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Current practices of follow-up programs for childhood cancer survivors in Italy

Authors :
Terenziani, M
Tozzi, A
Diaco, L
Biasin, E
Cattoni, A
Croci, I
Fraschini, D
Giorgiani, G
Haupt, R
Muraca, M
Pillon, M
Sironi, G
Valsecchi, M
Mastronuzzi, A
Terenziani, Monica
Tozzi, Alberto Eugenio
Diaco, Laura
Biasin, Eleonora
Cattoni, Alessandro
Croci, Ileana
Fraschini, Donatella
Giorgiani, Giovanna
Haupt, Riccardo
Muraca, Monica
Pillon, Marta
Sironi, Giovanna
Valsecchi, Maria Grazia
Mastronuzzi, Angela
Terenziani, M
Tozzi, A
Diaco, L
Biasin, E
Cattoni, A
Croci, I
Fraschini, D
Giorgiani, G
Haupt, R
Muraca, M
Pillon, M
Sironi, G
Valsecchi, M
Mastronuzzi, A
Terenziani, Monica
Tozzi, Alberto Eugenio
Diaco, Laura
Biasin, Eleonora
Cattoni, Alessandro
Croci, Ileana
Fraschini, Donatella
Giorgiani, Giovanna
Haupt, Riccardo
Muraca, Monica
Pillon, Marta
Sironi, Giovanna
Valsecchi, Maria Grazia
Mastronuzzi, Angela
Publication Year :
2023

Abstract

Introduction: Quality of life in childhood cancer survivors is largely affected by survivorship care and transition from treatment to long-term follow-up (LTFU). Referring to evidence-based recommendations, we wanted to evaluate LTFU care for survivors through a survey among the Italian Association for Pediatric Hematology-Oncology (AIEOP) centers. The project aimed to evaluate the availability of services in Italy, investigate strengths and weaknesses, analyze improvements of awareness in the field, and identify the gaps that need to be addressed by different centers. Methods: Together with the family representatives, on behalf of AIEOP’s Late Effects Working Group, we developed a questionnaire on assisting childhood cancer survivors. All AIEOP centers received one questionnaire including information on local health system organizations; LTFU for childhood cancer survivors; services for adult survivors of childhood cancer; information provided to survivors/caregivers and care plan delivery. Results: Forty-eight AIEOP centers were contacted and 42 replied, with a response rate of 87.5%. The majority of respondents confirmed their interest in assisting patients with a survivorship care plan (95.2%), regardless of a clinic or dedicated staff. Discussion: This is the first overview of LTFU in Italy, which provides detailed results at national levels, prompting consideration of improvements in the last decade. Although there is a high level of interest in survivorship care, many centers lack resources to implement such programs. The identification of these challenges is useful for planning future strategies.

Details

Database :
OAIster
Notes :
STAMPA, English
Publication Type :
Electronic Resource
Accession number :
edsoai.on1394341279
Document Type :
Electronic Resource