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Recommendations to improve patient‐centred care for ductal carcinoma in situ: Qualitative focus groups with women
- Source :
- Health Expectations, Vol 23, Iss 1, Pp 106-114 (2020), Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
- Publication Year :
- 2020
- Publisher :
- Wiley, 2020.
-
Abstract
- Background Patient-centred care (PCC) improves health-care experiences and outcomes. Women with ductal carcinoma in situ (DCIS) and clinicians have reported communication difficulties. Little prior research has studied how to improve communication and PCC for DCIS. Objective This study explored how to achieve PCC for DCIS. Design Canadian women treated for DCIS from five provinces participated in semi-structured focus groups based on a 6-domain cancer-specific PCC framework to discuss communication about DCIS. Data were analysed using constant comparative technique. Setting and participants Thirty-five women aged 30 to 86 participated in five focus groups at five hospitals. Results Women said their clinicians used multiple approaches for fostering a healing relationship; however, most described an absence of desired information or behaviour to exchange information, respond to emotions, manage uncertainty, make decisions and enable self-management. Most women were confused by terminology, offered little information about the risks of progression/recurrence, uninformed about treatment benefits and risks, frustrated with lack of engagement in decision making, given little information about follow-up plans or self-care advice, and received no acknowledgement or offer of emotional support. Discussion and conclusions By comparing the accounts of women with DCIS to a PCC framework, we identified limitations and inconsistencies in women's lived experience of communication about DCIS, and approaches by which clinicians can more consistently achieve PCC for DCIS. Future research should develop and evaluate informational tools to support PCC for DCIS.
- Subjects :
- Adult
Canada
Emotional support
Acknowledgement
Emotions
Information needs
Breast Neoplasms
decision making
Terminology
03 medical and health sciences
0302 clinical medicine
Nursing
Patient Education as Topic
Patient-Centered Care
ductal carcinoma in situ
Humans
030212 general & internal medicine
skin and connective tissue diseases
Qualitative Research
Aged
patient‐centred care
Aged, 80 and over
Physician-Patient Relations
lcsh:R5-920
communication
030503 health policy & services
Lived experience
lcsh:Public aspects of medicine
Public Health, Environmental and Occupational Health
Patient Preference
lcsh:RA1-1270
Ductal carcinoma
Focus Groups
Middle Aged
Focus group
Original Research Paper
Carcinoma, Intraductal, Noninfiltrating
Female
0305 other medical science
Psychology
lcsh:Medicine (General)
Original Research Papers
Patient centred
Subjects
Details
- Language :
- English
- ISSN :
- 13696513 and 13697625
- Volume :
- 23
- Issue :
- 1
- Database :
- OpenAIRE
- Journal :
- Health Expectations
- Accession number :
- edsair.doi.dedup.....f0ad2ede00bf634ab181ac64983fa77e