Understanding the Lived Experiences of Young Adults with down Syndrome as Emerging Societal Members -- a Phenomenological Study

This phenomenological research study highlights the voiced needs and desires of individuals with Down syndrome, aged 21-30, experiencing the phenomenon of identifying as neurodiverse while living in a world designed for the neurotypical. The study provides a deeper understanding of lived experiences of individuals with Down syndrome as they enter societal roles after transitioning from secondary education. The findings shed light on the societal problem surrounding the lack of inclusion in higher education and the workforce as well as the lack of autonomy for individuals with cognitive disabilities under guardianship. The three outstanding questions embedded within this multi-site, phenomenological inquiry are: "How do young adults with Down syndrome (age 21-30) understand and describe their lived experiences as emerging societal members?" "(a) How do young adults with Down syndrome (age 21-30) understand and describe the pathways available to them as emerging societal members?" "(b) How do young adults with Down syndrome (age 21 to 30) understand and describe the programs available to them as emerging societal members?" and "(c) How do young adults with Down syndrome (age 21 to 30) understand and describe their level of autonomy as emerging societal members?" Understanding the social history associated with Down syndrome serves as the foundation of present societal practices and the experiences of these individuals. To explore these experiences and further support this research, the three streams of theory, research, and practice are as follows: Decision Making for Individuals with Disabilities, Secondary Education in Relation to Down Syndrome, and Present Pathways Available for Adults with Down Syndrome. [The dissertation citations contained here are published with the permission of ProQuest LLC. Further reproduction is prohibited without permission. Copies of dissertations may be obtained by Telephone (800) 1-800-521-0600. Web page: http://www.proquest.com/en-US/products/dissertations/individuals.shtml.]