848 results
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2. Engagement and partnership with peer mentors in the development of the "Positive and Healthy Living Program": a process paper.
- Author
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Wambua, Grace Nduku, Musindo, Otsetswe, Machuka, Judy, and Kumar, Manasi
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EXPERIENCE , *HIV infections , *PSYCHOLOGY of HIV-positive persons , *INTERPROFESSIONAL relations , *MEDICAL referrals , *MENTORING , *PSYCHOTHERAPY , *SELF-efficacy , *EVIDENCE-based medicine , *AFFINITY groups , *PEERS , *HUMAN services programs , *STAKEHOLDER analysis - Abstract
Partnership and engagement are mediators of change in the efficient uptake of evidence-based patient-centered health interventions. We reflect on our process of engagement and preparation of peer mentors in the development of peer-led psychotherapy intervention for HIV infected adolescents in active care at the Comprehensive Care Centre (CCC) at Kenyatta National Hospital. The program was implemented in two phases, using a Consultation, Involve, Collaboration and Empowerment approach as stepping stones to guide our partnership and engagement process with stakeholders and ten peer mentors embedded in the CCC. Our partnership process promoted equity, power-and-resource sharing including making the peer mentors in-charge of the process and being led by them in manual development. This process of partnership and engagement demonstrated that engaging key stakeholders in projects lead to successful development, implementation, dissemination and sustainment of evidence-based interventions. Feedback and insights bridged the academic and clinical worlds of our research by helping us understand clinical, family, and real-life experiences of persons living with HIV that are often not visible in a research process. Our findings can be used to understand and design mentorship programs targeting lay health workers and peer mentors at community health care levels. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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3. "We did more than survive": lessons learned from studies of risk and resilience of young people growing up with HIV and mental health needs.
- Author
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Poku, Ohemaa B., Ahmed, Afifa, Liotta, Lucy, Kluisza, Luke, Robbins, Reuben N., Abrams, Elaine J., and Mellins, Claude A.
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MENTAL illness risk factors , *PSYCHOLOGICAL resilience , *HEALTH services accessibility , *LIFE change events , *MENTAL health , *MENTAL health services , *RESEARCH funding , *SOCIOECONOMIC factors , *HIV infections , *DESCRIPTIVE statistics , *PSYCHOLOGICAL adaptation , *PSYCHOLOGY of HIV-positive persons , *MEDICAL needs assessment , *RESOURCE-limited settings , *SOCIAL support , *COMPARATIVE studies , *SOCIODEMOGRAPHIC factors , *POVERTY , *PATIENTS' attitudes , *SOCIAL stigma , *ADOLESCENCE , *ADULTS - Abstract
Despite advances in HIV-treatment, adolescents and young adults (AYA) with HIV (AYAHIV) face myriad challenges. They are less likely than children and older adults to be virally suppressed and are at higher risk for mental health conditions compared to their peers who do not have HIV. AYA are also developing in the context of numerous biomedical, neurocognitive, and psychosocial developmental changes. Normative challenges during this time can be exacerbated by HIV and can result in significant physical and mental health problems. Yet, many AYAHIV have shown resilience with positive assets and resources and few health or mental health problems. Historically research has had a risk-focused approach to understanding AYAHIV needs. This paper discusses the rationale for a shift from a risk-focused only approach to one that examines AYAHIV needs from both a risk and resilience perspective. This paper presents: (1) epidemiological data on AYAHIV; (2) conceptual models for understanding both risk (e.g., poverty, stress, trauma, limited resources) and resilience/protective factors (e.g., family and peer support, future orientation, problem-solving skills); (3) global data examining risk and protective factors for physical and mental health challenges; and (4) promising interventions that incorporate elements of resilience to improve overall outcomes among AYAHIV. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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4. HIV status disclosure in the era of treat-all: the complexities of societal expectations and disclosure in marital relationships in Shinyanga, Tanzania.
- Author
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Erio, Tusajigwe, de Klerk, Josien, and Moyer, Eileen
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HIV infection transmission , *PREVENTION of infectious disease transmission , *HIV prevention , *MARRIAGE , *SOCIAL psychology , *ANTIRETROVIRAL agents , *RESEARCH funding , *SEX distribution , *ETHNOLOGY research , *INTERVIEWING , *DESCRIPTIVE statistics , *HIV infections , *PSYCHOLOGY of women , *PSYCHOLOGY of HIV-positive persons , *SOCIAL values , *SELF-disclosure - Abstract
Robust advancements in clinical treatment of people living with HIV (PLHIV) have resulted in the current "treatment as prevention" strategy: the inability to transmit the virus when it is undetectable. Nevertheless, disclosure within marital relationships remains important to adhere optimally to treatment and further limit transmission in the era of treat-all. Disclosure, however, can have serious social repercussions, particularly for women. This paper examines gendered disclosure decisions and their social consequences in marital relationships in Tanzania. Drawing from a 9-month ethnographic study in Shinyanga Region, we explore how Sukuma societal values shape disclosure decisions. In-depth interviews with 103 PLHIV and 19 FGDs inform our analysis. We found that societal values regarding gender and marriage significantly influence disclosure decisions in marital relationships. The HIV treat-all approach, with its focus on early treatment initiation preserved health and inability to transmit allowed men and women to carefully weigh the costs and benefits of disclosure to their marital aspirations. The benefits of antiretroviral treatment for social relations are often overlooked in medical interventions. We conclude that to reduce difficult disclosure decisions for PLHIV, emphasising community awareness of HIV treatment as prevention to mitigate the negative impacts of disclosure is needed. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Perspectives of healthcare professionals and people living with HIV in dialogue: on information sharing to improve communication at the consultation.
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Claisse, Caroline, Kasadha, Bakita, and Durrant, Abigail C.
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SELF-evaluation , *HOLISTIC medicine , *DATA security , *RESEARCH funding , *QUALITATIVE research , *HEALTH , *QUESTIONNAIRES , *PRIVACY , *INFORMATION resources , *HIV infections , *JUDGMENT sampling , *CONFIDENCE , *CONTINUUM of care , *PSYCHOLOGY of HIV-positive persons , *THEMATIC analysis , *ATTITUDES of medical personnel , *PATIENT-professional relations , *COMMUNICATION , *TRUST , *EMBARRASSMENT , *DELPHI method , *PATIENTS' attitudes , *MEDICAL referrals , *SELF-perception , *SOCIAL stigma , *MEDICAL ethics - Abstract
We report on a qualitative Group Survey study involving four healthcare professionals (HCPs) and eight people living with HIV who were recipients of care in the United Kingdom (UK). The survey aimed to bring participants' perspectives into dialogue and establish consensus about how communication between HCPs delivering HIV care and their patients could be improved in the context of the routine care consultation. Responses from both parties were anonymously collated, thematically analysed, and shared back with participants in two subsequent survey rounds to support consensus-building on matters of concern and identify thematic insights. In this paper, we report three themes for informing future designs of tools and services to support communication between patients and HCPs: Patient-clinician relationship for trusted sharing; Self-reporting psychosocial information to support Whole-person care; and Perceived barriers for online trusted sharing with HCPs. Our findings highlight key areas of concern and further investigation is needed to understand how self-reported information may be meaningfully captured, interpreted and processed by HCPs in ways that are trusted by patients who voice privacy and security concerns. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Networking community health workers for service integration: role of social media.
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Li, Li, Lin, Chunqing, Pham, Loc Quang, Nguyen, Diep Bich, and Le, Tuan Anh
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HIV infections ,PATIENT aftercare ,CONFIDENCE ,SOCIAL media ,JOB involvement ,BUSINESS networks ,HEALTH ,INFORMATION resources ,MEDICAL referrals ,INTERPROFESSIONAL relations ,JOB satisfaction ,DESCRIPTIVE statistics ,COMMUNICATION ,RESEARCH funding ,INTEGRATED health care delivery ,PATIENT-professional relations ,GROUP process - Abstract
Community health workers (CHW) can play an active role in providing integrated HIV and harm reduction services. We used social media to create a virtual network among Vietnamese CHW. This paper reports CHW's social media engagement and the relationships with other work-related indicators. Sixty CHW participated in an intervention for integrated HIV/drug use service delivery. Following two in-person sessions, Facebook groups were established for CHW to share information, seek consultation, and refer patients. CHW's levels of online engagements were tracked for six months and linked to their service provision confidence, interaction with patients and other providers, and job satisfaction. The CHW made 181 posts, which received 557 comments and 1,607 reactions during the six months. Among the 60 CHW, 22 (36.6%) had three or more posts, 19 (31.7%) had one or two posts, and 19 (31.7%) had no post. Comparing the baseline and 6-month follow-up data, we observed that those who posted three or more times showed better service provision confidence (p = 0.0081), more interaction with providers in other settings (p = 0.0071), and higher job satisfaction (p = 0.0268). Our study suggests using social media to engage CHW in virtual communications to improve service provision in communities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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7. Economic strengthening for HIV testing and linkage to care: a review of the evidence.
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Swann, Mandy
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DIAGNOSIS of HIV infections ,HIV infections ,THERAPEUTICS ,MEDICAL screening ,ENDOWMENTS ,HIV-positive persons ,MEDICAL care ,MEDICAL care costs ,PATIENTS ,SYSTEMATIC reviews ,TREATMENT effectiveness ,ECONOMICS - Abstract
Delayed HIV diagnosis and enrollment in HIV care can lead to negative health outcomes for individuals and pose major barriers to achieving the UNAIDS 90-90-90 treatment targets. Household economic strengthening (HES) initiatives are increasingly used to alleviate the direct and indirect costs of HIV testing and linkage to care for those who are diagnosed. The evidence linking HES with a range of HIV outcomes is growing, and this evidence review aimed to comprehensively synthesize the research linking 15 types of HES interventions with a range of HIV prevention and treatment outcomes. The review was conducted between November 2015 and October 2016 and consisted of an academic database search, citation tracking of relevant articles, examination of secondary references, expert consultation, and a gray literature search. Given the volume of evidence, the results are presented and discussed in three papers. This is the second paper in the series and focuses on the 20 studies on HIV testing, diagnosis, and enrollment in care. The results indicate that financial incentives are consistently and independently linked with higher testing uptake and yield among adults. Limited evidence indicates they may also be beneficial for enrollment in care. Evidence for other HES interventions is too sparse to identify clear trends. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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8. Structural determinants of health: a qualitative study on female sex workers in Benin.
- Author
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Dugas, Marylène, Bédard, Emmanuelle, Kpatchavi, Adolphe C., Guédou, Fernand A., Béhanzin, Luc, and Alary, Michel
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CONCEPTUAL structures ,HIV infections ,HUMAN rights ,INTERVIEWING ,SEX work ,WOMEN'S health ,ETHNOLOGY research ,QUALITATIVE research ,SOCIAL support ,SOCIOECONOMIC factors ,HEALTH & social status - Abstract
The objective of this paper is to expose those socio-structural contexts revealing the social injustice and human rights violations that sub-Saharan women face every day when forced into sex work by unemployment or sickness. Results of a qualitative study highlighting some key structural determinants of sex work and HIV infection among FSWs will be presented and examined through the lens of the WHO conceptual framework for action on the social determinants of health. The results showed that most FSWs had lacked the necessary financial support at some point in their lives. Also, both the socioeconomic and political context failed to provide proper support to prevent involvement in sex work and the consequent risks of HIV. The cultural and societal values placed on the health and well-being of FSWs in Benin appear to depend on the degree to which sexual violence and adultery are perceived as a collective social concern. This portrait of FSWs calls for both long-term interventions through a structural determinant approach to HIV prevention, targeting all the women who could face such a financial situation well before their entry into sex work, while maintaining short and medium-term interventions on the intermediary determinants. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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9. Epidemiology of health and vulnerability among children orphaned and made vulnerable by HIV/AIDS in sub-Saharan Africa1.
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Andrews, Gail, Skinner, Donald, and Zuma, Khangelani
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EPIDEMIOLOGY ,ORPHANS ,AIDS ,HIV infections ,JUVENILE diseases - Abstract
The HIV/AIDS epidemic in sub-Saharan Africa has already orphaned a generation of children, and it is projected that by 2010, 18 million African children under the age of 18 are likely to be orphans from this single cause (UNICEF, 2005, The state of the Worlds Children: Childhood under threat . New York: UNICEF). Results from a Kellogg funded OVC project (Skinner et al., 2004, Definition of orphaned and vulnerable children . Cape Town: HSRC) supported the construct that the loss of either or both parents would indicate a situation of likely vulnerability of children. A key problem in the literature on the impact of orphanhood on the well-being of children, families and communities, is that the focus of assertions and predictions is often on the negative impact on ‘AIDS orphans’, or households. There are hardly any studies that compare the experiences of orphans with non-orphans. This paper thus attempts to fill that gap. It uses epidemiological data to explore the epidemiology of health and vulnerability of children within the context of AIDS in sub-Saharan Africa. Because of data limitations, only the following aspects are examined: (i) orphan status; (ii) household structure (in particular, grandparent headedness and female-headedness); (iii) illness of parents; (iv) poverty; and (v) access to services, especially schooling, health, social services. While recognizing the limitations of the analysis, data presented in this paper indicates that orphans in sub-Saharan Africa are more vulnerable than non-orphans. The authors conclude with some suggestions for policy makers and programme implementers, highlighting the importance of focusing on interventions that will have maximum impact on the health and well-being of children. [ABSTRACT FROM AUTHOR]
- Published
- 2006
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10. Implementation Science Protocol: evaluating evidence-informed interventions to improve care for people with HIV seen in Ryan White HIV/AIDS program settings.
- Author
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Bourdeau, Beth, Shade, Starley, Koester, Kim, Rebchook, Greg, Dawson-Rose, Carol, Guzé, Mary, Psihopaidas, Demetrios, Cohen, Stacy M., and Myers, Janet
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HIV infections ,MATHEMATICAL models ,RESEARCH methodology ,EVIDENCE-based medicine ,TREATMENT effectiveness ,THEORY ,QUALITY assurance - Abstract
In 2017, the Health Resources and Services Administration's HIV/AIDS Bureau funded an Evaluation Center (EC) and a Coordinating Center for Technical Assistance (CCTA) to oversee the rapid implementation of 11 evidence-informed interventions at 26 HIV care and treatment providers across the U.S. This initiative aims to address persistent gaps in HIV-related health outcomes emerging from social determinants of health that negatively impact access to and retention in care. The EC adapted the Conceptual Model of Implementation Research to develop a Hybrid Type III, multi-site mixed-methods evaluation, described in this paper. The results of the evaluation will describe strategies associated with uptake, implementation outcomes, as well as HIV-related health outcomes for clients engaged in the evidence-informed interventions. This approach will allow us to understand in detail the processes that sites undergo to implement these important intervention strategies for high priority populations. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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11. Resilience, self-esteem, self-efficacy, social support, depression and ART adherence among people living with HIV in Sichuan, China.
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Wen, Jing, Yeh, Tzu-Pei, Xie, Hong, Yu, Xingli, Tang, Jian, and Chen, Yanhua
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MENTAL depression ,CLINICAL drug trials ,HIV infections ,HOSPITALS ,ADAPTABILITY (Personality) ,SOCIAL support ,SELF-perception ,CROSS-sectional method ,ANTIRETROVIRAL agents ,PATIENT compliance ,STATISTICAL sampling ,PSYCHOLOGY of HIV-positive persons ,PSYCHOLOGICAL resilience - Abstract
AIDS has had physical, psychological and social consequences on People living with HIV (PLWH) with the result that the challenges and adversity they face have significantly increased. Resilience helps individuals cope with these adversities and difficulties. For PLWH to face increased challenges and setbacks created by AIDS, they are required to have resilience. This paper presents research carried out in China aiming to examine the relationships among resilience, self-esteem, self-efficacy, social support, depression and antiretroviral therapy (ART) adherence in PLWH. A cross-sectional study using a convenience sample was conducted and 223 PLWH were recruited from 2 hospitals and 1 Center of Disease Control in Sichuan, China, from May to August 2018. The present research found that resilience was positively affected by self-esteem, self-efficacy and social support, and negatively predicted depression and positively predicted ART adherence. Resilience plays a mediating role between influential factors (self-esteem, self-efficacy and social support) and adaptive outcomes (depression and ART adherence). It suggests that resilience should be considered as a factor in intervention designed to reduce PLWH's depression and improve ART adherence. Improving self-esteem, self-efficacy and social support could enhance resilience. [ABSTRACT FROM AUTHOR]
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- 2021
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12. “There is a chain of connections”: using syndemics theory to understand HIV treatment side effects.
- Author
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Gagnon, Marilou
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DIAGNOSIS ,HIV infections ,THERAPEUTICS ,DRUGS ,DRUG side effects ,QUALITY of life ,HIGHLY active antiretroviral therapy - Abstract
Side effects are central to the experience of living longer with HIV but rarely have they been studied alone. Unlike other aspects of that experience, like quality of life, treatment adherence, chronicity, episodic disability, aging, health, and viral load suppression, side effects have not benefited from the same level of empirical and theoretical engagement from qualitative researchers. In this paper, we draw on syndemics theory and 50 qualitative interviews to better understand the experience of HIV treatment side effects. Two main categories were identified in the data: side effects as a product and side effects as a risk factor. The first category suggests that side effects are not just the product of taking antiretroviral drugs. They are also the product of particular conditions and tend to cluster with other health problems. The second category puts forward the idea that side effects can act as a syndemic risk factor by exposing PLWH to a greater risk of developing health problems and creating conditions in which psychosocial issues are more likely to emerge. The paper concludes by calling for more research on the complex nature of side effects and for the development of comprehensive approaches for the assessment and management of side effects. [ABSTRACT FROM AUTHOR]
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- 2018
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13. Integrating cardiovascular diseases, hypertension, and diabetes with HIV services: a systematic review.
- Author
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Haldane, Victoria, Legido-Quigley, Helena, Chuah, Fiona Leh Hoon, Sigfrid, Louise, Murphy, Georgina, Ong, Suan Ee, Cervero-Liceras, Francisco, Watt, Nicola, Balabanova, Dina, Hogarth, Sue, Maimaris, Will, Buse, Kent, McKee, Martin, Piot, Peter, and Perel, Pablo
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CARDIOVASCULAR diseases ,DIABETES ,HIV infections ,HYPERTENSION ,INTEGRATED health care delivery ,SYSTEMATIC reviews - Abstract
Non-communicable diseases (NCDs), including cardiovascular diseases (CVD), hypertension and diabetes together with HIV infection are among the major public health concerns worldwide. Health services for HIV and NCDs require health systems that provide for people’s chronic care needs, which present an opportunity to coordinate efforts and create synergies between programs to benefit people living with HIV and/or AIDS and NCDs. This review included studies that reported service integration for HIV and/or AIDS with coronary heart diseases, chronic CVD, cerebrovascular diseases (stroke), hypertension or diabetes. We searched multiple databases from inception until October 2015. Articles were screened independently by two reviewers and assessed for risk of bias. 11,057 records were identified with 7,616 after duplicate removal. After screening titles and abstracts, 14 papers addressing 17 distinct interventions met the inclusion criteria. We categorized integration models by diseases (HIV with diabetes, HIV with hypertension and diabetes, HIV with CVD and finally HIV with hypertension and CVD and diabetes). Models also looked at integration from micro (patient focused integration) to macro (system level integrations). Most reported integration of hypertension and diabetes with HIV and AIDS services and described multidisciplinary collaboration, shared protocols, and incorporating screening activities into community campaigns. Integration took place exclusively at the meso-level, with no micro- or macro-level integrations described. Most were descriptive studies, with one cohort study reporting evaluative outcomes. Several innovative initiatives were identified and studies showed that CVD and HIV service integration is feasible. Integration should build on existing protocols and use the community as a locus for advocacy and health services, while promoting multidisciplinary teams, including greater involvement of pharmacists. There is a need for robust and well-designed studies at all levels – particularly macro-level studies, research looking at long-term outcomes of integration, and research in a more diverse range of countries. [ABSTRACT FROM PUBLISHER]
- Published
- 2018
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14. Economic strengthening for retention in HIV care and adherence to antiretroviral therapy: a review of the evidence.
- Author
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Swann, Mandy
- Subjects
HIV prevention ,ANTIRETROVIRAL agents ,DISEASES ,DRUGS ,ENDOWMENTS ,HIV infections ,PATIENT compliance ,TRANSPORTATION ,SYSTEMATIC reviews - Abstract
To address the economic drivers of poor HIV care and treatment outcomes, household economic strengthening (HES) initiatives are increasingly being implemented with biomedical and behavioral approaches. The evidence linking HES with HIV outcomes is growing, and this evidence review aimed to comprehensively synthesize the research linking 15 types of HES interventions with a range of HIV prevention and treatment outcomes. The review was conducted between November 2015 and October 2016 and consisted of an academic database search, citation tracking of relevant articles, examination of secondary references, expert consultation, and a gray literature search. Given the volume of evidence, the results are presented and discussed in three papers, each focused on a different HIV outcome area. This is the third paper in the series and focuses on the 38 studies on retention in HIV care, ART adherence, morbidity, and HIV-related mortality. Monthly food rations and conditional cash transfers are associated with improvements in care seeking and medication pick-up. Transportation assistance, income generation and microcredit show positive trends for care and treatment, but evidence quality is moderate and based heavily on integrated interventions. Clinical outcomes of CD4 count and viral suppression were not significantly affected in most studies where they were measured. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
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15. Determinants of livelihood in the era of widespread access to ART.
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Hanass-Hancock, Jill, Misselhorn, Alison, Carpenter, Bradley, and Myezwa, Hellen
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ANTI-HIV agents ,AGE distribution ,DRUGS ,HEALTH services accessibility ,HEALTH status indicators ,HIV infections ,PSYCHOLOGY of HIV-positive persons ,MARITAL status ,PATIENT compliance ,PEOPLE with disabilities ,QUESTIONNAIRES ,SEX distribution ,STATISTICS ,SOCIOECONOMIC factors ,WELL-being ,CROSS-sectional method ,FOOD security ,DESCRIPTIVE statistics - Abstract
We have only just begun to understand the long-term impact of living with chronic HIV on health and livelihood after a decade of widespread access to treatment in southern Africa. This paper explores health and well-being, disability, and livelihood dynamics among people living with HIV (PLHIV) in a public healthcare setting in South Africa. We undertook a cross-sectional survey among a cohort of 1042 people on ART and explored associations between socio-demographic characteristics, treatment adherence, measures of disability (functional and activity limitations), livelihood resources (capitals) and outcomes, including food security, and exposure to livelihood shocks. A range of dynamic relationships relevant for decision-makers is evident. Age, gender, and marital status all had significant associations with levels of livelihood capitals and outcomes. Those who had been on ART for longer periods of time also had significantly higher aggregate livelihood capital. This was particularly driven by social and financial capital. Livelihoods are built within specific social and health contexts. Of particular importance is that the resources drawn on to build a livelihood differ significantly between men and women, and that different forms of disability also have gender-specific pathways in influencing livelihood and livelihood outcomes. Our results support the need for a gender-sensitive approach to supporting the well-being and livelihoods of PLHIV. Of equal importance is an approach that considers more comprehensively the new experiences of comorbidities and disabilities that may occur with a long life on ART. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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16. Use of antiretroviral treatment among people living with HIV in Australia between 1997 and 2012.
- Author
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Power, J., Lyons, A., Brown, G., Dowsett, G. W., and Lucke, J.
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ANTI-HIV agents ,CHI-squared test ,COMPARATIVE studies ,CONFIDENCE intervals ,DRUGS ,EMPLOYMENT ,HEALTH attitudes ,HIV infections ,HIV-positive persons ,INCOME ,PATIENT compliance ,PROBABILITY theory ,QUESTIONNAIRES ,RESEARCH funding ,SCALE analysis (Psychology) ,T-test (Statistics) ,LOGISTIC regression analysis ,MULTIPLE regression analysis ,SOCIOECONOMIC factors ,CROSS-sectional method ,DATA analysis software ,PATIENTS' attitudes ,DESCRIPTIVE statistics ,ODDS ratio - Abstract
Current international targets aim for 90% of people diagnosed with HIV to be on antiretroviral treatment (ART). This paper aims to identify sociodemographic and attitudinal factors associated with ART non-use over time in three samples of Australian people living with HIV (PLHIV). Data for this paper were derived from an Australian cross-sectional survey of PLHIV that was repeated at three different time points: 1997, 2003, and 2012. There were approximately 1000 respondents to each survey (n = 3042 in total). The survey included approximately 250 items related broadly to health and well-being, ART use, and attitudes towards ART use. Univariate and multivariate logistic regression analyses were used. While the proportion of participants using ART increased between 1997 and 2012 (78.8–87.6%,p < .001), there was a decrease between 1997 and 2003 to 70.6% (p < .001). Factors linked to ART non-use remained steady over those 15 years. In all cohorts, people less likely to be using ART were younger and had a more recent diagnosis of HIV. In 2003 and 2012, people in full-time employment were less likely to be using ART, while those whose main source of income was a pension or social security were more likely to be using ART. Multivariate models showed that, at each time point, a belief in the health benefits of delayed ART uptake was associated with non-use. These findings suggest that there may be barriers to ART uptake that have persisted over time despite changes to clinical guidelines that now encourage early uptake. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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17. Towards a “fourth generation” of approaches to HIV/AIDS management: creating contexts for effective community mobilisation.
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Campbell, Catherine and Cornish, Flora
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HIV infections ,THERAPEUTICS ,COMMUNITY health services ,CONCEPTUAL structures ,HEALTH behavior ,HEALTH education ,INFORMATION services ,SELF-efficacy ,SOCIAL capital ,SOCIAL support ,SOCIAL context - Abstract
Many biomedical and behavioural HIV/AIDS programmes aimed at prevention, care and treatment have disappointing outcomes because of a lack of effective community mobilisation. But community mobilisation is notoriously difficult to bring about. We present a conceptual framework that maps out those dimensions of social context that are likely to support or undermine community mobilisation efforts, proposing that attention should be given to three dimensions of social context: the material, symbolic and relational. This paper has four parts. We begin by outlining why community mobilisation is regarded as a core dimension of effective HIV/AIDS management: it increases the “reach” and sustainability of programmes; it is a vital component of the wider “task shifting” agenda given the scarcity of health professionals in many HIV/AIDS-vulnerable contexts. Most importantly it facilitates those social psychological processes that we argue are vital preconditions for effective prevention, care and treatment. Secondly we map out three generations of approaches to behaviour change within the HIV/AIDS field: HIV-awareness, peer education and community mobilisation. We critically evaluate each approach's underlying assumptions about the drivers of behaviour change, to frame our understandings of the pathways between mobilisation and health, drawing on the concepts of social capital, dialogue and empowerment. Thirdly we refer to two well-documented case studies of community mobilisation in India and South Africa to illustrate our claim that community mobilisation is unlikely to succeed in the absence of supportive material, symbolic and relational contexts. Fourthly we provide a brief overview of how the papers in this special issue help us flesh out our conceptualisation of the “health enabling social environment”. We conclude by arguing for the urgent need for a ‘fourth generation’ of approaches in the theory and practice of HIV/AIDS management, one which pays far greater attention to the wider contextual influences on programme success. [ABSTRACT FROM PUBLISHER]
- Published
- 2010
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18. Global expectations and local practices: HIV support groups in the Gambia.
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Cassidy, Rebecca
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HIV infections & psychology ,THERAPEUTICS ,HIV infections ,COMMUNITY health services ,GROUNDED theory ,INFORMATION services ,INTERNATIONAL relations ,INTERVIEWING ,RESEARCH methodology ,SUPPORT groups ,SOCIAL networks ,QUALITATIVE research ,SOCIAL support - Abstract
This paper looks at the ways that people living with HIV in the Gambia, as members of HIV support groups, engaged with the programmes available to them in this context. People living with HIV engage with the global in a variety of ways. Following Ong and Collier this paper analyses the way in which people in this context experience and negotiate with the “global assemblage” around international HIV work. This can be observed in everyday practice in the formation of networks and partnerships linking people and their activities into international structures. Using qualitative methods and a grounded theoretical approach, the research followed events around HIV treatment in the Gambia 2006–2007. Looking at the support societies and their members' struggles to gain some material support, findings show how support group members negotiated and expressed agency within the available structures. They make use of accepted frames of international action which bypass the state, presenting an internationally linked “biological citizenship” which brings associated opportunities to access resources. Through the intervention of the president and his “cure” programme, this case also illustrates that people's commitment to the value structures implicit in these funding streams may not be as strong as might be assumed. In these circumstances two alternate treatment programmes, linked to very different values, were on offer, both backed up by the powerful machinery of either the state or international funding. The negotiation by people living with HIV of these avenues through which to acquire benefits and so support and health, calls into question assumptions of a “buy in” to global ideas and values without further scrutiny of the ways in which such assemblages function in different contexts. [ABSTRACT FROM PUBLISHER]
- Published
- 2010
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19. Barriers and outcomes: TB patients co-infected with HIV accessing antiretroviral therapy in rural Zambia.
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Chileshe, Muatale and Bond, Virginia Anne
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FOOD security ,TUBERCULOSIS ,HIV infections ,ANTIVIRAL agents ,HEALTH facilities - Abstract
The vulnerabilities that underlie barriers faced by the rural poor whilst trying to access and adhere to 'free' antiretroviral treatment (ART) demand more attention. This paper highlights barriers that poor rural Zambians co-infected with tuberculosis (TB) and HIV and their households faced in accessing ART between September 2006 and July 2007, and accounts for patient outcomes by the end of TB treatment and (more sporadically) beyond October 2009. The analysis draws on findings from wider anthropological fieldwork on the converging impact of TB, HIV and food insecurity, focusing for the purpose of this paper on ethnographic case-studies of seven newly diagnosed TB patients co-infected with HIV and their six households (one household had two TB patients). Economic barriers included being pushed into deeper poverty by managing TB, rural location, absence of any external assistance, and mustering time and extended funds for transport and 'special food' during and beyond the end of TB. In the case of death, funeral costs were astronomical. Social barriers included translocation, broken marriages, a sub-ordinate household position, gender relations, denial, TB/HIV stigma and the difficulty of disclosure. Health facility barriers involved understaffing, many steps, lengthy procedures and inefficiencies (lost blood samples, electricity cuts). By the end of TB treatment, outcomes were mixed; two co-infected patients had died, three had started ART and two had yet to start ART. The three on ART underwent a striking transformation in the short term. By October 2009, two more had died and three were doing well. The study advocates nutritional support and other material support (especially transport funds) for co-infected TB patients until ART is accessed and livelihood regained. More prompt diagnosis of TB and reducing steps and increasing the reach of the ART programme in rural areas are also recommended. [ABSTRACT FROM AUTHOR]
- Published
- 2010
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20. Community-based antiretroviral therapy (ART) delivery for female sex workers in Tanzania: intervention model and baseline findings.
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Vu, Lung, Tun, Waimar, Apicella, Louis, Casalini, Caterina, Makyao, Neema, Tsang, Samantha, Michael, Denna, Koppenhaver, Todd, and Mlanga, Erick
- Subjects
DIAGNOSIS of HIV infections ,HIV infection transmission ,COMMUNITY health services ,CONDOMS ,HIV infections ,RESEARCH methodology ,MEDICAL care ,MEDICAL screening ,SEX work ,WOMEN'S health ,ANTIRETROVIRAL agents ,HEALTH literacy - Abstract
To increase linkage to and retention in antiretroviral therapy (ART) care, we piloted a community-based, ART service delivery intervention for female sex workers (FSWs). At baseline, we recruited and collected data from 617 FSWs (intervention: 309; comparison: 308) who were HIV positive and not on ART. This paper presents (1) the description of the intervention model, and (2) key descriptive and bivariate-level findings of the baseline FSW cohort. The data showed more than half of FSWs had a non-paying sex partner, and less than one-third used a condom at last sex with paying and non-paying clients, which suggest potentially high levels of HIV transmission. In addition, there is a gap in HIV testing and treatment because one-third learned about their HIV-positive status only at study enrollment, and among FSWs who had known their status for more than a month, half had not registered in care. This substantiates the importance of timely HIV diagnosis and treatment. A community-based ART program may serve as an important strategy in closing the HIV care and treatment gap for FSWs. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
21. Children living with HIV-related disabilities in a resource-poor community in South Africa: caregiver perceptions of caring and rehabilitation.
- Author
-
Maddocks, Stacy, Moodley, Koobeshan, Hanass-Hancock, Jill, Cobbing, Saul, and Chetty, Verusia
- Subjects
DEVELOPMENTAL disabilities ,EMPLOYMENT ,HEALTH services accessibility ,HEALTH status indicators ,HIV infections ,HIV-positive persons ,HOUSING ,INTERVIEWING ,METROPOLITAN areas ,NEEDS assessment ,SOCIAL security ,QUALITATIVE research ,GOVERNMENT policy ,CHILDREN with disabilities ,SOCIAL support ,WELL-being ,THEMATIC analysis ,BURDEN of care ,CAREGIVER attitudes ,CHILDREN - Abstract
The care offered to children living with HIV (CLHIV) experiencing HIV-related disability is often challenged by caregiver illness, poverty and poor support structures in and around communities. Since caregiver needs directly influences the care offered to CLHIV this paper aimed to explore the experiences of the caregivers of CLHIV in order to inform an appropriate rehabilitation model in South Africa. A qualitative enquiry using in-depth interviews with 14 caregivers (one male and thirteen females) of CLHIV experiencing disability in a peri-urban setting was conducted. Data were analysed using thematic analysis. Four themes emerged from the interviews: understanding of HIV-related disability and rehabilitation, challengers to care and well-being, enablers to care; and perceived needs of caregivers. The study revealed that caregiver burden is influenced by the availability of resources and social support services. Financial constraints, poor access to rehabilitation and reduced support networks challenged the care offered to CLHIV. The perceived needs of the caregivers in this study included appeals for improved social security, housing, accessible rehabilitation and education. Changes in government policy guiding social support, employment, education and rehabilitation interventions are needed to improve the availability of resources, education, health and well-being of CLHIV and their caregiver's in South Africa. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
22. A continuum-based outcome approach to measuring performance in HIV/AIDS case management.
- Author
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Gimbel, R., Ziac, V., Tackley, L., Lehrman, S., and Freedman, J.
- Subjects
AIDS ,HIV infections ,HEALTH outcome assessment ,EVALUATION of medical care ,HOSPITAL case management services ,CONTINUUM of care - Abstract
This methods paper is third in a series addressing client outcomes in HIV/AIDS case management. After introducing earlier work the authors outline their effort to consolidate numerous discrete outcome measures and to establish each outcome indicator along a continuum scale that can be self-abstracted by HIV/AIDS service providers. The paper includes in-depth discussion of challenges and benefits derived from this type of outcome measurement process. Key lessons learned from a pilot study are offered for those considering development of similar client outcomes assessment programmes. The paper concludes with several opportunities for future research for those desiring to work in this relatively uncharted domain. [ABSTRACT FROM AUTHOR]
- Published
- 2007
- Full Text
- View/download PDF
23. Methodological considerations in the measurement of institutional and structural forms of HIV discrimination.
- Author
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Chan, K. Y. and Reidpath, D. D.
- Subjects
AIDS patients ,DISCRIMINATION against people with AIDS ,CIVIL rights ,HIV infections ,METHODOLOGY ,INFORMATION services - Abstract
The systematic measurement of HIV/AIDS-related discrimination is imperative within the current rhetoric that holds discrimination as one of the two ‘biggest’ barriers to HIV/AIDS pandemic intervention. This paper provides a methodological critique of the UNAIDS (2000b) Protocol for the Identification of Discrimination against People Living with HIV (the Protocol) . Specifically, the paper focuses on the Protocol's capacity to accurately identify and measure institutional levels of HIV-related discrimination that allows data that are reliable and comparable across time and contexts. Conceptual issues including the Protocol's objective as an indicator versus a direct measure of discrimination and the role of the Protocol as a tool of research versus a tool of advocacy are explored. Design issues such as the operationalization of discrimination, appropriateness of indicator content, sampling and data collection strategies and issues of scoring are also evaluated. It is hoped that the matters outlined will provide readers with ways of critically reflecting and evaluating the findings of the research papers presented in this Special Issue, as well as pointing to ways of improving research design. [ABSTRACT FROM AUTHOR]
- Published
- 2005
- Full Text
- View/download PDF
24. An Asia Pacific six-country study on HIV-related discrimination: Introduction.
- Author
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Reidpath, D. D., Brijnath, B., and Chan, K. Y.
- Subjects
AIDS patients ,DISCRIMINATION against people with AIDS ,HUMAN rights ,HIV infections ,CIVIL rights - Abstract
This paper outlines a six-country study of institutionalised forms of HIV/AIDS-related discrimination in the Asia-Pacific region. Although recognised as a barrier to disease prevention and treatment, very limited data are available on the effects of institutionalised HIV-related stigma and discrimination. Understanding the forms of discrimination within the institutions where they occur is the first step to identifying effective ways of promoting compassionate, non-discriminatory treatment of PLWHA. Thus, the goal of this research project was to document institutional discrimination against PLWHA, as guided by the UNAIDS Protocol for the Identification of Discrimination Against People Living with HIV (2000), in six Asian countries: India, Thailand, Philippines, China, Vietnam and Indonesia. As a precursor to the six individual studies, this paper provides a brief overview of the literature on HIV discrimination, and then describes the UNAIDS Protocol and the shared methodological considerations relevant to all of the study sites. Commonalities in sampling, procedures and analysis are also discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2005
- Full Text
- View/download PDF
25. Caregiver supportive policies to improve child outcomes in the wake of the HIV/AIDS epidemic: an analysis of the gap between what is needed and what is available in 25 high prevalence countries.
- Author
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Kidman, Rachel and Heymann, Jody
- Subjects
AIDS treatment ,THERAPEUTICS ,HIV infections ,CONCEPTUAL structures ,EDUCATION ,EMPLOYEE assistance programs ,INCOME ,SERVICES for caregivers ,EVALUATION of medical care ,MEDICAL needs assessment ,PEDIATRICS ,PUBLIC welfare ,QUALITY assurance ,SOCIAL services ,STUDENT assistance programs ,GOVERNMENT policy ,SOCIAL support - Abstract
In the wake of the HIV/AIDS epidemic, caregivers are struggling to support HIV-affected children. For reasons of equity and efficiency, their needs can be best met through strong social protections and policies. This paper presents a conceptual framework to help address the needs of HIV-affected caregivers and to prioritize policies. We describe the needs that are common across diverse caregiving populations (e.g., economic security); the needs which are intensified (e.g., leave to care for sick children) or unique to providing care to HIV-affected children (e.g., ARV treatment). The paper then explores the types of social policies that would facilitate families meeting these needs. We outline a basic package of policies that would support HIV-affected families, and would meet goals agreed to by national governments. We examine the availability of these policies in 25 highly affected countries in sub-Saharan Africa. The majority of countries guarantee short-term income protection during illness, free primary school, and educational inclusion of children with special needs. However, there are significant gaps in areas critical to family economic security and healthy child development. Fewer than half of the countries we analyzed guarantee a minimum wage that will enable families to escape poverty; only six have eliminated tuition fees for secondary school; and only three offer paid leave to care for sick children. Filling these policy gaps, as well as making mental health and social services more widely available, is essential to support caregiving by families for HIV-affected children. As part of the HIV agenda, the global community can help national governments advance towards their policy targets. This would provide meaningful protection for families affected by HIV, as well as for millions of other vulnerable families and children across the region. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
26. Why do men buy sex and what are their assessments of the HIV-related risks when they do?
- Author
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McKeganey, N.
- Subjects
SEX work ,HIV infections ,SEX workers ,HETEROSEXUALITY ,HETEROSEXUAL women ,SEX industry ,HIV-positive women - Abstract
The belief that female prostitution might play a key role in the heterosexual spread of HIV infection has led to a great deal of attention being focused on the activities of women who sell sex. By contrast, the activities of men who buy sex has been largely ignored. One of the reasons for this has undoubtedly been the difficulties of contacting such men. In this paper data from telephone interviews with 70 men who had recently purchased sex are presented. It is shown that there was a wide range of factors that the men cited in explaining the appeal of commercial sex. The paper also reports on the males' views as to the risks of HIV associated with commercial sex. Although the men believed HIV to be very widespread amongst women selling sex, hardly any of them felt at risk themselves as a result of their commercial sexual encounters. The basis for the men 's optimism about avoiding HIV and their preparedness to inform other sexual partners about their prostitute contacts are also described. [ABSTRACT FROM AUTHOR]
- Published
- 1994
- Full Text
- View/download PDF
27. Association between Federally Qualified Health Center usage and emergency department utilization among California's HIV-infected Medicaid beneficiaries, 2009.
- Author
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Chow, Jeremy Y., Comulada, W. Scott, Gildner, Jennifer L., Desmond, Katherine A., and Leibowitz, Arleen A.
- Subjects
COMMUNITY health services ,CONFIDENCE intervals ,HIV infections ,HOSPITAL emergency services ,MEDICAID ,MULTIVARIATE analysis ,PRIMARY health care ,MEDICALLY underserved persons ,STATISTICAL models ,SAFETY-net health care providers ,ODDS ratio ,ECONOMICS - Abstract
Federally Qualified Health Centers (FQHCs) have long been important sources of care for publicly insured people living with HIV. FQHC users have historically used emergency departments (EDs) at a higher-than-average rate. This paper examines whether this greater use relates to access difficulties in FQHCs or to characteristics of FQHC users. Zero-inflated Poisson models were used to estimate how FQHC use related to the odds of being an ED user and annual number of ED visits, using claims data on 6,284 HIV-infected California Medicaid beneficiaries in 2008-2009. FQHC users averaged significantly greater numbers of annual ED visits than non-FQHC users and those with no outpatient usage (1.89, 1.59, and 1.70, respectively; P = 0.043). FQHC users had higher odds of being ED users (OR = 1.14; 95%CI 1.02-1.27). In multivariable analyses, FQHC clients had higher odds of ED usage controlling for demographic and service characteristics (OR = 1.15; 95%CI 1.02-1.30) but not when medical characteristics were included (OR = 1.08; 95%CI 0.95-1.24). Among ED users, FQHC use was not significantly associated with the number of ED visits in our models (rate ratio (RR) = 1.00; 95%CI 0.87-1.15). The overall difference in mean annual ED visits observed between FQHC and non-FQHC groups was reduced to insignificance (1.75; 95% CI 1.59-1.92 vs 1.70; 95%CI 1.54-1.85) after adjusting for demographic, service, and medical characteristics. Overall, FQHC users had higher ED utilization than non-FQHC users, but the disparity was largely driven by differences in underlying medical characteristics. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
28. Vets, denialists and rememberers: social typologies of patient adherence and non-adherence to HAART from the perspective of HIV care providers.
- Author
-
Orchard, Treena, Salters, Kate, Palmer, Alexis, Michelow, Warren, Lepik, Katherine J., and Hogg, Robert
- Subjects
HIGHLY active antiretroviral therapy ,HIV infections ,INTERVIEWING ,MEDICAL personnel ,PATIENT compliance ,RESEARCH funding ,QUALITATIVE research ,PILOT projects ,JUDGMENT sampling ,PSYCHOLOGY - Abstract
For many people living with HIV/AIDS taking highly active antiretroviral therapy (HAART) is difficult due to various individual and social factors, including the side effects of these medications, HIV/AIDS stigma and poor patient–provider relationships. Most studies that examine barriers to and facilitators of adherence to HAART have been conducted with people on these medications, which is critical to improving adherence among various HIV-affected groups. Less attention has been paid to the experiences of HIV care providers, which is an important gap in the literature considering the key role they play in the delivery of HAART and the management of patient treatment plans. This paper presents findings from a qualitative pilot study that explored how HIV care providers assess adherence and non-adherence to HAART among their HIV-positive patients in Vancouver, British Columbia. Drawing upon individual interviews conducted with HIV physicians (n= 3), social service providers (n= 3) and pharmacists (n= 2), this discussion focuses on the social typologies our participants use to assess patient success and failure related to adherence. Eleven unique categories are featured and the diversity within and across these categories illustrate a broad spectrum of adherence-related behaviours among patients and the social meanings providers attribute to these behaviours. As one of the first explorations of the social typologies used by HIV care providers to assess patient performance on HAART, these data contribute valuable insights into the experiences of providers within the context of adherence-related care delivery. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
29. Pharmaceutical HIV prevention technologies in the UK: six domains for social science research.
- Author
-
Keogh, Peter and Dodds, Catherine
- Subjects
HIV prevention ,HIV infection risk factors ,ANTIVIRAL agents ,HIV infections ,MEDICAL care costs ,ECONOMICS - Abstract
The development of pharmaceutical HIV prevention technologies (PPTs) over the last five years has generated intense interest from a range of stakeholders. There are concerns that these clinical and pharmaceutical interventions are proceeding with insufficient input of the social sciences. Hence key questions around implementation and evaluation remain unexplored whilst biomedical HIV prevention remains insufficiently critiqued or theorised from sociological as well as other social science perspectives. This paper presents the results of an expert symposium held in the UK to explore and build consensus on the role of the social sciences in researching and evaluating PPTs in this context. The symposium brought together UK social scientists from a variety of backgrounds. A position paper was produced and distributed in advance of the symposium and revised in the light this consultation phase. These exchanges and the emerging structure of this paper formed the basis for symposium panel presentations and break-out sessions. Recordings of all sessions were used to further refine the document which was also redrafted in light of ongoing comments from symposium participants. Six domains of enquiry for the social sciences were identified and discussed: self, identity and personal narrative; intimacy, risk and sex; communities, resistance and activism; systems, structures and institutions; economic considerations and analyses; and evaluation and outcomes. These are discussed in depth alongside overarching consensus points for social science research in this area as it moves forward. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
30. “In reality, it is complex and difficult”: UK nurses' perspectives on “treatment as prevention” within HIV care.
- Author
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Evans, Catrin, Bennett, Juliet, Croston, Michelle, Brito-Ault, Nathaniel, and Bruton, Jane
- Subjects
HIV prevention ,ANTIVIRAL agents ,HIV infections ,HIV-positive persons ,INTERVIEWING ,PSYCHOLOGY of nurses ,NURSING specialties ,QUESTIONNAIRES ,RESEARCH funding ,SURVEYS ,QUALITATIVE research ,JUDGMENT sampling - Abstract
Globally, clinical guidelines for HIV treatment are being altered to reflect new research showing that successful treatment with antiretroviral therapies (ART) can prevent the onward transmission of HIV. As a result, health care services are being challenged to find ways to roll out “treatment as prevention” (TasP) as a public health measure. In theory, TasP requires individuals to start ART as soon as they are diagnosed – for public health reasons – which may be some time before ART for that individual is required for clinical reasons. There is currently little research on the acceptability of TasP from a patient or provider perspective. This paper reports findings from a qualitative study that sought to explore UK nurses' views and experiences of TasP in HIV care. Ten HIV specialist nurses, purposively selected from across the country, were interviewed. Results suggest that, although positive about TasP in principle, nurses hold several reservations about its implementation in practice. Perceived benefits of TasP include reassurance for patients that their loved ones are protected and that immediate care is available. Concerns include the possibility of sexual dis-inhibition or coercion within sexual relationships. In the UK context, decisions around TasP are still being made on a highly individualised patient by patient basis, within a philosophy of holistic care and partnership working. As such, the research participants called for more resources to support information giving, risk assessment and decision-making. The results show that translating a public health treatment approach into individual patient care is complex, potentially time-consuming and may alter traditional provider–patient dynamics. The findings from this study suggest that in-depth research is needed to understand better the patient, community and provider experience as TasP becomes more widely rolled out. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
31. ‘You're HIV Positive’: Perinatally infected young people's accounts of the critical moment of finding out their diagnosis.
- Author
-
Dorrell, Judith and Katz, Jeanne
- Subjects
HIV infections ,LIFE change events ,MATERNAL health services ,QUALITATIVE research ,DISCLOSURE ,DATA analysis software - Abstract
This paper presents the recollections of 28 young people (15–24 years old) of formally learning that they had acquired HIV perinatally. Prior to the naming of their illness, many participants had experienced repeated biographical disruption through ill health and other major life events. However, the critical moment in their HIV trajectory was when they were told their diagnosis. How information about their diagnosis was managed previously, often disguised, combined with the ways in which the disclosure process was handled communicated to young people the inherent dangers and stigma associated with revealing their HIV status to others. The formal disclosure occasion also signalled to most participants the route of their HIV infection as well as previously hidden health information about family members. Although some young people discovered their diagnosis in an unplanned way, most described the disclosure of their HIV status as a structured event, usually a formal telling with those in authority naming the condition. This even applied to those for whom the discovery that they were HIV positive was a process that happened over time. This paper describes their memories of the disclosure event which for half took place over the age of 12. They received messages conveying the imperative to keep this information a secret to avoid being stigmatised and to protect themselves and their families. They described subsequent feelings of isolation and distress. Policy-makers and clinicians need to consider the WHO disclosure recommendations whilst taking into account individual circumstances. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
32. Understanding and mitigating HIV-related resource-based stigma in the era of antiretroviral therapy.
- Author
-
Holmes, Kathleen and Winskell, Kate
- Subjects
ANTIVIRAL agents ,FOCUS groups ,HIV infections ,INTERVIEWING ,SOCIAL stigma ,QUALITATIVE research ,SAMPLE size (Statistics) ,ATTITUDES toward AIDS (Disease) - Abstract
The perception in low-resource settings that investment of resources in people living with HIV (PLHIV) is wasted because AIDS is both an incurable and deadly disease is known as resource-based stigma. In this paper, we draw on in-depth interviews (IDI), focus group discussions (FGD), and key informant interviews (KII) with 77 HIV-positive microfinance participants and nongovernmental organization leaders to examine resource-based stigma in the context of increased access to antiretroviral therapy (ART) at an individual, household, and community level in Côte d'Ivoire. The purpose of this exploratory paper is to examine: (1) resource-based stigmatization in the era of ART and (2) the relationship among microfinance, a poverty-reduction intervention, and HIV stigmatization. The frequency with which resource-based stigma was discussed by respondents suggests that it is an important component of HIV-related stigma in this setting. It affected PLHIV's access to material as well as social resources, leading to economic discrimination and social devaluation. Participation in village savings and loans groups, however, mitigated resource-based HIV stigma, suggesting that in the era of increased access to antiretroviral therapy, economic programs should be considered as one possible HIV stigma-reduction intervention. [ABSTRACT FROM PUBLISHER]
- Published
- 2013
- Full Text
- View/download PDF
33. Using cost as a consideration for antiretroviral regimen selection: An example using average wholesale prices.
- Author
-
Grimes, Richard M. and Shenouda, Tina A.
- Subjects
ANTIVIRAL agents ,COST control ,DRUG delivery systems ,HIV infections ,MEDICAL care costs ,RESEARCH funding - Abstract
Funding for the AIDS Drug Assistance Program (ADAP) has lagged behind the number of persons needing antiretroviral therapy, leading to waiting lists and reduction of needed treatments and services. This paper demonstrates a method of providing more treatment for the same amount of money by selecting clinically equivalent, but lower-cost drug regimens. Average wholesale prices (AWPs) were used to calculate the annual costs of preferred, alternative, and acceptable regimens. The cost of each regimen was divided into $1,000,000 to determine how many patients could be treated per $1,000,000 that an ADAP had to spend. AWPs for preferred regimens ranged from $25,318 to 35,645 per year. For alternative regimens, the range of annual AWPs was $22,002–$32,335. The range for the acceptable regimens was $19,031–$31,543. The range of person treated per $1,000,000 per year was from 28 to 52. Funding shortages will lead ADAPs to resort to waiting lists or other means of denying appropriate care unless alternative approaches to treatment are sought. Cost conscious selection of regimens where there is no harm to individual patients is one alternative approach. Medical conditions that allow exceptions to lower-cost-based regimens must be developed with the assistance of clinicians. [ABSTRACT FROM PUBLISHER]
- Published
- 2013
- Full Text
- View/download PDF
34. Gender differentials on the health consequences of care-giving to people with AIDS-related illness among older informal carers in two slums in Nairobi, Kenya.
- Author
-
Chepngeno-Langat, Gloria, Madise, Nyovani, Evandrou, Maria, and Falkingham, Jane
- Subjects
PSYCHOLOGICAL adaptation ,ANALYSIS of variance ,CAREGIVERS ,EPIDEMIOLOGY ,HEALTH status indicators ,HIV infections ,REGRESSION analysis ,HEALTH self-care ,SEX distribution ,LOGISTIC regression analysis ,DATA analysis ,MULTIPLE regression analysis - Abstract
Informal caregivers, most often older people, provide valuable care and support for people ill due to AIDS, especially in poor-resource settings with inadequate health care systems and limited access to antiretroviral therapy. The negative health consequences associated with care-giving may vary depending on various factors that act to mediate the extent of the effects on the caregiver. This paper investigates the association between care-giving and poor health among older carers to people living with AIDS, and examines potential within-gender differences in reporting poor health. Data from 1429 men and women aged 50 years or older living in two slum areas of Nairobi are used to compare AIDS-caregivers with other caregivers and non-caregivers based on self-reported health using the World Health Organization disability assessment (WHODAS) score and the presence of a severe health problem. Women AIDS-caregivers reported higher disability scores for mobility and the lowest scores in self-care and life activities domains while men AIDS-caregivers reported higher scores in all domains (except interpersonal interaction) compared with other caregivers and non-caregivers. Multiple regression analysis is used to examine the association of providing care with health outcomes while controlling for other confounders. Consistently across all the health measures, no significant differences were observed between female AIDS-caregivers and female non-caregivers. Male AIDS-caregivers were however significantly more likely to report disability and having a severe health problem compared with male non-caregivers. This finding highlights a gendered variation in outcome and is possibly an indication of the differences in care-giving gender-role expectations and coping strategies. This study highlights the relatively neglected role of older men as caregivers and recommends comprehensive interventions to mitigate the impact of HIV and AIDS on caregivers that embrace men as well as women. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
35. Sources of motivation and frustration among healthcare workers administering antiretroviral treatment for HIV in rural Zimbabwe.
- Author
-
Campbell, C., Scott, K., Madenhire, C., Nyamukapa, C., and Gregson, S.
- Subjects
ANTIVIRAL agents ,ATTITUDE (Psychology) ,DRUGS ,FOCUS groups ,HIV infections ,INTERVIEWING ,MEDICAL personnel ,MOTIVATION (Psychology) ,PATIENT compliance ,POVERTY ,RESEARCH funding ,QUALITATIVE research ,THEMATIC analysis - Abstract
The roll-out of accessible and affordable antiretroviral (ARV) drugs for people living with HIV in low-income countries is drastically changing the nature of HIV-related healthcare. The Zimbabwean Ministry of Health has renewed efforts to make antiretroviral treatment (ART) for HIV free and publically available across the country. This paper describes the findings from a multi-method qualitative study including interviews and a focus group with healthcare workers (mostly nurses), totalling 25 participants, and field notes from over 100 hours of ethnographic observation in three rural Zimbabwean health centres. These health centres began providing free ARV drugs to HIV-positive people over one year prior to the research period. We examined sources of motivation and frustration among nurses administering ART in these resource-poor health centres. The findings suggest that healthcare workers administering ART in challenging circumstances are adept at drawing strength from the dramatic physical and emotional recoveries made possible by ART and from their personal memories of the suffering caused by HIV/AIDS among close friends or family. However, healthcare staff grappled with extreme resource shortages, which led to exhaustion and frustration. Surprisingly, only one year into ART provision, healthcare workers did not reference the professional challenges of their HIV work before ART became available, suggesting that medical breakthroughs such as ART rapidly come to be seen as a standard element of nursing. Our findings provide a basis for optimism that medical breakthroughs such as ART can reinvigorate healthcare workers in the short term. However, we caution that the daily challenges of nursing in poor environments, especially administering an ongoing and resource-intensive regime such as ART, must be addressed to enable nurses to continue delivering high-quality ART in sub-Saharan Africa. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
36. HIV-positive women in Australia explain their use and non-use of antiretroviral therapy in preventing mother-to-child transmission.
- Author
-
McDonald, Karalyn and Kirkman, Maggie
- Subjects
VERTICAL transmission (Communicable diseases) ,ANALYSIS of variance ,ANTIVIRAL agents ,DECISION making ,DRUGS ,HIV infections ,INTERVIEWING ,PATIENT compliance ,PATIENTS ,WOMEN ,NARRATIVES ,HIV seroconversion ,PREGNANCY ,PREVENTION - Abstract
This paper explores HIV-positive women's accounts of their use and non-use of treatments for the prevention of mother-to-child transmission. In-depth interviews were conducted in 2001 with 34 HIV-positive women who were diagnosed during their childbearing years. This paper reports on the 16 women who gave birth after being diagnosed with HIV. Some women reported experiencing debilitating side-effects of antiretroviral (ARV) therapy, and all were aware that the history of HIV therapy was not one of clear, consistent and benevolent effectiveness. It was evident that women wanted the best outcomes for themselves and their babies. Women represented their role vis-a-vis their children as encompassing protection against a medical fraternity that insisted on the use of ARV and prophylaxis without acknowledging the mothers' concerns about toxicity. From the women's perspective, it made sense not to let their babies become experimental subjects when long-term effects were unknown. To maximise the benefit of ARV therapy to mothers and babies, thereby reducing the risk of vertical transmission, it is imperative to understand a woman's explanation of what therapy means to her, and advisable to presume that she wants the best for her baby. Such an approach will facilitate better communication and encourage clinicians and patients to work towards a shared goal. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
37. Strategies to enhance linkages between care for HIV/AIDS in jail and community settings.
- Author
-
Draine, Jeffrey, Ahuja, Divya, Altice, FrederickL., Arriola, KimberlyJacob, Avery, AnnK., Beckwith, CurtG., Booker, CristinaA., Ferguson, Ann, Figueroa, Hayley, Lincoln, Thomas, Ouellet, LawrenceJ., Porterfield, Jeffrey, Spaulding, AnneC., and Tinsley, MelindaJ.
- Subjects
HIV infections ,THERAPEUTICS ,COMMUNITY health services administration ,CORRECTIONAL institutions ,HEALTH services accessibility ,DIAGNOSIS of HIV infections ,MEDICAL quality control ,PUBLIC health ,SERODIAGNOSIS ,SUBSTANCE abuse - Abstract
The policies of mass incarceration and the expansion of the criminal justice system in the USA over the last 40 years have weighed heavily on individuals and communities impacted by drug use and HIV disease. Though less than ideal, jails provide a unique opportunity to diagnose, treat and implement effective interventions. The role of jails in HIV detection, treatment, and continuity of care, however, has yet to be systematically examined. This paper reviews the service strategies and contexts for 10 demonstration sites funded to develop innovative methods for providing care and treatment to HIV-infected individuals in jail settings who are returning to their communities. The sites have implemented varied intervention strategies; each set in unique policy and service system contexts. Collaboration among agencies and between systems to implement these interventions is viewed as particularly challenging undertakings. We anticipate the sites will collectively serve 700-1000 individuals across the duration of the initiative. In this paper, we review the service contexts and strategies developed by the 10 sites. The individual and multi-site evaluations aim to provide new data on testing, treatment, and community linkages from jails that will further develop our knowledge base on effective intervention strategies in these settings. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
38. Tying their hands? Institutional obstacles to the success of the ASHA community health worker programme in rural north India.
- Author
-
Scott, Kerry and Shanker, Shobhit
- Subjects
HIV infections ,THERAPEUTICS ,RURAL health ,COMMUNITY health workers ,FOCUS groups ,INTERVIEWING ,MEDICAL care ,GOVERNMENT programs ,THEMATIC analysis ,EVALUATION of human services programs - Abstract
This paper is a contribution to the growing literature on how best to design and support community health worker (CHW) programmes to maximise their positive impact. CHWs are laypeople trained to promote health among their peers. To do so they are commonly tasked with providing basic curative services, promoting the use of existing health services, facilitating cultural mediation between communities and healthcare providers and encouraging critical reflection and dialogue on social health issues. This paper presents a case study of a CHW project in rural Uttarakhand, north India, called the Accredited Social Health Activist (ASHA) programme. While the ASHA programme is not specifically targeting HIV/AIDS, CHW programmes have been flagged as a key means of addressing health resource shortages in poor countries, especially in relation to HIV/AIDS. This study of the ASHA programme provides insights into how best to support CHW programmes in general, including those focused on HIV/AIDS. The research involved 25 interviews and five focus groups with ASHAs, health professionals and community members as well as over 100 hours of non-participant observation at public health centres. The research investigated contextual features of the programme that are hindering the ASHAs' capacity to increase quantitative health outcomes and act as cultural mediators and agents of social change. Research found that ASHAs were institutionally limited by: (1) the outcome-based remuneration structure; (2) poor institutional support; (3) the rigid hierarchical structure of the health system; and (4) a dearth of participation at the community level. The conclusion suggests that progressive policy on CHW programmes must be backed up by concrete institutional support structures to enable CHWs to fulfil their role. [ABSTRACT FROM PUBLISHER]
- Published
- 2010
- Full Text
- View/download PDF
39. Tracking the rise of the 'expert patient' in evolving paradigms of HIV care.
- Author
-
Kielmann, Karina and Cataldo, Fabian
- Subjects
HIGHLY active antiretroviral therapy ,MEDICAL care ,AIDS patients ,PUBLIC health ,HIV infections ,EPIDEMIOLOGY - Abstract
In the context of rolling out antiretroviral treatment programmes in resource-constrained settings, 'expert patients' are hailed as an important step towards greater involvement of people living with HIV (PLHIV) in HIV care, and in addressing the human resources crisis. The rise of the 'expert patient' in HIV care partly echoes the move towards greater patient agency and self-management that informs health services delivery in industrialised countries. However, the 'expert patient' also represents a particular moment in the trajectory of PLHIVs' quest for greater access to treatment and health care. In this paper, we examine the unique evolution and 'instrumentalisation' of PLHIV in public health in relation to shifts in the epidemiology, interventions and socio-political response related to HIV since the 1980s. Synthesised broadly as 'risk-based', 'empowerment', 'structural' and 'activist' approaches, four key paradigms are identified that attribute different levels of citizenship for PLHIV, that is the motivation, agency and responsibility to act not only on their own interests, but also on behalf of collective interests in HIV prevention and care. We problematise the concept of the patient-citizen by drawing attention to the context-specificity of such notions as patient identity, capacity and rights as well as the structural realities of access to treatment, and broader engagement with the health system. We conclude by offering some thoughts on the applicability of 'expert patient' approaches across a broad range of settings. [ABSTRACT FROM AUTHOR]
- Published
- 2010
- Full Text
- View/download PDF
40. Efficacy of convenience sampling through the internet versus respondent driven sampling among males who have sex with males in Tallinn and Harju County, Estonia: challenges reaching a hidden population.
- Author
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Johnston, LisaGrazina, Trummal, Aire, Lõhmus, Liilia, and Ravalepik, Ardi
- Subjects
HEALTH of gay men ,CROSS-sectional method ,HIV infections ,THERAPEUTICS ,QUANTITATIVE research ,HEALTH surveys - Abstract
This paper examines challenges obtaining representative samples of males who have sex with males (MSM) in Estonia and provides descriptive HIV behavioral data gathered from four cross-sectional surveys; three using the internet, and one using respondent driven sampling (RDS) to recruit MSM in Tallinn and Harju County. Estonian MSM were sampled between March and May in 2004 (n=193), August and November in 2005 (n=146) and September and December in 2007 (n=238) using internet websites. MSM in Tallinn and Harju County were sampled between April and June in 2007 (n=59) using RDS. Recruitment of MSM using RDS did not acquire the calculated sample size. The RDS study reached a less diverse group of MSM than did the internet studies which recruited a larger proportion of MSM who were older, bisexual, having female sexual partners during the last six months, and unlikely to have been tested for HIV. The findings and observations presented in this paper could inform researchers in Estonia, and the region, about the efficacy of and socio-cultural challenges to sampling MSM to collect HIV biological and/or behavioral data. [ABSTRACT FROM AUTHOR]
- Published
- 2009
- Full Text
- View/download PDF
41. Involving HIV-positive people in policy and service development: Recent experiences in England.
- Author
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Maxwell, C., Aggleton, P., and Warwick, I.
- Subjects
HIV-positive persons ,HIV ,AIDS ,HIV infections ,RESEARCH ,MEDICAL care ,PATIENTS - Abstract
Although the 'Greater Involvement of People Living with or Affected by HIV/AIDS' (GIPA) principle was first articulated over a decade ago (UNAIDS, 1999), relatively few studies have examined the extent to which it is being implemented. A study was undertaken in three areas of England to establish the types of user involvement mechanisms in place for HIV-positive people to influence service and policy development. Drawing on group discussions with 38 people living with HIV and six HIV professionals across the three geographical research sites, as well as interviews with eight professionals with expertise in this area, this paper illustrates variability in opportunities for involvement. Also identified are a range of (innovative) methods for facilitating HIV-positive people's greater participation in service planning and delivery, as well as some of the challenges encountered by people living with HIV and service providers when implementing GIPA. The paper concludes by identifying some specific strategies for improving user involvement in HIV service provision. [ABSTRACT FROM AUTHOR]
- Published
- 2008
- Full Text
- View/download PDF
42. Differences between HIV-positive gay men who 'frequently', 'sometimes' or 'never' engage in unprotected anal intercourse with serononconcordant casual partners: Positive Health cohort, Australia.
- Author
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Rawstorne, P., Fogarty, A., Crawford, J., Prestage, G., Grierson, J., Grulich, A., and Kippax, S.
- Subjects
HIV infections ,RISK assessment ,HIV-positive men ,ANAL sex ,UNSAFE sex ,SEX research - Abstract
By measuring the actual number of risk acts engaged in by HIV-positive men participating in the Positive Health (PH) cohort study, this paper sets out to document the distribution of risk acts, to report on the proportion of acts of unprotected anal intercourse with casual (UAIC) partners that occurred between HIV-positive men (i.e. seroconcordant positive) and to examine the factors that differentiated men who 'frequently' compared with 'sometimes' or 'never' engaged in unsafe UAIC (i.e. UAIC with serononconcordant partners: partners who have not tested positive for HIV). The findings show that 42.6% of all UAIC acts occurred between seroconcordant HIV-positive partners, posing no risk of HIV infection to an HIV-negative person. A minority of participants (10%) accounted for the majority (70.7%) of the unsafe acts of UAIC. The HIV-positive men who 'sometimes' engaged in unsafe UAIC had higher treatment optimism scores and were more likely to use Viagra in comparison with those who did not engage in such risk. Those who reported 'frequent' engagement in unsafe UAIC were more likely to engage in a range of esoteric sexual practices, be slightly less well educated and be taking antiretroviral therapy compared with HIV-positive men who 'sometimes' engaged in unsafe UAIC. As such, taking ART but not viral load, predicted frequent unsafe UAIC. When considered alongside earlier studies, these results suggest that HIV-negative men who engage in esoteric sexual practices may be at increased risk of HIV transmission, not necessarily because they engage in esoteric sex practices but because of the sub-cultural milieu in which esoteric sex is occurring. The findings from this study also endorse the measurement of UAIC acts as a useful gauge of risk. [ABSTRACT FROM AUTHOR]
- Published
- 2007
- Full Text
- View/download PDF
43. HIV/AIDS in fishing communities: Challenges to delivering antiretroviral therapy to vulnerable groups.
- Author
-
Seeley, JanetA. and Allison, EdwardH.
- Subjects
FISHERS ,HIV infections ,SEX industry ,ANTIVIRAL agents ,THERAPEUTICS ,LIFESTYLES - Abstract
Fishing communities have been identified as among the highest-risk groups for HIV infection in countries with high overall rates of HIV/AIDS prevalence. Vulnerability to HIV/AIDS stems from, the time fishers and fish traders spend away from home, their access to cash income, their demographic profile, the ready availability of commercial sex in fishing ports and the sub-cultures of risk taking and hyper-masculinity in fishermen. The subordinate economic and social position of women in many fishing communities makes them even more vulnerable to infection. In this paper we review the available literature to assess the social, economic and cultural factors that shape many fisherfolks’ life-styles and that make them both vulnerable to infection and difficult to reach with anti-retroviral therapy and continued prevention efforts. We conclude from the available evidence that fisherfolk will be among those untouched by planned initiatives to increase access to anti-retroviral therapies in the coming years; a conclusion that might apply to other groups with similar socio-economic and sub-cultural attributes, such as other seafarers, and migrant-workers including small-scale miners, and construction workers. [ABSTRACT FROM AUTHOR]
- Published
- 2005
- Full Text
- View/download PDF
44. Home-based care for orphaned children infected with HIV/AIDS in Uganda.
- Author
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O'Hare, B. A. M., Venables, J., Nalubeg, J. F., Nakakeeto, M., Kibirige, M., and Southall, D. P.
- Subjects
AIDS ,HIV infections ,COMMUNICABLE diseases ,IMMUNOLOGICAL deficiency syndromes ,CHILDREN'S health ,ORPHANS - Abstract
The primary aim of this paper is to describe an outreach programme from a main state hospital in sub-Saharan Africa, which has been running for three years. This programme is based in Mulago Hospital, Kampala, Uganda and cares for up to 200 children infected with HIV/AIDS in their home. We describe the clinic and how we meet the families and enrol them, the infrastructure of the programme and the personnel involved. Children and their families receive physical, psychological and social care and we describe each aspect of this. The knowledge base about older children with AIDS in Africa is scarce and the secondary aim of this paper is to publish observations that were made while providing care. This includes demographics and the health problems encountered among children living with HIV/AIDS in a resource-poor setting who do not receive antiretroviral medication. Finally, we discuss the strengths and weaknesses of this model of care and the prerequisites to setting up a similar model. [ABSTRACT FROM AUTHOR]
- Published
- 2005
- Full Text
- View/download PDF
45. Methamphetamine-dependent gay men's disclosure of their HIV status to sexual partners.
- Author
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Larkins, S., Reback, C. J., Shoptaw, S., and Veniegas, R.
- Subjects
METHAMPHETAMINE ,AMPHETAMINES ,GAY men ,HIV infections ,HIV ,HIV-positive persons - Abstract
Disclosure of one's HIV status to a potential sexual partner has important HIV prevention implications. This paper qualitatively evaluates the social and sexual contexts that influence disclosure of HIV status among methamphetamine-dependent gay men enrolled in an outpatient drug treatment research program. As part of an open-ended, semi-structured interview, 34 HIV-positive and HIV-negative men discussed how, when, to whom and under what circumstances they reveal information about their HIV status. The four factors that influence participants’ decision to disclose include: (1) an HIV-negative sexual partner's disclosure; (2) sexual venue (private versus public); (3) primary versus non-primary partner; and (4) the perceived risk of the sexual act. Sexual encounters among the men in this sample often occurred in public environments with non-primary partners, and involved use of illicit substances. In these social and sexual contexts, both HIV-positive and HIV-negative participants believed that it is HIV-negative rather than HIV-positive men who should initiate safer sex dialogue and safer sex practices. Findings are helpful in crafting HIV-prevention interventions targeting substance-using gay men whose sexual practices place them at high-risk for HIV-infection. [ABSTRACT FROM AUTHOR]
- Published
- 2005
- Full Text
- View/download PDF
46. Men who have sex with men (MSM) in public sex environments (PSEs): A systematic review of quantitative literature.
- Author
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Frankis, J. and Flowers, P.
- Subjects
MALE homosexuality ,GAY people ,GAY community ,AIDS ,HIV infections ,HUMAN sexuality - Abstract
We systematically review quantitative research relating to the sexual behaviours of MSM in PSEs. We examine the methodological rigour of these studies to determine an appropriate framework for future PSE-based research and quantify sexual behavioural trends therein. Medline, BIDS, Web of Science and recent HIV/AIDS conferences were searched according to a systematic inclusion criteria. Nine papers were included for review. Recruitment of participants' outwith PSE settings, and low response rates (6%) of participants contacted in situ , question the validity and generalizability of current evidence. Most PSE users were gay or bisexually identified and half of men in the gay community reported recent PSE use. Around 10% of men reported casual status-unknown/serodiscordant unprotected anal intercourse (UAI) within PSEs. HIV testing rates amongst PSE users were similar to the wider gay community, though the proportion of men who tested positive was twice as high. Rates of casual UAI suggest that PSEs represent important sites for HIV prevention. However, since extant evidence is scant and methodologically flawed, further research is urgent. Such work must recruit participants in situ, and obtain satisfactory response rates, to be generalizable to the wider population of men who cruise. [ABSTRACT FROM AUTHOR]
- Published
- 2005
- Full Text
- View/download PDF
47. WHOQOL-HIV for quality of life assessment among people living with HIV and AIDS: results from the field test.
- Author
-
Whoqol Hiv Group
- Subjects
AIDS patients ,QUALITY of life ,HIV ,PSYCHOMETRICS ,EVALUATION ,HIV infections - Abstract
Assessment of quality of life (QoL) in persons living with HIV/AIDS (PLWHA) is becoming crucial to research and evidence-based practice in this area. This paper describes the analysis of the WHOQOL HIV field test instrument, which was given to 1,334 PLWHA from seven culturally diverse centres (Australia, Brazil, Italy, Thailand, Ukraine and two centres in India: Bangalore and New Delhi). The instrument demonstrates good psychometric properties (α values for domains between 0.70 and 0.90) and good discriminant validity, with poorest QoL found for those who reported that they were least well. Men reported poorer physical well-being ( F =13.1, p <0.001) and level of independence ( F =16.1, p <0.001), while women reported poorer environment ( F =25.8, p <0.001), social support ( F =11.3, p <0.001) and spirituality ( F =7.5, p <0.01). Older people (>34 years) demonstrated poorer QoL on physical ( F =20.6, p <0.001) and levels of independence ( F =18.3, p <0.001), while younger people showed poorer environmental ( F =34.6, p <0.001) and spiritual ( F =23.5, p <0.001) domains of well-being. The instrument provides a promising means for QoL assessment for HIV/AIDS in diverse cultural settings. [ABSTRACT FROM AUTHOR]
- Published
- 2004
- Full Text
- View/download PDF
48. Good in parts : the Gay Men's Task Force in Glasgow--a response to Kelly.
- Author
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Hart, G. J., Williamson, L. M., and Flowers, P.
- Subjects
HIV infections ,PEER counseling ,HIV-positive gay men - Abstract
We know that peer education, or the use of popular opinion leaders (POLs), works in terms of reducing reported risk behaviour for HIV infection amongst gay men. The work of Jeffrey Kelly and his colleagues provides some of the best scientific evidence in support of this approach. Influenced by this work, we undertook a peer education intervention amongst gay men in bars in Glasgow--the Gay Men's Task Force (GMTF)--but failed to demonstrate any reduction in sexual risk behaviour for HIV infection. In this paper we describe why we were unable to repeat in Scotland the success in small cities in the USA of the POL model. Our explanations include: failure to replicate the 'core elements' of POL; spatial and temporal differences between the original POL settings and the bars of Glasgow; and the currency of ideas such as 'peer education' beyond the protocols designed for their implementation. However, we also describe some of the successful features of the GMTF in Glasgow, and the continued value of peer education in contributing to reductions in sexual risk behaviour for HIV infection. [ABSTRACT FROM AUTHOR]
- Published
- 2004
- Full Text
- View/download PDF
49. The quality of life of HIV-infected South African university students: Experiences with the WHOQOL-HIV-Bref.
- Author
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Cronje, Johan Herman, Williams, Margaret, Steenkamp, Liana, Venter, Danie, and Elkonin, Diane
- Subjects
COLLEGE students ,HIV infections ,QUALITY of life ,QUESTIONNAIRES ,RESEARCH funding ,JUDGMENT sampling ,HIGHLY active antiretroviral therapy ,CROSS-sectional method ,CD4 lymphocyte count - Abstract
HIV and AIDS has serious repercussions on psychological, social and physical well-being, and the assessment of Quality of Life (QoL) of people living with HIV and AIDS is essential to gauge how these challenges are met. The WHOQoL-HIV Bref forms part of a suite of instruments developed by the World Health Organisation. The purpose of this paper is to describe the quality of life of a sample of HIV-infected students at a South African university, as well as explain the internal consistency between questions within each of the QoL domains. A descriptive, cross-sectional study design using a quantitative approach was applied. A non-probability, purposive sampling approach was utilized and students enrolled in the antiretroviral therapy or wellness programme were invited to voluntarily participate in this study. The WHOQOL-HIV Bref was self-administered after explanation of the questions by a registered, trained health care professional. A total of 63 students returned completed questionnaires that were included in the analysis. Acceptable to good reliability scores were established for the following domains: Level of Independence; Social Relations; Environment and Spiritual or Personal Beliefs. Assessing QoL in the sample, the lowest score was for “Spirituality” and the highest “Social Relations”. The “Physical” and “Psychological” domain scores for females were significantly lower than the score for males. There was no significant difference between any of the domain scores among participants with CD4 cell counts above or below 350 cells/mm3. In general the performance of this sample is encouraging and it is recommended that the measure be utilized for QoL screening, and further research. The WHOQOL-HIV Bref for students does not contain an academic wellness component which should be added considering the significant effects of HIV on neuropsychological functioning. Also further investigation into the reasons for poor scores obtained in physical and psychological well-being in females should be encouraged. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
- Full Text
- View/download PDF
50. HIV patient retention: the implementation of a North Carolina clinic-based protocol.
- Author
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Keller, Jennifer, Heine, Amy, LeViere, Anna Finestone, Donovan, Jenna, Wilkin, Aimee, Sullivan, Kristen, and Quinlivan, Evelyn Byrd
- Subjects
BLACK people ,CLINICS ,HISPANIC Americans ,HIV infections ,MEDICAL protocols ,PATIENT compliance ,RESEARCH funding ,WHITE people ,TRANSGENDER people ,HIGHLY active antiretroviral therapy - Abstract
Decreased visit attendance leads to poor health outcomes, decreased viral suppression, and higher mortality rates for persons living with HIV. Retention in care is an important factor in improving health status for people living with HIV but continues to be a challenge in clinical settings. This paper details the development and implementation of the NC-LINK Retention Protocol, a clinic-based protocol to locate and reengage out-of-care patients, as part of overall clinic retention efforts. The protocol was implemented as one of four interventions of the NC-LINK Systems and Linkages Project, a multi-site initiative funded by the HIV/AIDS Bureau and the Special Projects of National Significance. Lists of out-of-care patients who had not received HIV medical care in over nine months and did not have a future appointment were created each month. Patient navigators, case managers, and other staff then followed a standardized protocol to locate and reengage these patients in care. A total of 452 patients were identified for reengagement services. Of those, 194 (43%) returned to care, 108 (24%) had another definitive outcome (incarcerated, deceased, or relocated) and 150 (33%) were referred for additional follow-up to locate and reengage in care. In summary, 67% of patients were located through the efforts of the clinic staff. The results of this intervention indicate that it is possible to successfully integrate a protocol into the existing infrastructure of a clinic and reengage a majority of out-of-care patients into medical care. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
- Full Text
- View/download PDF
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