1. Living with Sickle Cell Disease.
- Author
-
SCOTT, ROXANNE
- Subjects
MEDICAL personnel ,SICKLE cell trait ,SICKLE cell anemia ,SOCIAL workers ,MEDICAL care ,FETAL hemoglobin - Abstract
This article from Scientific American discusses the experiences of individuals living with sickle cell disease. It highlights the improvements in life expectancy for people with the disease due to increased screening and medical advancements. However, it also addresses the persistent challenges faced by these patients, including racism, stigma, and barriers to accessing medical care. The article includes personal accounts from individuals with sickle cell disease, describing the intense pain they experience during crises and the difficulties they encounter when seeking treatment. The article also mentions the potential of gene therapy as a treatment option, but acknowledges the need to address trust issues within the medical system. Overall, the article provides insights into the lived experiences of individuals with sickle cell disease and the ongoing challenges they face. [Extracted from the article]
- Published
- 2024
- Full Text
- View/download PDF