The eurreca project as a model for data access and governance policies for rare disease registries that collect clinical outcomes

Authors :: Ali, SR
Bryce, J
Tan, LE
Hiort, O
Pereira, AM
Akker, Erica
Appelman-Dijkstra, NM
Bertherat, J
Cools, M (Martine)
Dekkers, OM
Kodra, Y
Persani, L
Smyth, A
Smythe, C
Taruscio, D
Ahmed, S Faisal
Ali, SR
Bryce, J
Tan, LE
Hiort, O
Pereira, AM
Akker, Erica
Appelman-Dijkstra, NM
Bertherat, J
Cools, M (Martine)
Dekkers, OM
Kodra, Y
Persani, L
Smyth, A
Smythe, C
Taruscio, D
Ahmed, S Faisal
Source :: Ali , SR , Bryce , J , Tan , LE , Hiort , O , Pereira , AM , Akker , E , Appelman-Dijkstra , NM , Bertherat , J , Cools , M , Dekkers , OM , Kodra , Y , Persani , L , Smyth , A , Smythe , C , Taruscio , D & Ahmed , S F 2020 , ' The eurreca project as a model for data access and governance policies for rare disease registries that collect clinical outcomes ' , International Journal of Environmental Research and Public Health , vol. 17 , no. 23 , 8743 , pp. 1-12 .
Publication Year :: 2020

Database :: OAIster
Journal :: Ali , SR , Bryce , J , Tan , LE , Hiort , O , Pereira , AM , Akker , E , Appelman-Dijkstra , NM , Bertherat , J , Cools , M , Dekkers , OM , Kodra , Y , Persani , L , Smyth , A , Smythe , C , Taruscio , D & Ahmed , S F 2020 , ' The eurreca project as a model for data access and governance policies for rare disease registries that collect clinical outcomes ' , International Journal of Environmental Research and Public Health , vol. 17 , no. 23 , 8743 , pp. 1-12 .
Notes :: application/pdf, English
Publication Type :: Electronic Resource
Accession number :: edsoai.on1313630285
Document Type :: Electronic Resource

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