Building Organizational Capacity Using Partners and Technology to Support Caregivers of Children with Disabilities

This research narrative explored the journey of the Center for Learning and Childhood Development's mobile rehabilitation center in Ghana as it endeavors to support caregivers of children with developmental disabilities, particularly cerebral palsy. With a focus on building organizational capacity through partnerships and technology, it investigated various phases of evolution, from conceptualization to implementation. It also highlighted strategies employed to address caregiver needs. Through a multidisciplinary approach involving collaboration with caregivers, leveraging technology, and establishing community networks, the mobile rehabilitation center aimed to provide comprehensive rehabilitation services and empower caregivers with the knowledge and resources necessary for effective caregiving. The paper also discussed the role of technology in improving service delivery, such as transitioning to online data management systems and developing instructional videos for caregivers. Moreover, it emphasized the importance of community engagement and stakeholder collaboration in creating sustainable support networks for caregivers. This research contributes to the discourse on organizational capacity building in low-resource settings, particularly in the context of caregiver support for children with disabilities. Keywords: caregivers; cerebral palsy; rehabilitation services; mobile clinic; community outreach; capacity building; technology; data management
INTRODUCTION Since healthcare organizations have begun to shift their focus from care delivery within a hospital to preventive care or care transition post-hospital discharge, especially for those patients viewed as [...]