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Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World

Authors :
John L Kilgallon
Ishaan Ashwini Tewarie
Marike L D Broekman
Aakanksha Rana
Timothy R Smith
Source :
Journal of Medical Internet Research, Vol 24, Iss 2, p e30524 (2022)
Publication Year :
2022
Publisher :
JMIR Publications, 2022.

Abstract

There is a fundamental need to establish the most ethical and effective way of tracking disease in the postpandemic era. The ubiquity of mobile phones is generating large amounts of passive data (collected without active user participation) that can be used as a tool for tracking disease. Although discussions of pragmatism or economic issues tend to guide public health decisions, ethical issues are the foremost public concern. Thus, officials must look to history and current moral frameworks to avoid past mistakes and ethical pitfalls. Past pandemics demonstrate that the aftermath is the most effective time to make health policy decisions. However, an ethical discussion of passive data use for digital public health surveillance has yet to be attempted, and little has been done to determine the best method to do so. Therefore, we aim to highlight four potential areas of ethical opportunity and challenge: (1) informed consent, (2) privacy, (3) equity, and (4) ownership.

Details

Language :
English
ISSN :
14388871
Volume :
24
Issue :
2
Database :
Directory of Open Access Journals
Journal :
Journal of Medical Internet Research
Publication Type :
Academic Journal
Accession number :
edsdoj.36934541e5994f4ba5e3628e14838290
Document Type :
article
Full Text :
https://doi.org/10.2196/30524