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Genetic discrimination: introducing the Asian perspective to the debate

Authors :
Hannah Kim
Calvin W. L. Ho
Chih-Hsing Ho
P. S. Athira
Kazuto Kato
Leonardo De Castro
Hui Kang
Richard Huxtable
Hub Zwart
Jonathan Ives
Ilhak Lee
Yann Joly
So Yoon Kim
Source :
npj Genomic Medicine, Vol 6, Iss 1, Pp 1-8 (2021)
Publication Year :
2021
Publisher :
Nature Portfolio, 2021.

Abstract

Abstract Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.

Subjects

Subjects :
Medicine
Genetics
QH426-470

Details

Language :
English
ISSN :
20567944
Volume :
6
Issue :
1
Database :
Directory of Open Access Journals
Journal :
npj Genomic Medicine
Publication Type :
Academic Journal
Accession number :
edsdoj.76b5471e1b56481f91f9b778fb87e192
Document Type :
article
Full Text :
https://doi.org/10.1038/s41525-021-00218-4