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Pain in adults with congenital heart disease - An international perspective

Authors :
Allison Leibold
Erin Eichler
Sukyung Chung
Philip Moons
Adrienne H. Kovacs
Koen Luyckx
Silke Apers
Corina Thomet
Werner Budts
Junko Enomoto
Maayke A. Sluman
Jou-Kou Wang
Jamie L. Jackson
Paul Khairy
Stephen C. Cook
Shanthi Chidambarathanu
Luis Alday
Erwin Oechslin
Katrine Eriksen
Mikael Dellborg
Malin Berghammer
Bengt Johansson
Andrew S. Mackie
Samuel Menahem
Maryanne Caruana
Gruschen Veldtman
Alexandra Soufi
Kamila White
Edward Callus
Shelby Kutty
Susan M. Fernandes
Source :
International Journal of Cardiology Congenital Heart Disease, Vol 5, Iss , Pp 100200- (2021)
Publication Year :
2021
Publisher :
Elsevier, 2021.

Abstract

Background: Patients with adult congenital heart disease (ACHD) have many risk factors for chronic pain such as prior cardiac interventions and adult comorbidities. However, the prevalence of chronic pain has not been well described in this population. We sought to determine the prevalence of pain in a large international cohort of patients with ACHD. Methods: Data from the APPROACH-IS dataset was utilized for this study which includes 4028 patients with ACHD from 15 different countries. The prevalence of pain was assessed under the health status patient reported outcome domain utilizing the EuroQol-5D 3 level version tool. Multivariable logistic regression was used to assess differences across countries in pain, taking into account country-level random effects for clustering across observations within each country. Results: A total of 3832 patients with ACHD met the study criteria, median age 32 years [IQR 25, 42], 52.6% females. The prevalence of at least moderate pain was reported by 28.9% (95% CO 27.5 ​= ​30.3%) of participants. Pain was associated with country of origin, age, gender, background, education and marital status as well as several clinical variables including disease complexity, cardiac device presence, history of heart failure, psychiatric conditions and presence of other medical conditions. Those with pain had lower levels of perceived health and a lower quality of life score. Conclusion: Pain in patients with ACHD is common, impacting nearly one-third of patients. Given the far reaching implications of pain in patients with ACHD, further study of pain characteristics and treatment management appear warranted.

Details

Language :
English
ISSN :
26666685
Volume :
5
Issue :
100200-
Database :
Directory of Open Access Journals
Journal :
International Journal of Cardiology Congenital Heart Disease
Publication Type :
Academic Journal
Accession number :
edsdoj.6dbbeef907364f189dffb44ac49f9d5a
Document Type :
article
Full Text :
https://doi.org/10.1016/j.ijcchd.2021.100200