1. A standardized clinical database for research in Chagas disease: The NHEPACHA network.
- Author
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González Martínez A, Losada-Galván I, Gabaldón-Figueira JC, Martínez-Peinado N, Saraiva RM, Fernández ML, Ramsey JM, Noya-González O, Alarcón de Noya B, Schijman AG, Berón S, Abril M, Gascón J, Sosa-Estani S, Pinazo MJ, Alonso-Padilla J, and Hasslocher-Moreno AM
- Subjects
- Humans, Latin America epidemiology, Surveys and Questionnaires, Spain epidemiology, Databases, Factual, Biomedical Research standards, Chagas Disease epidemiology, Chagas Disease drug therapy
- Abstract
The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather relevant data on epidemiological, clinical, diagnostic, and therapeutic aspects of the disease. This questionnaire was developed based on a consensus of expert members of the network, with the intention of collecting high-quality standardized data, which can be used interchangeably by the different research centers that make up the NHEPACHA network. Furthermore, the network intends to offer a clinical protocol that can be embraced by other researchers, facilitating comparability among published studies, as well as the development of therapeutic response and progression markers., Competing Interests: The authors have declared that no competing interests exist., (Copyright: © 2024 González Martínez et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
- Published
- 2024
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