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Mental Health and Well-Being in Mothers of Children with Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study
- Source :
-
American Journal on Intellectual and Developmental Disabilities . May 2018 123(3):241-253. - Publication Year :
- 2018
-
Abstract
- It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB (n = 18) or low/no CB (n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area.
Details
- Language :
- English
- ISSN :
- 1944-7515
- Volume :
- 123
- Issue :
- 3
- Database :
- ERIC
- Journal :
- American Journal on Intellectual and Developmental Disabilities
- Publication Type :
- Academic Journal
- Accession number :
- EJ1176977
- Document Type :
- Journal Articles<br />Reports - Research
- Full Text :
- https://doi.org/10.1352/1944-7558-123.3.241