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The Congenital Diaphragmatic Hernia Study Group Registry
- Source :
- European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie. 25(6)
- Publication Year :
- 2015
-
Abstract
- Congenital diaphragmatic hernia (CDH) is a rare anomaly with an incidence between 1/2,500 and 1/3,000 live births. The rarity of the disease makes it difficult to design powerful studies leading to accurate and meaningful evidence. For rare diseases, the development of multicenter international registries may help in collecting data and give an overall picture of the disease. In this review, we will describe the development of the CDH study group, we will describe its work methodology, and the results obtained since its birth in 1995.
- Subjects :
- Pediatrics
medicine.medical_specialty
MEDLINE
Diaphragmatic breathing
Disease
registry
Risk Assessment
congenital diaphragmatic hernia
stratification
Research Support as Topic
medicine
Humans
Registries
treatment
business.industry
Incidence (epidemiology)
Data Collection
Congenital diaphragmatic hernia
medicine.disease
Prognosis
Combined Modality Therapy
Pediatrics, Perinatology and Child Health
Settore MED/20
Surgery
business
Hernias, Diaphragmatic, Congenital
management
Subjects
Details
- ISSN :
- 1439359X
- Volume :
- 25
- Issue :
- 6
- Database :
- OpenAIRE
- Journal :
- European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie
- Accession number :
- edsair.doi.dedup.....d73c284d803d10fdaf97e00d71e6dab6