23 results
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2. Participation, Roles and Processes in a Collaborative Action Research Project: A Reflexive Account of the Facilitator
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Avgitidou, Sofia
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This paper analyses and discusses the roles and participation of those involved in a collaborative action research project to highlight the factors that influenced their content, quality and intensity. Emphasis is given to the reflections of the facilitator (author) on the processes employed to achieve equal participation and roles in the action research. Meetings and interviews with teachers are content-analysed to provide descriptions of the timing, content and type of interactions among the members of the collaborative action research. Factors shown to influence the roles, participation and employed processes of interaction among the participants of collaborative action research include the time needed to develop shared understandings and collect adequate information; shared knowledge in order to challenge each other's ideas and interpretations; the flexible role of the facilitator; the avoidance of lead teachers' actions; and the trusting relationship among the participants in action research. (Contains 2 tables and 3 notes.)
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- 2009
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3. Methodological Reflections on Using the Early Childhood Environment Rating Scale as a Measure To Make Cross-National Evaluations of Quality.
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Calder, Pamela
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Studied usefulness of Early Childhood Environment Rating Scale (ECERS) for cross-national comparisons of nursery school quality. Found that ratings can be made in two hours, and can provide comparisons on several important criteria, but because the scale is empirically, rather than theoretically based, its use can obscure cultural differences in values which underlie different countries' care systems. (KDFB)
- Published
- 1996
4. A psychometric systematic review of self-report instruments to identify anxiety in pregnancy.
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Evans, Kerry, Spiby, Helen, and Morrell, C. Jane
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CINAHL database ,INFORMATION storage & retrieval systems ,MEDICAL databases ,MEDICAL information storage & retrieval systems ,PSYCHOLOGY information storage & retrieval systems ,LONGITUDINAL method ,RESEARCH methodology ,EVALUATION of medical care ,MEDLINE ,PRENATAL care ,PSYCHOLOGICAL tests ,PSYCHOMETRICS ,QUESTIONNAIRES ,RESEARCH evaluation ,RESEARCH funding ,SELF-evaluation ,SYSTEMATIC reviews ,ANXIETY disorders ,CROSS-sectional method ,PREGNANCY ,DIAGNOSIS - Abstract
Aims To report a systematic review of the psychometric properties of self-report instruments to identify the symptoms of anxiety in pregnancy to help clinicians and researchers select the most suitable instrument. Background Excessive anxiety in pregnancy is associated with adverse birth outcomes, developmental and behavioural problems in infants and postnatal depression. Despite recommendations for routine psychological assessment in pregnancy, the optimal methods to identify anxiety in pregnancy have not been confirmed. Design Psychometric systematic review. Data sources A systematic literature search of the multiple databases (1990-September 2014). Review methods Identification of self-report instruments to measure anxiety in pregnancy using COSMIN guidelines to assess studies reporting a psychometric evaluation of validity and reliability. Results Thirty-two studies were included. Studies took place in the UK, Australia, Belgium, Canada, Germany, Italy, Scandinavia, Spain and the Netherlands. Seventeen different instruments were identified. Measures of validity were reported in 19 papers and reliability in 16. The overall quality of the papers was rated as fair to excellent using the COSMIN checklist. Only one paper scored excellent in more than one category. Conclusion Many instruments have been adapted for use in different populations to those for which they were designed. The State Trait Anxiety Inventory, Edinburgh Postnatal Depression Scale and the Hospital Anxiety and Depression Scale have been tested more frequently than other instruments, yet require further assessment to confirm their value for use in pregnancy. [ABSTRACT FROM AUTHOR]
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- 2015
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5. Working to improve the management of sarcoma patients across Europe: a policy checklist.
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Kasper, Bernd, Lecointe-Artzner, Estelle, Wait, Suzanne, Boldon, Shannon, Wilson, Roger, Gronchi, Alessandro, Valverde, Claudia, Eriksson, Mikael, Dumont, Sarah, Drove, Nora, Kanli, Athanasia, and Wartenberg, Markus
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SARCOMA ,CANCER treatment ,HEALTH policy ,MEDICAL quality control ,CLINICAL trials ,MEDICAL specialties & specialists ,MEDICAL care laws ,MEDICAL care standards ,COMPARATIVE studies ,RESEARCH methodology ,MEDICAL cooperation ,RESEARCH ,EVALUATION research - Abstract
Background: The Sarcoma Policy Checklist was created by a multidisciplinary expert group to provide policymakers with priority areas to improve care for sarcoma patients.Main Body: This paper draws on this research, by looking more closely at how France, Germany, Italy, Spain, Sweden and the United Kingdom are addressing each of these priority areas. It aims to highlight key gaps in research, policy and practice, as well as ongoing initiatives that may impact the future care of sarcoma patients in different European countries. A pragmatic review of the published and web-based literature was undertaken. Telephone interviews were conducted in each country with clinical and patient experts to substantiate findings. Research findings were discussed within the expert group and developed into five core policy recommendations. The five identified priority areas were: the development of designated and accredited centres of reference; more professional training; multidisciplinary care; greater incentives for research and innovation; and more rapid access to effective treatments. Most of the countries studied have ongoing initiatives addressing many of these priorities; however, many are in early stages of development, or require additional funding and resources.Conclusion: Gaps in access to quality care are particularly concerning in many of Europe's lower-resourced countries. Equitable access to information, clinical trials, innovative treatments and quality specialist care should be available to all sarcoma patients. Achieving this across Europe will require close collaboration between all stakeholders at both the national and European level. [ABSTRACT FROM AUTHOR]- Published
- 2018
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6. Rights through Alliances: Findings from a European Project Tackling Homophobic and Transphobic Bullying in Schools through the Engagement of Families and Young People.
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Hafford-Letchfield, Trish, Cocker, Christine, Ryan, Peter, and Melonowska, Justyna
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BULLYING ,DISCOURSE analysis ,ELEMENTARY schools ,GENDER identity ,HETEROSEXUALS ,HIGH schools ,HOMOPHOBIA ,HUMAN rights ,INTERVIEWING ,RESEARCH methodology ,PARENTS ,STATISTICAL sampling ,HUMAN sexuality ,SOCIAL case work ,TEACHERS ,HOMOPHOBIA in children ,QUALITATIVE research ,LGBTQ+ people ,NARRATIVES ,THEMATIC analysis - Abstract
This paper draws on findings from a European project, 'Rights through Alliances: Innovating and Networking Both Within Homes And Schools' (RAINBOW-HAS), conducted in 2013-15. It built collaboration between six EU countries to analyse and improve the rights of children and youth regarding sexual orientation and gender identity in educational settings. The main focus of discussion derives from a secondary discourse analysis following thematic analyses of the qualitative interviews undertaken with a range of different families, schools and community associations across these European countries, which provide a snapshot of contemporary practice. We discuss the relative silence of social work in challenging homophobic and transphobic bullying, given their potential in promoting family and young people's engagement. [ABSTRACT FROM AUTHOR]
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- 2016
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7. Therapeutic index for local infections score (TILI): a new diagnostic tool.
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Dissemond, Joachim and Gerber, Veronika
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ALLIED health personnel ,BACTERICIDES ,PREVENTION of communicable diseases ,CONSENSUS (Social sciences) ,DERMATOLOGISTS ,EXPERIMENTAL design ,HEALTH care teams ,RESEARCH methodology ,SURGEONS ,SURGICAL site infections ,WOUND healing ,WOUND infections ,WOUND care ,DECISION making in clinical medicine ,EARLY diagnosis ,SYMPTOMS - Abstract
Objective: Local wound infections are a major challenge for patients and health professionals. Various diagnostic and therapeutic options are available. However, a generally accepted standard is still lacking in Europe. The aim was to develop an easy-to-use clinical score for the early detection of local wound infections, as a basis for decisionmaking on antiseptic therapy or decolonisation. Method: An interdisciplinary and interprofessional panel of experts from seven European countries was brought together to discuss the various aspects of diagnosing local wound infections. Results: The result was the adoption of the Therapeutic Index for Local Infections (TILI) score, developed in Germany by Initiative Chronische Wunden e.V., specifically for health professionals not specialised in wound care. Available in six European languages, the TILI score could also be adapted for different European countries, depending on their specific national healthcare requirements. The six clinical criteria for local wound infection are erythema to surrounding skin; heat; oedema, induration or swelling; spontaneous pain or pressure pain; stalled wound healing; and increase and/or change in colour or smell of exudate. Meeting all criteria indicates that antiseptic wound therapy could be started. Regardless of these unspecific clinical signs, there are also health conditions for the clinical situation which are a direct indication for antimicrobial wound therapy. These include the presence of wound pathogens, such as meticillin-resistant Staphylococcus aureus, septic surgical wound or the presence of free pus. Conclusion: The development of the new internationally adapted TILI score, which could also be used by any caregiver in daily practice to diagnose local infections in acute and hard-to-heal wounds, is the result of expert consensus. However, the score system has to be validated through a clinical evaluation. This is to be performed in expert centres throughout Europe. Declaration of interest: JD has received research support, lecture fees and travel-cost reimbursements from 4M, Coloplast, Convatec, Draco, Engelhardt, Paul Hartmann, KCI, Lohmann&Rauscher, Mölnlycke, SastoMed and Urgo. RL has received research support, lecture fees and travel-cost reimbursements from Mölnlycke and Urgo. AK has received research support, lecture fees and travel-cost reimbursements from 3M, B. Braun Melsungen, Bode/Paul Hartmann, Ethicon, Lohmann&Rauscher, Mundipharma, Oculus, SastoMed Schülke&Mayr, SERAG-WIESSNER and Urgo. JVS has received research support, lecture fees and travel-cost reimbursements from Mundipharma, Histocell, Quesper and Urgo. This work was supported by an unlimited grant from Urgo Medical. The views expressed are those of the authors and do not necessarily reflect those of Urgo Medical. The company had no direct influence on the content of this paper. [ABSTRACT FROM AUTHOR]
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- 2020
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8. The Development and Validation of an Intercultural Nursing Educator Profile Using the Delphi Method.
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Gradellini, Cinzia, Pretorius, Marilize, Vermeiren, Sofie, Schärli-Lim, Susan, Bønløkke, Mette, and Lorenzo, Elena de
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NURSING education ,MEDICAL quality control ,EVALUATION of human services programs ,NURSING ,HEALTH services accessibility ,NURSES' attitudes ,NURSE educators ,RESEARCH methodology ,TRANSCULTURAL nursing ,HUMAN services programs ,CULTURAL competence ,SCALE analysis (Psychology) ,QUESTIONNAIRES ,RESEARCH funding ,NURSING ethics ,DELPHI method ,EDUCATIONAL outcomes - Abstract
Introduction: Educators require focused training to foster the development of intercultural competence in nurses. Training programs for educators need to be based on a comprehensive profile with a focus on intercultural learning. This study aims to define and validate a profile of the Intercultural Nursing Educator (INE). Method: The Delphi method was used with an iterative, multi-stage process to transform opinions into group consensus. A total of 46 European, African, and American experts from the nursing and intercultural field participated. Inclusion criteria required English at a level of B2, expertise in the field of intercultural competence, experience in teaching intercultural competence in the nursing context, and publications focused on intercultural topics. Results: The INE profile was developed and all 126 competencies were validated. Discussion and conclusion: The profile is freely available on the project website and provides the basis for curricula, training programs and assessment of the required competences. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Service robots in elderly care at home: Users' needs and perceptions as a basis for concept development.
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Pigini, Lucia, Facal, David, Blasi, Lorenzo, and Andrich, Renzo
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FOCUS groups ,FRAIL elderly ,RESEARCH methodology ,NEEDS assessment ,QUALITY of life ,QUESTIONNAIRES ,ROBOTICS ,SCALE analysis (Psychology) ,SURVEYS ,PRODUCT design ,ACTIVITIES of daily living ,ASSISTIVE technology ,INDEPENDENT living ,DATA analysis software - Abstract
Background: Service robots may offer an innovative assistive solution to improve the quality of life of frail elderly people, by assisting them in specific situations identified as relevant to maintain independence. Objective: This paper describes the results of a qualitative and quantitative research based on a user-centered methodology carried out within the EU-funded project "Multi-Role Shadow Robotic System for Independent Living" (SRS), aiming to generate user requirements and realistic usage scenarios maximizing the alignment with users' needs, perceptions, feelings and rights. Methods: A qualitative and quantitative research - based on focus groups (59 participants) and questionnaires (129 respondents) - was carried out in three countries: Italy, Spain and Germany. The survey involved prospective end-users (elderly people and family members who care for them), caregivers, and geriatric experts. Results: Results show that despite elderly people encounter difficulties in many activities of daily life, a semi-autonomous remotely-controlled and self-learning service robot has been judged an interesting solution only in some circumstances. Monitoring and managing emergency situations, helping with reaching, fetching and carrying objects that are too heavy or positioned in unreachable places: these are tasks for which robotic support has been widely accepted, while tasks involving direct physical contact between the person and the robot are not appreciated instead. Relatives of the elderly could act as remote operators; however, family psychological burden and time restrictions should be considered too. Conclusions: A tele-operated robotic system may be of help for frail elderly people. In certain cases this solution may be effective only in conjunction with a 24-hour professional Service Centre able to manage tele-operation when relatives are not available. This survey adds further tokens of knowledge to previous literature studies on this subject; it compares the potential users' and the professionals' views; it helps identifying potentially successful applications of tele-operated robots in the care of elderly people living at home. The results obtained by the present study, generated specific requirements and the first versions of concrete usage scenarios, enabling designers and technologists to start with a first development phase of the SRS concept. [ABSTRACT FROM AUTHOR]
- Published
- 2012
10. 'Football and dancing are in our blood': culture promoting sports practice among immigrants in Europe.
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Monserrate-Gómez, Sílvia, Rubio-Rico, Lourdes, Cuesta-Martínez, Roser, Raventós-Torner, Rosa-Dolors, Roca-Biosca, Alba, and Molina-Fernández, Inmaculada de
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SOCCER ,SAMBAS ,IMMIGRANTS ,QUALITATIVE research ,RESEARCH funding ,FOCUS groups ,CULTURE ,DESCRIPTIVE statistics ,SPORTS participation ,THEMATIC analysis ,SOCIAL integration ,DANCE ,RESEARCH methodology ,DATA analysis software ,PHYSICAL activity - Abstract
The current state of knowledge indicates that regular sports practice helps prevent and treat non-communicable diseases. The promotion of sport is, therefore, an important community health intervention for maintaining and improving the health of individuals and populations. Culture is identified as being associated with sports practice and sedentary behaviour of ethnic and national minorities. This study aims qualitatively to analyse the potential for culture as a basis for the promotion of sport among immigrants in four regions of Mediterranean Europe. Ten focus groups (n = 62) were conducted with immigrants—adults and young people over the age of 11—and people involved in promoting sport. Thematic content analysis was conducted. The results enabled identifying two major issues: sport as a vehicle for cultural expression and synergies between sport and culture. Accordingly, sport serves to express global, local and non-ethno-national cultural belonging. Regarding synergies, culture and sport feed each other positively and contribute to immigrants' health and cultural well-being. Culture as a strategy for promoting sports practice requires an interdisciplinary approach that involves collaboration between healthcare practitioners and social sciences professionals. There is also a need to use the various axes of cultural definition—global, local and non-ethno-national—of those involved, and for them to take part themselves in designing sports activities. Moreover, promoting sport through non-ethno-national axes of cultural definition may help with immigrants' social inclusion, as intercultural relations between migrants and newcomers are promoted. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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11. Is rare cancer care organized at national health system level? Multiple case study in six EU countries.
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Prades, Joan, Trama, Annalisa, Casali, Paolo G, Emile, Jean-Francois, Gaspar, Nathalie, Janavicius, Ramunas, Jančiauskienė, Rasa, Karjalainen, Sakari, Kopeckova, Katerina, Pylkkänen, Liisa, Svoboda, Marek, and Borras, Josep M
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MEDICAL quality control ,HEALTH services accessibility ,RESEARCH methodology ,INTERVIEWING ,NATIONAL health services ,THEMATIC analysis ,RARE diseases ,CANCER patient medical care ,HEALTH planning ,SARCOMA - Abstract
Background As a system of European Reference Networks (ERNs) emerges, the differences in quality of care for patients with rare cancers may increase at national level. We aimed to elucidate the processes and healthcare planning principles through which the reference centres (RCs) for rare cancers are embedded in national health systems. Methods We used a multiple case-study design based on the experiences of Czechia, Finland, France, Italy, Lithuania and Spain. Using sarcoma as an example of rare cancer, 52 semi-structured interviews were conducted during on-site visits, including a multidisciplinary group of professionals, Ministry of Health professionals, patient representatives and European policymakers. Results The comparative analysis showed substantial heterogeneity in the processes for formalizing RCs' status and in their levels of integration in the different health systems, but two models (centre-based and the network-based) can be envisaged at national level. RCs for rare cancers were legally established only in France and Spain. Expert clinicians cooperate in a structured way, using network mechanisms, in France and Italy, and these countries, plus Finland and Lithuania, had a referral system to facilitate patients' access from non-expert centres to RCs. Seven key healthcare planning principles in instituting RCs at the national level were identified. Conclusions The conditions governing patient access to treatment centres—whether RCs or not—are decided at the national level. It is advisable to progressively align the European and national levels so that the RCs that participate in the ERNs also play a significant role at the national level. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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12. Alcohol use disorders in Europe: A comparison of general population and primary health care prevalence rates.
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Manthey, Jakob, Gual, Antoni, Jakubczyk, Andrzej, Pieper, Lars, Probst, Charlotte, Struzzo, Pierluigi, Trapencieris, Marcis, Wojnar, Marcin, and Rehm, Jürgen
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ALCOHOLISM treatment ,ALCOHOLISM ,CHI-squared test ,CONFIDENCE intervals ,HELP-seeking behavior ,INTERVIEWING ,RESEARCH methodology ,PRIMARY health care ,QUESTIONNAIRES ,RESEARCH funding ,DISEASE prevalence ,ODDS ratio - Abstract
Aims. Alcohol use disorders (AUDs) are prevalent in Europe but occurrence in primary care and the proportion of treated cases are understudied. This study reports prevalence of AUDs and their treatment in European primary health care settings and compares them with general population estimates.Procedure. We sampled 358 general practitioners (GPs, refusal rate: 56.4%) across six European countries (Germany, Hungary, Italy, Latvia, Poland, and Spain) who assessed 13,003 patients including providing AUD diagnoses. A subsample of 8,476 patients (refusal rate: 17.8%) was interviewed subsequently, assessing DSM-IV AUD diagnoses via the Composite International Diagnostic Interview. Final AUD diagnoses combined GP and patient interview information.Findings. Past year AUDs were prevalent with 11.8% (95% CI: 11.2–12.5%) across all regions, which is 1.6 times the European general population AUD estimate. Of those diagnosed with AUDs, 17.7% (95% CI: 15.4–20.0%) received professional help. Compared to general population estimates, AUDs and their treatment were more prevalent in primary care settings in most countries, with disproportionally high AUD rates in Italy and Spain and unexpectedly low AUD rates in Hungary.Conclusions. We found higher prevalence and treatment rates of AUDs in primary health care compared to general population surveys, with large variability between the observed countries. [ABSTRACT FROM AUTHOR]
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- 2016
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13. Needs and problems related to sociodemographic factors of informal caregiving of people with heart failure: A mixed methods study in three European countries.
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Durante, Angela, Cuoco, Angela, Boyne, Josiane, Brawner, Bridgette, Juarez‐Vela, Raul, Stasi, Serenella, Younas, Ahtisham, and Vellone, Ercole
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HEART failure treatment ,RESEARCH ,CAREGIVER attitudes ,SERVICES for caregivers ,RESEARCH methodology ,PSYCHOLOGY of cardiac patients ,INTERVIEWING ,HEALTH status indicators ,UNCERTAINTY ,MEDICAL personnel ,COMMUNITY support ,SPOUSES ,SOCIAL isolation ,PATIENTS' families ,ATTITUDES toward illness ,PSYCHOLOGY of caregivers ,SOUND recordings ,DESCRIPTIVE statistics ,LONELINESS ,MENTAL depression ,RESEARCH funding ,NEEDS assessment ,SOCIODEMOGRAPHIC factors ,CLUSTER analysis (Statistics) ,CONTENT analysis ,PSYCHOLOGICAL adaptation ,STATISTICAL sampling ,DATA analysis software ,THEMATIC analysis ,MEDICAL needs assessment ,DEPENDENCY (Psychology) ,HEART failure - Abstract
Aims: To explore caregivers' needs and problems in three European countries and associate the clusters of caregivers' needs with their sociodemographic characteristics. Design: A qualitative focused mixed methods design was used. Methods: In total, 52 caregivers of heart failure (HF) people were interviewed in three European countries between March 2017 and December 2018. Transcripts were analysed using the seven‐phase method of the exploratory multidimensional analysis according to Fraire with Reinert lexical classes findings were organized in dendrograms. Mayring's content analysis was also performed. Results: Three clusters of caregivers were identified: spouses, adult children and non‐family members. Caregivers not only provide HF patients with vital unpaid support for their physical and emotional needs, but they are continually trying to cope with their social isolation and deteriorating health. Conclusions: Informal caregiving emerged as a complex process influenced by various sociodemographic factors. Gender, relationship type and economic status are the important factors to be considered planning to develop approaches to address the needs of caregivers serving people with heart failure. Impact A comprehensive understanding of the nature of informal caregiving of individuals with heart failure, the complexity of the real‐world sociodemographic and cultural factors is warranted. The use of the EMDA method gave us the possibility of processing large masses of qualitative data through rapid, complex calculations. In detail, AATD allowed us to study in deep the significant fuzziness of what caregivers expressed and to analyse the content of the entire interviews and to produce global knowledge by using multi‐dimensional statistical methods to grasp the fundamental sense of the interviews, beyond the simple words. Three clusters were identified in the samples, including spouses, adult children and non‐family members. This study demonstrated that some sociodemographic characteristics could lead to everyday needs. Therefore, these demographic characteristics should be considered in developing targeted interventions. The research was conducted in Europe, but the technique shown can be replicated everywhere. The findings not only impact nursing but can be extended to all those stakeholders who concur with a public health educational mission. Patient or Public Contribution: Carers were involved in this study after the discharge of their loved ones or at the time of the outpatient visit. They were involved after they had been observed in their dynamics of involvement in caring of the familiars or friends with heart failure. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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14. Impact of Anterior Cruciate Ligament Injury on European Professional Soccer Players.
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Mazza, Daniele, Viglietta, Edoardo, Monaco, Edoardo, Iorio, Raffaele, Marzilli, Fabio, Princi, Giorgio, Massafra, Carlo, and Ferretti, Andrea
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SOCCER ,RESEARCH methodology ,RE-entry students ,ANTERIOR cruciate ligament injuries ,DESCRIPTIVE statistics ,ATHLETIC ability ,EPIDEMIOLOGICAL research - Abstract
Background: The impact of anterior cruciate ligament reconstruction (ACLR) on the performance and career of professional soccer players has not been extensively investigated. Purpose: To evaluate in professional European soccer players (1) the ACL injury incidence, (2) the return-to-play (RTP) rate and time after ACLR, (3) career survival and athlete performance in the first 3 postoperative seasons after RTP, (4) factors likely related to different outcomes after ACLR, and (5) any related differences between the top 8 European soccer leagues. Study Design: Descriptive epidemiology study. Methods: Included were professional soccer players in the top 8 European Soccer leagues (Serie A [Italy], Premier League [England], Ligue 1 [France], LaLiga [Spain], Bundesliga [Germany], Jupiler Pro League [Belgium], Liga NOS [Portugal], and Premier Liga [Russia]) who sustained an ACL injury during seasons 2014 to 2015, 2015 to 2016, and 2016 to 2017. Data were retrieved from publicly available online sources. Outcomes were evaluated based on player age (<25 years, 25-30 years, and >30 years), position (goalkeeper, defender, midfielder, and forward), affected side (dominant vs nondominant), and league. Results: Overall, 195 players sustained an ACL injury, for a mean annual ACL injury incidence of 1.42%. The RTP rate was 95%, with a mean RTP time of 248 ± 136 days. Within the third postoperative season, 66 players (36%) competed in a lower level national league, and 25 (13.6%) ended their careers; a significant reduction in the mean minutes played per season was found in all 3 postoperative seasons. Player age correlated significantly with reduction in performance or recovery from an ACL injury. No significant correlation was found between postoperative player performance and affected side, position, league, or time to RTP. Conclusion: A substantial ACL injury incidence was found in top European elite soccer players; however, a high RTP rate in a reasonable time was seen after ACLR. Nevertheless, professional soccer players experienced a short-term decline in their performance. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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15. Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition.
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Waal, Margot W. M., Dalen‐Kok, Annelore H., Vet, Henrica C. W., Gimenez‐Llort, Lydia, Konstantinovic, Ljubica, Tommaso, Marina, Fischer, Thomas, Lukas, Albert, Kunz, Miriam, Lautenbacher, Stefan, Lobbezoo, Frank, McGuire, Brian E., Steen, Jenny T., Achterberg, Wilco P., de Waal, Margot W M, van Dalen-Kok, Annelore H, de Vet, Henrica C W, Gimenez-Llort, Lydia, de Tommaso, Marina, and van der Steen, Jenny T
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PAIN diagnosis ,DIAGNOSIS of dementia ,RESEARCH ,RESEARCH evaluation ,PAIN measurement ,RESEARCH methodology ,COGNITION ,EVALUATION research ,MEDICAL cooperation ,COMPARATIVE studies ,DEMENTIA ,RESEARCH funding ,DISEASE complications - Abstract
Background: Recognition of pain in people with dementia is challenging. Observational scales have been developed, but there is a need to harmonize and improve the assessment process. In EU initiative COST-Action TD1005, 36 promising items were selected from existing scales to be tested further. We aimed to study the observer agreement of each item, and to analyse the factor structure of the complete set.Methods: One hundred and ninety older persons with dementia were recruited in four different countries (Italy, Serbia, Spain and The Netherlands) from different types of healthcare facilities. Patients represented a convenience sample, with no pre-selection on presence of (suspected) pain. The Pain Assessment in Impaired Cognition (PAIC, research version) item pool includes facial expressions of pain (15 items), body movements (10 items) and vocalizations (11 items). Participants were observed by health professionals in two situations, at rest and during movement. Intrarater and interrater reliability was analysed by percentage agreement. The factor structure was examined with principal component analysis with orthogonal rotation.Results: Health professionals performed observations in 40-57 patients in each country. Intrarater and interrater agreement was generally high (≥70%). However, for some facial expression items, agreement was sometimes below 70%. Factor analyses showed a six-component solution, which were named as follows: Vocal pain expression, Face anatomical descriptors, Protective body movements, Vocal defence, Tension and Lack of affect.Conclusions: Observation of PAIC items can be done reliably in healthcare settings. Observer agreement is quite promising already without extensive training.Significance: In this international project, promising items from existing observational pain scales were identified and evaluated regarding their reliability as an alternative to pain self-report in people with dementia. Analysis on factor structure helped to understand the character of the items. Health professionals from four countries using four different European languages were able to rate items reliably. The results contributed to an informed reduction of items for a clinical observer scale (Pain Assessment in Impaired Cognition scale with 15 items: PAIC15). [ABSTRACT FROM AUTHOR]- Published
- 2020
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16. Economic evaluation of the treatment of Acute Bacterial Skin and Skin Structure Infections (ABSSSIs) from the national payer perspective: introduction of a new treatment to the patient journey. A simulation of three European countries.
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Marcellusi, A., Viti, R., Sciattella, P., Sarmati, L., Streinu-Cercel, A., Pana, A., Espin, J., Horcajada, J. P., Favato, G., Andretta, D., Soro, M., Andreoni, M., and Mennini, F. S.
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ANTIBIOTICS ,COMMUNICABLE diseases ,COMPARATIVE studies ,COMPUTER simulation ,COST effectiveness ,DECISION making ,HOSPITAL care ,LENGTH of stay in hospitals ,RESEARCH methodology ,MEDICAL cooperation ,PEPTIDES ,RESEARCH ,SKIN diseases ,EVALUATION research ,ACUTE diseases ,STATISTICAL models - Abstract
Background: The aim of this study was to develop a spending predictor model to evaluate the direct costs associated with the management of ABSSSIs from the National health-care provider's perspective of Italy, Romania, and Spain. Methodology: A decision-analytic model was developed to evaluate the diagnostic and clinical pathways of hospitalized ABSSSI patients based on scientific guidelines and real-world data. A Standard of Care (SoC) scenario was compared with a dalbavancin scenario in which the patients could be discharged early. The epidemiological and cost parameters were extrapolated from national administrative databases (i.e., hospital information system). A probabilistic sensitivity analysis (PSA) and one-way sensitivity analysis (OWA) were performed. Results: Overall, the model estimated an average annual number of patients with ABSSSIs of approximately 50,000 in Italy, Spain, and Romania. On average, the introduction of dalbavancin reduced the length of stay by 3.3 days per ABSSSI patient. From an economic perspective, dalbavancin did not incur any additional cost from the National Healthcare perspective, and the results were consistent among the countries. The PSA and OWA demonstrated the robustness of these results. Conclusion: This model represents a useful tool for policymakers by providing information regarding the economic and organizational consequences of an early discharge approach in ABSSSI management. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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17. Correlates of Walking for Travel in Seven European Cities: The PASTA Project.
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Gascon, Mireia, Götschi, Thomas, de Nazelle, Audrey, Gracia, Esther, Ambròs, Albert, Márquez, Sandra, Marquet, Oriol, Avila-Palencia, Ione, Brand, Christian, Iacorossi, Francesco, Raser, Elisabeth, Gaupp-Berghausen, Mailin, Dons, Evi, Laeremans, Michelle, Kahlmeier, Sonja, Sánchez, Julian, Gerike, Regine, Anaya-Boig, Esther, Int Panis, Luc, and Nieuwenhuijsen, Mark
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CONFIDENCE intervals ,RESEARCH methodology ,MEDICAL protocols ,QUESTIONNAIRES ,SOCIAL norms ,TRANSPORTATION ,TRAVEL ,WALKING ,RESIDENTIAL patterns ,SOCIAL context ,BODY movement ,PHYSICAL activity - Abstract
BACKGROUND: Although walking for travel can help in reaching the daily recommended levels of physical activity, we know relatively little about the correlates of walking for travel in the European context. OBJECTIVE: Within the framework of the European Physical Activity through Sustainable Transport Approaches (PASTA) project, we aimed to explore the correlates of walking for travel in European cities. METHODS: The same protocol was applied in seven European cities. Using a web-based questionnaire, we collected information on total minutes of walking per week, individual characteristics, mobility behavior, and attitude (N =7,875). Characteristics of the built environment (the home and the work/study addresses) were determined with geographic information system (GIS)-based techniques. We conducted negative binomial regression analyses, including city as a random effect. Factor and principal component analyses were also conducted to define profiles of the different variables of interest. RESULTS: Living in high-density residential areas with richness of facilities and density of public transport stations was associated with increased walking for travel, whereas the same characteristics at the work/study area were less strongly associated with the outcome when the residential and work/study environments were entered in the model jointly. A walk-friendly social environment was associated with walking for travel. All three factors describing different opinions about walking (ranging from good to bad) were associated with increased minutes of walking per week, although the importance given to certain criteria to choose a mode of transport provided different results according to the criteria. DISCUSSION: The present study supports findings from previous research regarding the role of the built environment in the promotion of walking for travel and provides new findings to help in achieving sustainable, healthy, livable, and walkable cities. [ABSTRACT FROM AUTHOR]
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- 2019
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18. Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study.
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Ndosi, Mwidimi, Alcacer-Pitarch, Begonya, Allanore, Yannick, del Galdo, Francesco, Frerix, Marc, García-Díaz, Sílvia, Hesselstrand, Roger, Kendall, Christine, Matucci-Cerinic, Marco, Mueller-Ladner, Ulf, Sandqvist, Gunnel, Torrente-Segarra, Vicenç, Schmeiser, Tim, Sierakowska, Matylda, Sierakowska, Justyna, Sierakowski, Stanslaw, and Redmond, Anthony
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AGE distribution ,COMPARATIVE studies ,INTERNATIONAL relations ,RESEARCH methodology ,MEDICAL cooperation ,PSYCHOMETRICS ,QUALITY of life ,QUESTIONNAIRES ,RESEARCH ,RESEARCH evaluation ,RESEARCH funding ,SEX distribution ,SICKNESS Impact Profile ,SYSTEMIC scleroderma ,ETHNOLOGY research ,EVALUATION research ,CROSS-sectional method ,SEVERITY of illness index - Abstract
Objectives: The aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European cultures and validate it as a common measure of quality of life in systemic sclerosis (SSc).Methods: This was a seven-country (Germany, France, Italy, Poland, Spain, Sweden and UK) cross-sectional study. A forward-backward translation process was used to adapt the English SScQoL into target languages. SScQoL was completed by patients with SSc, then data were validated against the Rasch model. To correct local response dependency, items were grouped into the following subscales: function, emotion, sleep, social and pain and reanalysed for fit to the model, unidimensionality and cross-cultural equivalence.Results: The adaptation of the SScQoL was seamless in all countries except Germany. Cross-cultural validation included 1080 patients with a mean age 58.0 years (SD 13.9) and 87% were women. Local dependency was evident in individual country data. Grouping items into testlets corrected the local dependency in most country specific data. Fit to the model, reliability and unidimensionality was achieved in six-country data after cross-cultural adjustment for Italy in the social subscale. The SScQoL was then calibrated into an interval level scale.Conclusion: The individual SScQoL items have translated well into five languages and overall, the scale maintained its construct validity, working well as a five-subscale questionnaire. Measures of quality of life in SSc can be directly compared across five countries (France, Poland Spain, Sweden and UK). Data from Italy are also comparable with the other five countries although require an adjustment. [ABSTRACT FROM AUTHOR]- Published
- 2018
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19. Disease Burden of Mild Asthma: Findings from a Cross-Sectional Real-World Survey.
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Ding, Bo and Small, Mark
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ADRENOCORTICAL hormones ,HORMONE therapy ,DRUG therapy for asthma ,BRONCHODILATOR agents ,ASTHMA ,COMPARATIVE studies ,ECONOMIC aspects of diseases ,LONGITUDINAL method ,RESEARCH methodology ,MEDICAL cooperation ,QUESTIONNAIRES ,RESEARCH ,EVALUATION research ,CROSS-sectional method ,ECONOMICS ,THERAPEUTICS - Abstract
Introduction: Most asthma patients have mild disease, although the burden of mild asthma is not well understood nor studied. Some evidence suggests that many patients with mild asthma experience suboptimal symptom control and exacerbations. This study characterizes the burden of illness and treatment patterns among patients with a confirmed diagnosis of mild asthma, defined as GINA Step 1 or Step 2, and residing in China, France, Germany, Italy, Japan, Spain, the United Kingdom, or the United States.Methods: The Respiratory Disease-Specific Programme prospective cross-sectional survey was conducted with primary care and specialty physicians in each of the eight countries. Physician and patient surveys assessed demographic and clinical characteristics, frequency and timing of asthma symptoms, exacerbations, and rescue inhaler usage, the most recent FEV1% predicted, and healthcare utilization. GINA Step was determined by prescribed treatment regimen. GINA Step 1 patients were prescribed as-needed reliever medication and Step 2 required treatment with a low-dose inhaled corticosteroid, leukotriene receptor antagonist, or theophylline. Treatment adherence was assessed with the Morisky Medication Adherence scale, disease control with the Asthma Control Test, and work and activity impairments with the Work Productivity and Activity Impairment scale.Results: The sample included 1115 GINA Step 1 and 2 patients, with 53% classified as Step 2. Overall asthma control was suboptimal, with reports of nocturnal symptoms (40.6%), symptom worsening (10.5%), and rescue inhaler usage in the last 4 weeks (33.6%). 25% of patients were uncontrolled. The overall mean number of exacerbations in the last 12 months was 0.4, with a higher frequency of exacerbations in Step 2 patients who also experienced more exacerbations requiring treatment intensification, an emergency department visit, or hospitalization.Conclusion: Mild asthma imposes a substantial burden on patients, establishing the need for comprehensive management plans and ongoing support for treatment adherence.Funding: AstraZeneca. [ABSTRACT FROM AUTHOR]- Published
- 2017
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20. Impact of clinical osteoarthritis of the hip, knee and hand on self-rated health in six European countries: the European Project on OSteoArthritis.
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Schoor, N., Zambon, S., Castell, M., Cooper, C., Denkinger, M., Dennison, E., Edwards, M., Herbolsheimer, F., Maggi, S., Sánchez-Martinez, M., Pedersen, N., Peter, R., Schaap, L., Rijnhart, J., Pas, S., Deeg, D., van Schoor, N M, Castell, M V, Dennison, E M, and Edwards, M H
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OSTEOARTHRITIS ,QUALITY of life ,SELF-evaluation ,RHEUMATOLOGY ,MEDICAL care ,COMPARATIVE studies ,HAND ,HEALTH status indicators ,HIP joint diseases ,KNEE diseases ,LONGITUDINAL method ,RESEARCH methodology ,MEDICAL cooperation ,RESEARCH ,RESEARCH funding ,SICKNESS Impact Profile ,EVALUATION research ,DISEASE prevalence ,CROSS-sectional method - Abstract
Purpose: Osteoarthritis (OA) has been shown to be associated with decreased physical function, which may impact upon a person's self-rated health (SRH). Only a few studies have examined the association between OA and SRH in the general population, but to date none have used a clinical definition of OA. The objectives are: (1) To examine the cross-sectional association between clinical OA and fair-to-poor SRH in the general population; (2) To examine whether this association differs between countries; (3) To examine whether physical function is a mediator in the association between clinical OA and SRH.Methods: Baseline data of the European Project on OSteoArthritis (EPOSA) were used, which includes pre-harmonized data from six European cohort studies (n = 2709). Clinical OA was defined according to the American College of Rheumatology criteria. SRH was assessed using one question: How is your health in general? Physical function was assessed using the Western Ontario and McMaster Universities OA Index and Australian/Canadian OA Hand Index.Results: The prevalence of fair-to-poor SRH ranged from 19.8 % in the United Kingdom to 63.5 % in Italy. Although country differences in the strength of the associations were observed, clinical OA of the hip, knee and hand were significantly associated with fair-to-poor SRH in five out of six European countries. In most countries and at most sites, the association between clinical OA and fair-to-poor SRH was partly or fully mediated by physical function.Conclusions: Clinical OA at different sites was related to fair-to-poor SRH in the general population. Most associations were (partly) mediated by physical functioning, indicating that deteriorating physical function in patients with OA should be a point of attention in patient care. [ABSTRACT FROM AUTHOR]- Published
- 2016
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21. Cane use and late onset visual impairment.
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Hersh, Marion
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ADAPTABILITY (Personality) ,ATTITUDE testing ,BLINDNESS ,DECISION making ,INTERVIEWING ,LONGITUDINAL method ,RESEARCH methodology ,PATIENT safety ,STAFFS (Sticks, canes, etc.) ,SOCIAL stigma ,TRANSPORTATION ,TRAVEL ,VISION disorders ,BODY movement ,PATIENTS' attitudes ,DESCRIPTIVE statistics - Abstract
The article focuses on the investigation on the use of cane among blind and partially sighted people with late onset visual impairment considering their experiences and attitudes across countries. The semi-structured interview was carried out as part of the main method of gathering data. The several factors considered in data gathering which includes psychological and related barriers, safety, and adaption and acceptance of the cane use.
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- 2015
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22. Primary care-based surveillance to estimate the burden of rotavirus gastroenteritis among children aged less than 5 years in six European countries.
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Diez-Domingo, Javier, Baldo, Jose-Maria, Patrzalek, Marian, Pazdiora, Petr, Forster, Johannes, Cantarutti, Luigi, Pirçon, Jean-Yves, Soriano-Gabarró, Montse, Meyer, Nadia, Pirçon, Jean-Yves, Soriano-Gabarró, Montse, and SPRIK Rotavirus Study Group
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ROTAVIRUS diseases ,GASTROENTERITIS in children ,AGE distribution ,COMPARATIVE studies ,FECES ,GASTROENTERITIS ,LONGITUDINAL method ,RESEARCH methodology ,MEDICAL cooperation ,SCIENTIFIC observation ,PRIMARY health care ,RESEARCH ,RETROVIRUS diseases ,ROTAVIRUSES ,EVALUATION research - Abstract
This observational, prospective study was undertaken to estimate the burden of rotavirus (RV) gastroenteritis (GE) leading to general practitioner (GP)/family paediatrician (FP) visits among children aged <5 years in Czech Republic, Germany, Italy, Poland, Spain and the UK. Children aged <5 years presenting with acute GE provided stool samples for rapid RV testing. RV+ samples were confirmed and typed by RT-PCR. Demographic and clinical data were collected for all RVGE episodes. Transmission patterns among other household children aged <5 years were also assessed. From November 2005 to May 2007, excluding data from the UK, 497/3,813 (13.0%) children aged <5 years presenting with acute GE to GP/FP and tested were RV+ by PCR. Most RVGE cases (69.1%) occurred in children aged <2 years, occurred between December and May (93.1%) and were moderate or severe by Vesikari score (92.9%). RV strain distribution varied between countries: G9P[8] was the most common type in Poland (54/76) and Spain (172/196), G1P[8] was predominant in the Czech Republic (56/64) and Italy (46/107), and G4P[8] and G1P[8] both prevailed in Germany (17/54 and 13/54, respectively). A total of 24/122 (19.7%) children aged <5 years resident in the same household as a PCR+ study participant also developed RVGE. Conclusion. This multinational epidemiological study in Europe shows that RV is easily transmitted among household children, with RVGE burden highest among children aged <2 years accessing primary healthcare for acute GE. [ABSTRACT FROM AUTHOR]
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- 2011
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23. Patterns of mental health service utilisation in Italy and Spain--an investigation using the European Service Mapping Schedule.
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Salvador-Carulla, Luis, Tibaldi, Giuseppe, Johnson, Sonia, Scala, Elena, Romero, Cristina, Munizza, Carmine, CSRP group, and RIRAG group
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MENTAL health services ,HEALTH facilities utilization ,PATHOLOGICAL psychology ,COMMUNITY health services ,MENTAL health policy ,HOSPITAL supplies ,MENTAL illness treatment ,COMPARATIVE studies ,DEMOGRAPHY ,RESEARCH methodology ,MEDICAL cooperation ,RESEARCH ,ETHNOLOGY research ,EVALUATION research ,MENTAL health services administration - Abstract
Background: Methods for comparing local mental health service systems are needed to allow identification of different patterns of service provision and of inequities within and between countries.Aim: The aim of this study was to describe and compare mental health service systems in 13 catchment areas in Spain and Italy. Within each country, a range of area characteristics was represented.Method: The European Service Mapping Schedule (ESMS) and European Socio-Demographic Schedule (ESDS) were used to describe: (i) socio-demographic and geographical area characteristics; (ii) services provided; and (iii) service utilisation in each area.Results: Great differences emerged in patterns of service provision and use between and within countries. In contrast to Northern Europe, high unemployment rates were not associated with high service utilisation rates, but areas with large numbers of single-person households tended to have high service use. Most service utilisation rates were substantially below those reported from Northern European studies. Spanish centres tended to have low rates of hospital service utilisation despite limited development of community-based services. Trieste, where there has been a strong emphasis on developing innovative community services, showed a distinctive pattern with low hospital bed use and high rates of day service use and of contacts in the community.Conclusion: This methodology yielded useful data, which raise significant questions regarding equity and the implementation of mental health policy. The very large variations indicate that underlying local patterns of service provision must be investigated and taken into account in the interpretation of research evaluations of interventions. [ABSTRACT FROM AUTHOR]- Published
- 2005
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