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Clinical and community genetics services in the Dutch Caribbean

Authors :
Maria Ponson-Wever
Lidewij Henneman
Meindert E. Manshande
Ginette M. Ecury-Goossen
Mieke M. van Haelst
Marcel M.A.M. Mannens
Eline A. Verberne
Martijn Tilanus
Maartje de Vroomen
Human genetics
APH - Quality of Care
Amsterdam Reproduction & Development (AR&D)
Amsterdam Neuroscience - Complex Trait Genetics
Human Genetics
Graduate School
ACS - Pulmonary hypertension & thrombosis
Source :
Verberne, E A, Ecury-Goossen, G M, Manshande, M E, Ponson-Wever, M, de Vroomen, M, Tilanus, M, Mannens, M M A M, Henneman, L & van Haelst, M M 2021, ' Clinical and community genetics services in the Dutch Caribbean ', Journal of Community Genetics, vol. 12, no. 3, pp. 497-501 . https://doi.org/10.1007/s12687-021-00515-6, https://doi.org/10.1007/s12687-021-00515-6, Journal of Community Genetics, Journal of Community Genetics, 12(3), 497-501. Springer Verlag, Journal of community genetics, 12(3), 497-501. Springer Verlag
Publication Year :
2021

Abstract

The Caribbean part of the Kingdom of the Netherlands consists of six islands: Aruba, Bonaire, Curaçao, St. Maarten, St. Eustatius, and Saba. Because of their small size and relative remoteness, they face several economic and healthcare challenges, including limited access to genetics services. In this article, we provide an overview of the clinical and community genetics services that are available in the Dutch Caribbean. In particular, we describe our joint pediatric-genetics clinic with a visiting clinical geneticist that was established in 2011 to provide clinical genetics services for the pediatric population of the Dutch Caribbean.

Subjects

Subjects :
medicine.medical_specialty
Program Reports
Dutch Caribbean
Epidemiology
business.industry
Public health
Public Health, Environmental and Occupational Health
Community genetics
Geneticist
Human genetics
Limited access
Geography
Genetics services
Health care
medicine
Medical genetics
Clinical genetics
Socioeconomics
business
Genetics (clinical)
Pediatric population

Details

Language :
English
ISSN :
1868310X
Database :
OpenAIRE
Journal :
Verberne, E A, Ecury-Goossen, G M, Manshande, M E, Ponson-Wever, M, de Vroomen, M, Tilanus, M, Mannens, M M A M, Henneman, L & van Haelst, M M 2021, ' Clinical and community genetics services in the Dutch Caribbean ', Journal of Community Genetics, vol. 12, no. 3, pp. 497-501 . https://doi.org/10.1007/s12687-021-00515-6, https://doi.org/10.1007/s12687-021-00515-6, Journal of Community Genetics, Journal of Community Genetics, 12(3), 497-501. Springer Verlag, Journal of community genetics, 12(3), 497-501. Springer Verlag
Accession number :
edsair.doi.dedup.....fdead96b8491eb891a37246f61bb5782

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