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Digital Wings: Innovations in Transition Readiness for Adolescent and Young Adult Transplant Recipients [corrected]

Authors :
Douglas B, Mogul
Emily M, Fredericks
Tammy M, Brady
Tamir, Miloh
Kristin, Riekert
Natalie, Williams
Ryan, Ford
Michael, Fergusson
Beverly, Kosmach-Park
Jon, Hochstein
Gayathri, Naraparaju
Macey L, Henderson
Dorry L, Segev
John F P, Bridges
Source :
Transplantation. 103(10)
Publication Year :
2019

Abstract

The Johns Hopkins University School of Medicine organized 2 multistakeholder symposia on February 2, 2018 and January 11, 2019 to address the problem of high graft failure in adolescent and young adult (AYA) solid organ transplant (SOT) recipients. Participants included international experts in transplantation, behavioral psychology, patient/parent advocacy, and technology. The objectives of the symposia were as follows: (1) to identify and discuss the barriers to and facilitators of effective transfer of care for AYA SOT recipients; (2) to actively explore strategies and digital solutions to promote their successful transfer of care; and (3) to develop meaningful partnerships for the successful development, evaluation, implementation, and dissemination of these digital solutions. Additionally, data were collected from 152 AYA SOT recipients demonstrating a substantial gap in how this population uses technologies for health-related activities, alongside an increased interest in an app to help them manage their transplant.

Details

ISSN :
15346080
Volume :
103
Issue :
10
Database :
OpenAIRE
Journal :
Transplantation
Accession number :
edsair.pmid..........99dbc35bcf53fa06809258663575577e