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Children living with HIV-related disabilities in a resource-poor community in South Africa: caregiver perceptions of caring and rehabilitation.
- Source :
- AIDS Care; Apr2020, Vol. 32 Issue 4, p471-479, 9p, 2 Charts
- Publication Year :
- 2020
-
Abstract
- The care offered to children living with HIV (CLHIV) experiencing HIV-related disability is often challenged by caregiver illness, poverty and poor support structures in and around communities. Since caregiver needs directly influences the care offered to CLHIV this paper aimed to explore the experiences of the caregivers of CLHIV in order to inform an appropriate rehabilitation model in South Africa. A qualitative enquiry using in-depth interviews with 14 caregivers (one male and thirteen females) of CLHIV experiencing disability in a peri-urban setting was conducted. Data were analysed using thematic analysis. Four themes emerged from the interviews: understanding of HIV-related disability and rehabilitation, challengers to care and well-being, enablers to care; and perceived needs of caregivers. The study revealed that caregiver burden is influenced by the availability of resources and social support services. Financial constraints, poor access to rehabilitation and reduced support networks challenged the care offered to CLHIV. The perceived needs of the caregivers in this study included appeals for improved social security, housing, accessible rehabilitation and education. Changes in government policy guiding social support, employment, education and rehabilitation interventions are needed to improve the availability of resources, education, health and well-being of CLHIV and their caregiver's in South Africa. [ABSTRACT FROM AUTHOR]
- Subjects :
- DEVELOPMENTAL disabilities
EMPLOYMENT
HEALTH services accessibility
HEALTH status indicators
HIV infections
HIV-positive persons
HOUSING
INTERVIEWING
METROPOLITAN areas
NEEDS assessment
SOCIAL security
QUALITATIVE research
GOVERNMENT policy
CHILDREN with disabilities
SOCIAL support
WELL-being
THEMATIC analysis
BURDEN of care
CAREGIVER attitudes
CHILDREN
Subjects
Details
- Language :
- English
- ISSN :
- 09540121
- Volume :
- 32
- Issue :
- 4
- Database :
- Complementary Index
- Journal :
- AIDS Care
- Publication Type :
- Academic Journal
- Accession number :
- 141957030
- Full Text :
- https://doi.org/10.1080/09540121.2019.1654076