people with intellectual disabilities in Croatia
- Author
-
Ostojić Baus Jasna S., Gašpar-Čičak Andrea L., and Jakovčev Mirjana D.
- Subjects
adults with intellectual disabilities ,social inclusion ,age ,gender ,Special aspects of education ,LC8-6691 - Abstract
Introduction. Contemporary social policies aimed at individuals with disabilities are grounded in the social model of disability. As a result, the primary objective of social policy towards individuals with disabilities globally, within the EU, and also in Croatia, is the pursuit of social inclusion following the initiation of deinstitutionalization. Objectives. This research aimed to examine the social inclusion of adults with intellectual disabilities in Croatia. The primary objective involved identifying dimensions or factors within the social inclusion Questionnaire. Additionally, the study sought to explore potential correlations between the age and gender of adults with intellectual disabilities and their level of social inclusion. Method. The study comprised 145 adults with intellectual disabilities, residing with their families in various cities across the Republic of Croatia. A questionnaire specifically tailored to measure the social inclusion of people with intellectual disabilities was developed. Results. The final version of the Questionnaire singled out 4 factors within the construct of social inclusion: Social environment and physical health; Inclusion and human rights; Mental health and relationships with family and friends; and Economic well-being. The findings revealed that there were no statistically significant associations between the social inclusion of individuals with intellectual disabilities and either their age or gender. Conclusion. It is important to develop better measurement instruments for social inclusion and to conduct research on a larger sample of individuals not involved in non-governmental programs. The impact of age and gender should also be examined qualitatively to identify specific characteristics. Additionally, according to the descriptive data, there is a need for improved educational programs and employment opportunities for people with intellectual disabilities.
- Published
- 2024
- Full Text
- View/download PDF
83. Mental Health of People with Intellectual Disabilities Living in Residential Care before, during, and after Lockdown.
- Author
-
Gil-Llario, María Dolores, Díaz-Rodríguez, Irene, Fernández-García, Olga, Estruch-García, Verónica, Bisquert-Bover, Mar, and Ballester-Arnal, Rafael
- Subjects
- *
PEOPLE with intellectual disabilities , *MENTAL health , *RESIDENTIAL care , *STAY-at-home orders , *WELL-being - Abstract
Background: The impact of the COVID-19 on the well-being of people with intellectual disabilities (PID) has been little studied. Methods: We analyzed its impact with a cohort study quantitatively analyzing anxiety, depression, organic symptoms, quality of life, and support needs in 24 PID, aged 19–74 years ( x ¯ 40, σ = 13.09), living in a residential center, before, during, and after the pandemic. Results: Their mental health improved unexpectedly at the onset of the lockdown although there was an increase in organic symptoms. But, with the progress of the lockdown, their mental health deteriorated drastically. On the contrary, as expected, their quality of life and support needs worsened from the beginning of the lockdown until the country returned to normality, a time when there was a general recovery, without reaching pre-pandemic levels. These results show that the mental health of PID was affected differently to that of people without intellectual disabilities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
84. Analysis of the Attitudes towards Sexuality in People with Intellectual Disabilities: A Cross-Sectional Study
- Author
-
José Carlos López-García, Azucena González-Sanz, Elena Sutil-Rodríguez, Carlos Saus-Ortega, Regina Ruiz de Viñaspre-Hernádez, Raúl Juárez-Vela, Vicente Gea-Caballero, Juan Luis Sánchez-González, Clara Isabel Tejada-Garrido, Ana Cobos-Rincón, José María Criado-Gutiérrez, and Consuelo Sancho-Sanchez
- Subjects
intellectual disability ,sexuality ,attitudes ,Nursing ,RT1-120 - Abstract
The barriers faced by people with intellectual disabilities are many. One of the areas in which many problems have been identified is the sexual domain. This descriptive study aims to analyze the attitudes of the family environment, professional carers, and the general population toward their sexuality. A cross-sectional descriptive study was carried out between 2022 and 2023, using convenience sampling among family members and carers from different centers working with people with intellectual disabilities in Spain, and among the general population not related to people with intellectual disabilities. A total of 583 responses were received and significant differences were found for all variables, with the variables related to family or work proximity being those that provided the most significant and relevant results. It was observed that the male sex has a more paternalistic attitude and that in rural areas there is a more permissive attitude towards the sexuality of people with intellectual disabilities. People who work with people with disabilities have more positive attitudes towards this group, while direct relatives have more paternalistic attitudes. Nursing care in the community and specialized centers should be based on an adequate therapeutic relationship and personalized care.
- Published
- 2023
- Full Text
- View/download PDF
85. Exploring the implementation of positive behaviour support as an intervention for people with intellectual disabilities and behaviours that challenge
- Author
-
Rogers, Natasha
- Subjects
Clinical psychology - Abstract
This portfolio thesis is comprised of three parts. It explores the implementation of positive behaviour support (PBS) to support people with intellectual disabilities and behaviours that challenge. Part one contains the systematic literature review that aimed to explore the effects of implementing PBS in services that support people with intellectual disabilities and behaviours that challenge. Fourteen papers were analysed using narrative synthesis and five themes were constructed, including: 'reduction of behaviours that challenge', 'reduction of the use of psychotropic medication', 'improvements in quality of life', 'changes in the extent of support required' and 'elements of positive behaviour support which assisted changed in outcomes post-implementation'. The quality of the literature included is assessed, and the implications for clinical practice and future research are discussed. Part two contains the empirical paper that aimed to explore the experiences of health care assistants who used PBS in an inpatient service to support people with intellectual disabilities and behaviours that challenge. Six participants shared their experiences in semi-structured interviews. The transcripts were analysed using interpretative phenomenological analysis and three superordinate themes were constructed: 'understanding behaviours that challenge', 'using PBS as a HCA' and 'relationships'. The clinical implications and future research suggestions are discussed. Part three contains the appendices that accompany both the systematic literature review and the empirical paper. A reflective statement on the researcher's experiences of the research and an epistemological statement on the researcher's assumptions are included.
- Published
- 2022
86. Exploring person-centredness in residential services with older people with intellectual disabilities, their family members and staff : a mixed methods study
- Author
-
Conway, Martina, Barr, Owen, Melby, Vidar, and Slater, Paul
- Subjects
Older people ,Intellectual disabilities ,Person-centred ,Community housing ,Mixed methods ,Republic of Ireland - Abstract
Background: The importance of recognising the older person with an intellectual disability as a unique and valued citizen, living a connected and fulfilling life, is one of the foundations for this study. The principles of person-centred practice are strongly connected to intellectual disability services but are typically associated with person-centred planning. Key principles of person-centredness include choice, relationships and staff engagement. Policy changes in Ireland since 2011 has shifted the focus of care from large residential settings to living in a home environment within a community setting, created in partnership with staff. Previous research within intellectual disabilities services has focused on person-centred planning as a process. This study used an evidence-based person-centred framework as the theoretical lens to explore the concept of person-centeredness in practice. Aim and objectives: This study explored how person-centredness is perceived and experienced within residential services. Older people with intellectual disabilities, their families and staff were research participants in the study. The objectives were: 1. To examine staff practice and understanding of person-centredness within their day-to-day work. 2. To gain insight from older people with intellectual disabilities and their family members on person-centredness. 3. To synthesise the experiences of older people and family members with those of staff to expand the understanding of person-centred practice for older people with intellectual disabilities. Methodology: A two-phase sequential mixed-methods approach was adopted for this research study. In phase one, a quantitative survey, the Person-Centred Practice Inventory-Staff, instrument was distributed to registered nurses and healthcare assistants working in residential services in one region of the Republic of Ireland. Phase two included 15 in-depth interviews with older people with intellectual disabilities and six in-depth interviews with their family members. Two focus groups and three semi-structured interviews were conducted with staff working in residential services. Findings: The data from both quantitative and qualitative phases were analysed and integrated at the interpretative phase of the study. The 229 completed Person-Centred Practice Inventory-Staff questionnaires were analysed and the data revealed that staff reported they were person-centred in their practice and delivered person-centred care. In the qualitative data analysis with older people and the family members, they shared that they valued this time in their lives for comfort and enjoyment. They spoke of the importance of belonging and connection to home, family and community. The focus groups and interview data with staff revealed that they felt services were not always structured to realise person-centeredness in practice, despite this they reported a commitment to their role. The concept of 'othering' emerged from the data analysis finding that the attribution of negative characteristics impacted on how people with intellectual disabilities are perceived within communities and services. Implications for practice: It should be a central aim within intellectual disability services to establish participatory processes in practice to create the foundation for the development of an in-depth understanding and implementation of person-centeredness. Future planning in collaboration with older people and their families is important to promote active ageing and belonging to their communities. The right to choose where to live and with whom should be recognised. The impact of 'othering' of people with intellectual disabilities needs to be meaningfully discussed in partnership with people with intellectual disabilities, their families and service providers at operational and strategic levels.
- Published
- 2022
87. "They don't understand people with learning disabilities" : exploring the experiences of people with intellectual disabilities who undergo welfare assessments
- Author
-
Ward, Bethan
- Abstract
Individuals with intellectual disabilities are eligible for out of work and disability benefits within the United Kingdom (UK) welfare system. Research suggests that the welfare system causes psychological harm (Arie, 2018), which has been linked to work capability assessments (WCA; Barr et al., 2016). Existing studies on people who claim benefits (e.g. Allen et al., 2016) have not focussed on the experiences of people with intellectual disabilities. The aim of this project is to explore the experiences of people with intellectual disabilities who undergo WCA and provide insight into potential interventions to reduce any psychological distress related to claiming benefits. Stigma is experienced by people who claim benefits (Baumberg et al., 2016) and people with intellectual disabilities (Scior, 2016). Stigma has been linked to psychological distress in people with intellectual disabilities (Ali et al., 2015) and people who claim benefits (Thompson, in press). Self-stigma may be particularly harmful (Boyd et al., 2014). It has been suggested that self-compassion may act as a buffer between self-stigma and distress (Wong et al., 2019). Therefore, Chapter One of the thesis comprises a systematic review of literature examining the relationship between self-stigma and self-compassion. The synthesis of twenty quantitative papers demonstrated consistent, inverse associations between self-compassion and self-stigma scores, suggesting that self-compassion could have potential benefits for reducing the impact of self-stigma. Chapter Two is an empirical paper exploring the lived experiences of eight people with intellectual disabilities in the UK, who were interviewed about their experiences of being assessed for welfare eligibility. Interpretative phenomenological analysis (IPA) suggested five closely related themes; living in fear; marginalisation; relationship with the assessor; others as a safe base; and finding value. The findings captured the distressing nature of the benefit assessment process for people with intellectual disabilities. Although this was an exploratory study, findings suggest that future research and interventions might be usefully targeted towards improving the experience of the assessment process, as well as clinically treating individual's responses to the assessment process. Recommendations for change across individual, systemic and policy levels are included.
- Published
- 2022
- Full Text
- View/download PDF
88. The experiences of staff who support people with intellectual disabilities
- Author
-
D'Sa, Rachel
- Abstract
This thesis offers a contribution to the research on staff who support people with intellectual disabilities. The first section is a systematic review of studies which have measured the psychological construct of Emotional Intelligence (EI), of staff in services for people with intellectual disabilities. Six academic databases were searched and 15 empirical studies were identified for inclusion. The results gave an indication that staff EI may relate to aspects of their wellbeing, but the heterogeneity and variable quality across studies limited the extent to which meaningful conclusions could be drawn. There was minimal evidence on the effects of training which aims to improve staff EI, and a notable lack of investigation into how staff EI relates to service-user outcomes. The issues which future research needs to address, in order to determine if EI is a useful target for service development, are discussed. The second section describes a qualitative research project, which explored the experiences of working relationships for staff who provide direct support to adults with intellectual disabilities. Six support workers, from supported living services in England, participated in semi-structured interviews, about their relationships with service-users and colleagues. An interpretative henomenological analysis was conducted, from which six interconnected themes emerged: (A) The essence of good relationships; (B) A trusting relationship as the vehicle for meeting service-users' needs; (C) Belonging to the support team; (D) The organisational context of relationships; (E) The social context of relationships; (F) "A fine balancing act". The paper discusses how these findings build on existing research on the wellbeing of direct care staff, along with potential implications for service providers. The third section is a critical appraisal which considers links between the literature review and research paper findings, discusses some future research directions which arise, and explores personal reflections on conducting the research project.
- Published
- 2022
- Full Text
- View/download PDF
89. Factors Associated with Positive Work Experience among Professionals Supporting People with Intellectual Disabilities: A Comparative Analysis of Three Welfare Organisations in Sweden
- Author
-
Ineland, Jens and Starke, Mikaela
- Abstract
Given the crucial role professionals play in maintaining the well-being of people with intellectual disabilities, their views on work satisfaction are relevant to analyse. A comparative analysis that takes into account the support provided in different welfare organisations can be of certain importance. The aim is to analyse the most common aspects of professional work satisfaction in work with people with intellectual disabilities in schools, healthcare, and social services, and to apply a comparative analysis of such experience taking into account respondents' organisational affiliations. Data were collected using a digital questionnaire. Given the aim of the study, we drew on one open-ended question: 'describe aspects of your work that are most satisfactory for you'. The analysis shows that respondents associated positive work experience with seven aspects: autonomy, competence, nature of the work, collaboration, trust and recognition, work environment, and service users. Findings indicate that discretion is an important facet of work satisfaction among respondents in all three organisations. Flexibility, autonomy in decision-making, the ability to plan and act within certain institutional and legal frameworks, and the ability to prioritise among daily work assignments are empirical examples of this.
- Published
- 2022
- Full Text
- View/download PDF
90. Understanding covid-19 outcomes among people with intellectual disabilities in England
- Author
-
Sosenko, Filip, Mackay, Daniel, Pell, Jill P., Hatton, Chris, Jani, Bhautesh D., Cairns, Deborah, Ward, Laura, Henderson, Angela, Fleming, Michael, Nijhof, Dewy, and Melville, Craig
- Published
- 2023
- Full Text
- View/download PDF
91. Cognitive Support Technology for People with Intellectual Disabilities: Factors for Successful Implementation.
- Author
-
Looze, Michiel de, Wilschut, Ellen, Könemann, Reinier, Kranenborg, Kim, and De Boer, Harry
- Subjects
- *
PEOPLE with intellectual disabilities , *PSYCHOSOCIAL factors , *SMARTPHONES , *PEOPLE with disabilities , *COGNITION disorders , *JOB offers - Abstract
In Europe, large numbers of people with disabilities are willing to work but have problems finding a job. One of the barriers to this is job complexity, particularly for those with low education, low IQ, or cognitive impairments. Digital technologies might help. Specifically, cognitive support technology (CST) has the potential to make jobs less complex and thus more accessible. CST may concern step-by-step digital instructions presented with monitors, tablets, smart phones, beamer projections, or near-eye displays. Based on cross-case evaluations, we aimed to define the success factors in the process of technology selection, development, and implementation. Four cases, situated at public social firms which offer jobs to people with disabilities, were selected. In each case, the optimal form of CST was selected. A qualitative analysis of subjective experiences of work accessibility, performance, usability, and acceptance was applied. The results were positive for most participants in most cases. Once installed, the CST was successful in simplifying jobs. A proportion of the workforce for which a specific job had been considered too complex was able to perform that job when supported by CST. Moreover, a majority of people judged the usability of the technology positively. For the consecutive steps of selection, development, and implementation, we ended up with eleven factors of success; these included, among others, shared and transparent decision making (in technology selection), the iterative and active involvement of workers to optimally adjust work instructions (in technology development), and explicit attention for psychosocial barriers (in technology implementation). [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
92. EL EFECTO DEL TAEKWONDO ADAPTADO EN LAS HABILIDADES MOTRICES DE LAS PERSONAS CON DISCAPACIDAD INTELECTUAL.
- Author
-
Castro-Salgado, Vanesa, Gaintza-Jauregi, Zuriñe, and Lareki, Arkaitz
- Subjects
- *
YOUNG adults , *COMBAT sports , *MOTOR ability , *PEOPLE with intellectual disabilities , *PRACTICE (Sports) - Abstract
The objective of this research was twofold. On the one hand, to demonstrate that young people with intellectual disabilities (ID) can practice taekwondo (TKD) and, on the other hand, to assess the effect of this practice. For this purpose, a longitudinal study was designed with pretest and posttest measures. Thirteen young people between 14 and 35 years of age with ID underwent a training of adapted TKD for 20 weeks. After observing that the participants followed the trainer’s instructions and performed the techniques, the effect of the training on their motor skills was evaluated. Directionality was assessed using the modified agility test (MAT2) and balance and coordination using the Observation of Motor Competence Scale (ECOMI). The results showed that people with ID can practice TKD and that training improves their motor skills of directionality, balance, and coordination, although not all differences were significant. Thus, it can be concluded that people with ID can practice a combat sport such as TKD as long as it is adapted to their characteristics and that its practice has beneficial effects, improving performance in their motor skills. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
93. Effects of an ACT-based Psychological Treatment in Relatives of People With Intellectual Disabilities
- Published
- 2022
94. Factors influencing the job satisfaction of staff working in services for people with intellectual disabilities : a systematic review ; The development and evaluation of training on grief for mental health professionals during the COVID-19 pandemic ; The experiences of professional carers supporting individuals with an intellectual disability who have experienced trauma
- Author
-
Brown, Emma and Randle-Phillips, Catherine
- Subjects
intellectual disability ,trauma ,carer - Abstract
People with intellectual disabilities are at greater risk of experiencing trauma than the general population, yet models such as trauma-informed care have not consistently reached intellectual disability services. Professional carers can play an important role in the lives of service users and are well placed to provide meaningful person-centred support with those who have experienced trauma. However, little is known about carers' perceptions and experiences of this work. This study aims to explore professional carers' experiences of supporting individuals with an intellectual disability who have experienced trauma, considering any strengths and challenges of this work. Seven professional (paid) carers completed semi-structured interviews which were analysed using Interpretative Phenomenological Analysis (IPA). Three group experiential themes were identified: Navigating inner conflict and uncertainty; A give and take dynamic; and Seeking support. Participants highlighted the desire and need for more training regarding trauma and the importance of workplace support to help with the tensions and uncertainty in their practice and the difficult emotional impact of this work.
- Published
- 2022
95. Factors Affecting Disaster or Emergency Coping Skills in People with Intellectual Disabilities
- Author
-
Eun-Young Park
- Subjects
people with intellectual disabilities ,disaster ,emergency ,coping skill ,education level ,training ,Psychology ,BF1-990 - Abstract
This study aimed to investigate the disaster or emergency coping skills of people with intellectual disabilities and the factors that affect these skills. The panel survey on the lives of people with disabilities from the 3rd dataset (2020) of the Korea Development Institute for the Disabled was used for this analysis. Response data from 275 people with intellectual disabilities aged 10 years or older were analyzed. Differences between disaster or emergency coping skill levels and sub-questions of skills, according to the general characteristics of people with intellectual disabilities, were identified, as well as factors affecting the level of disaster or emergency coping skills. The results show that the coping skills level was low; among the sub-questions, the use of fire extinguishers and awareness of the location of fire extinguishers or emergency bells in the event of a disaster or emergency were also low. Factors affecting the level of coping skills were found to be the level of education and experience in comprehensive disaster coping training. The results of this study suggest that training and education on disaster or emergency coping skills for people with intellectual disabilities are necessary and that programs should be developed for this purpose.
- Published
- 2023
- Full Text
- View/download PDF
96. Physical Activity and Quality of Life among People with Intellectual Disabilities: The Role of Gender and the Practice Characteristics.
- Author
-
Franco, Evelia, Ocete, Carmen, Pérez-Calzado, Elena, and Berástegui, Ana
- Subjects
- *
PEOPLE with intellectual disabilities , *PHYSICAL activity , *QUALITY of life , *INTERPERSONAL relations , *SOCIAL integration - Abstract
Staying physically active is synonymous with good health and well-being, and its benefits on the health of people with intellectual disabilities (PWIDs) have been studied. However, there is a lack of information on how it can influence their quality of life (QoL). This study aimed to analyze the relationship between QoL and physical activity in PWIDs according to gender and the characteristics of the practiced activity. A questionnaire was administered to 380 PWIDs (mean age of 28.23 ± 12.53), 54.21% of which were men. The QoL dimensions and second-order factors were studied in relation to practicing physical activity, the practice type, the context, and gender. The results indicate that people who practiced any activity showed better QoL values. Those who engaged in a nonregulated physical activity had better values in self-determination, emotional well-being, social inclusion, and personal development, while those who did sports presented higher scores in interpersonal relationships and physical well-being. In addition, it also appears that the association between physical activity and the QoL dimensions is distinct in inclusive and specific contexts. In conclusion, physical activity is related to a better QoL, although the impact of the practice type and context differs for each QoL dimension. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
97. Predictors of Attitudes about People with Intellectual Disabilities: Empathy for a Change towards Inclusion
- Author
-
Mirete, Ana B., Belmonte, Ma Luisa, Mirete, Lucía, and García-Sanz, Ma Paz
- Abstract
Social change towards inclusion is a very common topic, but progress is slow. Because of its importance in the current educational context, knowing how to speed up this transformation is fundamental. A multiple regression analysis with a transversal quantitative designed survey (n = 245) was conducted. The aim was to identify internal and external factors predicting attitudes towards people with intellectual disability in undergraduate students at the University of Murcia (Spain). According to the expected estimate, the variables 'empathic concern' and 'chosen degree' predict good attitudes towards people with intellectual disability among university students. On the other hand, external variables such as 'previous knowledge about disability' or 'contact with people with disabilities' are not explanatory factors. These findings contribute to the existing knowledge about predictive variables for attitudes towards people with intellectual disabilities in the future Spanish education professionals.
- Published
- 2022
- Full Text
- View/download PDF
98. Psychological therapies for people with intellectual disabilities: An updated systematic review and meta-analysis
- Author
-
Tapp, Katherine, Vereenooghe, Leen, Hewitt, Olivia, Scripps, Emma, Gray, Kylie M., and Langdon, Peter E.
- Published
- 2023
- Full Text
- View/download PDF
99. Acceptability of virtual psychiatric consultations for routine follow-ups post COVID-19 pandemic for people with intellectual disabilities: cross-sectional study.
- Author
-
Tromans, Samuel, Rybczynska-Bunt, Sarah, Mitchell, Sarah, Cummins, Susan, Cox, David, Downing, Jennifer, Lee, Paul H., Teece, Lucy, Marson, Tony, and Shankar, Rohit
- Subjects
- *
PSYCHIATRIC consultation , *COVID-19 pandemic , *PEOPLE with intellectual disabilities - Published
- 2024
- Full Text
- View/download PDF
100. Perception of people with intellectual disabilities by residents of the Tarnów region, Poland
- Author
-
Weronika Gieniec and Beata Jurkiewicz
- Subjects
disability ,perception of disability ,assistance ,society ,Medicine (General) ,R5-920 ,Other systems of medicine ,RZ201-999 ,Sports medicine ,RC1200-1245 - Abstract
Introduction: Social perception of disability is often a more serious problem than the disability itself. Acceptance of people with disabilities by the social environment is crucial, as it promotes their all-round development better than measures taken in individual rehabilitation. The aim of the study was to analyze the perception of people with intellectual disabilities by residents of the Tarnów region. Material and methods: The study was conducted by a diagnostic survey method using the author's survey questionnaire in March-May 2023. 314 correctly completed questionnaires were included in the study, completed by people between 18 and 67 years of age (mean 25.97 ± 7.97 years). A significance level of p < 0.05 was adopted. Results: As many as 32.48% (n = 102) of the respondents admit that they have a person with intellectual disabilities in their family or neighborhood. Among the respondents, 54.14% are familiar with local organizations for people with intellectual disabilities and their families, where 17.20% of people admitted that they have done volunteer work for such an organization. A willingness to become a volunteer for such an organization was expressed by 44.90% of people. Respondents overwhelmingly agreed that people with intellectual disabilities should participate in the life of the local community (91.40%). The majority of respondents (79.62%) believe that intellectually disabled people have the same sexual needs as the rest of society, followed by 15.61% who say they have no sexual needs, and 2.87% associate the sexual needs of intellectually disabled people with their degree and type of disability. Conclusions: Society shows signs of effortless tolerance – it does not want to have closer relations with people with intellectual disabilities, but at the same time does not mind that such people participate in society. Respondents show insufficient knowledge of the sexuality of people with intellectual disabilities.
- Published
- 2023
- Full Text
- View/download PDF
Catalog
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.