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1. Digitala verktyg i matematikundervisning : En kvalitativ studie om mellanstadielärares användning av digitala verktyg i matematikundervisningen

Author: Nguyen, Chi, Adrovic, Alida, Nguyen, Chi, and Adrovic, Alida
Abstract: Det finns variation bland matematiklärare i hur de väljer att integrera digitala verktyg i sin matematikundervisning. Forskning på området visar att matematiklärare generellt sett ser fördelarna med att använda digitala verktyg i klassrummet. Trots detta pekar forskningen också på att många lärare använder digitala verktyg i klassrummet med liten frekvens. Syftet med detta examensarbete var att undersöka hur matematiklärarna använder digitala verktyg i matematikundervisningen. Arbetet syftar också till att utforska hur digitala verktyg används i problemlösningsuppgifter, samt att identifiera de möjligheter och utmaningar som lärare stöter på vid användningen av dessa verktyg. För att besvara frågeställningarna genomfördes kvalitativa intervjuer med mellanstadielärare. Den insamlade datan analyserades med hjälp av TPACK-modellen. TPACK står för Technological Pedagogical Content Knowledge och är kärnan till en bra undervisning med teknik (Koehler & Mishra, 2009; Mishra & Koehler, 2006). Dataanalys och tidigare forskning visar att matematiklärares pedagogiska tekniska kunskap (TPK) kan påverka i vilken utsträckning läraren integrerar digitala verktyg i sin undervisning. Samtliga lärare använder digitala verktyg för att stödja sin undervisning i matematiska problemlösningsuppgifter. De undersökta lärarna identifierar flera möjligheter och utmaningar vid användning av digitala verktyg som är i linje med tidigare forskning. Genom detta examensarbete kan vi bättre stödja lärare i deras arbete med att främja den pedagogiska användningen av digitala verktyg i undervisningen i matematik.
Published: 2024

2. Digitala verktyg i matematikundervisning : En kvalitativ studie om mellanstadielärares användning av digitala verktyg i matematikundervisningen

Author: Nguyen, Chi, Adrovic, Alida, Nguyen, Chi, and Adrovic, Alida
Abstract: Det finns variation bland matematiklärare i hur de väljer att integrera digitala verktyg i sin matematikundervisning. Forskning på området visar att matematiklärare generellt sett ser fördelarna med att använda digitala verktyg i klassrummet. Trots detta pekar forskningen också på att många lärare använder digitala verktyg i klassrummet med liten frekvens. Syftet med detta examensarbete var att undersöka hur matematiklärarna använder digitala verktyg i matematikundervisningen. Arbetet syftar också till att utforska hur digitala verktyg används i problemlösningsuppgifter, samt att identifiera de möjligheter och utmaningar som lärare stöter på vid användningen av dessa verktyg. För att besvara frågeställningarna genomfördes kvalitativa intervjuer med mellanstadielärare. Den insamlade datan analyserades med hjälp av TPACK-modellen. TPACK står för Technological Pedagogical Content Knowledge och är kärnan till en bra undervisning med teknik (Koehler & Mishra, 2009; Mishra & Koehler, 2006). Dataanalys och tidigare forskning visar att matematiklärares pedagogiska tekniska kunskap (TPK) kan påverka i vilken utsträckning läraren integrerar digitala verktyg i sin undervisning. Samtliga lärare använder digitala verktyg för att stödja sin undervisning i matematiska problemlösningsuppgifter. De undersökta lärarna identifierar flera möjligheter och utmaningar vid användning av digitala verktyg som är i linje med tidigare forskning. Genom detta examensarbete kan vi bättre stödja lärare i deras arbete med att främja den pedagogiska användningen av digitala verktyg i undervisningen i matematik.
Published: 2024

3. Application and performance of disease activity indices proposed for patients with systemic sclerosis in an international cohort of patients with juvenile systemic sclerosis

Author: Klotsche, Jens, Torok, Kathryn S., Kasapcopur, Ozgur, Adrovic, Amra, Terreri, Maria Teresa, Sakamoto, Ana Paula, Katsicas, Maria, Sztajnbok, Flavio, Marrani, Edoardo, Sifuentes-Giraldo, Alberto, Stanevicha, Valda, Anton, Jordi, Feldmann, Brian, Kostik, Mikhail, Nemcova, Dana, Santos, Maria Jose, Appenzeller, Simone, Avcin, Tadej, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Juergen, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Kallinich, Tilmann, Minden, Kirsten, Nielsen, Susan, Patwardhan, Anjali, Helmus, Nicola, Foeldvari, Ivan, Klotsche, Jens, Torok, Kathryn S., Kasapcopur, Ozgur, Adrovic, Amra, Terreri, Maria Teresa, Sakamoto, Ana Paula, Katsicas, Maria, Sztajnbok, Flavio, Marrani, Edoardo, Sifuentes-Giraldo, Alberto, Stanevicha, Valda, Anton, Jordi, Feldmann, Brian, Kostik, Mikhail, Nemcova, Dana, Santos, Maria Jose, Appenzeller, Simone, Avcin, Tadej, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Juergen, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Kallinich, Tilmann, Minden, Kirsten, Nielsen, Susan, Patwardhan, Anjali, Helmus, Nicola, and Foeldvari, Ivan
Abstract: Objectives: Juvenile systemic sclerosis is a rare childhood disease. Three disease activity indices have been published for adult patients with systemic sclerosis: the European Scleroderma Study Group Index, a modified version of the European Scleroderma Study Group Index and the revised European Scleroderma Trials and Research index. The objective of this study was to determine the feasibility and performance of the three disease activity indices in a prospectively followed cohort of patients with juvenile systemic sclerosis.Methods: The analysis cohort was selected from the prospective international inception cohort enrolling juvenile systemic sclerosis patients. The correlation of the disease activity indices with the physicians' and the patients' global assessment of disease activity was determined. The disease activity indices were compared between patients with active and inactive disease. Sensitivity to change between 6- and 12-month follow-up was investigated by mixed models.Results: Eighty percent of the 70 patients had a diffuse cutaneous subtype. The revised European Scleroderma Trials and Research index was highly correlated with the physician-reported global disease activity/parents-reported global disease activity (r = 0.74/0.64), followed by the European Scleroderma Study Group activity index (r = 0.61/0.55) and the modified version of the European Scleroderma Study Group activity index (r = 0.51/0.43). The disease activity indices significantly differed between active and inactive patients. The disease activity indices showed sensitivity to change between 6- and 12-month follow-up among patients who improved or worsened according to the physician-reported global disease activity and the parents-reported global disease activity.Conclusion: Overall, no disease activity score is superior to the other, and all three scores have limitations in the application in juvenile systemic sclerosis patients. Furthermore, research on the concept of disease activity
Published: 2023
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4. Gender differences in juvenile systemic sclerosis patients : Results from the international juvenile scleroderma inception cohort

Author: Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Terreri, Maria Teresa, Sakamoto, Ana Paula, Stanevicha, Valda, Anton, Jordi, Feldman, Brian M., Sztajnbok, Flavio, Khubchandani, Raju, Alexeeva, Ekaterina, Katsicas, Maria, Sawhney, Sujata, Smith, Vanessa, Appenzeller, Simone, Avcin, Tadej, Kostik, Mikhail, Lehman, Thomas, Marrani, Edoardo, Schonenberg-Meinema, Dieneke, Sifuentes-Giraldo, Walter-Alberto, Vasquez-Canizares, Natalia, Janarthanan, Mahesh, Moll, Monika, Nemcova, Dana, Patwardhan, Anjali, Santos, Maria Jose, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Jürgen, Cimaz, Rolando, Costa-Reis, Patricia, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Johnson, Sindhu R., Kaiser, Daniela, Kallinich, Tilmann, Lazarevic, Dragana, Minden, Kirsten, Nielsen, Susan, Nuruzzaman, Farzana, Opsahl Hetlevik, Siri, Uziel, Yosef, Helmus, Nicola, Torok, Kathryn S., Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Terreri, Maria Teresa, Sakamoto, Ana Paula, Stanevicha, Valda, Anton, Jordi, Feldman, Brian M., Sztajnbok, Flavio, Khubchandani, Raju, Alexeeva, Ekaterina, Katsicas, Maria, Sawhney, Sujata, Smith, Vanessa, Appenzeller, Simone, Avcin, Tadej, Kostik, Mikhail, Lehman, Thomas, Marrani, Edoardo, Schonenberg-Meinema, Dieneke, Sifuentes-Giraldo, Walter-Alberto, Vasquez-Canizares, Natalia, Janarthanan, Mahesh, Moll, Monika, Nemcova, Dana, Patwardhan, Anjali, Santos, Maria Jose, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Jürgen, Cimaz, Rolando, Costa-Reis, Patricia, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Johnson, Sindhu R., Kaiser, Daniela, Kallinich, Tilmann, Lazarevic, Dragana, Minden, Kirsten, Nielsen, Susan, Nuruzzaman, Farzana, Opsahl Hetlevik, Siri, Uziel, Yosef, Helmus, Nicola, and Torok, Kathryn S.
Abstract: Objective: To compare organ involvement and disease severity between male and female patients with juvenile onset systemic sclerosis. Methods: Demographics, organ involvement, laboratory evaluation, patient-reported outcomes and physician assessment variables were compared between male and female juvenile onset systemic sclerosis patients enrolled in the prospective international juvenile systemic sclerosis cohort at their baseline visit and after 12 months. Results: One hundred and seventy-five juvenile onset systemic sclerosis patients were evaluated, 142 females and 33 males. Race, age of onset, disease duration, and disease subtypes (70% diffuse cutaneous) were similar between males and females. Active digital ulceration, very low body mass index, and tendon friction rubs were significantly more frequent in males. Physician global assessment of disease severity and digital ulcer activity was significantly higher in males. Composite pulmonary involvement was also more frequent in males, though not statistically significantly. After 12 months, they are the pattern of differences changed female patients had significantly more frequent pulmonary involvement. Conclusion: In this cohort, juvenile onset systemic sclerosis had a more severe course in males at baseline and but the pattern changed after 12 months. Some differences from adult findings persisted, there is no increased signal of pulmonary arterial hypertension or heart failure in male pediatric patients. While monitoring protocols of organ involvement in juvenile onset systemic sclerosis need to be identical for males and females.
Published: 2023
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5. Application of CRISS score, revised CRISS score and RCID score in patients with Juvenile systemic sclerosis

Author: Klotsche, J, Foeldvari, I, Torok, K, Del Gado, F, Furst, DE, Kasapcopur, O, Adrovic, A, Feldman, B, Terreri, MT, Sakamoto, AP, Sztajnbok, F, Anton, J, Katsicas, M, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Kostik, M, Malcova, H, Marrani, E, Sifuentes-Giraldo, WA, Khubchandani, R, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lehman, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Smith, V, Helmus, N, Klotsche, J, Foeldvari, I, Torok, K, Del Gado, F, Furst, DE, Kasapcopur, O, Adrovic, A, Feldman, B, Terreri, MT, Sakamoto, AP, Sztajnbok, F, Anton, J, Katsicas, M, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Kostik, M, Malcova, H, Marrani, E, Sifuentes-Giraldo, WA, Khubchandani, R, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lehman, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Smith, V, and Helmus, N
Published: 2023

6. Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 24 months observation period in the juvenile systemic scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Anton, J, Feldman, B, Khubchandani, R, Kostik, M, Lehman, T, Marrani, E, Katsicas, M, Nemcova, D, Santos, MJ, Sztajnbok, F, Appenzeller, S, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Horneff, G, Johnson, S, Kallinich, T, Minden, K, Moll, M, Nuruzzaman, F, Patwardhan, A, Schonenberg, D, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Anton, J, Feldman, B, Khubchandani, R, Kostik, M, Lehman, T, Marrani, E, Katsicas, M, Nemcova, D, Santos, MJ, Sztajnbok, F, Appenzeller, S, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Horneff, G, Johnson, S, Kallinich, T, Minden, K, Moll, M, Nuruzzaman, F, Patwardhan, A, Schonenberg, D, and Helmus, N
Published: 2023

7. Diffuse juvenile systemic sclerosis patients show distinct organ involvement, antibody pattern and have significantly more severe disease in the largest jSSc cohort of the world. Results from the juvenile scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Anton, J, Stanevicha, V, Johnson, S, Khubchandani, R, Schonenberg, D, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Nemcova, D, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Anton, J, Stanevicha, V, Johnson, S, Khubchandani, R, Schonenberg, D, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Nemcova, D, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N
Published: 2023

8. Is decreased body mass index-2 z score or less correlating with an organ involvement pattern? Results from the juvenile scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Feldman, B, Sztajnbok, F, Anton, J, Terreri, MT, Sakamoto, AP, Khubchandani, R, Stanevicha, V, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Schonenberg, D, Smith, V, Appenzeller, S, Avcin, T, Lehman, T, Malcova, H, Marrani, E, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Johnson, S, Kostik, M, Nemcova, D, Pain, C, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Feldman, B, Sztajnbok, F, Anton, J, Terreri, MT, Sakamoto, AP, Khubchandani, R, Stanevicha, V, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Schonenberg, D, Smith, V, Appenzeller, S, Avcin, T, Lehman, T, Malcova, H, Marrani, E, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Johnson, S, Kostik, M, Nemcova, D, Pain, C, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N
Published: 2023

9. Begreppsuppfattning i matematik hos andraspråkselever

Author: Nguyen, Chi, Adrovic, Alida, Nguyen, Chi, and Adrovic, Alida
Abstract: Följande arbete handlar om andraspråkselever och deras begreppsuppfattning i matematikundervisning. Under arbetets gång har flertal studier, både nationellt och internationellt sammanställts med hjälp av sökningar i olika databaser. Dessa databaserna är ERIC, ERC, Google och Libsearch. Kedjesökning användes för att hitta fler intressanta källor i de lästa texterna. Undervisningsspråket har en inverkan på andraspråkselevers prestation i matematik enligt flera undersökningar. Resultatet från arbetet visar att en bristande begreppsförmåga hos andraspråkselever kan orsaka svårigheter för dem vid inlärningen av matematik. En rad av studier har visat att eleverna möter flera utmaningar: exkludering och kategorisering, bristande möjlighet att kommunicera och mindre utrymme till att uttrycka sina idéer. Deras utmaningar kan underlättas med hjälp av användningen av modersmålet i undervisningen genom tvåspråkig utbildning, enligt flera källor. Däremot kritiseras användningen av modersmålet med motiveringen att det hämmar utvecklingen av elevernas begreppsförmåga i sitt andraspråk. Mer forskning behövs för att bekräfta modersmålets bidrag i matematik.
Published: 2023

10. Diffuse juvenile systemic sclerosis patients show distinct organ involvement, antibody pattern and have significantly more severe disease in the largest jSSc cohort of the world. Results from the juvenile scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Anton, J, Stanevicha, V, Johnson, S, Khubchandani, R, Schonenberg, D, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Nemcova, D, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Anton, J, Stanevicha, V, Johnson, S, Khubchandani, R, Schonenberg, D, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Nemcova, D, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N
Published: 2023

11. Is decreased body mass index-2 z score or less correlating with an organ involvement pattern? Results from the juvenile scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Feldman, B, Sztajnbok, F, Anton, J, Terreri, MT, Sakamoto, AP, Khubchandani, R, Stanevicha, V, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Schonenberg, D, Smith, V, Appenzeller, S, Avcin, T, Lehman, T, Malcova, H, Marrani, E, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Johnson, S, Kostik, M, Nemcova, D, Pain, C, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Feldman, B, Sztajnbok, F, Anton, J, Terreri, MT, Sakamoto, AP, Khubchandani, R, Stanevicha, V, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Schonenberg, D, Smith, V, Appenzeller, S, Avcin, T, Lehman, T, Malcova, H, Marrani, E, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Johnson, S, Kostik, M, Nemcova, D, Pain, C, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N
Published: 2023

12. Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 24 months observation period in the juvenile systemic scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Anton, J, Feldman, B, Khubchandani, R, Kostik, M, Lehman, T, Marrani, E, Katsicas, M, Nemcova, D, Santos, MJ, Sztajnbok, F, Appenzeller, S, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Horneff, G, Johnson, S, Kallinich, T, Minden, K, Moll, M, Nuruzzaman, F, Patwardhan, A, Schonenberg, D, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Anton, J, Feldman, B, Khubchandani, R, Kostik, M, Lehman, T, Marrani, E, Katsicas, M, Nemcova, D, Santos, MJ, Sztajnbok, F, Appenzeller, S, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Horneff, G, Johnson, S, Kallinich, T, Minden, K, Moll, M, Nuruzzaman, F, Patwardhan, A, Schonenberg, D, and Helmus, N
Published: 2023

13. Application of CRISS score, revised CRISS score and RCID score in patients with Juvenile systemic sclerosis

Author: Klotsche, J, Foeldvari, I, Torok, K, Del Gado, F, Furst, DE, Kasapcopur, O, Adrovic, A, Feldman, B, Terreri, MT, Sakamoto, AP, Sztajnbok, F, Anton, J, Katsicas, M, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Kostik, M, Malcova, H, Marrani, E, Sifuentes-Giraldo, WA, Khubchandani, R, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lehman, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Smith, V, Helmus, N, Klotsche, J, Foeldvari, I, Torok, K, Del Gado, F, Furst, DE, Kasapcopur, O, Adrovic, A, Feldman, B, Terreri, MT, Sakamoto, AP, Sztajnbok, F, Anton, J, Katsicas, M, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Kostik, M, Malcova, H, Marrani, E, Sifuentes-Giraldo, WA, Khubchandani, R, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lehman, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Smith, V, and Helmus, N
Published: 2023

14. Ultra-stable Silver Nanoplates: Efficient and Versatile Colorimetric Reporters for Dipstick Assays

Author: Retout, Maurice, Gosselin, Bryan, Adrovic, Amina, Blond, Pascale, Jabin, Ivan, Bruylants, Gilles, Retout, Maurice, Gosselin, Bryan, Adrovic, Amina, Blond, Pascale, Jabin, Ivan, and Bruylants, Gilles
Abstract: Noble metal anisotropic nanostructures, such as silver nanoplates (AgNPls), are interesting because they possess enhanced plasmonic properties compared to their spherical counterparts: increased extinction coefficient and tunable maximum of absorption wavelength. However, their use for biosensing application is limited as these structures are intrinsically unstable and, to maintain the anisotropic structure, a coating protecting the metallic surface is required. In this work, we report on the capacity of a thin but robust coating based on calixarene-diazonium salts to maintain the structure anisotropy of silver nanoplates in conditions in which traditionally used coatings fail. We synthesized AgNPls of various sizes and coated them with two different calixarenes, differing by the functional groups attached to their small rim. After characterization of the efficiency of the ligand exchange process between the initial citrate anions and the calixarenes, the chemical and colloidal stabilities of the resulting calixarene-coated AgNPls were compared to citrate-capped AgNPls. A radical improvement of the lifetime of the material from 1 day for AgNPls coated with citrate to more than 900 days for calixarene-coated AgNPls, as well as the stability in acidic conditions, phosphate saline buffer (PBS) or biofluid, were observed. Benefiting from this exceptional robustness, calixarene-coated AgNPls were exploited to design dipstick assays. Rabbit immunoglobulin G (IgG) detection was developed first as proof-of-concept. The optimal system was then used for the detection of Anti-SARS-CoV-2 IgG. In both cases, a picomolar limit of detection (LOD) was achieved as well as the detection in 100% of pooled human plasma. This sensitivity competes with that of ELISA and is better than the one previously obtained with gold or even silver nanospheres for the same target and in similar conditions. Finally, the wide range of colors provided by the AgNPls allowed the design of a multicolor mu, info:eu-repo/semantics/published
Published: 2023

15. Begreppsuppfattning i matematik hos andraspråkselever

Author: Nguyen, Chi, Adrovic, Alida, Nguyen, Chi, and Adrovic, Alida
Abstract: Följande arbete handlar om andraspråkselever och deras begreppsuppfattning i matematikundervisning. Under arbetets gång har flertal studier, både nationellt och internationellt sammanställts med hjälp av sökningar i olika databaser. Dessa databaserna är ERIC, ERC, Google och Libsearch. Kedjesökning användes för att hitta fler intressanta källor i de lästa texterna. Undervisningsspråket har en inverkan på andraspråkselevers prestation i matematik enligt flera undersökningar. Resultatet från arbetet visar att en bristande begreppsförmåga hos andraspråkselever kan orsaka svårigheter för dem vid inlärningen av matematik. En rad av studier har visat att eleverna möter flera utmaningar: exkludering och kategorisering, bristande möjlighet att kommunicera och mindre utrymme till att uttrycka sina idéer. Deras utmaningar kan underlättas med hjälp av användningen av modersmålet i undervisningen genom tvåspråkig utbildning, enligt flera källor. Däremot kritiseras användningen av modersmålet med motiveringen att det hämmar utvecklingen av elevernas begreppsförmåga i sitt andraspråk. Mer forskning behövs för att bekräfta modersmålets bidrag i matematik.
Published: 2023

16. Assessment of the transition of care from pediatric to adult rheumatology in a tertiary center

Author: Yıldız, Amra Adrovic, Ugurlu, Serdal; Ayla, Ali Yagiz; Besiroglu, Helin Idil; Azman, Feyza Nur; Egeli, Bugra; Eren, Hatice; Durucan, Ibrahim; Alkan, Arif; Ozturk, Sila; Ergun, Sercan; Barut, Kenan; Haslak, Fatih; Sahin, Sezgin; Yildiz, Mehmet; Ozdogan, Huri; Kasapcopur, Ozgur, Koç University Hospital, Yıldız, Amra Adrovic, Ugurlu, Serdal; Ayla, Ali Yagiz; Besiroglu, Helin Idil; Azman, Feyza Nur; Egeli, Bugra; Eren, Hatice; Durucan, Ibrahim; Alkan, Arif; Ozturk, Sila; Ergun, Sercan; Barut, Kenan; Haslak, Fatih; Sahin, Sezgin; Yildiz, Mehmet; Ozdogan, Huri; Kasapcopur, Ozgur, and Koç University Hospital
Abstract: NA
Published: 2023

17. Diffuse juvenile systemic sclerosis patients show distinct organ involvement and have more severe disease in the largest jSSc cohort of the world. Results from the the juvenile scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Stanevicha, V, Anton, J, Johnson, S, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Stanevicha, V, Anton, J, Johnson, S, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N
Published: 2022

18. Juvenile systemic sclerosis treatment practices in an international cohort and comparison to recent SHARE consensus guidelines

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Anton, J, Sztajnbok, F, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Khubchandani, R, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Lehman, T, Moll, M, Nuruzzaman, F, Patwardhan, A, Smith, V, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Anton, J, Sztajnbok, F, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Khubchandani, R, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Lehman, T, Moll, M, Nuruzzaman, F, Patwardhan, A, Smith, V, and Helmus, N
Published: 2022

19. Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Feldman, B, Anton, J, Katsicas, M, Stanevicha, V, Sztajnbok, F, Appenzeller, S, Avcin, T, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Johnson, S, Khubchandani, R, Nemcova, D, Santos, MJ, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Schonenberg, D, Smith, V, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Feldman, B, Anton, J, Katsicas, M, Stanevicha, V, Sztajnbok, F, Appenzeller, S, Avcin, T, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Johnson, S, Khubchandani, R, Nemcova, D, Santos, MJ, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Schonenberg, D, Smith, V, and Helmus, N
Published: 2022

20. Clinical characteristics of juvenile onset systemic sclerosis patients from the juvenile scleroderma inception cohort compared to adult age juvenile-onset patients from EUSTAR. Are these differences suggesting risk for mortality?

Author: Foeldvari, I, Klotsche, J, Carreira, PE, Kasapcopur, O, Adrovic, A, Torok, K, Airò, P, Iannone, F, Allanore, Y, Balbir-Gurman, A, Schmeiser, T, Sztajnbok, F, Terreri, MT, Stanevicha, V, Anton, J, Feldman, B, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Campochiaro, C, De Vries-Bouwstra, J, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Seskute, G, Truchetet, ME, Veale, D, Hoffmann-Vold, AM, Gabrielli, A, Distler, O, Foeldvari, I, Klotsche, J, Carreira, PE, Kasapcopur, O, Adrovic, A, Torok, K, Airò, P, Iannone, F, Allanore, Y, Balbir-Gurman, A, Schmeiser, T, Sztajnbok, F, Terreri, MT, Stanevicha, V, Anton, J, Feldman, B, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Campochiaro, C, De Vries-Bouwstra, J, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Seskute, G, Truchetet, ME, Veale, D, Hoffmann-Vold, AM, Gabrielli, A, and Distler, O
Published: 2022

21. Underdetection of Interstitial Lung Disease in Juvenile Systemic Sclerosis

Author: Foeldvari, Ivan, Klotsche, Jens, Hinrichs, Bernd, Helmus, Nicola, Kasapcopur, Ozgur, Adrovic, Amra, Sztajnbok, Flavio, Terreri, Maria Teresa, Anton, Jordi, Smith, Vanessa, Katsicas, Maria, Kostik, Mikhail, Vasquez-Canizares, Natalia, Avcin, Tadej, Feldman, Brian, Janarthanan, Mahesh, Santos, Maria Jose, Sawhney, Sujata, Schonenberg-Meinema, Dieneke, Sifuentes-Giraldo, Walter-Alberto, Alexeeva, Ekaterina, Appenzeller, Simone, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Costa-Reis, Patricia, Eleftheriou, Despina, Kallinich, Tilmann, Lehman, Thomas, Marrani, Edoardo, Minden, Kirsten, Nielsen, Susan, Nuruzzaman, Farzana, Patwardhan, Anjali, Khubchandani, Raju, Stanevicha, Valda, Uziel, Yosef, Torok, Kathryn S., Foeldvari, Ivan, Klotsche, Jens, Hinrichs, Bernd, Helmus, Nicola, Kasapcopur, Ozgur, Adrovic, Amra, Sztajnbok, Flavio, Terreri, Maria Teresa, Anton, Jordi, Smith, Vanessa, Katsicas, Maria, Kostik, Mikhail, Vasquez-Canizares, Natalia, Avcin, Tadej, Feldman, Brian, Janarthanan, Mahesh, Santos, Maria Jose, Sawhney, Sujata, Schonenberg-Meinema, Dieneke, Sifuentes-Giraldo, Walter-Alberto, Alexeeva, Ekaterina, Appenzeller, Simone, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Costa-Reis, Patricia, Eleftheriou, Despina, Kallinich, Tilmann, Lehman, Thomas, Marrani, Edoardo, Minden, Kirsten, Nielsen, Susan, Nuruzzaman, Farzana, Patwardhan, Anjali, Khubchandani, Raju, Stanevicha, Valda, Uziel, Yosef, and Torok, Kathryn S.
Abstract: Objective. Utilizing data obtained from a prospective, international, juvenile systemic sclerosis (SSc) cohort, the present study was undertaken to determine if pulmonary screening with forced vital capacity (FVC) and diffusing capacity for carbon monoxide (DLco) is sufficient to assess the presence of interstitial lung disease (ILD) in comparison to high-resolution computed tomography (HRCT) in juvenile SSc. Methods. The juvenile SSc cohort database was queried for patients enrolled from January 2008 to January 2020 with recorded pulmonary function tests (PFTs) parameters and HRCT to determine the discriminatory properties of P FT parameters, FVC, and DLco in detecting ILD. Results. Eighty-six juvenile SSc patients had both computed tomography imaging and FVC values for direct comparison. Using findings on HRCT as the standard measure of ILD presence, the sensitivity of FVC in detecting ILD in juvenile SSc was only 40%, the specificity was 77%, and area under the curve (AUC) was 0.58. Fifty-eight juvenile SSc patients had both CT imaging and DLco values for comparison. The sensitivity of DLco in detecting ILD was 76%, the specificity was 70%, and AUC was 0.73. Conclusion. The performance of PFTs in juvenile SSc to detect underlying ILD was quite limited. Specifically, the FVC, which is one of the main clinical parameters in adult SSc to detect and monitor ILD, would miss -60% of children who had ILD changes on their accompanying HRCT. The DLco was more sensitive in detecting potential abnormalities on HRCT, but with less specificity than the FVC. These results support the use of HRCT in tandem with PFTs for the screening of ILD in juvenile SSc.
Published: 2022
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22. Diffuse juvenile systemic sclerosis patients show distinct organ involvement and have more severe disease in the largest jSSc cohort of the world. Results from the the juvenile scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Stanevicha, V, Anton, J, Johnson, S, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Stanevicha, V, Anton, J, Johnson, S, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N
Published: 2022

23. Differences Sustained Between Diffuse and Limited Forms of Juvenile Systemic Sclerosis in an Expanded International Cohort

Author: Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Terreri, Maria Teresa, Sakamoto, Ana Paula, Stanevicha, Valda, Sztajnbok, Flavio, Anton, Jordi, Feldman, Brian, Alexeeva, Ekaterina, Katsicas, Maria, Smith, Vanessa, Avcin, Tadej, Marrani, Edoardo, Kostik, Mikhail, Lehman, Thomas, Sifuentes-Giraldo, Walter-Alberto, Vasquez-Canizares, Natalia, Appenzeller, Simone, Janarthanan, Mahesh, Moll, Monika, Nemcova, Dana, Patwardhan, Anjali, Santos, Maria Jose, Sawhney, Sujata, Schonenberg-Meinema, Dieneke, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Jurgen, Costa-Reis, Patricia, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Kaiser, Daniela, Kallinich, Tilmann, Lazarevic, Dragana, Minden, Kirsten, Nielsen, Susan, Nuruzzaman, Farzana, Uziel, Yosef, Helmus, Nicola, Torok, Kathryn S., Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Terreri, Maria Teresa, Sakamoto, Ana Paula, Stanevicha, Valda, Sztajnbok, Flavio, Anton, Jordi, Feldman, Brian, Alexeeva, Ekaterina, Katsicas, Maria, Smith, Vanessa, Avcin, Tadej, Marrani, Edoardo, Kostik, Mikhail, Lehman, Thomas, Sifuentes-Giraldo, Walter-Alberto, Vasquez-Canizares, Natalia, Appenzeller, Simone, Janarthanan, Mahesh, Moll, Monika, Nemcova, Dana, Patwardhan, Anjali, Santos, Maria Jose, Sawhney, Sujata, Schonenberg-Meinema, Dieneke, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Jurgen, Costa-Reis, Patricia, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Kaiser, Daniela, Kallinich, Tilmann, Lazarevic, Dragana, Minden, Kirsten, Nielsen, Susan, Nuruzzaman, Farzana, Uziel, Yosef, Helmus, Nicola, and Torok, Kathryn S.
Abstract: Objective To evaluate the baseline clinical characteristics of juvenile systemic sclerosis (SSc) patients in the international juvenile SSc inception cohort, and to compare these characteristics between the classically defined juvenile diffuse cutaneous SSc (dcSSc) and limited cutaneous SSc (lcSSc) subtypes and among those with overlap features. Methods A cross-sectional study was performed using baseline visit data. Information on demographic characteristics, organ system evaluation, treatment, and patient- and physician-reported outcomes was extracted and summary statistics applied. Comparisons between juvenile dcSSc and lcSSc subtypes and patients with and without overlap features were performed using chi-square and Mann-Whitney U tests. Results At data extraction, 150 juvenile SSc patients were enrolled across 42 centers; 83% were White, 80% were female, juvenile dcSSc predominated (72%), and 17% of the cohort had overlap features. Significant differences were found between juvenile dcSSc and juvenile lcSSc regarding modified Rodnan skin thickness score, the presence of Gottron's papules, digital tip ulceration, results of the 6-minute walk test, and composite pulmonary and cardiac involvement. All of these were more frequent in dcSSc except for cardiac involvement. Juvenile dcSSc patients had significantly worse scores for physician-rated disease activity and damage. A significantly higher occurrence of Gottron's papules and musculoskeletal and composite pulmonary involvement, and a significantly lower frequency of Raynaud's phenomenon, were seen in those with overlap features. Conclusion Results from a large international juvenile SSc cohort demonstrate significant differences between juvenile dcSSc and juvenile lcSSc patients, including more globally severe disease and increased frequency of interstitial lung disease in juvenile dcSSc patients, while those with lcSSc have more frequent cardiac involvement. Those with overlap features had an unexpected higher
Published: 2022
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24. Juvenile systemic sclerosis treatment practices in an international cohort and comparison to recent SHARE consensus guidelines

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Anton, J, Sztajnbok, F, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Khubchandani, R, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Lehman, T, Moll, M, Nuruzzaman, F, Patwardhan, A, Smith, V, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Anton, J, Sztajnbok, F, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Khubchandani, R, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Lehman, T, Moll, M, Nuruzzaman, F, Patwardhan, A, Smith, V, and Helmus, N
Published: 2022

25. Clinical characteristics of juvenile onset systemic sclerosis patients from the juvenile scleroderma inception cohort compared to adult age juvenile-onset patients from EUSTAR. Are these differences suggesting risk for mortality?

Author: Foeldvari, I, Klotsche, J, Carreira, PE, Kasapcopur, O, Adrovic, A, Torok, K, Airò, P, Iannone, F, Allanore, Y, Balbir-Gurman, A, Schmeiser, T, Sztajnbok, F, Terreri, MT, Stanevicha, V, Anton, J, Feldman, B, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Campochiaro, C, De Vries-Bouwstra, J, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Seskute, G, Truchetet, ME, Veale, D, Hoffmann-Vold, AM, Gabrielli, A, Distler, O, Foeldvari, I, Klotsche, J, Carreira, PE, Kasapcopur, O, Adrovic, A, Torok, K, Airò, P, Iannone, F, Allanore, Y, Balbir-Gurman, A, Schmeiser, T, Sztajnbok, F, Terreri, MT, Stanevicha, V, Anton, J, Feldman, B, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Campochiaro, C, De Vries-Bouwstra, J, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Seskute, G, Truchetet, ME, Veale, D, Hoffmann-Vold, AM, Gabrielli, A, and Distler, O
Published: 2022

26. Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Feldman, B, Anton, J, Katsicas, M, Stanevicha, V, Sztajnbok, F, Appenzeller, S, Avcin, T, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Johnson, S, Khubchandani, R, Nemcova, D, Santos, MJ, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Schonenberg, D, Smith, V, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Feldman, B, Anton, J, Katsicas, M, Stanevicha, V, Sztajnbok, F, Appenzeller, S, Avcin, T, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Johnson, S, Khubchandani, R, Nemcova, D, Santos, MJ, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Schonenberg, D, Smith, V, and Helmus, N
Published: 2022

27. Juvenile systemic sclerosis (jSSc) patients with overlap characteristics do not have mild disease.Results from thejSSc inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, and Helmus, N
Published: 2021

28. Patients with juvenile systemic sclerosis have a distinct pattern of organ involvement. Results from thejuvenile systemic sclerosis inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, and Helmus, N
Published: 2021

29. Juvenile systemic sclerosis (jSSc) patients with overlap characteristics do not have mild disease.Results from thejSSc inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, and Helmus, N
Published: 2021

30. Patients with juvenile systemic sclerosis have a distinct pattern of organ involvement. Results from thejuvenile systemic sclerosis inception cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, and Helmus, N
Published: 2021

31. Is there a difference in presentation of female and male patients with juvenile systemic scleroderma?

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Sakamoto, AP, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Nassar, A, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Sakamoto, AP, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Nassar, A, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, and Helmus, N
Published: 2019

32. Update from the juvenile scleroderma Inception Cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Terreri, MT, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Terreri, MT, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, and Helmus, N
Published: 2019

33. After 24 months observation period patient reported outcomes improved significantly in the juvenile Scleroderma Inceptions Cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Anton, J, Avcin, T, Cimaz, R, Kostik, M, Katsicas, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Kallinich, T, Minden, K, Moll, M, Patwardhan, A, Torok, K, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Anton, J, Avcin, T, Cimaz, R, Kostik, M, Katsicas, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Kallinich, T, Minden, K, Moll, M, Patwardhan, A, Torok, K, and Helmus, N
Published: 2019

34. Is there a difference in presentation of female and male patients with juvenile systemic scleroderma?

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Sakamoto, AP, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Nassar, A, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Sakamoto, AP, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Nassar, A, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, and Helmus, N
Published: 2019

35. Do Raynaud phenomenon negative juvenile systemic scleroderma patients have a different pattern of organ involvement as Raynaud phenomenon positive patients?

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Stevens, A, Pilkington, C, and Helmus, N
Published: 2019

36. Update from the juvenile scleroderma Inception Cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Terreri, MT, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Terreri, MT, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, and Helmus, N
Published: 2019

37. After 24 months observation period patient reported outcomes improved significantly in the juvenile Scleroderma Inceptions Cohort

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Anton, J, Avcin, T, Cimaz, R, Kostik, M, Katsicas, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Kallinich, T, Minden, K, Moll, M, Patwardhan, A, Torok, K, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Anton, J, Avcin, T, Cimaz, R, Kostik, M, Katsicas, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Kallinich, T, Minden, K, Moll, M, Patwardhan, A, Torok, K, and Helmus, N
Published: 2019

38. Do Raynaud phenomenon negative juvenile systemic scleroderma patients have a different pattern of organ involvement as Raynaud phenomenon positive patients?

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Stevens, A, Pilkington, C, and Helmus, N
Published: 2019

39. Update from the Juvenile Scleroderma Inception Cohort

Author: Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Torok, Kathryn S., Stanevicha, Valda, Sztajnbok, Flavio, Terreri, Maria Teresa, Alexeeva, Ekaterina, Anton, Jordi, Katsicas, Maria M., Smith, Vanessa, Avcin, Tadey, Cimaz, Rolando, Kostik, Mikhail, Lehman, Thomas J. A., Sifuentes-Giraldo, Walter A., Appenzeller, Simone, Janarthanan, Mahesh, Nemkova, Dana, Santos, Maria Jose, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Juergen, Reis, Patricia Costa, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Kallinich, Tilmann, Lazarevic, Dragana, Minden, Kirsten, Nielsen, Susan Mary, Uziel, Yosef, Helmus, Nicola, Foeldvari, Ivan, Klotsche, Jens, Kasapcopur, Ozgur, Adrovic, Amra, Torok, Kathryn S., Stanevicha, Valda, Sztajnbok, Flavio, Terreri, Maria Teresa, Alexeeva, Ekaterina, Anton, Jordi, Katsicas, Maria M., Smith, Vanessa, Avcin, Tadey, Cimaz, Rolando, Kostik, Mikhail, Lehman, Thomas J. A., Sifuentes-Giraldo, Walter A., Appenzeller, Simone, Janarthanan, Mahesh, Nemkova, Dana, Santos, Maria Jose, Battagliotti, Cristina, Berntson, Lillemor, Bica, Blanca, Brunner, Juergen, Reis, Patricia Costa, Eleftheriou, Despina, Harel, Liora, Horneff, Gerd, Kallinich, Tilmann, Lazarevic, Dragana, Minden, Kirsten, Nielsen, Susan Mary, Uziel, Yosef, and Helmus, Nicola
Published: 2018

40. Livet med en påse på magen : Upplevelser av att leva med en tarmstomi

Author: Adrovic, Ninella, Fasth Nilsson, My, Adrovic, Ninella, and Fasth Nilsson, My
Abstract: Under 2015 uppskattades det finnas 43 000 individer med stomi i Sverige och denna siffra har sedan 2006 ökat successivt i hela landet. Stomin inverkar på individens sociala och intima liv och påverkar vardagliga aktiviteter och dagliga rutiner. Litteraturstudiens syfte är att beskriva upplevelser av att leva med en tarmstomi. Resultatet presenteras utifrån tre teman: upplevelser av stöd och information, upplevelser av att vara annorlunda och upplevelser av en ny livssituation. Nio underteman bildades utifrån dessa rubriker. Resultatet visar att tarmstomi innebär en stor förändring som påverkar individernas liv på olika sätt. Det konstateras att tarmstomi har en negativ inverkan i de flesta fall. Familj, närstående och sjuksköterskor har en betydelsefull roll för att individerna ska uppnå hälsa och välbefinnande.
Published: 2018

41. Livet med en påse på magen : Upplevelser av att leva med en tarmstomi

Author: Adrovic, Ninella, Fasth Nilsson, My, Adrovic, Ninella, and Fasth Nilsson, My
Abstract: Under 2015 uppskattades det finnas 43 000 individer med stomi i Sverige och denna siffra har sedan 2006 ökat successivt i hela landet. Stomin inverkar på individens sociala och intima liv och påverkar vardagliga aktiviteter och dagliga rutiner. Litteraturstudiens syfte är att beskriva upplevelser av att leva med en tarmstomi. Resultatet presenteras utifrån tre teman: upplevelser av stöd och information, upplevelser av att vara annorlunda och upplevelser av en ny livssituation. Nio underteman bildades utifrån dessa rubriker. Resultatet visar att tarmstomi innebär en stor förändring som påverkar individernas liv på olika sätt. Det konstateras att tarmstomi har en negativ inverkan i de flesta fall. Familj, närstående och sjuksköterskor har en betydelsefull roll för att individerna ska uppnå hälsa och välbefinnande.
Published: 2018

42. Update on the juvenile systemic Sclerosis Inception Cohort Project. Characteristics of the first 97 Patients at first Assessment. www.juvenile-scleroderma.com

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Torok, K, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Pilkington, C, Stevens, A, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Torok, K, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Pilkington, C, Stevens, A, and Helmus, N
Published: 2017

43. Is there a Difference in the clinical Presentation of juvenile Systemic Scleroderma Patients according the Age of onset: Results from the juvenile Scleroderma Inception Cohort www.juvenile-scleroderma.com

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, and Helmus, N
Published: 2017

44. Is there a Difference in the Presentation of male and female Patients with diffuse subtype of juvenile systemic Sclerosis? Results from the juvenile Scleroderma Inception Cohort www.juvenile-scleroderma.com

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, and Helmus, N
Published: 2017

45. Is there a Difference in the clinical Presentation of juvenile Systemic Scleroderma Patients according the Age of onset: Results from the juvenile Scleroderma Inception Cohort www.juvenile-scleroderma.com

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, and Helmus, N
Published: 2017

46. Is there a Difference in the Presentation of male and female Patients with diffuse subtype of juvenile systemic Sclerosis? Results from the juvenile Scleroderma Inception Cohort www.juvenile-scleroderma.com

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, and Helmus, N
Published: 2017

47. Update on the juvenile systemic Sclerosis Inception Cohort Project. Characteristics of the first 97 Patients at first Assessment. www.juvenile-scleroderma.com

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Torok, K, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Pilkington, C, Stevens, A, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Torok, K, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Pilkington, C, Stevens, A, and Helmus, N
Published: 2017

48. Is there a difference in the presentation of male and female patients with juvenile systemic sclerosis? Results from the juvenile scleroderma inception cohort (www.juvenilescleroderma.com)

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, and Helmus, N
Published: 2016

49. Trustication costs- En studie av förtroende och efterlevnad i en franchisekedja

Author: Adrovic, Leila, Carlsson, Daniel, Jonsson, Johanna, Leire, Jens, Adrovic, Leila, Carlsson, Daniel, Jonsson, Johanna, and Leire, Jens
Abstract: Syfte: Studien syftar till att genom empiriskt underlag från franchiserelationer bidra med ytterligare information angående hur en agents förtroende för en principal påverkar en agents opportunistiska beteende, och i förlängningen huruvida en agents förtroende för en principal är en faktor som bör beaktas i transaktionskostnadsteorin. Metod: Studien genomfördes med kvalitativ metod där en induktiv ansats användes. Studien designades som en flerfallsstudie där semi-strukturerade intervjuer genomfördes och sedan användes som empiriskt underlag för analysen. Teoretiska perspektiv: Studiens teoretiska avstamp gjordes i transaktionskostnadsteorin och teoretiska bidrag som gjorts gällande hur förtroende påverkar opportunistiskt beteende. Empiri: Empirin har samlats in genom åtta semi-strukturerade intervjuer med franchisetagare från samma franchisekedja inom restaurangbranschen. Empirin är uppdelad utifrån välviljeförtroende, kompetensförtroende och grad av efterlevnad. Resultat: Resultatet indikerar att förtroende är en faktor som påverkar graden av efterlevnad, där de med högt förtroende även tenderar att ha en hög grad av efterlevnad och vise versa. Ett högt förtroende bör således minska franchisetagarens opportunistiska beteende i form av högre grad av efterlevnad, och därför även minska transaktionskostnaderna., Purpose: The study aims at, on an empirical basis of franchise relationships, to provide further details on how the agent's trust in the principal affects the agent's opportunistic behavior, and ultimately whether the agent's trust in the principal is a factor to be considered in the transaction cost theory. Methodology: The study is a qualitative research where an inductive approach has been used. Furthermore, it is a multi-case study where interviews were conducted and then used as the empirical basis, analyzed, leading to the result of the study. Theoretical perspectives: This study is based on the transaction cost theory and other theoretical contributions made concerning trust and its influence on opportunistic behavior. Empirical foundation: The empirical data has been gathered through semi-structured interviews with eight franchisees from the same franchise in the restaurant industry. The data is divided into sections of goodwill trust, competence trust, and the grade of compliance. Conclusions: The result indicates that trust is a factor influencing compliance, where those with high level of trust also tend to have a high level of compliance, and vice versa. High trust should therefore reduce the franchisee's opportunistic behavior in the shape of a higher grade of compliance and therefore also reduce transaction costs.
Published: 2016

50. Update on the juvenile systemic sclerosis inception cohort project (www.juvenilescleroderma.com). Characteristics of the first 74 patients at first assessment

Author: Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, and Helmus, N
Published: 2016

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