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Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life
- Source :
- Journal of Autism and Developmental Disorders. January, 2020, Vol. 50 Issue 1, p263, 15 p.
- Publication Year :
- 2020
-
Abstract
- This study investigated health-related QoL (HRQoL) and care-related quality of life (CarerQol) in clinically referred children with an autism spectrum disorder (ASD), and their primary and secondary caregivers. The EuroQol five-dimensional (EQ-5D) and the CarerQol questionnaires were used to respectively measure health-related QoL and care-related QoL. Primary caregivers reported pain/discomfort (42%) and anxiety/depression (40%). In caring, they mostly experienced problems in the relationship with the child (84%), and in combining care with daily activities (51%). Children with ASD had a relevantly lower QoL. Despite negative effects, almost all caregivers (96%) derived fulfillment from caring for their affected children. HRQoL and CarerQol reports of primary caregivers and children were correlated, both providing useful information to ASD measurement and treatment.<br />Author(s): Leontine W. ten Hoopen [sup.1] [sup.2] , Pieter F. A. de Nijs [sup.1] , Jorieke Duvekot [sup.1] , Kirstin Greaves-Lord [sup.1] [sup.3] , Manon H. J. Hillegers [sup.1] [sup.3] [...]
Details
- Language :
- English
- ISSN :
- 01623257
- Volume :
- 50
- Issue :
- 1
- Database :
- Gale General OneFile
- Journal :
- Journal of Autism and Developmental Disorders
- Publication Type :
- Academic Journal
- Accession number :
- edsgcl.610794123
- Full Text :
- https://doi.org/10.1007/s10803-019-04249-w