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Examination of the Impact of the 'Get SET Early' Program on Equitable Access to Care within the Screen-Evaluate-Treat Chain in Toddlers with Autism Spectrum Disorder

Authors :
Pham, Christie
Bacon, Elizabeth C.
Grzybowski, Andrea
Carter-Barnes, Cynthia
Arias, Steven
Xu, Ronghui
Lopez, Linda
Courchesne, Eric
Pierce, Karen
Source :
Autism: The International Journal of Research and Practice. Aug 2023 27(6):1790-1802.
Publication Year :
2023

Abstract

Delays in autism spectrum disorder identification/services could impact developmental outcomes. Although trends are encouraging, children from historically underrepresented minority backgrounds are often identified later and have reduced engagement in care. It is unclear if disparities exist throughout the screen-evaluate-treat chain, or if early detection programs such as "Get SET Early" that standardize these steps are effective countermeasures. Pediatricians/primary care providers administered Communication and Symbolic Behavior Scales IT Checklist screens at 12-, 18-, and 24-month well-baby examinations, and parents designated race, ethnicity, and developmental concerns. Toddlers who scored in the range of concern, or whose pediatricians/primary care providers had concerns, were referred for evaluations. Rates of screening and evaluation engagement within ethnic/racial groups were compared to U.S. Census proportions. Age at screen, evaluation, and treatment and quantity was compared across groups. Regressions examined whether key factors were associated with ethnicity or race. No differences were found for mean age of screen, evaluation, initiation of behavioral therapy, or quantity received between racial and ethnic groups. Historically underrepresented minority children were more likely to fall into the range of concern, referred for evaluations, and have their parents express developmental concerns. Although there remain gaps within the pipeline, implementation of systemized programs can be effective in ensuring equitable access to resources across communities.

Details

Language :
English
ISSN :
1362-3613 and 1461-7005
Volume :
27
Issue :
6
Database :
ERIC
Journal :
Autism: The International Journal of Research and Practice
Publication Type :
Academic Journal
Accession number :
EJ1386643
Document Type :
Journal Articles<br />Reports - Research
Full Text :
https://doi.org/10.1177/13623613221147416