Barriers in Inclusion for Children Diagnosed with Epidermolysis Bullosa

Work deals with barriers in inclusion for children with Epidermolysis bullosa disease. The theoretical section introduces basic information about epidermolysis bullosa disease and the care of such sick children. It also describes the DEBRA organisation, characterising the younger school age with regard to disability and characterising the foundations of inclusion. The practical part contains qualitative research examining the existence of barriers in inclusion. For the data collection, a semi-structured interview was chosen for the three families in which the child is located with EB and the conversations are part of the annexes. It also includes an analysis of all three interviews using so-called emerging topics that are recorded in the tables, the tables are also included in the annexes. All three families have a positive attitude to the disease and teach their children autonomy. They identify teacher fear as the main barrier to inclusion. But good inclusion is all about the moral.