Towards Patient and Public Involvement and Engagement (PPIE) in imaging diagnostics of prostate cancer

Subject: Towards Patient and Public Involvement and Engagement (PPIE) in imaging diagnostics of prostate cancerProblem: Rapid diagnosis of prostate cancer provides the basis for further therapy. In addition to PSA tests and biopsy, imaging diagnostics play a key role in diagnosing prostate cancer. In order to identify areas for improvements, patients were asked to share their experiences regarding (imaging) diagnostics. By capturing their voices as a prerequisite for improvement, a unique insight into the patient journey could be achieved.Research question: What do people affected by prostate cancer experience before, during and after their diagnosis? Where are areas for future improvements from the perspective of those affected?Method: Problem-centered individual interviews were conducted via Zoom and mobile phone with three co-creators from the project Patient Involvement in Oncology (PATIO), who have been diagnosed with prostate cancer. Prior to the interview, a guide was developed containing the four main topics: suspicion of cancer, path of diagnosis, the diagnosis itself and future improvements. The interview material was evaluated using the method of content structuring with deductive categorization formation according to MAYRING.Results: Suspicion of cancer: Various circumstances led to suspected prostate cancer. Path of diagnosis: General satisfaction with imaging diagnostics and patient education on diagnostic methods was expressed by the interviewees, except long waiting time for PSMA-PET-CT. The use of ionizing radiation was either not a major topic of concern for patients or was considered necessary for diagnosis. The diagnosis: The coping of people in direct social environment of patients is often difficult. Statements about lack of empathy in the communication between patients and physicians were obtained. The expression of insufficient public awareness regarding prostate cancer aroused among the interviewees. The offer of psychological support was ei