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Assessment of health-related quality of life in children with cancer: consistency and agreement between parent and child reports
- Source :
- Cancer. 106(10)
- Publication Year :
- 2006
-
Abstract
- BACKGROUND In pediatric settings, measures of health-related quality of life (HRQL) are often obtained by proxy, especially from parents, but the correlation between parental report and patient report has not been clearly established. In the current study, the authors examined the agreement between child and parent reports of HRQL in children with cancer (both those receiving treatment and those off treatment) and healthy controls. METHODS Two groups of children with cancer who differed with regard to treatment status (n = 199) and a group of healthy control children (n = 108) were assessed using a standardized measure of HRQL. Both children and parents reported on the child's HRQL using parallel forms of the Children's Health Questionnaire. RESULTS Significant parent-child correlations were found for all 10 HRQL scales, and these correlations were higher in the cancer groups compared with controls. Parents in the cancer groups tended to underestimate the HRQL of their children compared with the child report, although there were no significant parent-child mean differences in the group of patients who were off treatment and only 2 significant differences in the group of children receiving treatment. In contrast, parents in the control group tended to overestimate the HRQL of their children, and the parent-child differences were found to be larger, achieving statistical significance on 8 of 10 scales. CONCLUSIONS Parents and children tend to report comparable child HRQL outcomes, and this is particularly true in oncology populations. In cases in which the child is either too young or too ill to provide a self-report, parent-reported HRQL can be viewed as a reliable substitute. Cancer 2006. © 2006 American Cancer Society.
- Subjects :
- Male
Cancer Research
Pediatrics
medicine.medical_specialty
Adolescent
MEDLINE
Proxy (climate)
Quality of life
Reference Values
Statistical significance
Neoplasms
Sickness Impact Profile
Surveys and Questionnaires
Adaptation, Psychological
Medicine
Humans
Parent-Child Relations
Child
Probability
business.industry
Case-control study
Age Factors
Cancer
medicine.disease
Prognosis
humanities
Oncology
El Niño
Case-Control Studies
Quality of Life
Female
Off Treatment
business
Clinical psychology
Subjects
Details
- ISSN :
- 0008543X
- Volume :
- 106
- Issue :
- 10
- Database :
- OpenAIRE
- Journal :
- Cancer
- Accession number :
- edsair.doi.dedup.....ff2cfe1ffca9f69f93045fb3e4fbb98f