From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley

In February of 2000, "Exceptional Parent" introduced readers to the Crowley family. The author profiled John, Aileen, and their three children: Megan, Patrick, and John Jr. They told "Exceptional Parent" that in 1998 both Megan and Patrick were diagnosed with Pompe disease, a progressive, multisystemic, debilitating, and often fatal muscular disease. Shortly after this article was published, the author learned just how committed John and Aileen were to finding a cure for the disease that was threatening the lives of two of their children. This article provides a summary of John Crowley's story, which has received coverage and praise from "The Wall Street Journal" to a book (both written by Pulitzer Prize-winning journalist Geeta Anand) and now Hollywood has taken notice. "Extraordinary Measures" is a powerful film that is inspired by Crowley's race against time to save his children. Harrison Ford both produces and stars in the film. Ten years after the first profile of John Crowley, a lot has happened. It's time to catch up with John Crowley. The author presents an interview with John Crowley. In the interview, Crowley talks about the film and shares how the production of the film come about.