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P114: Use of population data to empower patient organizations and improve advocacy for rare disease therapeutics

Authors :
Samantha Baxter
Moriel Singer-Berk
Kathryn Russell
Emily Groopman
Nicholas Watts
Michael Wilson
Jordan Wood
Heidi Rehm
Anne O'Donnell-Luria
Source :
Genetics in Medicine Open, Vol 1, Iss 1, Pp 100143- (2023)
Publication Year :
2023
Publisher :
Elsevier, 2023.

Subjects

Subjects :
Genetics
QH426-470
Medicine

Details

Language :
English
ISSN :
29497744
Volume :
1
Issue :
1
Database :
Directory of Open Access Journals
Journal :
Genetics in Medicine Open
Publication Type :
Academic Journal
Accession number :
edsdoj.1c5a286df8084e81a444f06324bb2c30
Document Type :
article
Full Text :
https://doi.org/10.1016/j.gimo.2023.100143