Palliative care : an exploratory study of categorisation tools based on patients’ needs and their value for entitlement

224 p.
ill.
1 CHAPTER 1 – STUDY CONTEXT .13 -- 1.1 THE EVOLUTION OF PALLIATIVE CARE IN BELGIUM 13 -- 1.2 THE NEED FOR A CATEGORISATION TOOL 15 -- 1.3 OBJECTIVES AND RESEARCH QUESTIONS 17 -- 1.4 METHODS 17 -- 2 CHAPTER 2 - BELGIAN LANDSCAPE .18 -- 2.1 DEFINITIONS 18 -- 2.2 SEVERAL COMPETENT AUTHORITIES 19 -- 2.3 OVERVIEW OF PALLIATIVE PATIENTS FINANCIAL BENEFITS 22 -- 2.3.1 In-hospital palliative care units 24 -- 2.3.2 Palliative care for patients at home .26 -- 2.3.3 Palliative care for patients in nursing homes or other residential facilities .35 -- 2.3.4 Day centres for palliative care and other facilities 35 -- 2.3.5 Role of the private funding 35 -- 2.3.6 Support for informal carers: palliative leave 36 -- 2.3.7 The specific situation of paediatric palliative patients 36 -- 2.4 KEY MESSAGES – ORGANISATION OF PALLIATIVE CARE IN BELGIUM .36 -- 3 CHAPTER 3 - CURRENT PALLIATIVE CARE TOOLS DEVELOPED IN BELGIUM 37 -- 3.1 PALLIATIVE CARE INDICATOR TOOL .37 -- 3.1.1 PICT-1 38 -- 3.1.2 PICT 2 42 -- 3.2 BELRAI PALLIATIVE CARE .45 -- 3.2.1 The InterRAI suite of instruments as assessment instrument 45 -- 3.2.2 The implementation of the InterRAI suite of instruments in Belgium (BelRAI) .48 -- 3.2.3 The BelRAI palliative care 49 -- 3.3 KEY MESSAGES 51 -- 4 CHAPTER 4 - OVERVIEW OF ASSESSMENT TOOLS TO DETERMINE THE LEVEL OF PALLIATIVE CARE INTENSITY AND COMPLEXITY OF PATIENT NEEDS 51 -- 4.1 INTRODUCTION .51 -- 4.1.1 Background .51 -- 4.1.2 Aim 52 -- 4.2 METHODS 52 -- 4.3 RESULTS 54 -- 4.3.1 Palliative care needs 54 -- 4.3.2 Overview of assessment tools 61 -- 4.4 COMPARISON OF ASSESSED NEEDS DOMAINS AND SCORING SYSTEMS OF THE IDENTIFIED TOOLS .81 -- 4.4.1 Needs domains assessed in the instruments 81 -- 4.4.2 Scoring system of the instruments 83 -- 4.5 PSYCHOMETRIC PROPERTIES OF TOOLS .84 -- 4.5.1 Psychometric properties of identified tools .84 -- 4.5.2 Validity and reliability of assessment tools included in palliative care complexity assessment tools .84 -- 4.6 DISCUSSION 85 -- 5 CHAPTER 5