Back to Search Start Over

The experience of families in face of the finiteness of their children in the process of adopting palliative care

Authors :
Miriam Neis
Helena Becker Issi
Maria da Graça Corso da Motta
Cristianne Maria Famer Rocha
Paulo Roberto Antonacci Carvalho
Source :
Revista Gaúcha de Enfermagem, Vol 43 (2023)
Publication Year :
2023
Publisher :
Universidade Federal do Rio Grande do Sul, 2023.

Abstract

ABSTRACT Objective: To reveal the experience of family members after learning their child would adopt palliative care. Method: Phenomenological research on Heidegger’s perspective. The participants were eleven family members of children who were recommended palliative care in the Pediatric Intensive Care Unit from a university hospital in southern Brazil. The statements were obtained in a semi-structured interview, from January to November/2017, and submitted to Heidegger’s theoretical-philosophical analysis. Research approved by the institution’s Ethical Committee. Results: The communication of palliative care triggers the perception of the child’s existencial facticity in the Family, revealing reactions explained in the thematic dimensions: “Coping with the finiteness of the child when confronted with the proposal of adopting palliative care” and “The need for compassionate and attentive care”. Final considerations: Phenomenology allows us to understand the parent's existential purpose. An understanding perspective can help interdisciplinary teams to communicate the adoption of palliative care in a sensitive and ethical way, focusing on the best interest of the child.

Details

Language :
English, Spanish; Castilian, Portuguese
ISSN :
19831447
Volume :
43
Database :
Directory of Open Access Journals
Journal :
Revista Gaúcha de Enfermagem
Publication Type :
Academic Journal
Accession number :
edsdoj.95f56193b67408897d520487a73dcf6
Document Type :
article
Full Text :
https://doi.org/10.1590/1983-1447.2022.20220174.en