3,388 results
Search Results
2. Partnership-based nursing practice framework for patients with advanced chronic obstructive pulmonary disease and their families—A discursive paper.
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Jónsdóttir, Helga, Halldórsdóttir, Bryndís S., and Ingadóttir, Thorbjörg Sóley
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NURSE-patient relationships , *CLINICAL medicine , *MEDICAL quality control , *OUTPATIENT services in hospitals , *PALLIATIVE treatment , *SELF-management (Psychology) , *MEDICAL care , *KEY performance indicators (Management) , *NURSING , *HOSPITALS , *CHRONIC diseases , *OBSTRUCTIVE lung diseases , *NURSING practice , *ADVANCED practice registered nurses , *CONCEPTUAL structures , *MEDICAL-surgical nurses , *FAMILY nursing - Abstract
Aim: The increase in the number of people with chronic obstructive pulmonary disease (COPD) and the disease burden, has prompted concerted efforts to improve healthcare, particularly outpatient services. In line with these attempts the Partnership-Based Nursing Practice Theoretical Framework for People with COPD was developed to guide outpatient nursing care. The principal approach of the framework is a ‘Dialogue’ with the patients, which has four components: ‘Establishing family involvement’, ‘Assisting living with symptoms’ and ‘Facilitating access to healthcare’, with the primary goal being ‘Enhancement of the health experience’. With new knowledge, research on the framework, and extensive experience in using it, a need arose to modify the framework to maximize its clinical utility. Design: Discursive paper. Methods: A narrative review and critical reflection was conducted to revise the nursing practice framework via selected literature search from 2012 to 2022, research on the framework, and the authors' reflections on the clinical experience of using the framework. Results: The nursing practice framework highlights capacities and possibilities that lie in the nurse–patient relationship. The overarching dialogue in the revised framework includes both patients and families. The action-related component ‘Assisting living with the disease’ was added to the framework to underscore the significance of attempting to understand what may lie ahead for patients and families. The other action-related components are as follows: ‘Assisting living with symptoms’ and ‘Facilitating access to healthcare’. The primary goal remains unchanged: enhancing the ‘Health experience’. Conclusion: Using the revised nursing practice framework in outpatient care may help to enhance the lives of people with COPD and their families, particularly at advanced stages of the disease. It may have transferability to other groups of people living with progressive diseases dealing with complicated health problems, and to reduce the usage of costly healthcare resources such as hospital care. Implications for the Profession and/or Patient Care: The partnership-based nursing practice framework assumes an extension of conventional specialized respiratory service and embraces a comprehensive account for that which may influence the patient's health problems. This guidance, which holistically attends to patient-family needs of living with complicated and progressive health predicaments, is fundamental. It contributes to strengthening the disciplinary focus of nursing, interdisciplinary collaboration, person-family-centred quality nursing care and inspires research initiatives. Critical reflections and updates on nursing practice frameworks, such as this revision, are essential to advance nursing and healthcare. [ABSTRACT FROM AUTHOR]
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- 2024
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3. A comparison of tablet-based and paper-based venous insufficiency epidemiologic and economic study quality of life/symptom questionnaire for assessment of chronic venous disease.
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Albernaz, Luiz Fernando, Albernaz, Daiane Taís Schlindwein, Zignani, Fernanda Rita, Santiago, Fabricio, de Moura, Regina Marcia Faria, Barroso, Gustavo, Reis e Silva, Alexandre, and Chi, Yung-Wei
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RESEARCH , *STATISTICS , *SAMPLE size (Statistics) , *CHRONIC diseases , *RESEARCH methodology evaluation , *VENOUS insufficiency , *MANN Whitney U Test , *T-test (Statistics) , *QUESTIONNAIRES , *QUALITY of life , *DESCRIPTIVE statistics , *MEDICAL practice , *STATISTICAL correlation , *DATA analysis , *DATA analysis software , *LONGITUDINAL method - Abstract
Objective: To comparatively evaluate performances of tablet-based versus paper-based Venous Insufficiency Epidemiologic and Economic Study-Quality of Life/Symptom (VEINES-QOL/Sym) questionnaire. Methods: We prospectively evaluated 78 consecutive patients who completed tablet-based and paper-based VEINES-QOL/Sym questionnaires and compared their scores, completion time, data entry time, and ease of use. We used Student's t-test and Wilcoxon test for quantitative variables, Bland–Altman test and kappa coefficient for agreement between questionnaires and patients, respectively. Spearman's correlation coefficient was used to assess correlations. Results: Most participants (83.3%) found it easier to use the tablet device. Less time was needed to complete the tablet-based (median, 4.75; IQR, 3–7 min) than the paper-based (median, 8.3; IQR, 6.3–11.3 min) questionnaire (p <.001). Better educated patients took less time to complete paper-based (p =.003) and tablet-based (p =.001) questionnaires and considered the latter easier to use (p =.010). Conclusions: The tablet-based VEINES-QOL/Sym proved to be an easy-to-use and time-saving tool. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Palliativmedizinische Aspekte in der klinischen Akut- und Notfallmedizin sowie Intensivmedizin: Konsensuspapier der DGIIN, DGK, DGP, DGHO, DGfN, DGNI, DGG, DGAI, DGINA und DGPalliativmedizin.
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Michels, Guido, John, Stefan, Janssens, Uwe, Raake, Philip, Schütt, Katharina Andrea, Bauersachs, Johann, Barchfeld, Thomas, Schucher, Bernd, Delis, Sandra, Karpf-Wissel, Rüdiger, Kochanek, Matthias, von Bonin, Simone, Erley, Christiane M., Kuhlmann, Susanne D., Müllges, Wolfgang, Gahn, Georg, Heppner, Hans Jürgen, Wiese, Christoph H. R., Kluge, Stefan, and Busch, Hans-Jörg
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CONSENSUS (Social sciences) , *CHRONIC diseases , *ATTITUDES of medical personnel , *CRITICAL care medicine , *INTEGRATED health care delivery , *EMERGENCY medicine , *PALLIATIVE treatment - Abstract
The timely integration of palliative medicine is an important component in the treatment of various advanced diseases. While a German S‑3-guideline on palliative medicine exists for patients with incurable cancer, a recommendation for non-oncological patients and especially for palliative patients presenting in the emergency department or intensive care unit is missing to date. Based on the present consensus paper, the palliative care aspects of the respective medical disciplines are addressed. The timely integration of palliative care aims to improve quality of life and symptom control in clinical acute and emergency medicine as well as intensive care. [ABSTRACT FROM AUTHOR]
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- 2023
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5. Could kinesiology taping of the inspiratory muscles help manage chronic breathlessness? An opinion paper.
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Banerjee, G., Rose, A., Briggs, M., Plant, P., and Johnson, M. I.
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TREATMENT of dyspnea ,RESPIRATORY muscles ,TAPING & strapping ,CHRONIC diseases ,PHYSICAL therapy ,TREATMENT effectiveness ,NURSES ,RESPIRATION ,ALTERNATIVE medicine ,PALLIATIVE treatment - Abstract
Chronic or refractory breathlessness adversely affects quality of life. Current treatment strategies for managing breathlessness are often inadequate in providing complete relief. Kinesiology taping is generally used in musculoskeletal practice for preventive and rehabilitative purposes. Recently, our attention was drawn to the plausible mechanism(s) and indication for use of kinesiology taping for managing chronic breathlessness. We present a brief review of the scientific rationale and efficacy of kinesiology taping for respiratory function-related outcomes. Through this publication, we hope to catalyse discussions amongst palliative care professionals and researchers on the potential use of kinesiology taping in the management of chronic breathlessness. [ABSTRACT FROM AUTHOR]
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- 2022
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6. Blood Clot Dynamics and Fibrinolysis Impairment in Cancer: The Role of Plasma Histones and DNA.
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Ullah, Matti, Mirshahi, Shahsoltan, Valinattaj Omran, Azadeh, Aldybiat, Iman, Crepaux, Sullyvan, Soria, Jeannette, Contant, Geneviève, Pocard, Marc, and Mirshahi, Massoud
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PAPER chromatography , *IN vitro studies , *BLOOD viscosity , *T-test (Statistics) , *DATA analysis , *BLOOD proteins , *BLOOD collection , *RHEOLOGY , *ENZYME-linked immunosorbent assay , *DNA , *CANCER patients , *FIBRIN fibrinogen degradation products , *TISSUE plasminogen activator , *IN vivo studies , *HISTONES , *CHRONIC diseases , *PERMEABILITY , *FIBRINOLYSIS , *CASE-control method , *FIBRINOGEN , *MEMBRANE glycoproteins , *SCANNING electron microscopy , *STATISTICS , *COMPARATIVE studies , *MICROSCOPY , *DATA analysis software , *TUMORS , *THROMBOSIS , *BIOMARKERS , *CELL receptors , *BLOOD - Abstract
Simple Summary: Blood clots are formed when blood vessels are injured. They help stop bleeding and heal wounds, but can also cause serious problems if they block blood flow or break off and travel to other organs. This study investigates how blood clots differ in people with cancer compared to healthy or non-cancerous individuals. This study found that cancer patients have higher levels of histones in their blood, which make their clots stiffer and resistant to lysis. Further, clots formed in cancer patients have higher viscoelastic properties, and hence are harder to break down. These findings suggest that cancer patients have abnormal clotting properties that may increase their risk of developing thrombosis, and evaluating these properties can be helpful in detecting cancer. Background: Blood viscoelasticity and plasma protein levels can play an important role in the diagnosis and prognosis of cancer. However, the role of histones and DNA in modulating blood clot properties remains to be investigated. This study investigates the differences in blood viscoelasticity and plasma protein levels among cancer patients, individuals with other diseases, and healthy individuals. Methods: Blood samples were collected from 101 participants, including 45 cancer patients, 22 healthy individuals, and 34 individuals with other diseases. Rheological properties of clots formed in vitro by reconstituted elements of fibrinogen or plasma were analyzed with an Anton Paar Rheometer, USA. Plasma protein levels of D-dimer, TPA, EPCR, fibrinogen, and histone H3 were measured through ELISA. Blood clots were formed with or without DNA and histones (H3) by adding thrombin and calcium to plasma samples, and were evaluated for viscoelasticity, permeability, and degradation. Results: Cancer patients show higher blood viscoelasticity and plasma D-dimer levels compared to healthy individuals and individuals with other diseases. Our in vitro analysis showed that the addition of histone to the plasma results in a significant decrease in viscoelasticity and mean fiber thickness of the clot formed thereafter. In parallel studies, using plasma from patients, DNA and histones were detected in fibrin clots and were associated with less degradation by t-PA. Moreover, our results show that the presence of DNA and histones not only increases clots' permeability, but also makes them more prone to degradation. Conclusions: Plasma histones and DNA affect the structure of the clot formed and induce defective fibrinolysis. Moreover, the increased viscoelastic properties of plasma from cancer patients can be used as potential biomarkers in cancer prognosis. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Critically appraised paper: High-intensity interval training is an effective method for enhancing walking capacity in patients with chronic stroke.
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Milne, Nikki
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CHRONIC diseases ,FUNCTIONAL status ,EXERCISE physiology ,STROKE rehabilitation ,WALKING ,STROKE patients ,HIGH-intensity interval training - Abstract
The article discusses the effectiveness of high-intensity interval training for improving walking capacity in chronic stroke patients.
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- 2023
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8. PEMOCS: theory derivation of a concept for PErsonalized MOtor-Cognitive exergame training in chronic Stroke--a methodological paper with an application example.
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Huber, Simone K., Manser, Patrick, and de Bruin, Eling D.
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COGNITIVE ability ,ACADEMIC ability ,MEDICAL research ,BIOTECHNOLOGY ,CHRONIC diseases - Abstract
Background: Coping with residual cognitive and gait impairments is a prominent unmet need in community-dwelling chronic stroke survivors. Motor-cognitive exergames may be promising to address this unmet need. However, many studies have so far implemented motor-cognitive exergame interventions in an unstructured manner and suitable application protocols remain yet unclear. We, therefore, aimed to summarize existing literature on this topic, and developed a training concept for motor-cognitive exergame interventions in chronic stroke. Methods: The development of the training concept for personalized motorcognitive exergame training for stroke (PEMOCS) followed Theory Derivation procedures. This comprised (1.1) a thorough (narrative) literature search on long-term stroke rehabilitation; (1.2) a wider literature search beyond the topic of interest to identify analogies, and to induce creativity; (2) the identification of parent theories; (3) the adoption of suitable content or structure of the main parent theory; and (4) the induction of modifications to adapt it to the new field of interest. We also considered several aspects of the "Framework for Developing and Evaluating Complex Interventions" by the Medical Research Council. Specifically, a feasibility study was conducted, and refining actions based on the findings were performed. Results: A training concept for improving cognitive functions and gait in community-dwelling chronic stroke survivors should consider the principles for neuroplasticity, (motor) skill learning, and training. We suggest using a stepbased exergame training for at least 12 weeks, 2-3 times a week for approximately 45 min. Gentile's Taxonomy for Motor Learning was identified as suitable fundament for the personalized progression and variability rules, and extended by a third cognitive dimension. Concepts and models from related fields inspired further additions and modifications to the concept. Conclusion: We propose the PEMOCS concept for improving cognitive functioning and gait in community-dwelling chronic stroke survivors, which serves as a guide for structuring and implementing motor-cognitive exergame interventions. Future research should focus on developing objective performance parameters that enable personalized progression independent of the chosen exergame type. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Health policy and systems research for rehabilitation: a call for papers
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Cieza, Alarcos, Kwamie, Aku, Magaqa, Qhayiya, and Ghaffar, Abdul
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Chronic diseases ,Medical policy ,National health insurance ,Health ,World Health Organization - Abstract
Rehabilitation is included in the universal health coverage (UHC) target of the sustainable development goals as an essential health service; access to rehabilitation is a human right. (1) Rehabilitation services [...]
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- 2021
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10. China Life Insurance: The 'White Paper on Asset Allocation and Insurance Protection for Middle and High Net Worth Families' released, and the allocation rate of commercial health insurance continued to increase
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China Life Insurance Company Ltd. ,Family ,Chronic diseases ,Insurance industry ,Health insurance ,Insurance industry ,Business ,Business, international - Abstract
In recent years, with the changes in society, environment, living conditions and styles, the incidence of chronic diseases and major diseases in my country has become higher and younger. Coupled [...]
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- 2022
11. KNOWLEDGE GRAPH ANALYSIS FOR CHRONIC DISEASES NURSING BASED ON VISUALIZATION TECHNOLOGY AND LITERATURE BIG DATA.
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SIYU DUAN and YANG ZHAO
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KNOWLEDGE graphs ,TECHNICAL literature ,CHRONIC diseases ,BIG data ,MEDICAL personnel ,DEAD ,ELECTRONIC publications - Abstract
The use of knowledge graph analysis for chronic disease nursing based on visualization technology and literature big data is an unexplored area of research in this field of study. To uncover research hotspots and developmental trends in the field of chronic disease nursing, and to provide a scholarly reference, we employed mathematical and statistical methods along with CiteSpace literature visualization analysis software for quantitative analysis of extensive literature data from the Web of Science Core Collection. We examined aspects such as publication trends, journals, author collaborations, research institutions, national and regional distributions, keyword co-occurrence, clustering, time zones, emergence, literature co-citations, and more. These analyses identified the current hotspots and future directions for research. Notably, scholars' interest in chronic disease nursing exhibited a consistent upward trajectory. In particular, the field of artificial intelligence technology application in nursing yielded 3, 610 published papers in 141 journals with more than or equal to 10 published papers on the topic, accounting for 58.41% of the total number of published papers in this field of study. Furthermore, the top three publishers were the "Journal of Clinical Nursing," "Journal of Advanced Nursing," and "BMC Health Services Research." Among authors, Hu, Frank B., Willett, Walter C., and Rimm, Eric B., ranked as the top three, and 12 authors had more than 10 publications. The most active research institutions included Harvard University, Harvard Medical School, Brigham & Women's Hospital, University of California System, University of London, US Department of Veterans Affairs, Veterans Health Administration (VHA), Harvard T. H. Chan School of Public Health, University of Sydney, and the University of Toronto. The United States, Australia, England, China, Canada, Netherlands, Spain, Italy, Sweden, and Germany emerged as the leading countries in terms of research output, while emerging hotspots encompassed topics such as incidence, rheumatoid arthritis, qualitative research, burnout, kidney transplantation, critical illness, COVID-19, Sars-COV-2, public health, and the well-being of medical staff. These findings present valuable insights for prospective research endeavors. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Call for papers: Generating stronger evidence to inform policy and practice: natural experiments on built environments, health behaviours and chronic diseases.
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BUILT environment ,HEALTH behavior ,CHRONIC diseases ,HEALTH policy ,PUBLIC health officers - Abstract
The article is a call for papers in the Health Promotion & Chronic Disease Prevention in Canada journal. It focuses on the topic of natural experiments on built environments, health behaviors, and chronic diseases. The built environment, which includes structures, recreation facilities, transportation systems, and community design, has been linked to the development of chronic diseases and health behaviors. Natural experiments, which are interventions that occur without a researcher's manipulation, offer an opportunity to evaluate the effects of changes to the built environment on health behaviors and chronic disease risk. The special issue aims to provide evidence on the effectiveness of built environment interventions in a Canadian context. The journal is seeking research articles that present new findings or synthesize existing evidence on natural experiments and their impact on health behaviors and chronic disease prevention. The submission deadline is November 30, 2024. [Extracted from the article]
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- 2024
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13. Critically appraised paper: In people with chronic respiratory disease, telerehabilitation was equivalent to centre-based pulmonary rehabilitation at improving exercise capacity but may not be for dyspnoea [commentary].
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Troosters, Thierry
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RESPIRATORY diseases ,TELEREHABILITATION ,MEDICAL rehabilitation ,EXERCISE tolerance ,CHRONIC diseases ,LUNG diseases ,DYSPNEA ,TREATMENT effectiveness - Published
- 2022
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14. Critically appraised paper: Implicit motor learning is not superior to explicit motor learning for improving gait speed in chronic stroke [commentary].
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Boyd, Lara A
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WALKING speed ,STROKE ,GAIT in humans ,CHRONIC diseases ,DIAGNOSIS - Abstract
The article focuses on implicit motor learning is not superior to explicit motor learning for improving gait speed in chronic stroke.
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- 2021
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15. Ketogenic vs plantogenic diets for health: a review article
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Dos Santos, Hildemar, Han, Diane, Perez, Mayabel, Johnson, Summer, and Shaheen, Razaz
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- 2023
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16. Session 2195 (Paper): CHRONIC DISEASE MANAGEMENT (HS PAPER).
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CHRONIC diseases ,DISEASE management ,PARKINSON'S disease ,DISEASES in older people ,LIFESTYLES ,SOCIAL networks - Published
- 2021
17. Biomarkers for personalised prevention of chronic diseases: a common protocol for three rapid scoping reviews.
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Plans-Beriso, E, Babb-de-Villiers, C, Petrova, D, Barahona-López, C, Diez-Echave, P, Hernández, O R, Fernández-Martínez, N F, Turner, H, García-Ovejero, E, Craciun, O, Fernández-Navarro, P, Fernández-Larrea, N, García-Esquinas, E, Kuhn, I, Jiménez-Planet, V, Moreno, V, Rodríguez-Artalejo, F, Sánchez, M J, Pollan-Santamaria, M, and Blackburn, L
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PREVENTIVE medicine ,CARDIOVASCULAR diseases ,BIOMARKERS ,CHRONIC diseases ,DISEASE relapse ,NEURODEGENERATION - Abstract
Introduction: Personalised prevention aims to delay or avoid disease occurrence, progression, and recurrence of disease through the adoption of targeted interventions that consider the individual biological, including genetic data, environmental and behavioural characteristics, as well as the socio-cultural context. This protocol summarises the main features of a rapid scoping review to show the research landscape on biomarkers or a combination of biomarkers that may help to better identify subgroups of individuals with different risks of developing specific diseases in which specific preventive strategies could have an impact on clinical outcomes. This review is part of the "Personalised Prevention Roadmap for the future HEalThcare" (PROPHET) project, which seeks to highlight the gaps in current personalised preventive approaches, in order to develop a Strategic Research and Innovation Agenda for the European Union. Objective: To systematically map and review the evidence of biomarkers that are available or under development in cancer, cardiovascular and neurodegenerative diseases that are or can be used for personalised prevention in the general population, in clinical or public health settings. Methods: Three rapid scoping reviews are being conducted in parallel (February–June 2023), based on a common framework with some adjustments to suit each specific condition (cancer, cardiovascular or neurodegenerative diseases). Medline and Embase will be searched to identify publications between 2020 and 2023. To shorten the time frames, 10% of the papers will undergo screening by two reviewers and only English-language papers will be considered. The following information will be extracted by two reviewers from all the publications selected for inclusion: source type, citation details, country, inclusion/exclusion criteria (population, concept, context, type of evidence source), study methods, and key findings relevant to the review question/s. The selection criteria and the extraction sheet will be pre-tested. Relevant biomarkers for risk prediction and stratification will be recorded. Results will be presented graphically using an evidence map. Inclusion criteria: Population: general adult populations or adults from specific pre-defined high-risk subgroups; concept: all studies focusing on molecular, cellular, physiological, or imaging biomarkers used for individualised primary or secondary prevention of the diseases of interest; context: clinical or public health settings. Systematic review registration: https://doi.org/10.17605/OSF.IO/7JRWD (OSF registration DOI). [ABSTRACT FROM AUTHOR]
- Published
- 2024
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18. Chronic illness in South Asia: rethinking discourses of risk, evidence, and control.
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Ranganathan, Shubha
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CHRONIC disease risk factors ,PREVENTION of chronic diseases ,HEALTH policy ,CHRONIC diseases ,DIET ,DIABETES ,ANTHROPOLOGY ,HEALTH behavior ,MENTAL illness - Abstract
This special issue brings together five original research papers on chronic conditions in South Asian contexts with a view to rethink dominant discourses of risk, evidence and control surrounding the category of chronic conditions. Focusing on the multiple and contradictory (re)definitions of what counts as illness, specifically in the context of the rising burden of chronic illness, the papers in this issue deal with a range of health care practices from individual patients negotiating with 'healthy diet', to policy questions about the etiology of emerging disease burden and appropriateness of pharmaceutical interventions in 'traditional' sites of healing. While some of the chronic illnesses addressed in this special issue have received considerable attention from anthropologists (e.g. mental illness, diabetes), others, like leucorrhea have rarely been studied by anthropologists, despite the growing literature on 'chronic illnesses'. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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19. University of Airlangga Researcher Details Research in Chronic Disease (Smart home healthcare for chronic disease management: A scoping review).
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DISEASE management ,SMART homes ,CHRONIC diseases ,RESEARCH personnel ,ELECTRONIC paper - Abstract
A recent report from the University of Airlangga in Surabaya, Indonesia, discusses the use of smart home healthcare for managing chronic diseases. The study conducted a scoping review of nine research papers on smart healthcare, home-based technology, and physiological monitoring for chronic illness management. The findings suggest that smart healthcare applications can improve health and quality of life by monitoring health and wellness, recording physical activity, and aiding rehabilitation. However, not all smart home applications served their intended purpose, indicating the need for further research to improve the efficacy of smart healthcare for chronic illness treatment. [Extracted from the article]
- Published
- 2023
20. Experience in Accessing Healthcare in Ethnic Minority Patients with Chronic Respiratory Diseases: A Qualitative Meta-Synthesis.
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Zhang, Xiubin, Jaswal, Aaron, and Quint, Jennifer
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RESPIRATORY diseases ,META-synthesis ,ONLINE information services ,CINAHL database ,HEALTH services accessibility ,MINORITIES ,SOCIAL determinants of health ,CHRONIC diseases ,SYSTEMATIC reviews ,DISCRIMINATION (Sociology) ,PREJUDICES ,QUALITATIVE research ,DATABASE management ,MEDICAL care use ,QUALITY assurance ,DESCRIPTIVE statistics ,MEDLINE - Abstract
Background: Access to healthcare is part of every individual's human rights; however, many studies have illustrated that ethnic minority patients seem to be confronted with barriers when using healthcare services. Understanding how healthcare utilities are accessed from the perspective of patients and why healthcare disparities occur with patients from a minority background has the potential to improve health equality and care quality. This qualitative systematic review aims to gain insights into the experiences of people with chronic respiratory diseases (CRDs) from a minority background and explore factors contributing to their experiences in accessing healthcare to inform related health policy makers and healthcare providers. Methods: This systematic review complied with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses, where the Joanna Briggs Institute meta-aggregative instrument facilitated the qualitative synthesis. The study protocol was registered with PROSPERO (CRD42022346055). PubMed, Scopus, Web of Science, and CINAHL were the databases explored. Results: From the papers selected, 47 findings were derived from 10 included studies, and four synthesised findings were generated: (1) the relationship between patients and healthcare professionals affects the usage of healthcare services; (2) patients' perceptions and cultural beliefs affect their compliance with disease management; (3) personal behaviours affect the usage of healthcare services; and (4) health resource inequalities have an impact on accessing healthcare services. Conclusions: This systematic review demonstrates that ethnic minorities with CRDs face inequalities when engaging in healthcare. The relationship between patients and clinicians impacting the use of healthcare is the most pivotal discovery, where not speaking the same language and being of a different race alongside the accompanying criticism and faith in facilities are key contributors to this effect. In addition, the thinking patterns of these marginalised groups may reflect their cultural upbringing and diminish their engagement with therapies. This paper has uncovered ways to attenuate inequalities amongst ethnic minorities in engaging with healthcare providers and provides insight into building effective equity-promoting interventions in healthcare systems. To overcome these disparities, coaching doctors to communicate better with minority cohorts could help such patients to be more comfortable in connecting with medical facilities. [ABSTRACT FROM AUTHOR]
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- 2023
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21. Mapping the Landscape of Bibliometric Studies on Social Wellness: A Systematic Review.
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Pathak, Simran Subhash and Rawat, Yogita Negi
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BIBLIOMETRICS ,INTERDISCIPLINARY education ,CHRONIC diseases - Abstract
This paper presents a systematic review of bibliometric studies on social wellness published between 2013 and 2022. The review found that most bibliometric studies on social wellness were conducted in the fields of public health, psychology, and sociology, and that the most used indicator was citation count. The findings also show that social wellbeing research frequently focuses on groups of people, like the elderly, people with chronic conditions, and marginalized communities. Furthermore, the paper discusses the potential implications of bibliometric analysis for social wellness research. For example, bibliometric indicators can be used to identify gaps in the literature, highlight key authors and institutions, and track the impact of research on policy and practice. Finally, the paper proposes several future directions for bibliometric research on social wellness, including the need for more interdisciplinary studies, the use of alternative bibliometric indicators, and the incorporation of qualitative approaches to supplement quantitative analyses. [ABSTRACT FROM AUTHOR]
- Published
- 2023
22. Community engagement in a seaside town: evaluation of Good Grief Weston festival.
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Robb, James, Clabburn, Olly, Bamford, Alison, Matthews, Fiona, Lee, Karen, Toulcher, Lin, Maxwell, Polly, Thomas-Bennett, Nina, Hare, Rachel, Dawson, Lesel, Malpass, Alice, and Selman, Lucy E.
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COMMUNITY support ,LIFE ,FOCUS groups ,GAY people ,RESEARCH funding ,EVALUATION of human services programs ,DEMOGRAPHIC characteristics ,NEURODIVERSITY ,LGBTQ+ people ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,WHITE people ,EXPERIENCE ,SURVEYS ,THEMATIC analysis ,CHRONIC diseases ,ATTITUDE (Psychology) ,RESEARCH methodology ,COMMUNICATION ,GRIEF ,PUBLIC health ,HOLIDAYS ,PEOPLE with disabilities - Abstract
Background: Festivals play an important role in improving death and grief literacy, enabling members of the public to engage with these often-sensitive topics. Good Grief Weston festival was co-designed and delivered with the community in Weston-super-Mare, a coastal town in South-West England with high levels of socioeconomic disadvantage but rich community assets. It was held in person over 8 days in May 2023. Objectives: To evaluate the reach and impact of Good Grief Weston festival and gather data to inform future festivals. Design: Mixed methods evaluation (survey and focus groups). Methods: Online and paper surveys assessing participants' characteristics and experiences were administrated during and after the festival. Survey participants who indicated their willingness to participate were invited to attend a focus group. Focus groups were recorded, transcribed and analysed using thematic analysis. Data were collected by trained community co-researchers. Results: Approximately 3000 people attended the festival. Of 204 completed surveys, 64.5% were from women, age range ⩽15 to ⩾75 years; 88.2% identified as White; 14.9% deaf, disabled/with a chronic condition; 18.9% neurodivergent; 9.0% gay, bisexual or queer. Festival participants were entertained (70.9%), inspired (68.5%), felt part of a like-minded community (54.3%), talked to someone new (49.2%), learnt about grief/bereavement (34.3%), shared or expressed experiences (30.3%) and found out about local support (19.7%). 71.3% reported that they felt more confident talking about grief after attending. Median experience rating was 5 (IQR 0; possible range 1 = poor to 5 = excellent). In free-text comments, participants expressed appreciation for the festival and described benefits in attending. Two focus groups were conducted (n = 8 participants, all women), lasting c.1.5 h. Focus groups added rich descriptions of the festival's value, and data to inform the next festival. Conclusion: Findings suggest festivals of this nature can play a central role in a public health approach. Plain language summary: What was the impact of Good Grief Weston festival? Why was the study done? Previous studies have shown that many people feel unsupported by their community after the death of a loved one. We designed a festival to improve knowledge and support for bereaved people. We did this study to assess how the festival affected the people who attended. What did the researchers do? The team included researchers and people and organisations from the local community. Together, we designed and ran a festival on the topic of death, grief and bereavement in Weston-super-Mare, a coastal town with areas of high deprivation. The festival took place over an eight-day period in May 2023 and included creative, interactive and educational events. The team collected feedback on attendees' experiences of the festival. We did this using online and paper feedback forms, postcards, and focus groups to collect as many opinions as possible. What did the researchers find? We found that a wide range of people attended the festival. Most people who took part in the research rated the festival as 'excellent'. They told us they learnt about grief and bereavement and found out about local support services. Attendees met new people, shared their experiences, and felt that the festival built community spirit. They also made suggestions to improve any future festivals. What do the findings mean? The findings show that in-person festivals can effectively engage the public on the topic of death, grief and bereavement. They can also help develop connections between people and organisations in communities. These connections and learning opportunities may help communities to support their members through bereavement. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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23. Self-care: An effective strategy to manage chronic diseases.
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Iovino, Paolo, Uchmanowicz, Izabella, and Vellone, Ercole
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HEALTH self-care ,MOTIVATIONAL interviewing ,ARTIFICIAL intelligence ,DISEASE management ,CHRONIC diseases - Abstract
The increase in life expectancy and an aging demographic have led to a surge in chronic diseases, presenting substantial challenges to healthcare systems worldwide. Chronic conditions are characterized by their long-term nature, recurrence and incurability, necessitating effective management strategies. This paper aims to explore the concept of self-care as a pivotal element in chronic disease management, examining its evolution, components and the role of caregivers in facilitating self-care practices. It also seeks to review the development of instruments for measuring self-care and discuss recent experimental research on selfcare interventions. Self-care is an essential strategy for managing chronic diseases, involving maintenance, monitoring and management practices influenced by various personal and environmental factors. Caregivers play a vital role in supporting self-care, especially within certain cultural contexts. The development of reliable and valid instruments to measure self-care is crucial for assessing the effectiveness of the interventions. Recent trials, such as those focusing on motivational interviewing and virtual reality, show promise in improving self-care behaviors and patient outcomes. This paper advocates for the design of tailored, evidence-based interventions and highlights the potential of artificial intelligence in advancing self-care research. Future studies should continue to explore the dyadic dynamics between patients and caregivers and include economic evaluations to inform clinical decision-making. [ABSTRACT FROM AUTHOR]
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- 2024
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24. Compassion fatigue and the meaning in life as predictors of secondary traumatic stress in nurses during the COVID‐19 pandemic.
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Koştu, Nazan, İnci, Fadime Hatice, and Arslan, Sümeyye
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LIFE ,CROSS-sectional method ,STATISTICAL correlation ,SOCIAL media ,PEARSON correlation (Statistics) ,PREDICTION models ,CRONBACH'S alpha ,KRUSKAL-Wallis Test ,MULTIPLE regression analysis ,DESCRIPTIVE statistics ,CHRONIC diseases ,SURVEYS ,SLEEP ,MARITAL status ,RESEARCH ,DATA analysis software ,CONFIDENCE intervals ,COVID-19 pandemic ,PSYCHOLOGY of nurses ,SECONDARY traumatic stress ,MENTAL depression ,PSYCHOSOCIAL factors - Abstract
Aim: This study aimed to investigate the relationship among secondary traumatic stress, compassion fatigue, and meaning in life in nurses during the COVID‐19 pandemic. Background: Changes in working conditions during the pandemic also changed the needs of nurses. In addition to physical health, the COVID‐19 pandemic led to many psychosocial health problems such as sleep disturbances, depression, and traumatic stress. This makes nurses vulnerable to psychological side effects of the pandemic. Design: A cross‐sectional study was conducted. Methods: This study was conducted with 166 nurses. Data were collected online at May–June 2021. A Personal Information Form, the Secondary Traumatic Stress Scale, Compassion Fatigue Scale, and Meaning in Life Scale were used. The STROBE reporting checklist was followed. Results: As secondary traumatic stress levels increase, compassion fatigue increases, meaning in life decreases, and the search for meaning in life increases. Conclusion: Predictors of secondary traumatic stress were shown to be compassion fatigue, change in sleep habits, meaning in life, marital status, and having a chronic illness. This suggested that working during the pandemic posed significant risks in terms of manifesting negative consequences on mental health in the long term. Summary statement: What is already known about this topic? Nurses often face stressful situations such as personal life challenges, the nature of the job that requires focus, and patient care.Nurses are exposed to the detrimental psychological effects of the pandemic because they are among the first medical professionals to meet COVID‐19 infected individuals.The pandemic has created many positive and negative effects on nurses. What this paper adds? This study reports that the mental health of nurses should be protected and strengthened by identifying the psychosocial health problems experienced by nurses due to the COVID‐19 pandemic.Findings inform on choice of effective interventions to protect the mental health of nurses. The implications of this paper: Failure to manage global crisis such as pandemics will cause traumatic stress, compassion fatigue, decreased meaning in life, and burnout in nurses.In order to protect nurses from the long‐term negative effects of pandemics, necessary programmes should be developed to strengthen their mental, physical, and spiritual health, to support their personal life habits and to improve their working conditions.Protective interventions, such as assessment and monitoring of nurses' mental health, can support strengthened crisis management practices. Preventive interventions and programmes based on individual needs should be implemented in order to improve nurses' ability to cope with difficult emotions. [ABSTRACT FROM AUTHOR]
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- 2024
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25. Knowledge, attitudes, and practices towards human papillomavirus (HPV) and HPV vaccination among male nurses.
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Sağtaş, Furkan and Gürsoy, Melike Yalçın
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PAPILLOMAVIRUS diseases ,CROSS-sectional method ,SEXUAL orientation ,VACCINATION ,QUESTIONNAIRES ,SMOKING ,HUMAN papillomavirus vaccines ,NURSING ,DESCRIPTIVE statistics ,AGE distribution ,POPULATION geography ,ATTITUDE (Psychology) ,CHRONIC diseases ,NURSES' attitudes ,NURSING practice ,MARITAL status ,ECONOMIC impact ,CONFIDENCE intervals ,DATA analysis software ,ALCOHOL drinking ,PSYCHOLOGY of nurses ,REGRESSION analysis ,EDUCATIONAL attainment ,EMPLOYMENT ,PHYSICAL activity - Abstract
Aim: This study aimed to determine the knowledge, attitudes, and practices of male nurses towards human papillomavirus (HPV) and HPV vaccination and to examine whether knowledge about the HPV vaccine affects attitudes and beliefs about HPV vaccines. Background: HPV is responsible for ≈5% of all cancers worldwide. Therefore, vaccination against HPV is recommended to prevent HPV infections and HPV‐related cancers in men and women. Methods: The study group included 383 male nurses who were asked to complete online questionnaires. The data were collected using the following tools: a sociodeomographical characteristics form, the Human Papillomavirus Knowledge Scale (HPVKS), and The Carolina HPV Immunization Attitudes and Beliefs Scale (CHIAS). Results: It was determined that the general HPV knowledge of the male nurses participating in the study was at a moderate level, but their knowledge of HPV screening test, HPV vaccination, and current HPV vaccination programmes were at a low level. Male nurses' HPV vaccination rates were relatively low, and most of them did not intend to be vaccinated. In addition, CHIAS Attitudes and Beliefs scores of the male nurses were at an average level and HPV knowledge affected the attitudes and beliefs of the nurses. Conclusion: These results demonstrate an opportunity to improve information and awareness about HPV and vaccines by nursing education. Summary statement: What is already known about the topic? Although HPV vaccination is recommended to prevent HPV infections and HPV‐related cancers in men and women, vaccination rates are far behind the target, especially for men. What this paper adds? Findings showed that male nurses' HPV vaccination rates were relatively low.Male nurses' knowledge about HPV and HPV vaccine was not sufficient.HPV knowledge affected the attitudes and beliefs of these male nurses. The implications of this paper: Nurses need to be aware of the HPV vaccine during their undergraduate education. [ABSTRACT FROM AUTHOR]
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- 2024
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26. Circulating Polymorphonuclear Myeloid-Derived Suppressor Cells (PMN-MDSCs) Have a Biological Role in Patients with Primary Myelofibrosis.
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Campanelli, Rita, Carolei, Adriana, Catarsi, Paolo, Abbà, Carlotta, Boveri, Emanuela, Paulli, Marco, Gentile, Raffaele, Morosini, Monica, Albertini, Riccardo, Mantovani, Stefania, Massa, Margherita, Barosi, Giovanni, and Rosti, Vittorio
- Subjects
RESEARCH funding ,MYELOID-derived suppressor cells ,MYELOPROLIFERATIVE neoplasms ,OXIDATIVE stress ,IMMUNE system ,CHRONIC diseases ,BONE marrow diseases ,SEPSIS ,MYELOFIBROSIS ,INFLAMMATION ,CYTOKINES ,GENETICS - Abstract
Simple Summary: Myeloid-derived suppressor cells (MDSCs) are immature cells that expand in the circulation of patients with cancer, sepsis or chronic inflammation, modulate the immune response against cancer (favoring tumor onset and progression) and promote neoangiogenesis. These premises suggest that MDSCs could be involved in the pathogenesis of primary myelofibrosis (PMF) (a myeloproliferative neoplasm characterized by chronic inflammation and extensive neoangiogenesis in bone marrow and spleen). In this paper, we found that (1) MDSCs are increased both in the circulation and in the spleen of PMF patients and strongly correlate with disease progression; and (2) reduced CXCR4 expression on MDSCs along with increased plasmatic SDF-1α can be involved in their mobilization. These findings suggest that circulating MDSCs can be considered a parameter of disease severity and set MDSCs as potential new targets for cancer therapy. Primary myelofibrosis (PMF) is a myeloproliferative neoplasm characterized by a chronic inflammatory state that plays a relevant role in the disease pathogenesis (as proven by high levels of inflammatory cytokines with prognostic significance and by a persistent oxidative stress) and by extensive neoangiogenesis in bone marrow (BM) and spleen. Myeloid-derived suppressor cells (MDSCs) are immature cells that expand in patients with cancer, sepsis or chronic inflammation, favoring tumor onset and progression mainly through the decrease in immune surveillance and the promotion of neoangiogenesis. In this paper, we evaluated the presence of circulating MDSCs in PMF patients, the plasmatic factors involved in their mobilization/expansion and the correlations with laboratory, genetic and clinical parameters. The data indicated that MDSCs could have a relevant role in PMF as a new pathogenic mechanism contributing to explaining the phenotypic diversity observed during the clinical course of the disease, or a potential new target for personalized treatment. [ABSTRACT FROM AUTHOR]
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- 2024
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27. Prognostication Tools in Older Hospitalized Adults for Identification of Patients with Potential Palliative Care Needs: A Review of Three Instruments.
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Hagiwara, Yuya
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PALLIATIVE treatment ,CHRONIC diseases ,PSYCHOMETRICS ,HOSPITAL care of older people ,MEDICAL needs assessment ,NEEDS assessment ,OLD age - Abstract
This paper explores the critical role of prognostication tools in identifying high-risk hospitalized older adults who may benefit from palliative care. With an ageing population and increasing prevalence of chronic illnesses, the demand for patient-centered healthcare is paramount. The study evaluates three key tools—the Palliative Performance Scale, CARING criteria, and Palliative Care Rapid Emergency Screening tool. Each tool is analyzed for its psychometric properties, advantages, and limitations. Despite their strengths and limitations, these tools emerge as crucial screening tools for identifying older adults at heightened mortality risk within one year of hospital admission. Our paper calls for ongoing research to adapt and validate existing tools, ensuring their applicability across diverse clinical settings and patient populations. [ABSTRACT FROM AUTHOR]
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- 2024
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28. The transformation of health and social care: Insights from sociology.
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Lowton, Karen and Henwood, Flis
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MEDICAL quality control ,SOCIOLOGY ,CHRONIC diseases ,SERIAL publications ,DIGITAL health ,QUALITY assurance ,AGING ,SOCIAL case work - Abstract
The article provides insights on the urgent need for transformative responses in health and social care services due to challenges such as aging populations, chronic illnesses, infrastructure underinvestment, and workforce shortages. It presents papers that examine different aspects of these transformations, including the adoption of single-handed care.
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- 2023
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29. Impact of soy isoflavones on the prevention and treatment of obesity.
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Wąsik, Karolina, Tomaszuk, Sebastian, and Wojtuś, Magda
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PREVENTION of obesity ,ISOFLAVONES ,WELL-being ,BIOACTIVE compounds ,CHRONIC diseases - Abstract
Introduction and purpose: Currently, as the frequency of obesity is alarming, the role of many factors that could contribute in preventing and treating this condition are being researched, among them the certain food with beneficial health profiles - one of them is soybeans, specifically the isoflavones it contains. Populations that consume soy are known for lower risk of various disorders - among them obesity. The aim of this paper is to summarize the existing paper about the role of these bioactive components in the treatment of this condition. The search was conducted using PubMed and Google Scholarship databases. Brief description of the state of knowledge: Obesity is one of the leading challenges in today's healthcare as it leads to various chronic diseases that are fraught in consequences. Current knowledge is pointing into the association between composition of the soy isoflavones and the lower risk of obesity. Results of the studies indicate that patients affected with obesity could benefit from introducing soy isoflavones into their diet along with other necessary modifications. Conclusions: Soy isoflavones are potential agents in the holistic obesity treatment. Consumption of isoflavones merits further recognition as foregoing results of conducted studies are pointing to its possibly meaningful role. It is worth mentioning that consumption of soy isoflavones is not only an anti-obese factor, but also presents various other health benefits and when consumed rationally poses no risk to human's well being. We conclude that further studies would enable us to fully reveal the potential of those polyphenols. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Dried saliva spot as an effective tool in the diagnosis and management of chronic disease.
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Chaurasia, Naveen, Jain, Ankit, and Dubey, Nitin
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- *
SALIVA , *SARS-CoV-2 , *HYPOGLYCEMIC agents , *DISEASE management , *CHRONIC diseases - Abstract
In recent decades, there has been significant progress in non-invasive sampling techniques, which serve as effective tools in treating and managing various chronic diseases. Among these techniques, dried saliva spot (DSS) sampling of human saliva has emerged as a prominent alternative to serum for detecting targeted molecules. The diagnostic potential of saliva has been extensively studied, highlighting its applicability across a spectrum of diseases. In addition to DSS, other sampling methods, such as dried plasma spots, dried blood spots, and dried matrix spots, have been explored. Various types of filter papers have been employed in DSS sampling procedures, with notable examples including the utilization of Whatman™ 903 Protein Saver cards for identifying Streptococcus pneumoniae DNA through polymerase chain reaction (PCR) or LC-mass spectrometry analysis. Following sample collection onto the respective filter paper, specialized tools are employed to facilitate subsequent processes such as solvent extraction, evaluation of extraction, and drying times. DSS has found diverse applications, including the analysis of lidocaine in human saliva, serving as a diagnostic tool for diabetes mellitus, detecting antiepileptic, antipsychotic, and antidepressant drugs in oral fluid, identifying spinal muscle atrophy, determining uric acid levels in saliva, analyzing severe acute respiratory syndrome coronavirus 2 antibody levels, and detecting carriage of S. pneumoniae using (PCR). The utilization of DSS sampling represents a novel approach in the management and treatment of various chronic diseases. [ABSTRACT FROM AUTHOR]
- Published
- 2024
31. Measures of tracheal lesions are more discriminatory and reproducible indications of chronic respiratory disease caused by Mycoplasma gallisepticum in poultry.
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Kulappu Arachchige, Sathya N., Underwood, Gregory J., Andrews, Daniel M., Abeykoon, A. M. Hasanthi, Wawegama, Nadeeka K., and Browning, Glenn F.
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MYCOPLASMA gallisepticum ,MYCOPLASMA diseases ,RESPIRATORY diseases ,VACCINE effectiveness ,CHRONIC diseases ,PATHOLOGICAL physiology - Abstract
Mycoplasma gallisepticum is the primary causative agent of chronic respiratory disease in poultry, and vaccination is the measure most commonly used for its control. Pathological changes caused by M. gallisepticum are mainly observed in the trachea and air sacs, but assessment of air sac lesions is subjective. Standardized parameters for evaluation of pathological changes, and their reproducibility and discrimination in uninfected and infected groups, are critical when assessing the efficacy of M. gallisepticum vaccination. This study reviewed and critically appraised the published literature on evaluation of vaccine efficacy against pathological changes caused by M. gallisepticum in poultry in the trachea and air sacs. A search of four electronic databases, with subsequent manual filtering, identified 23 eligible papers published since 1962 describing the assessment of histopathological changes in the trachea using tracheal lesion scores and/or measurement of tracheal mucosal thicknesses and assessment of gross air sac lesions using lesion scores. Measurement of tracheal lesions proved a more reliable and robust method of assessing disease induced by M. gallisepticum when compared to assessment of air sac lesions, highlighting the importance of including assessment of tracheal lesions as the primary outcome variable in vaccine efficacy studies. In addition, this study also identified the necessity for use of a standardized model for evaluation and reporting on M. gallisepticum vaccines to minimize variations between vaccine efficacy studies and to allow direct comparisons between them. RESEARCH HIGHLIGHTS Tracheal and air sac lesions have been used to assess M. gallisepticum vaccine efficacy. The specific parameters and statistical tests used to compare tracheal and air sac lesions vary greatly. Measures of tracheal lesions are more discriminatory than measures of air sac lesions. A standardized model is needed to evaluate vaccines against infection with M. gallisepticum. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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32. Responsibility sharing for adolescents with type 1 diabetes: A scoping review.
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Gardener, Lisa, Desha, Laura, Bourke-Taylor, Helen, and Ziviani, Jenny
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ONLINE information services ,PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,CHRONIC diseases ,TYPE 1 diabetes ,HEALTH outcome assessment ,RESPONSIBILITY ,COMMUNICATION ,AUTONOMY (Psychology) ,LITERATURE reviews ,MEDLINE ,HEALTH self-care ,ADOLESCENCE - Abstract
Background: The term 'Responsibility Sharing', albeit poorly defined, has emerged from the diabetes literature, to describe a distinct mechanism for comprehensively managing the characteristic shift in responsibility that underpins the transition to self-management for adolescents. Methods: A scoping review, following the PRISMA-ScR guidelines, distilled the literature from seven databases to answer the questions: What is responsibility sharing? Who are the key stakeholders? What factors affect responsibility transaction? What are its recognized outcomes? How is responsibility shared? Results: Responsibility sharing is a transactional arrangement between youth and their caregiver/s that functions to repeatedly and flexibly apply ownership to the management of diabetes care tasks, across the course of adolescence. In the main, responsibility sharing was associated with better metabolic and/or psychosocial outcomes. Effective responsibility sharing was seen as being responsive to adolescent capacity and driven by autonomy supportive, sustained communication patterns that enable mutually agreeable responsibility assumption by all stakeholders. Conclusion: Different perspectives on responsibility sharing for adolescents with Type 1 diabetes, and the lack of a universal definition, have led to discordance within the literature about its operationalization and measurement. This paper proposes a definition of responsibility sharing for future researchers to apply. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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33. From wearable sensor data to digital biomarker development: ten lessons learned and a framework proposal.
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Daniore, Paola, Nittas, Vasileios, Haag, Christina, Bernard, Jürgen, Gonzenbach, Roman, and von Wyl, Viktor
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DIGITAL technology ,CURRICULUM ,DATABASE management ,MULTIPLE sclerosis ,DISEASE management ,BENCHMARKING (Management) ,WEARABLE technology ,CHRONIC diseases ,CONCEPTUAL structures ,BIOMARKERS ,ACTIVITIES of daily living - Abstract
Wearable sensor technologies are becoming increasingly relevant in health research, particularly in the context of chronic disease management. They generate real-time health data that can be translated into digital biomarkers, which can provide insights into our health and well-being. Scientific methods to collect, interpret, analyze, and translate health data from wearables to digital biomarkers vary, and systematic approaches to guide these processes are currently lacking. This paper is based on an observational, longitudinal cohort study, BarKA-MS, which collected wearable sensor data on the physical rehabilitation of people living with multiple sclerosis (MS). Based on our experience with BarKA-MS, we provide and discuss ten lessons we learned in relation to digital biomarker development across key study phases. We then summarize these lessons into a guiding framework (DACIA) that aims to informs the use of wearable sensor data for digital biomarker development and chronic disease management for future research and teaching. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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34. Polypharmacy Management in Chronic Conditions: A Systematic Literature Review of Italian Interventions.
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Perrella, Lara, Mucherino, Sara, Casula, Manuela, Illario, Maddalena, Orlando, Valentina, and Menditto, Enrica
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ITALIAN literature ,POLYPHARMACY ,CHRONIC diseases ,DRUG side effects ,PATIENT compliance - Abstract
Background: Potentially inappropriate polypharmacy (PIP) is among the major factors leading to adverse drug reactions, increased healthcare costs, reduced medication adherence, and worsened patient conditions. This study aims to identify existing interventions implemented to monitor and manage polypharmacy in the Italian setting. Methods: A systematic literature review (PROSPERO: CRD42023457049) was carried out according to the PRISMA statement guidelines. PubMed, Embase, ProQuest, and Web of Science were queried without temporal constraints, encompassing all published papers until October 2023. Inclusion criteria followed the PICO model: patients with polypharmacy; interventions to monitor/manage polypharmacy regimen versus no/any intervention; outcomes in terms of intervention effectiveness and cost variation. Results: After duplicate deletion, 153 potentially relevant publications were extracted. Following abstract and full-text screenings, nine articles met the inclusion criteria. Overall, 78% (n = 7) were observational studies, 11% (n = 1) were experimental studies, and 11% (n = 1) were two-phase studies. A total of 44% (n = 4) of the studies involved patients aged ≥ 65 years, while 56% (n = 5) were disease-specific. Monitoring was the most prevalent choice of intervention (67%; n = 6). Outcomes were mainly related to levels of polypharmacy (29%; n = 6) and comorbidities (29%; n = 6), effectiveness rates (14%; n = 3), and avoidable costs (9%; n = 2). Conclusions: This review outlines that Italy is still lacking in interventions to monitor/manage PIP, addressing an unmet need in developing patient-tailored strategies for reducing health-system burden. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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35. An Evolutionary Concept Analysis of Pediatric Hospice and Palliative Care.
- Author
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Jung Hwa Lee, Soon Young Lee, and Kyung Mi Cha
- Subjects
PEDIATRIC nursing ,HOSPICE nurses ,NURSING theory ,PALLIATIVE treatment ,ACUTE diseases ,NURSING ,CHRONIC diseases ,SPIRITUAL care (Medical care) ,SPIRITUALITY ,COMMUNICATION ,QUALITY of life ,PAIN management ,TERMINAL care ,THEORY ,FAMILY support ,SOCIAL support ,CONCEPTS ,HEALTH care teams - Abstract
Purpose: This study aimed to clarify the concept of pediatric hospice and palliative care through conceptual analysis. It also sought to identify the differences between related concepts such as pediatric death care and pediatric spiritual care, in order to provide foundational data for the development of nursing theory and knowledge. Methods: A conceptual analysis of pediatric hospice and palliative care was conducted using Rodgers’ evolutionary method. Out of 5,013 papers identified, 28 were selected for detailed reading and analysis. Results: Pediatric hospice and palliative care encompasses physical, psychological, social, mental, spiritual, and family care for children with acute and chronic diseases with uncertain prognoses ahead of death, as well as their families. Effective pediatric hospice and palliative care will require multidisciplinary team nursing, effective communication, and supportive policies. Conclusion: The findings of this study suggest that providing pediatric hospice and palliative care will lead to improvements in pain relief for children and families, the efficiency of responses to death in children, and the quality of life for children and families. The significance of this study is that it clearly clarifies the concept by analyzing pediatric hospice and palliative care using an evolutionary method. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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36. Should cancer pain still be considered a separate category alongside acute pain and chronic non-cancer pain? Reflections on ICD-11.
- Author
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Bäckryd, Emmanuel
- Subjects
NEURALGIA ,RESEARCH funding ,CHRONIC pain ,CANCER pain ,CHRONIC diseases ,LUNG tumors ,TUMORS ,NOSOLOGY ,PSYCHOLOGICAL vulnerability ,FLUOROSCOPY ,BUPIVACAINE ,DISEASE complications - Abstract
Introduction: Traditionally, cancer pain has often been viewed as an independent third major category in pain medicine alongside acute pain and chronic non-cancer pain. However, the new chronic pain category MG30 in the eleventh version of International Classification of Diseases (ICD-11) includes cancer-related pain as one of its seven subgroups. In light of this, the aim of the paper is to investigate whether the traditional trichotomy should be replaced by a dichotomy between acute pain and chronic pain, cancer-related pain being part of both groups depending on the duration of pain. Methods: The rationale for viewing cancer pain as a separate category is reviewed. Results: Cancer being a deadly disease, cancer pain has a life-and-death and existential dimension that is different from non-cancer pain. It seems sensible to believe that this is an additional dimension to the suffering caused by cancer pain, and that clinicians should therefore take this existential dimension into consideration when assessing pain. Conclusion: Without challenging the place of chronic cancer-related pain under the MG30 heading, it is concluded that while using ICD-11 in the future, pain clinicians should continue being mindful of the fact that the reality of death shapes the experience of cancer pain. The traditional trichotomy is therefore still valid and mirrors the fact that human beings are vulnerable (acute pain), temporal (chronic pain) and mortal (cancer pain). [ABSTRACT FROM AUTHOR]
- Published
- 2024
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37. Editorial: The role of social dialogue in return to work after chronic conditions.
- Author
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Heffernan, Margaret, Hickland, Eugene, and Popa, Adela
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CHRONIC diseases ,CHRONIC pain ,PERSONNEL management ,OCCUPATIONAL science ,INDUSTRIAL relations - Published
- 2024
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38. COCCOS study: Developing a transition program for adolescents with chronic conditions using Experience-Based Co-Design. A study protocol.
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Janssens, Natwarin, Van Wilder, Lisa, Van Hecke, Ann, Van Hoorenbeeck, Kim, Vanden Wyngaert, Karsten, De Smedt, Delphine, and Goossens, Eva
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CHRONIC diseases ,MEDICAL personnel ,TRANSITIONAL care ,RESEARCH protocols ,YOUNG adults - Abstract
Background: During adolescence, adolescents and young adults (AYAs) are expected to transfer their care from the pediatric environment towards an adult-focused setting. To prevent an abrupt transfer of care, it is recommended to provide AYAs with chronic conditions an adequate transition program. The aim of this paper is to describe the study protocol for the development of a transition program for AYAs with common chronic conditions (COCCOS study), using the Experience-Based Co-Design (EBCD) methodology. Methods and analysis: A qualitative, participatory study is conducted in Flanders (Belgium). Study participants are AYAs (n≥15, 14–25 years old, diagnosed with type 1 diabetes, asthma, or obesity), their families, and healthcare providers (n≥15). The study is composed of eight EBCD stages: clinical site observations, in-depth interviews, trigger film, healthcare providers' feedback event, AYAs' feedback event, joint event, co-design workshops, and a celebration event. Photovoice will take place as a starting point of EBCD. Data will be analyzed using thematic analysis. Results: Data collection has started in January 2023 and is expected to be completed in May 2024. As of August 2023, over 15 clinical site observations have been conducted. A total of 18 AYAs, two parents, six healthcare providers have been enrolled and a total of 20 interviews have been conducted. Conclusion: Advancing transitional care is essential for tackling negative health outcomes. Applying the innovative participatory EBCD methodology will reveal key elements of transitional care for AYAs with common chronic conditions in the development of a person-centered transition program. Practice implications: Study findings will apply key elements of transitional care of AYAs with chronic conditions in the development of an adequate transition program. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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39. Patient and public involvement in the development of the digital tool MyBoT to support communication between young people with a chronic condition and care providers.
- Author
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van Schelven, Femke, van Weele, Mara, van der Meulen, Eline, Wessels, Elise, and Boeije, Hennie
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DIGITAL technology ,HUMAN services programs ,INTERPROFESSIONAL relations ,RESEARCH funding ,EVALUATION of human services programs ,QUESTIONNAIRES ,DECISION making ,DESCRIPTIVE statistics ,CHRONIC diseases ,PATIENT-centered care ,TELEMEDICINE ,COMMUNICATION ,PATIENT-professional relations ,ADULT education workshops ,PATIENT participation - Abstract
Introduction: To guide good practices in patient and public involvement (PPI), several calls have been made to share detailed accounts of practical experiences. We describe our collaboration with young people with a chronic condition (YPCC) in the development, testing and implementation of the digital communication tool MyBoT (Map your Burden of Treatment). Methods: MyBoT was developed by a team of academic researchers, some of whom were practising care providers, YPCC and designers. In addition to the two co‐researchers in the research team, various groups of YPCC were involved in decision‐making through participation in a design session, workshops and a dialogue session. The Involvement Matrix was used to reflect on the PPI of all YPCC. Results: Initially, the two co‐researchers were involved in the roles of informer and co‐thinker, but their decision‐making power within the study increased over time. In the final stages of the study, the co‐researchers and researchers became partners. The other YPCC who participated in the different sessions and workshops were co‐thinkers in all stages of the study. Conclusion: The PPI of two YPCCs as co‐researchers within the research team ensured continuous involvement, whereas the PPI of various groups of YPCCs guaranteed a representative and inclusive approach. Researchers play an essential role in bringing all perspectives together, integrating them within the technical and financial constraints and ultimately building a tool that is tailored to its users' needs. Patient or Public Contribution: YPCC played a significant role in the present study. Two YPCC—who are also co‐authors of this paper—were involved in all stages of this project as members of the research team. In addition, various YPCCs were involved in the development, testing and implementation stage of MyBoT by organizing design sessions, workshops and a dialogue session. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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40. WHEN GALLBLADDER OEDEMA COMES AS A CHRONIC DISEASE - DIAGNOSIS AND TREATMENT.
- Author
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BLAGEANU, Andrei, VULPE, Vasile, and IFTEME, Constantin Vasile
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GALLBLADDER ,PERICARDIAL effusion ,EDEMA ,CHOLECYSTITIS ,DIAGNOSIS ,CHRONIC diseases ,VITAL signs - Abstract
Diagnosis of the gallbladder oedema is difficult during the clinical examination because the clinical signs are not specific for this disease. The causes of this pathology are multiple and can be divided into emergencies (such as anaphylactic shock, right-sided hearth failure, pericardial effusion) and chronic pathologies (such cholecystitis, pancreatitis or immune-mediated hemolytic anemia). Imagistics methods complete the information of the clinical exam and ultrasound is considered the golden standard for diagnosing this pathology. Normally, at the ultrasound exam, the gallbladder has a hyperechoic wall, with a diameter of 2-3 mm; while in case of gallbladder oedema, the wall is thick and has a triple stratification, with 2 hyperechoic rows, separated by a hypoechoic line. This pathognomonic description of the gallbladder oedema is also known as the 'Halo Sign' or 'Double Rim Effect'. Making a correct differential for the appearance of the sign is vital for the outcome of the case. The main focus is to exclude every emergency cause in order to start treating the chronic pathologies. This paper presents the pathologies leading to gallbladder oedema, met at the Radiology and Emergencies Departments from the Faculty of Veterinary Medicine Iasi during the period march 2020 - may 2022. The clinical case presented was diagnosed and treated at the Center of Endoscopy and Minimally Invasive Surgery Bucharest. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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41. Infertility as inevitable: chronic lifestyles, temporal inevitability and the making of abnormal bodies in India.
- Author
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Majumdar, Anindita
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LIFESTYLES ,CHRONIC diseases ,INFERTILITY ,ETHNOLOGY - Abstract
In seeking to explore the meaning of chronic and chronicity, the association with infertility is neither immediate nor evident. However, this paper explores this relationship by analyzing the idea of infertility in relation to chronicity. In the linkages that come forth the idea of chronic lifestyle emerging from certain ways of being and living, as well the imaginings associated with the chronic body become important nodes of exploring the relationship between infertility and chronicity. Most importantly, the role that time plays in marking the chronic state is seen to be especially potent in the practice of infertility treatment, and the narratives that emerge around its temporal inevitability. The rhetoric that marks the diagnosis and prescription of treatment is often based on the identification of the body as susceptible to reproductive decline and failure, due to the contingencies of modern living. This often translates into a more sustained involvement with ARTs, which may or may not fulfil the required desire for a child. In this paper I seek to analyse the ways in which practitioners of infertility medicine create an image of an affliction that borders on chronicity. In the process, I question the idea of both chronic diseases and chronicity by looking at how illness is imagined in narratives that IVF specialists create in public, and through the idea of a cure for infertility. By analysing data collected through ethnographic fieldwork, this paper aims to build on the idea of the chronic as inevitable within clinical discourse and practice. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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42. „RAILWAYS AND FORESTS OF HEALTH” IN THE FUNCTION OF THE DEVELOPMENT OF HEALTHCARE TOURISM IN SERBIA.
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Jablanović, Dragica Luković
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RAILROADS ,TOURISM ,MEDICAL care ,SUSTAINABLE development ,CHRONIC diseases - Abstract
The subject of research in this paper is the application of the hybrid model railways and forests of health (RFH) as a new healthcare and tourism offering by Serbia. The model is a combination of the Finnish health forests project and the U.S.A. project from railways to trails for recreation. The goal of the paper is to prove the initial hypothesis according to which this hybrid model could be successfully applied as a new attractive element of the healthcare and tourism offerings. Comparative method, case study method, and document content analysis method were used in the work. The research results showed that the RFH model is suitable to support development of healthcare tourism in Serbia: first, to activate unused resources; then, to contribute to the preservation of the environment, that is, to add to the sustainable development; finally, to prevent chronical diseases in the population and contribute to the rehabilitation of those already ill. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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43. Self-evaluation and depression in adolescents with a chronic illness: A systematic review.
- Author
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Hards, Emily, Orchard, Faith, Khalid, Sundus, D'souza, Clea, Cohen, Flora, Gowie, Evangeline, and Loades, Maria
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PSYCHOLOGY information storage & retrieval systems ,MEDICAL databases ,MEDICAL information storage & retrieval systems ,CHRONIC diseases ,SELF-evaluation ,SYSTEMATIC reviews ,MENTAL depression ,MEDLINE - Abstract
Objective: To conduct a systematic review to establish what is known about the relationship between depression and self-evaluation in adolescents with a chronic illness. Methods: A systematic search was conducted using MEDLINE, EMBASE, PsycINFO, Web of Science, The Cochrane Library, and hand-searching. We sought to identify primary research that examined both the cross-sectional and longitudinal associations between depression and self-evaluation in adolescents with chronic illness. The search resulted in 8941 retrieved articles that were screened against an inclusion criteria. A total of 4 papers were included in the review. The MMAT used to assess study methodological quality. Results: A narrative synthesis was conducted, and a summary figure was included. These 4 studies included 236 adolescents aged 9–18 years with depression and either Type 1 Diabetes (T1D), chronic pain, headaches, or Inflammatory Bowel Disease (IBD). The limited existing evidence indicated that that depression was associated with negative self-evaluation in adolescents in some but not all chronic illnesses investigated to date. We also found some evidence that psychological intervention can help to improve self-evaluation, specifically in adolescents with T1D. Conclusions: More robust studies of the association between self-evaluation and depression in adolescents with a chronic illness is needed, with attention to the nuances of differences between chronic illnesses. The existing evidence indicates that there may be a stronger association in some chronic illnesses. Pilot data suggest that specific psychological therapies may improve self-evaluation, although much more extensive evaluation is needed. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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44. Mental Health and its Influencing Factors Among Immigrants with Chronic Diseases in China
- Author
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Jia Jia, Xiao-Fei Nie, Li Ke, Bing Liu, and Wen-Ru Wang
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China ,Original Paper ,Cross-Sectional Studies ,Mental Health ,Epidemiology ,Surveys and Questionnaires ,Immigrants ,Chronic diseases ,Chronic Disease ,Influencing factors ,Public Health, Environmental and Occupational Health ,Emigrants and Immigrants ,Humans - Abstract
Immigrants are a special group in society, and their health is of great concern. Few studies have targeted this population in China. A cross-sectional descriptive correlational study was conducted from July to August 2018 in Hubei Province, China. Chi-square tests, Z-tests and multivariable linear regression analysis were performed to analyze the data using SPSS 24.0. A total of 1068 questionnaires were distributed. The results showed that the variables that affected the mental health of the immigrants with chronic diseases included gender, annual income, life events (L), negative emotion (NE), negative coping styles (NC) and objective support (OS) (p ≤ 0.05). Future research should focus on the physical and mental health of different immigrant groups and design effective, individualized interventions to improve the health status of immigrants, especially those with chronic diseases.
- Published
- 2022
45. Paper 94: Diagnostic Accuracy of Weightbearing CT in Detecting Chronic Subtle Syndesmotic Instability: A Prospective Comparative Study.
- Author
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Mansur, Nacime, Dibbern, Kevin, Lalevee, Matthieu, Netto, Cesar de Cesar, and Shamrock, Alan
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CHRONIC diseases ,ARTHROSCOPY ,SPRAINS ,CONFERENCES & conventions ,ANKLE injuries ,COMPARATIVE studies ,COMPUTED tomography ,WEIGHT-bearing (Orthopedics) ,LONGITUDINAL method - Abstract
Objectives: Subtle syndesmotic instability (SSI) is a difficult albeit important diagnosis to make, as undiagnosed instability frequently leads to posttraumatic ankle arthritis. Stressed conventional radiographs, ultrasonography, bilateral comparative conventional computed tomography (CT) and magnetic resonance imaging (MRI) serve as important diagnostic tools, however, the current diagnostic gold-standard is arthroscopic assessment, an invasive surgical method. The advent of weight-bearing computed tomography (WBCT) is considered to be an important additional diagnostic tool for improved non-invasive SSI diagnosis, particularly by utilizing distal tibiofibular syndesmotic (DTFS) area and volume measurements. However, to date, no studies have assessed WBCT diagnostic accuracy for chronic SSI. The purpose of this study was to prospectively evaluate the diagnostic accuracy of WBCT area and volumetric measurements in patients with suspected chronic SSI, when compared to the gold-standard arthroscopic assessment. Methods: In this IRB-approved prospective comparative study, 11 patients with suspected SSI were enrolled from July 2019 to December 2020. Patients were assessed preoperatively by bilateral standing WBCT. Raw 3D WBCT was automatically segmented by dedicated software. WBCT measurements included semi-automatic DTFS area (1cm proximally to tibial dome apex) and DTFS volumes (1, 3 and 5cm proximally to tibial dome apex). Threshold values for WBCT abnormality were defined based on currently available data (area>105mm
2 and volumes>796mm3 , >3062 mm3 , and >6733 mm3 for 1, 3 and 5cm, respectively). Subjects underwent surgical treatment including DTFS instability arthroscopic assessment, defined as positive when a 3mm diameter sphere could enter the syndesmotic incisura. Confirmed unstable cases were treated with open reduction/internal fixation. WBCT measurements sensitivity, specificity, positive and negative predictive values (PPV/NPV) and accuracy were calculated using confirmed arthroscopic instability as diagnostic gold standard. Paired t-tests/Wilcoxon analysis was used to compare measurements. P-values<0.05 were considered significant. Results: When compared to non-injured sides, DTFS area and volumes were significantly higher in injured ankles at 1cm (667 vs 554mm3 ) and 3cm (2331 vs 2038mm3 ). Medial gutter volumes were also increased in injured sides (398 vs 370 mm3 ). DTFS volumes at 5cm and lateral gutter volumes were not different. Nine of eleven patients had confirmed arthroscopic DTFS instability. Considering WBCT area measurements, 4/11 patients were found to be positive (>105mm2 ), including 3 true positives (+WBCT/+Arthroscopy), 1 false positive (+WBCT/-Arthroscopy), 6 false negatives (-WBCT/+Arthroscopy), and 1 true negative (-WBCT/-Arthroscopy), leading to a 33.3% sensitivity, 50%, specificity, 75% PPV 75%, 14.3% NPV and 36% accuracy. When analysing WBCT DTFS volumes (1cm), 3/11 patients were found positive (>796mm3 ), depicting 3 true positives, 0 false positives, 2 true negatives and 6 false negatives, with resultant diagnostic accuracy of: 33.3% sensitivity, 100% specificity, 100% PPV, 25% NPV 25%, and 45% accuracy. Conclusions: This is the first study to prospectively assess the diagnostic accuracy of WBCT area and volume measurements in detecting chronic SSI and to compare it to the arthroscopic diagnostic gold standard. When compared to uninjured side, DTFS area and volumetric measurements were significantly increased in injured sides of patients with suspected SSI, including medial gutter volumes, consistent with associated deltoid ligament instability. However, interestingly, we observed a diagnostic accuracy for WBCT area and volumetric measurements to be lower than initially expected. Further incorporation of additional patients, as well as introduction of an external rotational stress can potentially optimize the WBCT diagnostic accuracy for chronic SSI. [ABSTRACT FROM AUTHOR]- Published
- 2022
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46. Target panic: Disrupted ecologies of skill in archery.
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Rooke, Eliott
- Subjects
ARCHERY ,MIND & body ,CHRONIC diseases ,ARCHERS - Abstract
The yips – a phenomenon whereby skilled practitioners suddenly and inexplicably struggle with their performance – has been observed in many sports. With no consensus as to the origins of the yips, it is, for many, a chronic condition bringing an end to careers and hobbies alike. This paper turns its attention to 'target panic', a sport‐specific instantiation of the yips found amongst archers. By bringing empirical encounters with target panic into conversation with geographical literature on skill, this paper seeks to invite reconsideration as to how and where the yips manifest. Rather than focusing on whether the yips is psychological or physical in origin, ecological approaches to skill allow for us to understand the yips as stemming from the disruption of the more‐than‐human communicative links on which skilled ecologies are founded. The concept of disruption is used to understand how this breakdown operates. Disruption is seen to be a boundary creating or boundary affirming process which impedes the ability for different actors to attune to one another. By re‐interpreting the yips as a result of disruption and locating it between actors, rather than within them, this paper contributes to ongoing discussions about what it means to be (de)skilled in a disrupted world and presents new possibilities for methods to prevent and treat the yips. The yips – a phenomenon characterised by sudden loss of skill – occurs in many sports, yet no concrete explanation for it has been established. This paper resists attempts to situate the yips in either mind or body to instead locate it as being distributed across a skilled ecology. In doing so, it draws on negative geographies literatures to argue that the yips are a disruptive phenomenon which impedes the more‐than‐human communication necessary for successful skilled performance. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
47. Patient patients: middle-aged British Pakistani women and the intuition of limits to care.
- Author
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Qureshi, Kaveri
- Subjects
PATIENCE ,CHRONIC diseases ,SOCIAL change ,FAMILIES ,HEALTH equity ,HEALTH self-care ,WOMEN'S health ,PAKISTANIS ,MIDDLE age - Abstract
This paper examines the affective inequalities underpinning the extensive responsibilities of care that are shouldered by chronically ill middle-aged British Pakistani women. In the context of ethnic health inequalities, chronic illness and premature ageing are ubiquitous. Further, mid-life generates gendered pinchpoints in the dynamics of care. The paper draws on extended conversations with women over seven/eight years and tracks their unsettled perspectives on sabar (patient endurance). Middle-aged women described how, over the long haul of living alongside chronic illness, they intuited that they must place some limits on caring for others, and that care required self-care - not in a biomedical sense, but in the sense of attention to their own bodily and relational needs. The paper extends anthropological critiques of Levinas's philosophy of infinite responsibilities to care, tracking how changes at several temporal scales - the life course, intergenerational re-negotiations - affect care. While social transformations of gender, and the proliferation of neoliberal discourses on self-care do affect the traction of normative notions of selfless care for others, the paper locates women's changing perspectives on sabar primarily in the provocations of everyday life. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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48. Asthma prediction and monitoring.
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Kavitha, K, Monisha, M, Nischitha, M, Nisha, M, and Raksitha, A
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DATA privacy ,ASTHMA ,MOBILE health ,MEDICAL technology ,MACHINE learning - Abstract
This literature survey paper provides a comprehensive examination of recent advancements in asthma attack prediction, with a distinct focus on the combination of machine learning (ML) and mobile health technologies. Asthma, as a complex and variable condition, necessitates personalized approaches for effective management, and this survey explores the emerging landscape of predictive tools that leverage diverse data sources. The paper reviews studies that utilize various predictors, including symptoms, physiological measures, and environmental factors, to strengthen the accuracy of predicting asthma attacks. While considerable growth has been made, the survey also highlights existing challenges such as the requirement for external validation, data privacy concerns, and the significance of larger and more representative datasets. Furthermore, the paper discusses the potential implications of these predictive models in real-world clinical practice and the ongoing efforts required to seamlessly integrate the existing asthma management strategies. As the field continues to evolve, this literature survey focuses on providing a greater understanding of the present state, challenges, and future directions in the dynamic intersection of asthma management, ML, and mobile health technologies. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
49. Engaging adolescents in chronic disease prevention research: insights from researchers about establishing and facilitating a youth advisory group.
- Author
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Partridge, Stephanie R., Mandoh, Mariam, Todd, Allyson, and Raeside, Rebecca
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YOUNG adults ,RESEARCH personnel ,PREVENTIVE medicine ,CHRONIC diseases ,TEENAGERS ,TEENAGE girls ,VIRTUAL communities - Abstract
Our comment discusses our experience establishing a youth advisory group focused on chronic disease prevention research. The comment highlights three key learnings: the need for researchers to adapt their working style, the importance of redefining the power dynamics, and disrupting traditional research structures to align with co-researcher engagement models. Plain English Summary: In this comment, we share our insights from working with a youth advisory group in adolescent health research. Our comment supports our research paper on co-designing an online health study, "Health4Me." The youth advisors worked with us for a year, during which we also studied leadership and other outcomes. Adolescent health is gaining worldwide attention. Health researchers see the value of working with young people on issues that affect them. To address this need, we formed the Health Advisory Panel for Youth at the University of Sydney. We motivated young people through building new skills and leadership training, rather than only focusing on improved health outcomes or health knowledge. Here are our key lessons as researchers: Flexibility: We changed our approach to support online teamwork with young people, offered payment and worked around their schedules. Changing power dynamics: We empowered young people by engaging them in decisions and involved them in co-authoring papers and presentations. Challenging traditional structures: To support youth- as co-researchers, we used existing sources of funding and offered mentoring. In conclusion, we highlight practical ways of working with a youth advisory group in health research. Our teamwork led to a youth digital health program, published essays, and future research ideas. It is important for researchers to actively involve and support young people in shaping research that affects them. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
50. Virtual reality used to distract children and young people with long‐term conditions from pain or pruritus: A scoping review using PAGER.
- Author
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Singleton, Heidi, Mahato, Preeti, Arden‐Close, Emily, Thomas, Sarah, Ersser, Steven, Holley, Debbie, Yang, Xiaosong, and Roberts, Amanda
- Subjects
CHRONIC pain ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,CHRONIC diseases ,VIRTUAL reality ,SYSTEMATIC reviews ,PRIMARY health care ,ITCHING ,DESCRIPTIVE statistics ,LITERATURE reviews ,MEDLINE ,DATA analysis software ,MEDICAL research ,DISEASE complications ,CHILDREN ,ADOLESCENCE - Abstract
Aims and Objectives: To map out the primary research studies relating to how virtual reality (VR) has been used to distract children and young people with long‐term conditions from pain or pruritus. Background: Pharmacologic treatment of chronic pain and pruritus may have side effects; hence, non‐invasive non‐pharmacological treatments are being sought. Design: The scoping review followed the methodology recommended by the Joanna Briggs Institute, PAGER framework and PRISMA‐ScR checklist. The protocol was registered with the Open Science Registration on 14 February 2022 https//doi.org/10.17605/OSF.IO/K2R93. Methods: Five databases (Medline, CINAHL, PsycINFO, Web of Science and Scopus) were searched. Data were extracted from primary research studies published between 2000 and 2022 involving children and adolescent populations (<21 years) with a long‐term condition that had an element of enduring pruritus and/or pain. Results: Of 464 abstracts screened, 35 full‐text papers were assessed with 5 studies meeting the eligibility criteria. Three main themes emerged from the included studies: (1) Improvements in pain and daily functioning; (2) positive perceptions of VR and (3) accessibility and feasibility of VR. No papers were found on the effect of VR on alleviating pruritus. Conclusion: VR is feasible, acceptable, and safe for children and adolescents with chronic pain in a range of long‐term conditions and offers promise as an adjunctive treatment for improving chronic pain and quality of life. No studies were identified that targeted pruritis or measured pruritis outcomes; thus, the effects of VR for pruritis are unknown. There is a need for rigorously designed, randomised controlled trials to test the clinical and cost‐effectiveness of VR interventions for chronic pain and pruritis in children and adolescents. The use of the PAGER (Patterns, Advances, Gaps, Evidence for Practice and Research Recommendations) framework for scoping reviews helped to structure analysis and findings and identify research gaps. Relevance to Clinical Practice: VR interventions offer promise in improving chronic pain related to long‐term conditions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
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