Back to Search
Start Over
Perceived and physiological strains of societal participation in people with multiple sclerosis: a real-time assessment study
- Source :
- Journal of Rehabilitation Medicine, Vol 56 (2024)
- Publication Year :
- 2024
- Publisher :
- Medical Journals Sweden, 2024.
-
Abstract
- Objective: To examine the relationship between perceived and physiological strains of real-time societal participation in people with multiple sclerosis. Design: Observational study. Subjects/Patients: 70 people with multiple sclerosis. Methods: Perceived and physiological strain of societal participation (10 participation-at-location and 9 transport domains) were measured in real time using the Whereabouts smartphone app and Fitbit over 7 consecutive days. Longitudinal relationships between perceived (1 not strenuous to 10 most strenuous) and physiological strains (heart rate reserve) were examined using mixed-model analyses. Type of event (participation-at-location or transport) was added as covariate, with further adjustments for fatigue and walking ability. Results: Median perceived strain, summarized for all societal participation domains, varied between 3 and 6 (range: 1–10), whereas physiological strain varied between 18.5% and 33.2% heart rate reserve. Perceived strain (outcome) and physiological strain were not associated (β -0.001, 95%CI -0.008; 0.005, with a 7-day longitudinal correlation coefficient of -0.001). Transport domains were perceived as less strenuous (β -0.80, 95%CI -0.92; -0.68). Higher fatigue levels resulted in higher perceived strain (all societal participation domains) (β 0.05, 95%CI 0.02; 0.08). Conclusion: Societal participation resulted in low-to-moderate perceived and physiological strain. Perceived and physiological strain of societal participation were unrelated and should be considered different constructs in multiple sclerosis.
Details
- Language :
- English
- ISSN :
- 16512081
- Volume :
- 56
- Database :
- Directory of Open Access Journals
- Journal :
- Journal of Rehabilitation Medicine
- Publication Type :
- Academic Journal
- Accession number :
- edsdoj.f0a270d2c8f74adf8268c1c578f4d30e
- Document Type :
- article
- Full Text :
- https://doi.org/10.2340/jrm.v56.40838