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Staff and participant perceptions of optimal recruitment and retention strategies for biomedical cohort studies in the Caribbean
- Source :
- Cancer Causes & Control
- Publication Year :
- 2021
- Publisher :
- Springer Science and Business Media LLC, 2021.
-
Abstract
- Purpose To identify staff and participants perspectives of best practices that facilitate achieving enrollment and retention targets in biomedical cohort studies in Caribbean populations. Methods Eight focus group discussions (FGDs) were held with research stakeholders including research (i) nurses/study supervisors, (ii) field staff/data collectors, and (iii) rural and urban participants of the Third Jamaica Health and Lifestyle Survey (a national NCD risk factor survey with biospecimen collection) to capture qualitative data on experiences with recruitment, training, retention challenges and potential solutions or strategies for strengthening future efforts. Results Our findings indicate that trained, experienced study staff with good interpersonal communication skills enhanced the proficiency of field operations and attracted study participants. Targeted community and stakeholder engagement alongside strong support from the coordinating center increased the reach and efficiency of the data collectors. Timely participant feedback, gender-appropriate approaches, and socioeconomic balance enhanced equitable enrollment and retention of participants of cohort studies particularly the hard to reach groups. Conclusion Well-functioning research teams using traditional and social media promotion, applying gender-appropriate and personalized approaches together with strategies for reaching the less accessible socioeconomic groups, are effective for recruiting and retaining members of a Caribbean cohort. These strategies may also enhance the recruitment of other Black populations in the Diaspora including the US and Caribbean into biomedical studies including cancer research.
- Subjects :
- Adult
Male
Rural Population
Jamaica
Cancer Research
Biomedical Research
West Indies
Best practice
media_common.quotation_subject
Black People
Stakeholder engagement
Interpersonal communication
Cohort Studies
Young Adult
03 medical and health sciences
0302 clinical medicine
Promotion (rank)
Humans
Medicine
030212 general & internal medicine
Qualitative Research
Aged
media_common
Aged, 80 and over
Caribbean
Original Paper
Medical education
business.industry
Focus Groups
Middle Aged
Focus group
Caribbean Region
Retention
Oncology
030220 oncology & carcinogenesis
Cohort
Female
Perception
Recruitment
business
Cohort study
Qualitative research
Subjects
Details
- ISSN :
- 15737225 and 09575243
- Volume :
- 32
- Database :
- OpenAIRE
- Journal :
- Cancer Causes & Control
- Accession number :
- edsair.doi.dedup.....c5445d6e8618f8402d23117291c56f61