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The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries
- Source :
- Croatian Medical Journal, Volume 60, Issue 6
- Publication Year :
- 2019
-
Abstract
- Aim: To determine the prevalence of muscular dystrophy (MD) and spinal muscular atrophy (SMA) in Croatia by use of multiple epidemiological tools. ----- Methods: This epidemiological study collected data from three national patient registries and one database of a non-governmental organization (NGO) of MD and SMA patients. The study involved all individuals who either had undergone hospital treatment for MD or SMA, had consulted their primary health care providers for MD- and SMA-related symptoms, were listed as disabled due to MD or SMA, or were members of the mentioned NGO in 2016. In order to prevent double entries, we created a new database of all living individuals, each with a unique identification number. The prevalence rates for 2016 were calculated by age and sex groups. ----- Results: There were 926 patients diagnosed with MD (544 men). Most men diagnosed with MD were in the age group 10-19, whereas most women were in the age group 50-59. MD prevalence in Croatia was 22.2 per 100 000 population. There were 392 patients diagnosed with SMA (198 men). Most men with SMA were in the age group 50-59, whereas most women were in the age group 60-69. SMA prevalence in Croatia was 9.3 per 100 000 population. ----- Conclusion: SMA prevalence rate in Croatia is similar to SMA prevalence worldwide. However, MD prevalence rate is higher than worldwide estimates. This difference could be attributed to the fact that we could not confirm whether every patient registered in these databases actually met the diagnostic criteria for MD and SMA.
- Subjects :
- musculoskeletal diseases
Adult
Male
BIOMEDICINE AND HEALTHCARE. Clinical Medical Sciences
medicine.medical_specialty
Adolescent
Croatia
education
Muscular Dystrophies
Muscular Atrophy, Spinal
03 medical and health sciences
Young Adult
0302 clinical medicine
Physical medicine and rehabilitation
Age Distribution
Government Agencies
BIOMEDICINA I ZDRAVSTVO. Javno zdravstvo i zdravstvena zaštita
Epidemiology
medicine
Prevalence
Humans
030212 general & internal medicine
Registries
Muscular dystrophy
Sex Distribution
Child
Referral and Consultation
health care economics and organizations
Aged
Organizations
business.industry
BIOMEDICINA I ZDRAVSTVO. Kliničke medicinske znanosti
BIOMEDICINE AND HEALTHCARE. Public Health and Health Care
Infant, Newborn
Infant
social sciences
General Medicine
Spinal muscular atrophy
Middle Aged
medicine.disease
SMA
humanities
Child, Preschool
Female
business
Research Article
Subjects
Details
- Language :
- English
- ISSN :
- 03539504 and 13328166
- Database :
- OpenAIRE
- Journal :
- Croatian Medical Journal, Volume 60, Issue 6
- Accession number :
- edsair.doi.dedup.....f2d460ed1c6c32c8a854a53ad6fef94d