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Assessment of orofacial symptoms in juvenile idiopathic arthritis:Validation of a consensus-based short patient questionnaire
- Source :
- Stoustrup, P, Rahimi, H, Twilt, M, Goh, Y I, Pedersen, T K, Herlin, T & Spiegel, L 2023, ' Assessment of orofacial symptoms in juvenile idiopathic arthritis : Validation of a consensus-based short patient questionnaire ', The Journal of Rheumatology, vol. 50, no. 5, pp. 676-683 . https://doi.org/10.3899/jrheum.220667
- Publication Year :
- 2023
-
Abstract
- ObjectiveTo develop, validate, and test the performance of patient-reported outcomes (PROs) in a short patient questionnaire (< 5 minutes in length) in order to assess the multidimensional aspects of orofacial symptoms related to juvenile idiopathic arthritis (JIA) among patients aged ≥ 10 years.MethodsThe study was conducted by an interdisciplinary task force from the Temporomandibular Joint Juvenile Arthritis Working Group. The project consisted of a multiphased approach including the following: (1) conceptual phase with online international survey of 167 healthcare workers, (2) item generation and drafting of preliminary questionnaire(s) (ie, face validity), (3) cognitive script interview and probing (ie, content validity; 16 patients with JIA), (4) assessment of construct validity (ie, convergence and divergence; 53 patients with JIA), (5) test of reliability, and (6) test of clinical performance and psychometric characteristics (95 patients with JIA).ResultsIn total, 7 PROs were included in the final patient questionnaire: (1) pain frequency, (2) pain intensity, (3) pain location, (4) jaw function, (5) specific questions related to symptoms and dysfunction, (6) changes in face and jaw pain since last visit, and (7) changes in jaw function since last visit. In total, 80% of the patients were able to complete the questionnaire in less than 5 minutes.ConclusionWe have developed and validated a short patient questionnaire to assess the multidimensional aspects of JIA-related orofacial symptoms. The PROs included in our questionnaire show acceptable validity and reliability. The questionnaire is applicable to routine monitoring of subjects with JIA, as well as future research studies.
- Subjects :
- Consensus
Psychometrics
Health Status
Immunology
Arthritis, Juvenile/diagnosis
Reproducibility of Results
Disability Evaluation
Rheumatology
Musculoskeletal Pain
Predictive Value of Tests
Case-Control Studies
Surveys and Questionnaires
Quality of Life
Immunology and Allergy
Humans
Parents/psychology
Subjects
Details
- Language :
- English
- Database :
- OpenAIRE
- Journal :
- Stoustrup, P, Rahimi, H, Twilt, M, Goh, Y I, Pedersen, T K, Herlin, T & Spiegel, L 2023, ' Assessment of orofacial symptoms in juvenile idiopathic arthritis : Validation of a consensus-based short patient questionnaire ', The Journal of Rheumatology, vol. 50, no. 5, pp. 676-683 . https://doi.org/10.3899/jrheum.220667
- Accession number :
- edsair.doi.dedup.....cfcdbf6921057874395069006cfd4502