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Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers [version 2; peer review: 2 approved]

Authors :
Bárbara Antunes
Stephen Barclay
Isla Kuhn
Kathy Eagar
Claudia Bausewein
Fliss Murtagh
Simon Etkind
Ben Bowers
Sarah Dixon
Roberta Lovick
Richard Harding
Irene Higginson
Farhad Shokraneh
Author Affiliations :
<relatesTo>1</relatesTo>Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK<br /><relatesTo>2</relatesTo>Medical Library, School of Clinical Medicine, The University of Cambridge, Cambridge, UK<br /><relatesTo>3</relatesTo>The Australian Health Services Research Institute, The University of Wollongong, Wollongong, Australia<br /><relatesTo>4</relatesTo>Department of Palliative Medicine, LMU Munich, Munich University Hospital, Munich, Germany<br /><relatesTo>5</relatesTo>Wolfson Palliative Care Research Centre, University of Hull, Hull, UK<br /><relatesTo>6</relatesTo>Department of Palliative Care and Cicely Saunders Institute, King's College London, London, UK<br /><relatesTo>7</relatesTo>Department of Evidence Synthesis, Systematic Review Consultants LTD, Nottingham, UK
Source :
F1000Research. 12:224
Publication Year :
2023
Publisher :
London, UK: F1000 Research Limited, 2023.

Abstract

Background: Despite the development of patient-centred or patient-reported outcome measures (PCOMs or PROMs) in palliative and end-of-life care over recent years, their routine use in practice faces continuing challenges. Objective: To update a highly cited literature review, identify and synthesise new evidence on facilitators, barriers, lessons learned, PCOMs used, models of implementation, implementation outcomes, costs, and consequences of implementing PCOMs in palliative care clinical practice. Methods: We will search MEDLINE, PsycINFO, CINAHL, Embase, Emcare, SCI-Expanded, SSCI, ESCI, and BNI. The database search will be supplemented by a list of studies from the expert advisory committee, hand-searching of reference lists for included articles, and citations of the original review. We will include primary studies using a PCOM during clinical care of adult patients with advanced disease in palliative care settings and extract data on reported models of implementation, PCOMs, facilitators, barriers, lessons learned, costs, and implementation outcomes. Gough’s Weight of Evidence Framework will be used to assess the robustness and relevance of the studies. We will narratively synthesise and tabulate the findings. This review will follow PRISMA, PRISMA-Abstract, PRISMA-P, and PRISMA-Search as the reporting guidelines. Source of funding: Marie Curie. The funder is not involved in designing or conducting this study. Protocol registration: CRD42023398653 (13/02/2023)

Details

ISSN :
20461402
Volume :
12
Database :
F1000Research
Journal :
F1000Research
Notes :
Revised Amendments from Version 1 We clarified the use of specific PRISMA guidelines for protocol and the final review. We added the headline "Data synthesis for implementation models and processes". We expanded "Changes from the original review" adding the use of the multilevel framework for health program evaluation for a specific objective., , [version 2; peer review: 2 approved]
Publication Type :
Academic Journal
Accession number :
edsfor.10.12688.f1000research.131479.2
Document Type :
other
Full Text :
https://doi.org/10.12688/f1000research.131479.2