393 results
Search Results
2. HIV status disclosure in the era of treat-all: the complexities of societal expectations and disclosure in marital relationships in Shinyanga, Tanzania.
- Author
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Erio, Tusajigwe, de Klerk, Josien, and Moyer, Eileen
- Subjects
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HIV infection transmission , *PREVENTION of infectious disease transmission , *HIV prevention , *MARRIAGE , *SOCIAL psychology , *ANTIRETROVIRAL agents , *RESEARCH funding , *SEX distribution , *ETHNOLOGY research , *INTERVIEWING , *DESCRIPTIVE statistics , *HIV infections , *PSYCHOLOGY of women , *PSYCHOLOGY of HIV-positive persons , *SOCIAL values , *SELF-disclosure - Abstract
Robust advancements in clinical treatment of people living with HIV (PLHIV) have resulted in the current "treatment as prevention" strategy: the inability to transmit the virus when it is undetectable. Nevertheless, disclosure within marital relationships remains important to adhere optimally to treatment and further limit transmission in the era of treat-all. Disclosure, however, can have serious social repercussions, particularly for women. This paper examines gendered disclosure decisions and their social consequences in marital relationships in Tanzania. Drawing from a 9-month ethnographic study in Shinyanga Region, we explore how Sukuma societal values shape disclosure decisions. In-depth interviews with 103 PLHIV and 19 FGDs inform our analysis. We found that societal values regarding gender and marriage significantly influence disclosure decisions in marital relationships. The HIV treat-all approach, with its focus on early treatment initiation preserved health and inability to transmit allowed men and women to carefully weigh the costs and benefits of disclosure to their marital aspirations. The benefits of antiretroviral treatment for social relations are often overlooked in medical interventions. We conclude that to reduce difficult disclosure decisions for PLHIV, emphasising community awareness of HIV treatment as prevention to mitigate the negative impacts of disclosure is needed. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
3. Examining HIV pre-exposure prophylaxis (PrEP) acceptability among rural people who inject drugs: predictors of PrEP interest among syringe service program clients.
- Author
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Surratt, Hilary L., Brown, Sarah, Burton, Abby L., Cranford, Will, Green, Christie, Mersch, Stephanie M., Rains, Rebecca, and Westgate, Philip M.
- Subjects
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HIV prevention , *NEEDLE exchange programs , *RESEARCH funding , *SOCIAL determinants of health , *INTERVIEWING , *DESCRIPTIVE statistics , *PRE-exposure prophylaxis , *RURAL conditions , *RESEARCH methodology , *PATIENTS' attitudes , *INTRAVENOUS drug abusers , *PSYCHOSOCIAL factors , *COMMUNITY-based social services , *SOCIAL stigma - Abstract
Rural communities in the US have increasing HIV burden tied to injection drug use, yet engagement in pre-exposure prophylaxis (PrEP) care has been low among people who inject drugs (PWID). Syringe service programs (SSPs) are widely implemented in Kentucky's Appalachian region, presenting an important opportunity to scale PrEP services. This paper examines PrEP awareness, interest and preferences among PWID attending community-based SSPs in Appalachia. Eighty participants were enrolled from two SSP locations. Eligibility included: ≥ 18 years old, current injection drug use and SSP use, and an indication for PrEP as defined by CDC guidelines. Participants completed a structured baseline interview. Predictors of PrEP awareness, interest and formulation preferences were examined. 38.8% reported baseline awareness of PrEP, 50% expressed high interest in PrEP, and 48.1%reported a preference for injectable PrEP. Significant bivariate predictors of PrEP interest included: current worry about health, higher perceived HIV risk, higher community HIV stigma, and higher enacted substance use stigma in the past year; in the adjusted model, enacted substance use stigma remained significant. Findings demonstrate substantial interest in PrEP among rural PWID. Intrapersonal and social determinant factors were associated with PrEP interest, which suggests the importance of multi-level intervention targets to increase PrEP uptake. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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4. "Food engages people, as we know": health care and service providers' experiences of using food as an incentive in HIV care and support in British Columbia, Canada.
- Author
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Gagnon, Marilou, Payne, Alayna, Guta, Adrian, and Bungay, Vicky
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HIV-positive persons ,HEALTH services accessibility ,SOCIAL support ,FOOD security ,ATTITUDES of medical personnel ,MOTIVATION (Psychology) ,RESEARCH methodology ,FOOD consumption ,INTERVIEWING ,MEDICAL screening ,QUALITATIVE research ,CASE studies ,DESCRIPTIVE statistics ,RESEARCH funding ,THEMATIC analysis - Abstract
Food insecurity is widely documented among people living with HIV (PLWH) worldwide, and it presents significant challenges across the spectrum of HIV care and support. In North America, the prevalence of food insecurity among PLWH exceeds 50%. In the province of British Columbia (BC), it exceeds 65%. It comes as no surprise that food has become an essential tool in supporting and engaging with PLWH. Over the past decade, however, a shift has taken place, and food has become an incentive to boost uptake and outcomes of prevention, testing, treatment, and support. To explore this practice, we drew on a qualitative case study of incentives in the care and support of PLWH. This paper presents the findings of a targeted analysis of interviews (N = 25) that discuss food incentives and explores two main themes that shed light on this practice: (1) Using food to engage versus to incentivize and (2) Food is more beneficial and more ethical. Providers perceived food more positively than other incentives, despite the goal remaining somewhat the same. Incentives, such as cash or gift cards, were considered ethically problematic and less helpful (and potentially harmful), whereas food addressed a basic need and felt more ethical. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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5. "I have HIV but I'm not the HIV" – the experiences of heterosexual Chinese men living with HIV in Singapore.
- Author
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Ho, Lai Peng Priscilla and Goh, Esther C. L.
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ATTITUDE (Psychology) ,GROUP identity ,PSYCHOLOGY of HIV-positive persons ,INTERVIEWING ,MEN'S health ,SELF-perception ,SOCIAL stigma ,QUALITATIVE research ,THEMATIC analysis ,PATIENTS' attitudes ,ATTITUDES toward illness - Abstract
As HIV is widely acknowledged as a stigmatized chronic condition which impacts the self, it is important to study the experiences of people living with HIV in relation to their selves and identities. According to extant literature on HIV and identity, the incorporation of an HIV identity is essential to adapting to the diagnosis. However, most of the participants in this study reject HIV as an identity. Using qualitative in-depth interviews, this paper explores the experiences of twelve heterosexual Chinese men living with HIV in Singapore. This paper is anchored by identity concepts from identity theory to examine the impact of HIV on self and identities and how various identities are reworked in the face of a stigmatized chronic medical condition. Thematic analysis shows varying impact of HIV on self, the role of normative identities and the location of HIV in their lives. The findings shed light on the importance of normative identities and the manner in which participants locate HIV in their lives. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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6. Slipping through the cracks: a qualitative study to explore pathways of HIV care and treatment amongst hospitalised patients with advanced HIV in Kenya and the Democratic Republic of the Congo.
- Author
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Burns, Rose, Venables, Emilie, Odhoch, Lilian, Kocholla, Lilian, Wanjala, Stephen, Mucinya, Gisele, Bossard, Claire, and Wringe, Alison
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EVALUATION of medical care ,RURAL conditions ,VIRAL load ,PATIENT-centered care ,INTERVIEWING ,QUALITATIVE research ,HIGHLY active antiretroviral therapy ,EXPERIENCE ,HOSPITAL care ,THEMATIC analysis ,PSYCHOLOGY of HIV-positive persons ,PSYCHOLOGICAL stress - Abstract
Advanced HIV causes substantial mortality in sub-Saharan Africa despite widespread antiretroviral therapy coverage. This paper explores pathways of care amongst hospitalised patients with advanced HIV in rural Kenya and urban Democratic Republic of the Congo, with a view to understanding their care-seeking trajectories and poor health outcomes. Thirty in-depth interviews were conducted with hospitalised patients with advanced HIV who had previously initiated first-line antiretroviral therapy, covering their experiences of living with HIV and care-seeking. Interviews were audio-recorded, transcribed and translated before being coded inductively and analysed thematically. In both settings, participants' health journeys were defined by recurrent, severe symptoms and complex pathways of care before hospitalisation. Patients were often hospitalised after multiple failed attempts to obtain adequate care at health centres. Most participants managed their ill-health with limited support networks, lived in fragile economic situations and often experienced stress and other mental health concerns. Treatment-taking was sometimes undermined by strict messaging around adherence that was delivered in health facilities. These findings reveal a group of patients who had "slipped through the cracks" of health systems and social support structures, indicating both missed opportunities for timely management of advanced HIV and the need for interventions beyond hospital and clinical settings. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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7. HIV-sensitive social protection services in mitigating the challenges and vulnerability of the children affected by HIV/AIDS in Bangladesh: a qualitative study.
- Author
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Afroz, Tahmina, Camellia, Suborna, Oyewale, Tajudeen, Uddin, M. Ziya, and Mahmud, Ilias
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HIV infections & psychology ,GENDER role ,WELL-being ,PSYCHOLOGY of parents ,SOCIAL support ,COUNSELING ,HEALTH services accessibility ,PSYCHOLOGICAL vulnerability ,RESEARCH methodology ,INTERVIEWING ,SOCIAL stigma ,QUALITATIVE research ,SOCIAL services ,PARENT-child relationships ,POVERTY ,AIDS ,TRANSPORTATION ,CHILDREN ,ADULTS - Abstract
Children are particularly vulnerable to the consequences of HIV/AIDS. This paper reports on the challenges faced by children due to their or their parents' HIV/AIDS status and the role of HIV-sensitive social protection in mitigating these challenges. We conducted 32 semi-structured in-depth interviews – 15 with children affected by HIV/AIDS (aged 13–18 years) and 17 with parents of children aged 10–12 years. We found children face significant challenges associated with poverty, gender norms, stigma, and lack of social support which affect their rights to education, shelter, treatment, and food. HIV-sensitive social protection packages such as conditional cash transfer, counselling, and community sensitization help continuation of education, facilitate access to treatment and social protection services, reduce stigma in the community and improve wellbeing of children. Children's accessibility to these services was limited due to distance, transport expenses, poor health conditions of the parents, gender issues, and stigma. HIV-sensitive social protection is effective in improving children's wellbeing. Continuation and expansion of HIV-sensitive social protection packages including conditional cash transfer, psychosocial counselling, and community sensitization and life skills training to facilitate HIV/AIDS affected children's wellbeing and inclusion is recommended. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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8. Structural determinants of health: a qualitative study on female sex workers in Benin.
- Author
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Dugas, Marylène, Bédard, Emmanuelle, Kpatchavi, Adolphe C., Guédou, Fernand A., Béhanzin, Luc, and Alary, Michel
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CONCEPTUAL structures ,HIV infections ,HUMAN rights ,INTERVIEWING ,SEX work ,WOMEN'S health ,ETHNOLOGY research ,QUALITATIVE research ,SOCIAL support ,SOCIOECONOMIC factors ,HEALTH & social status - Abstract
The objective of this paper is to expose those socio-structural contexts revealing the social injustice and human rights violations that sub-Saharan women face every day when forced into sex work by unemployment or sickness. Results of a qualitative study highlighting some key structural determinants of sex work and HIV infection among FSWs will be presented and examined through the lens of the WHO conceptual framework for action on the social determinants of health. The results showed that most FSWs had lacked the necessary financial support at some point in their lives. Also, both the socioeconomic and political context failed to provide proper support to prevent involvement in sex work and the consequent risks of HIV. The cultural and societal values placed on the health and well-being of FSWs in Benin appear to depend on the degree to which sexual violence and adultery are perceived as a collective social concern. This portrait of FSWs calls for both long-term interventions through a structural determinant approach to HIV prevention, targeting all the women who could face such a financial situation well before their entry into sex work, while maintaining short and medium-term interventions on the intermediary determinants. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
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9. Community relations and child-led microfinance: a case study of caregiving children in Kenya.
- Author
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Skovdal, Morten
- Subjects
CAREGIVERS ,CHILDREN of people with mental illness ,COMMUNITY health services ,ENDOWMENTS ,INFORMATION services ,INTERVIEWING ,PARENT-child relationships ,TEAMS in the workplace ,AFFINITY groups ,THEMATIC analysis - Abstract
Rampant levels of AIDS and poverty have made many children in sub-Saharan Africa the primary caregivers of their ageing or ailing guardians. This paper reports on a social action fund initiative that brought caregiving children together to set-up and run income generating activities as a group with the aim of strengthening their coping capabilities. To further our understanding of child-led microfinance activities, this paper explores how intra-community relations can both facilitate and undermine child-led activities, and how these activities in turn can further strengthen some intra-community relations. Twenty-one children (aged 12–17) and six guardians participated in this study. Data included draw-and-write compositions (n=21), essays (n=16), workshop notes and proposals (n=8) and in-depth interviews (n=16). A thematic analysis revealed that the children actively drew on the expertise and involvement of some guardians in the project as well as on each other, developing supportive peer relations that helped strengthen their coping capabilities. However, the children's disenfranchised position in the community meant that some adults took advantage of the child-led activities for their own personal gain. Some children also showed a lack of commitment to collective work, undermining the morale of their more active peers. Nevertheless, both guardians and the children themselves began to look at caregiving children differently as their engagement in the project began to earn them respect from the community – changing guardian/child relations. The paper concludes that microfinance interventions targeting children and young people must consider children's relationships with each other and with adults as key determinants of Project success. [ABSTRACT FROM PUBLISHER]
- Published
- 2010
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10. Anal cancer screening among women with HIV: provider experiences and system-level challenges.
- Author
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Higashi, Robin T., Rodriguez, Serena A., Betts, Andrea C., Tiro, Jasmin A., Luque, Amneris E., Rivera, Rachel, and Barnes, Arti
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HIV-positive persons ,OCCUPATIONAL roles ,PROFESSIONS ,ATTITUDES of medical personnel ,RESEARCH methodology ,WORK ,EARLY detection of cancer ,COMMUNITY health services ,INTERVIEWING ,EXECUTIVES ,PAP test ,ANAL tumors ,QUALITATIVE research ,RESPONSIBILITY ,SAFETY-net health care providers ,EXPERIENTIAL learning ,FIELD notes (Science) ,MEDICAL referrals ,COMMUNICATION ,THEMATIC analysis ,ELECTRONIC health records ,WOMEN'S health - Abstract
Women living with HIV (WLWH) are at increased risk of anal cancer compared to women without HIV, often due to persistent human papillomavirus (HPV) infections. This paper describes current practices and challenges conducting anal cancer screening for WLWH at an urban integrated safety-net system and a non-profit community-based HIV clinic. We conducted 25 semi-structured interviews with clinical and administrative stakeholders to assess knowledge, clinic practices and procedures, and experiences with anal cancer screening. Interview transcripts and fieldnotes were thematically analyzed using an iterative deductive and inductive coding scheme. Findings were organized by the Consolidated Framework for Implementation Research (CFIR) domains and constructs. Provider-level barriers to conducting anal cancer screening included limited knowledge of guidelines. System-level barriers included: structural characteristics such as lack of coordination between clinics to discern provider roles and responsibilities; and limitations in available resources such as configuration of electronic health records and infrastructure to manage referrals of abnormal anal Pap results. We conclude that anal cancer screening and follow-up for WLWH requires organization and coordination between multiple care teams, updated clinical information systems to facilitate communication and support anal Pap ordering and result documentation, and infrastructure that includes policies and protocols for management of abnormal results. Trial registration: ClinicalTrials.gov identifier: NCT02135419. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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11. The interrelationship of men's self-reports of sexual risk behavior and symptoms and laboratory-confirmed STI-status in India.
- Author
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Saggurti, Niranjan, Schensul, StephenL., and Verma, RaviK.
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SEXUALLY transmitted disease diagnosis ,CHI-squared test ,CONFIDENCE intervals ,CLINICAL pathology ,EPIDEMIOLOGY ,INTERVIEWING ,PROBABILITY theory ,PUBLIC health surveillance ,RISK-taking behavior ,STATISTICAL sampling ,SELF-evaluation ,HUMAN sexuality ,SEXUALLY transmitted diseases ,SURVEYS ,DATA analysis ,MULTIPLE regression analysis - Abstract
This paper describes the interrelationship among men's self-reports of symptoms, unsafe sexual behavior, and biologically tested sexually transmitted infections (STIs). Data are drawn from the baseline survey of six-year (2001-2007) research and intervention project on men's sexual health and HIV/STI risk reduction conducted in three urban poor communities in Mumbai, India. The survey collected a wide range of demographic, attitudinal, knowledge, and behavioral data. In addition, men were tested for common STIs by selecting a systematic random sub-sample of 816 men (assuming 20% non-response). Data in this paper are based on 641 men who had completed the survey interview and for whom the testing of blood and urine samples was conducted. Results suggest that the self-reported STI-like symptoms and unsafe sexual behavior taken together as a predictor of confirmed STIs improve the sensitivity to a significantly greater degree (χ 2=2.83, p<0.05) as compared to the sensitivity of self-reported STI-like symptoms or unsafe sexual behavior alone as a predictor of confirmed STIs. In addition, the consistency of self-report was found to vary among socio-demographic and behaviorally defined sub-groups. These results provide preliminary support for the importance of population-based surveys, which collect all the three types of data such as reported behavior, symptoms and laboratory confirmed STIs for a full understanding of sexual risk and STIs and for identification of sub-groups within communities that vary in their ability to identify STI symptoms. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
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12. Global expectations and local practices: HIV support groups in the Gambia.
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Cassidy, Rebecca
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HIV infections & psychology ,THERAPEUTICS ,HIV infections ,COMMUNITY health services ,GROUNDED theory ,INFORMATION services ,INTERNATIONAL relations ,INTERVIEWING ,RESEARCH methodology ,SUPPORT groups ,SOCIAL networks ,QUALITATIVE research ,SOCIAL support - Abstract
This paper looks at the ways that people living with HIV in the Gambia, as members of HIV support groups, engaged with the programmes available to them in this context. People living with HIV engage with the global in a variety of ways. Following Ong and Collier this paper analyses the way in which people in this context experience and negotiate with the “global assemblage” around international HIV work. This can be observed in everyday practice in the formation of networks and partnerships linking people and their activities into international structures. Using qualitative methods and a grounded theoretical approach, the research followed events around HIV treatment in the Gambia 2006–2007. Looking at the support societies and their members' struggles to gain some material support, findings show how support group members negotiated and expressed agency within the available structures. They make use of accepted frames of international action which bypass the state, presenting an internationally linked “biological citizenship” which brings associated opportunities to access resources. Through the intervention of the president and his “cure” programme, this case also illustrates that people's commitment to the value structures implicit in these funding streams may not be as strong as might be assumed. In these circumstances two alternate treatment programmes, linked to very different values, were on offer, both backed up by the powerful machinery of either the state or international funding. The negotiation by people living with HIV of these avenues through which to acquire benefits and so support and health, calls into question assumptions of a “buy in” to global ideas and values without further scrutiny of the ways in which such assemblages function in different contexts. [ABSTRACT FROM PUBLISHER]
- Published
- 2010
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13. Children living with HIV-related disabilities in a resource-poor community in South Africa: caregiver perceptions of caring and rehabilitation.
- Author
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Maddocks, Stacy, Moodley, Koobeshan, Hanass-Hancock, Jill, Cobbing, Saul, and Chetty, Verusia
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DEVELOPMENTAL disabilities ,EMPLOYMENT ,HEALTH services accessibility ,HEALTH status indicators ,HIV infections ,HIV-positive persons ,HOUSING ,INTERVIEWING ,METROPOLITAN areas ,NEEDS assessment ,SOCIAL security ,QUALITATIVE research ,GOVERNMENT policy ,CHILDREN with disabilities ,SOCIAL support ,WELL-being ,THEMATIC analysis ,BURDEN of care ,CAREGIVER attitudes ,CHILDREN - Abstract
The care offered to children living with HIV (CLHIV) experiencing HIV-related disability is often challenged by caregiver illness, poverty and poor support structures in and around communities. Since caregiver needs directly influences the care offered to CLHIV this paper aimed to explore the experiences of the caregivers of CLHIV in order to inform an appropriate rehabilitation model in South Africa. A qualitative enquiry using in-depth interviews with 14 caregivers (one male and thirteen females) of CLHIV experiencing disability in a peri-urban setting was conducted. Data were analysed using thematic analysis. Four themes emerged from the interviews: understanding of HIV-related disability and rehabilitation, challengers to care and well-being, enablers to care; and perceived needs of caregivers. The study revealed that caregiver burden is influenced by the availability of resources and social support services. Financial constraints, poor access to rehabilitation and reduced support networks challenged the care offered to CLHIV. The perceived needs of the caregivers in this study included appeals for improved social security, housing, accessible rehabilitation and education. Changes in government policy guiding social support, employment, education and rehabilitation interventions are needed to improve the availability of resources, education, health and well-being of CLHIV and their caregiver's in South Africa. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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14. Reflecting on the experience of interviewing online: perspectives from the Internet and HIV study in London.
- Author
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Davis, M., Bolding, G., Hart, G., Sherr, L., and Elford, J.
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INTERVIEWING ,HOMOSEXUALITY ,QUALITATIVE research ,INTERNET ,HIV infection transmission ,SEMANTICS - Abstract
This paper considers some of the strengths and weaknesses of conducting synchronous online interviews for qualitative research. It is based on a study among gay/bisexual men that used both qualitative and quantitative methods to explore the association between seeking sex through the Internet and HIV transmission risk. Between June 2002 and January 2004, 128 gay/bisexual men living in London were interviewed one-to-one by the first author (MD) about their experience of using the Internet to find sexual partners and negotiating condom use for anal sex. Thirty-five men were interviewed online, while 93 were interviewed face-to-face (i.e. offline). This paper draws on MD's experience of conducting these interviews--both online and face-to-face. Synchronous online interviews have the advantage of being cheap, convenient and attractive to people who do not like face-to-face interviews. However, some of the social conventions and technical limitations of computer-mediated-communication can introduce ambiguity into the online dialogue. To minimize this ambiguity, both interviewer and interviewee have to edit their online interaction. One of the distinctive features of the online interview is that it emerges as a form of textual performance. This raises fundamental questions about the suitability of the synchronous online interview for exploring sensitive topics such as risky sexual behaviour. [ABSTRACT FROM AUTHOR]
- Published
- 2004
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15. Exploring barriers to consistent condom use among sub-Saharan African young immigrants in Switzerland.
- Author
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Poglia Mileti, Francesca, Mellini, Laura, Sulstarova, Brikela, Villani, Michela, and Singy, Pascal
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HIV infection transmission ,COMMITMENT (Psychology) ,CONDOMS ,SEXUAL health ,PSYCHOLOGY of immigrants ,INTERVIEWING ,RESEARCH methodology ,PARENT-child relationships ,SENSORY perception ,PLEASURE ,SEX distribution ,SOCIALIZATION ,TRUST ,QUALITATIVE research ,HEALTH literacy ,ATTITUDES toward sex ,FAMILY attitudes ,ATTITUDES toward illness - Abstract
No study to date has focused on barriers to condom use specifically among young immigrants to Europe from sub-Saharan Africa. Based on a qualitative study in sociology, this paper explores generational differences in barriers to condom use between first-generation immigrants (born in Africa and arrived in Switzerland after age 10) and second-generation immigrants (born in Switzerland to two native parents or arrived in Switzerland before age 10). Results are based on in-depth, semistructured individual interviews conducted with 47 young women and men aged 18 to 25 to understand how individual, relational, and cultural dimensions influence sexual socialization and practices. Six main barriers to consistent condom use were identified: reduced pleasure perception, commitment and trust, family-transmitted sexual norms and parental control, lack of accurate knowledge on HIV transmission, lack of awareness about HIV in Switzerland, and gender inequalities. The three first barriers concerned both generations of immigrants, whereas the three last revealed generational differences. These findings can help sexual health providers identify social causes for young sub-Saharan immigrants not using condoms. The findings also highlight the necessity of offering accurate, accessible, and adapted information to all young immigrants, as well as the particular importance of addressing families' lack of discussions about sex, understanding the sexual norms transmitted by parents, and taking into consideration cultural differences among young people born in immigration countries. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
16. Vets, denialists and rememberers: social typologies of patient adherence and non-adherence to HAART from the perspective of HIV care providers.
- Author
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Orchard, Treena, Salters, Kate, Palmer, Alexis, Michelow, Warren, Lepik, Katherine J., and Hogg, Robert
- Subjects
HIGHLY active antiretroviral therapy ,HIV infections ,INTERVIEWING ,MEDICAL personnel ,PATIENT compliance ,RESEARCH funding ,QUALITATIVE research ,PILOT projects ,JUDGMENT sampling ,PSYCHOLOGY - Abstract
For many people living with HIV/AIDS taking highly active antiretroviral therapy (HAART) is difficult due to various individual and social factors, including the side effects of these medications, HIV/AIDS stigma and poor patient–provider relationships. Most studies that examine barriers to and facilitators of adherence to HAART have been conducted with people on these medications, which is critical to improving adherence among various HIV-affected groups. Less attention has been paid to the experiences of HIV care providers, which is an important gap in the literature considering the key role they play in the delivery of HAART and the management of patient treatment plans. This paper presents findings from a qualitative pilot study that explored how HIV care providers assess adherence and non-adherence to HAART among their HIV-positive patients in Vancouver, British Columbia. Drawing upon individual interviews conducted with HIV physicians (n= 3), social service providers (n= 3) and pharmacists (n= 2), this discussion focuses on the social typologies our participants use to assess patient success and failure related to adherence. Eleven unique categories are featured and the diversity within and across these categories illustrate a broad spectrum of adherence-related behaviours among patients and the social meanings providers attribute to these behaviours. As one of the first explorations of the social typologies used by HIV care providers to assess patient performance on HAART, these data contribute valuable insights into the experiences of providers within the context of adherence-related care delivery. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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17. “In reality, it is complex and difficult”: UK nurses' perspectives on “treatment as prevention” within HIV care.
- Author
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Evans, Catrin, Bennett, Juliet, Croston, Michelle, Brito-Ault, Nathaniel, and Bruton, Jane
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HIV prevention ,ANTIVIRAL agents ,HIV infections ,HIV-positive persons ,INTERVIEWING ,PSYCHOLOGY of nurses ,NURSING specialties ,QUESTIONNAIRES ,RESEARCH funding ,SURVEYS ,QUALITATIVE research ,JUDGMENT sampling - Abstract
Globally, clinical guidelines for HIV treatment are being altered to reflect new research showing that successful treatment with antiretroviral therapies (ART) can prevent the onward transmission of HIV. As a result, health care services are being challenged to find ways to roll out “treatment as prevention” (TasP) as a public health measure. In theory, TasP requires individuals to start ART as soon as they are diagnosed – for public health reasons – which may be some time before ART for that individual is required for clinical reasons. There is currently little research on the acceptability of TasP from a patient or provider perspective. This paper reports findings from a qualitative study that sought to explore UK nurses' views and experiences of TasP in HIV care. Ten HIV specialist nurses, purposively selected from across the country, were interviewed. Results suggest that, although positive about TasP in principle, nurses hold several reservations about its implementation in practice. Perceived benefits of TasP include reassurance for patients that their loved ones are protected and that immediate care is available. Concerns include the possibility of sexual dis-inhibition or coercion within sexual relationships. In the UK context, decisions around TasP are still being made on a highly individualised patient by patient basis, within a philosophy of holistic care and partnership working. As such, the research participants called for more resources to support information giving, risk assessment and decision-making. The results show that translating a public health treatment approach into individual patient care is complex, potentially time-consuming and may alter traditional provider–patient dynamics. The findings from this study suggest that in-depth research is needed to understand better the patient, community and provider experience as TasP becomes more widely rolled out. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
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18. Understanding and mitigating HIV-related resource-based stigma in the era of antiretroviral therapy.
- Author
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Holmes, Kathleen and Winskell, Kate
- Subjects
ANTIVIRAL agents ,FOCUS groups ,HIV infections ,INTERVIEWING ,SOCIAL stigma ,QUALITATIVE research ,SAMPLE size (Statistics) ,ATTITUDES toward AIDS (Disease) - Abstract
The perception in low-resource settings that investment of resources in people living with HIV (PLHIV) is wasted because AIDS is both an incurable and deadly disease is known as resource-based stigma. In this paper, we draw on in-depth interviews (IDI), focus group discussions (FGD), and key informant interviews (KII) with 77 HIV-positive microfinance participants and nongovernmental organization leaders to examine resource-based stigma in the context of increased access to antiretroviral therapy (ART) at an individual, household, and community level in Côte d'Ivoire. The purpose of this exploratory paper is to examine: (1) resource-based stigmatization in the era of ART and (2) the relationship among microfinance, a poverty-reduction intervention, and HIV stigmatization. The frequency with which resource-based stigma was discussed by respondents suggests that it is an important component of HIV-related stigma in this setting. It affected PLHIV's access to material as well as social resources, leading to economic discrimination and social devaluation. Participation in village savings and loans groups, however, mitigated resource-based HIV stigma, suggesting that in the era of increased access to antiretroviral therapy, economic programs should be considered as one possible HIV stigma-reduction intervention. [ABSTRACT FROM PUBLISHER]
- Published
- 2013
- Full Text
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19. Proximity to HIV is associated with a high rate of HIV testing among men who have sex with men living in Douala, Cameroon.
- Author
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Lorente, Nicolas, Henry, Emilie, Fugon, Lionel, Yomb, Yves, Carrieri, MariaPatrizia, Eboko, Fred, and Spire, Bruno
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DIAGNOSIS of HIV infections ,HIV prevention ,HIV infection epidemiology ,CONFIDENCE intervals ,EPIDEMIOLOGY ,GAY men ,INTERVIEWING ,PROBABILITY theory ,QUESTIONNAIRES ,STATISTICAL sampling ,STATISTICS ,LOGISTIC regression analysis ,DATA analysis ,THEMATIC analysis ,RECEIVER operating characteristic curves ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
In low- and middle-income countries, men who have sex with men (MSM) are 19 times more likely to be HIV positive compared with background populations. Criminalisation and social rejection of homosexuality in most sub-Saharan African countries reinforce stigma and exclude MSM from prevention activities, including HIV testing. This paper's purpose is to identify factors associated with never having been HIV tested (NHT), among a sample of Cameroonian MSM. In 2008, a community-based study was conducted in Douala, the economic capital city of Cameroon, by a local NGO Alternatives-Cameroun, recruiting participants through the snowball technique and administering a questionnaire during face-to-face interviews. Proximity to HIV was investigated according to the following criteria: knowing at least one person living with HIV and having been exposed to HIV prevention interventions. NHT was defined as reporting to have never been HIV tested. A logistic regression was used to identify factors associated with NHT. Among the 165 MSM of our study group who reported that they were not HIV positive, 19% reported NHT. Factors independently associated with NHT were as follows: being younger, being Muslim, not having a steady male partner, not knowing any person living with HIV and never having been exposed to HIV prevention interventions. In this MSM population, a small proportion reported that they had never been HIV tested and among these, the percentage was higher among individuals not in proximity to HIV. Despite the hostile context of sub-Saharan African countries towards MSM, local and national HIV testing campaigns to date may have played a substantial role in raising HIV awareness in the MSM population living in Douala, and peer-based counselling may have educated those in contact with Alternatives-Cameroun regarding the positive value of HIV testing. This result is a further argument for continuing community-based prevention and extending it to difficult-to-reach MSM. [ABSTRACT FROM AUTHOR]
- Published
- 2012
- Full Text
- View/download PDF
20. Sources of motivation and frustration among healthcare workers administering antiretroviral treatment for HIV in rural Zimbabwe.
- Author
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Campbell, C., Scott, K., Madenhire, C., Nyamukapa, C., and Gregson, S.
- Subjects
ANTIVIRAL agents ,ATTITUDE (Psychology) ,DRUGS ,FOCUS groups ,HIV infections ,INTERVIEWING ,MEDICAL personnel ,MOTIVATION (Psychology) ,PATIENT compliance ,POVERTY ,RESEARCH funding ,QUALITATIVE research ,THEMATIC analysis - Abstract
The roll-out of accessible and affordable antiretroviral (ARV) drugs for people living with HIV in low-income countries is drastically changing the nature of HIV-related healthcare. The Zimbabwean Ministry of Health has renewed efforts to make antiretroviral treatment (ART) for HIV free and publically available across the country. This paper describes the findings from a multi-method qualitative study including interviews and a focus group with healthcare workers (mostly nurses), totalling 25 participants, and field notes from over 100 hours of ethnographic observation in three rural Zimbabwean health centres. These health centres began providing free ARV drugs to HIV-positive people over one year prior to the research period. We examined sources of motivation and frustration among nurses administering ART in these resource-poor health centres. The findings suggest that healthcare workers administering ART in challenging circumstances are adept at drawing strength from the dramatic physical and emotional recoveries made possible by ART and from their personal memories of the suffering caused by HIV/AIDS among close friends or family. However, healthcare staff grappled with extreme resource shortages, which led to exhaustion and frustration. Surprisingly, only one year into ART provision, healthcare workers did not reference the professional challenges of their HIV work before ART became available, suggesting that medical breakthroughs such as ART rapidly come to be seen as a standard element of nursing. Our findings provide a basis for optimism that medical breakthroughs such as ART can reinvigorate healthcare workers in the short term. However, we caution that the daily challenges of nursing in poor environments, especially administering an ongoing and resource-intensive regime such as ART, must be addressed to enable nurses to continue delivering high-quality ART in sub-Saharan Africa. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
21. HIV-positive women in Australia explain their use and non-use of antiretroviral therapy in preventing mother-to-child transmission.
- Author
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McDonald, Karalyn and Kirkman, Maggie
- Subjects
VERTICAL transmission (Communicable diseases) ,ANALYSIS of variance ,ANTIVIRAL agents ,DECISION making ,DRUGS ,HIV infections ,INTERVIEWING ,PATIENT compliance ,PATIENTS ,WOMEN ,NARRATIVES ,HIV seroconversion ,PREGNANCY ,PREVENTION - Abstract
This paper explores HIV-positive women's accounts of their use and non-use of treatments for the prevention of mother-to-child transmission. In-depth interviews were conducted in 2001 with 34 HIV-positive women who were diagnosed during their childbearing years. This paper reports on the 16 women who gave birth after being diagnosed with HIV. Some women reported experiencing debilitating side-effects of antiretroviral (ARV) therapy, and all were aware that the history of HIV therapy was not one of clear, consistent and benevolent effectiveness. It was evident that women wanted the best outcomes for themselves and their babies. Women represented their role vis-a-vis their children as encompassing protection against a medical fraternity that insisted on the use of ARV and prophylaxis without acknowledging the mothers' concerns about toxicity. From the women's perspective, it made sense not to let their babies become experimental subjects when long-term effects were unknown. To maximise the benefit of ARV therapy to mothers and babies, thereby reducing the risk of vertical transmission, it is imperative to understand a woman's explanation of what therapy means to her, and advisable to presume that she wants the best for her baby. Such an approach will facilitate better communication and encourage clinicians and patients to work towards a shared goal. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
22. Persuading, protesting and exchanging favours: strategies used by Indian sex workers to win local support for their HIV prevention programmes.
- Author
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Cornish, Flora, Shukla, Anuprita, and Banerji, Riddhi
- Subjects
HIV prevention ,HIV infection transmission ,COMMUNITY health services ,INFORMATION services ,INTERVIEWING ,POLICE ,PRACTICAL politics ,SEX work ,RESEARCH funding ,SELF-efficacy ,SOCIAL capital ,SOCIAL support ,SOCIAL context - Abstract
Given that the communities which are most vulnerable to HIV often have little control over their own lives and their health-related behaviour, HIV prevention policies increasingly recommend that HIV prevention projects work to build relationships with powerful external groups (i.e., build “bridging social capital”). To aid conceptualisation ofhowcommunity organisations may build such social capital, this paper outlines a typology of strategies for influencing local stakeholders. We present a study of two successful Indian sex workers' organisations, VAMP and DMSC, focusing on how the organisations have influenced three groups of stakeholders, namely police, politicians and local social organisations. Interviews with project employees (45), with representatives of the three groups of stakeholders (12) and fieldwork diaries recording 6 months of observation in each site provide the data. Three approaches emerged. “Persuading” refers to the practice of holding information-giving meetings with stakeholders and requesting their support. It appears to build “weak social ties”. “Protesting” entails a collective confrontation with stakeholders, and appears to be useful when the stakeholder has a public image to protect that would be tarnished by protest, and when the protestors can stake a legitimate claim that their rights are being denied. In “exchanging favours”, the sex workers' organisations find creative ways to position themselves as offering valued resources to their stakeholders (such as useful information on criminal activities for the police, a stage and audience for politicians or a celebration for local social organisations) as incentives for their support. In conclusion, we discuss the strengths and weaknesses of each approach, the implications for social capital theorising and implications for community HIV prevention. [ABSTRACT FROM PUBLISHER]
- Published
- 2010
- Full Text
- View/download PDF
23. Tying their hands? Institutional obstacles to the success of the ASHA community health worker programme in rural north India.
- Author
-
Scott, Kerry and Shanker, Shobhit
- Subjects
HIV infections ,THERAPEUTICS ,RURAL health ,COMMUNITY health workers ,FOCUS groups ,INTERVIEWING ,MEDICAL care ,GOVERNMENT programs ,THEMATIC analysis ,EVALUATION of human services programs - Abstract
This paper is a contribution to the growing literature on how best to design and support community health worker (CHW) programmes to maximise their positive impact. CHWs are laypeople trained to promote health among their peers. To do so they are commonly tasked with providing basic curative services, promoting the use of existing health services, facilitating cultural mediation between communities and healthcare providers and encouraging critical reflection and dialogue on social health issues. This paper presents a case study of a CHW project in rural Uttarakhand, north India, called the Accredited Social Health Activist (ASHA) programme. While the ASHA programme is not specifically targeting HIV/AIDS, CHW programmes have been flagged as a key means of addressing health resource shortages in poor countries, especially in relation to HIV/AIDS. This study of the ASHA programme provides insights into how best to support CHW programmes in general, including those focused on HIV/AIDS. The research involved 25 interviews and five focus groups with ASHAs, health professionals and community members as well as over 100 hours of non-participant observation at public health centres. The research investigated contextual features of the programme that are hindering the ASHAs' capacity to increase quantitative health outcomes and act as cultural mediators and agents of social change. Research found that ASHAs were institutionally limited by: (1) the outcome-based remuneration structure; (2) poor institutional support; (3) the rigid hierarchical structure of the health system; and (4) a dearth of participation at the community level. The conclusion suggests that progressive policy on CHW programmes must be backed up by concrete institutional support structures to enable CHWs to fulfil their role. [ABSTRACT FROM PUBLISHER]
- Published
- 2010
- Full Text
- View/download PDF
24. HIV patient and provider feedback on a telehealth collaborative care for depression intervention.
- Author
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Drummond, Karen L., Painter, Jacob T., Curran, Geoffrey M., Stanley, Regina, Gifford, Allen L., Rodriguez-Barradas, Maria, Rimland, David, Monson, Thomas P., and Pyne, Jeffrey M.
- Subjects
MENTAL depression ,THERAPEUTICS ,ATTITUDE (Psychology) ,COMPARATIVE studies ,CONTENT analysis ,COST control ,COST effectiveness ,COUNSELING ,PSYCHOLOGY of HIV-positive persons ,INTERPROFESSIONAL relations ,INTERVIEWING ,RESEARCH methodology ,MEDICAL personnel ,MEDICAL screening ,PATIENT satisfaction ,PHARMACISTS ,PSYCHIATRISTS ,RESEARCH funding ,HEALTH self-care ,TELEMEDICINE ,RANDOMIZED controlled trials ,EVALUATION of human services programs ,ELECTRONIC health records ,PATIENTS' attitudes - Abstract
In the HIV Translating Initiatives for Depression into Effective Solutions project, we conducted a randomized controlled effectiveness and implementation trial comparing depression collaborative care with enhanced usual care in Veterans Health Administration HIV clinics in the US. An offsite HIV depression care team including a psychiatrist, a depression care manager (DCM), and a clinical pharmacist provided collaborative care using a stepped-care model of treatment and made recommendations to providers through the electronic health record system. The DCM delivered care management to HIV patients through phone calls, performing routine assessments and providing counseling in self-management and problem-solving. The DCM documented all calls in each patient’s electronic medical record. In this paper we present results from interviews conducted with patients and clinical staff in a multi-stage formative evaluation (FE). We conducted semi-structured FE interviews with 26 HIV patients and 30 clinical staff at the three participating sites during and after the trial period to gather their experiences and perspectives concerning the intervention components. Interviews were transcribed verbatim and analyzed using rapid content analysis techniques. Patients reported high satisfaction with the depression care manager (DCM) phone calls. Both HIV and mental health providers reported that the DCM’s chart notes in the electronic health record were very helpful, and most felt that a dedicated DCM for HIV patients is ideal to meet patient needs. Sites encountered barriers to achieving and maintaining universal depression screening, but had greater success when such screening was incorporated into routine intake processes. FE results demonstrated that depression care management via telehealth from an offsite team is acceptable and helpful to both HIV patients and their providers. Given that a centralized offsite depression care team can deliver effective, cost-effective, cost-saving services for multiple HIV clinics in different locations with high patient and provider satisfaction, broad implementation should be considered. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
- Full Text
- View/download PDF
25. Costs and benefits of secrecy: the dilemma experienced by adolescents seropositive for HIV.
- Author
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Galano, Eliana, Turato, Egberto Ribeiro, Succi, Regina Célia, de Souza Marques, Heloisa Helena, Della Negra, Marinella, da Silva, Mariliza Henrique, do Carmo, Fabiana Bononi, Gouvea, Aida de Fátima Barbosa, Delmas, Philippe, Côté, José, and Machado, Daisy Maria
- Subjects
VERTICAL transmission (Communicable diseases) ,DIAGNOSIS of HIV infections ,PSYCHOLOGY of the sick ,ANXIETY ,FEAR ,PSYCHOLOGY of HIV-positive persons ,INTERPERSONAL relations ,INTERVIEWING ,MEDICAL ethics ,PRIVACY ,RESEARCH funding ,RESPECT ,RESPONSIBILITY ,STATISTICAL sampling ,UNCERTAINTY ,QUALITATIVE research ,DISCLOSURE ,SOCIAL support ,DATA analysis software ,SEXUAL partners ,DESCRIPTIVE statistics ,PSYCHOLOGY - Abstract
This study explored the experiences of the first generation of adolescents who acquired HIV through vertical transmission when disclosing their diagnosis to friends and romantic partners. The study sample was selected by convenience, with 20 patients (13–20 years old) participating in a qualitative investigation using individual interviews (language: Portuguese; duration: 45 minutes). The participants were followed in specialized clinics for the treatment of pediatric AIDS in São Paulo, Brazil. The results suggest that families who live with HIV tend to keep it a secret, and such behavior is learned and accepted unquestioningly as natural. Respect for privacy and the fear of rejection, coupled with the belief that information about their disease will be spread, are the main beliefs with which participants justify their secrecy. In terms of romantic relationships, adolescents were aware that their HIV status should at some point be shared with current or future sexual partners. However, the decision to reveal an HIV diagnosis in romantic relationships is permeated by anxieties, uncertainties about the right time, and fear of abandonment. In any case, telling the truth requires trust, guarantees of the other’s love, and, in some cases, probing romantic partners beforehand to learn their perceptions about the disease. Participants who had experiences disclosing their HIV status shared positive and negative results, including emotional support, acceptance, and understanding, along with ostracism, discrimination, and abandonment by family members. The findings of this paper reinforce the challenges of revealing an HIV diagnosis to third parties. It requires understanding the meaning and importance of the secret for each patient, along with the conflict between the right to confidentiality and the responsibility of treating others exposed to the disease. All these aspects should be discussed extensively with this population and incorporated into clinical practice. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
- Full Text
- View/download PDF
26. “I’m taking control”: how people living with HIV/AIDS manage stigma in health interactions.
- Author
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Brinsdon, Annastaisha, Abel, Gillian, and Desrosiers, Jennifer
- Subjects
DISCRIMINATION (Sociology) ,EXPERIENCE ,HIV-positive persons ,INTERVIEWING ,RESEARCH methodology ,MEDICAL ethics ,PATIENT-professional relations ,PRIVACY ,RESEARCH funding ,SOCIAL stigma ,QUALITATIVE research ,DATA analysis ,THEMATIC analysis ,SELF advocacy ,PATIENTS' attitudes - Abstract
Despite international efforts, stigma is still a significant issue for people living with HIV/AIDS (PLWHA). This paper explores the stigma encountered in health interactions, focusing on strategies PLWHA use to manage and reduce it. It is hoped that our findings will improve future interactions by contributing towards a more understanding practitioner–patient relationship. The data have been drawn from a small qualitative study conducted in Christchurch, New Zealand. Fourteen participants took part in semi-structured face-to-face interviews in 2013 and 11 of these participants were then interviewed again in 2014. Codes and themes were developed through inductive thematic analysis of the interview transcripts. Our findings identified that whilst the majority of participants had positive experiences, nearly all had faced stigma during their health interactions. Most of these encounters were due to healthcare workers holding exaggerated fears of transmission or not maintaining confidentiality and privacy. The main way that participants managed this stigma was through seeking control in their interactions. This overarching strategy could be further divided into three key themes: selective disclosure of their HIV status, self-advocacy and developing their HIV knowledge. We discuss these findings in the context of the current literature, comparing our results to strategies that have been previously identified in social settings. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
27. A psychoeducational approach for prevention of burnout among teachers dealing with HIV/AIDS in South Africa.
- Author
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Johnson, Sharon Mary and Naidoo, Anthony Vernon
- Subjects
PSYCHOLOGICAL burnout prevention ,HIV infections & psychology ,EMOTIONS ,FOCUS groups ,INTERVIEWING ,JOB stress ,LAUGHTER ,PROFESSIONS ,QUESTIONNAIRES ,SELF-efficacy ,PSYCHOLOGY of teachers ,ADULT education workshops ,EMOTIONAL intelligence ,QUALITATIVE research ,SOCIAL support ,THEMATIC analysis ,MINDFULNESS ,DESCRIPTIVE statistics ,PSYCHOEDUCATION - Abstract
Teaching is one of the most stressful occupations, with high stress and burnout levels of teachers necessitating intervention. This is especially relevant for South African teachers tasked with additional responsibilities of dealing with HIV/AIDS issues, as well as attending to normal curricula duties. A burnout prevention intervention, based on Paulo Freire’s adult educational approach, using transpersonal psychology techniques, was introduced to HIV/AIDS coordinator teachers (n = 27) at high-risk schools in the Western Cape, South Africa, who attended six three-hour weekly workshops. This paper presents the bottom-up thematic analyses of the group, as well as individual global analysis (n = 10) of the qualitative data, derived from focus group interviews and workshop evaluations after the intervention, providing insights into the experiences of workshop participants and their teaching contexts. The mind map of one participant is illustrated. The findings of the study confirmed that transpersonal practices (TP) presented in psychoeducation workshops were helpful in mediating stress and burnout in the work and personal contexts of teachers dealing with HIV/AIDS. TP offer practical applications of right brain emotional and social intelligence practices that could be incorporated into care and wellness school programmes for teachers vulnerable to stressors related to HIV/AIDS. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
- Full Text
- View/download PDF
28. Risk of major depressive disorder among older persons living in HIV-endemic central and southwestern Uganda.
- Author
-
Kinyanda, Eugene, Kuteesa, Monica, Scholten, Francien, Mugisha, Joseph, Baisley, Kathy, and Seeley, Janet
- Subjects
MENTAL depression risk factors ,GRIP strength ,ANTIRETROVIRAL agents ,COMPARATIVE studies ,CONFIDENCE intervals ,MENTAL depression ,GERIATRIC assessment ,EXERCISE tests ,HIV infections ,INTERVIEWING ,MUSCLE contraction ,PSYCHOLOGICAL tests ,RESEARCH funding ,LOGISTIC regression analysis ,SOCIOECONOMIC factors ,DISEASE prevalence ,CROSS-sectional method ,ODDS ratio - Abstract
Major depressive disorder (MDD) is projected to become the second most common cause of disability by 2020 calling for a better understanding its antecedents across the lifespan and in diverse socio-cultural settings. In this paper we describe the risk factors of MDD among older people (50 years +) living in HIV-endemic central and southwestern Uganda. A cross-sectional study was undertaken among 471 respondents (50 years +) participating in the Wellbeing of Older People’s Study cohort of the MRC/UVRI Uganda research Unit on AIDS in Uganda. Participants were from five strata: HIV negative, HIV positive on ART, HIV positive not on ART, having an adult child on ART, and having an adult child who died of HIV. Overall MDD prevalence was 9.2% (95% CI 6.7–12.2%) with a prevalence among males of 7.4% (95% CI 4.0–12.3%) and females of 10.3% (95% CI 7.0–14.3%). Factors significantly associated with MDD included: declining socio-economic status, increasing disability scores, decreasing mean grip strength, reported back pain, and not having hypertension. Marginally associated with MDD was being HIV infected and not on ART. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
29. The work of negotiating HIV as a chronic condition: a qualitative analysis.
- Author
-
Thompson, Lee and Abel, Gillian
- Subjects
ADAPTABILITY (Personality) ,PSYCHOLOGICAL adaptation ,AGING ,CHRONIC diseases ,EXPERIENCE ,HIV infections ,INTERVIEWING ,RESEARCH methodology ,RESEARCH funding ,QUALITATIVE research ,THEMATIC analysis - Abstract
Living with human immunodeficiency virus (HIV) in the industrialised world has for over a decade been conceptualised as living with a chronic illness. People living with HIV now are amongst the first to live and age with the virus. Drawing on a qualitative longitudinal study in a low-incidence area in a low-incidence country, this paper investigates the nuanced ways that people negotiate this condition. While it has been argued that HIV is a condition like any other chronic disease, our thematic analysis reveals some similarities and particularities around living with the condition. In comparing themselves to others with the condition, high levels of diversity of experience were identified that extended well beyond length of time from diagnosis. In comparing their illness with other illnesses, the location, for example, of their specialist service within a clinic for those with acute sexually transmitted diseases was identified as problematic. The work involved in maintaining a coherent sense of self in the face of existing and shifting challenges as a result of their infection was a second strong theme. The final theme involved flux and flex work in the ways people sought to gain and maintain control over various aspects of their lives. All of these experiences are mediated by place; that is the experience is not the same as that of those who live where there is a much higher incidence of infection. The work involved in negotiating this condition in low-incidence environments deserves more attention, but aspects of these findings are significant in higher incidence contexts as well; in particular, passivity in face of infection as one ages and the potential for medication refusal as a means of maintaining control over life and death. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
30. Reconsidering the orphan problem: the emergence of male caregivers in Lesotho.
- Author
-
Block, Ellen
- Subjects
ORPHANAGES ,AIDS patients ,CAREGIVERS ,CHILD care ,INTERVIEWING ,RESEARCH methodology ,ORPHANS ,RESEARCH funding ,GENDER role ,SOCIAL change ,SOCIAL norms ,SOCIAL psychology ,FAMILY relations ,DATA analysis software ,DESCRIPTIVE statistics ,SOCIAL role change ,CHILDREN ,PSYCHOLOGY - Abstract
Care for AIDS orphans in southern Africa is frequently characterized as a “crisis”, where kin-based networks of care are thought to be on the edge of collapse. Yet these care networks, though strained by AIDS, are still the primary mechanisms for orphan care, in large part because of the essential role grandmothers play in responding to the needs of orphans. Ongoing demographic shifts as a result of HIV/AIDS and an increasingly feminized labor market continue to disrupt and alter networks of care for orphans and vulnerable children. This paper examines the emergence of a small but growing number of male caregivers who are responding to the needs of the extended family. While these men are still few in number, the strength of gendered ideologies of female care means that this group of men is socially, if not statistically significant. Men continue to be considered caregivers of last resort, but their care will close a small but growing gap that threatens to undermine kin-based networks of care in Lesotho and across the region. The adaptation of gender roles reinforces the strength and resilience of kinship networks even when working against deeply entrenched ideas about gendered division of domestic labor. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
31. Underage and underserved: reaching young women who sell sex in Zimbabwe.
- Author
-
Busza, Joanna, Mtetwa, Sibongile, Mapfumo, Rumbidzo, Hanisch, Dagmar, Wong-Gruenwald, Ramona, and Cowan, Frances
- Subjects
HIV prevention ,HIV infection risk factors ,AIDS education ,AGE distribution ,INTERVIEWING ,MEDICAL care use ,SEX work ,RESEARCH funding ,SCALE analysis (Psychology) ,WOMEN'S health ,QUALITATIVE research ,UNSAFE sex ,MEDICALLY underserved persons ,EVALUATION of human services programs ,DESCRIPTIVE statistics - Abstract
Young women who sell sex (YWSS) in Southern Africa are highly vulnerable to HIV, as the risks of being young and female in a high prevalence setting coalesce with those of commercial sex. YWSS are less able to negotiate safe sex, more likely to have higher risk partners, and less likely to use available health services compared to older sex workers. In Zimbabwe’s national HIV programme for sex workers, fewer than 1% of clients were 15–29. We developed monthly interactive workshops for YWSS based on an Activity Pack consisting of 21 sessions organised into six modules. The aim was to encourage YWSS’ interaction with each other, build their trust, confidence and skills, and encourage uptake of clinical services. We conducted a process evaluation to assess programme strengths, identify challenges, and recommend changes. This paper presents findings synthesising programme records with qualitative data and discusses feasibility, acceptability, and outputs during the pilot phase. In total, 143 YWSS attended meetings and most were from the target 15–19-year-old age group. Participants enjoyed the sessions and reported improved cooperation, willingness to negotiate with clients, and self-reflection about their futures. Staff found facilitating sessions easy and activities clear and appropriate. Challenges included identifying appropriate referrals, initial recruitment of women in some sites, and managing participants’ requests for financial compensation. The number of clients aged 15–19 increased at sex worker clinics in all sites. This programme is the first to target YWSS in Zimbabwe to address their disproportionately low service use. It proved feasible to staff and acceptable to participants over a one-year period. Given enhanced vulnerability of YWSS, this programme provides one workable model for reaching this underserved group. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
32. “It's because they care”: understanding pathways to classroom concentration problems among HIV-affected children and youth in Western Kenya.
- Author
-
Skovdal, Morten
- Subjects
HIV infections & psychology ,ANXIETY ,ATTENTION ,PSYCHOLOGY of caregivers ,DRAWING ,FATIGUE (Physiology) ,HUNGER ,INTERVIEWING ,PHENOMENOLOGY ,MEDICAL cooperation ,PEDIATRICS ,PHOTOGRAPHY ,POVERTY ,RESEARCH ,RESEARCH funding ,STATISTICAL sampling ,SCHOOL environment ,STUDENT assistance programs ,STUDENTS ,TEACHERS ,QUALITATIVE research ,THEMATIC analysis ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Children and young people living in households affected by HIV are experiencing poorer educational outcomes compared to their peers. This article explores how different forms of marginalisation interface and manifest themselves in classroom concentration problems, undermining their education. This mixed qualitative methods study was conducted with teachers and pupils from three primary and three secondary schools in the Siaya County of Western Kenya. Specifically, it involved 18 teachers through individual interviews and 51 HIV-affected children and youth through individual interviews (n = 47) and Photovoice (n = 51). Verbatim transcripts were imported into NVivo10 for thematic indexing and analysis. The analysis revealed three core pathways to classroom concentration problems amongst HIV-affected pupils. One, a general ‘lack of care’ and neglect in the context of household poverty and illness, meant that many of the participating pupils went to school hungry, unable to follow classes. Others were teased by peers for looking visibly poor, and felt anxious when in school. Two, some HIV-affected pupils play a key role in keeping their household afloat, generating food and income as well as providing practical support. ‘Caregiving’ pupils often reported coming to school exhausted, with limited physical and mental energy left for learning. Three, many participating pupils had their minds at home (‘caring about’). They were concerned about sick or frail household members, thinking about their next meal and care needs. Although the pupils demonstrated an admirable attentiveness to the needs of others, this came at a heavy price, namely their ability to concentrate in class. The paper argues that care ethics, household poverty and familial HIV are central to understanding the classroom concentration problems of HIV-affected pupils. To ensure school-going children and youth affected by HIV have the same opportunities as their peers, education initiatives must simultaneously alleviate both household poverty and other challenges pertaining to familial HIV. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
33. Understanding client satisfaction with HIV testing and counseling services: a mixed-methods study in four African countries.
- Author
-
Osborn, Michelle and Obermeyer, Carla Makhlouf
- Subjects
DIAGNOSIS of HIV infections ,HIV infections & psychology ,THERAPEUTICS ,HIV infections ,EVALUATION of medical care ,MEDICAL care ,COUNSELING ,INFORMED consent (Medical law) ,INTERVIEWING ,RESEARCH methodology ,MEDICAL cooperation ,MEDICAL ethics ,PATIENT-professional relations ,MEDICAL screening ,PATIENT satisfaction ,PRIVACY ,QUESTIONNAIRES ,RESEARCH ,RESEARCH funding ,PRE-tests & post-tests ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
This paper uses mixed methods to provide comparative evidence across four African countries and identify those aspects of the testing experience that are the most important components of clients’ satisfaction with services. We analyze data from three sources: a survey of clients at health facilities that included closed-ended questions about specific services and interactions around testing; responses to open-ended questions about testing experiences that were part of the same survey; and semi-structured interviews with a subsample of respondents who described their experience of testing and being diagnosed with HIV. High levels of reported satisfaction are found in both the survey and interview. The critical factors contributing to client satisfaction included: the three C's of testing-counseling, consent, and confidentiality, client–provider interactions, convenience of location, “good services”, and reliable test results. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
34. Application of an ecological framework to examine barriers to the adoption of safer conception strategies by HIV-affected couples.
- Author
-
Saleem, Haneefa T., Surkan, Pamela J., Kerrigan, Deanna, and Kennedy, Caitlin E.
- Subjects
PREVENTION of infectious disease transmission ,SAFETY ,CONCEPTION ,ECOLOGICAL research ,HIV infections ,INTERVIEWING ,RESEARCH methodology ,MEDICAL personnel ,SCIENTIFIC observation ,RESEARCH funding ,REPRODUCTIVE health ,QUALITATIVE research ,JUDGMENT sampling ,THEMATIC analysis ,DATA analysis software ,PSYCHOLOGY - Abstract
Safer conception interventions can significantly reduce the risk of horizontal HIV transmission between HIV-serodiscordant partners. However, prior to implementing safer conception interventions, it is essential to understand potential barriers to their adoption so that strategies can be developed to overcome these barriers. This paper examines potential barriers to the adoption of safer conception strategies by HIV-affected couples in Iringa, Tanzania using an ecological framework. We interviewed 30 HIV-positive women, 30 HIV-positive men and 30 health providers engaged in delivering HIV-related services. We also conducted direct observations at five health facilities. Findings suggest that there are multiple barriers to safer conception that operate at the individual, relational, environmental, structural, and super-structural levels. The barriers to safer conception identified are complex and interact across these levels. Barriers at the individual level included antiretroviral adherence, knowledge of HIV status, knowledge and acceptability of safer conception strategies, and poor nutrition. At the relational level, unplanned pregnancies, non-disclosure of status, gendered power dynamics within relationships, and patient–provider interactions posed a threat to safer conception. HIV stigma and distance to health facilities were environmental barriers to safer conception. At the structural level there were multiple barriers to safer conception, including limited safer conception policy guidelines for people living with HIV (PLHIV), lack of health provider training in safer conception strategies and preconception counseling for PLHIV, limited resources, and lack of integration of HIV and sexual and reproductive health services. Poverty and gender norms were super-structural factors that influenced and reinforced barriers to safer conception, which influenced and operated across different levels of the framework. Multi-level interventions are needed to ensure adoption of safer conception strategies and reduce the risk of HIV transmission between partners within HIV-serodiscordant couples. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
35. “Just take your medicine and everything will be fine”: Responsibilisation narratives in accounts of transitioning young people with HIV into adult care services in Australia.
- Author
-
Newman, Christy E., Persson, Asha, Miller, Angela, and Brown, Rebecca J.
- Subjects
HIV infections & psychology ,ANTI-HIV agents ,TRANSITIONAL care ,RESEARCH methodology ,SELF-management (Psychology) ,ATTITUDES of medical personnel ,INTERVIEWING ,ANTIRETROVIRAL agents ,RESPONSIBILITY ,PATIENTS' attitudes ,RESEARCH funding ,HEALTH self-care - Abstract
Young people who have grown up with perinatally acquired HIV in wealthy nations are increasingly transitioning into adult care settings which expect more independence and self-regulation than paediatric care. Drawing on the first qualitative study on growing up with HIV in Australia, this paper examines “responsibilisation” narratives in semi-structured interviews conducted with young people with HIV and their paediatric and adult care providers. Three dominant narratives were identified: responsibilisation as imperative, practice and contest. This suggests that while young people growing up with HIV in an advanced liberal setting such as Australia may value the independence of adult care, and appreciate the need to take responsibility for their health, the practices involved in becoming a responsible health citizen are shaped by individual histories and circumstances, and in some cases, can lead to serious contestation and conflict with care providers. Placing a stronger emphasis on what young people can gain from taking an active role in managing their health may more successfully foster responsibilisation, rather than focusing on what they will lose. Clinicians could benefit from greater support regarding how to engage young people with the elements of responsibilisation likely to resonate more meaningfully at different points in their lives. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
36. Risky traditional practices and prevention of mother-to-child transmission of HIV: the case of Chiota community in Zimbabwe.
- Author
-
Nyati-Jokomo, Zibusiso, January, James, Ruparanganda, Watch, and Chitsike, Inam
- Subjects
HIV prevention ,VERTICAL transmission (Communicable diseases) ,BREAST milk ,FLUIDS ,FOCUS groups ,INTERVIEWING ,RESEARCH methodology ,PEDIATRICS ,RISK-taking behavior ,QUALITATIVE research ,JUDGMENT sampling ,THEMATIC analysis ,AFRICAN traditional medicine ,PREVENTION - Abstract
The objective of this study was to explore cultural practices that could expose babies to HIV infection during the postnatal period in Chiota community in Zimbabwe. Purposively selected and gender disaggregated members of the community (n = 231) were informants to 23 focus group discussions and 8 semi-structured key-informant interviews. Data were analysed thematically. Emerging themes relating to risky practices were rituals surrounding open fontanelle, toning of child's sexual libido, initiation of sex after childbirth, treatment of eye and ear infections, tongue-tie and pre-mastication. These practices exposed babies to bodily fluids such as saliva, breast milk, vaginal fluids, pre-cum and semen which in turn put the babies at low to high risk of contracting HIV. This paper discusses implications for these risky practices in prevention of mother-to-child transmission of HIV. There is, therefore, need for studies to establish the prevalence of these practices. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
37. “We have to try and have this child before it is too late”: missed opportunities in client–provider communication on reproductive intentions of people living with HIV.
- Author
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Mindry, D.L., Crankshaw, T.L., Maharaj, P., Munthree, C., Letsoalo, T., Milford, C., Greener, R.M., Rambally, L., Carpenter, S., and Smit, J.A.
- Subjects
HUMAN reproduction ,DECISION making ,FOCUS groups ,INTERVIEWING ,RESEARCH methodology ,PATIENT-professional relations ,MOTIVATION (Psychology) ,PATIENTS ,RESEARCH funding ,SURVEYS ,PSYCHOLOGY of AIDS patients ,QUALITATIVE research ,DESCRIPTIVE statistics ,PSYCHOLOGY - Abstract
Men and women living with HIV with access to ARVs are living longer, healthier lives that can and often do include bearing children. Children occupy a key space in men and women's personal and social lives and often play a fundamental role in maintaining these relationships, irrespective of illness concerns. Couples living with HIV need to balance prevention needs and ill-health while trying to maintain healthy relationships. Health-care providers serving the reproductive needs of HIV-affected couples need to consider the social and relational factors shaping reproductive decisions associated with periconception risk behaviors. This paper based on qualitative research at three hospital sites in eThekwini District, South Africa, investigates the childbearing intentions and needs of people living with HIV (PLHIV), and the attitudes and experiences of health-care providers serving the reproductive needs of PLHIV, and client and provider views and knowledge of safer conception. This research revealed that personal, social, and relationship dynamics shape the reproductive decisions of PLHIV, and “unplanned” pregnancies are not always unintended. Additionally, conception desires are not driven by the number of living children; rather clients are motivated by whether or not they have had any children with their current partner/spouse. Providers should consider the relationship status of clients in discussions about childbearing desires and intentions. Although many providers recognize the complex social realities shaping their clients' reproductive decisions, they have outdated information on serving their reproductive needs. Appropriate training to enable providers to better understand the relationship and social realities surrounding their clients' childbearing intentions is required and should be used as a platform for couples to work together with providers toward safer conception. The adoption of a more participatory approach should be employed to equalize client–provider power dynamics and to ensure clients are more involved in decision-making about reproduction and conception. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
38. Perspectives on ART adherence among Zambian adults living with HIV: insights raised using HIV-related disability frameworks.
- Author
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Hanass-Hancock, Jill, Bond, Virginia, Solomon, Patricia, Cameron, Cathy, Maimbolwa, Margaret, Menon, Anitha, and Nixon, Stephanie
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CONCEPTUAL structures ,CONTENT analysis ,DRUGS ,HIV infections ,PSYCHOLOGY of HIV-positive persons ,INTERVIEWING ,PATIENT compliance ,PEOPLE with disabilities ,UNCERTAINTY ,SOCIAL support ,THEMATIC analysis ,HIGHLY active antiretroviral therapy ,DATA analysis software ,PATIENTS' attitudes - Abstract
Anti-retroviral treatment (ART) has improved the survival of people living with HIV in Africa. Living with chronic HIV comes with new health and functional challenges and the need to manage ART adherence. The Sepo Study applied disability frameworks to better understand living with chronic HIV while using ART. The study followed 35 people (18 women, 17 men) living with HIV and on ART 6 months or longer in private and public health facilities in Lusaka, Zambia over 18-months (2012–2015). A total of 99 in-depth interviews were conducted. Conventional content analysis and NVIVOv10 were applied to analyse the data. Participants were adhering to ART at the times of the interviews and therefore less likely to report major challenges with adherence. Three main themes emerged from the data related to adherence. Firstly, ART was regarded as "giving life", which underscored adherence. Secondly, all participants described strategies for to managehealth and functional limitations, which they attributed as side-effects or chronicity. Thirdly, participants described experiences of uncertainty, including the efficacy of new regimens, potential loss of functioning, risk of new health problems, and death. Long-term ART managment in Africa needs to integrate rehabilitation approaches to address functional limitations, uncertainties, strengthen and support for adherence. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
39. Acculturation and perceived stress in HIV+ immigrants: depression symptomatology in Asian and Pacific Islanders.
- Author
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Chen, Wei-Ti, Guthrie, Barbara, Shiu, Cheng-Shi, Yang, Joyce P., Weng, Zhongqi, Wang, Lixuan, Kamitani, Emiko, Fukuda, Yumiko, and Luu, Binh Vinh
- Subjects
ACCULTURATION ,ASIANS ,STATISTICAL correlation ,MENTAL depression ,HIV infections ,IMMIGRANTS ,INTERVIEWING ,RESEARCH funding ,PSYCHOLOGICAL stress - Abstract
Asians and Pacific Islanders (API) are among the fastest growing minority groups within the USA, and this growth has been accompanied by an increase in HIV incidence. Between 2000 and 2010, the API HIV infection rate increased from 4.5% to 8.7%; however, there is a paucity of HIV-related research for this group, and even less is known about the prevalence and correlates of antiretroviral therapy adherence behavior, quality of life, impact of stress, and efficacious self-management among HIV+ API Americans. This paper examines how acculturation and perceived stress affect depression symptomatology and treatment seeking in the HIV+ API population. A series of cross-sectional audio computer-assisted self-interviews were conducted with a convenience sample of 50 HIV+ API (29 in San Francisco and 21 in New York City). The relationship between acculturation and perceived stress was analyzed, and the results indicate that for those HIV+ API who reported low or moderate acculturation (as compared to those who reported high acculturation), stress was significantly mediated by depression symptomology. Interventions to address acculturation and reduce perceived stress among API generally and Asians specifically are therefore needed. [ABSTRACT FROM PUBLISHER]
- Published
- 2014
- Full Text
- View/download PDF
40. Risk factors for suicide attempts in a clinic-based sample of people living with HIV in Puerto Rico.
- Author
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Jovet-Toledo, Gerardo G., Clatts, Michael C., Rodriguez-Diaz, Carlos E., Goldsamt, Lloyd, and Vargas-Molina, Ricardo L.
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SUICIDE risk factors ,CHI-squared test ,CONFIDENCE intervals ,HIV infections ,INTERVIEWING ,RESEARCH methodology ,STATISTICAL sampling ,SUICIDAL behavior ,T-test (Statistics) ,LOGISTIC regression analysis ,ANTIRETROVIRAL agents ,DISEASE prevalence ,DESCRIPTIVE statistics ,ODDS ratio - Abstract
Puerto Rico (PR) has a large and rapidly growing population of people living with HIV. However, relatively little behavioral or clinical research has been done in this population. As treatment for HIV increasingly moves into a chronic condition model, it is becoming increasingly important to understand the needs of this population so critical social and behavioral interventions can be developed, thus enabling the individual and community-level benefits of antiretroviral (ARV) treatment to be fully realized. To date, however, there has been very little research on the mental health needs of people living with HIV in PR, a fact that constrains intervention development and implementation. This paper describes data from a public sexually transmitted infection (STI) and HIV clinic study in the San Juan metropolitan area between April 2010 and December 2012 (n= 1185), roughly a third (36%) of whom are living with HIV. Descriptive statistics, chi-square,t-tests, and binary logistic regressions were used to assess associations between HIV status and a history of suicide attempt. The overall prevalence of a history of suicide attempt was 20.4%. No statistically significant relationship was found between a history of suicide attempt and being HIV positive, although people with HIV infection did evidence a higher prevalence of attempts than HIV-negative subjects (23.4% vs. 19.0%). Factors associated with having a history of suicide attempt within the overall sample included gender, current employment status, a lifetime history of drug use, and a lifetime history of sex work. Similar patterns were seen in the HIV-positive subsample. There was a nonsignificant trend toward increased risk for a post-diagnosis suicide attempt. These findings suggest that additional research on mental health risks among populations at risk for HIV in PR is needed. [ABSTRACT FROM PUBLISHER]
- Published
- 2014
- Full Text
- View/download PDF
41. Motives for meaningful involvement in rural AIDS service organizations.
- Author
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Paterson, Barbara L., Ross, Steven, and Gaudet, Ted
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AIDS ,INTERVIEWING ,LONGITUDINAL method ,RESEARCH methodology ,MOTIVATION (Psychology) ,RESEARCH ,RURAL conditions ,TELEPHONES ,PATIENT participation ,QUALITATIVE research ,JUDGMENT sampling ,THEMATIC analysis ,DESCRIPTIVE statistics ,SOCIETIES - Abstract
The research described herein was a three-year exploratory descriptive study to examine how meaningful involvement (MIPA) is conceptualized and experienced in rural regions of the Maritime provinces of Canada. The focus of this paper is one aspect of the research; i.e., what motivates the clients of AIDS Service Organizations (ASOs) in rural Canada to become meaningfully involved? We interviewed 34 people who were past or current clients of ASOs in Maritime Canada and who self-reported as engaging in at-risk behaviors for HIV or living with HIV. The interviews explored participants' perspectives about their motives for becoming meaningfully involved in an ASO. Three themes regarding motives for MIPA were revealed: (1) meeting personal needs; (2) making a difference to others; and (3) recognizing a fit between their skills, goals, needs and the opportunities and experiences within the ASO and with other ASO clients. Participants generally cited more than one motive. This research study contributed to the field of knowledge about the motives for MIPA in which it reveals (1) that MIPA was conceptualized by the rural ASO clients as whatever participation provided them personal meaning (i.e., by fulfilling a personal need, by making a difference, and by recognizing a fit) and (2) the important role that ASO staff and volunteers have in fostering and sustaining MIPA. The study also highlighted a trajectory of involvements that support the need for ASOs to entertain a wide range of roles that are assumed as MIPA. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
42. The sense of familial responsibility of PLHIVs in the rural areas of western China.
- Author
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Zhang, Shaoru, Wei, Chao, Lu, Dandan, Li, Xiaohong, Shao, Li, Li, Yingqun, and Ruan, Wei
- Subjects
PSYCHOLOGICAL adaptation ,CAREGIVERS ,FAMILIES ,HIV-positive persons ,INTERVIEWING ,RESEARCH methodology ,POVERTY ,RESEARCH funding ,RESPONSIBILITY ,RURAL conditions ,THEMATIC analysis ,DESCRIPTIVE statistics - Abstract
In this paper, we explore the strong familial responsibility sense of people living with HIV (PLHIV) in rural western China, based on the data obtained from in-depth interviews. The data show that PLHIV were coping positively with a poor family economic status, caring for their family more than themselves, and taking concrete steps to fulfill their familial obligations. However, unique economic, cultural, and social factors exert negative impact on their ability to achieve their aims. The findings from our study illustrate that proper governmental and social interventions should be launched based on the actual situation and needs of local PLHIV and their families. [ABSTRACT FROM PUBLISHER]
- Published
- 2013
- Full Text
- View/download PDF
43. Trends in risk behaviors among female sex workers in south India: Priorities for sustaining the reversal of HIV epidemic.
- Author
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Charles, Bimal, Jeyaseelan, Lakshmanan, Edwin Sam, Asirvatham, Kumar Pandian, Arvind, Thenmozhi, Mani, and Jeyaseelan, Visalakshi
- Subjects
HIV infections & psychology ,SEX work ,HIV infection epidemiology ,ANALYSIS of variance ,CHI-squared test ,CONDOMS ,CONFIDENCE intervals ,EPIDEMIOLOGY ,INTERVIEWING ,RESEARCH methodology ,QUESTIONNAIRES ,RESEARCH funding ,RISK-taking behavior ,DATA analysis ,UNSAFE sex ,CROSS-sectional method ,DATA analysis software ,DESCRIPTIVE statistics ,PSYCHOLOGY - Abstract
HIV epidemic in India is predominantly concentrated in subgroups of population, such as female sex workers (FSWs) and their clients, whose behavior exposes them to a higher risk of acquiring HIV infection. This paper aims to present the changing patterns of socio-demographic characteristics, behaviors, reported sexually transmitted infections (STIs), and associated factors among FSWs over 11 years. Multistage cluster sampling with probability-proportional-to-size (PPS) method was used in the surveys. A sample of 400 FSWs was studied every year. The mean age and literacy at the baseline level increased significantly over the years. House-based sex increased by 40% from 43.3% in 1997 to 83% in 2008 (p<0.001). Condom use at last sex with one-time clients; consistent condom use (CCU) with one-time and regular clients indicated increasing trends. FSWs reported low levels of condom use at last sex (14.5% in 1997 to 5% in 2008;p<0.001) and CCU (12.6% in 2004 to 3.6% in 2008;p<0.01) with regular partners. FSWs who used condom with one-time clients at last sex reported significantly less STI symptoms. A two-third reduction in genital ulcers was found from 13.1% in 1997 to 4.5% in 2008 (p<0.001). Nonliterate and hotel-based sex workers were 1.6 (1.0–2.5; 95% CI) and 2.2(1.3–3.7; 95% CI) times more likely to have reported STI symptoms. The percentage of FSWs who underwent HIV testing increased (p<0.001); similarly, a 20% increase was found in FSWs who availed counseling services from 65.2% in 1997 to 85.4% in 2008 (p<0.001). Poor, illiterate, and marginalized were more likely to get involved in risky behaviors which suggest the need for structural interventions as part of HIV prevention strategy. [ABSTRACT FROM AUTHOR]
- Published
- 2013
- Full Text
- View/download PDF
44. Condom use among female sex workers in Uganda.
- Author
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Bukenya, Justine, Vandepitte, Judith, Kwikiriza, Maureen, Weiss, Helen A., Hayes, Richard, and Grosskurth, Heiner
- Subjects
HIV prevention ,ATTITUDE (Psychology) ,CONDOMS ,CONFIDENCE intervals ,EPIDEMIOLOGY ,INTERVIEWING ,LONGITUDINAL method ,MULTIVARIATE analysis ,SEX work ,RISK assessment ,RISK perception ,RISK-taking behavior ,DATA analysis ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Consistent condom use can prevent HIV infection, yet levels of condom use are low in many settings. This paper examines determinants of inconsistent condom use among 905 women enrolled in a high-risk cohort in Kampala, Uganda, who reported sexual intercourse with paying clients in the last month. Among these, 40% participants reported using condoms inconsistently with paying clients in the past month. The most common reason for inconsistent condom use was client preference. Factors independently associated with inconsistent condom use included: sex work not being the sole source of income [adjusted odds ratio (aOR) = 1.54; 95% confidence interval (CI): 1.13-2.09], sexual debut before 14 years (aOR = 1.46; 95% CI: 1.09-1.96), daily consumption of alcohol (aOR = 1.90; 95% CI: 1.26-2.88) and being currently pregnant (aOR = 2.11; 95% CI: 1.25-3.57). Being currently married (aOR =0.36; 95% CI: 0.18-0.73) and a higher number of sexual partners per month (p-trend = 0.001) were associated with a lower risk of inconsistent condom use. Targeted programmes should be developed to promote consistent condom use in high-risk women, alongside interventions to reduce alcohol use. [ABSTRACT FROM AUTHOR]
- Published
- 2013
- Full Text
- View/download PDF
45. Living as an adolescent with HIV in Zambia – lived experiences, sexual health and reproductive needs.
- Author
-
Hodgson, Ian, Ross, Julia, Haamujompa, Choolwe, and Gitau-Mburu, D.
- Subjects
FOCUS groups ,HEALTH ,HEALTH attitudes ,HIV infections ,SEXUAL health ,INTERVIEWING ,RESEARCH methodology ,MEDICAL needs assessment ,RESEARCH funding ,SOCIAL stigma ,INFORMATION resources ,HIGHLY active antiretroviral therapy ,DATA analysis software - Abstract
HIV services in developing countries are often ill-equipped to address the specific needs of HIV-positive adolescents. Studies suggest a lack of consistent, age-appropriate support regarding sexuality, relationships and transitioning to adulthood. The aims of this study were to explore and document the informational, psychosocial, sexual and reproductive health (SRH) needs of adolescents (aged 10–19 years) living with HIV in Zambia, and identify gaps between these needs and existing services. This paper reports a qualitative explorative study. Semi-structured interviews and focus group discussions were conducted with 111 HIV-positive adolescents and 59 key informants, including health care workers (n=38) and parents/guardians (n=21). Participants were selected via a purposive sampling method. Three sites – Lusaka, Kitwe and Kalomo – were selected to ensure a broad representation of service-delivery settings in Zambia. Data were entered into NVIVO (QSR International) software, and analysed inductively to extract key themes, gather results and draw conclusions. Findings confirm that social networks have significant impact on treatment adherence and assist adolescents in coming to terms with an HIV diagnosis. The trauma of diagnosis, however, is exacerbated if poorly managed. Nevertheless, many adolescents are determined not to let HIV change their lives. They want to know SRH and HIV information, but service providers do not often adequately meet these informational needs. Where available, tailored and participatory events around HIV and SRH are greatly appreciated. Services that are welcoming, empowering and provide tailored information are highly valued. Adolescents living with HIV require effective, targeted and sustainable HIV services to navigate safely through adolescence. [ABSTRACT FROM PUBLISHER]
- Published
- 2012
- Full Text
- View/download PDF
46. Messages HIV clinicians use in prevention with positives interventions.
- Author
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Rose, CarolDawson, Koester, KimberlyA., Kang Dufour, Mi-Suk, Myers, JanetJ., Shade, StarleyB., McCready, Karen, and Morin, Stephen
- Subjects
HIV prevention ,COUNSELING methodology ,INTERVIEWING ,LONGITUDINAL method ,RESEARCH methodology ,PROBABILITY theory ,RESEARCH funding ,QUALITATIVE research ,SAFE sex ,HARM reduction ,DESCRIPTIVE statistics - Abstract
Prevention with Positives (PwP) is a component of the US HIV prevention strategy that targets HIV-infected persons who are aware of their seropositive status. This paper examines the use of prevention messages by clinical providers during the PwP intervention period of the US Health Resources and Services Administration's Special Projects of National Significance program. Quantitative approaches were used to learn which prevention topics were most discussed and qualitative interviews were also utilized to better understand the clinician perspective in providing prevention counseling. At 12-month follow-up, there was a significant increase in the percent of patients receiving all PwP counseling messages (p<0.01). Providers reported discussing safer sex with 91% of patients when sexually transmitted infection (STI) screening was conducted during a visit, an increase from baseline (83.5%). The percent of providers reporting they regularly explained the risk of superinfection to their clients also increased from 75% at baseline to 90% at 12-month follow up (p<0.001). Qualitative data suggest that providers prioritize individual care over public health approaches to PwP in counseling. Discussing superinfection offered providers a way to discuss HIV prevention from a non-judgmental clinical perspective while focusing on a patient-centered philosophy of care. However, the threat of superinfection may not be the best counseling option. Examples such as STI screening, giving messages to reduce the number of sexual partners and adherence to medication, are more evidence-based approaches to changing HIV transmission risk behavior and may be more important in PwP. Findings suggest that in order for HIV care providers to incorporate HIV prevention discussions into their practice, acceptable approaches to speaking about risk behavior and prevention of HIV transmission must be developed. [ABSTRACT FROM AUTHOR]
- Published
- 2012
- Full Text
- View/download PDF
47. The association of HIV/AIDS treatment side effects with health status, work productivity, and resource use.
- Author
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DiBonaventura, MarcodaCosta, Gupta, Shaloo, Cho, Michelle, and Mrus, Joseph
- Subjects
ANTIVIRAL agents ,BLOOD cell count ,HEALTH status indicators ,HIV infections ,INTERVIEWING ,MEDICAL care use ,PROBABILITY theory ,QUESTIONNAIRES ,SELF-evaluation ,T cells ,JOB performance ,CROSS-sectional method ,DESCRIPTIVE statistics - Abstract
Due to stable incidence and improved survival rates, there are an increasing number of patients living with HIV/AIDS in the USA. Although highly effective, current antiretroviral therapies are associated with a variety of side effects. The role side effects play on health outcomes has not been fully examined. The current study assessed the association of medication side effects with (1) self-assessed health status; (2) work productivity and activity impairment; and (3) healthcare resource utilization. Data were from a cross-sectional patient-reported survey fielded in the USA using a dual methodology of Internet and paper questionnaires. A total of 953 patients living with HIV/AIDS who were currently taking a medication for their condition were included in the analyses. The most frequent side effects reported by patients were fatigue (70.72%), diarrhea (62.96%), insomnia (58.97%), dizziness (52.78%), neuropathy (52.68%), joint pain (52.36%), nausea (51.63%), and abdominal pain (50.37%). The presence of each side effect was associated with reduced self-assessed health status, increased productivity loss, increased activity impairment, and increased healthcare resource use. Controlling for CD4 cell counts in regression modeling did little to diminish the impact of side effects. Although not all side effects were associated with all outcomes, every side effect was associated with worse health status, some measure of increased work productivity loss, and/or some measure of increased healthcare resource use. Patients are living longer with HIV and, therefore, spending a greater length of time on treatment. The results of the current study suggest that many of these patients are experiencing a wide array of side effects from these therapies. These side effects have demonstrated a profound association with self-assessed health, work productivity, and healthcare resource use. Improved management of these side effects or development of treatments with a better side effect profile may have a substantial humanistic and economic benefit. [ABSTRACT FROM AUTHOR]
- Published
- 2012
- Full Text
- View/download PDF
48. HIV infection as a predictor of methadone maintenance outcomes in Chinese injection drug users.
- Author
-
Zhao, Lin, Holzemer, WilliamL., Johnson, Mallory, Tulsky, JacquelineP., and Rose, CarolD.
- Subjects
INTRAVENOUS drug abuse ,ANALYSIS of variance ,CHI-squared test ,DRUGS ,HIV ,INTERVIEWING ,METHADONE hydrochloride ,HEALTH outcome assessment ,PATIENT compliance ,PROBABILITY theory ,QUALITY of life ,QUESTIONNAIRES ,RESEARCH funding ,RISK-taking behavior ,SCALES (Weighing instruments) ,SEROLOGY ,U-statistics ,TREATMENT effectiveness ,CROSS-sectional method ,HIV seroconversion ,DESCRIPTIVE statistics - Abstract
This paper's design is descriptive and correlational based on retrospective self-report survey data collected in Kunming city, China. The study investigated the difference between a group of Chinese HIV positive (N=36) and negative (N=131) opioid dependent adults maintained on methadone treatment. Comparisons were based on their quality of life (QOL), methadone treatment adherence, adverse symptom occurrence related to methadone treatment, and HIV-related behavior changes. No significant differences were found between the two groups in age, methadone maintenance dose, methadone adherence, sex desire, and drug craving level. Participants who were HIV positive reported significantly lower scores on physical health and total health-related qualify of life. They also reported greater engagement in injection related risk behavior before methadone treatment than those who tested HIV negative. For both groups, sexual and injection risk behavior significantly decreased following initiation of methadone treatment. A regression model revealed that those infected with HIV, associated significantly with higher likelihood of reporting constipation and lack of appetite, and higher frequency of reporting abdominal pain and nausea than HIV negative patients. The primary implication of these findings is that HIV positive persons in methadone treatment may require more focused services to meet their special HIV care and substance treatment needs. [ABSTRACT FROM AUTHOR]
- Published
- 2012
- Full Text
- View/download PDF
49. HIV-related stigma acting as predictors of unemployment of people living with HIV/AIDS.
- Author
-
Liu, Ying, Canada, Kelli, Shi, Kan, and Corrigan, Patrick
- Subjects
CHI-squared test ,CROSS infection ,DECISION making ,FEAR ,INTERVIEWING ,RESEARCH funding ,SOCIAL stigma ,UNEMPLOYMENT ,SAMPLE size (Statistics) ,JOB performance ,MULTIPLE regression analysis ,HIV seroconversion ,ATTITUDES toward AIDS (Disease) ,DESCRIPTIVE statistics - Abstract
Obtaining employment is an important part of recovery for many people living with HIV/AIDS (PLHA). However, this population often faces barriers in their attempt to reenter the workplace. One potential barrier lies in the decision-making of employers. Little is known about what influences employers’ decision to hire PLHA. The current paper addresses this gap with findings from 156 quantitative interviews with employers across Chicago, Beijing, and Hong Kong regarding the hiring of people with HIV/AIDS. Hierarchical regression analysis showed that both fear of contagion and perceived incompetence are important factors in employers’ decision to interview even after controlling for variables related to the employers’ business size, their education level, and the provision of health benefits. These two variables accounted for 42% of the variance in employers’ decision to interview. Implications of these findings are considered for better understanding of HIV-related employment stigma and further intervention for employing PLHA. [ABSTRACT FROM PUBLISHER]
- Published
- 2012
- Full Text
- View/download PDF
50. Norms and practices within marriage which shape gender roles, HIV/AIDS risk and risk reduction strategies in Cabo Delgado, Mozambique.
- Author
-
Bandali, S.
- Subjects
HIV prevention ,CONDOMS ,INTERVIEWING ,MARRIAGE ,POWER (Social sciences) ,RESEARCH ,RESEARCH funding ,HUMAN sexuality ,GENDER role ,SOUND recordings ,SPOUSES ,QUALITATIVE research ,SAMPLE size (Statistics) ,SOCIOECONOMIC factors ,HARM reduction ,THEMATIC analysis ,DISEASE prevalence - Abstract
Despite increasing HIV/AIDS rates among married individuals, minimal research has been conducted on how men and women respond to risk in a marriage. This paper examines strategies used by married individuals to combat HIV/AIDS risk against prevailing gender norms. Qualitative data were gathered in four villages of Cabo Delgado province, Mozambique. Group discussions were held with 160 men and women to explore gender norms, HIV/AIDS knowledge and risk determinants. From the group discussions, 29 individuals were selected for further in-depth interviews to explore relationships between gender norms and risk reduction efforts within marriages. Findings illustrate how infidelity and social limitations placed on condom use not only increase HIV/AIDS risk but also entrench gender disparities. Although power differences between genders can make it difficult to negotiate safe sex, men and women are taking measures to reduce perceived HIV/AIDS risk in their marriage. Married men are reconstructing norms and taking responsibility to protect their family from HIV/AIDS by remaining faithful. For women, responses to HIV/AIDS risk in a marriage are more closely related to their ability to generate an income. Financially dependent women tend to leave a risky marriage altogether in contrast to financially autonomous women who will negotiate condom use with their husband. Factors such as experience with a risky partner, the desire to maintain a good social standing, fear of HIV/AIDS acquisition and parental guidance and support influence men and women to reduce perceived HIV/AIDS risk, despite constraining gender norms and power imbalances in a marriage. Nuanced understandings of the ways in which men and women are already taking measures to decrease noted HIV/AIDS risk, despite gender norms that make this a challenge, should be incorporated into localised responses. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
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