A qualitative study to investigate why patients accept or decline a copy of their referral letter from their GP

Background: Our practice in Northumberland has offered patients copies of their clinical referral letters for almost 3 years. However, many patients declined this offer and this qualitative study was conducted to determine why almost 80% of patients offered a copy of their referral letter opted not to receive one. Aim: To discover why some patients accepted and others declined a copy of the letter written from GP to specialist. Design of study: A qualitative focus-group study. Setting: General practice in Northumberland. Method: Three focus groups of referred patients were created, and discussions were taped, transcribed and analysed for major themes. Results: The patients chose to accept or decline a copy of their referral letter for diverse reasons. However, most felt that the ability to choose for themselves whether to have a copy or not was essential. Conclusions: The concept of trust in their GP was a major theme that patients related was often behind their decision to decline a copy of their letter. These results, if transferable, may have implications for the application of this policy.