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The care of the patients with hipoplastic left heart syndrome in places of social and economic vulneability. An ethical analysis

Authors :
ISAURA ELAINE GONÇALVES MOREIRA ROCHA
FLÁVIA LINS BEZERRA DE SOUZA FONSECA
JOSIMÁRIO SILVA
Source :
Revista do Colégio Brasileiro de Cirurgiões, Vol 50 (2023)
Publication Year :
2023
Publisher :
Colégio Brasileiro de Cirurgiões, 2023.

Abstract

ABSTRACT The birth of a child means hope and joy, particularly for the parents and the healthcare team. When this child is born with a severe malformation and a poor prognosis, as in the case of hypoplastic left heart syndrome, the scenario is one of great uncertainty and emotional suffering. The role of the health team becomes fundamental for the identification of conflicts of values and for the search for shared decisions that promote the best benefit to the child. When the diagnosis is made during fetal life, it is necessary to develop counseling strategies appropriate to the context of each family. In places with limited care resources, precarious prenatal care and short temporal conditions, the recommended counseling is compromised. Indication of treatment requires technical competence and a detailed analysis of ethical issues, and consultation with institutional clinical bioethics services or commissions is important. The article proposes to address the moral conflicts of two clinical cases and the respective bioethical analysis that involves principles and values in contexts of vulnerability and uncertainty, contrasting two situations where the indication of treatment was based on accessibility to treatment.

Details

Language :
English, Spanish; Castilian, Portuguese
ISSN :
18094546 and 01006991
Volume :
50
Database :
Directory of Open Access Journals
Journal :
Revista do Colégio Brasileiro de Cirurgiões
Publication Type :
Academic Journal
Accession number :
edsdoj.021bd60cc9bb4659ad80a041735cb33e
Document Type :
article
Full Text :
https://doi.org/10.1590/0100-6991e-20233437-en