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A standardized clinical database for research in Chagas disease: The NHEPACHA network.

Authors :
Adriana González Martínez
Irene Losada-Galván
Juan Carlos Gabaldón-Figueira
Nieves Martínez-Peinado
Roberto Magalhães Saraiva
Marisa Liliana Fernández
Janine M Ramsey
Oscar Noya-González
Belkisyole Alarcón de Noya
Alejandro Gabriel Schijman
Soledad Berón
Marcelo Abril
Joaquim Gascón
Sergio Sosa-Estani
María Jesús Pinazo
Julio Alonso-Padilla
Alejandro Marcel Hasslocher-Moreno
NHEPACHA network (Nuevas Herramientas para el diagnóstico y la evaluación del paciente con enfermedad de Chagas)
Source :
PLoS Neglected Tropical Diseases, Vol 18, Iss 8, p e0012364 (2024)
Publication Year :
2024
Publisher :
Public Library of Science (PLoS), 2024.

Abstract

The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather relevant data on epidemiological, clinical, diagnostic, and therapeutic aspects of the disease. This questionnaire was developed based on a consensus of expert members of the network, with the intention of collecting high-quality standardized data, which can be used interchangeably by the different research centers that make up the NHEPACHA network. Furthermore, the network intends to offer a clinical protocol that can be embraced by other researchers, facilitating comparability among published studies, as well as the development of therapeutic response and progression markers.

Details

Language :
English
ISSN :
19352727 and 19352735
Volume :
18
Issue :
8
Database :
Directory of Open Access Journals
Journal :
PLoS Neglected Tropical Diseases
Publication Type :
Academic Journal
Accession number :
edsdoj.57de3893f01f4537ae8dd4c2298cb661
Document Type :
article
Full Text :
https://doi.org/10.1371/journal.pntd.0012364